Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Hi Deb, My wife told me a long time ago that many over-the-counter pain medications contain caffeine to expedite the transmission of the medication across the stomach barrier. It's the same concept. That's why I drink a lot of tea or coffee on bad days, it helps the pain meds work faster. Best Regards, Alan > > > > I had a weird accident yesterday with meds. My 8 year old is on > > Focalin (ADD medication) and I was getting his and my meds at the > same > > time. Not thinking...I accidentally took his pill! Now I know I > have > > ADD and have had it forever..but I was so shocked on how good I > felt > > most the day afterwards. Even my pain meds seem to take effect > better > > then thay had for weeks! plus the first time in years I had a clear > > thought and was able to stay on task. > > Has anyone ever heard of ADD meds helping pain meds work better? > > * I am not fgoing to take his again to find out if it was a > quirk...he > > needs them! but was wondering and was going to ask my docter about > it. > > I haven't taken ADD meds before since I have high blood > presure..but > > get that pain med working better, clear thinking , that stress > > reduced....maybe the blood presure would do the same. > > pam > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 I am not alone! LOL pam > > LOL...Oh, Pam. This gets better and better. I bet you really get some ribbing from your family. I still hear from my kids about the time about 25 years ago when I grabbed the Lysol instead of the mouth wash while trying to get out the door to church. > > The kids called the Poison Hotline. They said as long as I didn't swallow (no, I immediately spit it out) and rinsed well, I was okay. But they advised the kids to go over the bottle labels with their mother! :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Not a bad idea...I know if I drink some green tea with meds it does give a mini boost. pam > > > > > > I had a weird accident yesterday with meds. My 8 year old is on > > > Focalin (ADD medication) and I was getting his and my meds at the > > same > > > time. Not thinking...I accidentally took his pill! Now I know I > > have > > > ADD and have had it forever..but I was so shocked on how good I > > felt > > > most the day afterwards. Even my pain meds seem to take effect > > better > > > then thay had for weeks! plus the first time in years I had a clear > > > thought and was able to stay on task. > > > Has anyone ever heard of ADD meds helping pain meds work better? > > > * I am not fgoing to take his again to find out if it was a > > quirk...he > > > needs them! but was wondering and was going to ask my docter about > > it. > > > I haven't taken ADD meds before since I have high blood > > presure..but > > > get that pain med working better, clear thinking , that stress > > > reduced....maybe the blood presure would do the same. > > > pam > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 Alan, that would explain why my ibuprofren seems to work better in the morning wouldn't it? And come to think of it when I get a rare migrain, the first thing I do is drink coffee. Thanks. Deb > > > > > > I had a weird accident yesterday with meds. My 8 year old is on > > > Focalin (ADD medication) and I was getting his and my meds at the > > same > > > time. Not thinking...I accidentally took his pill! Now I know I > > have > > > ADD and have had it forever..but I was so shocked on how good I > > felt > > > most the day afterwards. Even my pain meds seem to take effect > > better > > > then thay had for weeks! plus the first time in years I had a clear > > > thought and was able to stay on task. > > > Has anyone ever heard of ADD meds helping pain meds work better? > > > * I am not fgoing to take his again to find out if it was a > > quirk...he > > > needs them! but was wondering and was going to ask my docter about > > it. > > > I haven't taken ADD meds before since I have high blood > > presure..but > > > get that pain med working better, clear thinking , that stress > > > reduced....maybe the blood presure would do the same. > > > pam > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 I would get a second opininon. This seems like it could possibly be toxic for a child so young. --- joeandjaynee <joeandjaynee@...> wrote: > did anyone ever have this problem .daughter has the > shakes since > monday .doc says the meds level to high depakote > .she is on 4 different > meds a day .i need help daughter is 2 and i cannot > stand to see her > this way.new meds added lamictol +keppa and still on > depakote. > > ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Try to investigate because shakes siezures are due to toxins, metals and parasites. " Namaste " Tia Re: [ ] meds I would get a second opininon. This seems like it could possibly be toxic for a child so young. --- joeandjaynee <joeandjaynee> wrote: > did anyone ever have this problem .daughter has the > shakes since > monday .doc says the meds level to high depakote > .she is on 4 different > meds a day .i need help daughter is 2 and i cannot > stand to see her > this way.new meds added lamictol +keppa and still on > depakote. > > ____________ _________ _________ _________ _________ _________ _ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink. / gmrs/_ panel_invite. asp?a=7 ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 There is alot of alternative ways to handle this problem, my son proudly to say at the end of August it will be 1 year since his last but that also didn't happen by itself, it was trying everything that came my way to help him, I tried a bunch of stuff and it all helped but since we started with the Protein shake with raw eggs, that is what did the trick for him. When your body is seizing it is searching for the nutrients that it is either running low or out of. I always say try it all and see if it will work for you. If you would like to read my story go to and click on Epilepsy on the left side www.ginakopera.com Have a Happy and Healthy Day, Kopera Re: [ ] meds I would get a second opininon. This seems like it could possibly be toxic for a child so young. --- joeandjaynee <joeandjaynee> wrote: > did anyone ever have this problem .daughter has the > shakes since > monday .doc says the meds level to high depakote > .she is on 4 different > meds a day .i need help daughter is 2 and i cannot > stand to see her > this way.new meds added lamictol +keppa and still on > depakote. > > ____________ _________ _________ _________ _________ _________ _ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink. / gmrs/_ panel_invite. asp?a=7 ____________ _________ _________ _________ _________ _________ _ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink. / gmrs/_ panel_invite. asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 Hi! Yes, my son had the shakes a few yrs ago and I am thinking it was when the dr. started him out at a fairly big dose of Depakote. This dr. was very responsive when I reported his shakes and lowered his meds. You need to demand the dr. look into this immediately. I am curious as to what kind of diagnosis your daughter has had. Joanie > > did anyone ever have this problem .daughter has the shakes since > monday .doc says the meds level to high depakote .she is on 4 different > meds a day .i need help daughter is 2 and i cannot stand to see her > this way.new meds added lamictol +keppa and still on depakote. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Someone recently posted about their daughter having the shakes.. I happen to be a nutritional consultant and I am relatively knowledgable about health and nutrition...I believe that what would be helpful to you daughter is to take Lugols Iodine and Magnesium Oil.... These are two major minerals that most people are deficient in... to find out more about magnesium go to: www.globallight.net Here are some examples of iodine deficiency: Fatigue Headaches & Migraines PMS Easy Weight Gain Depression Irritability Insomnia Allergies Fibro Cystic Breast Disease Fluid Retention Anxiety & Panic Attacks Hair Loss Poor Memory Poor Concentration Low Sex Drive Carpal Tunnel Syndrome Hives Acidic morning urine pH below 6.5 Unhealthy Nails Dry Skin & Hair Cold Intolerance Heat Intolerance Low Motivation/Ambition Acne Asthma High Cholesterol/Triglycerides Cancer not only does iodine (the painting of or the internal consumption of Lugol's iodine solution) cure an impending cold or flu, iodine also cures acne, PMS, anxiety, allergies, hypothyroidism, bladder infections, moles and dermatitis. Additionally, iodine has cured fibroystic breast disease. To find out more about the benefits of iodine visit: http://www.earthclinic.com/Remedies/iodine.html Here is where you can buy lugols iodine: http://www.clarksonlab.com/sales.htm?gclid=CPOPu7Tv2IkCFR6UYAodSBivzQ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 In einer eMail vom 29.07.07 17:22:15 (MEZ) - Mitteleurop. Sommerzeit schreibt joeandjaynee@...: > > did anyone ever have this problem .daughter has the shakes since > monday .doc says the meds level to high depakote .she is on 4 different > meds a day .i need help daughter is 2 and i cannot stand to see her > this way.new meds added lamictol +keppa and still on depakote. > > Hi, you might want to try the group " b6children " , it could be pyridoxine sensitivity, if not pyridoxine dependency. You can ask the expert moms there. Please look into avoiding certain food additives and allergenic nutrition. All the best to you and your little one! Katharina Kind regards, Katharina ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Katharina Gutsche, M.A. Psycholinguistics, Dipl.-Psych.Clinical Psychology, State Licensured Naturopath (Psychotherapy) http: //stores.lulu.com/katharinagutsche please, remove blanks in link FREE In my website (txt) http://hometown.aol.ca/epilepsyaltered/myhomepage/healthandmedical.html you can find a whole chapter for free. Insert " Ms. Chipper " into the searchbox of your toolbar, please. This will carry you straight to the chapter ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2007 Report Share Posted July 30, 2007 Yes, I agree. PLEASE demand that your doctor wean some of these meds. I cannot imagine any 2 yr old needing 4 drugs. Shakes are a sure indicator of toxicity. Unfortunately, this is all a guessing game as to which and how many drugs work. Most of these drugs are barely 5 yrs old and the Neuros really don't know how they work together, especially with little ones. BEst of Luck and trust your gut. > > > > did anyone ever have this problem .daughter has the shakes since > > monday .doc says the meds level to high depakote .she is on 4 > different > > meds a day .i need help daughter is 2 and i cannot stand to see her > > this way.new meds added lamictol +keppa and still on depakote. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 WOW !!! I can't believe that. Demand you have levels checked and then consult another Dr. I was on 3 meds it's all about which one are with each other. I had carbatrol, Zonagran,and Keppra. Very high doses and got the shakes and was seeing things and double vision and was still trying to work until one day I just broke down and fell and Hit my face at work plastic Surgury to close it all up. I started going to a new Dr and he told me to trust him he weaned me off of the Zonagran and increased my keppa and decrease my morning meds and I have not had any shakes, double vision,and fill 110% better then I have ever felt sense all this started now I just have to live with a big scare accross my face but its better then feeling ,and dealing with all of those other side affect. Soon I will be back on the road driving again after 2 1/2 yr. So yes I am sorr go and get a check up again and consult another Dr.where are you located and maybe you could travel to get the best. joeandjaynee <joeandjaynee@...> wrote: did anyone ever have this problem .daughter has the shakes since monday .doc says the meds level to high depakote .she is on 4 different meds a day .i need help daughter is 2 and i cannot stand to see her this way.new meds added lamictol +keppa and still on depakote. --------------------------------- Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 By chance did you have any breakthrough seizures when weaning off the zonegran? My son is on a very small dose (50mg/50mg), but we just tried to wean him and he began having breakthrough seizures and auras. Hamilton sr.communications manager|Fidelity Investments FPCMS Communications *(603) 791-7514 _____ From: [mailto: ] On Behalf Of TRACY JO LAWSON Sent: Tuesday, July 31, 2007 11:07 AM Subject: Re: [ ] meds WOW !!! I can't believe that. Demand you have levels checked and then consult another Dr. I was on 3 meds it's all about which one are with each other. I had carbatrol, Zonagran,and Keppra. Very high doses and got the shakes and was seeing things and double vision and was still trying to work until one day I just broke down and fell and Hit my face at work plastic Surgury to close it all up. I started going to a new Dr and he told me to trust him he weaned me off of the Zonagran and increased my keppa and decrease my morning meds and I have not had any shakes, double vision,and fill 110% better then I have ever felt sense all this started now I just have to live with a big scare accross my face but its better then feeling ,and dealing with all of those other side affect. Soon I will be back on the road driving again after 2 1/2 yr. So yes I am sorr go and get a check up again and consult another Dr.where are you located and maybe you could travel to get ! the best. joeandjaynee <joeandjaynee@... <mailto:joeandjaynee%40> > wrote: did anyone ever have this problem .daughter has the shakes since monday .doc says the meds level to high depakote .she is on 4 different meds a day .i need help daughter is 2 and i cannot stand to see her this way.new meds added lamictol +keppa and still on depakote. --------------------------------- Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Lani-my son was put on zantac along with his naprosyn because it was causing very bad upset stomach. Sometimes he wouldn't eat and sometimes he would get the vomiting as well. The zantac seems to be working for now, but the ped rheumy said they could add prevacid instead of zantac if his stomach was still upset. I know methotrexate can be rough on the stomach too. ( 4, pauci) > > Hi all, I was wondering if anyone knew about being on Naproxen and > Methotrexate at the same time. My daughter will be two in July, > and she is on 4ml. of Naproxen twice a day with food, and 4 > Methotrexate pills orally taken crushed-up and mixed in food every > Sunday (once a week). We just upped to 4 pills of Methotrexate this > week, but I forgot to check if the Naproxen has to change. I put a > call in to the Rheumy just to check, but I thought he would have told > me if it was going to change. > I think the meds do a number on her stomach. She has little to no > appetite the day she has her meds, and randomly throws up from time to > time. Does anyone else use both these meds at the same time, and have > stomach problems? > Thanks > Lani > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Naproxen made Isabelle throw up a lot and we ended up switching her back to Ibuprofen because of it. It's a great medication for some children but for us it was tummy torture. We are on the MTX injections so don't know much about he oral MTX. Shots aren't fun but it maybe worth it to ask about switching to injectable? -Hadley (Isabelle, pauci 4 yrs.) > > Hi all, I was wondering if anyone knew about being on Naproxen and > Methotrexate at the same time. My daughter will be two in July, > and she is on 4ml. of Naproxen twice a day with food, and 4 > Methotrexate pills orally taken crushed-up and mixed in food every > Sunday (once a week). We just upped to 4 pills of Methotrexate this > week, but I forgot to check if the Naproxen has to change. I put a > call in to the Rheumy just to check, but I thought he would have told > me if it was going to change. > I think the meds do a number on her stomach. She has little to no > appetite the day she has her meds, and randomly throws up from time to > time. Does anyone else use both these meds at the same time, and have > stomach problems? > Thanks > Lani > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2008 Report Share Posted May 28, 2008 Lani, my daughter is 9 and has taken both of those meds together, for years! We are now on mtx and enbrel shots, but it wasn't till the last few months of taking the naproxen, that she had stomach problems. We noticed it more, when she took it close to bed time.....they ended up putting her on prilosec for the stomach problems. Helen meds Hi all, I was wondering if anyone knew about being on Naproxen andMethotrexate at the same time. My daughter will be two in July,and she is on 4ml. of Naproxen twice a day with food, and 4 Methotrexate pills orally taken crushed-up and mixed in food everySunday (once a week). We just upped to 4 pills of Methotrexate thisweek, but I forgot to check if the Naproxen has to change. I put acall in to the Rheumy just to check, but I thought he would have toldme if it was going to change.I think the meds do a number on her stomach. She has little to noappetite the day she has her meds, and randomly throws up from time totime. Does anyone else use both these meds at the same time, and havestomach problems?Thanks :)Lani Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2008 Report Share Posted May 29, 2008 Thank you all :)very much! > > Hi all, I was wondering if anyone knew about being on Naproxen and > Methotrexate at the same time. My daughter will be two in July, > and she is on 4ml. of Naproxen twice a day with food, and 4 > Methotrexate pills orally taken crushed-up and mixed in food every > Sunday (once a week). We just upped to 4 pills of Methotrexate this > week, but I forgot to check if the Naproxen has to change. I put a > call in to the Rheumy just to check, but I thought he would have told > me if it was going to change. > I think the meds do a number on her stomach. She has little to no > appetite the day she has her meds, and randomly throws up from time to > time. Does anyone else use both these meds at the same time, and have > stomach problems? > Thanks > Lani > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 Nice to hear you are doing well. I was told that in order to get the most out of my PT, that I needed to stay on my meds. That meant no driving for me. Can I ask if you are on any meds and how often your PT is? I see my OS on Monday, and I am just over 6 weeks postop. Wondering if I can suggest a different med that would allow me to drive. I used to be on Naproxen, and wonder if that would be an alternative to the Norco and Oxycontin. Today I had no choice but to reduce my meds, as I don't have enough to get me through Monday. I am alternating with tylenol/advil, and so far so good. I know it is not good to go off the prescription meds cold turkey, so haven't. But the amount is sure less than before. That's what I get for forgetting to check the number of pills I had left. No one's fault but my own. Kim in Minnesota http://quiltmom05.blogspot.com/ http://web.mac.com/skinbike/Site/Welcome.html http://community.webshots.com/user/quiltmom05 On Aug 22, 2009, at 4:06 PM, remi13211 wrote: > I joined the group in June and had my TKR on JUly 7 now almost 7 > wekks out. I am able to drive and still goint to PT and am doing > fairly well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Kay, I could really use them. I have emphysema and no insurance. I also have AIH and PBC.  My name is Sherry Gutshall. If you still have them I will pay postage. ________________________________ From: Kay <kuerston@...> k k <kuerston@...> Sent: Fri, June 18, 2010 3:55:57 PM Subject: [ ] meds  2 Maxair Autohaler (rescue inhaler) 2 Advair Diskus 100/50  Packaged, unopened. Can't use; if anyone is interested, please respond to me privately by clicking on  Reply to Sender. Kay -Register to be an organ donor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I started gabapentine about 3 years ago I am on 2400 mg 1200 at about 12 noon and another 1200 at bedtime around 1100pm it work wonders for me it took abit to work but cut my pain about in half. and it helps me sleep too. give it time but it did take a bit to get use to. I felt off balance for abit but that went a away make sure you take it at the same time everyday. My doc told if needed we can go up to about 3600 mg so i have some room if i need to go up up in the future. I also take lamgtrigine 150 mg for mood stablizer/pain blocker this is a sizurer med to and really took alot to g et use to but stuck with it and alll side affect went away. Give time and i think you will be happy with it Steve From: Schafer <81196@...> Subject: meds spinal problems Date: Tuesday, October 26, 2010, 1:29 PM  I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Thanks Steve! I do feel a bit funky. I'm glad to hear it goes away. I read the drug reviews and alot of people say the same thing you do. It's nice to have hope for a change. Thanks for sharing. S************* meds spinal problems Date: Tuesday, October 26, 2010, 1:29 PM I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 I have been on anti-depressants before and didn't like them. When my pain is controlled, I'm pretty happy. It has just been hard tweaking the meds. Last week, I was in so much pain, I told my husband I can see why people became suicidal. He does not give me too much support. People without chronic pain just can't " get it " . Also, I really can't afford any more meds. I am trying to get started with applying for disability. It is a very overwhelming project when you have no help and am in constant pain. That's my whine for the day..lol S************* meds spinal problems Date: Tuesday, October 26, 2010, 1:29 PM I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 So your apping for your social security retirement disabitiy. You wil be turn down the first time I was due to my age they say we believe you are disable but do to your age we feel youcan get a job in another field. So i got a lawyer robert Freidman i think he nation wide lawyer he was great. You have to have one to win. It took about 4year to get a hearing in washington state.I know different from state to state. But he ask me if my doctor would write to social secuity explaining why i was disable. She wrote a great letter explain the injuries and why I was disable. I had a hearing with two week of social security getting that etter. Well the night before the hearing I got a call from the lawyer and told me i did have to appear at the hearing that i got my benifit. He spoke to the hearing judge and he believe i was disable I was a lucky one I see no these support groups that everyone has to go to the hearings. I did main for the medical benifit as my juries where on the job and got permantment penison. get your doctor behind you and apply as soon as possible. I applied with 3 month of my injuries when i was i may not be able to return to work again. See can get a letter like i did and send it with your first app. to apply it may help you get right off the bat. there another support group call backpain 24-7 which belong to and here a letter from they files you may want to join there onther stuff in the file about pain. but copy this and pasted here it may help your husband understand your pain Steve A Letter to Normals from a Person With Chronic Pain Having chronic pain means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about chronic pain and its effects, and of those that think they know, many are actually misinformed. In the spirit of informing those who wish to understand: These are the things that I would like you to understand about me before you judge me. Please understand that being sick doesn't mean I'm not still a human being. I have to spend most of my day in considerable pain and exhaustion, and if you visit, sometimes I probably don't seem like much fun to be with, but I'm still me, stuck inside this body. I still worry about school, my family, my friends, and most of the time I'd still like to hear you talk about yours too. Please understand the difference between " happy " and " healthy " . When you've got the flu, you probably feel miserable with it, but I've been sick for years. I can't be miserable all the time. In fact, I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy, that's all. It doesn't mean that I'm not in a lot of pain, or extremely tired, or that I'm getting better, or any of those things. Please don't say, " Oh, you're sounding better! " or " But you look so healthy! " I am merely coping. I am sounding happy and trying to look normal. If you want to comment on that, you're welcome. Please understand that being able to stand up for ten minutes doesn't necessarily mean that I can stand up for twenty minutes, or an hour. Just because I managed to stand up for thirty minutes yesterday doesn't mean that I can do the same today. With a lot of diseases you're either paralyzed, or you can move. With this one, it gets more confusing everyday. It can be like a yo-yo. I never know from day to day how I am going to feel when I wake up. In most cases I never know from minute to minute. That is one of the hardest and most frustrating components of chronic pain. Please repeat the above paragraph substituting, " sitting " , " walking " , " thinking " , " concentrating " , " being sociable " and so on, it applies to everything. That's what chronic pain does to you. Please understand that chronic pain is variable. It's quite possible (for many it's common) that one day I am able to walk to the park and back, while the next day I'll have trouble getting to the next room. Please don't attack me when I'm ill by saying, " But you did it before! " or " Oh, come on, I know you can do this! " If you want me to do something, then ask if I can. In a similar vein, I may need to cancel a previous commitment at the last minute. If this happens, please do not take it personally. If you are able, please try to always remember how very lucky you are, to be physically able to do all of the things that you can do. Please understand that " getting out and doing things " does not make me feel better, and can often make me seriously worse. You don't know what I go throughor how I suffer in my own private time. Telling me that I need to exercise, or do some things to " get my mind off of it " , may frustrate me to tears, and is not correct. If I was capable of doing some things any or all of the time, don't you know that I would? I am working with my doctors and I am doing what I am supposed to do. Another statement that hurts is, " You just need to push yourself more, try harder " . Obviously, chronic pain can deal with the whole body, or be localized to specific areas. Sometimes participating in a single activity for a short or a long period of time can cause more damage and physical pain than you could ever imagine. Not to mention the recovery time, which can be intense. You can't always read it on my face or in my body language. Also, chronic pain may cause secondary depression (wouldn't you get depressed and down if you were hurting constantly for months or years?), but it is not created by depression. Please understand that if I say I have to sit down, lie down, stay in bed, or take these pills now, that probably means that I do have to do it right now, it can't be put off or forgotten just because I'm somewhere, or I'm right in the middle of doing something. Chronic pain does not forgive, nor does it wait for anyone. If you want to suggest a cure to me, please don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. Lord knows that isn't true. In all likelihood, if you've heard of it or tried it, so have I. In some cases, I have been made sicker, not better. This can involve side effects or allergic reactions, as is the case with herbal remedies. It also includes failure, which in and of itself can make me feel even lower. If there were something that cured, or even helped people with my form of chronic pain, then we'd know about it. There is worldwide networking (both on and off the Internet) between people with chronic pain. If something worked, we would KNOW. It's definitely not for lack of trying. If, after reading this, you still feel the need to suggest a cure, then so be it. I may take what you said and discuss it with my doctor. If I seem touchy, it's probably because I am. It's not how I try to be. As a matter of fact, I try very hard to be normal. I hope you will try to understand. I have been, and am still going through a lot. Chronic pain is hard for you to understand unless you have had it. It wreaks havoc on the body and the mind. It is exhausting and exasperating almost all the time. I know that I am doing my best to cope with this and live my life to the best of my ability. I ask you to bear with me and accept me as I am. I know that you cannot literally understand my situation unless you have been in my shoes, but as much as is possible, I am asking you to try to be understanding in general. In many ways I depend on you, people who are not sick. I need you to visit me when I am too sick to go out. Sometimes I need you help me with the shopping, the cooking, or the cleaning. I may need you to take me to the doctor, or to the store. You are my link to the " normalcy " of life. You can help me to keep in touch with the parts of life that I miss and fully intend to undertake again, just as soon as I am able. I know that I asked a lot from you, and I do thank you for listening. It really does mean a lot. SOURCE: 'Open letters' format to describe living with a chronic ailment. These are similar in spirit to the Open Letter but, as far as I am aware, have been conceived completely separately. The topics are many: Fibro, Chronic Fatigue, Chronic Pain, etc.. http://notdoneliving.net/foothold/openletter/options.html From: Schafer <81196@...> Subject: meds spinal problems Date: Tuesday, October 26, 2010, 1:29 PM I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Some people have great luck with Nuerontin while others think they are in a nightmare when they take it. I was on it for only 7 days then I was talking to myself. I felt like I jsut wasn't there. So I quit but give it a try it might work very well for you just watch out for side effects. Janice meds I went to the pain doc yesterday and told him how much pain I was in after the bilateral radiofrequency ablation. He put me on Neuronton(gabapentin) with my oxycodones. Anybody have an opinion on Neuronton? Any advice will be appreciated. My pain has been running between 7-10 since that procedure. S************* Quote Link to comment Share on other sites More sharing options...
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