First Day of School

September 10, 2006

Hi Jill,

You know, it is a funny thing, I just let folks ramble on about their new drapes, vacations, and what not. It seems there has been a side of me that I have kept "secret" from others. It is hard to explain, sometimes it makes me feel kind of on the outside looking in at "normal" people, sometimes I wonder how a life not filled with so much stress and turmoil would have been for me, but have been this way so long I guess I wouldn't like normal now anyway, it would feel weird to me.

And as to the pleasure, I think my life is pleasurable the way it is. Like earlier today I took the 3grandkids out biking. The two older ones are old enough to ride their own bikes now thank goodness, but I haul little Lucas in the trailer. We peddled on over to my mom's house, she is 88 now, and they were holding a community garage sale at the over 55 manufactured home park she lives in. So it was fun peddling up with the kids, gave them all something to look at.haha

My aunt and her daughter from Tulsa were visiting, so we chit chatted some. Also another cousin was there, she lost one of her two sons to leukemia last year. He went through a lot of suffering, and his brother who has finished his schooling now to become a doctor, but hasn't passed his boards yet, gave him a bone marrow transplant. And it was successful, the cancer did not kill his brother, but the fungus he got in his brain from all the anti-rejection drugs.

So I don't know what would be worse, having a son like mine who has been disabled all of his life, or one who was struck down like hers was in the prime of his life, only about 30, his dentist discovered he had swollen glands at a regular check up.

Well that is about it, I am a little tired right now so think I will crash, not as young as I used to be, went on MEDICARE this month, yaaaaee, I am 65 on Sept. 30th, same day as my aunt , she is 12 years older than me. We are looking forward to watching our University of Oregon Ducks football team play in an hour or so, hoping for the best. They are playing Fresno State, and they are supposed to be pretty good.

Something to do, don't have to do much but sit and yell!

Carolyn in Oregon

First day of school

Hi all,

Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet.

I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was fun. He looked beat, and it is hot here, so I made him put his shorts on.

Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though.

And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong, thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes.

And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl.

And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway.

Ooops.

Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us."

Oh well, school now for them, no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait!

Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

Carolyn

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September 10, 2006

Hi Jill,

You know, it is a funny thing, I just let folks ramble on about their new drapes, vacations, and what not. It seems there has been a side of me that I have kept "secret" from others. It is hard to explain, sometimes it makes me feel kind of on the outside looking in at "normal" people, sometimes I wonder how a life not filled with so much stress and turmoil would have been for me, but have been this way so long I guess I wouldn't like normal now anyway, it would feel weird to me.

And as to the pleasure, I think my life is pleasurable the way it is. Like earlier today I took the 3grandkids out biking. The two older ones are old enough to ride their own bikes now thank goodness, but I haul little Lucas in the trailer. We peddled on over to my mom's house, she is 88 now, and they were holding a community garage sale at the over 55 manufactured home park she lives in. So it was fun peddling up with the kids, gave them all something to look at.haha

My aunt and her daughter from Tulsa were visiting, so we chit chatted some. Also another cousin was there, she lost one of her two sons to leukemia last year. He went through a lot of suffering, and his brother who has finished his schooling now to become a doctor, but hasn't passed his boards yet, gave him a bone marrow transplant. And it was successful, the cancer did not kill his brother, but the fungus he got in his brain from all the anti-rejection drugs.

So I don't know what would be worse, having a son like mine who has been disabled all of his life, or one who was struck down like hers was in the prime of his life, only about 30, his dentist discovered he had swollen glands at a regular check up.

Well that is about it, I am a little tired right now so think I will crash, not as young as I used to be, went on MEDICARE this month, yaaaaee, I am 65 on Sept. 30th, same day as my aunt , she is 12 years older than me. We are looking forward to watching our University of Oregon Ducks football team play in an hour or so, hoping for the best. They are playing Fresno State, and they are supposed to be pretty good.

Something to do, don't have to do much but sit and yell!

Carolyn in Oregon

First day of school

Hi all,

Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet.

I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was fun. He looked beat, and it is hot here, so I made him put his shorts on.

Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though.

And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong, thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes.

And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl.

And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway.

Ooops.

Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us."

Oh well, school now for them, no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait!

Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

Carolyn

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September 10, 2006

Carolyn, HAPPY BIRTHDAY! A little early! I know what you mean ladies. Although I sometimes wonder what people with "normal" lives/families DO with their time. Kinda like how I used to wonder what people with no kids do with theirs! lol It has been long enough even for me that this is "normal" for us! Oh well. Good luck and God bless! DeeDeeCarolyn <charper777@...> wrote: Hi Jill, You know, it is a funny thing, I just let folks ramble on about their new drapes, vacations, and what not. It seems there has been a side of me that I have kept "secret" from others. It is hard to explain, sometimes it makes me feel kind of on the outside looking in at "normal" people, sometimes I wonder how a life not filled with so much stress and turmoil would have been for me, but have been this way so long I guess I wouldn't like normal now anyway, it would feel weird to me. And as to the pleasure, I think my life is pleasurable the way it is. Like earlier today I took the 3grandkids out biking. The two older ones are old enough to ride their own bikes now thank goodness, but I haul little Lucas in the trailer. We peddled on over to my mom's house, she is 88 now, and they were holding a community

garage sale at the over 55 manufactured home park she lives in. So it was fun peddling up with the kids, gave them all something to look at.haha My aunt and her daughter from Tulsa were visiting, so we chit chatted some. Also another cousin was there, she lost one of her two sons to leukemia last year. He went through a lot of suffering, and his brother who has finished his schooling now to become a doctor, but hasn't passed his boards yet, gave him a bone marrow transplant. And it was successful, the cancer did not kill his brother, but the fungus he got in his brain from all the anti-rejection drugs. So I don't know what would be worse, having a son like mine who has been disabled all of his life, or one who was struck

down like hers was in the prime of his life, only about 30, his dentist discovered he had swollen glands at a regular check up. Well that is about it, I am a little tired right now so think I will crash, not as young as I used to be, went on MEDICARE this month, yaaaaee, I am 65 on Sept. 30th, same day as my aunt , she is 12 years older than me. We are looking forward to watching our University of Oregon Ducks football team play in an hour or so, hoping for the best. They are playing Fresno State, and they are supposed to be pretty good. Something to do, don't have to do much but sit and yell! Carolyn in Oregon First day of school Hi all, Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet. I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was

fun. He looked beat, and it is hot here, so I made him put his shorts on. Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though. And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong,

thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes. And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl. And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway. Ooops. Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us." Oh well, school now for them,

no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait! Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

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September 12, 2006

I don't think I could handle being "normal". Honestly, having a special needs kid has given me such a unique view on life. I feel blessed that I was chosen to take care of such an awesome kid. God wouldn't give me anything I couldn't handle and I sincerely believe that.

First day of school

Hi all,

Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet.

I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was fun. He looked beat, and it is hot here, so I made him put his shorts on.

Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though.

And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong, thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes.

And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl.

And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway.

Ooops.

Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us."

Oh well, school now for them, no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait!

Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

Carolyn

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September 13, 2006

Someone told me sometime after I lost my first child (he was a newborn) that God trusted me with a special child to love then and forever and to always take care of in my heart and that he wouldn't bless just anyone with such a child. It took me a while to get it but now, especially with a special needs living child (and another one who is probably gifted), I do feel like God specially chose me for these kids and that gives me more strength and courage.

First day of school

Hi all,

Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet.

I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was fun. He looked beat, and it is hot here, so I made him put his shorts on.

Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though.

And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong, thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes.

And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl.

And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway.

Ooops.

Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us."

Oh well, school now for them, no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait!

Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

Carolyn

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September 14, 2006

Amen!

First day of school

Hi all,

Well the kids got through their first day of school here, and all is well in our world. started 1st grade, big thing for him. He dressed up really cool, dark shirt with skull and crossbones from "Pirates of the Caribbean" on the front. Black pants with kind of a tattered look, bought them that way, and his blond curly hair spiked on top with red spike stuff. Oh yes and black and red Sketchers on his feet.

I was all excited and asked him if his teacher was nice, and he said quite nonchalantly, "Not really." Poor kids have to follow the rules now. He said he had chicken nuggets for lunch, and three recesses, that was fun. He looked beat, and it is hot here, so I made him put his shorts on.

Yesterday I took them to see "Pirates of the Caribbean, Dead Man's Chest," to celebrate their last day of freedom, and I must say it was quite an exciting show, I would highly recommend it, was much better than the first one I though.

And Sierra had a fine day too. She thinks she is going to like Ms. Dopps, I had it wrong, thought it was Ms. Botts. She has some of her old friends back she missed last year, and she said she really liked the teacher. She is the one who I said was a lesbian, but we have decided she will stay in class and make the best of it, let her little light shine for Jesus, and all of that, see how it goes.

And I got to thinking maybe some feminist input wouldn't hurt her anyway, as she does tend to be too submissive to males. The teacher did an exercise on bullying and used Sierra as an example, said if Sierra was bullying , what would do. Everybody laughed, as is a big boy, and Sierra a little girl.

And I got her a new cell phone yesterday, and she is just as happy as if she had won a million $$. We got it free and added to my own phone plan for just $9.99 a month. She has it all figured out already, but they don't let you use them in school, which is fine, but now she can call if she gets in trouble. Like today she forgot to get . Their mom was going to meet them down the street at a church so she wouldn't have to drive through all the traffic in front of the school, and Sierra didn't have so she had go back and do it anyway.

Ooops.

Tomorrow I get the three of them back, have to start getting them ready right away, take them, come back and care for little Lucas, he is just 2. Think we are going to do some bike riding with him in the trailer. I told the others, and they said, "Oh noooooooo you can't leave us."

Oh well, school now for them, no more fun with grandma, well for awhile anyway, it is Lukey's turn now, and I can't wait!

Oh yes, my 42 year old "autistic" brain damged child threw up. left his food going and forgot to connect the pump, so he got three cans at once. Too much, had to take him in the bathroom and change his clothes. (Marty is on a Peg tube for those who don't know.)

Carolyn

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August 21, 2008

Hi Everyone,

Yesterday was my 8 year old Autistic son's first day back to school.

He is in second grade, but did Kindergarten twice. He knows this now,

and was very insistant that he is in third grade this year. Even at

school.

They built a new school (should say are building) so my son had to

switch schools, it is beautiful and the bd room is equipped w/

a " room " sound proof, bullet proof, padded walls, panic button, the

works. My first question is I want to make up a list of questions

about the " room " I have thought of some things such as times per day

limit and time limits, but would like an outside opinion of questions

I may not think to ask. I would appreciate any help in this manner.

After school, he tells me that one boy pushed him down at recess (he

will never tell the teacher) and that another boy " doesn't remember "

him from last year. Again, he doesn't want to go back.

The good news.. the school seems open to my son's service dog that is

coming near Christmastime. The bd room is very big now, so there will

be room for seperation for Trae (my son) and his dog. And plenty of

room for a big dog to spread out if he feels like he needs it. I

spoke to his " homeroom " teacher who explained she was well aware of

that as well. We kind of got off on the wrong foot, however, b/c she

had his desk farthest from her desk, less than a foot from the door.

I suppose for easy removal. He is a runner, however, and he does have

an aide, but the aide is probably 70 years old (he loves her dearly)

if he decides to run, I point out, she can't catch him. The other

schools have already lost him twice that I know of. That is why he

switched to the BD room, so he could go to a different school.

He is pretty out of control right now, with all of the stimulus. This

dog thing happened so fast for us, I feel very blessed, yet even with

this blessing, I can't help wishing it would come even faster... we

are just hanging in there until then.

Other first day stories??

Lindsey

August 24, 2008

what is a BD room?

Kate Myers

Re: First Day Of School

Hi Everyone, Yesterday was my 8 year old Autistic son's first day back to school. He is in second grade, but did Kindergarten twice. He knows this now, and was very insistant that he is in third grade this year. Even at school.They built a new school (should say are building) so my son had to switch schools, it is beautiful and the bd room is equipped w/ a "room" sound proof, bullet proof, padded walls, panic button, the works. My first question is I want to make up a list of questions about the "room" I have thought of some things such as times per day limit and time limits, but would like an outside opinion of questions I may not think to ask. I would appreciate any help in this manner.After school, he tells me that one boy pushed him down at recess (he will never tell the teacher) and that another boy "doesn't remember" him from last year. Again, he doesn't want to go back.The good news.. the school seems open to my son's service dog that is coming near Christmastime. The bd room is very big now, so there will be room for seperation for Trae (my son) and his dog. And plenty of room for a big dog to spread out if he feels like he needs it. I spoke to his "homeroom" teacher who explained she was well aware of that as well. We kind of got off on the wrong foot, however, b/c she had his desk farthest from her desk, less than a foot from the door. I suppose for easy removal. He is a runner, however, and he does have an aide, but the aide is probably 70 years old (he loves her dearly) if he decides to run, I point out, she can't catch him. The other schools have already lost him twice that I know of. That is why he switched to the BD room, so he could go to a different school.He is pretty out of control right now, with all of the stimulus. This dog thing happened so fast for us, I feel very blessed, yet even with this blessing, I can't help wishing it would come even faster... we are just hanging in there until then.Other first day stories??Lindsey

August 27, 2008

Hi Lindsey, look like you and your son are off to a good start with the new school and all, but I don't know what a "bf" room is, probably something real simple huh. Also am curious why he needs a dog, does he have other problems besides autism? My son Marty used to go to school but is grown up so doesn't anymore. When he went to public school after never going in his life, but to a private school, they built a time out booth. It was made of plywood ad was right there in the classroom, quite an ugly sight. When he acted out they stuffed him in there, I don't think it worked because he got worse and worse as the year went by until I took him out for the rest of the year, about 4 months. Then he tried it the next fall only in high school, but he was getting pretty agitated by then and nothing really helped to control his behavior. Thankfully he did eventually outgrow it here at home, been a very long time since he has gotten upset. I think school was too much for him, the people always prodding him to learn something or other, but then that is school.

I have three grandchildren who will start on Sept. 3rd, today my granddaughter Sierra goes to the middle school to register, her mom will go with her. I am thinking of going with her to a watermelon social later in the day. Yesterday she popped in with a new hair do, her girlfriend had straightened her hair and I was amazed. She has naturally curly hair about shoulder length, and she looked like a whole new kid with it straightened, quite a bit older than 11 I thought and the color even looked different. Now she wants me to buy her a hair straightener so she can do it every morning. She did look cute, like those women on the news at night, now I know how they get that hair.

My grandson will be in 3rd grade, he is 8, and sure is picky about his clothes this year, made me buy him Converse high tops and yet he has a heck of a time tying his shoes, refused the Velcro Sketchers no way! He has gotten into video games this summer since he fell out of the tree and hurt his spleen, I bought him a Play Station 2, so he likes shirts with Guitar Hero on them, etc.

Then there is Lucas, he is 4, and I will take him three days a week to our church pre-school, don't know if I am up to getting up and rushing around. He is talking real good now, they thought he might need therapy last year when he was 3 but his mom wanted to wait. I think she was right, though he does get real quiet in groups of kids. Oh well, I was like that too.

Talk to you soon,

Carolyn in Oregon

Re: First Day Of School

Hi Everyone, Yesterday was my 8 year old Autistic son's first day back to school. He is in second grade, but did Kindergarten twice. He knows this now, and was very insistant that he is in third grade this year. Even at school.They built a new school (should say are building) so my son had to switch schools, it is beautiful and the bd room is equipped w/ a "room" sound proof, bullet proof, padded walls, panic button, the works. My first question is I want to make up a list of questions about the "room" I have thought of some things such as times per day limit and time limits, but would like an outside opinion of questions I may not think to ask. I would appreciate any help in this manner.After school, he tells me that one boy pushed him down at recess (he will never tell the teacher) and that another boy "doesn't remember" him from last year. Again, he doesn't want to go back.The good news.. the school seems open to my son's service dog that is coming near Christmastime. The bd room is very big now, so there will be room for seperation for Trae (my son) and his dog. And plenty of room for a big dog to spread out if he feels like he needs it. I spoke to his "homeroom" teacher who explained she was well aware of that as well. We kind of got off on the wrong foot, however, b/c she had his desk farthest from her desk, less than a foot from the door. I suppose for easy removal. He is a runner, however, and he does have an aide, but the aide is probably 70 years old (he loves her dearly) if he decides to run, I point out, she can't catch him. The other schools have already lost him twice that I know of. That is why he switched to the BD room, so he could go to a different school.He is pretty out of control right now, with all of the stimulus. This dog thing happened so fast for us, I feel very blessed, yet even with this blessing, I can't help wishing it would come even faster... we are just hanging in there until then.Other first day stories??Lindsey

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September 2, 2009

My daughter had her first day of junior kindergarten today. She is in a self

contained class with about 6 other asd kids. I met the other kids today and my

daughter was the most severe. Mine had a huge tantrum going in simply because we

asked her to walk into the school rather than being carried. She's 4.5 and has

completed 48 rounds of AC chelation with 2 years of biomeds on top of that.

None on the kids in her class are on any special diet and none of them do

biomeds. In fact I am one of the only people in this city doing this stuff and

everywhere I go my kid seems to be the worst one. When do I just give this stuff

up? I thought being so close to 50 rounds she would be different but not much

has changed. There is more language and her motor skills are amazing. But her

cognition is horrible.

Her teacher said all she did was a high pitched scream all morning when any

demands were put on her. She disrupted the other kids and was in the hallway on

the floor screaming when I got there. Her teacher told me she thinks my daughter

has severe autism, not moderate. At home my daughter is a completely different

kid. So, now I'm not sure if she can go to school at all. We are going to try,

but her IEP will have to be extremely light and she may not be able to do the

school thing.

I thought she was doing well and then she starts school and I see the other

kids. One little boy came up to me to show me the necklace he made. I don't

understand why every single kid in her class were all high functioning with not

a single biomed. I feel like either driving off a bridge or quitting all of this

stuff and just accepting that this is how life is going to be.

At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

Thanks for letting me vent.

September 2, 2009

,

My son was diagnosed with moderate autism. From what you're saying

your daughter does sound worse, but I'm not too sure the label is

what to focus on here. He did poorly in kindergarten but his behavior

changed alot when we started homeschooling. The process has taken

years, 's starting 7th grade homeschooling and just recently

(over the summer) made friends in our neighborhood.

We had him on the GF/CF diet from about age 4 till 7 or so, and have

been giving ALA using Andy's schedule and dose suggestion for the

past 4 1/2 years. Progress has been slow and steady, to where he is

now solidly high functioning. However I do think our kids are as a

rule much more sensitive than the average child. And that may mean

that the situations which are most difficult for them are especially

difficult for them, if that makes sense.

Marty

At 01:31 PM 9/2/2009, " michellebondy " myrubygirl@... wrote:

>My daughter had her first day of junior kindergarten today. She is

>in a self contained class with about 6 other asd kids. I met the

>other kids today and my daughter was the most severe. Mine had a

>huge tantrum going in simply because we asked her to walk into the

>school rather than being carried. She's 4.5 and has completed 48

>rounds of AC chelation with 2 years of biomeds on top of that.

>

>None on the kids in her class are on any special diet and none of

>them do biomeds. In fact I am one of the only people in this city

>doing this stuff and everywhere I go my kid seems to be the worst

>one. When do I just give this stuff up? I thought being so close to

>50 rounds she would be different but not much has changed. There is

>more language and her motor skills are amazing. But her cognition is horrible.

>

>Her teacher said all she did was a high pitched scream all morning

>when any demands were put on her. She disrupted the other kids and

>was in the hallway on the floor screaming when I got there. Her

>teacher told me she thinks my daughter has severe autism, not

>moderate. At home my daughter is a completely different kid. So, now

>I'm not sure if she can go to school at all. We are going to try,

>but her IEP will have to be extremely light and she may not be able

>to do the school thing.

>

>I thought she was doing well and then she starts school and I see

>the other kids. One little boy came up to me to show me the necklace

>he made. I don't understand why every single kid in her class were

>all high functioning with not a single biomed. I feel like either

>driving off a bridge or quitting all of this stuff and just

>accepting that this is how life is going to be.

>

>At 48 rounds, do I stop now? Has ANYONE else had a child like mine

>who recovered? I just don't see this happening.

>

>Thanks for letting me vent.

September 2, 2009

I do not live anywhere near your level of " maintenance, " but my rather high

maintenance migraine girl cried, yelled, whined before & after school the ENTIRE

first week. One meltdown during school (she is LOUD, am sure the whole school

heard her), but mostly....

.....did fine in between. I do not have that pleasant child with issues " oh, she

is such a trooper " ummm, not my girl. She can be a total b.. on wheels, no

doubt about it - however, she is tough & resilient & all that...She has some

awesome coping skills, imo... & some others, not so awesome...these include

making everyone else in our world, just that miserable enough, so that she can

have " me " keeping HER world safe. Makes sense, and this can be good when you

are 2yo & no one else is listening to you, not so good in a 5yo with add'l

verbal skills & such...sooo, last week was tough, while her mantra to me was " I

hate school, do I have to go? "

(This week - none of that going on - eternally grateful that these meltdowns

were not necessary to her ability to cope to " maintain " herself, yk? did that

make sense?)

My own personal vent is this - duking it out in " Betty Crocker World, " not

liking it one bit, having my own issues, huge ones....and working hard,

practicing lots & lots of patience, to keep my issues from affecting her having

as much success in kindergarten, as she can...and, ummmm, kinda liking the more

peaceful nature of our daytime hours - having very mixed feelings about that.

elizabeth

>

> My daughter had her first day of junior kindergarten today. She is in a self

contained class with about 6 other asd kids. I met the other kids today and my

daughter was the most severe. Mine had a huge tantrum going in simply because we

asked her to walk into the school rather than being carried. She's 4.5 and has

completed 48 rounds of AC chelation with 2 years of biomeds on top of that.

>

> None on the kids in her class are on any special diet and none of them do

biomeds. In fact I am one of the only people in this city doing this stuff and

everywhere I go my kid seems to be the worst one. When do I just give this stuff

up? I thought being so close to 50 rounds she would be different but not much

has changed. There is more language and her motor skills are amazing. But her

cognition is horrible.

>

> Her teacher said all she did was a high pitched scream all morning when any

demands were put on her. She disrupted the other kids and was in the hallway on

the floor screaming when I got there. Her teacher told me she thinks my daughter

has severe autism, not moderate. At home my daughter is a completely different

kid. So, now I'm not sure if she can go to school at all. We are going to try,

but her IEP will have to be extremely light and she may not be able to do the

school thing.

>

> I thought she was doing well and then she starts school and I see the other

kids. One little boy came up to me to show me the necklace he made. I don't

understand why every single kid in her class were all high functioning with not

a single biomed. I feel like either driving off a bridge or quitting all of this

stuff and just accepting that this is how life is going to be.

>

> At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

>

> Thanks for letting me vent.

>

September 2, 2009

> > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

> >

> > Thanks for letting me vent.

> >

oh! forgot...no personal experience in this, BUT from browsing ways, I am

thinking, just keep plugging along....Isn't 48 rounds fairly often a stall, or

close to a turning point? I am thinking that pretty often it is close to 100

rounds for some people...

btw, I cannot even imagine, yk? my relatively NT girls had pretty apparent

results with our very few rounds done so far. tough stuff. once again. and

venting is good

elizabeth

September 2, 2009

I'm so sorry you had such a rough day. It's going to take some time for your

daughter to transition into school and for her and her teachers to get to know

each other. Some of what works so well for her at home may be needed at school

(breaks, certain reward activities, comfort items, family pictures, sensory

breaks and play).If the other kids are in such great shape then they can go up

to an integrated classroom, your child's contained classroom is an appropriate

placement for her. She is there to learn self-regulation. She is not supposed to

already know that stuff. As for bio med, if you can stay the course I think you

will continue to heal her body and mind. As for the other families, forget about

them. In this day and age, to not be trying bio med with an autistic child is

crazy. Take care, Alison M

[ ] First Day of School