Cathy

[Guest guest]

Well your efforts haven;t been wasted I'm sure. getting a handle on the bigs can make all sorts of good stuff shine through, heres hoping

Mandi x

Thought you'd be on around this time!! Just a quick update at our end, results of dysbiosis test apparently showed no yeast or clostridia but several elevated markers for bacterial byproducts!! I haven't yet seen the results myself but Dr M has recommended 2 weeks on 1 off of a combination of kaprycidin A and uva ursi - so we'll see what happens! Bowels are still in trouble but knocking out sugar sems to have had a calming influence in the evenings!!

[Guest guest]

Hows Sam doing?? Any more babbling yet?? Look forward to hearing your hair,urine, poo test results!!! We're about to do hair and fecal via DDI so am also hoping to see a dump!!! We also need to consider anothe RBC mins soon - am dreading this as Jack is now petrified to go near anyone at the hospital - even the physio - I fear a big desensitisation programme coming on - perish the thought!!!

Re:

Well your efforts haven;t been wasted I'm sure. getting a handle on the bigs can make all sorts of good stuff shine through, heres hoping

Mandi x

Thought you'd be on around this time!! Just a quick update at our end, results of dysbiosis test apparently showed no yeast or clostridia but several elevated markers for bacterial byproducts!! I haven't yet seen the results myself but Dr M has recommended 2 weeks on 1 off of a combination of kaprycidin A and uva ursi - so we'll see what happens! Bowels are still in trouble but knocking out sugar sems to have had a calming influence in the evenings!!

[Guest guest]

Hi

seems to be fine. It amazes us that she seems like a normal 2 and half year old. She does have a swing set and climbs up the ladder part for the slide. She didn't seem to bad after the Biopsy but she has become alot more clingy since. We are hoping to hear from the Surgeon today about a date to remove the tumor but when we last spoke with him he was thinking it was going to be just him in there well we explained that we had quite a few doctors look at her CT-scans and her MRI's and that it was in her spine canal and wrapping around her spine cord when we said that he was like well then we would also need a neurosurgeon so I'm wondering if that is the delay. Hubby is try to contact them.

BTW for anyone who has dealt with the Shriner's hospitals. How far out did you'll have surgery dates and know of the dates? Thanks

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

Well, we haven't had to deal with surgery, but to get Ian scheduled to be casted they had to have the OR room available and that took about a month.

Noelle (12-2-01)Ian (8-15-04)

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

Thanks

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

,

Average time to get into a Shriners is approx. 6 weeks, depending on the diagnosis of the child and the hospital.

HRH

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

,

Average time to get into a Shriners is approx. 6 weeks, depending on the diagnosis of the child and the hospital.

HRH

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

Hi

Thanks so much for that information. I know they are trying to get approval to use the Veptr on and want to do her surgery within 3 months. So I guess it's a wait and see . Since she has to have the tumor removed sometime in July hopefully and he wants her to have at least a month to heal before implanting the device for scoliosis.

How far out did you'll as the parent know when your surgery date was?

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

[Guest guest]

Hi ,

ARe you asking about VEPTR surgery dates? We've only had two scheduled. We knew in January for March, but got a cancellation spot in Feb. For this one we knew late May early June for our July 26thdate. I would guess it depends on the schedule and how they run it.

Shellie Kezar <hogmech1@...> wrote:

Hi

Thanks so much for that information. I know they are trying to get approval to use the Veptr on and want to do her surgery within 3 months. So I guess it's a wait and see . Since she has to have the tumor removed sometime in July hopefully and he wants her to have at least a month to heal before implanting the device for scoliosis.

How far out did you'll as the parent know when your surgery date was?

,I am glad that your visit with dr. Betz went well. How is feeling? Did she have alot of pain after the biopsy? We have found that exersizing and PT have helped also. I figure it can't hurt. I try to take Gabi to a gym,or to the park or to Mcs playground whereshe has to crawl around through the tubes so she is using her muscles. I just bought a swing set, but I have been unable to put it together, and the company went bank rupt so they can't helpme. Maybe I need to have a glass of wine before I try my next stab at it....

Stay connected, organized, and protected. Take the tour

[Guest guest]

In a message dated 27/09/2005 12:06:57 GMT Daylight Time, catherine.devereux@... writes:

will be at the conference and can't wait to meet up again - I'm also in the Roxburgh but am on a later flight than you ie Fri pm - what time's yours back on the sunday - we could be on the same one?

>>>I think its 10.30am from Edinburgh, wish it was later now, I made plans to meet so many folks in the bar I may need longer to sleep it off LOL

Mandi x

[Guest guest]

Hi Mandi,

Think we're probably on the same one so if we both set an alarm we can make sure the other gets there ok!!!

x

Re:

In a message dated 27/09/2005 12:06:57 GMT Daylight Time, catherine.devereux@... writes:

will be at the conference and can't wait to meet up again - I'm also in the Roxburgh but am on a later flight than you ie Fri pm - what time's yours back on the sunday - we could be on the same one?

>>>I think its 10.30am from Edinburgh, wish it was later now, I made plans to meet so many folks in the bar I may need longer to sleep it off LOL

Mandi x

[Guest guest]

In a message dated 17/10/2005 21:41:15 GMT Daylight Time, catherine.devereux@... writes:

The vit c might be great but its wreaking havoc with your spelling!!!

>>>Ok I must admit I blushed when I read it LOL, still suffering from fried brain! You need to go sign into messenger now so I can buzz you

Mandi x

[Guest guest]

-San Diego sounds good too.

About the energy, I am having the same trouble still too. I don't

know if maybe the thrombo cythaemia is contributing to this though.

My platelett count is rapidly increasing at the moment which is not

good.

Look after yourself

-- In achalasia , " Jo Blauer " <capmyjo@...>

wrote:

>

> Ohio isn't that far away, and I have an Aunt in Sylvania. My

> recovery is going well, just can't seem to get enough energy.

Thanks

> for asking. Snow is okay for a while, but I get tired of it in a

> matter of hours. Living in San Diego was ideal.....head to the

> mountains when the yearning for snow gets overwhelming, then back

to

> the coast to absorb the sun!

>

>

>

> > >

> > > Hello to everyone - old and new members. I have been away and

> > unable

> > > to read any messages all month. I will have to read and catch

> up.

> > > I am now 3 months post heller myotomy and still eating. It was

> > > definitely a great decision to do so and I am enjoying the

food.

> I

> > > have put on 3kg and feeling healthier. I am still really tired

> and

> > > don't cope with too much stress or anything involving too much

> > > energy. I don't know if that is a A thing or not.Still am

> loosing

> > > hair and get migraines when I get too tired. As long as I take

> my

> > > time eating, chew food up really well and have water handy to

> wash

> > it

> > > down most things are going down. Some meals can be pretty

> > > uncomfortable to get down, stress and tiredness can add to that

> too.

> > > We had a break away and had some work to get done while away.

> > > I was fortunate to find a beautiful great dane pup to bring

home

> > too.

> > > We called her and she is getting along fine with the

> family

> > > and our other dog. It must have meant to be when I found her

> after

> > > not long loosing our other dog. We were able to take our dogs

to

> > the

> > > beach while we were away and had a great time there with them.

> Our

> > > older dog had never been to the beach before, living in the

> desert.

> > I

> > > think she slept the whole day after, she was so worn out.

> > > By now Deborah would have had her surgery. I will read on to

> catch

> > > up. I hope you are doing well Deb.

> > > Congratulations Crystal on your 3 months post op too. How have

> you

> > > been going?

> > > Hello Anne, Notan, Peggy, Sandi, , Kathy and I am really

> > vague

> > > at this time of night when I am tired so I am sorry if I have

> > missed

> > > your names. Hope everyone is coping well and 2006 is proving to

> be

> > a

> > > much better year for all. I am being positive it will.

> > >

> > > Bye for now.

> > > in Australia ( stinking hot I must say too)

> > > It is so hot out airconditioner can not cope too. We have had

> our

> > > longest number of days over 40degrees celcius in Jan in over 60

> > years

> > > this month. When we were driving to South Australia, we fueled

> up

> > at

> > > one place and it was 51deg celcius. That is pretty bad. Even

the

> > dogs

> > > refused to get out of the bus for a pee.

> > > How's the snow?

> > > We could heat it up for you.

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

-I certainly will. You will probable have an answer before me. I will

go down early April. This is all effecting my work too. I have been

only doing limited work for a year now. I have been dealing with more

than just one problem. In my case I own my own business, but I have

to be sure I have someone to run it for me that I can rely on.

Luckily I do.

-- In achalasia , " Jo Blauer " <capmyjo@...>

wrote:

>

> , they didn't tell me the results. I expect a call from my

> surgeon who ordered the test. I thought I was alone with this pain

> and fatigue. If they don't find anything on this, they are sending

> me back to my GI. In the meantime, I am paying off bills as quickly

> as I can in order to reduce my working hours, or quit working

> altogether. If you find out what is going on with your pain, let me

> know.

>

> Jo

>

>

> > > >

> > > > Hello everyone.

> > > >

> > > > Firstly sorry , a and . I finally got into

the

> > chat

> > > > room but then booted out and did not get back there.

> > > > After our conversation about spasms I had the worst night

last

> > > night.

> > > > I think that my stomach and bowel may actually had been the

> cause

> > > for

> > > > the spasms. Instead of just working up the E, they were

> gripping

> > my

> > > > stomach as well. I was close to heading to the hospital. My

> dread

> > > for

> > > > that is that I get there and they really can't help anyway.

> Once

> > I

> > > > had a moxalon needle and my stomach settled, the spasms

backed

> > off

> > > > but not enough to get a nights sleep though.

> > > > The pain was so bad I was sweating and really nauseous.

> Haven't

> > had

> > > > it like that for a while.

> > > > Boy I don't wish that to come back. My stomach and bowel area

> has

> > > > been sore today.

> > > > Have sent my doctor an email today to ask if it is worth

> having a

> > > > follow up over Easter when I am there.

> > > >

> > > > I even had a phone call from the hospital in Adelaide. They

> sent

> > me

> > > a

> > > > questionare re post surgery. The researcher rang to speak to

> me

> > > > because she was concerned about the spasms. I was surprised

to

> > get

> > > > some feedback. She also suggested to email my doctor. It is

> nice

> > > that

> > > > they care.

> > > >

> > > > Well going to sit back and read the messages here.

> > > > Regards

> > > >

> > >

> >

>

[Guest guest]

-

I will see my general doctor on 22nd Feb, he is away at the moment. I

will ask about maybe checking the gall bladder as suggested by Kathie

I think. I won't see my surgeon in Adelaide until 10th April. We will

drive down (about 1400-1500kms) and then spend Easter at a beach

shack.

I have a better day today but will not get too excited, just count my

blessings.

Still pretty bone weary though.

-- In achalasia , " Jo Blauer " <capmyjo@...>

wrote:

>

> You may be right about the toll free number... I hadn't thought of

> that. Also, as a noted, our complete email addresses aren't

> showing. What day will you be seeing your doctor? I am surprised

> that my surgeon's office didn't contact me on Friday with the

> results of Thursdays barium study. I don't expect that anything

will

> show on that test, but he wanted to rule out any problem related to

> the surgery before sending me back to my GI. I am anxious to see if

> you and I are having the same problem.

>

> Jo

>

>

> > > > > >

> > > > > > Hey Everyone! I got kicked out of the chat room and I

> > > couldn't log

> > > > > > back in! Sorry, I didn't want to just leave like that.

> My

> > > > thoughts

> > > > > > and prayers are will all of you tonight. Here is to a

> good

> > > nights

> > > > > > sleep!

> > > > > > a in St. Louis

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thanks but it's like anything. You start with a little and work up to

other things later in life. I started soing this coz it was my

husbands passion. When he finally wanted a change I started doing it

until we were to find a manager but I ended up enjoying it and

getting my qualifications.

Boy I have 2 very annoying girls hanging over me at the moment. I was

running around the house looking for batteries to put into my mouse

and got them out of bed to look too. Now they are in a mood and want

to make me insane.

Hi cathy, this is Tamara (mum's daughter) I love my mummy very very

much! I love her more than anything else in the world because she is

the bestest mummy tht there ever was and that's why i love her so

much! And now back to my mummy's email. Oh yeah and hi hope your

going good even though i don't know you but i hope that you aren't

suffering too much from the A! Luv ya, Tamara xxx

mind you im 16 just to let you know!!!

Like I said she is insane, or I am or something.

So here goes. GO TO BED GIRLS!!!!!!! KISS KISS KISS KISS KISS KISS

KISS KISS KISS MUMMY! " NIGHT NIGHT, LOVE YOU LOTS, SLEEP TIGHT DON'T

LET THE BED BUGS BITE! "

I can't remember my point now. I have some early childhood mangement

to do I think.

> > > > > > > >

> > > > > > > > Hello everyone.

> > > > > > > >

> > > > > > > > Firstly sorry , a and . I finally got

> > into

> > > > the

> > > > > > chat

> > > > > > > > room but then booted out and did not get back there.

> > > > > > > > After our conversation about spasms I had the worst

> night

> > > > last

> > > > > > > night.

> > > > > > > > I think that my stomach and bowel may actually had

> been

> > > the

> > > > > cause

> > > > > > > for

> > > > > > > > the spasms. Instead of just working up the E, they

> were

> > > > > gripping

> > > > > > my

> > > > > > > > stomach as well. I was close to heading to the

> hospital.

> > > My

> > > > > dread

> > > > > > > for

> > > > > > > > that is that I get there and they really can't help

> > > anyway.

> > > > > Once

> > > > > > I

> > > > > > > > had a moxalon needle and my stomach settled, the

> spasms

> > > > backed

> > > > > > off

> > > > > > > > but not enough to get a nights sleep though.

> > > > > > > > The pain was so bad I was sweating and really

> nauseous.

> > > > > Haven't

> > > > > > had

> > > > > > > > it like that for a while.

> > > > > > > > Boy I don't wish that to come back. My stomach and

> bowel

> > > area

> > > > > has

> > > > > > > > been sore today.

> > > > > > > > Have sent my doctor an email today to ask if it is

> worth

> > > > > having a

> > > > > > > > follow up over Easter when I am there.

> > > > > > > >

> > > > > > > > I even had a phone call from the hospital in

Adelaide.

> > > They

> > > > > sent

> > > > > > me

> > > > > > > a

> > > > > > > > questionare re post surgery. The researcher rang to

> speak

> > > to

> > > > > me

> > > > > > > > because she was concerned about the spasms. I was

> > > surprised

> > > > to

> > > > > > get

> > > > > > > > some feedback. She also suggested to email my doctor.

> It

> > > is

> > > > > nice

> > > > > > > that

> > > > > > > > they care.

> > > > > > > >

> > > > > > > > Well going to sit back and read the messages here.

> > > > > > > > Regards

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

-

I am cold most of the time too. I put it down to my bad circulation.

I have an extremely high platelett count. Seeing it has been about 37-

45 degrees celcius here lately, I haven't felt as cold unless I am in

refridgerated airconditioning.

Winter time I hate being so cold. It never seemed to be that bad

before.

-- In achalasia , " Jo Blauer " <capmyjo@...>

wrote:

>

> Maggie-I don't want to close the door....I would rather go through

> it headed in your direction, or any other warmer climate. Oh, by

the

> way, anyone post myotomy notice that they are cold all the time?

>

> Jo..In Michigan...with the door wide open!

>

>

>

> >

> > Marilyn, good to have you posting again, we've missed you.

> >

> > Please let us know what you find when you go get your upper

> > GI. I am another who has not had the surgery but have had

> > two Botox (that's before I knew they would not work and didn't)

> > and two dilatations. The last one a year ago. My food goes

> > down with a lot of water, but I still don't know how to tell

> > if it's sitting in the esophagus stretching it or if it's going

> > into the stomach. I know it takes awhile to fill full after a

> > meal and sometimes I can tell that it takes longer for some

> > pills to work after swallowing them than at other times.

> >

> > You are so right. We are all in some ways alike and yet

> > in others so different.

> >

> > Hugs,

> > Maggie

> > Alabama, where it is cold this morning. Hey, you guy in

> > Michigan, please close the door.

> >

>

[Guest guest]

Our son's therapist also told us that OCD is often misdiagnosed as ADD because

kids cannot often concentrate due to anxiety and/or instrusive thoughts. Not to

say your daughter does not have ADD, but it is possible the diagnosis is not

exactly correct.

My son's kindergarten teacher was sue he had ADD, then it was moved to

auditory processing disorder, and not it is all attributed to OCD.

fitzys_71 <fitzys71@...> wrote:

>

>Hi

My name is Leanne from Sydney Australia, I am also a newbie to the

group. I am a mum to 3 kids (18,16 & 12). My youngest Reece was

diagnosed with OCD 4 weeks ago.

I also joined this group so that I might be able to talk to other

parents who understand what our lives are like to live and hopefully

be able to find out if I am going the right way about helping my son.

I am learning all I can from reading and the internet and every time

I think that I might be doing something right I get to another

chapter in the book and I have to change the way I am dealing with

it.

My son has the fear of getting dirty and it all in someway relates

to the toilet. Every fear he has or question he asks is about an

item or person being clean. His rituals of showers and washing his

hands and everything that goes along with it has taken over his

life.

He has been put on Loven 20mg per day (I'm still trying to learn all

the medical terminology). He sees his pediatrition next week I'm

assuming the next step will be to get him into see a therapist.

Sorry for babling on in my first post and please excuse the limited

knowledge that I might have on the abbreviations that you all use,

I'm sure I will pick it up.

Just like you I have the support of my husband and my mother

and rely on them a great deal, but it's going to be great to be able

to talk to someone who understands.

Thanks for reading

Leanne

I was looking for a group that can provide answers and offer

support,

> and found you all.

>

> My name's , and I'm a full-time Mom to three children. In the

> past 3-4 months, my middle child Becca (age 11) has been diagnosed

> with OCD. She's a wonderful, very smart, kind and compassionate

child,

> and is just dealing with a lot. She initially told me (in July, on

her

> birthday of all days!) that she was having what she termed " dares "

in

> her head. Some of them are silly, like touching something, and

then

> there are the more serious ones, those involving knives. Either

> touching the butt of the knife to her leg, then it was the tip.

The

> more dangerous dares seemed to wane once she started school, but

she's

> had two since then. She knows that these are dangerous and says

she

> just tells herself " No, that's bad and I'm not doing that. "

>

> She also is compelled to tell me EVERYTHING...as though it's wrong

if

> she doesn't fill me in on things that she's done that may be bad.

For

> example, she told me that she copied something off of someone

else's

> paper, but then had to change it because she knew it was cheating!

(I

> know that many parents would love for their children to offer up

so

> much information! LOL!)

>

> She has a few fears, especially crawling bugs like spiders. I have

had

> to vaccum her room top to bottom because she says she's seen them

in

> her room or in her shoes.

>

> We started therapy in August, and I think there's progress. But

two

> days ago she came to me stating that when she gets confused in

school

> she feels like crying, but doesn't. And when she feels pressured

(like

> she doesn't have enough time to finish things like schoolwork) she

> feels like crying too. Now she was also diagnosed with ADD -

> inattentive type and is on 10mg Ritalin. Honestly, I don't see

much

> sucess with it. She has good days and bad, When we upped the meds,

> more crying occurred (which is a side effect) so we backed down.

>

> When I relayed the latest issues with her pediatrician, she is now

> mentioning putting her on medication. First of all, I do not want

my

> daughter on multiple meds unless it is absolutely necessary. Her

> therapist mentioned nothing about them, and now I'm confused (and

do

> feel like crying!!)

>

> Her older sister in NT, but her younger brother is autistic. I

have

> heard that when there is a sibling with autism, it's not uncommon

for

> brothers and sisters to develop issues like OCD.

>

> Just looking for " Been there, done that " stories, as well as all

> advice.

>

> I'm sure glad there's a place I can vent all this...I have yet to

tell

> anyone else except my husband and mom until I can get a handle on

it.

>

> Thanks for reading...and I hope I can get to know you all better!

>

>

>

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Its so good to here that the group has helped you so much in the

past few days I told you that this was a great group of people

didn't I.

With regards to the dilations I think I am right in saying that they

can use different size ballons to dilate the eosophagus so maybe the

next dilation will stretch/open the LES a little bigger next time.

(Im sure , and Notan can give more information than me)

With regards to surgery soon after dilation yes that is possible

that a few months down the line the surgery will be needed its hard

to say some people have dilations that can last quiet a while others

like Tia only a few weeks or months.

You are absolutly right on the vomiting and regurgitation Tia has

the classic signs of Achalasia food does not reach her stomach but

remain in the eosophagus for a number of hours and can come up an

hour or so after eating it or even a few meals later.

The medication they are talking about is probably called Niphadapine

(may have spelt that wrong)I was given in while I was in hospital in

September yes it does have some side effects it made me very dizzy

for a couple of days and terrible headaches but they side afects did

get better after a coule of days. The tablet does come in a capsual

but you put it under your tounge and let it melt the liquid has a

very strong kind of minty taste.

What sort of food is Tia eating at the moment?

Is it solid food or is she sticking to very liquidy food i.e thin

soups and energy nutritional drinks?

Hope what I have has helped a little

Take care and best wishes for Tia

Pippa (England)

>

> Hi all,

> I can't believe how fast people are contacting me and how many. I

> would email back each person individually but things are hectic

and I

> want to get off the computer. Thanks to , Sue and Maggie for

> their individual comments. I've already thanked a few others this

> morning.

>

> Tonia, glad things are going well. I'm sure this has been a rough

day.

>

> I did talk to a nurse for Dr. Waybeh today. They think that the

> toolfor the manometry should be in the middle of next week and

have

> Tia at the hospital by the end of the week. I did talk to her

about

> Dr. Pellegrini. By the time he would able to see her it would be

about

> the same amount of time for Seattle Children's Hospital to see

Tia. I

> will wait and have the manometry done at the Children's hospital.

But

> after that when a plan is being made I will definitely contact him

and

> see if he agrees with the plan that the Children's Hospital is

making

> and ask him about the surgeon they want to use. I feel much more

> prepared to talk to the doctor after reading all the information

in

> this support group.

>

> The nurse did mention that Dr. Waybeh mentioned another dialation

> might be needed after the manometry. I told her that Tia already

had a

> dialation 3 weeks ago. She said she had a very mild dialation. The

> next one would be much different. And after that then she may need

> surgery.

>

> OK so here is where I need support.

>

> Do you know what they mean by another type of dialation? Do I want

> just a dialation only to have to have take Tia to surgery in a few

> months?

>

> The nurse offered some medication to help relax Tia's spincter

muscle.

> The side effect sound terrible....low blood pressure, and nausea.

The

> said the low dose only comes in capsule form. There is no way Tia

> would swallow it. Even when she was healthy she couldn't swallow

> pills.

>

> They also said they could give her a feeding tube, we are not that

bad

> yet.

>

> Tia had a terrible day today. Couldn't keep anything down. She

left

> school and stayed with my dad, her Papa. We went to her soccer

> practice because it was the last one and parents played the kids.

I

> had to drag her to go. I knew once she got there she would do

fine.

> She had fun. Right at the end she got hit in the face, hard with

the

> ball. She was so upset she went pee in her pants. She was

> unconsolable. She was so embarrassed. No one saw her pee. She was

> sitting down. I put my coat around her and took her to the car.

She

> has never done that before. I assume it was just from all the

> emotions. I just got her setteled down in her jammies to veg out

and

> watch tv. She just cried and cried in my arms when she got home.

She

> is just exhausted and frusterated. She really feels like the world

is

> against her.

>

> One other thing. I want to make sure that there is a difference

> between regurgitation and vomiting. Food does not make it to Tia's

> stomach. It gets stuck in her esophagus and then she throws it up.

She

> reports that sometimes it feels like the food is going down

farther

> and at the next eating attempt she will throw up the current food

plus

> the food that she thought she kept down earlier. Does this mean

> anything???

>

> Ok, I gotta go. I attempted to post a picture of Tia in the photo

> album. Not sure if it worked.

>

> Eager to hear from you all soon.

> Take care,

>

>

[Guest guest]

yes, ccbourm@... toniasdogsandi <toniasdogsandi@...> wrote: Do you have a reg email other than ? I couldnt send you back anything last night for some reason.I dont understand why it wouldnt let meTonia

Bored stiff? Loosen up...Download and play hundreds of games for free on Games.

[Guest guest]

-Its now sending me back onto this page.Can you just e mail it

to me at tcooper1973@... and let me try that way?Sorry-

Tonia

Do you have a

reg email other than ? I couldnt send you back

> anything last night for some reason.I dont understand why it

wouldnt

> let me

>

> Tonia

>

>

>

>

>

>

> ---------------------------------

> Bored stiff? Loosen up...

> Download and play hundreds of games for free on Games.

>

[Guest guest]

> There is no cure for it because I tried everything on the

> birds.

Just because nothing you have tried to this point has worked does NOT

mean 'there is no cure for it'.

[Guest guest]

Steph,

It is great to see so much devotion to those little creatures. They bring so

much joy. I am glad you got them back. Are you familiar with Rife machines? I

am new at it but I was wondering if Rifing would kill the e-coli. Have you ever

checked with the rife group to see what they might have to say? just an

idea.

cathy

ectopistes@... wrote:

I had to move about 10 years ago and so I sold all my birds which I did

not want to do. After I got moved and things started looking up, I

located some of them and bought them back. They came back with e-coli

and I have been dealing with it ever since. I had them tested for

other things but no human diseases showed up so I didn't worry about it

except it has been a battle for the birds and me.

Steph

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

CSilver can be used for birds, and might kill e.coli and you can use it to

spray their whole terrain to leave a silver residue that should help...

MMS also, but unactivated. someone said on some list that " stablized

oxygen " sodium chlorite solution (MMS but weaker) is sold in some racing

pigeon breeders catalog and used by those folks for many years.

> CATHY

>

>

>

> I had to move about 10 years ago and so I sold all my birds which I did

> not want to do. After I got moved and things started looking up, I

> located some of them and bought them back. They came back with e-coli

> and I have been dealing with it ever since. I had them tested for

> other things but no human diseases showed up so I didn't worry about it

> except it has been a battle for the birds and me.

>

> Steph

[Guest guest]

, I have often wondered if a rife machine would help ME? But then

I found out some info. way back and decided it would probably not.

Also I can see no way to " hood up " a small bird to such a device without

severely stressing it to the point of death.

I would like to learn more about this device though, but I am not sure

it would be safe.

Steph