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CONGRADULATIONS goes out to Robbie

and also Josh

yall can do anything you set your mind to

Robbin

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Georgina

your right when the child is takeing it for asthma its different doses

but the doses in pill form is 5 first day and decrease 1 each day

the inhaled inhaler is on a 2 to 4 times a day

i am not sure on the JRA kids dose but i am assumeing its been higher dose

than for asthmatic treatments

i dont condone predisone but i also am fearful of the side effects

as with any medication

Robbin

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this sounds like they are allowing your body to adjust to smaller doses

slowly this seems to be ok but no one knows but if you have any doubts or

you start haveing any problems i would be calling the dr ASAP

with asthma they start them with 5 pills the next day its 4 pills the next

is 3 pills the next 2 pills the next 1 pill and thats it

its been awhile since my kids were takeing it but i think it was 20mgs per

pill

so that would be start with 100mgs and within a week your off totally

but i also see your fear in the decreaseing

the body chemical response to the decrease

just call the doctor if theres ANY signs of pain or anything that you feel

is not right

Robbin

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In a message dated 10/15/2000 1:58:29 PM Pacific Daylight Time,

gmckin@... writes:

> Congratulations to , for getting a role in the play :) That's

> wonderful news! Wish her well. She will be in our thoughts.

>

> Take care,

> Georgina

Thanks,she also has a role in the school musical, West Side Story. One thing

I will say for jenny, she pushes on, no matter what. We parents are fortunate

to have such a wonderful group of kids ....God has blessed us .

Marcie

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Congratulations to , for getting a role in the play :) That's

wonderful news! Wish her well. She will be in our thoughts.

Take care,

Georgina

AplBlssm@... wrote:

> has been on them for 2 years, with maybe a week without. She has bad

> flare up's when the dose gets too low. One of the biggest problems is the

> weight it keeps on Jen. at 17, she is no small girl, weighing about 250. This

> does not help her joints, but any exercise, including walking bring on

> severe pain and swelling, but God bless her, she keeos going. The end of this

> month will be in a local production of Romeo and t :)

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Have you all gotten flu shots this year? What are your opinions, please?

Should we? Why or why not?

Someone told me I should get them every other year?

I got one last year but have not yet this year.

Thanks,

Fran

Re: GO Clinical Trials

>Hi Everyone,

> If you look at the following study you'll see that a significant

>improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3

>(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used.

>Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a

>molybdenum-based enzyme. Since molybdenum and copper are antagonists, a

>copper deficiency could allow excess xanthine oxidase to proliferate. If

>xanthine oxidase is involved in the genesis of TED, then this is a possible

>explanation of why copper might help reduce TED.

> The significance of this study is that it really offers evidence that

TED

>is a nutritional deficiency disease.

>

><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece.

> mastorak@...

>

> PURPOSE: To report the effect of antioxidant agents in the treatment of

mild

> and moderately severe Graves' ophthalmopathy. METHODS: Prospective,

> nonrandomized, comparative study performed at a referral center. A series

of

> 11 patients with mild or moderately severe, active, newly diagnosed

Graves'

> ophthalmopathy were included in the study. Allopurinol (300 mg daily)

orally

> and nicotinamide (300 mg daily) orally were used for 3 months. A complete

> ophthalmologic examination was performed before and 1 and 3 months after

> initiation of treatment. The response to treatment was estimated

separately

> for each component of the disease and overall by its effect on a total eye

> score. Eleven patients with mild or moderately severe, active, newly

> diagnosed Graves' ophthalmopathy who received placebo were also examined

at

> the same time points. Patients in each group were recruited consecutively.

> Although nonsmoking was not an exclusion criterion, all patients were

> cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral

> antioxidants showed improvement of mild to moderately severe Graves'

> ophthalmopathy versus three (27%) of 11 patients in the control group (P

> <.05). Soft tissue inflammation was the component of the disease that

> responded more to treatment. No side effects of antioxidant treatment were

> recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study

> presents encouraging results in the treatment of mild and moderately

severe

> Graves' ophthalmopathy with antioxidant agents. To evaluate these

>preliminary

> results, randomized prospec-tive studies are needed. >>

>

>

>

>

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Not me - I feel that I have been so medicated, and over-medicated, that I just

won't go for it. I'd rather get the flu. Two of my friends went for it and

came down with bad flu this year after the shot. Of course that couldn't have

had anything to do with the shot, but makes me wonder.

I'll take my chances.

Kate

frances point wrote:

> Have you all gotten flu shots this year? What are your opinions, please?

> Should we? Why or why not?

> Someone told me I should get them every other year?

> I got one last year but have not yet this year.

> Thanks,

> Fran

> Re: GO Clinical Trials

>

> >Hi Everyone,

> > If you look at the following study you'll see that a significant

> >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3

> >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used.

> >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a

> >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a

> >copper deficiency could allow excess xanthine oxidase to proliferate. If

> >xanthine oxidase is involved in the genesis of TED, then this is a possible

> >explanation of why copper might help reduce TED.

> > The significance of this study is that it really offers evidence that

> TED

> >is a nutritional deficiency disease.

> >

> ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece.

> > mastorak@...

> >

> > PURPOSE: To report the effect of antioxidant agents in the treatment of

> mild

> > and moderately severe Graves' ophthalmopathy. METHODS: Prospective,

> > nonrandomized, comparative study performed at a referral center. A series

> of

> > 11 patients with mild or moderately severe, active, newly diagnosed

> Graves'

> > ophthalmopathy were included in the study. Allopurinol (300 mg daily)

> orally

> > and nicotinamide (300 mg daily) orally were used for 3 months. A complete

> > ophthalmologic examination was performed before and 1 and 3 months after

> > initiation of treatment. The response to treatment was estimated

> separately

> > for each component of the disease and overall by its effect on a total eye

> > score. Eleven patients with mild or moderately severe, active, newly

> > diagnosed Graves' ophthalmopathy who received placebo were also examined

> at

> > the same time points. Patients in each group were recruited consecutively.

> > Although nonsmoking was not an exclusion criterion, all patients were

> > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral

> > antioxidants showed improvement of mild to moderately severe Graves'

> > ophthalmopathy versus three (27%) of 11 patients in the control group (P

> > <.05). Soft tissue inflammation was the component of the disease that

> > responded more to treatment. No side effects of antioxidant treatment were

> > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study

> > presents encouraging results in the treatment of mild and moderately

> severe

> > Graves' ophthalmopathy with antioxidant agents. To evaluate these

> >preliminary

> > results, randomized prospec-tive studies are needed. >>

> >

> >

> >

> >

>

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Guest guest

NO flu shot for me! Did that two years ago and was so sick couldn't move

for two days! I had a business trip that cost the company an additional

$1600 because I had to change flights! Several other folks were also sick

after the shot.....too much of a coincidence. Also heard of some other

problem one can develop from the flu shot (can't remember the illness) so

decided never again! My internist told me I should get one since I

collapsed a lung 10 years ago...don't care, not having any problems so why

tempt fate? Mona

Re: GO Clinical Trials

>Hi Everyone,

> If you look at the following study you'll see that a significant

>improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3

>(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used.

>Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a

>molybdenum-based enzyme. Since molybdenum and copper are antagonists, a

>copper deficiency could allow excess xanthine oxidase to proliferate. If

>xanthine oxidase is involved in the genesis of TED, then this is a possible

>explanation of why copper might help reduce TED.

> The significance of this study is that it really offers evidence that

TED

>is a nutritional deficiency disease.

>

><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece.

> mastorak@...

>

> PURPOSE: To report the effect of antioxidant agents in the treatment of

mild

> and moderately severe Graves' ophthalmopathy. METHODS: Prospective,

> nonrandomized, comparative study performed at a referral center. A series

of

> 11 patients with mild or moderately severe, active, newly diagnosed

Graves'

> ophthalmopathy were included in the study. Allopurinol (300 mg daily)

orally

> and nicotinamide (300 mg daily) orally were used for 3 months. A complete

> ophthalmologic examination was performed before and 1 and 3 months after

> initiation of treatment. The response to treatment was estimated

separately

> for each component of the disease and overall by its effect on a total eye

> score. Eleven patients with mild or moderately severe, active, newly

> diagnosed Graves' ophthalmopathy who received placebo were also examined

at

> the same time points. Patients in each group were recruited consecutively.

> Although nonsmoking was not an exclusion criterion, all patients were

> cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral

> antioxidants showed improvement of mild to moderately severe Graves'

> ophthalmopathy versus three (27%) of 11 patients in the control group (P

> <.05). Soft tissue inflammation was the component of the disease that

> responded more to treatment. No side effects of antioxidant treatment were

> recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study

> presents encouraging results in the treatment of mild and moderately

severe

> Graves' ophthalmopathy with antioxidant agents. To evaluate these

>preliminary

> results, randomized prospec-tive studies are needed. >>

>

>

>

>

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I'd say if your elderly and in a nursing home, get one, otherwise I

wouldn't!

> Re: GO Clinical Trials

>

>

> >Hi Everyone,

> > If you look at the following study you'll see that a significant

> >improvement was obtained in TED (Graves' ophthalmopathy) with vitamin B3

> >(nicotinamide--a form of niacin). 300 mgs of nicotinamide a day was used.

> >Allopurinol is an inhibitor of xanthine oxidase. Xanthine oxidase is a

> >molybdenum-based enzyme. Since molybdenum and copper are antagonists, a

> >copper deficiency could allow excess xanthine oxidase to proliferate. If

> >xanthine oxidase is involved in the genesis of TED, then this is a

> possible

> >explanation of why copper might help reduce TED.

> > The significance of this study is that it really offers evidence that

> TED

> >is a nutritional deficiency disease.

> >

> ><< Department of Ophthalmology, Red Cross Hospital, Athens, Greece.

> > mastorak@...

> >

> > PURPOSE: To report the effect of antioxidant agents in the treatment of

> mild

> > and moderately severe Graves' ophthalmopathy. METHODS: Prospective,

> > nonrandomized, comparative study performed at a referral center. A

> series

> of

> > 11 patients with mild or moderately severe, active, newly diagnosed

> Graves'

> > ophthalmopathy were included in the study. Allopurinol (300 mg daily)

> orally

> > and nicotinamide (300 mg daily) orally were used for 3 months. A

> complete

> > ophthalmologic examination was performed before and 1 and 3 months after

> > initiation of treatment. The response to treatment was estimated

> separately

> > for each component of the disease and overall by its effect on a total

> eye

> > score. Eleven patients with mild or moderately severe, active, newly

> > diagnosed Graves' ophthalmopathy who received placebo were also examined

> at

> > the same time points. Patients in each group were recruited

> consecutively.

> > Although nonsmoking was not an exclusion criterion, all patients were

> > cigarette smokers. RESULTS: Nine (82%) of 11 patients treated with oral

> > antioxidants showed improvement of mild to moderately severe Graves'

> > ophthalmopathy versus three (27%) of 11 patients in the control group (P

> > <.05). Soft tissue inflammation was the component of the disease that

> > responded more to treatment. No side effects of antioxidant treatment

> were

> > recorded. Patients' satisfaction was high. CONCLUSIONS: This pilot study

> > presents encouraging results in the treatment of mild and moderately

> severe

> > Graves' ophthalmopathy with antioxidant agents. To evaluate these

> >preliminary

> > results, randomized prospec-tive studies are needed. >>

> >

> >

> >

> >

>

>

>

>

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Guest guest

GOOD QUESTION!!!!!!!!

Flu Shot

Hi group -- tis the season, does anyone know if it is ok for us to get a flu

shot???

Thanks,

from Michigan

12/29/00

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It is highly recommended that we do get flu shots.

> Hi group -- tis the season, does anyone know if it is ok for us to

get a flu

> shot???

>

> Thanks,

>

> from Michigan

> 12/29/00

>

>

>

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Hi Everyone,

Regarding a flu shot, I got one yesterday and have felt fine since I had it.

I had rather take my chances getting a shot, than having a bad case of the

flu during flu season. Has anyone had a bad reaction to it.

Thanks for responding!

Kate in Louisburg, NC

241/170; surgery Oct 20, 2000

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Im afraid to get a flu shot because I am one of those people who react to

everything.

Working in the hospital they insisted we all have a hepatitis vaccine.

They said noone reacts badly to them. Guess what!!!! Phyllis

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---I got a flu shot last year and had no reaction no problem(never

had reaction)......

Lori

In @y..., iam642@a... wrote:

> Hi group -- tis the season, does anyone know if it is ok for us to

get a flu

> shot???

>

> Thanks,

>

> from Michigan

> 12/29/00

>

>

>

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LOL, I got the chicken pox from the chicken pox vaccine. I've had a

few flu shots, and have always reacted mildly. I also test positive

for TB with the skin test, so have to have an x-ray. I think I'll

skip it this year. I think I'm coming down with the flu anyway. I

figure someone at the picnic gave it to me.

manda

> Im afraid to get a flu shot because I am one of those people who

react to

> everything.

> Working in the hospital they insisted we all have a hepatitis

vaccine.

> They said noone reacts badly to them. Guess what!!!! Phyllis

>

>

>

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Just wanted to thank everyone for your quick response about my flu shot

question. I truly appreciate it.

God bless.

from Michigan

12/29/00

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Holly got her flue shot wednesday, and the only reaction thus far, is a 2 inch hivey looking mark around the site and her arm hurts, i called the ped and they said that is all a normal reaction. AJ

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Hi Christy,

I hope Abbie's feeling better real soon.

Aloha,

Georgina

gazelle34@... wrote:

>

> ,

>

> As I said before Abbie had her flu shot on Friday. Saturday (yesterday) was

> pretty bad. Hot swollen joints everywhere and rash in places I haven't seen

> it in months. But today she seems better. I think having the weekend to sleep

> it off helped. But she has been having some rough days in the past couple of

> weeks, so I don't know. We're just taking it a day at a time.

>

> Christy

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Hi ,

Seems like most advise that children with JRA, at least here on the

list, do get the flu shot. Josh, though, has never had one. His

rheumatologist didn't mention anything about it on Friday and I didn't

bring it up, either.

Good luck, in making your decision.

Aloha,

Georgina

karens tribe wrote:

>

> I was just getting to write a post about the flu shot when i came across

> this one. I or any of my children ever had flu shots. My mom always has but

> i never bothered with the shot. Tabithas school nurse suggested me asking

> her doctor about her getting the flu shot this year.She thinks this will

> help Tabitha not miss as many school days this winter..which i have to laugh

> considering her absences before was never due to the flu, itself. Now i know

> awhile back there was a big discussion on her about the flu shot..and i need

> some opinions on it before i decide to let her get it or not. I need to know

> if this flu shot can cause her to get sick or her arthritis to flare up..she

> has a low immune system as it is. i would appreciate it deeply if some of

> yall can give me some insight on this shot.

> Thanks

> karen and tab(16..poly)

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,

As I said before Abbie had her flu shot on Friday. Saturday (yesterday) was

pretty bad. Hot swollen joints everywhere and rash in places I haven't seen

it in months. But today she seems better. I think having the weekend to sleep

it off helped. But she has been having some rough days in the past couple of

weeks, so I don't know. We're just taking it a day at a time.

Christy

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Christy,

That seems interersting, it seemed to do the same thing to holly :-( very perplexing this arthritis business is huh??? Aj

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I was just getting to write a post about the flu shot when i came across

this one. I or any of my children ever had flu shots. My mom always has but

i never bothered with the shot. Tabithas school nurse suggested me asking

her doctor about her getting the flu shot this year.She thinks this will

help Tabitha not miss as many school days this winter..which i have to laugh

considering her absences before was never due to the flu, itself. Now i know

awhile back there was a big discussion on her about the flu shot..and i need

some opinions on it before i decide to let her get it or not. I need to know

if this flu shot can cause her to get sick or her arthritis to flare up..she

has a low immune system as it is. i would appreciate it deeply if some of

yall can give me some insight on this shot.

Thanks

karen and tab(16..poly)

From: gazelle34@...

Reply-

Subject: flu shot

Date: Fri, 26 Oct 2001 18:23:37 EDT

Abbie had her flu shot today, and we had quite a good conversation about it

with her pediatrician. We discussed live and inactivated (killed) vaccines.

I

had been hearing that there were flu vaccines of both types. Apparently that

is false. At least this year. It is an inactivated vaccine, so should be

less

likely to cause a problem.

Christy

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

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Dear ,

Kate just got her flu shot--and whie I'm always concerned about it--she

gets it because of the meds she's on--particularly Enbrel as the side

effects from it can be higher risks for upper respitory infections,

bronchitis and pneaumonia. So if she were to get hit with the flu it

could be a very bad situation. Just my 2 cents.

and Kate (severe poly and avascular necrosis of both hips)

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