Hi Everyone

October 28, 1998

Annie and Jim.

My name is and I am 25. I live in NJ and got bitten at 15. I was

also on home instruction. I had to first go to community college since I was

too ill to go away. That was no big deal, I was just excited to be going to

school. I did get well enough to transfer to a four year college. I would

like to tell you both how I made it through. I graduated Dec 1996. When I

first transferred to a four year college I was studying all the time. I was

still not keeping up. I was failing my first semester at school. Frightened

( If I can't maintain a c average I get kicked out) I sought some help at the

school. It was a service to help students that are having problems with

school. The women in charge told me that I had a learning disability because

of the lyme. (poor concentration, short term memory loss) I took advantage

of the services offered to me. I had tutors in the classes that gave me the

most trouble. This helped a lot. I also saw a neurologist and he thought my

problems were related to the lyme. He put me on ritilan. The combination of

the ritlian, tutors, and sleeping as much as I could really helped me. I did

a lot less parting and much more studying than my friends, but it was a small

price to pay. I had a positive college experience and happy that help was out

there. I don't know if this will help you guys, but I thought I would share.

Annie if your not ready to go away then community college is a great

alternative. You will be ready if not next year, then the year after. If

either of you would like to talk please feel to.

Take care,

October 28, 1998

Jim,

My name is Annie, I live in CA and have had Lyme now for 11 years, I

got bit when I was 6 and am now 17. Although I have always managed to keep

on treatment since I was diagnosed, I went undiagnosed for 6 years and

therefore untreated. This is my 4th year of high school and I have only

made it through one full year, the rest have been home school. I know what

you mean about feeling 80, but I have decided that if I have all the

illnesses that a 80 year old has now then by the time I am 80 I should feel

like a teenager again. I know it is hard, especially when you are trying to

get an education.

I am going down hill at this point, it always seems to work that

way. I get treated and then feel better for a few months and then go down

hill again. I am hoping to go off to college next fall but unless I feel

better, it isn't going to happen. My worst symptom right now is severe pain

throughout my body. My Doc proscribed pain pills but I seem to be allergic

to all of them. I also have insomnia. Its not horrible right now, I manage

to sleep at least a few hours every night, but I have had it bad in the

past. It is a horrible feeling because your mind and body are so worn out

and you want to sleep desperatly but you can't. I don't know what to

suggest to make this go away unless you can see a Dr. and have him proscribe

some sleeping pills. I would be glad to talk to you, it helps to have

someone that understands to talk to, especially if they are closer in age.

I wish you the best of luck.

Love,

Annie hughes@...

>At the age of 16, I was forced to drop out of my high scholl because,

>without the Dr.'s notes that cost so much, I could no longer get home

>instruction, everyday since then has been a battle for me, at 24 yrs old

>I feel like I am 80! I am in college now, and my lymes complicates my

>education something drastic. Its been a good 6 yrs since I have even

>been to the Dr.'s, and it seems like everyday I notice more and more

>things wrong with me, Medicaid turned me down, along with social

>security dissablilty because they said that I make too much money, which

>is a news flash to me..lol.

>

>Sorry I dont want to ramble, Right now my biggest complaint is insomnia,

>there are time when I do not sleep for 48+ hrs, Depression has entered

>my life due to lymes, and it without treatment for that, this whole

>fight seems like a losing battle anymore.

>

>I am glad I found a group like this, I just hope that this posting gets

>entered properly..lol

>

>Jim

>

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October 29, 1998

Hi Jim,

You are posting just fine! I'm sorry to hear your story, a sad but familiar

one. Be proud of yourself for all you have accomplished, despite this

disease. I wish you the best of luck with your health and your education.

Welcome to this group. I'm sure you will find some wonderful people here and

lots of support and understanding!

Take care,

Hugs,

Chrissy Ü

<< I hope I am posting this properly : ) My name is Jim and I live in NJ, I

just signed up for this list because I have had Lyme disease for 8 yrs

now. I got bitten by the tick when I was just 16 yrs old, had the

bullseye rash and all. I got treatment in the begining when my family

had insurance, but about 7 yrs ago, my family lost our health coverage.

At the age of 16, I was forced to drop out of my high scholl because,

without the Dr.'s notes that cost so much, I could no longer get home

instruction, everyday since then has been a battle for me, at 24 yrs old

I feel like I am 80! I am in college now, and my lymes complicates my

education something drastic. Its been a good 6 yrs since I have even

been to the Dr.'s, and it seems like everyday I notice more and more

things wrong with me, Medicaid turned me down, along with social

security dissablilty because they said that I make too much money, which

is a news flash to me..lol.

Sorry I dont want to ramble, Right now my biggest complaint is insomnia,

there are time when I do not sleep for 48+ hrs, Depression has entered

my life due to lymes, and it without treatment for that, this whole

fight seems like a losing battle anymore.

I am glad I found a group like this, I just hope that this posting gets

entered properly..lol

Jim

>>

October 30, 1998

Dear Jim, I felt so compelled to write t you. I have lyme, as well as my 18

yr old son and my mother. Its been awful...and my husband died 2 years ago,

and we are on our own, I have a wonderful lawyer here who fought for my

disability for lyme disease.

But he is here in Pennsylvania. I also know that there are physicians who

would probably help you with samples meds etc. if they could.

I don't know if this is legal....but I would take a name of every lyme

literate doctor within a 3 hour drive from you, and make copies of your letter

and mail them to them. I know they always have samples, and most have true

compassion. You need medical help. Perhaps the ER r0om, when things are very

bad, and if they do blood workup and see how sick you are, maybe they can get

help for you also. Write me if I can be of assistance to you in any way.

God Bless,

Gail

October 30, 1998

Jim, I forgot to mention that the symptoms you have from lyme disease should

be addresed as well. My dr has me on antidepressents, as well as an evening

dose of klonopin, helps me sleep and takes away muscle spasms. YOU NEED TO

SEE A LYME DOCTOR,

gAIL

November 1, 1998

Hi Jim, my name is I am 24 too and have had this since I was 18. I

have been I IV twice shots and everything else and always seem to relapse

after a while. I was just interested in finding out if you are on meds now and

what has worked best for you. I know what you mean about the learning

challenge and trying to be abitious in life with such a chronic illness. it is

really difficult. Please write me when you get a chance.

November 5, 1998

From: Prinny328@...