Dizziness

[Guest guest]

Dear :

Since you are new to the prednisone, it could be causing some of your

dizziness too. It is one of the listed side affects. Check out this

website. <A

HREF= " http://www.rxlist.com/cgi/generic/pred.htm#sect-Adverse_Reactions " >Predn

isone - RxList Monographs</A> Make sure to scroll all the way to the top for

the complete info.

It has a lot of useful info about prednisone and it's side affects.

Take care!

Kathy (AIH)

Seattle area

[Guest guest]

One point I neglected last night was dizziness. Pre-transplant I had several

episodes of very disturbing dizziness. it felt like I was sinking into a

black hole and i lost the ability to see what was going on. Twice it occurred

when I was driving. Very scary. I in retrospect wonder if it may have been a

blood sugar episode due to the prednisone, I can't really remember if I was

on prednisone at the time. These episodes were fortunately infrequent. I

recall vividly the first one, it was when I was a teenager and I was at Mass.

I recall feeling like I was going to pass out in the pew. I don't recall a

second one until I was well in my 30's (I was diagnosed with AIH at age 28).

Other than that I did have some severe orthostatic hypotension due to meds

for the varaceal pressure, It caused a dizziness everytime I changed

position, sit to stand, lying down to getting up etc. My blood pressure was

very low at the time 90/45-50.

Neither of the conditions still exist thankfully. As an additional comment I

am SURE that stress makes AIH symptoms worse!! NO doubt in my mind!

Best to all, Hope this is a wonderfully healthy and relaxing sunday for for

all

Patty AIH Post-transplant

[Guest guest]

Patty,

I've also had a few dizziness episodes similar to what you describe. Once

in a supermarket where I wondered if I'd collapse on the spot and had to

lean against a shelf until it passed. Usually it's not so intense, just

uncomfortably off balance, so I feel slightly out of focus, unsteady and a

little nauseated. The fact that glucose can rise to very high levels that

show up on non-fasting lab tests but the levels become normal after fasting

makes me agree with you. We have a very strong reaction to glucose in our

systems, probably because our pancreas is not processing sugars efficiently.

I wonder, though, is this caused by Prednisone or by liver disease effects

on the pancreas? I had the dizziness before I was taking Prednisone and

now I'm having an occasional problem with it despite being on low

Prednisone dosage, where I didn't have a problem often on the higher doses.

Take care,

Geri

[Guest guest]

Geri:

Were you ever tested for Menaire's (sp?) Disease? A very close friend of

mine was diagnosed a couple of years ago and has since had surgery to drain

the fluid from her right ear. She has lost 80% of her hearing in that ear.

Before she was diagnosed she suffered severe dizzy spells including severe

bouts of nausea. The spells were so severe she would actually pass out.

She hasn't had any problems since her surgery last year.

Debbie

AIH

Michigan

Re: [ ] Re: dizziness

>From: Geri Spang <spangs@...>

>

>Patty,

>I've also had a few dizziness episodes similar to what you describe. Once

>in a supermarket where I wondered if I'd collapse on the spot and had to

>lean against a shelf until it passed. Usually it's not so intense, just

>uncomfortably off balance, so I feel slightly out of focus, unsteady and a

>little nauseated. The fact that glucose can rise to very high levels that

>show up on non-fasting lab tests but the levels become normal after fasting

>makes me agree with you. We have a very strong reaction to glucose in our

>systems, probably because our pancreas is not processing sugars

efficiently.

>

>I wonder, though, is this caused by Prednisone or by liver disease effects

>on the pancreas? I had the dizziness before I was taking Prednisone and

>now I'm having an occasional problem with it despite being on low

>Prednisone dosage, where I didn't have a problem often on the higher doses.

>

>Take care,

>Geri

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

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[Guest guest]

Debbie,

I haven't been tested for Meneire's Syndrome (is that how it's

spelled?) The dizziness is an infrequent thing for me and isn't that bad

now. My aunt had Meniere's and it was disabling but she was successfully

treated and is okay now. If it were to get worse or more frequent, I'd

definitely look into it. But, sometimes I find that I avoid telling my

doctor about anything that's going on unless it becomes a major

problem. He doesn't brush me off at all, but everything new seems to

generate a bunch of new tests. You just get weary of it all, you

know? Right now my big concern is the problem with my hip that seems to

be involving my spine a bit. I could simply have a bad disk. I certainly

hope that's all it is!

Take care,

Geri

[Guest guest]

Hi

Do you remember what your aunt was treated with for

her Meniers? My boss has been literally bed riddenn

for months with her new onset of this disease..any

info would be appreciated

thanks

Jody

--- Geri Spang <spangs@...> wrote:

> Debbie,

> I haven't been tested for Meneire's Syndrome (is

> that how it's

> spelled?) The dizziness is an infrequent thing for

> me and isn't that bad

> now. My aunt had Meniere's and it was disabling but

> she was successfully

> treated and is okay now. If it were to get worse or

> more frequent, I'd

> definitely look into it. But, sometimes I find that

> I avoid telling my

> doctor about anything that's going on unless it

> becomes a major

> problem. He doesn't brush me off at all, but

> everything new seems to

> generate a bunch of new tests. You just get weary

> of it all, you

> know? Right now my big concern is the problem with

> my hip that seems to

> be involving my spine a bit. I could simply have a

> bad disk. I certainly

> hope that's all it is!

> Take care,

> Geri

>

>

>

>

------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to

> -subscribeonelist

> 2.) To UNsubscribe send to

> -unsubscribeonelist

> 3.) Digest e-mail format send to

> -digestonelist

> 4.) Normal e-mail format send to

> -normalonelist

>

<HR>

<html>

>

=====

Jody Compton

Dance like no one is watching. Love like it will never end.

In search of answers..

[Guest guest]

Jo-I can tell you that my husband goes thru violent detox and gets dizzy like you. When he is cleaning himself out he gets dizzy, sick to his stomach, bad headache, and we were told this happens because all the toxins that are being thrown into his blood stream. We were also told to rememdy this by eating some toxic food. I know it sounds contrary to what you would think, but I can tell you as a fact that the 2 times it's happened to my husband, we ran him thru the Mc's drive thru and within minutes of eating that food, all his symptoms were gone.

Also wanted to tell you last September I went thru a detox like that for a week, only I had no idea at the time how to stop it. I just thought I was going to die, and was waiting for it. One day I just got better in a matter of minutes. Shortly after that someone told me how to stop the detox, so thankfully in my husbands case where his job does not allow him a week to recover like I had, he was feeling well immediately.

Sue

[Guest guest]

I'm no expert here, first of all. And I don't know in what order you should

do the things you plan to do, but I have a hunch that plain enemas or mineral

oil enemas might be the ticket as far as enemas go, at least until you have

finished other cleansing. There really is something to the

electrolyte/dizziness connection, and you can really mess your ph up with

enemas if you are not careful - I had to learn that the hard way. Good luck

to you.

[Guest guest]

Hi Jo,

I get the dizziness too with the cleasning until it gets to point

where I have to cut down on my cleansing. I would be very interested

to know what causes this as well.

As for protocols I would start with eating healthy (lots of fruits &

veggies preferably raw if you can handle them, cut out sugar etc.)

for a week or two and take the minerals. Then go for the zapping,

minerals and parasite cleanse - I was also told once to go easy on if

not eliminate anti-oxidants while parasite cleansing as they feed the

parasites.

I am not a Dr. and this is not medical advice.

>

>Here's the problem: in the past I have tried cleansing programs with

>enemas, but the more successful I became, the more dizzy I also became.

>Since there is no one in my immediate area to consult with, I would quit

>the cleansing in order to try to stop the dizzy spells because I didn't

>know how to handle them. The last time I tried a cleanse, the dizziness

>got to the point when I would be awakened in the morning by the room

>spinning--before I opened my eyes--and a couple of times the dizziness

>would come over me while I was driving, which was quite frightening. I

>was told by different people (who I think may have known less than me)

>that the dizziness was caused by all the toxins I stirred up, or that

>the cleansing was too extreme for me and messed up the electrolyte

>balance, or that I was " simply " having a mild cleansing crisis (the

>crisis part I can agree with). I personally don't have a clue.

>

>Here's the question: what can I do to cut down or eliminate or work

>with the dizziness? I know I am quite toxic, I'm sure I have parasites

>in my system, I know I have a lot to do and a long way to go, but this

>is my first hurdle. I'm ready to get on with the enemas, parasite

>formula, zapping, modified food program, mineral supplementation,

>whatever, but I'm unsure of the ordering of the protocol.

>

>I hope someone can help with suggestions. This is really frustrating,

>and I have some major health issues to work on once I get the cleansing

>program(s) in place. Any suggestions will be welcome. Thanks.

>

>Jo

[Guest guest]

Jo-I can tell you that my husband goes thru violent

detox and gets dizzy like

you. When he is cleaning himself out he gets dizzy, sick to his

stomach, bad

headache, and we were told this happens because all the toxins that

are being

thrown into his blood stream. We were also told to rememdy this

by eating

some toxic food. I know it sounds contrary to what you would

think, but I

can tell you as a fact that the 2 times it's happened to my husband,

we ran

him thru the Mc's drive thru and within minutes of eating that

food,

all his symptoms were gone.

That is my experience

as well, when I get really dizzy from cleansing, I stop fighting the

food cravings and eat a brownie, I usually feel instantly better. Then

after a day or so I get back to cleansing.

[Guest guest]

Hi Jo,

You might try having your ears candled. That has helped a few of my friends clear the dizziness.

Virginia

PS. Candles can be purchased at the health food store, but you have to have some else (that you trust) do the procedure for you.

[Guest guest]

Hi Jo,

I had the room spinning dizziness as well. It wasn't during cleaning,

it was after taking large amounts of antibiotics for a sinus

infection (this was before I was educated on antibiotics). The kind

of dizzinesss that is spinning comes from the inner ear. My doctor

said it was inflamation in the inner ear. The reason for the

inflamation can be food sensitivities, viruses or damage to the ear

itself. Magnesium supplements and diet changes helped mine ALOT!

Good Luck,

Barbara

> I joined this group a week or so ago, and meant to lurk for awhile

> before writing, but a health concern has prompted me to write sooner

> than planned.

>

> Due to some bad food choices combined with already existing health

> problems, I have recently been revisited by a (so far) moderate case

of

> sciatica. Dr. 's theory of sciatica is that it is caused

by

> congestion in the sigmoid colon and pressure on the nerves, so I

have

> decided to begin cleansing with salt and soda enemas and taking

> Experience by the Awareness Corporation. A week or so ago I was

taking

> the wormwood, clove and black walnut combination for parasites, and

I

> had reached a point where I could feel some angry parasites

(tapeworms?)

> bumping around, but out of stupidity (my judgment), I stopped. This

may

> be part of the cause of the current sciatica.

>

> Here's the problem: in the past I have tried cleansing programs

with

> enemas, but the more successful I became, the more dizzy I also

became.

> Since there is no one in my immediate area to consult with, I would

quit

> the cleansing in order to try to stop the dizzy spells because I

didn't

> know how to handle them. The last time I tried a cleanse, the

dizziness

> got to the point when I would be awakened in the morning by the room

> spinning--before I opened my eyes--and a couple of times the

dizziness

> would come over me while I was driving, which was quite frightening.

I

> was told by different people (who I think may have known less than

me)

> that the dizziness was caused by all the toxins I stirred up, or

that

> the cleansing was too extreme for me and messed up the electrolyte

> balance, or that I was " simply " having a mild cleansing crisis (the

> crisis part I can agree with). I personally don't have a clue.

>

> Here's the question: what can I do to cut down or eliminate or work

> with the dizziness? I know I am quite toxic, I'm sure I have

parasites

> in my system, I know I have a lot to do and a long way to go, but

this

> is my first hurdle. I'm ready to get on with the enemas,

parasite

> formula, zapping, modified food program, mineral supplementation,

> whatever, but I'm unsure of the ordering of the protocol.

>

> I hope someone can help with suggestions. This is really

frustrating,

> and I have some major health issues to work on once I get the

cleansing

> program(s) in place. Any suggestions will be welcome. Thanks.

>

> Jo

[Guest guest]

Do your research on the Arise and Shine cleanse: They alternate the

herbs ( every hour and a half ) with a mix of psyllium and bentonite.

The bentonite absorbs the toxins while still in the GI tract, so they

never have the opportunity to filter into the bloodstream... The

psyllium grabs them and whisks them out. Also, bentonite enemas help

releve the toxicity. I have had good luck with them, no dizziness, even

when on the master cleanse. the euphoria i felt was somewhat light

headedness one day, i think i was just euphoric with excitement because

it was my first cleanse and i somehow list three pounds in one weekend

when i first started it.

--- Jo <jo@...> wrote:

> I joined this group a week or so ago, and meant to lurk for awhile

> before writing, but a health concern has prompted me to write sooner

> than planned.

>

> Due to some bad food choices combined with already existing health

> problems, I have recently been revisited by a (so far) moderate case

> of

> sciatica. Dr. 's theory of sciatica is that it is caused

> by

> congestion in the sigmoid colon and pressure on the nerves, so I have

> decided to begin cleansing with salt and soda enemas and taking

> Experience by the Awareness Corporation. A week or so ago I was

> taking

> the wormwood, clove and black walnut combination for parasites, and I

> had reached a point where I could feel some angry parasites

> (tapeworms?)

> bumping around, but out of stupidity (my judgment), I stopped. This

> may

> be part of the cause of the current sciatica.

>

> Here's the problem: in the past I have tried cleansing programs with

> enemas, but the more successful I became, the more dizzy I also

> became.

> Since there is no one in my immediate area to consult with, I would

> quit

> the cleansing in order to try to stop the dizzy spells because I

> didn't

> know how to handle them. The last time I tried a cleanse, the

> dizziness

> got to the point when I would be awakened in the morning by the room

> spinning--before I opened my eyes--and a couple of times the

> dizziness

> would come over me while I was driving, which was quite frightening.

> I

> was told by different people (who I think may have known less than

> me)

> that the dizziness was caused by all the toxins I stirred up, or that

> the cleansing was too extreme for me and messed up the electrolyte

> balance, or that I was " simply " having a mild cleansing crisis (the

> crisis part I can agree with). I personally don't have a clue.

>

> Here's the question: what can I do to cut down or eliminate or work

> with the dizziness? I know I am quite toxic, I'm sure I have

> parasites

> in my system, I know I have a lot to do and a long way to go, but

> this

> is my first hurdle. I'm ready to get on with the enemas,

> parasite

> formula, zapping, modified food program, mineral supplementation,

> whatever, but I'm unsure of the ordering of the protocol.

>

> I hope someone can help with suggestions. This is really

> frustrating,

> and I have some major health issues to work on once I get the

> cleansing

> program(s) in place. Any suggestions will be welcome. Thanks.

>

> Jo

>

>

=====

Proverbs (Robin2)

If you always do what you have always done, you'll

always get what you have always got.

Is that what you want ?

__________________________________________________

[Guest guest]

Potatoes will stop the cleansing process. I guess it was the fries.

--- suekot@... wrote:

> Jo-I can tell you that my husband goes thru violent detox and gets

> dizzy like

> you. When he is cleaning himself out he gets dizzy, sick to his

> stomach, bad

> headache, and we were told this happens because all the toxins that

> are being

> thrown into his blood stream. We were also told to rememdy this by

> eating

> some toxic food. I know it sounds contrary to what you would think,

> but I

> can tell you as a fact that the 2 times it's happened to my husband,

> we ran

> him thru the Mc's drive thru and within minutes of eating that

> food,

> all his symptoms were gone.

>

> Also wanted to tell you last September I went thru a detox like that

> for a

> week, only I had no idea at the time how to stop it. I just thought

> I was

> going to die, and was waiting for it. One day I just got better in a

> matter

> of minutes. Shortly after that someone told me how to stop the

> detox, so

> thankfully in my husbands case where his job does not allow him a

> week to

> recover like I had, he was feeling well immediately.

>

> Sue

>

=====

Proverbs (Robin2)

If you always do what you have always done, you'll

always get what you have always got.

Is that what you want ?

__________________________________________________

[Guest guest]

I get nauseated too....since my cholesteatoma/mastoidectomy in November. I dont just get it in the car, but sometimes just walking. It isnt dizziness, but a spacey, sick to the stomach feeling. They say it is divertigo. They want to send me to vesticular rehab, since the didnt think the balance nerves were affected during the surgery. I dont know...that quarter of my head keeps swelling, and gets real sore, but no one seems to have any of the same symptoms...it is really frustrating and aggravating, I wonder if any of the doctors care about afterward..... you dont read much about any aggravating symptoms after the surgery.....

dizziness

Ever since my mastoidectomy last July, I have been suffering from car sickness. As soon as the car starts to move, I get nauseous and my head starts spinning. Has this happened to anyone else? It's to a point now where I have to drive the car and can not be a passenger.Cheryl

[Guest guest]

Can't say I get car sick but have experienced sea sickness for years. I have often wondered if their was a connection. Basically I hardly ever go on boats any more. I'm not sure if it helps but ginger is supposed to be good. Aud dizziness Ever since my mastoidectomy last July, I have been suffering from car sickness. As soon as the car starts to move, I get nauseous and my head starts spinning. Has this happened to anyone else? It's to a point now where I have to drive the car and can not be a passenger.Cheryl

[Guest guest]

I had problems for about a week and a half after my second surgery with car sickness, but thank God It stopped.

Angie

>From: "grumpcrump"

>Reply-cholesteatoma >cholesteatoma >Subject: dizziness >Date: Tue, 23 Apr 2002 18:11:48 -0000 > >Ever since my mastoidectomy last July, I have been suffering from car >sickness. As soon as the car starts to move, I get nauseous and my head >starts spinning. Has this happened to anyone else? It's to a point now >where I have to drive the car and can not be a passenger. > >Cheryl > > MSN Photos is the easiest way to share and print your photos: Click Here

[Guest guest]

In a message dated 04/23/2002 11:18:57 AM Pacific Daylight Time, ccrump@... writes:

Ever since my mastoidectomy last July, I have been suffering from car sickness. As soon as the car starts to move, I get nauseous and my head starts spinning. Has this happened to anyone else? It's to a point now where I have to drive the car and can not be a passenger.

Cheryl

Cheryl,

I read your post to my daughter who is 9 and after every sentence she was saying "oh my gosh, me too!" Yes, she severely has this problem. Every time we ride in the car she feels nauseous, dizzy and sometimes throws up. It's aweful. Most mornings she wakes up dizzy and nauseous, and it wears off in a hour or two. Her last surgery was August 2001 canal wall down mastoidectomy. So you're definitely not alone.

[Guest guest]

Hi All, I have just finished talking to my Mum (Mom for Americans!) and was telling her about this site. She was also talking about how car sick I used to be as a child. My C-toma was not discovered til I was 39 (46 now) so perhaps this could be another "sign" in the early stages. Before I had my op I actually got so dizzy I fell to the floor a couple of times for no apparent reason....at the time I thought it was exhaustion as I had been working 70hr weeks! Little did I know the cause until a couple of years later. As I mentioned once before sucking ginger lozenges seems to help but I admit to usually being the driver these days...probably not an option for you daughter . Have you heard of those magnets placed behind ear lobes? They use them here in Australia for sea sickness...perhaps they are worth a try. Take care Audrey Re: dizziness In a message dated 04/23/2002 11:18:57 AM Pacific Daylight Time, ccrump@... writes: Ever since my mastoidectomy last July, I have been suffering from car sickness. As soon as the car starts to move, I get nauseous and my head starts spinning. Has this happened to anyone else? It's to a point now where I have to drive the car and can not be a passenger. Cheryl Cheryl, I read your post to my daughter who is 9 and after every sentence she was saying "oh my gosh, me too!" Yes, she severely has this problem. Every time we ride in the car she feels nauseous, dizzy and sometimes throws up. It's aweful. Most mornings she wakes up dizzy and nauseous, and it wears off in a hour or two. Her last surgery was August 2001 canal wall down mastoidectomy. So you're definitely not alone.

[Guest guest]

Cheryl,

I had surgery almost 4 weeks ago. Car rides are agonizing, unless I'm

driving. I don't know the reason why but since it only happens when

I'm a passenger maybe its a neural sensory thing. i.e. when I'm

focusing on driving I know when to expect turns and bumps in the road

but when I'm a passenger I don't focus on those things. I tried

opening the window in the car, turning up the heat, and turning up the

air conditioning. I tried chewing gum. I even tried taking Nyquil to

make me sleepy. I still feel nauseous and sick to my stomach. I don't

remember feeling car sick after my previous surgeries. Before this

last surgery I have never been car sick or sea sick. If I think of it

I'll ask my Doctor on Friday, if this is a typical after surgery.

[Guest guest]

I was always told that if experienced ANY dizziness or nausea after the CTOMA surgery to immediately return to the doctor because it could mean that something has broken loose in the inner ear area. After my daughters surgery, our doctor told us if she experienced any dizziness or nausea to ruen right back around and get to hiom quickly so he could fix the problem immediately. I cannot figure out why your doctors are letting this go on. My daughter took Meclizine for her vertigo and nausea (motion sickness) before her surgery. She had severe vertigo because the tumor was eating into the inner ear area where balance is acquired(equilibrium) Before the surgery she had vertigo so bad she could not feel the floor underneath her feet and she would walk into walls and fall down all the time. The surgery got rid of that. He removed all the tumor and destryed tissue and bone and patched the small hole that was eaten into the inner ear chamber.

Anyways, I would check into it further with the doctor, and if you cannot get any answers, maybe I can get some info from my daughters doctor. He is an Otorhinologist and specializes in certain things such as this.

[Guest guest]

I Elly, like I to had the dizziness before starting the MTX. I don't

seem to have so much of it now, just here and there at times. My biggest

problem seems to be I get confussed, especially at night, so I don't deal

with any thing important then. Hope this helps Kelley in Colorado

[Guest guest]

I take it by pill form. I take 6 every friday night. I was using the

weekends, incase of side effects, so i wouldn't miss work.. Don't know why,

since I haven't been there in a week and a half. Kelley in Colorado

[Guest guest]

Hi elly, I had the same last week. On Friday, I stayed in bed till 3:00PM

because I was dizzy. I called my Rheumy-she wondered if it was viral or inner

ear. She increased my Prednisone over the weekend-instant cure, but I saw my

primary yesterday-my ears have fluid, so I'm taking Claradin to dry them up.

You probably want to be checked just to be sure nothings wrong, esp if your on

prednisone, you might not realize if you have an infection.

dizziness

hi everyone, i have a question i'm not sure has been asked before.i

went to bed last night feeling dizzy and got up today still dizzy.I

do take meds for high blood preasure and i take it in the morning,so

i don't know why that would be the cause, and i took my mtx shot this

a.m. should i have taken my shot? i just wondered if anyone else has

a problem with this. i've had it once or twice before at night,but

not when i got up.just curious.

love elly

[Guest guest]

Dear Elly,

I have by coincidence, been having dizzy spells since last Saturday. I wasn

t myself all weekend, and I am still having them out of the clear blue, so

yes..I am experiencing the same thing. I am beginning to wonder, if I am

getting allergies at an older age. I NEVER had an allergy to anything in 37

years, but I question it now? hummm. Hugs sweetie!

Love, Sue #2

-- dizziness

hi everyone, i have a question i'm not sure has been asked before.i

went to bed last night feeling dizzy and got up today still dizzy.I

do take meds for high blood preasure and i take it in the morning,so

i don't know why that would be the cause, and i took my mtx shot this

a.m. should i have taken my shot? i just wondered if anyone else has

a problem with this. i've had it once or twice before at night,but

not when i got up.just curious.

love elly