Guest guest Report post Posted January 24, 2004 Hi I have been on ldn now for over a year with great improvements in my symptoms. First I am dr bihari " s patient and the filler he says to use is lactose he said that with any other filler ldn doesn't work needs a lactose filler. I have the muscle spasms stiffness and spasticity they have improved but my neuro gave me a muscle relaxant to take at night and I sleep like a baby now and wake up feeling great maybe a muscle relaxant at night would help and change your filler to lactose may help also. Kathy >From: e.pauly@... >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] help >Date: Sat, 24 Jan 2004 14:54:27 GMT > > >Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy >and woke rested the first night. Problem is with stiffness, muscle spasms >and spasticity. Woke up the first night with mild symptoms but they have >been worse every night, last night had trouble breathing. Symptoms start >about 1 hour after taking med, and last for maybe 2 hours. After that I >sleep great, which is very rare. Think I may be having allergic reaction to >the filler, using Calcium. Need to stop LDN for now, don't want to have a >worse reaction, but think it is helping. Please write if this has been your >experience, or if you think I should try a particular filler. > >Thanks, >F. _________________________________________________________________ High-speed users—be more efficient online with the new MSN Premium Internet Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 24, 2004 This is so odd the first time I have seen that we're supposed to use lactose as the filler... Especially strange because one of the LDN pharmacy's the one I use here has been using Calcium Carbonate... so why I sit on the list if it's not how Bihari likes it to be used... Anyone know about this should I be asking for Lactose I had asked the pharmacy for acidophilus next round and I am about 11 uses away from needing a fill do anyone have anything to say on the validity of Lactose being the only filler that will properly work with LDN for us? Thanks, Concerned LDN user LOL -----Original Message----- From: Kathy McDermott [mailto:kateysspot@...] Sent: Saturday, January 24, 2004 5:43 PM low dose naltrexone Subject: RE: [low dose naltrexone] help Hi I have been on ldn now for over a year with great improvements in my symptoms. First I am dr bihari " s patient and the filler he says to use is lactose he said that with any other filler ldn doesn't work needs a lactose filler. I have the muscle spasms stiffness and spasticity they have improved but my neuro gave me a muscle relaxant to take at night and I sleep like a baby now and wake up feeling great maybe a muscle relaxant at night would help and change your filler to lactose may help also. Kathy >From: e.pauly@... >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] help >Date: Sat, 24 Jan 2004 14:54:27 GMT > > >Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy >and woke rested the first night. Problem is with stiffness, muscle spasms >and spasticity. Woke up the first night with mild symptoms but they have >been worse every night, last night had trouble breathing. Symptoms start >about 1 hour after taking med, and last for maybe 2 hours. After that I >sleep great, which is very rare. Think I may be having allergic reaction to >the filler, using Calcium. Need to stop LDN for now, don't want to have a >worse reaction, but think it is helping. Please write if this has been your >experience, or if you think I should try a particular filler. > >Thanks, >F. _________________________________________________________________ High-speed users-be more efficient online with the new MSN Premium Internet Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 I think avicel is the best-and go to a good pharmacy like Skip's..Helen ----- Original Message ----- From: " I AM CANADIAN " <lvlail_lvle@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 3:30 PM Subject: RE: [low dose naltrexone] help > This is so odd the first time I have seen that we're supposed to use lactose > as the filler... Especially strange because one of the LDN pharmacy's the > one I use here has been using Calcium Carbonate... so why I sit on the list > if it's not how Bihari likes it to be used... Anyone know about this should > I be asking for Lactose I had asked the pharmacy for acidophilus next round > and I am about 11 uses away from needing a fill do anyone have anything to > say on the validity of Lactose being the only filler that will properly work > with LDN for us? > > > Thanks, > > Concerned LDN user LOL > > -----Original Message----- > From: Kathy McDermott [mailto:kateysspot@...] > Sent: Saturday, January 24, 2004 5:43 PM > low dose naltrexone > Subject: RE: [low dose naltrexone] help > > Hi > I have been on ldn now for over a year with great improvements in my > symptoms. First I am dr bihari " s patient and the filler he says to use is > lactose he said that with any other filler ldn doesn't work needs a lactose > filler. I have the muscle spasms stiffness and spasticity they have > improved but my neuro gave me a muscle relaxant to take at night and I sleep > > like a baby now and wake up feeling great maybe a muscle relaxant at night > would help and change your filler to lactose may help also. > > Kathy > > > >From: e.pauly@... > >Reply-low dose naltrexone > >low dose naltrexone > >Subject: [low dose naltrexone] help > >Date: Sat, 24 Jan 2004 14:54:27 GMT > > > > > >Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy > > >and woke rested the first night. Problem is with stiffness, muscle spasms > >and spasticity. Woke up the first night with mild symptoms but they have > >been worse every night, last night had trouble breathing. Symptoms start > >about 1 hour after taking med, and last for maybe 2 hours. After that I > >sleep great, which is very rare. Think I may be having allergic reaction to > > >the filler, using Calcium. Need to stop LDN for now, don't want to have a > >worse reaction, but think it is helping. Please write if this has been your > > >experience, or if you think I should try a particular filler. > > > >Thanks, > >F. > > _________________________________________________________________ > High-speed users-be more efficient online with the new MSN Premium Internet > Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 Thanks for all your input. I am new to the group and appreciate all the care and knowledge you give each other. I think I will try the Lactose filler, I had heard elsewhere to avoid it cause it is highly allergic, but it sounds as if it is the filler of choice for Dr. B. I got my prescription from Irmat Pharm. and they say they always go with the Calcium unless someone requests differently because it causes the least problems. Thanks again. I'll let you know how it goes. F. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 I use Skip's in Florida and he says the only filler to use is avicel, which is the only filler he wants to use. I have no experience with any other fillers or pharmacies, but I've no complaints here. ----- Original Message ----- From: Kathy McDermott low dose naltrexone Sent: Saturday, January 24, 2004 17:42 Subject: RE: [low dose naltrexone] help HiI have been on ldn now for over a year with great improvements in my symptoms. First I am dr bihari"s patient and the filler he says to use is lactose he said that with any other filler ldn doesn't work needs a lactose filler. I have the muscle spasms stiffness and spasticity they have improved but my neuro gave me a muscle relaxant to take at night and I sleep like a baby now and wake up feeling great maybe a muscle relaxant at night would help and change your filler to lactose may help also.Kathy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. -------Original Message------- From: low dose naltrexone Date: 01/24/04 16:32:00 low dose naltrexone Subject: RE: [low dose naltrexone] help This is so odd the first time I have seen that we're supposed to use lactoseas the filler... Especially strange because one of the LDN pharmacy's theone I use here has been using Calcium Carbonate... so why I sit on the listif it's not how Bihari likes it to be used... Anyone know about this shouldI be asking for Lactose I had asked the pharmacy for acidophilus next roundand I am about 11 uses away from needing a fill do anyone have anything tosay on the validity of Lactose being the only filler that will properly workwith LDN for us?Thanks,Concerned LDN user LOL-----Original Message-----From: Kathy McDermott [mailto:kateysspot@...] Sent: Saturday, January 24, 2004 5:43 PMlow dose naltrexone Subject: RE: [low dose naltrexone] helpHiI have been on ldn now for over a year with great improvements in my symptoms. First I am dr bihari"s patient and the filler he says to use is lactose he said that with any other filler ldn doesn't work needs a lactose filler. I have the muscle spasms stiffness and spasticity they have improved but my neuro gave me a muscle relaxant to take at night and I sleeplike a baby now and wake up feeling great maybe a muscle relaxant at night would help and change your filler to lactose may help also.Kathy>From: e.pauly@...>Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] help>Date: Sat, 24 Jan 2004 14:54:27 GMT>>>Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy>and woke rested the first night. Problem is with stiffness, muscle spasms >and spasticity. Woke up the first night with mild symptoms but they have >been worse every night, last night had trouble breathing. Symptoms start >about 1 hour after taking med, and last for maybe 2 hours. After that I >sleep great, which is very rare. Think I may be having allergic reaction to>the filler, using Calcium. Need to stop LDN for now, don't want to have a >worse reaction, but think it is helping. Please write if this has been your>experience, or if you think I should try a particular filler.>>Thanks,>F._________________________________________________________________High-speed users-be more efficient online with the new MSN Premium Internet Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 Nah going with acidophilus I don’t think it’s the filler that matters really. I am also on an anti dairy diet so Lactose prob wouldn’t be good and Calcium Carbonate definitely worked alright but with the leaky gut issues etc… that MSers can have I’ll kill two birds with one stone and have my acidophilus as my filler instead of a separate pill I take daily. Also ’s is a kick @ss pharmacy it’s on the list of approved Pharmacy’s for filling this prescription over on spotlight ldn’s site even though the number they have listed there isn’t good for those calling from Toronto and they do have a website too which get’s you 10% off everything there… So if anyone out there is in Toronto or not but using ’s order online and get the 10% OFF!! *hugs* & Happy LDNing From: Helen Hecker [mailto:twinpeak@...] Sent: Saturday, January 24, 2004 8:13 PM To: low dose naltrexone Subject: Re: [low dose naltrexone] help I think avicel is the best-and go to a good pharmacy like Skip's..Helen ----- Original Message ----- From: " I AM CANADIAN " <lvlail_lvle@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 3:30 PM Subject: RE: [low dose naltrexone] help > This is so odd the first time I have seen that we're supposed to use lactose > as the filler... Especially strange because one of the LDN pharmacy's the > one I use here has been using Calcium Carbonate... so why I sit on the list > if it's not how Bihari likes it to be used... Anyone know about this should > I be asking for Lactose I had asked the pharmacy for acidophilus next round > and I am about 11 uses away from needing a fill do anyone have anything to > say on the validity of Lactose being the only filler that will properly work > with LDN for us? > > > Thanks, > > Concerned LDN user LOL > > -----Original Message----- > From: Kathy McDermott [mailto:kateysspot@...] > Sent: Saturday, January 24, 2004 5:43 PM > low dose naltrexone > Subject: RE: [low dose naltrexone] help > > Hi > I have been on ldn now for over a year with great improvements in my > symptoms. First I am dr bihari " s patient and the filler he says to use is > lactose he said that with any other filler ldn doesn't work needs a lactose > filler. I have the muscle spasms stiffness and spasticity they have > improved but my neuro gave me a muscle relaxant to take at night and I sleep > > like a baby now and wake up feeling great maybe a muscle relaxant at night > would help and change your filler to lactose may help also. > > Kathy > > > >From: e.pauly@... > >Reply-To: low dose naltrexone > >low dose naltrexone > >Subject: [low dose naltrexone] help > >Date: Sat, 24 Jan 2004 14:54:27 GMT > > > > > >Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy > > >and woke rested the first night. Problem is with stiffness, muscle spasms > >and spasticity. Woke up the first night with mild symptoms but they have > >been worse every night, last night had trouble breathing. Symptoms start > >about 1 hour after taking med, and last for maybe 2 hours. After that I > >sleep great, which is very rare. Think I may be having allergic reaction to > > >the filler, using Calcium. Need to stop LDN for now, don't want to have a > >worse reaction, but think it is helping. Please write if this has been your > > >experience, or if you think I should try a particular filler. > > > >Thanks, > >F. > > _________________________________________________________________ > High-speed users-be more efficient online with the new MSN Premium Internet > Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 25, 2004 Reg, I use Acidophilus next to LDN. Have to use probiotic because the antibiotic kills my bowel-flora. Never noticed a problem with the combination of the 2. The pharmacy here uses Nalorex with cellulosum microcrystal filling. I don't react at all to this. I will ask them to grind the Revia i've got into 3mg caps with a lactose or Acidophilus filling. Dr. Lawrence says, sugar is a good combi too. Thnx for the tips;o) Chey Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 26, 2004 What pharmacy are you getting your LDN from? LDN nor calcium that is pure and not contaminated should not cause these type of symptoms. Noland ----- Original Message ----- From: <e.pauly@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 7:54 AM Subject: [low dose naltrexone] help > > Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy and woke rested the first night. Problem is with stiffness, muscle spasms and spasticity. Woke up the first night with mild symptoms but they have been worse every night, last night had trouble breathing. Symptoms start about 1 hour after taking med, and last for maybe 2 hours. After that I sleep great, which is very rare. Think I may be having allergic reaction to the filler, using Calcium. Need to stop LDN for now, don't want to have a worse reaction, but think it is helping. Please write if this has been your experience, or if you think I should try a particular filler. > > Thanks, > F. > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 Some people are lactose intolerant even to very small quantities of lactose. Some people have reported that calcium carbonate fillers created gas which can be embarrassing in a room full of people. Skip's Pharmacy uses avicel as a filler which is an inert cellulose. The Compounder Pharmacy reportedly uses a combination of vitamins and minerals as a filler which people should be non-reactive to. Noland ----- Original Message ----- From: " Kathy McDermott " <kateysspot@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 3:42 PM Subject: RE: [low dose naltrexone] help > Hi > I have been on ldn now for over a year with great improvements in my > symptoms. First I am dr bihari " s patient and the filler he says to use is > lactose he said that with any other filler ldn doesn't work needs a lactose > filler. I have the muscle spasms stiffness and spasticity they have > improved but my neuro gave me a muscle relaxant to take at night and I sleep > like a baby now and wake up feeling great maybe a muscle relaxant at night > would help and change your filler to lactose may help also. > > Kathy > > > >From: e.pauly@... > >Reply-low dose naltrexone > >low dose naltrexone > >Subject: [low dose naltrexone] help > >Date: Sat, 24 Jan 2004 14:54:27 GMT > > > > > >Started LDN 3 nights ago. Noticed improvement in a general way, very sleepy > >and woke rested the first night. Problem is with stiffness, muscle spasms > >and spasticity. Woke up the first night with mild symptoms but they have > >been worse every night, last night had trouble breathing. Symptoms start > >about 1 hour after taking med, and last for maybe 2 hours. After that I > >sleep great, which is very rare. Think I may be having allergic reaction to > >the filler, using Calcium. Need to stop LDN for now, don't want to have a > >worse reaction, but think it is helping. Please write if this has been your > >experience, or if you think I should try a particular filler. > > > >Thanks, > >F. > > _________________________________________________________________ > High-speed users-be more efficient online with the new MSN Premium Internet > Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1 > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 I am unaware of any requirement that a particular filler be used. It is a requirement that the LDN be in a fast release form. Noland ----- Original Message ----- From: " I AM CANADIAN " <lvlail_lvle@...> <low dose naltrexone > Sent: Saturday, January 24, 2004 4:30 PM Subject: RE: [low dose naltrexone] help > This is so odd the first time I have seen that we're supposed to use lactose > as the filler... Especially strange because one of the LDN pharmacy's the > one I use here has been using Calcium Carbonate... so why I sit on the list > if it's not how Bihari likes it to be used... Anyone know about this should > I be asking for Lactose I had asked the pharmacy for acidophilus next round > and I am about 11 uses away from needing a fill do anyone have anything to > say on the validity of Lactose being the only filler that will properly work > with LDN for us? > > > Thanks, > > Concerned LDN user LOL > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 I wouldn't want to use sugar if a person is insulin resistant or diabetic as I am. Sugar is high glycemic. Noland ----- Original Message ----- From: " cheystay " <c_chey@...> <low dose naltrexone > Sent: Sunday, January 25, 2004 4:40 AM Subject: [low dose naltrexone] Re: help > Reg, I use Acidophilus next to LDN. Have to use probiotic because > the antibiotic kills my bowel-flora. Never noticed a problem with > the combination of the 2. > > The pharmacy here uses Nalorex with cellulosum microcrystal filling. > I don't react at all to this. I will ask them to grind the Revia > i've got into 3mg caps with a lactose or Acidophilus filling. Dr. > Lawrence says, sugar is a good combi too. Thnx for the tips;o) > > Chey > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 Thanks Noland that is almost exactly what my pharma. said. Reg. -------Original Message------- From: low dose naltrexone Date: 01/28/04 09:54:49 low dose naltrexone Subject: Re: [low dose naltrexone] help Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 No Acidophilus is a bacterium, freely available in live natural yoghurt..known as Lactobacillus Acidophilus. LDN passes through perfectly well anyway. Studies in England showed degredation of Naltexone in water AT ROOM TEMP. in 24 hours! Surprised me too! n ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Wednesday, January 28, 2004 4:47 PM Subject: Re: [low dose naltrexone] help Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 Hi Noland Can I ask you how much Acidophilus that you take daily? Thank You Marie ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Wednesday, January 28, 2004 11:47 AM Subject: Re: [low dose naltrexone] help Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 Thanks! I stand corrected. It is a bacterium and not an enzyme. Noland ----- Original Message ----- From: n Quinn low dose naltrexone Sent: Wednesday, January 28, 2004 10:28 AM Subject: Re: [low dose naltrexone] help No Acidophilus is a bacterium, freely available in live natural yoghurt..known as Lactobacillus Acidophilus. LDN passes through perfectly well anyway. Studies in England showed degredation of Naltexone in water AT ROOM TEMP. in 24 hours! Surprised me too! n ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Wednesday, January 28, 2004 4:47 PM Subject: Re: [low dose naltrexone] help Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 28, 2004 That is one of the few things that I don't take and I don't remember what the recommended dosage is. Noland ----- Original Message ----- From: Marie Deady low dose naltrexone Sent: Wednesday, January 28, 2004 11:03 AM Subject: Re: [low dose naltrexone] help Hi Noland Can I ask you how much Acidophilus that you take daily? Thank You Marie ----- Original Message ----- From: Noland R. Durnell, P.E. low dose naltrexone Sent: Wednesday, January 28, 2004 11:47 AM Subject: Re: [low dose naltrexone] help Acidophilus should cause no problems since it is a digestive enzyme that is recommended for everyone to take and especially people with gastrointestinal problems. It should not work against LDN in anyway. Instead, it may help LDN pass through the intestinal wall into your blood stream faster. Noland ----- Original Message ----- From: Reg Kreil low dose naltrexone Sent: Saturday, January 24, 2004 9:29 PM Subject: RE: [low dose naltrexone] help My Acidophilus filler seems to be working fine.Or is it somehow working against the ldn? But then how much better would I be if another filler was used? Man I hate all these questions. We do have enquiring minds don,t we? Reg. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 5, 2004 I thought I had answered but maybe it got lost in cyber space. I am very familiar with the burning you speak of. ( it was the main reason I had to quit work) I used Hempola a hemp oil based massage oil with essential oils,patchoulli oil,frankincense and geranium. Almost immediately after massaging it in,my arm felt wonderful. You should be able to find it at any health foods store as I found this in a grocery store clearout bin(betcha that purchasing agent got chewed out bout that one). Now I am no doctor but from what I have read about Methylcobalamin (Vit. B-12) it sounds like all of us should be getting way more than we do so she should start with that and the massage oil! Well it worked for me but then the 3.0 mgs of ldn. also made it unnecessary to use the oil after three days anyway. Was it because of all the Vitamins I take or just that is how it works?I don't know. You know this may seem far fetched but I used to get that or something similar anyway when I had apinched sciaticnerve. Could this be that? If so only your chiropractor can help then. By the way I hardly can be considered a veteran there are others with many more months of experience Like Larry LDN. Sorry larry. Reg. -------Original Message------- From: low dose naltrexone Date: 03/05/04 11:00:11 low dose naltrexone Subject: [low dose naltrexone] help I know that we have changed topics here but Angie needs some help!!!She has been on LDN for 2 wks and the burning and pain in her leg is getting worse.Can anyone give her any advise as she is ready to give up????Where are the vteransHarry and Reg where are you????? ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 5, 2004 MY SISTER SUFFERED FROM GESTATIONAL DIABETES. SHE DEVELOPED TERRIBLE BURNING FEET COMMON WITH NEUROPATHY. SHE NOW TAKES NEURONTIN - WHICH HELPS. YOU MAY WANT TO CHECK IT OUT. BESTAUNT Quote Share this post Link to post Share on other sites
Guest guest Report post Posted March 6, 2004 Hi Reg and thanks This is an old flare up symptom that I used to get but usually only lasted a short time. It's never lasted this long nor has it ever been this acute and after two weeks of this I am about at the end of my tolerance now. Going to try the oil, figure it can't hurt. Doctor is trying something else now to alleviate the burning will know more tomorrow, hopefully, if it's going to work or not. Maybe I'm just one of those that ldn isn't going to work for but I really hate to give up so the stubborn side of me will keep me going for a bit longer. --- In low dose naltrexone , " Reg Kreil " <regkreil@h...> wrote: > I thought I had answered but maybe it got lost in cyber space. I am very > familiar with the burning you speak of. ( it was the main reason I had to > quit work) I used Hempola a hemp oil based massage oil with essential oils > patchoulli oil,frankincense and geranium. Almost immediately after massaging > it in,my arm felt wonderful. You should be able to find it at any health > foods store as I found this in a grocery store clearout bin(betcha that > purchasing agent got chewed out bout that one). Now I am no doctor but from > what I have read about Methylcobalamin (Vit. B-12) it sounds like all of us > should be getting way more than we do so she should start with that and the > massage oil! Well it worked for me but then the 3.0 mgs of ldn. also made it > unnecessary to use the oil after three days anyway. Was it because of all > the Vitamins I take or just that is how it works?I don't know. > You know this may seem far fetched but I used to get that or something > similar anyway when I had apinched sciaticnerve. Could this be that? If so > only your chiropractor can help then. > By the way I hardly can be considered a veteran there are others with many > more months of experience Like Larry LDN. Sorry larry. > Reg. > > -------Original Message------- > > From: low dose naltrexone > Date: 03/05/04 11:00:11 > low dose naltrexone > Subject: [low dose naltrexone] help > > I know that we have changed topics here but Angie needs some help!!! > She has been on LDN for 2 wks and the burning and pain in her leg is > getting worse. > Can anyone give her any advise as she is ready to give up???? > Where are the vterans > Harry and Reg where are you????? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 16, 2004 Yes. IMHO a person who can't back up his claims. on 8/16/2004 9:13 AM, at jennm12@... wrote: > If there is someone on this list who can help, I would appreciate > it... in the reviews for Beyond 120 Year Diet, there is mention of > someone called Elixxer. Does anyone know what this guy's game is? > > Thanks. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 16, 2004 http://calorierestriction.org/book/view/215 >From: Francesca Skelton <fskelton@...> >Reply- >< > >Subject: Re: [ ] Help >Date: Mon, 16 Aug 2004 09:29:20 -0400 > >Yes. IMHO a person who can't back up his claims. > > >on 8/16/2004 9:13 AM, at jennm12@... wrote: > > > If there is someone on this list who can help, I would appreciate > > it... in the reviews for Beyond 120 Year Diet, there is mention of > > someone called Elixxer. Does anyone know what this guy's game is? > > > > Thanks. > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 16, 2004 A.T., Most of us experience a better sense of well being on LDN. You seem to be having the opposite. Before LDN were you having any depression symptoms? I know that is a relative term where MS is concerned, but it could explain something. As for myself, I will battle depression as long as I feel as if the rug has been pulled out from under my life. I just forge onward in the attempt to not make people around me as miserable as I sometimes feel. I have people say to me, "I don't think I could handle it like you do." If only they knew! I guess I am pretty convincing! Are you having to stick to a rigid schedule? It might help to be able to rest when necessary. I do feel better with LDN, but I don't remember when I felt like the LDN was responsible for that. Looking back in my journal, I would say about 2 months. I think some depression is a natural feeling. If you can still stand and walk then you really don't need to quit LDN, in my opinion. It's your best bet to continue walking. Hang in there, and try to keep your chin up! Marcie In a message dated 10/16/2004 6:32:53 PM Central Daylight Time, antaurus24478@... writes: i need a little help down here. please i am talking about the effects of LDN on me. i am feeling "chronically negative", even malaise. i dont remember feeling like this before i started LDN and i took a break for 4-5 days starting day 3 my mood bounced back. is this a normal thing, did any one else remember feeling this way. how long is before you start feeling the benefits i have been on it for 6 weeks now and at a dose of 3. mg . i am not suffering any insomnia like some one else said they were. i would be dissapointed to quit LDN bcos of these problems i am having on it. please help any input is welsome thanx. luv - A T Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 16, 2004 AT I have been on LDN 7 months now and basically only started to feel better in the last month. Sleep is still not completely great every night, but it's getting better. Bladder control is better as time goes on, it does get better. Dr. Bihari's website suggest giving LDN 6-9 months. Stick with it. Arlene Quote Share this post Link to post Share on other sites
