First Day of School

[Guest guest]

Thanks,

I agree, her teacher was quick to tell me how severe she thought my daughter was

yesterday. I am pissed off now instead of sad. Ruby is so smart and it didn't

show yesterday at all! But today she woke up asking for her teacher, so even

though she had a horrible time, she wants to go back. Go figure.

I do want to make her a visual schedule. She has language, although she speaks

like a caveman. I do think a visual schedule will help with anxiety issues. If

she knows what her day is going to be.

Thanks so much.

> >

> > My daughter had her first day of junior kindergarten today. She is in a self

contained class with about 6 other asd kids. I met the other kids today and my

daughter was the most severe. Mine had a huge tantrum going in simply because we

asked her to walk into the school rather than being carried. She's 4.5 and has

completed 48 rounds of AC chelation with 2 years of biomeds on top of that.

> >

> > None on the kids in her class are on any special diet and none of them do

biomeds. In fact I am one of the only people in this city doing this stuff and

everywhere I go my kid seems to be the worst one. When do I just give this stuff

up? I thought being so close to 50 rounds she would be different but not much

has changed. There is more language and her motor skills are amazing. But her

cognition is horrible.

> >

> > Her teacher said all she did was a high pitched scream all morning when any

demands were put on her. She disrupted the other kids and was in the hallway on

the floor screaming when I got there. Her teacher told me she thinks my daughter

has severe autism, not moderate. At home my daughter is a completely different

kid. So, now I'm not sure if she can go to school at all. We are going to try,

but her IEP will have to be extremely light and she may not be able to do the

school thing.

> >

> > I thought she was doing well and then she starts school and I see the other

kids. One little boy came up to me to show me the necklace he made. I don't

understand why every single kid in her class were all high functioning with not

a single biomed. I feel like either driving off a bridge or quitting all of this

stuff and just accepting that this is how life is going to be.

> >

> > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

> >

> > Thanks for letting me vent.

> >

>

[Guest guest]

Haha, thanks I do too! She is my Ruby Red. Her intials are R.E.D. It wasn't

intentional. I'm sure she will kill me for this one day!

> > > >

> > > > My daughter had her first day of junior kindergarten today. She is in a

self contained class with about 6 other asd kids. I met the other kids today and

my daughter was the most severe. Mine had a huge tantrum going in simply because

we asked her to walk into the school rather than being carried. She's 4.5 and

has completed 48 rounds of AC chelation with 2 years of biomeds on top of that.

> > > >

> > > > None on the kids in her class are on any special diet and none of them

do biomeds. In fact I am one of the only people in this city doing this stuff

and everywhere I go my kid seems to be the worst one. When do I just give this

stuff up? I thought being so close to 50 rounds she would be different but not

much has changed. There is more language and her motor skills are amazing. But

her cognition is horrible.

> > > >

> > > > Her teacher said all she did was a high pitched scream all morning when

any demands were put on her. She disrupted the other kids and was in the hallway

on the floor screaming when I got there. Her teacher told me she thinks my

daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > >

> > > > I thought she was doing well and then she starts school and I see the

other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > >

> > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

> > > >

> > > > Thanks for letting me vent.

> > > >

> > >

> >

>

[Guest guest]

> I really wonder why our kids seem to be worse off than the nonbiomed kids

sometimes?

===my opinion...latency does have its purposes...if you can't beat it, tuck it

away until you can & bodies have a billion hidey holes to use. Not really

noticeable until a body hits its tipping point, at which point, well...using the

weapons you get to fight the crapola is usually not fun - it is a battle,

imho...experience keeps telling me it is worth it.

elizabeth

[Guest guest]

I am reading yours and Irene's posts about supplement tolerance with great

interest. My son is on almost the same supplement protocol as Irene and has the

same intolerances your children do: niacinamide, GSE, curcumin, and synthetic B

vitamins. Too bad ARI doesn't have an " effective supplement " list that is like

their effective treatment list. Maybe we should encourage them to do some kind

of poll!

> > > > >

> > > > > My daughter had her first day of junior kindergarten today. She is in

a self contained class with about 6 other asd kids. I met the other kids today

and my daughter was the most severe. Mine had a huge tantrum going in simply

because we asked her to walk into the school rather than being carried. She's

4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top

of that.

> > > > >

> > > > > None on the kids in her class are on any special diet and none of them

do biomeds. In fact I am one of the only people in this city doing this stuff

and everywhere I go my kid seems to be the worst one. When do I just give this

stuff up? I thought being so close to 50 rounds she would be different but not

much has changed. There is more language and her motor skills are amazing. But

her cognition is horrible.

> > > > >

> > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > >

> > > > > I thought she was doing well and then she starts school and I see the

other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > >

> > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

> > > > >

> > > > > Thanks for letting me vent.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

They do have a lot of supplements on their list, with all the headings; got

better, got worse, no change, etc.

[ ] Re: First Day of School

I am reading yours and Irene's posts about supplement tolerance with great

interest. My son is on almost the same supplement protocol as Irene and has the

same intolerances your children do: niacinamide, GSE, curcumin, and synthetic B

vitamins. Too bad ARI doesn't have an " effective supplement " list that is like

their effective treatment list. Maybe we should encourage them to do some kind

of poll!

> > > > >

> > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > >

> > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > >

> > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > >

> > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > >

> > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > >

> > > > > Thanks for letting me vent.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I agree, when I was new to biomeds I thought I needed to do the high doses of B6

and magnesium not knowing that a lot kids can't tolerate the high doses and some

kids don't need them.

> > > > > >

> > > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > > >

> > > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > > >

> > > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > > >

> > > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > > >

> > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > > >

> > > > > > Thanks for letting me vent.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sounds like today might be better. A visual schedule is a great idea. A couple

of the kids I work with demonstrated at age 5 that they could tell time. One

recognized 5:00 as when I left (i.e. when he could have the TV back on for

I-Carly) and 5:30 as whe his father would pick him up from the sitters or be

home. He sets the timer on the stove and loves to watch it and count down along

with it (sometimes for a whole 5 minutes!). He recognizes both digital and

analog clock times for hour and half hour. Another recently revealed that he

knows that Jeopardy (one of his favorite shows, he hums the theme song) comes on

at 6:00. (6 is now his favorite number). I think he only knows digital so far.

Consider putting a picture of a clock (which ever she's most familiar with or

what they have at school) showing the time you pick her up and a picture of you

so she can understand when she can expect to see you.

S S

Re: First Day of School

Posted by: " michellebondy " myrubygirl@... michellebondy

Thu Sep 3, 2009 7:04 am (PDT)

Thanks,

I agree, her teacher was quick to tell me how severe she thought my daughter was

yesterday. I am pissed off now instead of sad. Ruby is so smart and it didn't

show yesterday at all! But today she woke up asking for her teacher, so even

though she had a horrible time, she wants to go back. Go figure.

I do want to make her a visual schedule. She has language, although she speaks

like a caveman. I do think a visual schedule will help with anxiety issues. If

she knows what her day is going to be.

Thanks so much.

------------------------------------------------------------

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pODxmwHO/

[Guest guest]

Maybe it's a phenol intolerance?  most kids with phenol intolerance can't handle

b vitamins well.  GSE is a definite issue and so is curcumin (heavy spice - big

time phenol/salicylate).  Just a thought..

________________________________

From: homewithb <elizabethsoliday@...>

Sent: Thursday, September 3, 2009 11:19:43 AM

Subject: [ ] Re: First Day of School

 

I am reading yours and Irene's posts about supplement tolerance with great

interest. My son is on almost the same supplement protocol as Irene and has the

same intolerances your children do: niacinamide, GSE, curcumin, and synthetic B

vitamins. Too bad ARI doesn't have an " effective supplement " list that is like

their effective treatment list. Maybe we should encourage them to do some kind

of poll!

> > > > >

> > > > > My daughter had her first day of junior kindergarten today. She is in

a self contained class with about 6 other asd kids. I met the other kids today

and my daughter was the most severe. Mine had a huge tantrum going in simply

because we asked her to walk into the school rather than being carried. She's

4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on top

of that.

> > > > >

> > > > > None on the kids in her class are on any special diet and none of them

do biomeds. In fact I am one of the only people in this city doing this stuff

and everywhere I go my kid seems to be the worst one. When do I just give this

stuff up? I thought being so close to 50 rounds she would be different but not

much has changed. There is more language and her motor skills are amazing. But

her cognition is horrible.

> > > > >

> > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > >

> > > > > I thought she was doing well and then she starts school and I see the

other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > >

> > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine who

recovered? I just don't see this happening.

> > > > >

> > > > > Thanks for letting me vent.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Good point, . I haven't found (or understood) a lot of info on WHY people

have phenol intolerance, therefore it is hard to decide whether it is worth

getting something like No-fenol just in order to tolerate phenols.

> > > > > >

> > > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > > >

> > > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > > >

> > > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > > >

> > > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > > >

> > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > > >

> > > > > > Thanks for letting me vent.

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

You are right. Phenols are a huge issue. We can get away with giving No Phenol

with certain things like OLE and milk thistle and they are tolerated, but no

amount of No Phenol helps with GSE, curcumin and the b vites - there may be

other issues afoot too with these supps besides phenols, such as slow Phase I

etc, for example with GSE. B vites cause yeast to go nuts in our son too.

Irene

> > > > > >

> > > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > > >

> > > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > > >

> > > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > > >

> > > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > > >

> > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > > >

> > > > > > Thanks for letting me vent.

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

Interesting cause my son does okay with OLE and milk thistle without any

No-fenol, but cannot tolerate the others. I am not sure about whether his

tolerance of synthetic Vit b complex has improved, but we did give synthetic B6

in the last couple months and that seems okay. Our B complex is a whole foods

version that is well tolerated. I have often wondered if the reactions to

niacinamide and curcumin are closely related, almost like curcumin causes a

niacin flush reaction too. I think you are along the right lines when you state

a slow phase I may be involved.

> > > > > > >

> > > > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > > > >

> > > > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > > > >

> > > > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > > > >

> > > > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > > > >

> > > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > > > >

> > > > > > > Thanks for letting me vent.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Seems like all of the good stuff has phenols in them.  I haven't managed to fix

our phenol issue yet, but I'm not chelating yet either.

________________________________

From: iflow97 <iflow97@...>

Sent: Thursday, September 3, 2009 3:36:55 PM

Subject: [ ] Re: First Day of School

 

You are right. Phenols are a huge issue. We can get away with giving No Phenol

with certain things like OLE and milk thistle and they are tolerated, but no

amount of No Phenol helps with GSE, curcumin and the b vites - there may be

other issues afoot too with these supps besides phenols, such as slow Phase I

etc, for example with GSE. B vites cause yeast to go nuts in our son too.

Irene

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[Guest guest]

No Fenol will help digest vegetable fiber, which helps with phenols, but most

kids will also need to restrict phenols from their diet as well. No Fenol helps,

but it's not a magic bullet, you need to follow a phenol-restricted diet like

Feingold too. And yes, it's worth it. For my kid, a phenol infraction is ten

times worse than a gluten infraction. We stay far, far away from phenols.

Otherwise, life is miserable!

Suzanne

> > > > > > >

> > > > > > > My daughter had her first day of junior kindergarten today. She is

in a self contained class with about 6 other asd kids. I met the other kids

today and my daughter was the most severe. Mine had a huge tantrum going in

simply because we asked her to walk into the school rather than being carried.

She's 4.5 and has completed 48 rounds of AC chelation with 2 years of biomeds on

top of that.

> > > > > > >

> > > > > > > None on the kids in her class are on any special diet and none of

them do biomeds. In fact I am one of the only people in this city doing this

stuff and everywhere I go my kid seems to be the worst one. When do I just give

this stuff up? I thought being so close to 50 rounds she would be different but

not much has changed. There is more language and her motor skills are amazing.

But her cognition is horrible.

> > > > > > >

> > > > > > > Her teacher said all she did was a high pitched scream all morning

when any demands were put on her. She disrupted the other kids and was in the

hallway on the floor screaming when I got there. Her teacher told me she thinks

my daughter has severe autism, not moderate. At home my daughter is a completely

different kid. So, now I'm not sure if she can go to school at all. We are going

to try, but her IEP will have to be extremely light and she may not be able to

do the school thing.

> > > > > > >

> > > > > > > I thought she was doing well and then she starts school and I see

the other kids. One little boy came up to me to show me the necklace he made. I

don't understand why every single kid in her class were all high functioning

with not a single biomed. I feel like either driving off a bridge or quitting

all of this stuff and just accepting that this is how life is going to be.

> > > > > > >

> > > > > > > At 48 rounds, do I stop now? Has ANYONE else had a child like mine

who recovered? I just don't see this happening.

> > > > > > >

> > > > > > > Thanks for letting me vent.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >