Flu Shot

[Guest guest]

,

That's a hard call - the flu shot this year is not supposed to be a " live " virus

- so it shouldn't cause anyone to get sick. Rob's rheumatologist and

nephrologist both said absolutely no immunizations until he has been off of

steriods for six weeks (that isn't happening anytime soon) - so I really haven't

thought about it much this year. I always get one (I was in the military for

twenty years and was required to have them - never got sick because of one.)

though I was too busy last year and forgot. Good luck.

Val

Rob's Mom (4,systemic)

In a message dated Sun, 28 Oct 2001 11:05:50 AM Eastern Standard Time, " karens

tribe " <nutsomom5@...> writes:

> I was just getting to write a post about the flu shot when i came across

> this one. I or any of my children ever had flu shots. My mom always has but

> i never bothered with the shot. Tabithas school nurse suggested me asking

> her doctor about her getting the flu shot this year.She thinks this will

> help Tabitha not miss as many school days this winter..which i have to laugh

> considering her absences before was never due to the flu, itself. Now i know

> awhile back there was a big discussion on her about the flu shot..and i need

> some opinions on it before i decide to let her get it or not. I need to know

> if this flu shot can cause her to get sick or her arthritis to flare up..she

> has a low immune system as it is. i would appreciate it deeply if some of

> yall can give me some insight on this shot.

> Thanks

> karen and tab(16..poly)

>

>

> From: gazelle34@...

> Reply-

>

> Subject: flu shot

> Date: Fri, 26 Oct 2001 18:23:37 EDT

>

> Abbie had her flu shot today, and we had quite a good conversation about it

> with her pediatrician. We discussed live and inactivated (killed) vaccines.

> I

> had been hearing that there were flu vaccines of both types. Apparently that

> is false. At least this year. It is an inactivated vaccine, so should be

> less

> likely to cause a problem.

>

> Christy

>

>

> _________________________________________________________________

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>

>

>

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>

>

[Guest guest]

My rheumatologist called my mother the other day (I'm in college away from

home) and told her to call me and tell me to get the flu shot as soon as I

can. I usually get it, but last year I didn't and ended up getting the flu,

and then pneumonia, and missing a lot of class and generally being very ill.

With the JRA and the drugs (Enbrel especially) combined, my rheumy thinks

it's better to get the shot than to end up getting really sick.

Elisheva

_________________________________________________________________

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[Guest guest]

Two years ago Ellie got the flu shot with no adverse effects, except that

she didn't like getting the needle. Last year the doctor's office had just

run out of flu shots on the day I brought her in, so we skipped it for that

year. This year when I took her in, she saw me getting my shot first and the

sight upset her so much we didn't dare get her poked.

Does that help?

Gwen, mom to Ellie 5

> Date: Sun, 11 Nov 2001 04:13:02 -0000

> From: " Lori " <lorijane90@...>

> Subject: Flu shot??

>

> Hello To All,

>

> I wanted to ask a question about the flu shot. My son is 23 months

> has been in the hospital twice in the last 6 months once with

> RSV/pneumonia and was in there for 1 month. And with the second was

> once again hospitalized with pneumonia and was in there 1 week. His

> doctors now are insisting on him getting the flu shot. He was also

> just recently suspected to have asthma. My concern is that I have

> heard many stories of the child actually catching the flu after the

> shot. My question is how manyhaven given their child the shot? And

> has anyone had bad experiences with the shot? I want to get as much

> information on it before I give him the shot. I thank everyone in

> advance.

>

> Lori mommy to Wyatt (23 mths DS), and 4 years

[Guest guest]

Two years ago Ellie got the flu shot with no adverse effects, except that

she didn't like getting the needle. Last year the doctor's office had just

run out of flu shots on the day I brought her in, so we skipped it for that

year. This year when I took her in, she saw me getting my shot first and the

sight upset her so much we didn't dare get her poked.

Does that help?

Gwen, mom to Ellie 5

> Date: Sun, 11 Nov 2001 04:13:02 -0000

> From: " Lori " <lorijane90@...>

> Subject: Flu shot??

>

> Hello To All,

>

> I wanted to ask a question about the flu shot. My son is 23 months

> has been in the hospital twice in the last 6 months once with

> RSV/pneumonia and was in there for 1 month. And with the second was

> once again hospitalized with pneumonia and was in there 1 week. His

> doctors now are insisting on him getting the flu shot. He was also

> just recently suspected to have asthma. My concern is that I have

> heard many stories of the child actually catching the flu after the

> shot. My question is how manyhaven given their child the shot? And

> has anyone had bad experiences with the shot? I want to get as much

> information on it before I give him the shot. I thank everyone in

> advance.

>

> Lori mommy to Wyatt (23 mths DS), and 4 years

[Guest guest]

Dave that is great news..Not that you had a bad night but that you are on your last box..I am happy for you....

[Guest guest]

Thanks, I'm not on my last box yet, but I am only

going to make one more pick-up! (that is according to

my plans) -dz-

--- Jannewilms42@... wrote:

> Dave that is great news..Not that you had a bad

> night but that you are on

> your last box..I am happy for you....

>

__________________________________________________

[Guest guest]

In a message dated 10/22/2002 7:44:43 AM Eastern Daylight Time,

writes:

> Fianlly a nurse came on

> and asked when the next infusion was, we said the 29th. She said it was

> too

> late. It had to be two weeks before and two weeks after.

Nettie and both got/will get their flu shot on the day of their

infusion. Since it is a killed virus, there is no reason that it can't be

combined with the IVIG was what our doctors explained to me. Nettie has

never had any problem getting her shot on the same day as her infusion. Our

clinic at the hospital (Immunology/ID) gets the flu vaccines early because

they treat immune compromised children. The hem/onc dept. also get it early

and every kid that is admitted for chemo and hasn't had it yet, gets it on

admission to the floor as a mandatory precaution. That way the vaccine is

active when they become neutropenic a week or two after chemo. I am actually

going to get my shot with on Thursday at the clinic whent he has his

IVIG. It will be my first " shot " of any sort in over 6 years!!! I am

terrified of needles and don't treasure this concept at all. The staff know

I won't voluntarily go get the shot so the doctor wrote a script for me to

get mine at the same time as so I can't go crying out of the room.

Pretty mean and sneaky, but smart and wise at the same time. LOL I can

start an IV, draw an ABG or access a port in any emergency situation with any

one of my children. I love watching the Trauma shows, OR stories, etc and

don't flinch at all at the blood and gore, yet virtually pass out during my

own blood draws and run for dear life at the idea of a shot! I hear you. . .

I am a whimp! LOL

Take Care and God Bless,

Mommy to Annette 12 (Selective Antibody Deficiency-IGG 2 and 4, IVIG x 3

years, CP, Developmental Delay, g-tube, HIV+), 6 (CVID, IVIG x 4

months, brain tumor survivor, severe hearing loss, chronic sinus and ear

infections, asthma, seizure disorder, GERD) and Trayvon 3 (Ivemark Syndrome,

severe congenital heart defects, asplenia, situs inversus) All wonderful!!!!!

<A HREF= " http://www.caringbridge.com/ny/my2angels/ " >Click here: CaringBridge -

my2angels</A>

[Guest guest]

Last year got his shot the same day as he got his IVIG infusion.

They will probably do it again this year, as our local health clinic is

always nervous about it as they don't know much about PIDs.

Wenoka ( - Hyper IgM Syndrome)

[Guest guest]

Well, I wish they would all make up their minds!!

Week 39... oh my goodness you are so close!

Congratulations,

Donna

How are you doing?

[Guest guest]

Well, I wish they would all make up their minds!!

Week 39... oh my goodness you are so close!

Congratulations,

Donna

How are you doing?

[Guest guest]

I am now holding my breath that I can get Abbie well enough and in to see a ped to get the * & %#^ flu shot. She had about 2 weeks with no upper respiratory issues, had her Remicade and here we are back again. During those 2 weeks, I tried to get in to see the ped that Dr. Groh recommended, and they had no well visits until January, and refused to give her the flu shot without having the doctor see her first. So now I am holding my breath praying that she doesn't get it. She has really been in a lot of pain. Whenever she feels the least bit well, she goes full tilt and completely overdoes it. Sound familiar? So we now have to get through the holiday and will hopefully hear about the MRI results on her knee early next week. The rest of our move seems to be a piece of cake compared to this (including our house in Sioux Falls that is STILL on the market). lol

Wow, I didn't know any of that was stuck inside me. Sorry guys. lol

Christy (Abbie, 13 systemic)

[Guest guest]

Hi Christy,

I have talked to you before you moved. We had the same doctor (Dr. Jung). How do you like your new doc? Those flu shots are a necessity. I hope Abbie has good results from her MRI. I also hope you get your house in SD sold. It's always something, isn't it? Have a blessed Thanksgiving.

Barb (e 2yrs, poly)

-----Original Message-----From: gazelle34@... [mailto:gazelle34@...]Sent: Wednesday, November 27, 2002 7:25 AM Subject: Re: flu shotI am now holding my breath that I can get Abbie well enough and in to see a ped to get the * & %#^ flu shot. She had about 2 weeks with no upper respiratory issues, had her Remicade and here we are back again. During those 2 weeks, I tried to get in to see the ped that Dr. Groh recommended, and they had no well visits until January, and refused to give her the flu shot without having the doctor see her first. So now I am holding my breath praying that she doesn't get it. She has really been in a lot of pain. Whenever she feels the least bit well, she goes full tilt and completely overdoes it. Sound familiar? So we now have to get through the holiday and will hopefully hear about the MRI results on her knee early next week. The rest of our move seems to be a piece of cake compared to this (including our house in Sioux Falls that is STILL on the market). lol Wow, I didn't know any of that was stuck inside me. Sorry guys. lolChristy (Abbie, 13 systemic)

[Guest guest]

Thanks Lori for your information regarding NO flu shot while taking Enbrel.

I shall ask my Rheumatologist about that and I might call the Enbrel company

tomorrow and see what they have to say.

xxoo,

Mi. Carmen

[Guest guest]

Good idea to check with your Rhumey I think. Last year I ask mine

about the flu shot and he said by all means for me to get it. And

it is that time again so I shall go to the clinic and get it.

I used to go over and get one at work, but always seemed like I got

a little sick from those shots. I went to the clinic and got one

from the white coats and did not get sick or anything. I am

thinking they had a better grade of flu shot or something maybe.

Dan

[Guest guest]

-I spoke with my doctor about the flu shot and remicade also, he

said to yes take it but NOT the flu nasal mist.

take care,

love Pat from Ma

, I noticed the question about flu shots are coming up again.

[Guest guest]

-I spoke with my doctor about the flu shot and remicade also, he

said to yes take it but NOT the flu nasal mist.

take care,

love Pat from Ma

, I noticed the question about flu shots are coming up again.

[Guest guest]

I totally agree i am just tired of hte false info the display. What about the

mercury in the shot they surely didnt mention that.

<A

HREF= " http://www.theforgotten.com/vaccines " > </A>D<A

HREF= " http://www.vaccinetruth.org/ " >Id you know ?</A>

[Guest guest]

>The shot/flu vaccine is inactivated and you shouldn't get the flu

from it. <

I have had one flu shot and 3 days later I came down with the flu. I hadn't had

the flu in years, and I know without a doubt that it was caused from the flu

shot.

--------------------------------------------------------------------------------

[Guest guest]

Just from my personal experience, I tried to avoid the flu shot like the

plague. I was one that never had a cold/flu, etc... but as soon as I would

get the flu shot, I'd have the symptoms for approximately 2-3 weeks.

Since leaving the military, I've never got one.

Message: 2

Date: Tue, 11 Nov 2003 01:52:07 -0500

From: " Meryl Nass, MD " <mnass@...>

Subject: flu vaccine

In my experience, many patients get sick from the shot for a few days (they

tell you " I got the flu from the flu shot. " )

[Guest guest]

Did you try Tamiflu, the anti-viral drug that you take within 48

hours of first symptoms? It really works, as my dh used it a couple

of years ago.

Sorry you got so sick. My dd with ASD had the flu/pneumonia combo

last year. It was a long miserable 3 weeks, and we won't hesitate to

use Tamiflu if it happens to any of us this year. The most important

thing is to admit you are sick and get the prescription!

Cally

> I have had this years flu. Mine morphed into pneumonia and I almost

died. I

> don't really want to do that again next year but will not willingly

inject

> mercury laden thimerosal vaccine into my body anymore. I know that

there are

> limited quantities of the thimerosal free flu vaccine but have no

idea how

> to find it. Do you guys have any ideas?

>

> Terri Avalon

[Guest guest]

Did you try Tamiflu, the anti-viral drug that you take within 48

hours of first symptoms? It really works, as my dh used it a couple

of years ago.

Sorry you got so sick. My dd with ASD had the flu/pneumonia combo

last year. It was a long miserable 3 weeks, and we won't hesitate to

use Tamiflu if it happens to any of us this year. The most important

thing is to admit you are sick and get the prescription!

Cally

> I have had this years flu. Mine morphed into pneumonia and I almost

died. I

> don't really want to do that again next year but will not willingly

inject

> mercury laden thimerosal vaccine into my body anymore. I know that

there are

> limited quantities of the thimerosal free flu vaccine but have no

idea how

> to find it. Do you guys have any ideas?

>

> Terri Avalon

[Guest guest]

Ellie,

I hadn't heard about this second shot for the flu. Do you have a link for that

specific recommendation from the CDC. I'll need it to get my pediatrician to

give Jon a second one. We have had bad cases of flu around here in children.

At least one child I know of has died already. We have gone into hibernation

mode with .

Roni

[Guest guest]

,

I just read you next post. My Drs. have recommended that everyone in my house

receive a flu shot...with hopes to at least keep the flu out of our house.

cannot receive the flu shot with CVID. He makes antibodies to nothing.

When he was diagnosed at the age of 4, he had made zero antibodies to anything

(he had been up to date on his immunizations at that point because we didn't

know). He had virtually zero IGG, IGM and IGA.

I will say, this will be the first year that I will get my family the flu shots.

It was last year that I asked and you couldn't find a flu shot ANYWHERE! This

year I will be smart and get them early... Luckily, we escaped it last year.

Check with your Dr. to see if he at least recommends the flu shot for the rest

of the family. Good Luck.

Kim (Mom to - CVID)

flu shot

> Hi all,

> I have a question. Now with having CVID, the Dr's don't

> want her to get the flu shot. She doesn't make all her antibodies

> so what is the sense. But even on IVIG how is she protected from

> the flu? She has always gotten her flu shot when she was IgA def,

> and we had to pull her out of school this past winter because of a

> flu epidemic in our schools. So now what happens? this does get

> confusing, trying to learn something new again, it is a whole new

> game going from IgA def, to CVID. What do you all do? Do you get

> he shot and hope it helps of hope the IVIG has some protection in

> it? thanks for the input

> Mom to

>

>

[Guest guest]

This is a very good question, I have been told that and the whole

family need to receive the flu vaccine this year. made antibodies to

the influenza whatever that was on his bloodwork, is this the same thing? Is

that why he should get the shot, because he will be protected from it?

Amy, mom to:

, 20 months old. CVID, MSPI, GERD, Asthma.. on Neocate, prevacid,

claritin, flovent, xopenex, and IVIG sub Q every two weeks (Carimune NF)

flu shot

Hi all,

I have a question. Now with having CVID, the Dr's don't want her to

get the flu shot. She doesn't make all her antibodies so what is the sense. But

even on IVIG how is she protected from the flu? She has always gotten her flu

shot when she was IgA def, and we had to pull her out of school this past winter

because of a flu epidemic in our schools. So now what happens? this does get

confusing, trying to learn something new again, it is a whole new game going

from IgA def, to CVID. What do you all do? Do you get he shot and hope it helps

of hope the IVIG has some protection in it? thanks for the input

Mom to

[Guest guest]

This is a very good question, I have been told that and the whole

family need to receive the flu vaccine this year. made antibodies to

the influenza whatever that was on his bloodwork, is this the same thing? Is

that why he should get the shot, because he will be protected from it?

Amy, mom to:

, 20 months old. CVID, MSPI, GERD, Asthma.. on Neocate, prevacid,

claritin, flovent, xopenex, and IVIG sub Q every two weeks (Carimune NF)

flu shot

Hi all,

I have a question. Now with having CVID, the Dr's don't want her to

get the flu shot. She doesn't make all her antibodies so what is the sense. But

even on IVIG how is she protected from the flu? She has always gotten her flu

shot when she was IgA def, and we had to pull her out of school this past winter

because of a flu epidemic in our schools. So now what happens? this does get

confusing, trying to learn something new again, it is a whole new game going

from IgA def, to CVID. What do you all do? Do you get he shot and hope it helps

of hope the IVIG has some protection in it? thanks for the input

Mom to