Guest guest Report post Posted September 9, 2000 Mercury doesn't show up in the hair unless it is recent exposure. However, it does show other heavy metal toxicity. Judy -----Original Message-----From: cugoodson@... [mailto:cugoodson@...]Sent: Friday, September 08, 2000 4:12 PMautism treatmentegroupsSubject: [ ] help The doctor just called me with the hair test results from Doctor's Data. I have to wait til Monday to see a copy. He told me the mercury levels were negligible. Bismuth, Barium, and Copper are elevated pretty high. Can anyone tell anything from any of this. I really hope this is not another dead end.Thanks for your help.Carol G Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2000 Don't give up yet. Mercury levels don't tell you much but when you get the test, be sure to get a copy. Look at the " essential and other " section and apply the " counting rules " to see if there is a problem with minerals transport, which is a strong indicator of mercury toxicity. To find the " counting rules " go to / > Mercury doesn't show up in the hair unless it is recent exposure. However, > it does show other heavy metal toxicity. > > Judy > [ ] help > > > > > My Groups | Main Page | Start a new group! > > > The doctor just called me with the hair test results from Doctor's Data. > I > have to wait til Monday to see a copy. He told me the mercury levels were > negligible. Bismuth, Barium, and Copper are elevated pretty high. Can > anyone tell anything from any of this. I really hope this is not another > dead end. > > Thanks for your help. > Carol G > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2000 Dear Carol: It is always good to find a problem that can be solved. My understanding is that Heavy metal toxicity can definatly be treated. Please do not quote me, do check with your doctor. Hair analysis is a good indicator. It would be beneficial to perform urine analysis. Our experience is that When the level of copper is high, Zinc is low, to reduce copper toxicity zinc suplements at higher dose such as 50 mg is given. It would be a good Idea to eighter attened or by the tapes from the upcoming DAN conference. My undersanding is that Mercury toxicity will be the most talked about topic. This is a good list to be on. Best Wishes Nora Devlin wrote: > > > Don't give up yet. Mercury levels don't tell you much but when you > get the test, be sure to get a copy. Look at the " essential and > other " section and apply the " counting rules " to see if there is a > problem with minerals transport, which is a strong indicator of > mercury toxicity. To find the " counting rules " go to > / > > > > Mercury doesn't show up in the hair unless it is recent exposure. > However, > > it does show other heavy metal toxicity. > > > > Judy > > [ ] help > > > > > > > > > > My Groups | Main Page | Start a new group! > > > > > > The doctor just called me with the hair test results from > Doctor's Data. > > I > > have to wait til Monday to see a copy. He told me the mercury > levels were > > negligible. Bismuth, Barium, and Copper are elevated pretty > high. Can > > anyone tell anything from any of this. I really hope this is not > another > > dead end. > > > > Thanks for your help. > > Carol G > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2000 Carol, Unless your child's exposure to mercury was pretty recent, or he had very high exposure, he will not show mercury levels on his hair test. What he will show is a " scatter pattern " which can be interpreted using the counting rules Andy Cutler developed. This is a pattern seen when people have impaired minerals transport through the hair and is indicative of heavy metal toxicity. So don't give up yet. I think the counting rules are in the archives, otherwise can someone please post them for Carol? Barb [ ] help > >The doctor just called me with the hair test results from Doctor's Data. I >have to wait til Monday to see a copy. He told me the mercury levels were >negligible. Bismuth, Barium, and Copper are elevated pretty high. Can >anyone tell anything from any of this. I really hope this is not another >dead end. > >Thanks for your help. >Carol G > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2000 Hi, thanks to everyone for your responses. I had the counting rules and was ready to go with them. But I don't have a copy of the report yet and have to wait til Monday. That is the problem. The only thing I got out of it was the high copper, barium and bismuth. So I was looking to see if any of you could tell anything from that. Seems I read that high copper might indicate the liver is malfunctioning. I really hope there is a problem there to be fixed. so frustrating! Thanks again. Carol G Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 9, 2000 My daughter has high copper. Her chiropractor thinks that high copper, along with her low potassium and sodium, indicates adrenal insufficiency, and she is taking Thorne Adrenal Cortex along with zinc, chromium and some other stuff. I read about the adrenals, and her symptoms do match adrenal insufficiency--anxious, fearful, can't deal with stress, has " meltdowns " and panic attacks, craves sugar, low energy, sensitive to pain, smells, sounds, low muscle tone. I don't agree with everything this chiro says, some of the supplements she's recommended I'm not comfortable with, but I've not heard anything negative about these, and I'm taking a wait and see attitude. So far seems calmer and better able to deal with things. > Hi, > > thanks to everyone for your responses. I had the counting rules and was > ready to go with them. But I don't have a copy of the report yet and have to > wait til Monday. That is the problem. The only thing I got out of it was > the high copper, barium and bismuth. So I was looking to see if any of you > could tell anything from that. Seems I read that high copper might indicate > the liver is malfunctioning. I really hope there is a problem there to be > fixed. so frustrating! Thanks again. > > Carol G Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 10, 2000 My son showed no mercury with the hair testing. We did the DMSA urine challange and mercury was highly elevated. Elaine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 10, 2000 That just means that the mercury was in the tissues and not a recent exposure(not in hair). The challenge must have freed up some mercury and excreted it in the urine. Not alarming and not inconsistant. Your child has a mercury problem if it shows up. Beverly > My son showed no mercury with the hair testing. We did the DMSA urine > challange and mercury was highly elevated. > Elaine Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 30, 2001 Hi Maureen, I know the feeling as well of looking at your child while they are sleeping and wishing we could somehow do something to change or correct the challenges apraxia creates. I have had this talk with Mustafa, who has 2 children with apraxia. Her son Khalid is a " true success story " as Inside Edition stated. Sometimes we don't know why we are supposed to go through what we are, why we have to worry about advocacy rights and what IEP stands for when our friends and their kids main concern is " hamburger, or chicken mc nuggets? " I do know that the children I had the honor to speak with and get to know who " grew up " with apraxia are much warmer than the average person their age. I know it gives me hope to think about Khalid and , and know their goals in life are to help others. To know that children that were once (mis) " classified " and thought to have lower intelligence due to the school's ignorance, are now able to stand up for themselves as honors students or athletes in high school or college. To be able to look the people in the face that ridiculed them-both classmates as well as teachers, and just smile. To know that you have the ability to help others by sharing some of your story. The more you know about them, the more hope you will have for your own child, that's all I can say. I leave it to Khalid and and their families, and others like them, to tell you the rest. I said to , a diamond is formed by intense heat and pressure for a long time. And we all know about the butterfly story as well. Khalid or may not have been the same if they didn't learn from the challenge of apraxia. Not that thinking of that make me happy in any way that my son Tanner has apraxia, but thinking of that gives me hope that there will be something positive to come out of the struggle some time in the future. The best thing we can do as their parents is to continue to believe in them and cheer them on, just like you are doing. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2001 Get a medical access card. We have one for my son, who will be 5 this July. This card pays for everything! Go thru your government office to apply for one. Also, I am holding my son back a year, too. Why not give them that extra time to catch up? Good luck! > My daughter is 5 1/2 years old and was diagnosed with apraxia. She > just now is getting into speech therapy after her speech evaluation > almost 3 months ago. But my insurance is not wanting to cover it. I'm > in the process of appealing it now. I need help. They keep saying it > is developmental but it's not!!! And also we would like to keep her > in headstart another year instead of sending her to kindergarten this > fall. Do you think this is a good idea? Her physician thinks that it > is a very good idea. Because with her speech the way it is she will > probally fall behind in class. Then she will be in kindergarten > another year. > > Thank You > S. > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 21, 2001 hi speech is supposed to be in your iep/ifsp free fape ash IEP_guide/ free iep guide and support > My daughter is 5 1/2 years old and was diagnosed with apraxia. She > just now is getting into speech therapy after her speech evaluation > almost 3 months ago. But my insurance is not wanting to cover it. I'm > in the process of appealing it now. I need help. They keep saying it > is developmental but it's not!!! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 8, 2001 Hello: We just moved from , MS, to Dallas, TX! I lived in for twelve years. Before I had children I worked in a large hospital in . I don't know if I can help but what is the doctor's name you have been referred to? I just might know something about him/her. I wonder how knowledgeable the doctor would be about plagiocephaly and craniosynostosis...you might better do LOTS of research before tomorrow's appointment. The website you found is great place to get an education about plagiocephaly. It is not too late for your son if he has plagiocephaly. To get quickest results you would need to get the diagnosis of plagiocephaly confirmed (they will rule out craniosynostosis) and then get your son banded. You will have to have a prescription for a DOC band or STAR band, etc. We have a DOC band. I've heard from my friends back in Mississippi that there is a little boy in who has a DOC band. And they came to Dallas to get the band and for adjustments. And just the other day while I was at Cranial Technologies getting Annie's band adjusted the orthotist told me they had just casted another patient from Mississippi. Of course, due to patient confidientially they could not tell me any information about the patient. It was nice to hear from a fellow Mississippian. I'll recheck my e-mails later this evening and see if you've replied. GOOD LUCK and GOD BLESS. Benita mother to Annie DOC banded 04-26-01 Frisco, TX (just north of Dallas) Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 9, 2001 7 months is not too late to start!!! We started helmet therapy with our daughter at 9 months and got great correction! You aren't too late, just don't let the process get you bogged down. I live in Oklahoma so I can't help with the doctor, but I'm sure you will get some responses from other Miss. residents. I hope you will stick with us and share more of your story with us. We are here for you! This group is an awesome source of support, friendship and encouragement. Marci (Mom to ) Oklahoma Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 9, 2001 Please tell me it is not to late. What is the quickest thing to do to get results? pottery: No. It's not too late. And please don't listen if someone tells you it is. The best thing to do to get the quickest results, is to find someone who will provide a helmet type that will apply mild pressure to the prominent parts of the head (i.e. DOC Band by Cranial Technologies, or STARband by Orthomerica - there are some local providers as well). Make sure you ask lots of questions when you are speaking with the person who will cast for the helmet. You can find some question examples HERE (let me know if the link doesn't work!). If your local provider supplies a "passive" type helmet, don't worry. You will see results with these types too, just not as quickly as with the "active" types. Any more questions? Just ask. There is such a great support network here! ) Please keep us posted with your situation, and welcome to the group! Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support... ----- Original Message ----- From: pottery@... Plagiocephaly Sent: Sunday, July 08, 2001 1:52 PM Subject: Help We suspect our 7mo old. son has plagio. We are going in for xrays tomorrow. Please tell me it is not to late. What is the quickest thing to do to get results? We live in Miss. and cannot find out much about the doctor CAPPS lists that is nearest us. Any recomendations?For more plagio info Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 28, 2001 hi sorry i missed you. i am here running a fever and have no energy at all. i stopped prednisone 4 days ago and i feel i'm right back where i started from. where is your pain? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Joanne- Just saw your message. I was heading to bed for same reason. If your still online...try the Arthritis Insight chat room. It is open 24 hours and there is always someone online...have some active members from Australia. I think if you just type Arthritisinsight.com you should get to their homepage. Hugs, Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Thanks ....A seriously bad day to say the least. Thanks for the info anf for writing. I will check into it. Joanne Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Joanne...are you still online? My day has been very painful, and with that comes alot of tears. Besides RA, I have Fibromyalgia. In March of this year, I had four vertebrae literally rebuilt. Now the very bottom vertebrae needs the same operation. For some reason, they couldn't do them all at once. Needless to same, my mental state is really hurting right now. This is a wonderful bunch of people...I don't write a whole lot, but I read every day. Hugs, Lila > [Original Message] > From: boop <boop@...> > < > > Date: 7/28/01 9:29:39 PM > Subject: Re: [ ] Help > > Thanks ....A seriously bad day to say the least. Thanks for the info > anf for writing. I will check into it. > Joanne > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Joanne, I am sorry that more of us weren't on last night during your time of need. I think all of us are fighting a flare,I know that I am & I was in bed quite early last evening also -- some Saturday night hug???? I do hope that you are feeling a tiny bit better this am. Sometimes a good night's sleep helps, othertimes it just emphasizes the pain we are in. Please don't give up on us. Someone usually is on line at some time or another 24/7, but for some reason we were all tucked in very early last night. The " whine " lines are still open, so feel free, now that most of us are trying to start our day. Gentle, tender, supportive angel hugs, Deb Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Hi Lila, I'm sure that you read my letters about my pain and such this week. I, too have Fibro and RA and, as all of can relate to the pain and low points your having. I sure wish there was some magic cure for you, Just know that were all here for you, and I'm praying today will be a better day for you. :)Hang In There Liz Re: [ ] Help > > > > Thanks ....A seriously bad day to say the least. Thanks for the info > > anf for writing. I will check into it. > > Joanne > > > > > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Hi Joanne, Wish I was online for you last night, I know how you were feeling, I had a day like that on Thursday. I sure hope and pray that you are feeling better today. Were here for you. Liz [ ] Help > Hi > > Is anyone out there? I sure could use someone to talk to. The pain of RA > is so severe I am sitting here alone with tears running down my face..I > can't stand it..... > Joanne > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 joanne, sorry to hear of your pain. i know how you feel. i was telling my neighbor i thought the best was over and i must realize where my life is. accept it and move on. she just does not get it. why won't you ever go back full time. how do you know? you know, you can feel the changes in your life and body. she says she doesn't " do " anything either, but there is a difference between not doing anything and not being able to do anything. i'm sure you all know what i mean!! why do they tell you are giving up? Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Joanne, I hope you are feeling better today. I'm very sorry that your RA is causing you so much pain. Are you on any pain medication? Please call your physician and tell him or her how much pain you have been enduring and ask for help. [ ] Help > Hi > > Is anyone out there? I sure could use someone to talk to. The pain of RA > is so severe I am sitting here alone with tears running down my face..I > can't stand it..... > Joanne Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 29, 2001 Hi Everyone, I just want to thank you for your concern....and support. It was good to see your emails this morning I will admit after 18 yrs of RA, fibromyalgia, Raynauds,and the resulting pain...crippling that I see that .I am losing the will to fight it anymore. How I once laughed at everything....now there are tears....I understand that depression is a large part, as a result of these diseases ...but I am so tired of the fight to keep going...I am on medication to help with the depression but it is obviously not working... I think I have tried every RA medication available(almost) and I am out of options.....money wise...I have even gone to California to do the antibiotic therapy, which I did for 18 months...and that was a rheumatologist getting rich off of people in pain....Now he is on the elevision selling some other product. II have no Rx coverage!!so you can imagine my debt... Also it seems impossible to fight this disease and take care of myself living alone. The majority of my family is in PA and I am in AZ.. I feel dead inside and don't know where to turn...... So sorry for being a downer...I am not usually that way...I am usually giving the upbeat conversations....I have taught the Arthritis Foundation seminars on Fibromyalgia!! Just losing hope I think How do we stay independant and take care of ourselves? It scares me to death thinking how I am going to dress myselff in a few years.. Thanks ...tears, tears and more tears Joanne Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 30, 2001 Joanne: Sorry I have been offline for a while due to illness. Sweetie, I know what you mean about the pain. It does become unbearable and even the medicine doesn't seem to help some days. I try to keep a positive attitude and I pray a lot. I also try to write in a journal on days when things are bad, it's really therapeutic and helps a lot. Try to remember honey, you are not alone, we all have the bad days and nights but this group is always here for you. I will pray that you will soon be painfree and doing better. God Bless you. Jan Quote Share this post Link to post Share on other sites
