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Hi

I had my cholesteatoma removed in November of 1999. I had

CWD and, to date, haven’t had a recurrence of the monster, thankfully!

However, I do suffer from chronic pain (neuralgia) in my ears and

also ear infections and perforations, whilst also having dizziness from time to

time. The pain is best described as feeling like someone ramming knitting

needles into my ears. It can be so bad that I have to take 30-60mg of codeine

phosphate to deal with it; the meds take the edge of the pain but also help me

relax somewhat – I guess making me more able to deal with it.

The ear infections are not associated with the aforementioned pain,

as such, though they are of course painful; they just come from time to time –

too often, still. The surgeon’s aim of a dry healthy ear has never been

achieved in me, sadly.

The dizziness has been put down to possibly BPV – Benign Positional

Vertigo. I have had one lot of tests for it, but they couldn’t invoke

the dizziness when doing them so haven’t yet confirmed that it is BPV but

my surgeon (an Otologist with lots of experience here in England) has said it

is likely as, as well as the symptoms suggesting it, it would be on the map of

things to happen to someone with my medical history (cholesteatoma et al).

The dizziness occurs at various times, when I’m doing different

things. One such occasion might be when I’m getting in to bed or am

already in bed – say, I turn over suddenly, or turn to set the alarm

clock; any sudden change of direction can set off the feeling that I’m

falling over my right shoulder... it’s not a nice feeling, that’s

for sure.

Whenever I have had a new symptom, a new feeling, I have always

gone along to my GP and/or I’ve mentioned it to my specialist at the

hospital.

Kazzy

From: cholesteatoma

[mailto:cholesteatoma ] On Behalf Of the bowling ninja

Sent: 08 December 2009 23:33

cholesteatoma

Subject: dizziness

Hi everyone. I had my cholesteatoma removed

back in 2005 and I have been getting bouts of dizziness just about everyday I

get dizzy. Now though it is occuring more and more often. Hardly a day goes by

that I don't get dizzy. I have been to the doctor on average of about every 3

weeks since then too. My ears hurt too just about everyday. I tried to get into

the military back in 2002 and the military doctor said he thought I had a tumor

which basically was the cholesteatoma but no other doctor found it until my ear

started bleeding in 2004 in December. I am thinking that maybe having the

cholesteatoma in there so long and not caught might have something to do with

the pain and the dizziness now. My doctor says my ear looks good, and that I

have chronic pain in my ear. Has anyone else had that promblem?

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Thank you for your help . I am not really able to see any other doctors at the moment since I cannot afford it or get health insurance either. I am basically stuck between a rock and a hard place I guess. The clinic I go to has helped me with the depression that I have had so that is a very very very good thing. Have a good holiday.

.

From: <amandajlear@...>Subject: Re: dizzinesscholesteatoma Date: Tuesday, December 8, 2009, 10:06 PM

I would very very strongly advise you to see another ENT Doctor - ideally a neurologist or otolaryngologist for a second opinion. People always say ring ahead and see how many surgeries the doctor has done on cholesteatomasGood luck, sorry I cannot help further.

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Thank you Kazzy for your help too. I get frequent pain in both my ears too, and it gets me really stressed out that it keeps happening. I really dislike it. Any movement can cause the dizziness too. I know how you feel there. I hope you end up getting better. I know that is going to be tough though. It gets really tough when it gets cold outside. I don't even like to take showers that often though I do. I get even dizzier when my ear gets wet like in the shower. Unfortunately for me I live where it rains like crazy in the Pacific Northwest of the United States. Take care and I hope you have a lot of pain free and no dizziness for a long time. The same goes to whomever is reading this and everyone else for that matter. Have a great night if you can.

.

From: Kazzy <kazzy@...>Subject: RE: dizzinesscholesteatoma Date: Tuesday, December 8, 2009, 11:18 PM

Hi

I had my cholesteatoma removed in November of 1999. I had CWD and, to date, haven’t had a recurrence of the monster, thankfully!

However, I do suffer from chronic pain (neuralgia) in my ears and also ear infections and perforations, whilst also having dizziness from time to time. The pain is best described as feeling like someone ramming knitting needles into my ears. It can be so bad that I have to take 30-60mg of codeine phosphate to deal with it; the meds take the edge of the pain but also help me relax somewhat – I guess making me more able to deal with it.

The ear infections are not associated with the aforementioned pain, as such, though they are of course painful; they just come from time to time – too often, still. The surgeon’s aim of a dry healthy ear has never been achieved in me, sadly.

The dizziness has been put down to possibly BPV – Benign Positional Vertigo. I have had one lot of tests for it, but they couldn’t invoke the dizziness when doing them so haven’t yet confirmed that it is BPV but my surgeon (an Otologist with lots of experience here in England) has said it is likely as, as well as the symptoms suggesting it, it would be on the map of things to happen to someone with my medical history (cholesteatoma et al). The dizziness occurs at various times, when I’m doing different things. One such occasion might be when I’m getting in to bed or am already in bed – say, I turn over suddenly, or turn to set the alarm clock; any sudden change of direction can set off the feeling that I’m falling over my right shoulder... it’s not a nice feeling, that’s for sure.

Whenever I have had a new symptom, a new feeling, I have always gone along to my GP and/or I’ve mentioned it to my specialist at the hospital.

Kazzy

From: cholesteatoma [mailto:cholesteato magroups (DOT) com] On Behalf Of the bowling ninjaSent: 08 December 2009 23:33cholesteatomaSubject: dizziness

Hi everyone. I had my cholesteatoma removed back in 2005 and I have been getting bouts of dizziness just about everyday I get dizzy. Now though it is occuring more and more often. Hardly a day goes by that I don't get dizzy. I have been to the doctor on average of about every 3 weeks since then too. My ears hurt too just about everyday. I tried to get into the military back in 2002 and the military doctor said he thought I had a tumor which basically was the cholesteatoma but no other doctor found it until my ear started bleeding in 2004 in December. I am thinking that maybe having the cholesteatoma in there so long and not caught might have something to do with the pain and the dizziness now. My doctor says my ear looks good, and that I have chronic pain in my ear. Has anyone else had that promblem?

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dizziness everyday? - a sign something is going on - what type of doctor said your ear looks good? when was the last time the doctor did a ct-scan on you? maybe another cholesteatoma is back.

From: the bowling ninja <bctiguy3@...>cholesteatoma Sent: Tue, December 8, 2009 5:32:45 PMSubject: dizziness

Hi everyone. I had my cholesteatoma removed back in 2005 and I have been getting bouts of dizziness just about everyday I get dizzy. Now though it is occuring more and more often. Hardly a day goes by that I don't get dizzy. I have been to the doctor on average of about every 3 weeks since then too. My ears hurt too just about everyday. I tried to get into the military back in 2002 and the military doctor said he thought I had a tumor which basically was the cholesteatoma but no other doctor found it until my ear started bleeding in 2004 in December. I am thinking that maybe having the cholesteatoma in there so long and not caught might have something to do with the pain and the dizziness now. My doctor says my ear looks good, and that I have chronic pain in my ear. Has anyone else had that promblem?

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Even tho my last of 8 cholesteatoma surgeries was 14 years ago, I think I will have dizziness for the rest of my life. I have to pay attention to going slowly when I need to bend down for something, or when I'm looking back and forth from my computer screen to a piece of paper. The dizziness only lasts for a second but it is strong enough to make me grab the edge of the desk because it can make me feel like I am going to fall right out of my chair. I believe in some people it doesn't mean that there is cholesteatoma back, but instead is a result of ear surgeries. I would still have it checked out tho to make sure.

good luck!

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I to have a change of life style related to Cholesteatoma - moving too quickly can trigger the dizzy spell - even just turning to look at something to quickly. No carnival rides for me! I used to love them but now can't even watch some of them. I think that our middle and inner ear is distorted from the tumor as well as any corrective surgeries - It seems to be worse at times but I can't figure out the connection - heat - cold- travel - I have noticed lately that travel by car or plane seems to set off more sensitivity for a while. I think you are correct - we just have to live with it! I'm just glad I can hear ( most of the time with the help of an aid) and that I'm not in pain constantly like other afflictions can cause.

Sandi

In a message dated 12/10/2009 4:24:20 P.M. Central Standard Time, bctiguy3@... writes:

Thank you for the message . I get like that a lot and I don't do the things that I used to do because of the dizziness. I feel like this is going to be with me for the rest of my life as well, but I hope it goes away. I would not wish what I or you or anyone else going through this on anyone. It is not even close to being good. Not sure why it keeps happening. I got my cholesteatoma because of major ear trauma. When I was about 13-14 years old my stepdad boiled some peroxide on the stove until it boiled then poured it directly into my right ear. Needless to say that hurt like crazy. I wasn't even taken to the hospital for it. On that defense though a few minutes after that happened it wasn't hurting anymore. I believe I was in shock. I have horrible scarring inside my right ear. Maybe that is what is causing the dizzines too no idea on that though.

From: LISA CHRISTENSON <lisa.christensonmsn>cholesteatoma Sent: Thu, December 10, 2009 6:41:13 AMSubject: Re: dizziness

Even tho my last of 8 cholesteatoma surgeries was 14 years ago, I think I will have dizziness for the rest of my life. I have to pay attention to going slowly when I need to bend down for something, or when I'm looking back and forth from my computer screen to a piece of paper. The dizziness only lasts for a second but it is strong enough to make me grab the edge of the desk because it can make me feel like I am going to fall right out of my chair. I believe in some people it doesn't mean that there is cholesteatoma back, but instead is a result of ear surgeries. I would still have it checked out tho to make sure.

good luck!

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Thank you for the message . I get like that a lot and I don't do the things that I used to do because of the dizziness. I feel like this is going to be with me for the rest of my life as well, but I hope it goes away. I would not wish what I or you or anyone else going through this on anyone. It is not even close to being good. Not sure why it keeps happening. I got my cholesteatoma because of major ear trauma. When I was about 13-14 years old my stepdad boiled some peroxide on the stove until it boiled then poured it directly into my right ear. Needless to say that hurt like crazy. I wasn't even taken to the hospital for it. On that defense though a few minutes after that happened it wasn't hurting anymore. I believe I

was in shock. I have horrible scarring inside my right ear. Maybe that is what is causing the dizzines too no idea on that though.

From: LISA CHRISTENSON <lisa.christenson@...>cholesteatoma Sent: Thu, December 10, 2009 6:41:13 AMSubject: Re: dizziness

Even tho my last of 8 cholesteatoma surgeries was 14 years ago, I think I will have dizziness for the rest of my life. I have to pay attention to going slowly when I need to bend down for something, or when I'm looking back and forth from my computer screen to a piece of paper. The dizziness only lasts for a second but it is strong enough to make me grab the edge of the desk because it can make me feel like I am going to fall right out of my chair. I believe in some people it doesn't mean that there is cholesteatoma back, but instead is a result of ear surgeries. I would still have it checked out tho to make sure.

good luck!

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8 cholesteatomas is a awful lot :( I hope you never get any more again ever.

From: LISA CHRISTENSON <lisa.christenson@...>cholesteatoma Sent: Thu, December 10, 2009 6:41:13 AMSubject: Re: dizziness

Even tho my last of 8 cholesteatoma surgeries was 14 years ago, I think I will have dizziness for the rest of my life. I have to pay attention to going slowly when I need to bend down for something, or when I'm looking back and forth from my computer screen to a piece of paper. The dizziness only lasts for a second but it is strong enough to make me grab the edge of the desk because it can make me feel like I am going to fall right out of my chair. I believe in some people it doesn't mean that there is cholesteatoma back, but instead is a result of ear surgeries. I would still have it checked out tho to make sure.

good luck!

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PLease get checked if u have " Superior Canal Dehisence Syndrome, " by MRI / CT

Better discuss with Neuro-Otologist !!!

Hope u eyes are NAD.

Just have a look at attached CT, deficeincy marked with arrow to give first hand information about this disease entity

Dr. Gupta Arun, ENT Surgeon,India 

On 12/10/09, LISA CHRISTENSON <lisa.christenson@...> wrote:

 

Even tho my last of 8 cholesteatoma surgeries was 14 years ago, I think I will have dizziness for the rest of my life. I have to pay attention to going slowly when I need to bend down for something, or when I'm looking back and forth from my computer screen to a piece of paper. The dizziness only lasts for a second but it is strong enough to make me grab the edge of the desk because it can make me feel like I am going to fall right out of my chair. I believe in some people it doesn't mean that there is cholesteatoma back, but instead is a result of ear surgeries. I would still have it checked out tho to make sure.

good luck! 

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  • 2 months later...

I had dizziness/disequalibrium very bad before my cholesteatoma was diagnosed. It got to the point I could only drive my car within a two mile radius. Standing up too quickly maybe more of a blood pressure issue(?) It didn't matter if I was standing, sitting, etc. the disequalibrium never left me. My head felt weird as if I was floating on a boat. I have since had two surgery and am 110% better.

From: ukchicken2 <rachelrowan99@...>cholesteatoma Sent: Wed, February 10, 2010 5:14:12 PMSubject: dizziness

I know that dizziness is one of the possible symptoms of cholesteatoma. i was just wondering what types of dizziness other people have expereinced or are experiencing.For years now i regularly get dizzy when i stand up too quickly, much more than anyone else i know, but put it down to the differences in people. But since i got told i had cholesteatoma i have become more aware or how often i have these dizzy spells.Also the past few days i can be sat on the sofa watching tv or reading and my head feels kind of funny almost like a throbbing or a heavy feeling as if the room is going to start spinning. I didnt know if this could be related to the cholesteatoma or if it might be something completely different.If it continues over the next few days i will ask my consultant next week when i have my pre op appointment.

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yes I am sure it is related, especially if it started at the same time

as you made these changes. maybe you could stop the $inthroid if you

were taking enough Iodoral but IMO 12.5mg is just not enough.

Gracia

Bussey wrote:

>

> I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc,

> a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I

> stopped taking Synthroid. Now I am dizzy all the time, is it

> related? I had labs drawn and am waiting for the results.

>

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I'm hypothyroid, and I don't think it's a good idea-- ok let me rephrase--

I would not stop taking my thyroid hormones unless I were having a

hypERthyroid reaction to the iodine (or some other healing substance such

as the LDN I'm taking). The body needs those hormones. If you're taking

iodine and your body starts to respond you'll know by getting hypErthyroid,

but cutting off the hormones before that time, should it come, isn't doing

the body any favors, I do not believe.

--

At 05:57 PM 2/14/2010, you wrote:

>yes I am sure it is related, especially if it started at the same time

>as you made these changes. maybe you could stop the $inthroid if you

>were taking enough Iodoral but IMO 12.5mg is just not enough.

>Gracia

>

> Bussey wrote:

> >

> > I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc,

> > a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I

> > stopped taking Synthroid. Now I am dizzy all the time, is it

> > related? I had labs drawn and am waiting for the results.

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

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I stopped taking the synthroid because I was feeling worse and worse while

taking it, I felt so much better once I stopped taking it and I will not take it

again. I have been off it for almost a month now. I started taking the Iodine

about a month before stopping the synthroid, I added the other supplements one

at a time. I also learned I am anemic, so I guess it could be that too.

> > >

> > > I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc,

> > > a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I

> > > stopped taking Synthroid. Now I am dizzy all the time, is it

> > > related? I had labs drawn and am waiting for the results.

>

>

>

>

> ~~~ There is no way to peace; peace is the way ~~~~

> --A.J. Muste

>

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ok. You might want to try the whole thyroid type thyroid hormones,

though, like Armour or NatureThroid or WestThroid. I wasn't feeling worse

and worse on Synthroid, but I didn't feel very good, either. When I

switched to the natural whole thyroid, which has both T3 and T4, it was

like night and day.

The only reason I'm saying something about ceasing the thyroid hormones is

that if we don't have them, not only do our metabolisms slowly stop

working, but our brains and therefore mind power quits working as well. I

went untreated for more than 10 years, really thought I was going to die by

the last year when I finally got help. (I had seen a doctor 10 years

before, tested out a TSH 10, which at the time was considered within

normal. Then I got so foggy I forgot to ever get it checked again.)

During that period I felt I was fighting a slow decline where I just could

not understand what was happening to me. I wouldn't want that to happen to

anyone else.

best wishes,

--

At 12:06 AM 2/15/2010, you wrote:

>I stopped taking the synthroid because I was feeling worse and worse while

>taking it, I felt so much better once I stopped taking it and I will not

>take it again. I have been off it for almost a month now. I started

>taking the Iodine about a month before stopping the synthroid, I added the

>other supplements one at a time. I also learned I am anemic, so I guess

>it could be that too.

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

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So far haven't found a doc who will prescribe natural thyroid. I honestly think

I have Hashimotos and Celiac and can see a pattern over the last 8 or so years

of hypo, hyper, hypo, hyper, hypo. I went gluten free 6 months ago and while

not back to normal do feel better without gluten, have a reaction when I

accidentally get glutened. The labs tested for Hashimoto's and I will get those

numbers soon.

> >I stopped taking the synthroid because I was feeling worse and worse while

> >taking it, I felt so much better once I stopped taking it and I will not

> >take it again. I have been off it for almost a month now. I started

> >taking the Iodine about a month before stopping the synthroid, I added the

> >other supplements one at a time. I also learned I am anemic, so I guess

> >it could be that too.

> >

>

>

>

>

> ~~~ There is no way to peace; peace is the way ~~~~

> --A.J. Muste

>

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Are you taking sufficient amounts of unrefined salt?  How much magnesium is in your supplement?  Are you dehydrated?~WOn Sun, Feb 14, 2010 at 5:15 PM, Bussey <seanandkaty@...> wrote:

 

I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc, a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I stopped taking Synthroid.  Now I am dizzy all the time, is it related?  I had labs drawn and am waiting for the results.

 -Undiagnosed Asperger's SyndromeStay at home mom to 3, Wife to -6-6-02-Autism Spectrum, the light of my lifeKaty-11-19-03-undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joy

J.D-no issues except he is totally in love with mommy, cutest baby in the

worldvisit my blog http://busiestmommyinamerica.blogspot.com " If you think my hands are full, you should see my heart! "

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I don't have any answers for you on the dizziness, but I'd suggest re-evaluating the omega 3-6-9. Our toxicoligist made me throw away the 3-6-9. Most people need to sup omega 3... we get way too much omega 6 already and that's not good.

I will say that my son stopped taking his synthroid a couple of weeks ago and he's often dizzy now. Not sure if that's cause and effect or coincidental, but it's interesting to note that you're expriencing the same thing.

From: Bussey <seanandkaty@...>iodine Sent: Sun, February 14, 2010 4:15:02 PMSubject: dizziness

I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc, a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I stopped taking Synthroid. Now I am dizzy all the time, is it related? I had labs drawn and am waiting for the results.

-Undiagnosed Asperger's SyndromeStay at home mom to 3, Wife to -6-6-02- Autism Spectrum, the light of my lifeKaty-11-19-03- undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joyJ.D-no issues except he is totally in love with mommy, cutest baby in the worldvisit my blog http://busiestmommy inamerica. blogspot. com"If you think my hands are full, you should see my heart!"

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I used to frequently feel dizzy before I started getting treated for

hypothyroid. I strongly suggest NOT giving up your thyroid hormone supplement.

--

At 12:25 AM 2/23/2010, you wrote:

> I don't have any answers for you on the dizziness, but I'd suggest

> re-evaluating the omega 3-6-9. Our toxicoligist made me throw away the

> 3-6-9. Most people need to sup omega 3... we get way too much omega 6

> already and that's not good.

>

>I will say that my son stopped taking his synthroid a couple of weeks ago

>and he's often dizzy now. Not sure if that's cause and effect or

>coincidental, but it's interesting to note that you're expriencing the

>same thing.

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

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Agreed. We need Omega 3 and 9. My ND said that when the analyzed arterial placque it was made up of Omega 6. Wierd.

Jag.

From: Engel <rre831@...>Subject: Re: dizzinessiodine Date: Tuesday, February 23, 2010, 1:25 AM

I don't have any answers for you on the dizziness, but I'd suggest re-evaluating the omega 3-6-9. Our toxicoligist made me throw away the 3-6-9. Most people need to sup omega 3... we get way too much omega 6 already and that's not good.

I will say that my son stopped taking his synthroid a couple of weeks ago and he's often dizzy now. Not sure if that's cause and effect or coincidental, but it's interesting to note that you're expriencing the same thing.

From: Bussey <seanandkaty>iodinegroups (DOT) comSent: Sun, February 14, 2010 4:15:02 PMSubject: dizziness

I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc, a daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I stopped taking Synthroid. Now I am dizzy all the time, is it related? I had labs drawn and am waiting for the results.

-Undiagnosed Asperger's SyndromeStay at home mom to 3, Wife to -6-6-02- Autism Spectrum, the light of my lifeKaty-11-19-03- undiagnosed genetic syndrome that includes cleft palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low muscle tone, developmental delay, oral defensiveness, g tube fed part time-working on oral feeding, slightly dysmorphic features, and my joyJ.D-no issues except he is totally in love with mommy, cutest baby in the worldvisit my blog http://busiestmommy inamerica. blogspot. com"If you think my hands are full, you should see my heart!"

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Because through their genetic (DNA-genes) makeup, they carry (have passed on) the TRAIT for a weakness/susceptibility to an autoimmune dysfunction.....

It doesn't mean they will 100% get the disease/disorder, but the marker has been passed on, and if the right circumstances come along that permit it to develop, they will get it (whatever it is)........

Blessings, MargaretA man is what he thinks about all day long...Great men are they who see that the spiritual is stronger than any material force, that thoughts rule the world....Ralph W. Emerson

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I plug my nose as I drink the warm water with salt. You might try that. It is better to get your salt load through the warm water. It is more effective I have found out. Then to keep drinking clean clear water throughout the day.Works for me. Just a suggestion. Anything I don't like the taste I plug my nose and guzzle. from IllinoisFrom: wendy 56789

<wendy56789@...>iodine Sent: Tue, February 23, 2010 2:12:34 PMSubject: Re: Re: dizziness

I buy mine here, but you can get unrefined salt just about anywhere these days. Just pay attention and read the labels to see how they get their salt. http://saltworks. us/My current favorite is the Himalayan salt. Most people take their salt in water (1/2 tsp in a glass I think), but that makes me ill, so I heavily salt my food and also make my own capsules and take it that way. I get dizzy if my magnesium drops too low. I take a minimum of 400 mg.

Just as a disclaimer, I've never been on thyroid meds, so I have no idea if stopping that could be causing your dizziness.~WOn Tue, Feb 23, 2010 at 9:24 AM, <seanandkaty> wrote:

400 mg of magnesium. I don't know if I am getting enough salt, I can't find the right kind of salt to buy. Do you have a web source for a good salt? How much should I be getting and how do I take it?

>

> >

> >

> > I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc, a

> > daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I stopped

> > taking Synthroid. Now I am dizzy all the time, is it related? I had labs

> > drawn and am waiting for the results.

> >

> > -Undiagnosed Asperger's Syndrome

> > Stay at home mom to 3, Wife to

> > -6-6-02- Autism Spectrum, the light of my life

> > Katy-11-19-03- undiagnosed genetic syndrome that includes cleft

> > palate-Pierre Robin Sequence, scoliosis, heart defects, short stature, low

> > muscle tone, developmental delay, oral defensiveness, g tube fed part

> > time-working on oral feeding, slightly dysmorphic features, and my joy

> > J.D-no issues except he is totally in love with mommy, cutest baby in the

> > world

> > visit my blog http://busiestmommy inamerica. blogspot. com

> > "If you think my hands are full, you should see my heart!"

> >

> >

> >

> >

> >

> >

>

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...By warm, do you mean room temperature? Or do you actually heat the

water?

Thanks,

Sherry

> >

> >>>

> >>> >

> >>> >

> >>> > I started taking 12.5mg of idoral, 200mcg of selenium, a cal-mag-zinc, a

> >>> > daily multiple, vt d3 and an omega 3-6-9 about 3 weeks ago when I

stopped

> >>> > taking Synthroid. Now I am dizzy all the time, is it related? I had

labs

> >>> > drawn and am waiting for the results.

> >>> >

> >>> > -Undiagnosed Asperger's Syndrome

> >>> > Stay at home mom to 3, Wife to

> >>> > -6-6-02- Autism Spectrum, the light of my life

> >>> > Katy-11-19-03- undiagnosed genetic syndrome that includes cleft

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>

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Once cattle stopped grazing on grass and, instead, were given grains for feed,

the Omega fat content of their meat changed from Omega 3 to Omega 6. If we buy

" Grass-fed Beef, " it's like eating fish because of the Omega 3 content. In

addition, we get the 6's from ALL the vegetable oils we consume and that are

used in commercial products.

You are right; we get WAY too much Omega 6 and need to supplement with 3's.

Beverly

>

>

> From: Engel <rre831@...>

> Subject: Re: dizziness

> iodine

> Date: Tuesday, February 23, 2010, 1:25 AM

>

>  I don't have any answers for you on the dizziness, but I'd suggest

re-evaluating the omega 3-6-9.  Our toxicoligist made me throw away the

3-6-9.  Most people need to sup omega 3... we get way too much omega 6 already

and that's not good.

>  

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I occasionally have dizziness and I do a neti pot cleanse of my sinuses with sea

salt. That does help me quite a bit. The cold weather effects my sinuses and

drys them out a bit. The water and salt plumps them back up and the dizziness

goes away.

Just a thought... JOT

>  I don't have any answers for you on the dizziness, but I'd suggest

re-evaluating the omega 3-6-9.  Our toxicoligist made me throw away the

3-6-9.  Most people need to sup omega 3... we get way too much omega 6 already

and that's not good.

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Yes, and those oils are all damaged in all commercial products..

Bruce

----- Original Message -----

From: Beverly53

Once cattle stopped grazing on grass and, instead, were given grains for

feed, the Omega fat content of their meat changed from Omega 3 to Omega 6.

If we buy " Grass-fed Beef, " it's like eating fish because of the Omega 3

content. In addition, we get the 6's from ALL the vegetable oils we consume

and that are used in commercial products.

You are right; we get WAY too much Omega 6 and need to supplement with 3's.

Beverly

Commonly asked questions: http://tinyurl.com/yhnds5e

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