Hello, I am new

[Guest guest]

Welcome Deb from MD.

Max

[Guest guest]

Hello, and welcome. This is a GREAT support group. Where in MD are you, I'm

in Southern MD.

Tina O+ ns

>From: " henhao_us " <henhao_us@...>

>Reply-

>

>Subject: Hello, I am new

>Date: Thu, 28 Feb 2002 01:45:50 -0000

>

>Hi everyone,

>

>I'm O+, secretor status unknown and very happy to find this board.

>

>Joe R. told me about this board. Since the dadamo board is down, I

>thought I'd swing by here. I've found other ER boards but never one

>just for us O's.

>

>A little about me...I have candida and was on a diet called Body

>Ecology, which is *very* similar to an ER O diet. I really began to

>feel better when I started eating meat again after sixteen years

>without. Corn, I discovered, made me get rashes. So did wheat. When I

>found the ER diet, I was amazed to find how accurate it was.

>

>I look forward to chatting with you all...

>

>Deb from MD

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp.

[Guest guest]

I used to live in Fort Washington!!

K. OKC

--- *Tina * <tmi4@...> wrote:

>

> Hello, and welcome. This is a GREAT support group.

> Where in MD are you, I'm

> in Southern MD.

> Tina O+ ns

>

>

> >From: " henhao_us " <henhao_us@...>

> >Reply-

> >

> >Subject: Hello, I am new

> >Date: Thu, 28 Feb 2002 01:45:50 -0000

> >

> >Hi everyone,

> >

> >I'm O+, secretor status unknown and very happy to

> find this board.

> >

> >Joe R. told me about this board. Since the dadamo

> board is down, I

> >thought I'd swing by here. I've found other ER

> boards but never one

> >just for us O's.

> >

> >A little about me...I have candida and was on a

> diet called Body

> >Ecology, which is *very* similar to an ER O diet. I

> really began to

> >feel better when I started eating meat again after

> sixteen years

> >without. Corn, I discovered, made me get rashes. So

> did wheat. When I

> >found the ER diet, I was amazed to find how

> accurate it was.

> >

> >I look forward to chatting with you all...

> >

> >Deb from MD

> >

>

>

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp.

>

>

__________________________________________________

[Guest guest]

HI Deb,

You might try visiting ' board also. I love the

posts there. www.foodforyourblood.com

Dawn

--- *Tina * <tmi4@...> wrote:

>

> Hello, and welcome. This is a GREAT support group.

> Where in MD are you, I'm

> in Southern MD.

> Tina O+ ns

>

>

> >From: " henhao_us " <henhao_us@...>

> >Reply-

> >

> >Subject: Hello, I am new

> >Date: Thu, 28 Feb 2002 01:45:50 -0000

> >

> >Hi everyone,

> >

> >I'm O+, secretor status unknown and very happy to

> find this board.

> >

> >Joe R. told me about this board. Since the dadamo

> board is down, I

> >thought I'd swing by here. I've found other ER

> boards but never one

> >just for us O's.

> >

> >A little about me...I have candida and was on a

> diet called Body

> >Ecology, which is *very* similar to an ER O diet. I

> really began to

> >feel better when I started eating meat again after

> sixteen years

> >without. Corn, I discovered, made me get rashes. So

> did wheat. When I

> >found the ER diet, I was amazed to find how

> accurate it was.

> >

> >I look forward to chatting with you all...

> >

> >Deb from MD

> >

>

>

>

>

_________________________________________________________________

> Get your FREE download of MSN Explorer at

> http://explorer.msn.com/intl.asp.

>

>

__________________________________________________

[Guest guest]

That viral load is significant , it is in the med to high range . Have you had a

biopsy yet ? The viral load is important but a biopsy can tell you if that viral

load is causing damage .It gives the doctors a baseline to work with .Are you

going to do the treatment ?

rsuz1103 <suzanne.ruhlmann@...> wrote:Hello,

I am newly diagnosed with hepatitis C and I received my lab report

this morning :

1,206,743 copies/ml

6,1 log

232,066 UI/ml

Is that viral load high or not ?

Thanks a lot for your comments.

Suzanne

It's a pleasure having you join in our conversations. We hope you have found the

support you need with us.

If you are using email for your posts, for easy access to our group, just click

the link-- Hepatitis C/

Happy Posting

[Guest guest]

Another thing to watch for is " What is the viral load

in 3 months? " . How much has it increased? Bill

--- elizabeth savage <elizabethnv1@...> wrote:

> That viral load is significant , it is in the med to

> high range . Have you had a biopsy yet ? The viral

> load is important but a biopsy can tell you if that

> viral load is causing damage .It gives the doctors a

> baseline to work with .Are you going to do the

> treatment ?

>

> rsuz1103 <suzanne.ruhlmann@...> wrote:Hello,

>

> I am newly diagnosed with hepatitis C and I received

> my lab report

> this morning :

> 1,206,743 copies/ml

> 6,1 log

> 232,066 UI/ml

> Is that viral load high or not ?

>

> Thanks a lot for your comments.

>

> Suzanne

>

>

>

>

> It's a pleasure having you join in our

> conversations. We hope you have found the support

> you need with us.

>

> If you are using email for your posts, for easy

> access to our group, just click the link--

> Hepatitis C/

>

> Happy Posting

>

>

>

>

[Guest guest]

Go to www.hepatitisneighborhood.com and saturate

yourself. It will explain all of you labs and anything

you want to ask...Bill

--- rsuz1103 <suzanne.ruhlmann@...> wrote:

> Hello,

>

> I am newly diagnosed with hepatitis C and I received

> my lab report

> this morning :

> 1,206,743 copies/ml

> 6,1 log

> 232,066 UI/ml

> Is that viral load high or not ?

>

> Thanks a lot for your comments.

>

> Suzanne

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Thanks for your answers. In fact, I am going to do the treatment.I have read a

lot concerning adverse effects and

I am worried about hair loss. Is it important or not? What is your experience

with respect to that?

Suzanne

Re: Hello, I am new

That viral load is significant , it is in the med to high range . Have you had

a biopsy yet ? The viral load is important but a biopsy can tell you if that

viral load is causing damage .It gives the doctors a baseline to work with .Are

you going to do the treatment ?

rsuz1103 <suzanne.ruhlmann@...> wrote:Hello,

I am newly diagnosed with hepatitis C and I received my lab report

this morning :

1,206,743 copies/ml

6,1 log

232,066 UI/ml

Is that viral load high or not ?

Thanks a lot for your comments.

Suzanne

It's a pleasure having you join in our conversations. We hope you have found

the support you need with us.

If you are using email for your posts, for easy access to our group, just

click the link-- Hepatitis C/

Happy Posting

[Guest guest]

Hi Suzanne

I did tx, and I lost a LOT of hair and when it became

too thin to do anything with, I shave it off and wore

a wig for a short time, then just gel'd it up and wore

it all spikey,, it was very liberating,, but it grows

back and is as nice as it was before,, dont worry, it

will come back,,

hugs and welcome

jax

--- " suzanne.ruhlmann " <suzanne.ruhlmann@...>

wrote:

> Thanks for your answers. In fact, I am going to do

> the treatment.I have read a lot concerning adverse

> effects and

> I am worried about hair loss. Is it important or

> not? What is your experience with respect to that?

> Suzanne

> Re: Hello, I am new

>

>

> That viral load is significant , it is in the med

> to high range . Have you had a biopsy yet ? The

> viral load is important but a biopsy can tell you if

> that viral load is causing damage .It gives the

> doctors a baseline to work with .Are you going to do

> the treatment ?

>

> rsuz1103 <suzanne.ruhlmann@...>

> wrote:Hello,

>

> I am newly diagnosed with hepatitis C and I

> received my lab report

> this morning :

> 1,206,743 copies/ml

> 6,1 log

> 232,066 UI/ml

> Is that viral load high or not ?

>

> Thanks a lot for your comments.

>

> Suzanne

>

>

>

>

> It's a pleasure having you join in our

> conversations. We hope you have found the support

> you need with us.

>

> If you are using email for your posts, for easy

> access to our group, just click the link--

> Hepatitis C/

>

> Happy Posting

>

>

>

>

[Guest guest]

Hi Suzanne

I think I read somewhere that they use the IU/ML as

that is the standard, the the copies can varie a lot

so most doc's dont use them,, and if you are under 2

million which you are way under that ,, that is

considered low vl.. now that doesnt say that you dont

have damage, you can have low vl and have lots of

damage and you can have very very high vl and have no

damage, this darned virus is really hard to figure

out, but please really try to educate yourself and

learn everything you can so you can be prepared to

talk with your doc,, and remember sometimes the docs

are new at treating this and you might even know MORE

than they do... but your vl is not extremely high,,

what genotype are you? Have you had a biopsy to learn

how much damage you have? Its called the " stage " of

damage, it will be from 0-none to 4-cirrhosis.. and

the GRADE of inflammation , that tells how FAST it is

moving, it is also judged in that 0-slow to 4 really

fast...I was stage 3-4 with early cirrhosis and grade

3 inflammation which meant I had a lot of damage and

it was moving along fast with the 3 on that 0-4

scale..

Dont hesitate to ask any questions here,, there are a

lot of us seasoned people with hep and will try to

help you as much as we can,,

Nice to meet you Suzanne,

hugs

jax

--- billy lewis <bill0443@...> wrote:

> Go to www.hepatitisneighborhood.com and saturate

> yourself. It will explain all of you labs and

> anything

> you want to ask...Bill

>

> --- rsuz1103 <suzanne.ruhlmann@...> wrote:

>

> > Hello,

> >

> > I am newly diagnosed with hepatitis C and I

> received

> > my lab report

> > this morning :

> > 1,206,743 copies/ml

> > 6,1 log

> > 232,066 UI/ml

> > Is that viral load high or not ?

> >

> > Thanks a lot for your comments.

> >

> > Suzanne

> >

> >

> >

>

>

>

>

> __________________________________

> - PC Magazine Editors' Choice 2005

> http://mail.

>

Jackie

[Guest guest]

The hair loss is very small for most , you will find that your hair will become

very thin ...you will not lose it all and when it grows back its thicker (at

least it was for me and all I know) . I just had my hair cut last week so that

when I start the hair loss will be even less. Longer hair is lost more

frequently than the shorter because of the wieght of the hair .

" suzanne.ruhlmann " <suzanne.ruhlmann@...> wrote:Thanks for your answers.

In fact, I am going to do the treatment.I have read a lot concerning adverse

effects and

I am worried about hair loss. Is it important or not? What is your experience

with respect to that?

Suzanne

__________________________________________________

[Guest guest]

On 9/24/05, Jackie on <redjaxjm@...> wrote:

Yes Hon, You do need to have a biopsy or a fibrosure at the very least to

see how much damage you have...

Just to give a different perspective, I haven't had a biopsy (Von Willebrand

disease) nor a fibrosure test (my hep doc says they are inaccurate).

I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load

had been 580,000.

> ------------------------------

>

[Guest guest]

Well I guess IF you are going to do tx for sure,, you " could " choose not to have

one,, however if you are still in the deciding phase, it might help you make a

decision..

The fibrosure is not as accurate as the biopsy ,that is for sure,, however I

have read and heard that if you are at the far ends of the scale that they are

more accurate,, it gets fuzzy if you are in stage 2-3 area, but not if 1 or

4...

I sure fought my doc cuz I didnt want to have one,, but ended up doing it and

was glad cuz that is how I found out I was stage 3-4 with early cirrhosis so I

really needed to treat, and I did and Im now almost 3 years post tx and clear at

2 years....

But Im glad you put your 2 cents in too, its so hard to make a decision so the

more info one has or more opinions offered, the better! thanks david!

jax

s <jumpinjive@...> wrote:

On 9/24/05, Jackie on <redjaxjm@...> wrote:

Yes Hon, You do need to have a biopsy or a fibrosure at the very least to

see how much damage you have...

Just to give a different perspective, I haven't had a biopsy (Von Willebrand

disease) nor a fibrosure test (my hep doc says they are inaccurate).

I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load

had been 580,000.

> ------------------------------

>

[Guest guest]

On 9/24/05, Jackie on <redjaxjm@...> wrote:

>

> But Im glad you put your 2 cents in too, its so hard to make a decision so

> the more info one has or more opinions offered, the better! thanks david!

Yes, I think it's important that people hear all the situations and

different viewpoints. It may be confusing, but I'm sure it's useful in the

end.

I should also mention that we know I have some degree of chirrosis, because

I have minor varices.

[Guest guest]

In a message dated 9/25/2005 5:59:07 PM Pacific Standard Time,

elizabethnv1@... writes:

<suzanne.ruhlmann@...>

Wow, was that you that reasponded.... or a whole GANGE of fols?!?

But...uh... was ...kinda....informative

Stan still new, stil ....nervious.

yeah, right, ...

men get nervious, huh

Stan

[Guest guest]

Thanks Jackie, , Bill, and Silvia for all the information you

provide about hair loss, need to do biopsy, treatment and viral load.

Some ther question come to my mind :

- Do you know if new treatments with less side effects could potentially be

released in the near future or the reference of a Web site where I could find

the info ?

- Are relapses frequent after successful treatment ?

- In case of treatment failure, is it less likely to have a therapeutic response

with further treatments attempts ?

- Does it take a long time to get the results of a biopsy ?

- Is a biopsy very painful ?

- Do the side effects of treatment appear immediately or after several weeks ?

- Do you have permanent side effects that won't subside after end of treatment ?

- Did you feel irritable or depressed or had insomnia during treatment ?

- Does fever last only 24 hours after injection ?

Sorry for all those questions.

Regards,

Suzanne

[Guest guest]

Hi, I'm Stan

dont know how this ...stuff... works yet,..

My wife just came back from a Shark's game. (I hope they won) but I was

unable (engery wise ) to go with here (but I got a AA member to {ha] go wth

her!

{Sheet, she's cute (For 50ish) and fun !!! (for any age! ) And a

safe'n'same young (in my book)I hope they had a good time

good nite

Stan

[Guest guest]

Hi Suzanne

I will try to answer your questions based on how tx affected me, but everyone is

different and so there is no way to be absolutely sure that you will respond as

anyone else has.. that is what is so frustrating,,

I am hopeful that newer and less harsh tx will come out in the future, however,

it looks like even new tx will have an Interferon component with it..and it will

also have to have an anti-viral as well.. I saw a post here regarding mistletoe

and green tomatoe tx but dont know how 'real' it is.

Yes, some ppl do in fact relapse after what appears successful tx,, in that I

mean that there are some who finish tx undetectible but within 3-6 months, the

virus returns. THAT is why I think all should have the heptimax test done as it

is the lowest vl as far as the numbers go,, if you are undetectible with THAT

TEST at the end of tx, then its MY OPINION, that you would have a better chance

of remaining undetectible,, as I did

Many ppl who have relapsed still get some histological improvement with tx even

if they dont remain clear and further tx can and does help and in a number of

cases,I have seen ppl have their stage of damage revert from say a 3 to a 1 and

I have seen ppl clear and remain clear after the 2nd and 3rd attempt at

clearing.

My biopsy took about a week to get the results, was it painful, NO it was not,,

my doc gave me conscious sedation so while I was technically awake and could

follow his directions to hold my breath when he did the puncture,, I do not

remember it. My husband was present and he said I only said 'ouch' softly... I

would never hesitate to have it done as long as they gave me this kind of

sedation.. I had to lay on my right side for 2 hours I think and then they gave

me fluids to drink , then after about 6 hours, they let me go home,, I never had

any trouble with it and I was back on the ambulance on my next shift 2 days

later...

The side effects of tx usually appear several hours after the first shot.. They

include all the flu like symptoms, the body aches, headaches, fever, etc.. That

is why you are advised to take a regular dose of tylenol 30 min before you take

your shot and to take your shot at nite before you go to bed in hopes of

sleeping through most of the side effects. For me the first shot was the worst

but it was not as bad as I had anticipated. Over time I started having more

body aches and my doc had to prescribe a strong pain med to enable me to

continue with tx.. Just remember that there ARE meds to control the side effects

and if your doc wont give them to you, then find another doc,, that would be one

of the topics of discussion and agreement before ever starting tx..

Most ppl have the side effects eventually go away after tx,, It can take many

months to get all the medications out of your system so its not like you are

going to feel wonderful in a week or two after you finish tx, it can take up to

6 months or longer.. For me, it never ended but I am not the " typical " person

who treated.. YES side effects can become permanent, but typically do not.

I had ALL those side effects, and one thing that I THINK is so important is to

get on an antidepressant before you start tx. The Interferon depletes your

brain of seretonin and so you need an ssri before tx.. some ppl also need a

dopamine drug which is wellbutrin in addition to the seretonin med. BUT you

must remember that it IS THE MEDICATION that is making you crabby, depressed

etc, its NOT you,, so take the antidepressant... you can wean yourself off it

later, long after you finish tx.. and you have to do that slowly.

Well some ppl have the fever all the way through tx and some only have it on

shot day, there is no way to tell just exactly how you are going to do before

tx.. Everyone is different. My fevers were really sporatic and I could never

prepare for them, they just appeared when they felt like it,

Well those are my words,, Im sure others will come along and tell you their

stories.. but hon

I really DO believe that you need to have that biopsy to see how much damage you

have or dont have,, I think that will help you make your decision whether to

treat now or wait and see and just take good care of yourself..

If you have further questions,please ask,, thats what we are here for,,

hugs to you hon

jax

" suzanne.ruhlmann " <suzanne.ruhlmann@...> wrote:

Thanks Jackie, , Bill, and Silvia for all the information you

provide about hair loss, need to do biopsy, treatment and viral load.

Some ther question come to my mind :

- Do you know if new treatments with less side effects could potentially be

released in the near future or the reference of a Web site where I could find

the info ?

- Are relapses frequent after successful treatment ?

- In case of treatment failure, is it less likely to have a therapeutic response

with further treatments attempts ?

- Does it take a long time to get the results of a biopsy ?

- Is a biopsy very painful ?

- Do the side effects of treatment appear immediately or after several weeks ?

- Do you have permanent side effects that won't subside after end of treatment ?

- Did you feel irritable or depressed or had insomnia during treatment ?

- Does fever last only 24 hours after injection ?

Sorry for all those questions.

Regards,

Suzanne

[Guest guest]

Not everyone has side effects , and if they do when they start is anyones guess

.. Treatment failure makes it harder to respond in the future at least to current

meds . Clinical trial meds are the new ones and are only availble at certain

places . Biopsy is not painful they give ya something to knock ya out and

afterwards there is tenderness in the location for a few days . But not as bad

as it sounds , more scarey is the unknown factor , LOL . Alot of docs make the

patient go on antidepressants before the treatment starts , and insomnia is a

common side effect but is easily treated . Permanent sides depends on your bodys

ability to handle to medications , so there is no way to tell unless you already

have an compromised imune system or thyroid problems . Oh and biopsy results

come within a week usually ,but some take up to 2 weeks . I hope this was allthe

questions , lol I tried to get them all

" suzanne.ruhlmann " <suzanne.ruhlmann@...> wrote:Thanks Jackie, ,

Bill, and Silvia for all the information you provide about hair loss, need

to do biopsy, treatment and viral load.

Some ther question come to my mind :

- Do you know if new treatments with less side effects could potentially be

released in the near future or the reference of a Web site where I could find

the info ?

- Are relapses frequent after successful treatment ?

- In case of treatment failure, is it less likely to have a therapeutic response

with further treatments attempts ?

- Does it take a long time to get the results of a biopsy ?

- Is a biopsy very painful ?

- Do the side effects of treatment appear immediately or after several weeks ?

- Do you have permanent side effects that won't subside after end of treatment ?

- Did you feel irritable or depressed or had insomnia during treatment ?

- Does fever last only 24 hours after injection ?

Sorry for all those questions.

Regards,

Suzanne

[Guest guest]

Hi Stan. Don't be nervous. Jump in here. We need male voices in

here (bad).......welcome. ric

[Guest guest]

I answered each question the best i could , and there is no need to get nervous

.. I think the hype of treatment scares more than the actual thing . You have

nothing to worry about .

nonacht@... wrote:

In a message dated 9/25/2005 5:59:07 PM Pacific Standard Time,

elizabethnv1@... writes:

<suzanne.ruhlmann@...>

Wow, was that you that reasponded.... or a whole GANGE of fols?!?

But...uh... was ...kinda....informative

Stan still new, stil ....nervious.

yeah, right, ...

men get nervious, huh

Stan

[Guest guest]

Don't need more BAD male voices! Please. ;-) How are you doing, Ric?

Sal

Re: Hello, I am new

Hi Stan. Don't be nervous. Jump in here. We need male voices in

here (bad).......welcome. ric

It's a pleasure having you join in our conversations. We hope you have found

the support you need with us.

If you are using email for your posts, for easy access to our group, just

click the link-- Hepatitis C/

Happy Posting

[Guest guest]

Oh, hey Stan, welcome to the list. I was just ribbing Ric a bit there

because I can. You can talk all you want. You're not bad. :-)

Sal

Re: Hello, I am new

In a message dated 9/25/2005 5:59:07 PM Pacific Standard Time,

elizabethnv1@... writes:

<suzanne.ruhlmann@...>

Wow, was that you that reasponded.... or a whole GANGE of fols?!?

But...uh... was ...kinda....informative Stan still new, stil ....nervious.

yeah, right, ... men get nervious, huh Stan

[Guest guest]

Heck you know me Sal, i'm always bad! I'm glad your here too. r

[Guest guest]

Does anyone know if you change jobs will they cover you for the Hep?

Ric <richobbs1@...> wrote:Heck you know me Sal, i'm always bad! I'm glad

your here too. r

It's a pleasure having you join in our conversations. We hope you have found the

support you need with us.

If you are using email for your posts, for easy access to our group, just click

the link-- Hepatitis C/

Happy Posting