joan

[Guest guest]

No I didn't get your reply but will probably have to e-mail you wheen the

cable gets connected to my computer, in a way I can't wait. I have been

bounced off so much in the last two weeks it's unreal espically when you are

in the middle of something important. Hugs,

[Guest guest]

Amy,

I am 20 minutes from the Washington Township in Bergen County. I do

know that there is another WT somewhere I think south too. Where are

you? I am by Rutherford, Secaucus, anywhere by you?

Joan Claffey

NJ

daveamycrazykids@... wrote:

>

> I hear all of the things you are saying. Except, I am the type of person who

> needed and had to have help. My mother is here constantly. She is only 52

> years old herself and she is a tremendous help. Of course, my husband is

> great. But not the same as dear old Mom. I don't know what I would do

> without either one of them. I shudder to think. I take help wherever I can

> get it. I sometimes get upset when she can't come over and help me. I also

> feel guilty and don't want my kids to think of me as " wait up for mom " She

> can't go as fast as us and all that. I have been for a while able to stay up

> but sometimes later in the day, whew!!!!! I have to lay and thats it(Usally

> Dave is home by then). I have been full-time at home since I was diagnosed

> and sometimes I think it would be easier to work and put the kids in school

> but my heart won't let me. So here I remain until school ages come about.

> Coming up fast I must say.

>

> Are you near Washington Township? Or Deptford, NJ?

>

> My legs are achy today, for a couple of weeks now. Oh well have to just

> go with the flow. Kids are playing on the swings right now so life is grand

> until they want snacks and drinks better go catch some shut eye while I have

> the opportunity. Write back soon

>

> AMY

>

>

[Guest guest]

Amy ,

Isn't that funny that there are two Wash. Twp. I wonder how that

happened. No we are not close to each other. I do have a second home

in South Jersey. Thats in Lavallette....15 minutes from Point Pleasant

and 5 min. from Seaside Heights.

Luanne (Ty's mom) and I were able to meet this summer down the shore.

Do you go to the beach?

Joan Claffey

NJ

daveamycrazykids@... wrote:

>

> I am in Washington Township, Gloucester County. Right across the bridge

> from Philadelphia. I don't think we are too close wish we were.

>

> AMY

>

>

>

[Guest guest]

Joan,

I don't know if you are the right Joan? I read someone's post which said

they had AIH for a longer time and they were glad to meet someone who also

had AIH a long time. I was just curious to see the length of time she had

this. But, what a coincidence I was also diagnosed 11-98, it was the Monday

before Thanksgiving I remember it all to well. Thank you.

AMY

[Guest guest]

Hi Amy,

It was me. I only have AIH as long as you but was very excited to speak

to someone who has had this for a long time. I am the kind of person

who wants to know what I am up against in the long term.

Yes we do share the same anniversary month....I started my flu like

symptons Thanksgiving night.

Joan Claffey

NJ

daveamycrazykids@... wrote:

>

> Joan,

>

> I don't know if you are the right Joan? I read someone's post which said

> they had AIH for a longer time and they were glad to meet someone who also

> had AIH a long time. I was just curious to see the length of time she had

> this. But, what a coincidence I was also diagnosed 11-98, it was the Monday

> before Thanksgiving I remember it all to well. Thank you.

>

> AMY

>

>

>

[Guest guest]

Hi there

Are you as tired as me...this trying to keep up with the Giants, the

Jets...what a game....were you all there....the Yankees and the Mets....I am

exhausted....I need to just get back to football....I also like college

football...Notre Dame being my favorite...but I watch what ever is going to

be a good game ...when I can...

If the Yankees win then Ty gets to do the ticker tape parade again...did it

last year....

But I am a Met fan from back in the 60's when Eddie Cranpoole was first

base....They are my team...my dad and I used to go to the games together...my

brother was never interested...so it is when I got my dad to myself.....Then

of course the 69 METS...The yr I graduated HS...I know ...were you even born

yet....Don't get fresh with me....LOL

and then again in 86 when I got my whole family into the SERIES CRAZE,,,,This

house was jumping....Took all the kids to some of the games...Dani's favorite

was ....and Trav and Ty were DARRRTLLLL fans....through

Childrens Hosp( was then the patient there) we got tickets to see them

play the Phillys in Philly....The whole family went...and because we were

there for the hosp we got to go down and meet a Met before the game.....We

walk in the room and there is Daryl Strawberry....I had trouble getting my

boys eyes back in their head...they had their mitts and he signed them....and

then took pictures with him....Tyler was about 3....he was sitting on his lap

and looking up at him like.....WOW....so cute....For months Ty would only

answer to us if we called him " Daryl Strawberry " ...too funny....I always said

Ty was a goof....such a great memory....

Then our seats were right over right field so he got to yell at him all

day....what a riot...

Well now that I have gone down " Memory Lane " with you I will ...GO...

Need to finish dinner and get ready for the game....

Luanne Ty's mom

PS...Mom is going in for more surgery on friday...she is having her leg

amputated....this has got to stop at some point...I hope this is the end of

the suffering and the begining of living again for her....she has been such a

fighter.....

I am OUT of here

[Guest guest]

In a message dated 11/02/2000 9:18:12 AM Eastern Standard Time, bccj@...

writes:

<< You mentioned taking alot of herbs and vitamins. Are you also taking

steroids? I am reading on the interenet (about AIH) that you have to take

steroids the rest of your life, but quickly read a passage in Dr. Weil's

book about a woman with liver disease who stopped the steroids and does

everything homeopathically....is that possible? Her labs are normal

again.... I read that if you don't take the steroids, you have a 10% chance

of surviving 10 years.... As much as I don't love the idea of being on

steroids the rest of my life, I don't know that I could chance going off

them....

any help on this would be great from anyone,

Beth, AIH 10/00, MI >>

I take Actigall and Imuran, but they would not give me Prednisone because of

the side effects. I am doing great on this regeime. Like I said, some days

they go down easy, some days I hate them..but with each one, I thank it for

helping me, I tell me liver many times through out the day that we will beat

this Dragon we have been blessed with....no I am not crazy. just part of

staying positive...

I think a many things outside of the medications help as much as they do..A

positive attitude, laughter, laughter, laughter, a good diet, excerise if you

can and being surrounded by those that love you..

There are two books I swear by,

The Liver Cleansing Diet, Dr. Cabot

and

You Can't Afford The Luxury Of A Negative Thought, Mc..

What works for me, might not work for anyone else. We have to find what we

are comfortable with and go from there...

But remember this,

YOU ARE THE MOST IMPORTANT PERSON YOU KNOW, YOU ARE VERY SPECIAL AND ONE OF A

KIND, YOU CAN DO ANYTHING YOU PUT YOUR MIND TOO.....

Love ya'll, have a great day, remember to laugh all day. Laughter is music to

the heart and very healing. Soooooo, laugh a lot, love a lot, and be healthy,

especially love a lot, the more love you give the more you get in return.....

Joan, Florida

AIH, 1 Gall Stone, HBP

Fox

<A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

only)

<A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

Foxy's Health

<A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A> (aol only)

<A HREF= " http://www.foxdianasden.com/health.com " >

http://www.foxdianasden.com/health.htm</A>

Liver Support

<A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

(aol only)

<A HREF= " http://www.foxdianasden.com/liver support.htm " >

http://www.foxdianasden.com/liver support.htm</A>

[Guest guest]

Joan,

You mentioned taking alot of herbs and vitamins. Are you also taking

steroids? I am reading on the interenet (about AIH) that you have to take

steroids the rest of your life, but quickly read a passage in Dr. Weil's

book about a woman with liver disease who stopped the steroids and does

everything homeopathically....is that possible? Her labs are normal

again.... I read that if you don't take the steroids, you have a 10% chance

of surviving 10 years.... As much as I don't love the idea of being on

steroids the rest of my life, I don't know that I could chance going off

them....

any help on this would be great from anyone,

Beth, AIH 10/00, MI

Re: [ ] Herbs, nutrients and natural remedies

> Good Morning Janet,

> I take a hefty regeime of medications, herbs and vitamins. My chart is

on

> my health page. I am so glad you said " check with your doctor first " . I

> read the book by Dr Cabot. It is a great book, has a diet for the

> liver, in fact it is called the " Liver Cleansing Diet " . I bought a copy

of

> it, sent it to all my doctors, along with the proposed regeime I wanted to

> start. I had to see them all within a week of my sending the book. Each

and

> everyone approved my starting the regeime. It is anything but cheap, in

fact

> it cost me over 250 a month to take them all. And I get a 20% discount

from

> GNC that every one can get also...There are days I could cheerfully throw

all

> the pills away, there are days it takes me for ever to get them down, but

> then I tell my self as I take each one, I am going to heal my liver, I am

> going to beat this Dragon. My labs are now normal, they have been for a

long

> time, I have good days and bad days, up days and down days but I am still

> here after being told " I should live my life as comfortable as I could " ,

by

> the first GI. Thank God I changed doctors.

>

> Another book I read that helped my life, You Can't Afford The Thought Of A

> Negative Thought by Mc. There is a lot of weath in this

book...

>

> Love ya'll, have a great day, remember to laugh all day. Laughter is music

to

> the heart and very healing. Soooooo, laugh a lot, love a lot, and be

healthy,

> especially love a lot, the more love you give the more you get in

return.....

>

>

> Joan, Florida

> AIH, 1 Gall Stone, HBP

>

> Fox

> <A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

> only)

> <A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

>

> Foxy's Health

> <A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A> (aol

only)

> <A HREF= " http://www.foxdianasden.com/health.com " >

> http://www.foxdianasden.com/health.htm</A>

>

> Liver Support

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

> (aol only)

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >

> http://www.foxdianasden.com/liver support.htm</A>

>

>

>

[Guest guest]

Joan,

Thanks for your kind note. I appreciate all of your help,

Beth

I've jotted down the books and will get them real soon

Re: [ ] Joan

> In a message dated 11/02/2000 9:18:12 AM Eastern Standard Time,

bccj@...

> writes:

>

> << You mentioned taking alot of herbs and vitamins. Are you also taking

> steroids? I am reading on the interenet (about AIH) that you have to

take

> steroids the rest of your life, but quickly read a passage in Dr. Weil's

> book about a woman with liver disease who stopped the steroids and does

> everything homeopathically....is that possible? Her labs are normal

> again.... I read that if you don't take the steroids, you have a 10%

chance

> of surviving 10 years.... As much as I don't love the idea of being on

> steroids the rest of my life, I don't know that I could chance going off

> them....

>

> any help on this would be great from anyone,

> Beth, AIH 10/00, MI >>

>

> I take Actigall and Imuran, but they would not give me Prednisone because

of

> the side effects. I am doing great on this regeime. Like I said, some

days

> they go down easy, some days I hate them..but with each one, I thank it

for

> helping me, I tell me liver many times through out the day that we will

beat

> this Dragon we have been blessed with....no I am not crazy. just part of

> staying positive...

>

> I think a many things outside of the medications help as much as they

do..A

> positive attitude, laughter, laughter, laughter, a good diet, excerise if

you

> can and being surrounded by those that love you..

>

> There are two books I swear by,

> The Liver Cleansing Diet, Dr. Cabot

> and

> You Can't Afford The Luxury Of A Negative Thought, Mc..

>

> What works for me, might not work for anyone else. We have to find what

we

> are comfortable with and go from there...

>

> But remember this,

> YOU ARE THE MOST IMPORTANT PERSON YOU KNOW, YOU ARE VERY SPECIAL AND ONE

OF A

> KIND, YOU CAN DO ANYTHING YOU PUT YOUR MIND TOO.....

>

> Love ya'll, have a great day, remember to laugh all day. Laughter is music

to

> the heart and very healing. Soooooo, laugh a lot, love a lot, and be

healthy,

> especially love a lot, the more love you give the more you get in

return.....

>

>

> Joan, Florida

> AIH, 1 Gall Stone, HBP

>

> Fox

> <A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

> only)

> <A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

>

> Foxy's Health

> <A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A> (aol

only)

> <A HREF= " http://www.foxdianasden.com/health.com " >

> http://www.foxdianasden.com/health.htm</A>

>

> Liver Support

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

> (aol only)

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >

> http://www.foxdianasden.com/liver support.htm</A>

>

>

>

>

>

>

>

[Guest guest]

In a message dated 1/18/01 5:34:54 PM Pacific Standard Time, evinmoon@... writes:

Joan,

I may be confused, you are not unsubcribing, are you? I can't see this

group without you! You are one of the vertebrates in the backbone of this

group...Carolyn...Keep smiling. You never know who's life you will touch

with a simple smile.

If you're still connected to read this, I hope you'll stay. You can always just not read messages when you don't feel interested or well.

Harper

[Guest guest]

No, Carolyn, she was giving directions to someone who asked to be unsubbed.

Don

Terradon Unlimited

www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: Carolyn Wilkinson [mailto:evinmoon@...]Sent: Thursday, January 18, 2001 9:15 PM egroupsSubject: Re: [ ] JoanJoan, I may be confused, you are not unsubcribing, are you? I can't see thisgroup without you! You are one of the vertebrates in the backbone of thisgroup...Carolyn...Keep smiling. You never know who's life you will touchwith a simple smile. Re: [ ] unsubscribe> In a message dated 01/18/2001 1:47:33 PM Eastern Standard Time,> nshoreprinter@... writes:>> << Subj: [ ] unsubscribe> Date: 01/18/2001 1:47:33 PM Eastern Standard Time> From: nshoreprinter@...> Reply-to: <A HREF="mailto: egroups">> egroups</A>> egroups>>> >>>> Please follow the instructions below to unsubsribe the LiverSupport List.I> am sorry I can't do it for you.>>> 2.) To UNsubscribe send to -unsubscribeonelist>> If this does not work, please go to the site to unsubscribe. Thankyou.....> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">Liver Support</A>> >>> Love ya'll, have a great day, remember to laugh all day. Laughter is musicto> the heart and very healing. Soooooo, laugh a lot, love a lot, and behealthy,> especially love a lot, the more love you give the more you get inreturn.....>> Joan, Florida> AIH, 1 Gall Stone, HBP>> Fox > <A HREF="aol://1722:http://www.foxdianasden.com">Fox 's Den</A>> <A HREF="http://www.foxdianasden.com">http://www.foxdianasden.com</A>>> Foxy's Health> <A HREF="http://www.foxdianasden.com/health.com">Foxy's Health</A>> <A HREF="http://www.foxdianasden.com/health.com">> http://www.foxdianasden.com/health.htm</A>>> Liver Support> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">Liver Support</A>> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">> http://www.foxdianasden.com/liversupport.htm</A>>>

[Guest guest]

Joan,

I may be confused, you are not unsubcribing, are you? I can't see this

group without you! You are one of the vertebrates in the backbone of this

group...Carolyn...Keep smiling. You never know who's life you will touch

with a simple smile.

Re: [ ] unsubscribe

> In a message dated 01/18/2001 1:47:33 PM Eastern Standard Time,

> nshoreprinter@... writes:

>

> << Subj: [ ] unsubscribe

> Date: 01/18/2001 1:47:33 PM Eastern Standard Time

> From: nshoreprinter@...

> Reply-to: <A HREF= " mailto: egroups " >

> egroups</A>

> egroups

>

>

> >>

>

> Please follow the instructions below to unsubsribe the LiverSupport List.

I

> am sorry I can't do it for you.

>

>

> 2.) To UNsubscribe send to -unsubscribeonelist

>

> If this does not work, please go to the site to unsubscribe. Thank

you.....

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

>

>

>

> Love ya'll, have a great day, remember to laugh all day. Laughter is music

to

> the heart and very healing. Soooooo, laugh a lot, love a lot, and be

healthy,

> especially love a lot, the more love you give the more you get in

return.....

>

> Joan, Florida

> AIH, 1 Gall Stone, HBP

>

> Fox

> <A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A>

> <A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

>

> Foxy's Health

> <A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A>

> <A HREF= " http://www.foxdianasden.com/health.com " >

> http://www.foxdianasden.com/health.htm</A>

>

> Liver Support

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

> <A HREF= " http://www.foxdianasden.com/liver support.htm " >

> http://www.foxdianasden.com/liversupport.htm</A>

>

>

[Guest guest]

I keep getting email from other poeple???

I am Amatrine,.not joan,..

Ama

[ ] Joan

>Dear Joan,

>I miss hearing from you. How is your daughter doing? Hope she is on the

>mend.

>

>

>

[Guest guest]

Don,

Thanks, Haven't heard from you in a while. How are you doing. Have you heard from Sylvana lately? I wonder how she is doing with the treatments. Take care... Carolyn...Keep smiling. You never know who's life you will touch with a simple smile.

Re: [ ] unsubscribe> In a message dated 01/18/2001 1:47:33 PM Eastern Standard Time,> nshoreprinter@... writes:>> << Subj: [ ] unsubscribe> Date: 01/18/2001 1:47:33 PM Eastern Standard Time> From: nshoreprinter@...> Reply-to: <A HREF="mailto: egroups">> egroups</A>> egroups>>> >>>> Please follow the instructions below to unsubsribe the LiverSupport List.I> am sorry I can't do it for you.>>> 2.) To UNsubscribe send to -unsubscribeonelist>> If this does not work, please go to the site to unsubscribe. Thankyou.....> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">Liver Support</A>> >>> Love ya'll, have a great day, remember to laugh all day. Laughter is musicto> the heart and very healing. Soooooo, laugh a lot, love a lot, and behealthy,> especially love a lot, the more love you give the more you get inreturn.....>> Joan, Florida> AIH, 1 Gall Stone, HBP>> Fox > <A HREF="aol://1722:http://www.foxdianasden.com">Fox 's Den</A>> <A HREF="http://www.foxdianasden.com">http://www.foxdianasden.com</A>>> Foxy's Health> <A HREF="http://www.foxdianasden.com/health.com">Foxy's Health</A>> <A HREF="http://www.foxdianasden.com/health.com">> http://www.foxdianasden.com/health.htm</A>>> Liver Support> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">Liver Support</A>> <A HREF="http://www.foxdianasden.com/liver'>http://www.foxdianasden.com/liver support.htm">> http://www.foxdianasden.com/liversupport.htm</A>>>

[Guest guest]

In a message dated 01/18/2001 11:00:39 PM Eastern Standard Time,

amatrine@... writes:

<< I keep getting email from other poeple???

I am Amatrine,.not joan,..

>>

Hi Amatrine,

You will receive all mail sent to the list...no matter who it is addressed

too....everything you post will also be sent to the entire list....please

join in, ask questions, someone usually will be able to help, also share how

you are doing...this is a great support group....everyone here is loving,

caring and helpful...we learn from each other...

Love ya'll, have a great day, remember to laugh all day. Laughter is music to

the heart and very healing. Soooooo, laugh a lot, love a lot, and be healthy,

especially love a lot, the more love you give the more you get in return.....

Joan, Florida

PBC, AIH, 1 Gall Stone, HBP

Fox

<A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

only)

<A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

Foxy's Health

<A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A> (aol only)

<A HREF= " http://www.foxdianasden.com/health.com " >

http://www.foxdianasden.com/health.htm</A>

Liver Support

<A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

(aol only)

<A HREF= " http://www.foxdianasden.com/liver support.htm " >

http://www.foxdianasden.com/liversupport.htm</A>

[Guest guest]

In a message dated 01/18/2001 7:45:18 PM Eastern Standard Time,

madamfood@... writes:

<< Dear Joan,

I miss hearing from you. How is your daughter doing? Hope she is on the

mend.

>>

Hi ,

My daughter has done wonderful, she is walking with a walker already...the

doctors are amazed at her progress...they think she will be able to return to

work in 3 months, much different from the year they orginially told her.

Thank you for asking...

***********************

Joan,

I may be confused, you are not unsubcribing, are you? I can't see this

group without you! You are one of the vertebrates in the backbone of this

group...Carolyn...Keep smiling. You never know who's life you will touch

with a simple smile.

Hi Carolyn, No Sweetie, I was just telling some one how to unsubscribe. I am

still here...just been very laid back...just been more tird then

usual....getting old and feeble....LOL...

*******************************

To Everyone,

Since I last posted, which has been a long time, I have had a endoscopy. I

now have ulcers on my throat...joy. joy, joy, my Prilosec was increased, so

now I am a happy camper...LOL... I also had a test for liver cancer, which I

am happy to share ....the counts were normal...has any one else had this

test...I also have to have mammograms every 6 mos now....so far they cyst

have not changed but it seems the Immuran and Actigall can have a negative

effect on them....LOL...I think a man who hates women invented the way

mammograms are done....LOL....just a little sick humor....

I also went to Dr Schiff, my hepatologist, everything is about the same, he

has added PBC to my diseases now...what the hay....just one more challange, I

now take 13 different prescibed medications, but have cut back on herbs and

vitamins.

That is about it for now...everyone keep posting...stay happy and

positive....we can beat this if we laugh, love and live...

Love ya'll, have a great day, remember to laugh all day. Laughter is music to

the heart and very healing. Soooooo, laugh a lot, love a lot, and be healthy,

especially love a lot, the more love you give the more you get in return.....

Joan, Florida

PBC, AIH, 1 Gall Stone, HBP

Fox

<A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

only)

<A HREF= " http://www.foxdianasden.com " >http://www.foxdianasden.com</A>

Foxy's Health

<A HREF= " http://www.foxdianasden.com/health.com " >Foxy's Health</A> (aol only)

<A HREF= " http://www.foxdianasden.com/health.com " >

http://www.foxdianasden.com/health.htm</A>

Liver Support

<A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

(aol only)

<A HREF= " http://www.foxdianasden.com/liver support.htm " >

http://www.foxdianasden.com/liversupport.htm</A>

[Guest guest]

Hi Joan...I see that you saw Dr. Schiff; was this at UM? I know the

endoscopy was not fun, I've had one to verify varices. I send my prayers

and love to you, remain positive.

[Guest guest]

Whew, that's good news Don. Like Joan, we need you here.

-Clyde

--

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[Guest guest]

Oh Joan, I do hope you can go to the super bowl. That will be such a wonderful experience (especially if the right team wins). Hunt will also be in Tampa, but he will be attending things for the gasperilla festival and the super bowl but not the games. I do wish you luck

Rosemary

[Guest guest]

Hi Joan: Could you please tell me if there is a group for ITP (Immune

Thrombocytopenic Purpura) My mother was diagnosed with this in June and is

being referred to Moffitt Cancer Center by her oncologist. I'm glad she is

going for a second opinion because they want to take her spleen out and the

Hepatologist on the transplant team in Miami said what ever I do don't let

them do that. This is a lot like AIH being it is an immune disease that they

don't know much about and is treated with Prednisone. Having two members of

my immediate family on Prednisone isn't an easy task. I feel awful about

saying this but I hate to talk to my mother because she is so depressed and

brings me down while I'm trying to stay positive for Jodi. Guess I need to

say more prayers. If you have any information about this group please post

it for me. Thanks, take care and God bless. Genny/Jodi's Mom/ AIH

[Guest guest]

In a message dated 02/01/2001 8:21:50 PM Eastern Standard Time,

Babycolt98102690@... writes:

<< Hi Joan: Could you please tell me if there is a group for ITP (Immune

Thrombocytopenic Purpura) My mother was diagnosed with this in June and is

being referred to Moffitt Cancer Center by her oncologist. I'm glad she is

going for a second opinion because they want to take her spleen out and the

Hepatologist on the transplant team in Miami said what ever I do don't let

them do that. This is a lot like AIH being it is an immune disease that

they

don't know much about and is treated with Prednisone. Having two members of

my immediate family on Prednisone isn't an easy task. I feel awful about

saying this but I hate to talk to my mother because she is so depressed and

brings me down while I'm trying to stay positive for Jodi. Guess I need to

say more prayers. If you have any information about this group please post

it for me. Thanks, take care and God bless. Genny/Jodi's Mom/ AIH >>

Hi Genny, I didn't see one on e-groups...I also checked Topica and

SmartGroups....you could start one, it is easy...LOL...follow the bouncing

ball...LOL...

What Doctor do you see in Miami...I see Dr Eugene Schiff...I think he is

wonderful and I trust him completely...

Love ya'll, have a great day, remember to laugh all day. Laughter is music to

the heart and very healing. Soooooo, laugh a lot, love a lot, and be healthy,

especially love a lot, the more love you give the more you get in return.....

Joan, Florida

PBC, AIH, 1 Gall Stone, HBP

Fox

<A HREF= " aol://1722:http://www.foxdianasden.com " >Fox 's Den</A> (aol

only)

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<A HREF= " http://www.foxdianasden.com/health.com " >

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Liver Support

<A HREF= " http://www.foxdianasden.com/liver support.htm " >Liver Support</A>

(aol only)

<A HREF= " http://www.foxdianasden.com/liver support.htm " >

http://www.foxdianasden.com/liversupport.htm</A>

[Guest guest]

Joan: Florida had beautiful weather for you at the Super Bowl. I am way

behind on my e-mail and I just read where you were going to it. I live about

one and a half hrs. from Tampa. Hope you had a great time. Genny

[Guest guest]

In a message dated 2/1/01 5:21:57 PM Pacific Standard Time, Babycolt98102690@... writes:

ITP (Immune Thrombocytopenic Purpura) My mother was diagnosed with this in June

Oh, dear. I am sorry. Lucky you're tough, but I wish you didn't have to be.

Harper

[Guest guest]

Hi Joan, You mentioned that you see Dr. Schiff in Miami and he is

wonderful, you trust him. Have you met Dr. Reddy? I sure would LOVE to

find a wonderful, trustworthy doctor. I pulled the biographies on both

these guys, and they are both very qualified...trust in you doctor can make

such a difference in how YOU help to heal your illness. Blessings to you.

/F45/FL

[Guest guest]

Hi Joan,

I also go to the U of M I see Dr Molina who is in Dr Schiff's group.

I have also had the Hudson produce done last June. How long have

you been going to them. Any input would be appreciated my email address is

alytune@...

Best of Health.

Judy Nuccitelli