joan

[Guest guest]

Please unsubscribe me. I just found out I have a heart problem also along

with cirrohsis and might be looking at open heart surgery.. So I will not be

online much.. And I won't be able to read the mail..

My prayers are all with you..

Good Luck,

Deb

[Guest guest]

In a message dated 2/2/01 9:36:31 AM Pacific Standard Time, Mymis1@... writes:

Please unsubscribe me. I just found out I have a heart problem also along with cirrohsis and might be looking at open heart surgery.. So I will not be online much.. And I won't be able to read the mail.. My prayers are all with you..

Good Luck,

Deb

Best wishes, Deb.

Harper

[Guest guest]

my prayers are with you Deb and i wish u speedy recovery!!!!

gentle hugz

Karishma.

>From: Mymis1@...

>Reply-

>

>Subject: Re: [ ] Joan

>Date: Fri, 2 Feb 2001 07:37:08 EST

>

>Please unsubscribe me. I just found out I have a heart problem also along

>with cirrohsis and might be looking at open heart surgery.. So I will not

>be

>online much.. And I won't be able to read the mail..

>My prayers are all with you..

>

>Good Luck,

>Deb

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

Thanks, Harper..

Hugs,

Deb

[Guest guest]

Hi Genny,

DO NOT let them remove the spleen. She has a good chance of full

recovery. My daughter had ITP in 1987 when she was 6 months old. They

tried everything to bring her platelet count up, prednisone, platelet

infusions, etc. She was supposedly the youngest ever to be diagnosed

with it. When they talked to me about removing her spleen I had had

enough. I could not let her live like that. She was too young to be

sick forever. I finally refused all further medical treatment except

for daily platelet counts. By age 3 she was normal. She is now a

beautiful 13 year old with no health problems except cold induced

asthma (which we can live with).

ITP occurs more often in teenagers. It usually only lasts a few

months. It is caused by a virus. Antibodies start going a little nuts

and start attacking the platelets. Most people are originally

diagnosed as having leukemia because the platelet counts are so low.

A bone marrow test will show that with ITP (unlike leukemia)

platelets are being produced, but antibodies are killing them off as

soon as they are produced. The main danger is internal bleeding. My

daughter would get big black bruises on her face by simply falling

asleep and resting her face on the carseat side. I padded everything

in the house so that she would not get seriously hurt by falling when

she was learning how to walk. She always looked liked someone was

beating her, but her bruises were black. Her platelet counts had to

be hand counted because they were so low. She was being treated by a

Hemotologist at St. 's Childrens Hospital in Philadelphia.

She did have an excellent doctor who contacted people around the

world to learn more about the disease ITP.

Autoimmune disease really run in my family. I have Lupus and

rheumotoid arthritis, my son has just been diagnosed with IAH.

There probably isn't an ITP support group because it usually is not a

lifelong battle. If you ever have any questions on testing, etc. or

just need someone to talk to.. email me at debbiehenry@....

I've been there. It's hell, but you get through it. Tell your mother

her future isn't as bleak as she thought. See if you can get her to

see a hematologist.

Take care of yourself,

Debbie

> Hi Joan: Could you please tell me if there is a group for ITP

(Immune

> Thrombocytopenic Purpura) My mother was diagnosed with this in

June and is

> being referred to Moffitt Cancer Center by her oncologist. I'm

glad she is

> going for a second opinion because they want to take her spleen out

and the

> Hepatologist on the transplant team in Miami said what ever I do

don't let

> them do that. This is a lot like AIH being it is an immune disease

that they

> don't know much about and is treated with Prednisone. Having two

members of

> my immediate family on Prednisone isn't an easy task. I feel awful

about

> saying this but I hate to talk to my mother because she is so

depressed and

> brings me down while I'm trying to stay positive for Jodi. Guess I

need to

> say more prayers. If you have any information about this group

please post

> it for me. Thanks, take care and God bless. Genny/Jodi's Mom/ AIH

[Guest guest]

Deb:

GOOD luck with the open heart surgery, God bless you. I also have a

heart problem.

You're in our prayers

Clyde

--

=========================================================+

Help save a life, become an organ and tissue donor today.|

=========================================================+

[Guest guest]

Thank You So Much!!!

Karishma...

Hugs,

Deb

[Guest guest]

Thanks Joan: I was just letting off steam, I'm OK now. Yes, we are having a

yard sale at the church for Jodi Saturday. Please pray it will be a pretty

day and we will sale all of this stuff that is on my front porch. I will be

so glad we it is gone and I don't have to look at it anymore. Take care and

God bless, Genny

[Guest guest]

Thanks Joan: Yes, it was very nice weather here today but we sure need rain.

Love, Genny

[Guest guest]

Joan, My prayers are with you, your family and friends. May we all be able to feel at peace soon

Rosemary

[Guest guest]

Hi Joan,

Nice to hear from you, how are you doing? Jodi and I are doing great thank

you. She has had some headaches but we think it's the Prograf and hopefully

they can decrease it soon. She is back to work but just working on the

computer right now and not with the doctor. He has been really great about

not letting her overdo to soon. I am very thankful about that because she

feels like she is ready to go right back where she left off. I know by

experience that can be a mistake because I went back to work full time after

six weeks and did to much and paid dearly for it. The fact she hasn't had

any signs of rejection is just such a blessing.

Thank you for your concern and support. I hope you have been having fun and

not feeling bad.

Talk to you again soon. God bless American

Love, Genny

[Guest guest]

Joan,

I am happy for you that you are doing well. Congratulations and lots of hugs

as Bert would say :-)

LC AIH (0701)

[ ] Debbie........

Thanks for the Congrats. My fingers are crossed for

my next set of labs.

How are you doing?

Joan Claffey

NJ

__________________________________________________

[Guest guest]

Dear Dawn,

Thanks so much. You're a great help---as always.

I'm working on a query letter now.

Take care,

Joan

--- DAWN RIDER <israelswarrior@...> wrote:

<HR>

<html>

<div style='background-color:'><DIV>Joan, </DIV>

<DIV> & nbsp;</DIV>

<DIV>I am including as an attachment a letter I've

used to send out to various inquiring minds. & nbsp; It

contains links to the infamous Eli Lilly Time Line, a

link for the prozac petition, and several links for

articles relative to SSRIs, especially Prozac. & nbsp;

</DIV>

<DIV> & nbsp;</DIV>

<DIV>If you are unable to find what you need from the

files and bookmarks section at the SSRI Crusaders home

page, let me know and I can put something together for

you if you'll let me know what you need.</DIV>

<DIV> & nbsp;</DIV>

<DIV>The Avenging Angel</DIV></div><br

clear=all><hr>Send and receive Hotmail on your mobile

device: <a

href='http://go.msn.com/bql/hmtag2_etl_EN.asp'>Click

Here</a><br>

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[Guest guest]

Dear Dawn,

Thanks so much. You're a great help---as always.

I'm working on a query letter now.

Take care,

Joan

--- DAWN RIDER <israelswarrior@...> wrote:

<HR>

<html>

<div style='background-color:'><DIV>Joan, </DIV>

<DIV> & nbsp;</DIV>

<DIV>I am including as an attachment a letter I've

used to send out to various inquiring minds. & nbsp; It

contains links to the infamous Eli Lilly Time Line, a

link for the prozac petition, and several links for

articles relative to SSRIs, especially Prozac. & nbsp;

</DIV>

<DIV> & nbsp;</DIV>

<DIV>If you are unable to find what you need from the

files and bookmarks section at the SSRI Crusaders home

page, let me know and I can put something together for

you if you'll let me know what you need.</DIV>

<DIV> & nbsp;</DIV>

<DIV>The Avenging Angel</DIV></div><br

clear=all><hr>Send and receive Hotmail on your mobile

device: <a

href='http://go.msn.com/bql/hmtag2_etl_EN.asp'>Click

Here</a><br>

<br>

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[Guest guest]

In a message dated 2/7/02 2:48:36 PM Pacific Standard Time, pcmcobb@... writes:

.. I know that you will garner the strength you

will need to break this disappointing news to your mom.

It's a disappointment, but only a disappointment. You have many options at this point. Hang in there, and don't let it get to you too much.

Harper

[Guest guest]

Glad to hear that you were able to spend some " calming " time with your children

today before going to the doctor. I know that you will garner the strength you

will need to break this disappointing news to your mom. My son grew up knowing

I was ill. He has never known any other way and is very protective of me. He

told his grandmother once when staying with her that it was time for her to go

rest because that was what his mother did everyday. He thought that was a

normal routine for all households. I would love to talk more, but I must leave

for a circle meeting soon. Really too tired to go, but am making myself.

Sometimes I just have to force myself to go or I would never do anything!

Will touch base later or tomorrow. Take care. Carol

Joan Claffey wrote:

> Hi,

> My doc. office called this morning and told me to come

> in immediately. Before I did I went to the candy

> store bought two chocolate covered strawberries and

> went to my kids school. I asked the teachers

> permission to take my 6 yr. old out of class for 5

> minutes. We sat on the steps in school and shared a

> strawberry. Then I went to my 9yr. old lunch period

> and shared one with her. (They don't know I have

> this, they think it's normal to go for labs.)

> It seened to make me calm and ready for the news.

> I still haven't told my mother.

> Joan Claffey

> NJ

>

> __________________________________________________

>

[Guest guest]

Hey Joan...

Yes Ty did go for his infusion and he did ok...it still takes all day...but he is doing better since he can get them....

hope your are feeling better about everything....

Talk soon..

Luanne Ty's mom

[Guest guest]

What a wonderful idea --- I think I will get that

written on my file too - " patient will do nasty

things if steroids are mentioned " I am back on for a

while and HATE it. Big fat and hairy ----yuk!!!!

Caroline (NZ)

--- Joan Claffey <joangardaclaffey@...> wrote:

> Hey,

> Of course I know you weren't expecting to go

> backstage. It really would have been fun. We met

> Crosby once while we were on vacation. I

> think

> it was Mexico.

> I am shocked about your Mom's feeders. Isn't it

> amazing how people become so callous when it comes

> to

> their jobs. They seem to forget how to feel real

> human feelings.

> How about this weather. Of course this was the year

> that I was ahead of the game and had the kids snow

> boots and snow suits early. I finally put their

> boots

> away(they had been sitting by the door, dying to be

> used)

> Yes I am taking it easy. I did sleep until 10

> today.

> Mike got the kids off to school. I am also going

> out

> to dinner with my girlfriends tonight. I am taking

> it

> easy.

> My labs are not back yet. I had 6 viles taken

> Tuesday.

> My urine is much lighter and my eyes are much less

> yellow so I guess I'm going to live. (Just kidding)

> I am not sure but I don't remember if you told me

> about my nephews test results. What's the story??

> I best go now and order the pizza for the family.

> (I'm so bad)

> Good news.....a call from the doc. my levels are

> starting to go down. Off the steroid hook for now.

>

> I have told the nurse to write 'patient will do

> nasty

> things to keep from going on steroids' on my chart.

> Believe me I would do it too.

> All right big sis,

> I can't thank you enough for all of your pep talks

> and

> down right kick in the can. Your one amamzing lady.

> Joan

>

> __________________________________________________

>

[Guest guest]

Re: [ ] Joan

What a wonderful idea --- I think I will get that

written on my file too - " patient will do nasty

things if steroids are mentioned " I am back on for a

while and HATE it. Big fat and hairy ----yuk!!!!

Caroline (NZ)

--- Joan Claffey <joangardaclaffey@...> wrote:

> Hey,

> Of course I know you weren't expecting to go

> backstage. It really would have been fun. We met

> Crosby once while we were on vacation. I

> think

> it was Mexico.

> I am shocked about your Mom's feeders. Isn't it

> amazing how people become so callous when it comes

> to

> their jobs. They seem to forget how to feel real

> human feelings.

> How about this weather. Of course this was the year

> that I was ahead of the game and had the kids snow

> boots and snow suits early. I finally put their

> boots

> away(they had been sitting by the door, dying to be

> used)

> Yes I am taking it easy. I did sleep until 10

> today.

> Mike got the kids off to school. I am also going

> out

> to dinner with my girlfriends tonight. I am taking

> it

> easy.

> My labs are not back yet. I had 6 viles taken

> Tuesday.

> My urine is much lighter and my eyes are much less

> yellow so I guess I'm going to live. (Just kidding)

> I am not sure but I don't remember if you told me

> about my nephews test results. What's the story??

> I best go now and order the pizza for the family.

> (I'm so bad)

> Good news.....a call from the doc. my levels are

> starting to go down. Off the steroid hook for now.

>

> I have told the nurse to write 'patient will do

> nasty

> things to keep from going on steroids' on my chart.

> Believe me I would do it too.

> All right big sis,

> I can't thank you enough for all of your pep talks

> and

> down right kick in the can. Your one amamzing lady.

> Joan

>

> __________________________________________________

>

[Guest guest]

Re: [ ] Joan

What a wonderful idea --- I think I will get that

written on my file too - " patient will do nasty

things if steroids are mentioned " I am back on for a

while and HATE it. Big fat and hairy ----yuk!!!!

Caroline (NZ)

--- Joan Claffey <joangardaclaffey@...> wrote:

> Hey,

> Of course I know you weren't expecting to go

> backstage. It really would have been fun. We met

> Crosby once while we were on vacation. I

> think

> it was Mexico.

> I am shocked about your Mom's feeders. Isn't it

> amazing how people become so callous when it comes

> to

> their jobs. They seem to forget how to feel real

> human feelings.

> How about this weather. Of course this was the year

> that I was ahead of the game and had the kids snow

> boots and snow suits early. I finally put their

> boots

> away(they had been sitting by the door, dying to be

> used)

> Yes I am taking it easy. I did sleep until 10

> today.

> Mike got the kids off to school. I am also going

> out

> to dinner with my girlfriends tonight. I am taking

> it

> easy.

> My labs are not back yet. I had 6 viles taken

> Tuesday.

> My urine is much lighter and my eyes are much less

> yellow so I guess I'm going to live. (Just kidding)

> I am not sure but I don't remember if you told me

> about my nephews test results. What's the story??

> I best go now and order the pizza for the family.

> (I'm so bad)

> Good news.....a call from the doc. my levels are

> starting to go down. Off the steroid hook for now.

>

> I have told the nurse to write 'patient will do

> nasty

> things to keep from going on steroids' on my chart.

> Believe me I would do it too.

> All right big sis,

> I can't thank you enough for all of your pep talks

> and

> down right kick in the can. Your one amamzing lady.

> Joan

>

> __________________________________________________

>

[Guest guest]

Joan,

You are hysterical. Many, many years ago my precious husband decided he wanted

a boat. He went and bought one and then informed me. I was not too happy with

him. Then 4 years later, I was out of town for a week and when I came home, he

had sold the first boat and bought another. I was furious and did not speak to

him for days other than to answer " yes " or " no " . He couldn't stand it. We got

into a very heated discussion about his buying a 2nd boat and not consulting

with me. He made the comment that he worked hard and deserved it. I told him

not to forget that in our entire marriage, I had worked at least part time while

I was finishing school,. full time after graduation, and part time after our

child was born, in addition to running a household and caring for our child. I

simply told him that I had come to the conclusion that for our marriage to

survive, one of us had to change our philosophy about money. I realized he

would never change and so I was changing my philosophy. I looked straight at

him and told him I was no longer being practical (which was my nature) and if I

wanted something I was going to purchase it just like he did. Over the years,

he has told many people that he thought I was kidding but he found out I meant

it! In fact, I have been shopping with my MIL and she loves to remind me when I

hesitate to buy something, that if her son wanted it, he would buy it. She

helps me put things in perspective. Of course, after the first boat incident,

she said she knew just how I felt, as my father-in-law had bought his plane

without any input from her. She has been a wonderful ally over the years.

Would love to hear some more of your stories.

How are you feeling? Have you been able to stick with the quitting somoking?

Take care.

Carol

Joan Claffey wrote:

> Hi,

> I know your labs went up but are you feeling ill? How

> is the color of your urine? (A little personal, I

> know)

> If it is a normal color then maybe your number will

> level off. Sometimes the number spike a bit and then

> go down. How often are you having labs done?

> I can't remember, did they diagnose you yet with AIH?

> How about a biopsy? I can't keep track.

> How did spending money go? I like to take my mind off

> of things with the very same hobby. I would love to

> swap war stories. Once, when my dear dear hubby,

> stayed out all night I went to Bloomingdales and set

> my goal at $1,000. I felt it would be a gift that

> keeps on giving for him since he write out the bills.

> Needless to say it keeps him from doing it often, yet

> he still makes the same mistake occasionally. Last

> June I got an Audi A6 out of one of his mistakes.

> This gift keeps on giving every month for the next 4

> years!

> Enough of my wildness, although I have many more if

> you need a good laugh.

> I hope thios finds you in better spirits today.

> Joan Claffey

> NJ

>

> __________________________________________________

>

[Guest guest]

Joan...

Mike not behave...LOL....

so you guys are like us...Bob and I were just kids when we got together too...together 6 yrs before we got married...so that makes 36 yrs....OUCH...you weren't even born yet...lol....really not that funny now that I think about it....

So what will you be doing for your anniversary.......two weeks away.

talk to you soon.

Luanne Ty's mom

[Guest guest]

Hey Joan....

Happy Anniversary...to both of you...

Do you have any special plans for the day or night...well that you can talk about...lol...

Dani and Vic were here over the weekend and they took us to dinner at a great restaurant..in the Highlands....what a view of the city...got to see the WTC lights....

we had a nice time with them...then they went to Vics parents in Hasbrook Heights....and then home...they hit that snow storm on their way home...took them alot longer...had to keep pulling over...

So Joan how are you feeling lately...and more lab results...

Tell Mike HI for us...and the girls....

have a nice day and night...hehe

Love Luanne Ty's mom

[Guest guest]

HOW SWEET ARE YOU!!!

Thank you remembering. Mike and I are going somewhere

for dinner. He has a plan to surprise me but the

restaurant called and left a message to confirm his

reservations last week, although they did not leave

the name. Wherever it is it has the most magnificant

views of NY. Have you noticed the WEATHER!! I have

the feeling we won't even be seeing NJ very clearly.

14yrs ago today it rained just as hard but was 60

degrees.

Thank you again.

You're too sweet.

Joan

Hopefully this gets to you and not lost in space like

my last couple of messages I tried to get thru.

--- BBNLU@... wrote:

> Hey Joan....

>

> Happy Anniversary...to both of you...

>

> Do you have any special plans for the day or

> night...well that you can talk

> about...lol...

>

> Dani and Vic were here over the weekend and they

> took us to dinner at a great

> restaurant..in the Highlands....what a view of the

> city...got to see the WTC

> lights....

> we had a nice time with them...then they went to

> Vics parents in Hasbrook

> Heights....and then home...they hit that snow storm

> on their way home...took

> them alot longer...had to keep pulling over...

>

> So Joan how are you feeling lately...and more lab

> results...

>

> Tell Mike HI for us...and the girls....

>

> have a nice day and night...hehe

>

> Love

> Luanne Ty's mom

>

__________________________________________________

[Guest guest]

Hey Joan....

Haven't seen anything from you in a long time...how are you doing ....how do you like this heat...I don't like it...its only April...need time to get used to the heat...gradually...can take it in August but not now...

and (girlfriend) are getting here tonight...they live in Atlanta...so they have been doing alot of driving...stopped at her parents last night in Raliegh...No. Carolina....and now are heading here....will only be here for the night..then are headed to Tetoboro airport...right across from the runway is a vocational school that they use for Cadets for tryouts...since is in charge of that they will be there for the weekend and then we are meeting them in the city on sunday ...for dinner and to see a play...RENT...then they head to Boston and then back here next week for a day..then they head home again...move to new apartment and then he goes on tour with the Drum Corp...Cadets...for the summer....will probably see them in Clifton in July though...Cadets do a show there at the HS...on rt 46...

Everyone else is doing about the same thing...Ty is finishing up his first yr...and working at GA already...busy busy....

How is everyone there....are the girls excited about school almost being over....yea ...summer...

How are you feeling lately....I know that you had a hard time with the last set of labs...and then you got very quiet...whats up....

Tell Mike and the girls I said HI.....can't wait for Charlies...will try to do dinner first...hope Mike will get down again...

we will have FUN....

Luanne Ty's mom