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Given your medical history and your son having autism, if it were me, I would try going gluten, dairy, and soy free. Gluten causes all kinds of problems with adrenals, thyroid, and hormones in general. The diet may also help your son. There is strong evidence of this. A good group for the gluten and dairy free diet is gfcfrecipes and may of the folks there are also soy free. If your body is fighting gluten it will affect all of the medications, supplements, and other healing modalities. It wasn't till I was off both dairy and gluten that I started to recover though my symptoms manifested differently. I'm now pretty much soy free as well and finally doing better. I tried iodine before getting those foods out of my diet to no avail. This time I see major improvement. Just an idea to think about. Tressler Healthy

Transitions Life Coaching 541-791-1464 Help raise funds for Legacy Land Conservancy by searching the internet or shoping online with GoodSearch (www.goodsearch.com).

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Kim,

There is a hypopituitary group and the moderator's name is Chrispy and she

lives in Australia also. It would not hurt to join that group and see if Chrispy

has any insight for you. My heart goes out to you and I wish you the best.

Patti

>

> Hi everyone

>

>

>

> I have been on the group for over 18months and have learnt so much -

> thankyou and all. I would really love some advice/input as I'm

> desperate. I have a really long story but will try to be as concise as I

> can. I live in Australia.

>

>

>

> I had asthma as a child, lived on inhalers and at 8yrs had ITP, an

> autoimmune condition where my platelets destroyed themselves. It came on

> suddenly after a virus and penicillin. I was treated with Prednisone for a

> year and it resolved. I was always more tired than others and caught many

> colds, bronchitis etc. This got pretty bad in my teens and while at

> university. At 19 I had an appendectomy and was diagnosed after with chronic

> fatigue. Got married at 21. At 23 had first baby (girl) and my sister died

> in a car crash. At 26 had another baby (boy) and at 28 just as I was

> pregnant again (this was a shock, but lovely little boy now) found that this

> second child was severely autistic. A year later I then started to have

> panic attacks and vomiting attacks which I know now was related to low

> cortisol and hypothyroidsism. I lost a lot of weight and am really (too)

> thin.

>

>

>

> I then went to many Drs on a search. I eventually worked out myself that I

> had adrenal insufficiency. Unfortunately an ENT put me on a 10day course of

> prednisone steroids and on the 11th day I couldn't get out of bed with a

> weak shaking leg symptom I know now to be pituitary suppression, also got

> whole body psoriasis. I found a natural Dr who treated me with armour and

> adrenal glandulars but I didn't improve. I improved slightly when put on

> 20mg HC but have still not been well with gut issues, heavy metals etc. My

> ASD son didn't sleep through night till he was 7 so I had severe sleep

> deprivation.

>

>

>

> For 2 years now I have seen a Dr who really targeted my hypo and worked to

> get right dose of sustained release T3 and iodine 25mg into me. However a

> bizarre thing happened and my pituitary (ACTH) started to keep going into

> suppression. So I had to reduce HC over the last year from 20mg to 17.5 to

> 15mg etc. After reducing by 2.5 mg each time I would come good for 3 weeks

> then go into suppression again. Now after not being on any HC for a month I

> started to dip and Dr did a salivary cortisol which showed adrenals to still

> be in a terrible way and this has been 7 years. He said my adrenals couldn't

> tolerate T3 and took me off last week and started me back on 8mg HC and I've

> absolutely crashed. He says the long term stress of my autistic child isn't

> helping. (We have travelled to US for treatment and treat biomedically,

> chelate etc which is a lot of effort and $) I'm not sure what to do about my

> 25mg iodoral which I felt helped hugely w migraines/PMT. Has anyone ever

> experienced this suppression problem? I gather my hypothalamic pituitary

> adrenal axis is dysfunctional, it's all so complex.

>

>

>

> Kind regards and thanks for any help/ideas as I'm almost bed bound again at

> moment,

>

> Vicki (in Australia)

>

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  • 1 month later...

You could order the adrenal saliva test from Genova Diagnostics to see. this

will show you what your cortisol levels are like

Sheila's posted this before but if you order via TPA you get a discount on the

standard price.

Please see this link for details how to order:

http://f1.grp.fs.com/v1/AGAJS8bMSUBGYALF3Haq9_bfAfirSC6f1wTeEkZd_m2hI9qJX_Y\

dAM2wCbdJsZE_tfp44wbjSKNVb3Ljdxs8-mBs95OOP2zemvmKhfA/DISCOUNTS%20ON%20SUPPLEMENT\

S/GENOVA%20DISCOUNTS%20ON%20TESTS.doc

oncey you get your results, you can post them on here and someone will advise

you. For a second opinion you could also post on the Adrenals board:

NaturalThyroidHormonesADRENALS/

chris

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If I have the salivary test and the full thyroid screen done and take the results to my endo, will he take any notice of them? He has already discounted every other piece of information I have put in front of him. If the tests are accredited and tell the truth, but the NHS choose not to recognise them, is there any point in carrying on with the NHS endo?

He has already said that there is categorically nothing hormonally wrong with me and the only thing that he can think of that would account for my symptoms is some form of diabetes that doesn’t show up on the usual tests, although I have none of the usual symptoms of diabetes and no family history. He has ordered an oral glucose tolerance test, for which there is a two month wait on the NHS. I think this tells me that diabetes is his comfort zone.

D

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>

> If I have the salivary test and the full thyroid screen done and take the

results to my endo, will he take any notice of them?  He has already discounted

every other piece of information I have put in front of him.

probably not? but perhaps your adrenals won't be too badly hit and you can get

better with the NAE and not HC? if you did need HC you could talk to someone

like Dr P who could advise you.

chris

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This is one of the reasons why we mention that many of our

members may need to take their thyroid and adrenal health into their own hands,

because the NHS understand neither. The test results from a 24 hour salivary

adrenal profile would show YOU whether there was a problem and then YOU can

decide what you need to do about it. Your thyroid hormone will not work if you

have low adrenal reserve - your NHS doctor will be unable to help you, but you

might persuade the endocrinologist that there really is a problem. Go to our

FILES section and take the information about Genova along with your test

results to show him/her and take it from there.

Luv - Sheila

>

> If I have the salivary test and the full thyroid screen done and take the

results to my endo, will he take any notice of them? He has already

discounted every other piece of information I have put in front of him.

probably not? but perhaps your adrenals won't be too badly hit and you can get

better with the NAE and not HC? if you did need HC you could talk to someone

like Dr P who could advise you.

chris

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The majority of NHS endocrinologists have diabetes as their

specialty, there are VERY few who study thyroid disease. To be frank, I would

not see this particular endoprat again. I have sent you a list of doctors who

know a bit more about thyroid disease than him. The thyroid gland function

tests ONLY test the function of the thyroid gland to see whether it is putting

out too little, too much or just enough thyroid hormones. They DO NOT test to

see whether the thyroid hormone being produced is actually getting into the

cells. There are thousands who are suffering from peripheral thyroid hormone

deficiency. Ask your endocrinologist what he knows about that - I bet

absolutely nothing, even though there has been scientific evidence to show this

for the last 40 odd years.

Luv - Sheila

If I have the salivary test

and the full thyroid screen done and take the results to my endo, will he take

any notice of them? He has already discounted every other piece of

information I have put in front of him. If the tests are accredited and tell

the truth, but the NHS choose not to recognise them, is there any point in

carrying on with the NHS endo?

He has already said that

there is categorically nothing hormonally wrong with me and the only thing that

he can think of that would account for my symptoms is some form of diabetes

that doesn’t show up on the usual tests, although I have none of the usual

symptoms of diabetes and no family history. He has ordered an oral

glucose tolerance test, for which there is a two month wait on the NHS. I

think this tells me that diabetes is his comfort zone.

D

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found in this incoming message.

Checked by AVG - www.avg.com

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19:40:00

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when speaking to the endo.If you talk about adrenal reserve and that the

salivary cortisol test is accurate for that(quote a bit of stuff about

genova)and hopefully he may listen

failing that go see dr peatfield as he will be able to understand what you are

saying and get you going in the right direction...all an endo can do is give you

hc or whatever but if its not needed dr peatfield has other ways of treating

it!!!

also there are other thyroid doctors you can see that will be able to listen

more about your symptoms than your actuall doseages and blood tests ect!!!

good luck

Dan

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  • 4 months later...
Guest guest

http://www.digitaljournal.com/article/286390

WHO recognizes adrenal fatigue syndrome as real ailment

Posted Jan 25, 2010 by â–  Dearing

The World Health Organization has just acknowledged that adrenal fatigue syndrome, which is caused by long-term stress, should be considered a real physical state of ill health.

By Taliesin/morguefile

A woman looking tired or stressed

First coined by chiropractor and naturopath , Adrenal Fatigue - otherwise known as 21st Century Syndrome - is now a real ailment. It is believed the cause of Adrenal Fatigue is stress. Not any ordinary stress, no sir. The stress of the world. Think about it -- everyday you are exposed to the multiple horrors of bad news. Another pedestrian died in Toronto; 140,000 people estimated dead in Haiti after the earthquake. Osama Bin Laden keeps threatening to kill Americans. Back in the 1970's and 1980's, Dr. uncovered a common thread in his patients that eventually led him to coin the cluster of seemingly unrelated symptoms Adrenal Fatigue, or 21st Century Syndrome. Symptoms include feeling "... tired for no reason; having trouble getting up in the morning; need coffee, colas, salty or sweet snacks to keep going; feeling run down and stressed."

What happens, explained in a recent blog post, is a chain reaction of normal human physiological response to stress factors that have no let-up. The non-stop barrage creates a situation where adrenal fight-or-flight reaction in the body becomes a normal state of being -- until the adrenals are depleted. If not stopped, the body's stress reaction becomes itself a stressor on the body and you become fatigued. Dr. offers an on-line quiz to help people assess whether or not they might be suffering from 21st Century Syndrome. estimates that at any given time, up to 80 percent of the population in industrialized nations are experiencing adrenal fatigue. However, while the medical profession has known about the effects of stress on people, adrenal fatigue was not accepted as a diagnosis. An astonishingly wide variety of illnesses or physical conditions in people have been linked to stress: infertility, high blood pressure, sleeplessness ... along with a host of other disorders, including mental health. However, now that the World Health Organization (WHO) has recognized adrenal fatigue syndrome as being a real condition, it is likely that your doctor might acknowledge the syndrome in the near future. Sources of stress include post-traumatic stress following accidents, marital stress, work-related stress, and depression or anxiety due to job loss, widowhood or adjustment to retirement. However, there are more sources of stress than one can shake a stick at, and some stresses have more negative impact than others. Work-related stress, for example, is the number one source of stress for the majority of people in industrialized nations. If your doctor is still behind the times on the topic of adrenal fatigue syndrome, don't stress out! Dr. recommends eating healthy foods and ensuring intake of vitamins and minerals; cutting back on junk foods, sugar and caffeine; and regular exercise. His blog offers other tips and ideas to help cope with stress.

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Here's the article :http://www.digitaljournal.com/article/286390 Think I'll show it to my EndoWHO recognizes adrenal fatigue syndrome as real ailment

By Dearing.

Jan 25, 2010 by â–  Dearing The World Health Organization has just acknowledged that adrenal fatigue syndrome, which is caused by long-term stress, should be considered a real physical state of ill health.

First coined

by chiropractor and naturopath , Adrenal Fatigue - otherwise known as 21st Century Syndrome - is now a real ailment. It is believed the cause of Adrenal Fatigue is stress. Not any ordinary stress, no sir. The stress of the world. Think about it -- everyday you are exposed to the multiple horrors of bad news. Another pedestrian died

in Toronto; 140,000 people estimated dead in Haiti after the earthquake. Osama Bin Laden keeps threatening to kill Americans. Back in the 1970's and 1980's, Dr. uncovered a common thread in his patients that eventually led him to coin the cluster of seemingly unrelated symptoms Adrenal Fatigue, or 21st Century Syndrome. Symptoms include

feeling "... tired for no reason; having trouble getting up

in the morning; need coffee, colas, salty or sweet snacks to keep going; feeling run down and stressed." What happens, explained in a recent blog

post, is a chain reaction of normal human physiological response to stress factors that have no let-up. The non-stop barrage creates a situation where adrenal fight-or-flight reaction in the body becomes a normal state of being -- until the adrenals are depleted. If not stopped, the body's stress reaction becomes itself a stressor on the body and you become fatigued. Dr. offers an on-line quiz to help people assess whether or not they might be suffering from 21st Century Syndrome.

estimates that at any given time, up to 80 percent of the population in industrialized nations are experiencing adrenal fatigue. However, while the medical profession has known about the effects of stress on people, adrenal fatigue was not accepted as a diagnosis. An astonishingly wide variety of illnesses or physical conditions in people have been linked to stress: infertility, high blood pressure, sleeplessness ... along with a host of other disorders, including mental health. However, now that the World Health Organization (WHO) has recognized

adrenal fatigue syndrome as being a real condition, it is likely that your doctor might acknowledge the syndrome in the near future. Sources

of stress include post-traumatic stress following accidents, marital stress, work-related stress, and depression or anxiety due to job loss, widowhood or adjustment to retirement. However, there are more sources of stress than one can shake a stick at, and some stresses have more negative impact than others. Work-related stress, for example, is the number one source of stress for the majority of people in industrialized nations.

If your doctor is still behind the times on the topic of adrenal fatigue

syndrome, don't stress out! Dr. recommends eating healthy foods and ensuring intake of vitamins and minerals; cutting back on junk foods, sugar and caffeine; and regular exercise. His blog offers other tips and ideas to help cope with stress.

>> Just read in a health magazine that 'adrenal fatigue' has just been recognised by the World Health Organisation. I will do some research but this could be a breakthrough for us. Keri x>

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> Just read in a health magazine that 'adrenal fatigue' has just been recognised

by the World Health Organisation. I will do some research but this could be a

breakthrough for us. Keri x

>

I really hope this is a step in the right direction, having being afflicted

myself!

I thought by the way you said it, that it was new this March or something. Yet I

did a search and found this, dated Jan 25th 2010.

http://www.digitaljournal.com/article/286390

" However, now that the World Health Organization (WHO) has recognized adrenal

fatigue syndrome as being a real condition, it is likely that your doctor might

acknowledge the syndrome in the near future. "

The article talks a lot about work-related stress.

So it must be true, but kept quiet somehow if you know what I mean.

Fiona

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Guest guest

http://www.dailymail.co.uk/femail/article-1242219/Tired-Irritable-Sex-drive-low-\

Are-suffering-21st-Century-syndrome.html

http://www.nutrima.co.uk/archives/61

So yeah a few places like the above examples mention that WHO recognise adrenal

fatigue now, and facebook and blogs mention it. Yet somehow it's not filtered

down to mainstream medicine.

Fiona

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Guest guest

Ian, we need to find the link to where it appears in the WHO web

site. The link you gave only goes to 'Digital Journal' who tell us that WHO now

recognise adrenal fatigue syndrome.

·

" The World Health Organization has just acknowledged that

adrenal fatigue syndrome, which is caused by long-term stress, should be

considered a real physical state of ill health "

I am in the process of composing a letter to send to all UK endocrinologists.

I would like to cite a reference to this as it is a well known fact that NHS

endocrinologists/GPs do not/will not recognise that such a syndrome exists.

They ONLY recognise primary adrenal insufficiency.

Luv - Sheila

Here's the article :

http://www.digitaljournal.com/article/286390

Think I'll show it to my Endo

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Guest guest

Here was the original article in The Daily Mail http://www.dailymail.co.uk/femail/article-1242219/Tired-Irritable-Sex-drive-low-Are-suffering-21st-Century-syndrome.html

Sheila

I might be looking in the wrong place, but I

just went on to the WHO website to find the info straight from the original

source, but I couldn't find anything from 2010 that related to adrenal fatigue.

Perhaps I'm not searching properly. Here is the website. Can anyone else find

the original article from WHO???? http://www.who.int/en/

Here is the european wing of the WHO http://www.euro.who.int/

Hope someone can shed more light on this than me!

>

> Just read in a health magazine that 'adrenal fatigue' has just been

recognised by the World Health Organisation. I will do some research but this

could be a breakthrough for us. Keri x

>

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Guest guest

Also, Comment No. 2 was very interesting in The Daily Mail

article. I cannot copy and paste from there for some reason.

Luv - Sheila

Here was the original article in The

Daily Mail http://www.dailymail.co.uk/femail/article-1242219/Tired-Irritable-Sex-drive-low-Are-suffering-21st-Century-syndrome.html

Sheila

I might be looking in the wrong place, but I just went on to the WHO website

to find the info straight from the original source, but I couldn't find

anything from 2010 that related to adrenal fatigue. Perhaps I'm not searching

properly. Here is the website. Can anyone else find the original article from

WHO???? http://www.who.int/en/

Here is the european wing of the WHO http://www.euro.who.int/

Hope someone can shed more light on this than me!

>

> Just read in a health magazine that 'adrenal fatigue' has just been

recognised by the World Health Organisation. I will do some research but this

could be a breakthrough for us. Keri x

>

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18:32:00

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Guest guest

Doesn't appear to have filtered down to 'WHO' either, unless we

can prove this wrong and produce a link so we can all accept this as fact.

Luv - Sheila

http://www.dailymail.co.uk/femail/article-1242219/Tired-Irritable-Sex-drive-low-Are-suffering-21st-Century-syndrome.html

http://www.nutrima.co.uk/archives/61

So yeah a few places like the above examples mention that WHO recognise adrenal

fatigue now, and facebook and blogs mention it. Yet somehow it's not filtered

down to mainstream medicine.

Fiona

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Guest guest

I agree Sheila. I can't find it now, but I found another forum that had a

similar thread about WHO and adrenal fatigue. Turned out that nobody could find

the direct WHO link on that forum either.

P xo

>

> Doesn't appear to have filtered down to 'WHO' either, unless we can prove

> this wrong and produce a link so we can all accept this as fact.

>

> Luv - Sheila

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Guest guest

I couldn't use that information then, this is such a shame. I

wonder where the Daily Mail got that information in the first place - or didn't

even they check it out to find whether it was true or not. Anybody can say

anything on the Internet and make people believe it, but this is why we badly

need that link on the WHO web site.

Anybody else had any luck please. I know I spent a fair bit of

time in the early hours of this morning trying to find something.

Luv - Sheila

I agree Sheila. I can't find it now, but I

found another forum that had a similar thread about WHO and adrenal fatigue.

Turned out that nobody could find the direct WHO link on that forum either.

P xo

>

> Doesn't appear to have filtered down to 'WHO' either, unless we can prove

> this wrong and produce a link so we can all accept this as fact.

>

> Luv - Sheila

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Guest guest

Sheila, don't know if this is the right person, but googled to find:

digitaljournal.com/user/360214

which has a Contact tab.

Hans

>

> Does anybody know how to get Dearing's email address. We need to

> find out from her where she got the information that WHO now accept adrenal

> fatigue as a diagnosis. She is described as a 'Digital Journalist'

Luv - Sheila

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Guest guest

This may be the source but don't expect a reference to it from the STAR in

Toronto.

[The World Health Organization has just this year recognized a new syndrome,

which they're calling " 21st century disease. " The technical name is adrenal

fatigue, the result of the adrenal glands being overworked from producing excess

quantities of cortisol during brief flashes of high stress]

<><>

In a way, I find it more disturbing that Royal Caribbean acted thoughtfully,

after careful consideration. The only answer to catastrophe is to keep going, it

seems. The only solution is to speed up through the turbulence, to try to push

through until we arrive at a place of calm fluid motion. Maybe we'll survive the

ride. Maybe not.

Marche is a novelist and the culture columnist at Esquire Magazine. Go

to marche.com.

http://www.thestar.com/news/insight/article/754756--earthquakes-cruise-liners-an\

d-the-age-of-precariousness

WHO may have (in fact) begun to address these issues ~ as the MoD has recently

offered £2m for treating soldiers with PTSD and other mental ill- health

problems ( BBC News this evening 2nd April )

I would have thought the British military might have known something about this

problem from the 1st World War when our troope were shot for cowardice if they

got shell shock whilst the officers were just sent home on 'sick leave' for the

same condition.

Bob

> >

> > Does anybody know how to get Dearing's email address. We need to

> > find out from her where she got the information that WHO now accept adrenal

> > fatigue as a diagnosis. She is described as a 'Digital Journalist'

>

> Luv - Sheila

>

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Guest guest

See what the Mayo Clinic Doctor Nippoldt says;-

http://www.mayoclinic.com/health/adrenal-fatigue/AN01583

Bob

> >

> > Does anybody know how to get Dearing's email address. We need to

> > find out from her where she got the information that WHO now accept adrenal

> > fatigue as a diagnosis. She is described as a 'Digital Journalist'

>

> Luv - Sheila

>

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Guest guest

Hi Hans - I found that also, but when you click 'contact' it

says " you need to be a registered user to contact other users " . Seems

she doesn't wish to be contacted easily. http://www.digitaljournal.com/user/360214

Luv - Sheila

Sheila, don't know if this is the right person,

but googled to find:

digitaljournal.com/user/360214

which has a Contact tab.

Hans

>

> Does anybody know how to get Dearing's email address. We need to

> find out from her where she got the information that WHO now accept

adrenal

> fatigue as a diagnosis. She is described as a 'Digital Journalist'

Luv - Sheila

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Guest guest

Haha Bob,

That link is hilarious. He fails to mention that 's is TOTAL adrenal

failure.

I also like the bit where he says:

" Unproven remedies for so-called " adrenal fatigue " may leave you feeling sicker,

while the real cause — such as depression or fibromyalgia — continues to take

its toll. "

Because of course they know the 'real' causes of depression and fibromyalgia!

> See what the Mayo Clinic Doctor Nippoldt says;-

>

> http://www.mayoclinic.com/health/adrenal-fatigue/AN01583

>

>

> Bob

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Guest guest

Is there any wonder we are all left suffering unnecessarily - he

obviously knows little and hasn't even bothered to do research, which is the

problem with the majority of doctors - probably because they have little time

to research, but he has had time to write what he has. Hmm!

Luv - Sheila

See what the Mayo Clinic Doctor Nippoldt says;-

http://www.mayoclinic.com/health/adrenal-fatigue/AN01583

Bob

>

> Sheila, don't know if this is the right person, but googled to find:

>

> digitaljournal.com/user/360214

>

> which has a Contact tab.

>

> Hans

>

>

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Guest guest

Hi Sheila, there is a 'contact me' button on her blog http://www.digitaljournal.com/user/360214 thyroid treatment From: sheila@...Date: Fri, 2 Apr 2010 17:42:49 +0100Subject: RE: Re: Adrenal fatigue

Does anybody know how to get Dearing's email

address. We need to find out from her where she got the information that WHO

now accept adrenal fatigue as a diagnosis. She is described as a 'Digital

Journalist'

Luv - Sheila

I agree Sheila. I can't find it now, but I

found another forum that had a similar thread about WHO and adrenal fatigue.

Turned out that nobody could find the direct WHO link on that forum either.

P xo

>

> Doesn't appear to have filtered down to 'WHO' either, unless we can prove

> this wrong and produce a link so we can all accept this as fact.

>

> Luv - Sheila

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