Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Hi Connie, I am confused with your test result. Is it given in two different measurements? Those new IU's don't count over 800,000, according to what I've read and the results on others' reports. Some people have gotten results back showing both copies/ml and IU/ml. It would be just like these labs though if they have some new way of reporting these tests! I HATE change, LOL! If that is 3,484,600 copies/ml isn't that a big drop from the last time you had a viral load test? Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Hi Connie, I am confused with your test result. Is it given in two different measurements? Those new IU's don't count over 800,000, according to what I've read and the results on others' reports. Some people have gotten results back showing both copies/ml and IU/ml. It would be just like these labs though if they have some new way of reporting these tests! I HATE change, LOL! If that is 3,484,600 copies/ml isn't that a big drop from the last time you had a viral load test? Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Really big drop, it was 29 million copies before. I am not sure which test they did it just has <550 IU/mL after it. I am wondering if one of the 2 tests were incorrect, being that there is such a big drop in the viral load. --- claudine intexas <claudineintexas@...> wrote: > Hi Connie, > I am confused with your test result. Is it > given > in two different measurements? Those new IU's don't > count over 800,000, according to what I've read and > the results on others' reports. Some people have > gotten results back showing both copies/ml and > IU/ml. > It would be just like these labs though if they have > some new way of reporting these tests! I HATE > change, > LOL! If that is 3,484,600 copies/ml isn't that a > big > drop from the last time you had a viral load test? > Claudine > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Really big drop, it was 29 million copies before. I am not sure which test they did it just has <550 IU/mL after it. I am wondering if one of the 2 tests were incorrect, being that there is such a big drop in the viral load. --- claudine intexas <claudineintexas@...> wrote: > Hi Connie, > I am confused with your test result. Is it > given > in two different measurements? Those new IU's don't > count over 800,000, according to what I've read and > the results on others' reports. Some people have > gotten results back showing both copies/ml and > IU/ml. > It would be just like these labs though if they have > some new way of reporting these tests! I HATE > change, > LOL! If that is 3,484,600 copies/ml isn't that a > big > drop from the last time you had a viral load test? > Claudine > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 It could be a normal drop. The viral load often goes way up when treatment is stopped, and then drops back down. Is that closer to what your viral load was before you did treatment the first time? Back to the IU/viral load test. One person did say that her lab said that their IUs were the same as copies per ml. So naturally, my question would be if they are the same, why change? LOL! Claudine --- Constance Dickson <constance_clearwater_florida@...> wrote: > Really big drop, it was 29 million copies before. I > am not sure which test they did it just has <550 > IU/mL after it. I am wondering if one of the 2 > tests > were incorrect, being that there is such a big drop > in > the viral load. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 It was 7.5 million before starting treatment,in March of 99. I was started on the meds then, immediately. " Is that closer to what your viral load was before you did treatment the first time? " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 I was not sure so I found the bloodwork results and it was 12.5 million 3/99. --- Constance Dickson <constance_clearwater_florida@...> wrote: > It was 7.5 million before starting treatment,in > March > of 99. I was started on the meds then, immediately. > > " Is that closer to what your viral load was before > you > did treatment the first time? " > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 All I have read previously about the new (to us anyway) IU method of reporting viral load said that the upper limit of the test was 800,000 and that to convert it to copies per ml you multiplied by 2.5 or 2.3 or 3 (those are the different amounts I've heard.) Going by that formula it would put your new pretreatment viral load very close to what it was before you went on treatment before. So maybe the lab you are using uses a test that has a higher upper limit. I haven't heard anything like that, but your test results did say IU! That is really interesting. Claudine --- Constance Dickson <constance_clearwater_florida@...> wrote: > I was not sure so I found the bloodwork results and > it > was 12.5 million 3/99. > --- Constance Dickson > <constance_clearwater_florida@...> wrote: > > It was 7.5 million before starting treatment,in > > March > > of 99. I was started on the meds then, > immediately. > > > > " Is that closer to what your viral load was before > > you > > did treatment the first time? " > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Claudine, forgot to tell you my platelets were up though weird! wbc 2.1 rbc 2.7 hgb 9.3 but plates 209 up from 172 Suzy From: claudine intexas <claudineintexas@...> Reply-Hepatitis C Hepatitis C Subject: Re: Viral Load Date: Mon, 5 Mar 2001 15:01:57 -0800 (PST) All I have read previously about the new (to us anyway) IU method of reporting viral load said that the upper limit of the test was 800,000 and that to convert it to copies per ml you multiplied by 2.5 or 2.3 or 3 (those are the different amounts I've heard.) Going by that formula it would put your new pretreatment viral load very close to what it was before you went on treatment before. So maybe the lab you are using uses a test that has a higher upper limit. I haven't heard anything like that, but your test results did say IU! That is really interesting. Claudine --- Constance Dickson <constance_clearwater_florida@...> wrote: > I was not sure so I found the bloodwork results and > it > was 12.5 million 3/99. > --- Constance Dickson > <constance_clearwater_florida@...> wrote: > > It was 7.5 million before starting treatment,in > > March > > of 99. I was started on the meds then, > immediately. > > > > " Is that closer to what your viral load was before > > you > > did treatment the first time? " > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Cher, Your viral load is the amount of specific viruses that you have, in a given volume of your blood . More precisely, it means that the amount of Hep C genetic material found in your blood corresponds to as many Hep C viruses as the given number says. There appears to be no significant correlation between HCV RNA levels and ALT values or histological activity in patients untreated by anti-viral therapies (Interferon). Viral load varies between infected individuals but is not a useful prognostic indicator nor does it measure the severity of virus-induced liver disease. HCV-RNA (qPCR)-negative] is defined as less than 100 copies/ml of hepatitis C viral RNA as measured by the National Genetics Institute assay. 200,000 to 1,000,000 low 1,000,000 to 5,000,000 medium 5,000,000 to 25,000,000 high above 25,000,000 very high Your viral load of 3.5 million comes in th mediun category. I hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 Mine is over 1 million at this time. but just barely.. 169 or is that with a multiplier?<br> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 Mine is over 1 million at this time. but just barely.. 169 or is that with a multiplier?<br> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Many of us have high viral loads, but what are you taken? I never heard of anything that would work in 45 days? I have taken the Interferon, then in 1999 the combo and thinking about the peg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Hi I have heard of viral loads being that high. What are you taking? Are you on treatment? They say that if your hep c is not 1a you have a better chance of beating the odds. I am 1a viral load 832000. I have just started treatment last week. Have you had a biospy? That is what really tells you how much damage is done to your liver. Doesn't your doctor tell you that you need to be on the peg interferon? I would do some questioning if I were you. I went on alternative meds about three years ago, for a time my alt & ast dropped. I was feeling great. But when I began to eat regular food again my viral load went up. Let me know how you are doing? God Bless you Sablerae -- viral load I am 59yr old male found out a few months ago I have hep c type 2 and the load 25 million..Began taking some stuff that lowered the count to 22 million in 45 days, however, I do not know if this is expected or what to think, cause non of my doctors have had anyone with that high of a load. I would like to hear from anyone who can relate to that number. I feel better and gained 6 pounds with the stuff I am taking. Same stuff naomi judd got her number to undetectable with. I should be so lucky. Anyway, I feel like the lone ranger and no one can relate where I am at this point. I assume that a drop of any is a good sign. I don 't know if I should have waited longer than 45daysor much of anything else about the 25million number. Please reply if you have any info at all that pertains to that high of a number. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Are you taking thymic Protein A? I am still taking that. It is really good to keep up your red blood cell count while you are on treatment. I have been taking it for years now. The treatment has not effected me at all, thank the Good lord for that. I pray and I know he answers my prayers. God Be with you Sablerae -- Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi guys, What is Thymic Protein A? I know Art takes the procrit to help with his RBC, but I have not heard of anything else. My last RBC was 2.6. I take multi Vitamins plus iron and I still cannot bring my RBC up. Any info would be greatly appreciated. (3) months left on the Peg-combo treatment. I have been showing neg sience three months into treatment. I hope it also continues after. Love Terri land Pamela Rae Davey <pdavey@...> wrote: Are you taking thymic Protein A? I am still taking that. It is really good to keep up your red blood cell count while you are on treatment. I have been taking it for years now. The treatment has not effected me at all, thank the Good lord for that. I pray and I know he answers my prayers. God Be with you Sablerae -- Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Terri.....Teri here, don't you know we aren't supposed to take iron, or eat stuff with iron in it? Your hemoglobin must be good or your Dr. would have done something about it.Mine has been quite low also but the hgb is usually around 10 something.Glad to hear your still neg. We both will be done soon Yeah! Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Goodmorning everyone, Hope you all had a good side free weekend. I did pretty good. Except for the neck and throat soreness. I wanted to let you all know that there is a great site for heppers. HotHeps@... These are some great people who help each other and are very educated about the virus, meds, & side effects. Check it out if you like. If not that's cool too. God Bless you Pamela Rae -- Re: viral load Hi Terri.....Teri here, don't you know we aren't supposed to take iron, or eat stuff with iron in it? Your hemoglobin must be good or your Dr. would have done something about it.Mine has been quite low also but the hgb is usually around 10 something.Glad to hear your still neg. We both will be done soon Yeah! Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Teri, That is what I thought, but that is what my doctor told me to do. I also take extra b. I was told that was to be good. Anymore info greatley appreciated. I'm counting down the weeks Teri, I hope we both stay neg. Love Terri Teri Covert <covert@...> wrote: Hi Terri.....Teri here, don't you know we aren't supposed to take iron, or eat stuff with iron in it? Your hemoglobin must be good or your Dr. would have done something about it.Mine has been quite low also but the hgb is usually around 10 something.Glad to hear your still neg. We both will be done soon Yeah! Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Teri, Terri again.......I forgot my hemoglobin is 9.1. I do not know if that is good or bad. Teri Covert <covert@...> wrote: Hi Terri.....Teri here, don't you know we aren't supposed to take iron, or eat stuff with iron in it? Your hemoglobin must be good or your Dr. would have done something about it.Mine has been quite low also but the hgb is usually around 10 something.Glad to hear your still neg. We both will be done soon Yeah! Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Pamela, Thanks for the info......I will check them out. Thanks Terri Pamela Rae Davey <pdavey@...> wrote: Goodmorning everyone, Hope you all had a good side free weekend. I did pretty good. Except for the neck and throat soreness. I wanted to let you all know that there is a great site for heppers. HotHeps@... These are some great people who help each other and are very educated about the virus, meds, & side effects. Check it out if you like. If not that's cool too. God Bless you Pamela Rae -- Re: viral load Hi Terri.....Teri here, don't you know we aren't supposed to take iron, or eat stuff with iron in it? Your hemoglobin must be good or your Dr. would have done something about it.Mine has been quite low also but the hgb is usually around 10 something.Glad to hear your still neg. We both will be done soon Yeah! Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Terri, yes B is good , should be a real good B complex, it is good for the liver. I can't believe that's what your Dr, told you to do, take iron, it's a big no no. What is your hemoblobin running,do you know? Everytime I get my labs done I ask for a copy of it then I can keep track from each month what everything is doing. They will gladly give you a copy. If I was you I would call your be in charge nurse and ask her about the iron? That concerns me! The bad part is we have to wait for another sixmos. aft.treatment to know where we stand, more waiting. Well I have to get to bed, talk to you soon. Love, Teri Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Teri, Sorry that was the email address to the hotheps. lol The page is http://www.msnusers.com/HotHeps. I hope this one works. It should. Just click on it. Luv Pamela Rae -- Re: viral load Hi Pam, I couldn't get this link to work and then I typed it in and still nothing. Teri Re: viral load thank you for your reply.. I am taking some kind of concoxion that my oriental doctor makes up, plus something called thymic which builds the immune system and the other knocks out the virus. I had a test after 45 days of taking these two things, but I did't think that it would go way down in that short period, I just was anxious to see if it was bringing it down at all. I gained 6 lbs in that time and I do feel better.. Its just that neither doctor I go to( oriental, and infectous disease doctor) had ever known of anyone with 25 million. Like I said, mine has gone to 22 million in the 45 days, and I was just wondering if that was about what I should expect, However, without anyone else's imput I have no way of knowing. Thank you for your information, and anything you can provide is deeply appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 hey princess, sounds like we have something in common. same genotype, i'm grade 2, stage 4 - cirrhosis. i don't know how much of mine is still working, i manage to work full time but i just want to sleep alot these days. how do you feel? i completed the 6 mos of peg-intron (schering-p) last year with no luck, just pain, still active hep-c (600K+ viral count). and i don't think i'm back to my old self yet (3 mos post treatment). now the doc (he's a good hep-c/gastro doc and i trust/like him a lot) want's me to look at the pegasys (la rouche) when it opens up to the general pub, and even consider continued interferon w/o rebetron as perm treatment (like ms patients) as it is showing promise in reducing or even correcting some fibrosis (not cirrhosis of course). have you heard of any such therapy, and i'd like to contrast how your feeling, physically, against how i feel. the buelljockey > I have a low viral load too, even before treatment, being at 387,000 ---- however, viral load doesn't mean very much in the scope of things. I am a genotype 3a, rare of this country, however, I'm in end stage 3 of liver disease... I've had it for over 30 years and only have 25 percent working liver, so viral load is not an important number in those regards. > > Princess > www.studioreflections.com > > Re: New Member > > > Bonnie, scared only gets your adrenalin going, and the liver has to clean it > up. > If you got it at work, and you are only 28, unless you are a VERY heavy > drinker, you are in a panic over nothing. It is a very slow acting virus. > Eat healthy. Cut your animal fat intake back as much as you can and stick to > as much veggies and grains as you can. Are you Geno 1a or 1b? You have > an extermely low viral load.....most of us have a load over a million, way > over a million. Unless your doctor has the medication, you'll have to call > scherring with your prescription and get on a waiting list for a " access > assurance number " which is your garentee that you will have the medication > every month of treatment. I called last march and got my number July 9th. > > People react differently. My first shot was a breeze for 12 hours, then it > was 12 hours of the worst flu symptoms you could imagine......I am a laborer > and other than normal exhaustion from working in 100 degree weather, I'm > doing good. The second injection wasn't anything more than a real tired > feeling. I also worked at a friends in this heat wave. I work with a friend > who has large muscle fatigue, but little else for symptoms/side effects. > Apparently this injection is MUCH easier on the body than the old 3 shots a > week drug..... > > Please don't worry, and take care of your health, diet, and drink as much > water as you can. there are links to Scherring Plough and access assurance > ......I never saved them, but others here have I am sure. > > When I first found out,,,,,, I mourned my perfect health.....and couldnt > believe I had something that could destroy my liver.....it's hard to > comprehend all this at first. If you feel a need to cry....cry. It is not an > immediate death sentence. I am sure you're doctor told you that most people > die WITH it than FROM it...... > > It still doesnt mean we want to have it. > > There are some great people here.....many have been thru the old > treatments.....many are waiting for their #'s. > > Later, Emo Quote Link to comment Share on other sites More sharing options...
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