Hello All

[Guest guest]

Thank you so much, your group is wonderful I shall start my diet today (and i

mean it this time) lol.

 

 

[Guest guest]

Hi Mike

 

So glad you and the family are having such a great time.

 

What a life! Just laying around on the beach. LOL. Enjoy every minute that you

can. We all wish that we could be there with you, you're in our thoughts and

prayers.

 

Talk to you soon Hope we can have that chat on Thursday.

 

Sue C

Moderator

 

PS All is well here

From: Mike M <mike2boys@...>

Subject: Hello all

" stimulator " <Stimulator >

Date: Tuesday, August 12, 2008, 11:57 AM

Helllo everyone my family having a geeat time here in ocean city maryland. our

hotel is amazing I want to steal there beds. lol hotel has free internet free.

hotel has big pool indoor sauna and there hot tubs are outside. but seeing im on

the durgesic patch I cant get in sauna and have make sure my upper arm doesn't

touch the hot tube or It would realease my meds to fast. we are spending most

time on beach. I hope everyone doing great.. Mike group owner

[Guest guest]

That's good news for you, Jean. Now just take things easy for a while

and get pampered if you can.

Ted F.

>

> hello every one i said i would keep all of you updated so here i am.

i had surgery on Monday and yes i still hurt. but some results came

back, the cancer didn't go all the way through but he said in six

months if my test comes back abnormal i have the option of a

hysterectomy. so thats all the news i have so far. again i want to

thank all of you for your support through this difficult time, when

each of you said you were my friends you meant it!

>

[Guest guest]

Sending prayers your way for a good outcome and speedy recovery. Jackie )

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

[Guest guest]

I'm so happy to read this and wish you the best while you recover. It sounds as

if you are in good hands and that you are headed in the right direction. I hope

you received your answer about chemo and the CI in case of necessity. Please

keep us informed. You have done a great service to this group by sharing your

latest medical problems. It's a reminder to all of us to have regular medical

checkups.

Now is the time for you rest and let your body heal. We are all here for you.

Alice

http://www..com<http://www..com/>

[Guest guest]

At 07:54 AM 10/21/2008, you wrote:

>By no means am I a drug seeker... I need to say that from the start...

I'm sure your not though many of us get pigeonholed into that. I

just went through it with my Wife who gets severe migraines that are

only controlled by morphine. We were out of town, actually out of

state and the Doctor refused to giver her morphine. This required her

going back 2 days later and totally ruining our vacation, plus

costing our insurance $1800 x 2 visits when one would have done it,

for $5.00 worth of morphine.

> Does anyone know of anyplace to purchase meds to help deal with

> the pain...off the net...

>again I am not a drug seeker but I am tired of going to doc to doc to

>deal with this issue.

I'm sure you are very frustrated and in pain and need to work. First

off no one on this list should refer you or anyone else to anywhere

selling narcotics. If someone does that off the list, that's between

2 adults I don't condone it. What I do highly suggest is that you

call around for a chronic pain management program. With the

surgeries you describe and the 2 " difference in hip height and the

fact you must work, you certainly qualify. Any good pain management

clinic / program should be able to prescribe appropriate medications.

As for SSDI you may qualify but it would be hard at 40. I started my

problems at 40 and finally won my case at age 47. The closer you are

to being near or over 50 the better the chance. Also it's not much

for a single mom and child to live on. If my wife didn't work I

wouldn't get by. I welcome you to the list, wish you success and

prayers in finding relief, and hope that others will welcome you and

offer advice.

If you go to our group home page on . Then look for

files, member stories, then Dave's story you will see my path from

age 21 until age 47 of chronic pain and surgeries.

Blessings to you, Dave moderator

[Guest guest]

At 07:54 AM 10/21/2008, you wrote:

>By no means am I a drug seeker... I need to say that from the start...

I'm sure your not though many of us get pigeonholed into that. I

just went through it with my Wife who gets severe migraines that are

only controlled by morphine. We were out of town, actually out of

state and the Doctor refused to giver her morphine. This required her

going back 2 days later and totally ruining our vacation, plus

costing our insurance $1800 x 2 visits when one would have done it,

for $5.00 worth of morphine.

> Does anyone know of anyplace to purchase meds to help deal with

> the pain...off the net...

>again I am not a drug seeker but I am tired of going to doc to doc to

>deal with this issue.

I'm sure you are very frustrated and in pain and need to work. First

off no one on this list should refer you or anyone else to anywhere

selling narcotics. If someone does that off the list, that's between

2 adults I don't condone it. What I do highly suggest is that you

call around for a chronic pain management program. With the

surgeries you describe and the 2 " difference in hip height and the

fact you must work, you certainly qualify. Any good pain management

clinic / program should be able to prescribe appropriate medications.

As for SSDI you may qualify but it would be hard at 40. I started my

problems at 40 and finally won my case at age 47. The closer you are

to being near or over 50 the better the chance. Also it's not much

for a single mom and child to live on. If my wife didn't work I

wouldn't get by. I welcome you to the list, wish you success and

prayers in finding relief, and hope that others will welcome you and

offer advice.

If you go to our group home page on . Then look for

files, member stories, then Dave's story you will see my path from

age 21 until age 47 of chronic pain and surgeries.

Blessings to you, Dave moderator

[Guest guest]

At 07:54 AM 10/21/2008, you wrote:

>By no means am I a drug seeker... I need to say that from the start...

I'm sure your not though many of us get pigeonholed into that. I

just went through it with my Wife who gets severe migraines that are

only controlled by morphine. We were out of town, actually out of

state and the Doctor refused to giver her morphine. This required her

going back 2 days later and totally ruining our vacation, plus

costing our insurance $1800 x 2 visits when one would have done it,

for $5.00 worth of morphine.

> Does anyone know of anyplace to purchase meds to help deal with

> the pain...off the net...

>again I am not a drug seeker but I am tired of going to doc to doc to

>deal with this issue.

I'm sure you are very frustrated and in pain and need to work. First

off no one on this list should refer you or anyone else to anywhere

selling narcotics. If someone does that off the list, that's between

2 adults I don't condone it. What I do highly suggest is that you

call around for a chronic pain management program. With the

surgeries you describe and the 2 " difference in hip height and the

fact you must work, you certainly qualify. Any good pain management

clinic / program should be able to prescribe appropriate medications.

As for SSDI you may qualify but it would be hard at 40. I started my

problems at 40 and finally won my case at age 47. The closer you are

to being near or over 50 the better the chance. Also it's not much

for a single mom and child to live on. If my wife didn't work I

wouldn't get by. I welcome you to the list, wish you success and

prayers in finding relief, and hope that others will welcome you and

offer advice.

If you go to our group home page on . Then look for

files, member stories, then Dave's story you will see my path from

age 21 until age 47 of chronic pain and surgeries.

Blessings to you, Dave moderator

[Guest guest]

At 07:54 AM 10/21/2008, you wrote:

>By no means am I a drug seeker... I need to say that from the start...

I'm sure your not though many of us get pigeonholed into that. I

just went through it with my Wife who gets severe migraines that are

only controlled by morphine. We were out of town, actually out of

state and the Doctor refused to giver her morphine. This required her

going back 2 days later and totally ruining our vacation, plus

costing our insurance $1800 x 2 visits when one would have done it,

for $5.00 worth of morphine.

> Does anyone know of anyplace to purchase meds to help deal with

> the pain...off the net...

>again I am not a drug seeker but I am tired of going to doc to doc to

>deal with this issue.

I'm sure you are very frustrated and in pain and need to work. First

off no one on this list should refer you or anyone else to anywhere

selling narcotics. If someone does that off the list, that's between

2 adults I don't condone it. What I do highly suggest is that you

call around for a chronic pain management program. With the

surgeries you describe and the 2 " difference in hip height and the

fact you must work, you certainly qualify. Any good pain management

clinic / program should be able to prescribe appropriate medications.

As for SSDI you may qualify but it would be hard at 40. I started my

problems at 40 and finally won my case at age 47. The closer you are

to being near or over 50 the better the chance. Also it's not much

for a single mom and child to live on. If my wife didn't work I

wouldn't get by. I welcome you to the list, wish you success and

prayers in finding relief, and hope that others will welcome you and

offer advice.

If you go to our group home page on . Then look for

files, member stories, then Dave's story you will see my path from

age 21 until age 47 of chronic pain and surgeries.

Blessings to you, Dave moderator

[Guest guest]

Thank you so very much for your words...

I appreciate your time in answering these for me

>

> >By no means am I a drug seeker... I need to say that from the

start...

>

> I'm sure your not though many of us get pigeonholed into that. I

> just went through it with my Wife who gets severe migraines that

are

> only controlled by morphine. We were out of town, actually out of

> state and the Doctor refused to giver her morphine. This required

her

> going back 2 days later and totally ruining our vacation, plus

> costing our insurance $1800 x 2 visits when one would have done it,

> for $5.00 worth of morphine.

>

> > Does anyone know of anyplace to purchase meds to help deal with

> > the pain...off the net...

> >again I am not a drug seeker but I am tired of going to doc to doc

to

> >deal with this issue.

>

> I'm sure you are very frustrated and in pain and need to work.

First

> off no one on this list should refer you or anyone else to anywhere

> selling narcotics. If someone does that off the list, that's

between

> 2 adults I don't condone it. What I do highly suggest is that you

> call around for a chronic pain management program. With the

> surgeries you describe and the 2 " difference in hip height and the

> fact you must work, you certainly qualify. Any good pain

management

> clinic / program should be able to prescribe appropriate

medications.

>

> As for SSDI you may qualify but it would be hard at 40. I started

my

> problems at 40 and finally won my case at age 47. The closer you

are

> to being near or over 50 the better the chance. Also it's not much

> for a single mom and child to live on. If my wife didn't work I

> wouldn't get by. I welcome you to the list, wish you success and

> prayers in finding relief, and hope that others will welcome you

and

> offer advice.

>

> If you go to our group home page on . Then look for

> files, member stories, then Dave's story you will see my path from

> age 21 until age 47 of chronic pain and surgeries.

>

> Blessings to you, Dave moderator

>

[Guest guest]

Thank you so very much for your words...

I appreciate your time in answering these for me

>

> >By no means am I a drug seeker... I need to say that from the

start...

>

> I'm sure your not though many of us get pigeonholed into that. I

> just went through it with my Wife who gets severe migraines that

are

> only controlled by morphine. We were out of town, actually out of

> state and the Doctor refused to giver her morphine. This required

her

> going back 2 days later and totally ruining our vacation, plus

> costing our insurance $1800 x 2 visits when one would have done it,

> for $5.00 worth of morphine.

>

> > Does anyone know of anyplace to purchase meds to help deal with

> > the pain...off the net...

> >again I am not a drug seeker but I am tired of going to doc to doc

to

> >deal with this issue.

>

> I'm sure you are very frustrated and in pain and need to work.

First

> off no one on this list should refer you or anyone else to anywhere

> selling narcotics. If someone does that off the list, that's

between

> 2 adults I don't condone it. What I do highly suggest is that you

> call around for a chronic pain management program. With the

> surgeries you describe and the 2 " difference in hip height and the

> fact you must work, you certainly qualify. Any good pain

management

> clinic / program should be able to prescribe appropriate

medications.

>

> As for SSDI you may qualify but it would be hard at 40. I started

my

> problems at 40 and finally won my case at age 47. The closer you

are

> to being near or over 50 the better the chance. Also it's not much

> for a single mom and child to live on. If my wife didn't work I

> wouldn't get by. I welcome you to the list, wish you success and

> prayers in finding relief, and hope that others will welcome you

and

> offer advice.

>

> If you go to our group home page on . Then look for

> files, member stories, then Dave's story you will see my path from

> age 21 until age 47 of chronic pain and surgeries.

>

> Blessings to you, Dave moderator

>

[Guest guest]

Thank you so very much for your words...

I appreciate your time in answering these for me

>

> >By no means am I a drug seeker... I need to say that from the

start...

>

> I'm sure your not though many of us get pigeonholed into that. I

> just went through it with my Wife who gets severe migraines that

are

> only controlled by morphine. We were out of town, actually out of

> state and the Doctor refused to giver her morphine. This required

her

> going back 2 days later and totally ruining our vacation, plus

> costing our insurance $1800 x 2 visits when one would have done it,

> for $5.00 worth of morphine.

>

> > Does anyone know of anyplace to purchase meds to help deal with

> > the pain...off the net...

> >again I am not a drug seeker but I am tired of going to doc to doc

to

> >deal with this issue.

>

> I'm sure you are very frustrated and in pain and need to work.

First

> off no one on this list should refer you or anyone else to anywhere

> selling narcotics. If someone does that off the list, that's

between

> 2 adults I don't condone it. What I do highly suggest is that you

> call around for a chronic pain management program. With the

> surgeries you describe and the 2 " difference in hip height and the

> fact you must work, you certainly qualify. Any good pain

management

> clinic / program should be able to prescribe appropriate

medications.

>

> As for SSDI you may qualify but it would be hard at 40. I started

my

> problems at 40 and finally won my case at age 47. The closer you

are

> to being near or over 50 the better the chance. Also it's not much

> for a single mom and child to live on. If my wife didn't work I

> wouldn't get by. I welcome you to the list, wish you success and

> prayers in finding relief, and hope that others will welcome you

and

> offer advice.

>

> If you go to our group home page on . Then look for

> files, member stories, then Dave's story you will see my path from

> age 21 until age 47 of chronic pain and surgeries.

>

> Blessings to you, Dave moderator

>

[Guest guest]

Thank you so very much for your words...

I appreciate your time in answering these for me

>

> >By no means am I a drug seeker... I need to say that from the

start...

>

> I'm sure your not though many of us get pigeonholed into that. I

> just went through it with my Wife who gets severe migraines that

are

> only controlled by morphine. We were out of town, actually out of

> state and the Doctor refused to giver her morphine. This required

her

> going back 2 days later and totally ruining our vacation, plus

> costing our insurance $1800 x 2 visits when one would have done it,

> for $5.00 worth of morphine.

>

> > Does anyone know of anyplace to purchase meds to help deal with

> > the pain...off the net...

> >again I am not a drug seeker but I am tired of going to doc to doc

to

> >deal with this issue.

>

> I'm sure you are very frustrated and in pain and need to work.

First

> off no one on this list should refer you or anyone else to anywhere

> selling narcotics. If someone does that off the list, that's

between

> 2 adults I don't condone it. What I do highly suggest is that you

> call around for a chronic pain management program. With the

> surgeries you describe and the 2 " difference in hip height and the

> fact you must work, you certainly qualify. Any good pain

management

> clinic / program should be able to prescribe appropriate

medications.

>

> As for SSDI you may qualify but it would be hard at 40. I started

my

> problems at 40 and finally won my case at age 47. The closer you

are

> to being near or over 50 the better the chance. Also it's not much

> for a single mom and child to live on. If my wife didn't work I

> wouldn't get by. I welcome you to the list, wish you success and

> prayers in finding relief, and hope that others will welcome you

and

> offer advice.

>

> If you go to our group home page on . Then look for

> files, member stories, then Dave's story you will see my path from

> age 21 until age 47 of chronic pain and surgeries.

>

> Blessings to you, Dave moderator

>

[Guest guest]

Cherese

 

Welcome to the group.  My name is Sue.

 

I have 2 spinal cord stimulators and a pain pump. I have RSD, disc problems in

my neck and back, spinal stenosis, thyroid and pituitary problems.

 

I am glad the the SCS is working well for you. It's not a cure all, but it does

help tremendously. It helps improve ones quality of life. Even with the SCS you

must remember to do things in moderation. If you overdo, or do things that you

shouldn't be doing, you will increase your pain. The stim doesn't cure the

problem, but it does help ease the symptoms. The fact that you were able to

reduce your meds is great. Isn't it great not feeling drugged out all the

time?  lol  It does take time getting used to it. The important thing is that it

is helping you.

 

If you have any questions or need any information, please contact me

 

Sue C

Moderator

 

 

 

From: ms_nikki48 <ms_nikki48@...>

Subject: Hello All

Stimulator

Date: Thursday, November 13, 2008, 5:41 PM

My name is Cherese, I had my SCS placed almost 2 months ago and

besides the fact that I am still getting used to it, I really like

it. Just to give you all some history on me.

I had scoliosis growing up but it didnt seem to be a concern to my

doctor. About 3 yrs ago I developed spondylolisthesis, my doctors

believe I had some sort of trama that started it. (I did get hit in

the head while standing on something at work, so my belief is the

jurking and trying to catch myself and keep from falling did it).

I had a 4 level fusion with hardware 2 months after finding out (my

husband is military and I had to wait for his return before the

fusion) in that time the spondy went from grade 2 to grade 3 (I guess

running a house with kids alone is more stressful then they say,

lol).

When I awoke from surgery my toes were tingling and havent stopped

since. Since then the outer part of my right calf has gone numb and I

now have frequent leg cramps in addition to the nerve pain and

tingling. SCS was suggested a year after my surgery because things

werent getting better, I had two cortisone shots that lasted only a

month or so and even then didnt take care of everything. The

scoliosis that was in my lumbar spine has since moved up.

I have been on more meds than I care to list and given our military

lifestyle I cant afford time to being drugged up. I wanted off the

meds and we did the SCS trial, I loved it. So on we moved and here I

am today. The SCS takes care of most of my daily pains, the sudden

sharp ones still get me from time to time. However it doesnt help the

cramps at all. For those I am on Requip and another med my pain

management doc gave me that isnt as harsh as the other ones were.

I know that was long but just wanted to properly introduce myself.

Looking forward to hearing about each of you and your experiences.

Please feel free to share advice on making things better and easier.

Cherese

[Guest guest]

Hi Cherese

I wanted to share as you talked about your scoliosis. I have had it I am sure

all my life however I was never told that was the " culprit " of all my back

problems and was progressive until I saw a specialist who did my 2 level lumbar

fusion in NY. I had been told I had mild scoliosis prior to that by a back

surgeon but was not given the " skinny " on the issue.

I am now going to have my trial done on Tuesday I can relate to your issues as

my fusion failed and I was told i can be looking at trying to shore up

additional levels in the future UUGGH!

Anyway welcome to the group I am a newbie here pretty much!

Kim

Hello All

My name is Cherese, I had my SCS placed almost 2 months ago and

besides the fact that I am still getting used to it, I really like

it. Just to give you all some history on me.

I had scoliosis growing up but it didnt seem to be a concern to my

doctor. About 3 yrs ago I developed spondylolisthesis, my doctors

believe I had some sort of trama that started it. (I did get hit in

the head while standing on something at work, so my belief is the

jurking and trying to catch myself and keep from falling did it).

I had a 4 level fusion with hardware 2 months after finding out (my

husband is military and I had to wait for his return before the

fusion) in that time the spondy went from grade 2 to grade 3 (I guess

running a house with kids alone is more stressful then they say,

lol).

When I awoke from surgery my toes were tingling and havent stopped

since. Since then the outer part of my right calf has gone numb and I

now have frequent leg cramps in addition to the nerve pain and

tingling. SCS was suggested a year after my surgery because things

werent getting better, I had two cortisone shots that lasted only a

month or so and even then didnt take care of everything. The

scoliosis that was in my lumbar spine has since moved up.

I have been on more meds than I care to list and given our military

lifestyle I cant afford time to being drugged up. I wanted off the

meds and we did the SCS trial, I loved it. So on we moved and here I

am today. The SCS takes care of most of my daily pains, the sudden

sharp ones still get me from time to time. However it doesnt help the

cramps at all. For those I am on Requip and another med my pain

management doc gave me that isnt as harsh as the other ones were.

I know that was long but just wanted to properly introduce myself.

Looking forward to hearing about each of you and your experiences.

Please feel free to share advice on making things better and easier.

Cherese

[Guest guest]

Hi Kim,

I hope the trial goes well for you.

>

> Hi Cherese

> I wanted to share as you talked about your scoliosis. I have had it

I am sure all my life however I was never told that was the " culprit "

of all my back problems and was progressive until I saw a specialist

who did my 2 level lumbar fusion in NY. I had been told I had mild

scoliosis prior to that by a back surgeon but was not given

the " skinny " on the issue.

> I am now going to have my trial done on Tuesday I can relate to

your issues as my fusion failed and I was told i can be looking at

trying to shore up additional levels in the future UUGGH!

> Anyway welcome to the group I am a newbie here pretty much!

> Kim

> Hello All

>

>

> My name is Cherese, I had my SCS placed almost 2 months ago and

> besides the fact that I am still getting used to it, I really

like

> it. Just to give you all some history on me.

>

> I had scoliosis growing up but it didnt seem to be a concern to

my

> doctor. About 3 yrs ago I developed spondylolisthesis, my doctors

> believe I had some sort of trama that started it. (I did get hit

in

> the head while standing on something at work, so my belief is the

> jurking and trying to catch myself and keep from falling did it).

>

> I had a 4 level fusion with hardware 2 months after finding out

(my

> husband is military and I had to wait for his return before the

> fusion) in that time the spondy went from grade 2 to grade 3 (I

guess

> running a house with kids alone is more stressful then they say,

> lol).

>

> When I awoke from surgery my toes were tingling and havent

stopped

> since. Since then the outer part of my right calf has gone numb

and I

> now have frequent leg cramps in addition to the nerve pain and

> tingling. SCS was suggested a year after my surgery because

things

> werent getting better, I had two cortisone shots that lasted only

a

> month or so and even then didnt take care of everything. The

> scoliosis that was in my lumbar spine has since moved up.

>

> I have been on more meds than I care to list and given our

military

> lifestyle I cant afford time to being drugged up. I wanted off

the

> meds and we did the SCS trial, I loved it. So on we moved and

here I

> am today. The SCS takes care of most of my daily pains, the

sudden

> sharp ones still get me from time to time. However it doesnt help

the

> cramps at all. For those I am on Requip and another med my pain

> management doc gave me that isnt as harsh as the other ones were.

>

> I know that was long but just wanted to properly introduce myself.

>

> Looking forward to hearing about each of you and your

experiences.

> Please feel free to share advice on making things better and

easier.

>

> Cherese

>

>

>

>

>

>

[Guest guest]

Thanks!

Hello All

>

>

> My name is Cherese, I had my SCS placed almost 2 months ago and

> besides the fact that I am still getting used to it, I really

like

> it. Just to give you all some history on me.

>

> I had scoliosis growing up but it didnt seem to be a concern to

my

> doctor. About 3 yrs ago I developed spondylolisthesis, my doctors

> believe I had some sort of trama that started it. (I did get hit

in

> the head while standing on something at work, so my belief is the

> jurking and trying to catch myself and keep from falling did it).

>

> I had a 4 level fusion with hardware 2 months after finding out

(my

> husband is military and I had to wait for his return before the

> fusion) in that time the spondy went from grade 2 to grade 3 (I

guess

> running a house with kids alone is more stressful then they say,

> lol).

>

> When I awoke from surgery my toes were tingling and havent

stopped

> since. Since then the outer part of my right calf has gone numb

and I

> now have frequent leg cramps in addition to the nerve pain and

> tingling. SCS was suggested a year after my surgery because

things

> werent getting better, I had two cortisone shots that lasted only

a

> month or so and even then didnt take care of everything. The

> scoliosis that was in my lumbar spine has since moved up.

>

> I have been on more meds than I care to list and given our

military

> lifestyle I cant afford time to being drugged up. I wanted off

the

> meds and we did the SCS trial, I loved it. So on we moved and

here I

> am today. The SCS takes care of most of my daily pains, the

sudden

> sharp ones still get me from time to time. However it doesnt help

the

> cramps at all. For those I am on Requip and another med my pain

> management doc gave me that isnt as harsh as the other ones were.

>

> I know that was long but just wanted to properly introduce myself.

>

> Looking forward to hearing about each of you and your

experiences.

> Please feel free to share advice on making things better and

easier.

>

> Cherese

>

>

>

>

>

>

[Guest guest]

Hi Stephani,

You are as far away as the United States allows us to be. We are in

Michigan...the tippy top of the lower penninsula. My husband has a severe TBI

also. It is always nice to know someone who can relate. I have a 5 1/2 hour

drive to Detroit where we are going for our HBOT treatments...Not easy to pack a

whole room of equipment and go, but it sure is worth the benefits. I hope and

pray the results of all your efforts pay off and that your husband is aware of

how much he is loved. God bless and strengthen you both.

and Wayne Greenwood

medicaid

From: stephanividrine@...

Date: Sat, 28 Feb 2009 14:06:32 +0000

Subject: [ ] Hello all

We are just finshing up my husband's last dive today this makes 40th

one, i already noticed that he has better balance, is more alert, hold

his head up better and his right leg and arm is much more flexible. We

had been staying in San for a month at a hotel going back and

forth to the clinic he got treatments 2 times a day 5 days a week, @

1.5 ata 60 minutes AT the pressure level.(brian, my husband had a

severe closed head injury) This clinic is wonderful the owners

(raymond, betty barnes) also are there everyday, they have a deal with

the hotel (which is a mile from the clinic) where the pricing was

awesome, only paid 38 dollars (tax included) a night for a FULL

kitchen, bed living room bath and FREE unlimited internet, outside

swimming pool and a hot whirlpool too. The total for the treatment was

only $5,000 for 40 tx... Just letting anyone know about this the owners

are really great, they have treated so many children and adults

(stroke, austim, near drowning ect..)! That place is CLEAN and this is

way cheaper than any other clinics i have looked into... Prayers to

ya'll Stephani Vidrine

this is their website just updated

http://www.hyperbaricsofsanantonio.com/index.html

_________________________________________________________________

Express your personality in color! Preview and select themes for Hotmail®.

http://www.windowslive-hotmail.com/LearnMore/personalize.aspx?ocid=TXT_MSGTX_WL_\

HM_express_032009#colortheme

[Guest guest]

Welcome to the group Rebekah, I am glad that you were able to find us so you

have more support and a place to vent. I have only been with the group a short

time and they have all been so awesome in helping me through my issues. I look

forward to getting to know you and I am here to lend my ear for your vents.

Hugs

>

> Hello all my name is Rebekah and I am a newbee to this group. I was diagnosed

with CRPS in my left hand with a mirroring of symptoms in my right upper

extremity last year after suffering with uncontrollable pain for three+ years.

This all started after being struck with a foal ball at a baseball game. I went

from doc to doc who all thought I was seeking pain meds, and thinking I was off

my rocker. I had a couple of surgeries on my ulanr nerve with no real benefits,

and was left with to hands with significant contractures and very little

strength. I currently wear napkin ring braces on both of my hands so that I am

able to have some functional use of them. I finally hooked up with a doctor in

Boston at the Arnold Pain Management Center who diagnosed me with CRPS and was

willing to start treating me. I went through nerve blocks, lidocaine infusions,

and countless meds with no real pain relief. I had a SCS implanted in january of

this year which was anchored only in the left cervical spine so I do not get

relief in the right arm at this point. It was one of the best moves I have ever

made, when it is on I am almost pain free, it's wonderful. Recently however I

have had an increase of symptoms and pain in the right arm, and had some

unexplained, and intense pain in my left lower leg, as well. I saw my

neurologist for this and had a complete work-up, with no definative results. He

has sent me to a couple of docs who say that CRPS does not mirror to other

regions of the body, so there is no way this can be the diagnosis. So what does

he conclude? I have conversion disorder, and my brain is causing the symptoms in

my body as a result of outside stressors! Anyway I found this group because I am

soooooo frustrated and looking for support, before I really do go nuts. Thanks

in advance, Rebekah

>

[Guest guest]

Rebekah

Welcome to the group. My name is Sue. I also have RSD/CRPS. I have 2 SCS and a

pain pump.

I also went from dr to dr trying to get a diagnosis. It took me 4 yrs. to find a

dr. who finally did. I had  2 shoulder surgeries and couldn't use my arm. I kept

 getting worse and noone could tell me what was wrong. I had drs tell me it was

all in my head, there wasn't anything wrong with me. The scs helped the symptoms

of the RSD/CRPS and helped me regain the use of my arm.

RSD/CRPS does spread. I have it in my upper and lower body. That's why I have a

cervical and lumbar scs.

Do you feel any stimulation in your right arm? If not, maybe the rep can

re-program the stim to give you some. If not, maybe the dr can add another lead

to give you stim into the right arm to give you relief.

I'm not the person I was before, but the scs and pump have made it possible for

me to be able to function.

Sue C

Moderator

________________________________

From: Rebekah <WRHSREBEKAH@...>

Stimulator

Sent: Saturday, April 4, 2009 9:22:28 AM

Subject: hello all

Hello all my name is Rebekah and I am a newbee to this group. I was diagnosed

with CRPS in my left hand with a mirroring of symptoms in my right upper

extremity last year after suffering with uncontrollable pain for three+ years.

This all started after being struck with a foal ball at a baseball game. I went

from doc to doc who all thought I was seeking pain meds, and thinking I was off

my rocker. I had a couple of surgeries on my ulanr nerve with no real benefits,

and was left with to hands with significant contractures and very little

strength. I currently wear napkin ring braces on both of my hands so that I am

able to have some functional use of them. I finally hooked up with a doctor in

Boston at the Arnold Pain Management Center who diagnosed me with CRPS and was

willing to start treating me.. I went through nerve blocks, lidocaine infusions,

and countless meds with no real pain relief. I had a SCS implanted in january of

this year which was

anchored only in the left cervical spine so I do not get relief in the right

arm at this point. It was one of the best moves I have ever made, when it is on

I am almost pain free, it's wonderful. Recently however I have had an increase

of symptoms and pain in the right arm, and had some unexplained, and intense

pain in my left lower leg, as well. I saw my neurologist for this and had a

complete work-up, with no definative results. He has sent me to a couple of docs

who say that CRPS does not mirror to other regions of the body, so there is no

way this can be the diagnosis. So what does he conclude? I have conversion

disorder, and my brain is causing the symptoms in my body as a result of outside

stressors! Anyway I found this group because I am soooooo frustrated and looking

for support, before I really do go nuts. Thanks in advance, Rebekah

[Guest guest]

Congratulations,

You will have no regrets.  Honest.

On Wed, Apr 22, 2009 at 1:58 PM, mary_rpn <mary_rpn@...> wrote:

I just wanted to post to say thanks for all of the great tips and information you all share and the support you give to each other. It has helped me to make my decision, I am set to have surgery on Friday, yeah. Originally I was going to go with the band but changed my mind to get the sleeve.

ann

[Guest guest]

Hey ann,

Smart girl going with the sleeve. We will arrive on Sunday, and I will try to find you and drop in and say Hi. You will never have a regret for your choice. This will be the first day of the rest of your life--a wonderful life too!

Hugs,

Suzanne

In a message dated 04/22/09 14:22:40 Pacific Daylight Time, mary_rpn@... writes:

I just wanted to post to say thanks for all of the great tips and information you all share and the support you give to each other. It has helped me to make my decision, I am set to have surgery on Friday, yeah. Originally I was going to go with the band but changed my mind to get the sleeve.ann

[Guest guest]

Congratulations & good luck! I am scheduled to be sleeved July 7!

Jenn

>

> I just wanted to post to say thanks for all of the great tips and information

you all share and the support you give to each other. It has helped me to make

my decision, I am set to have surgery on Friday, yeah. Originally I was going to

go with the band but changed my mind to get the sleeve.

> ann

>

[Guest guest]

Hi Joy,

I'm really behind in reading my email, so please excuse the late comment on this.

Go ahead and tell us all here what your supplement is. As long as you are not selling this supplement, or making some kind of profit from its sale, there is no reason to not tell us about it. We do share our experiences with medications, both prescription and OTC.

If you've already given us the name of this supplement, I apologize. As I said, I am really behind in reading my mail.

Pam

Hello all

I was on one of my other groups and was discussing my fibro and a supplement I take, some were offended by that so I decided to start my own group for sharing info about the supplement so no one is offended.if you have an interest in the all natural supplement that I take for my fibro and my other conditions please join my group at : Your Road To Optimal Health @ Hope you all have agreat eveningJoy Caswell

[Guest guest]

Just found this email an am wondering how you are doing.  I also have Achalasia

but was not diagnosed until 8 years and had surgery two years ago once the dx

was clear.  I am in the field of speech pathology and fully understand the

implications of dysphagia.  I would be interested in knowing how you are

now....I now am severely iron deficient - a result of nerve damage am

suspecting.  I look forward to hearing from you. 

I have a daughter in NYC and will be there October....would love to talk to you.

Sincerely

Tammy

From: Bennie W. Chiles III, M.D. <benc3rd@...>

Subject: Hello all

achalasia

Date: Wednesday, July 25, 2007, 3:23 AM

Just found this group and wanted to add my experience and recommendations. I am

42

years old, and a practicing neurosurgeon in NYC. I started having some

intermittent

substernal pain last year which progressed to dysphagia earlier this year. It

became very

severe and got to the point where I couldn't eat or drink anything. I lost 30

pounds! I then

had an upper endoscopy, CT scan, and manometry, which confirmed my diagnosis.

Other

than achalasia, I am in excellent health with no medical problems at all. I have

the

advantage of being a doctor myself (and a surgeon), and this allowed my to very

easily

evaluate the different treatment options. I rapidly made my decision, and

immediately

went for a laparoscopic myotomy with partial fundoplication. It has been 12 days

and I feel

great. I am swallowing essentially normally and am having no reflux issues (i am

taking

nexium daily). There is no doubt in my mind about the following:

1) This is a SURGICAL disease. Anyone diagnosed with this should bypass all

these other

treatments and go straight for surgery ASAP. The other treatments don't work in

the long

run and they will decrease the likelihood of surgery working for you later on.

2) This is a rare illness and therefore this is a rare operation. You must do

whatever is

necessary to find a surgeon who is very experienced in laparoscopy AND who has

done a

good number of these.

3) The longer you live with this and allow your esophagus to become markedly

dilated, the

greater the likelihood that surgery will not help. This disease must be treated

EARLY and

AGGRESSIVELY.

Good luck to you all and God bless.