Please Help

[Guest guest]

Thanks Deborah. I'm not sure if that is something someone else told

me or not, but it works to simplify what I believe is happening with

candida overgrowth (thanks to all s' insight).

g

>

> this is a very good explanation (if not fundamentalist science

> perspective!) And I agree, given our shared experience, sums up the

> approach needed for the complete reversal of all symptoms! When I

> read the other previous post I had similar thoughts but using

> termites as the example...yours is better though since fungus/yeast

> is the " culprit. "

> Bravo!

> Deborah

[Guest guest]

I agree having a doctor post was a little weird. Not that it isn't nice to

hear professional opinions, but I come here to gain support from other people

going through what I am going through either because they have been through

it themselves or because they have watched their child go through it.. I

agree also you should be getting the best treament most rheumatologists are

starting to focus more on the hit big first and then wean instead of the

pyramid

of wait and see. Its important to have less pain, thats how JA should be

treated, obviously slowing down the disease is important too but being

conservative might just end up leaving someone with damage.. or having a kid

have

feelings of a traumatic childhood where all they remember is pain..

[Guest guest]

I am new at all of this, six months in now, but the way that you are being

treated is unbelievable. You definitely need to look for someone else. You

should feel very comfortable with your rheumatologist. You are going to be

seeing him/her for a long time to come and having to deal with a number of

different issues. You need to be able to be up front and feel like you are

being understood. This doctor doesn't sound like he cares about you or your

son at all. As a nurse, I would never work for a doctor who treated

patients this coldly. Please, please look around. He may be the best

around there, but someone else would be a lot better for your son's well

being. Also, you should definitely find someone who accepts your insurance.

Like I said this is a long term thing and you will be broke paying out

that much and more everytime you need to visit the doctor. Hope this helps.

It's just that doctors like this really disturb me!!!

Gray and Hailey (2-poly)

>From: <jt102493@...>

>Reply-

>

>Subject: please help

>Date: Fri, 21 Jan 2005 16:25:32 -0500 (Eastern Standard Time)

>

>I've been avoiding the list for the past few weeks and, even though this

>sounds crazy, it's because my boys' own doctor answered some questions on

>the list. It really bothered me to see his name, and I frantically ran

>through past posts to see if I had complained about him. I know it's just

>me, and my own opinions for whatever they are worth, it just really felt

>unsafe for me and I felt more inhibited to post knowing that the doctor

>that

>is treating my children is on this list, too...

>

>However, whether he's reading this or not (and I hope he's not) I feel very

>desperate and frustrated and sad about the boys' treatment and I would

>truly

>like some advice on how to proceed.

>

>Dr. Lehman's approach has always been very conservative, and while I

>appreciate the concerns very much for both present day living as well as

>side effects/long term effects in terms of their future, I feel like he's

>watching my son Liam get sicker and sicker and not doing anything about it.

>Every month we go to him (and I hate to bring up money, but he takes no

>commercial insurance so it's $300.00 cash, every time we see him, plus

>traveling expenses) Liam is either a little bit or a lot worse than the

>month before. He now complains of pain in every joint, large and small,

>excluding his shoulders. I won't even go into how many different symptoms

>have cropped up without any others going away (although the mouth sores are

>MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing and folic

>acid, thank you, thank you, thank you). Yesterday's appointment, we really

>felt, was going to be the turning point, where he was finally going to make

>a decision and give him SOMETHING that will help him, other than the tons

>of

>NSAIDs we have tried with zero success. Nothing. He told us we now have

>to

>wait 6 more weeks to see if we can wean him off the Topamax without causing

>any more seizures or migraines. 6 more weeks. It feels unbearable to wait

>any longer to deal with the arthritis. There always seems to be one more

>outside doctor, one more symptom that we have to wait for. He is always

>talking about the future, and I feel that no consideration is being given

>for his quality of life TODAY, which is crappy.

>

>I know that he's the number one doctor in NY. I know that so many people

>have gone to him and been treated successfully. I know all this. But I

>want help for Liam, and I don't want him to be in pain every single day of

>his life, with the only answers I'm ever given very politician like, all " I

>hear you " while not saying anything at all about what he plans for the

>future or if he's ever going to do anything at all. He's our second

>rheumatologist and I feel sick at having to start all over again after a

>year and a half.

>

>Does anyone have any advice on what I can do now? Do I just wait? I've

>tried addressing these concerns with the doctor but he doesn't answer

>anything straight and I left yesterday more sad about our future than any

>other time we've ever been to him, like we have no hope anymore that anyone

>is ever going to help us.

>

>Any advice would be greatly appreciated.

>

>

>

>

>

[Guest guest]

Hugs, . You are going through so much. Personally, I feel there is

no reason why you cannot get a second opinion. Reading your post, I

thought back to the very first thing Chris' first rheumy (Dr Rabinovich)

told us. The goal is to be pain free. That is what you are striving for.

Your dr does not sound like he is going for that goal. Just because

other people are doing fine with this dr, does not mean that he is a

good fit for you or your son. Just because I like my son's current dr or

his first one, doesn't mean everyone will. If you have insurance, find

a dr who will take it. That would be the first step. If that dr doesn't

work, try another. You are paying a lot of money, you deserve

satisfaction. Do not let drs make you feel like they are better than

you. They are people the same as us, they just went to school for a bit

longer. You are paying for his services. As far as I am concerned, I

feel bad you have been avoiding this list. We are here for each other.

As parents. We are not here for more drs advice necessarily. I think we

are all sharing what we have learned, be it from drs, books, websites

whatever. Plus we are the people who know exactly what you as a parent

are going through. Sorry if I am ranting, I just hate to think of what

you're going through. My vote is for a second opinion! Michele (

17, pauci & spondy)

please help

I've been avoiding the list for the past few weeks and, even though this

sounds crazy, it's because my boys' own doctor answered some questions

on

the list. It really bothered me to see his name, and I frantically ran

through past posts to see if I had complained about him. I know it's

just

me, and my own opinions for whatever they are worth, it just really felt

unsafe for me and I felt more inhibited to post knowing that the doctor

that

is treating my children is on this list, too...

However, whether he's reading this or not (and I hope he's not) I feel

very

desperate and frustrated and sad about the boys' treatment and I would

truly

like some advice on how to proceed.

Dr. Lehman's approach has always been very conservative, and while I

appreciate the concerns very much for both present day living as well as

side effects/long term effects in terms of their future, I feel like

he's

watching my son Liam get sicker and sicker and not doing anything about

it.

Every month we go to him (and I hate to bring up money, but he takes no

commercial insurance so it's $300.00 cash, every time we see him, plus

traveling expenses) Liam is either a little bit or a lot worse than the

month before. He now complains of pain in every joint, large and small,

excluding his shoulders. I won't even go into how many different

symptoms

have cropped up without any others going away (although the mouth sores

are

MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing and

folic

acid, thank you, thank you, thank you). Yesterday's appointment, we

really

felt, was going to be the turning point, where he was finally going to

make

a decision and give him SOMETHING that will help him, other than the

tons of

NSAIDs we have tried with zero success. Nothing. He told us we now

have to

wait 6 more weeks to see if we can wean him off the Topamax without

causing

any more seizures or migraines. 6 more weeks. It feels unbearable to

wait

any longer to deal with the arthritis. There always seems to be one

more

outside doctor, one more symptom that we have to wait for. He is always

talking about the future, and I feel that no consideration is being

given

for his quality of life TODAY, which is crappy.

I know that he's the number one doctor in NY. I know that so many

people

have gone to him and been treated successfully. I know all this. But I

want help for Liam, and I don't want him to be in pain every single day

of

his life, with the only answers I'm ever given very politician like, all

" I

hear you " while not saying anything at all about what he plans for the

future or if he's ever going to do anything at all. He's our second

rheumatologist and I feel sick at having to start all over again after a

year and a half.

Does anyone have any advice on what I can do now? Do I just wait? I've

tried addressing these concerns with the doctor but he doesn't answer

anything straight and I left yesterday more sad about our future than

any

other time we've ever been to him, like we have no hope anymore that

anyone

is ever going to help us.

Any advice would be greatly appreciated.

[Guest guest]

-,

I second what Michele said.... but I wanted to tell you and I also

felt a little uncomfortable posting to the list knowing that a top

renowned doctor might be reading my posts. Personally I think the

list should just be for the parents. We should be able to post and

say what we wanted to without the medical profession reading. This

list is for support after all and nothing againist Dr Lehman, but

its not like he posts any support to anyone.

I feel badly that you have avoided the list when you needed it the

most. But what upsets me the most is that Liam is NOT getting the

treatment that he deserves. No kid should have to suffer like that

and no parent should feel like you do.

Please know that im thinking of you...and please find a new doctor.

One that you feel comfortable with and one that will give Liam the

treatment he deserves. IM also proud of you for standing up and

posting your feelings, I know it must have taken a lot to do that.

HUgs Helen and (7,systemic)

-- In , " Tepper, Michele " <MTepper@f...>

wrote:

> Hugs, . You are going through so much. Personally, I feel

there is

> no reason why you cannot get a second opinion. Reading your post, I

> thought back to the very first thing Chris' first rheumy (Dr

Rabinovich)

> told us. The goal is to be pain free. That is what you are

striving for.

> Your dr does not sound like he is going for that goal. Just because

> other people are doing fine with this dr, does not mean that he is

a

> good fit for you or your son. Just because I like my son's current

dr or

> his first one, doesn't mean everyone will. If you have insurance,

find

> a dr who will take it. That would be the first step. If that dr

doesn't

> work, try another. You are paying a lot of money, you deserve

> satisfaction. Do not let drs make you feel like they are better

than

> you. They are people the same as us, they just went to school for

a bit

> longer. You are paying for his services. As far as I am concerned,

I

> feel bad you have been avoiding this list. We are here for each

other.

> As parents. We are not here for more drs advice necessarily. I

think we

> are all sharing what we have learned, be it from drs, books,

websites

> whatever. Plus we are the people who know exactly what you as a

parent

> are going through. Sorry if I am ranting, I just hate to think of

what

> you're going through. My vote is for a second opinion! Michele

(

> 17, pauci & spondy)

>

> please help

>

>

> I've been avoiding the list for the past few weeks and, even

though this

> sounds crazy, it's because my boys' own doctor answered some

questions

> on

> the list. It really bothered me to see his name, and I

frantically ran

> through past posts to see if I had complained about him. I know

it's

> just

> me, and my own opinions for whatever they are worth, it just

really felt

> unsafe for me and I felt more inhibited to post knowing that the

doctor

> that

> is treating my children is on this list, too...

>

> However, whether he's reading this or not (and I hope he's not) I

feel

> very

> desperate and frustrated and sad about the boys' treatment and I

would

> truly

> like some advice on how to proceed.

>

> Dr. Lehman's approach has always been very conservative, and while

I

> appreciate the concerns very much for both present day living as

well as

> side effects/long term effects in terms of their future, I feel

like

> he's

> watching my son Liam get sicker and sicker and not doing anything

about

> it.

> Every month we go to him (and I hate to bring up money, but he

takes no

> commercial insurance so it's $300.00 cash, every time we see him,

plus

> traveling expenses) Liam is either a little bit or a lot worse

than the

> month before. He now complains of pain in every joint, large and

small,

> excluding his shoulders. I won't even go into how many different

> symptoms

> have cropped up without any others going away (although the mouth

sores

> are

> MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing

and

> folic

> acid, thank you, thank you, thank you). Yesterday's appointment,

we

> really

> felt, was going to be the turning point, where he was finally

going to

> make

> a decision and give him SOMETHING that will help him, other than

the

> tons of

> NSAIDs we have tried with zero success. Nothing. He told us we

now

> have to

> wait 6 more weeks to see if we can wean him off the Topamax without

> causing

> any more seizures or migraines. 6 more weeks. It feels

unbearable to

> wait

> any longer to deal with the arthritis. There always seems to be

one

> more

> outside doctor, one more symptom that we have to wait for. He is

always

> talking about the future, and I feel that no consideration is being

> given

> for his quality of life TODAY, which is crappy.

>

> I know that he's the number one doctor in NY. I know that so many

> people

> have gone to him and been treated successfully. I know all this.

But I

> want help for Liam, and I don't want him to be in pain every

single day

> of

> his life, with the only answers I'm ever given very politician

like, all

> " I

> hear you " while not saying anything at all about what he plans for

the

> future or if he's ever going to do anything at all. He's our

second

> rheumatologist and I feel sick at having to start all over again

after a

> year and a half.

>

> Does anyone have any advice on what I can do now? Do I just

wait? I've

> tried addressing these concerns with the doctor but he doesn't

answer

> anything straight and I left yesterday more sad about our future

than

> any

> other time we've ever been to him, like we have no hope anymore

that

> anyone

> is ever going to help us.

>

> Any advice would be greatly appreciated.

>

>

>

>

>

[Guest guest]

> I know it's just

> me, and my own opinions for whatever they are worth, it just really

felt

> unsafe for me and I felt more inhibited to post knowing that the

doctor that

> is treating my children is on this list, too...

Oh, I understand that feeling. My kiddo spent 52 longs days at the

NICU and one nurse really freaked me out. Yet I hid all those

feelings for fear that if I complained she might hurt my baby... Once

my husband realized that this was eating me alive he went to the head

nurse and said we'd rather not have nurse X work with us. You know

what her response was? No problem! No questions asked! The people who

care for our children have so much power over us. It's natural to

fear reprisals if we dare say something negative, but most doctors

aren't vindictive like that. It's a natural yet irrational fear. My

hat off to you for speaking up anyway!

He won't take " commercial " insurance?! What does that mean? He

doesn't take Aetna or Metlife or whatever? $300/month + travel is a

lot of money, I don't know that I'd go to him just based on that

alone. BUT, nsaids didn't work for us either. My kid was heading for

an ulcer with no difference in swelling. Not worth it. After 2 months

of that I asked to try something different and Methotraxate seems to

be doing the trick. The newer the drug, the higher the risk. But

NSAIDS carry risk too, and if they don't work, then it's all risk for

no benefit.

Either this doctor listens to you or you'll need to find a new doctor

who will work as agressively as you're comfortable. The doc doesn't

have to live with a child in pain, you do. You decide how

aggressively you want to treat this.

I send my best vibes you way and wish your children better health.

Annie & nne, pauci, 6yo.

[Guest guest]

Ohhhhhh -

I know how you feel. I believe it was one of my posts

that brought a response from your doctor. I had

worded it so carefully and read it several times

before posting, in order not to offend anybody who

sees him. I had no idea he was reading and would

respond. Since then, I too have wondered if any

doctors are reading. I know it's silly, but I've been

following the MRA trial for so long, with the idea I

would go practically anywhere in the U.S. for a chance

at a drug that would control Caitlin's symptoms....

I'm constantly worrying that I'll piss off Dr. X or

Dr. Y and then they'll be the ones to make the

decision. I know that ethically, they could never

hold anything I posted against me... but we're all

human after all. But I have rationalized that there

are so many messages here, a doc could only possibly

have time to read messages with a heading that catches

attention for whatever reason.

On to the most important thing..... I know it is

frustrating to move on. But I personally believe

aggressive treatment is our best weapon against long

term disability in our kids. We have had very

aggressive docs... after the first 18 months I learned

to set a timetable anytime we started something new.

ie:OK - now we do Kineret. If within four months we

do not have improvement moving towards control, we

move on to the next drug. Remicade. Humira. Cytoxan.

MTX. Whatever. Doctors know how long it takes for

these drugs to work. Stretch that out a little longer

to be sure. But then, if it's not working, move on.

Or combine. If you've only done NSAIDS, you have a

lot of drugs that are typically prescribed as

possibilities. Obviously, this has to be carefully

planned and managed to minimize the potential side

effects.... but always, you move forward towards the

next step.

There have to be a number of doctors in your area.

Have you seen anybody at Columbia or Children's

Hospital of NY? I know it's scary because certainly

your doc is well known....but ultimately, you know

your child best. And you are the one calling the

shots. And doctors are human and slaves to the drive

of their own egos just like the rest of us. I'm sure

there are plenty of doctors who have their own opinion

as to how to best help your son. What doctor wouldn't

like to turn a kid's life around?

I wish I could pull you guys across the country and

give you a big hug! I'm sure you would enjoy the

sunshine... and after a trip to the beach, I could

take you to our doc!

Please know that we are here for you. And don't

forget that you can e-mail anybody directly without it

posting to the board.

Best hopes-

Colleen (mom to Caitlin, systemic)

--- <jt102493@...> wrote:

> I've been avoiding the list for the past few weeks

> and, even though this

> sounds crazy, it's because my boys' own doctor

> answered some questions on

> the list. It really bothered me to see his name,

> and I frantically ran

> through past posts to see if I had complained about

> him. I know it's just

> me, and my own opinions for whatever they are worth,

> it just really felt

> unsafe for me and I felt more inhibited to post

> knowing that the doctor that

> is treating my children is on this list, too...

>

> However, whether he's reading this or not (and I

> hope he's not) I feel very

> desperate and frustrated and sad about the boys'

> treatment and I would truly

> like some advice on how to proceed.

>

> Dr. Lehman's approach has always been very

> conservative, and while I

> appreciate the concerns very much for both present

> day living as well as

> side effects/long term effects in terms of their

> future, I feel like he's

> watching my son Liam get sicker and sicker and not

> doing anything about it.

> Every month we go to him (and I hate to bring up

> money, but he takes no

> commercial insurance so it's $300.00 cash, every

> time we see him, plus

> traveling expenses) Liam is either a little bit or a

> lot worse than the

> month before. He now complains of pain in every

> joint, large and small,

> excluding his shoulders. I won't even go into how

> many different symptoms

> have cropped up without any others going away

> (although the mouth sores are

> MIRACULOUSLY, thanks to this list, gone due to

> Listerine rinsing and folic

> acid, thank you, thank you, thank you). Yesterday's

> appointment, we really

> felt, was going to be the turning point, where he

> was finally going to make

> a decision and give him SOMETHING that will help

> him, other than the tons of

> NSAIDs we have tried with zero success. Nothing.

> He told us we now have to

> wait 6 more weeks to see if we can wean him off the

> Topamax without causing

> any more seizures or migraines. 6 more weeks. It

> feels unbearable to wait

> any longer to deal with the arthritis. There

> always seems to be one more

> outside doctor, one more symptom that we have to

> wait for. He is always

> talking about the future, and I feel that no

> consideration is being given

> for his quality of life TODAY, which is crappy.

>

> I know that he's the number one doctor in NY. I

> know that so many people

> have gone to him and been treated successfully. I

> know all this. But I

> want help for Liam, and I don't want him to be in

> pain every single day of

> his life, with the only answers I'm ever given very

> politician like, all " I

> hear you " while not saying anything at all about

> what he plans for the

> future or if he's ever going to do anything at all.

> He's our second

> rheumatologist and I feel sick at having to start

> all over again after a

> year and a half.

>

> Does anyone have any advice on what I can do now?

> Do I just wait? I've

> tried addressing these concerns with the doctor but

> he doesn't answer

> anything straight and I left yesterday more sad

> about our future than any

> other time we've ever been to him, like we have no

> hope anymore that anyone

> is ever going to help us.

>

> Any advice would be greatly appreciated.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

,

I also was taken by surprise when I read the doctors post. It made

me wonder if our rheumy is also on the board. And unlike yourself I

have made plenty of complaints regarding Aundrea never being seen

when in a flare and all of the med changes being made by phone etc...

In the end I decided that this list has ultimatley been created for

the benefits of parents. And part of our frustration as parents is

dealing with chronically ill children and facing many frustrations

with their doctors. This is OUR forum to share with each other and

to encourage each other.

I know how hard it is to think about seeking out another rheumy and

starting all over. With Aundrea we ended up seeing 3 rheumy's. I

felt like if I went to a 4th I would be labled as some type of

paranoid parent. In hindsight I wished I would have stayed with the

very first rheumy. Now we are looking to move in 5 months so I will

have to start over - which in our case may be a good thing.

I am sorry to hear that Liam is feeling so very poorly. What is the

doctors rational for not starting him on a DMARD or even

prednisone. In our case we were the ones dragging our feet to put

Aundrea on more and more drugs.

You could always seek out a second opinion and still keep your

appointment with your current rheumy. That way you could just check

out someone else and if you don't want to switch then nothing has

been lost.

Keep us posted on Liam. I certainly hope things start to improve

soon. For us the high amounts of NSAIDS caused the absolute worst

side effects of everything. I guess that is what made us leary of

all the other drugs but so far everything else has been way better

in comparison to the high dose NSAIDS.

Hugs and Prayers,

(Aundrea 9 systemic)-

-- In , <jt102493@o...> wrote:

> I've been avoiding the list for the past few weeks and, even

though this

> sounds crazy, it's because my boys' own doctor answered some

questions on

> the list. It really bothered me to see his name, and I

frantically ran

> through past posts to see if I had complained about him. I know

it's just

> me, and my own opinions for whatever they are worth, it just

really felt

> unsafe for me and I felt more inhibited to post knowing that the

doctor that

> is treating my children is on this list, too...

>

> However, whether he's reading this or not (and I hope he's not) I

feel very

> desperate and frustrated and sad about the boys' treatment and I

would truly

> like some advice on how to proceed.

>

> Dr. Lehman's approach has always been very conservative, and while

I

> appreciate the concerns very much for both present day living as

well as

> side effects/long term effects in terms of their future, I feel

like he's

> watching my son Liam get sicker and sicker and not doing anything

about it.

> Every month we go to him (and I hate to bring up money, but he

takes no

> commercial insurance so it's $300.00 cash, every time we see him,

plus

> traveling expenses) Liam is either a little bit or a lot worse

than the

> month before. He now complains of pain in every joint, large and

small,

> excluding his shoulders. I won't even go into how many different

symptoms

> have cropped up without any others going away (although the mouth

sores are

> MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing

and folic

> acid, thank you, thank you, thank you). Yesterday's appointment,

we really

> felt, was going to be the turning point, where he was finally

going to make

> a decision and give him SOMETHING that will help him, other than

the tons of

> NSAIDs we have tried with zero success. Nothing. He told us we

now have to

> wait 6 more weeks to see if we can wean him off the Topamax

without causing

> any more seizures or migraines. 6 more weeks. It feels

unbearable to wait

> any longer to deal with the arthritis. There always seems to be

one more

> outside doctor, one more symptom that we have to wait for. He is

always

> talking about the future, and I feel that no consideration is

being given

> for his quality of life TODAY, which is crappy.

>

> I know that he's the number one doctor in NY. I know that so many

people

> have gone to him and been treated successfully. I know all this.

But I

> want help for Liam, and I don't want him to be in pain every

single day of

> his life, with the only answers I'm ever given very politician

like, all " I

> hear you " while not saying anything at all about what he plans for

the

> future or if he's ever going to do anything at all. He's our

second

> rheumatologist and I feel sick at having to start all over again

after a

> year and a half.

>

> Does anyone have any advice on what I can do now? Do I just

wait? I've

> tried addressing these concerns with the doctor but he doesn't

answer

> anything straight and I left yesterday more sad about our future

than any

> other time we've ever been to him, like we have no hope anymore

that anyone

> is ever going to help us.

>

> Any advice would be greatly appreciated.

>

>

>

>

>

[Guest guest]

The best advise was already given. Get a 2nd opinion.

I had one of my doctor's tell me a long time ago, not all doctors are

good for all patients. We are individuals and some treat things

differently which meets our needs better. FINE THE ONE FOR LIAM.

Secondly, won't take insurance? ? ? I find that just unbelievable.

Here is a short story. We were having some issues with the insurance

companies with stating it was pre-exisiting etc. Our Rheumy knew the

concerns and said that he would work with us and help us get Garrett

his treatments and meds. (We had only seen him twice). His first

suggestion was he would only charge us what the co-pay on the

insurance would be so that we wouldn't be out of pocket too much

money. This amazed us to say the least. Then he said if that was too

much for us to handle, he would help get him into Shrinner's. It was

evident at that point, we had made the right decision. A specialist

who was concerned more for the child than the wallett.

You are as everyone on this list in my thoughts and prayer. Don't

give up. .. Keep fighting for Liam.

[Guest guest]

Go to your local ish-Rite hospital as quickly as possible and

drop your present DR like a hot-potato.

> I've been avoiding the list for the past few weeks and, even though

this

> sounds crazy, it's because my boys' own doctor answered some

questions on

> the list. It really bothered me to see his name, and I frantically

ran

> through past posts to see if I had complained about him. I know

it's just

> me, and my own opinions for whatever they are worth, it just really

felt

> unsafe for me and I felt more inhibited to post knowing that the

doctor that

> is treating my children is on this list, too...

>

> However, whether he's reading this or not (and I hope he's not) I

feel very

> desperate and frustrated and sad about the boys' treatment and I

would truly

> like some advice on how to proceed.

>

> Dr. Lehman's approach has always been very conservative, and while I

> appreciate the concerns very much for both present day living as

well as

> side effects/long term effects in terms of their future, I feel

like he's

> watching my son Liam get sicker and sicker and not doing anything

about it.

> Every month we go to him (and I hate to bring up money, but he

takes no

> commercial insurance so it's $300.00 cash, every time we see him,

plus

> traveling expenses) Liam is either a little bit or a lot worse than

the

> month before. He now complains of pain in every joint, large and

small,

> excluding his shoulders. I won't even go into how many different

symptoms

> have cropped up without any others going away (although the mouth

sores are

> MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing

and folic

> acid, thank you, thank you, thank you). Yesterday's appointment,

we really

> felt, was going to be the turning point, where he was finally going

to make

> a decision and give him SOMETHING that will help him, other than

the tons of

> NSAIDs we have tried with zero success. Nothing. He told us we

now have to

> wait 6 more weeks to see if we can wean him off the Topamax without

causing

> any more seizures or migraines. 6 more weeks. It feels unbearable

to wait

> any longer to deal with the arthritis. There always seems to be

one more

> outside doctor, one more symptom that we have to wait for. He is

always

> talking about the future, and I feel that no consideration is being

given

> for his quality of life TODAY, which is crappy.

>

> I know that he's the number one doctor in NY. I know that so many

people

> have gone to him and been treated successfully. I know all this.

But I

> want help for Liam, and I don't want him to be in pain every single

day of

> his life, with the only answers I'm ever given very politician

like, all " I

> hear you " while not saying anything at all about what he plans for

the

> future or if he's ever going to do anything at all. He's our second

> rheumatologist and I feel sick at having to start all over again

after a

> year and a half.

>

> Does anyone have any advice on what I can do now? Do I just wait?

I've

> tried addressing these concerns with the doctor but he doesn't

answer

> anything straight and I left yesterday more sad about our future

than any

> other time we've ever been to him, like we have no hope anymore

that anyone

> is ever going to help us.

>

> Any advice would be greatly appreciated.

>

>

>

>

>

[Guest guest]

,

Gosh you are going through a lot and with no improvement for Liam.

I truly hope that you get some good advice that makes sense to you

here on this list from somebody.

I don't know your whole story, but the very first thing I did on our

first appt. with the rheumy was to get an overall plan of attack.

My son was immediately put on mtx. and pred. and was already on

naprosyn. If mtx. started to work, then taper the pred. Deal with

this combo until he's 100% or move on to option #2. In our

particular case we talked about enbrel, kineret, humira,

thalidimide, etc. I made him list them in the order that we would

approach them. We put timeframes on how long we would give each

drug a try before moving on to the next. We discussed side effects

and pros and cons of each drug and why we would try them and results

that juveniles are having with each drug.

What I'm trying to say is that there should be an overall plan. He

may have this in his mind, but may not be communicating it to you

for an unknown reason. My advice is to pin him down on an overall

plan. The plan may change, but you rediscuss where you are on the

plan at every appt. If you get this plan, you may feel better that

you are aware of the process. If he's not willing or too evasive on

an overall plan, then you must move on.

Complications can always arise with a plan, which is why you have

plan B, C, D, Etc. There are so many options with this disease

today that Liam's progress shouldn't be so stagnant without trying

other things.

About the insurance, can you submit the $300 appts. directly to

insurance youurself instead of having the rheumy do it? Then you

get reimbursed directly from insurance, minus your copay or

whatever. I know it's a pain, but is that ossible for you?

I'll be thinking of you and let us know what you decide to do after

all the advice rolls in.

Stacia and Hunter 8 systemic, iritis

[Guest guest]

- You have had yourself quite the battle here. I know you have gotten

a ton of great responses, but I just wanted to put my two cents in.

Definitely get a second opinion. If your rheumy is any good, he would

encourage a second opinion. All good doctors do. We too tried to get in with

the " Number One " doctor in the state. However, he wasn't accepting new

patients at the time. We are currently seeing his associate and we just LOVE

her. She is great, with us, with Caroline, and Caroline's other doctors. She

sends update letters to both her pediatrician and her ophthalmologist after

each appointment and/or change in medications.

Six months is too long to go without results for little Liam. Caroline was

about 21 months when her symptom's first stated. She was almost two when we

got into her rheumatologist. She immediately did steroid injections into her

knee's within the first month that enabled Caroline to walk again. She has

had to have the injections again after some set backs. She's been very

aggressive with her medications and I feel that is the only reason why

Caroline is such a happy well adjusted kid at this point.

Trust your gut. You know what to do here. Stay strong. Keep fighting for

Liam. You are his voice right now. Be assertive! It's worth it!!

Alia and Caroline, age 2, poly and uveitis

please help

I've been avoiding the list for the past few weeks and, even though this

sounds crazy, it's because my boys' own doctor answered some questions on

the list. It really bothered me to see his name, and I frantically ran

through past posts to see if I had complained about him. I know it's just

me, and my own opinions for whatever they are worth, it just really felt

unsafe for me and I felt more inhibited to post knowing that the doctor that

is treating my children is on this list, too...

However, whether he's reading this or not (and I hope he's not) I feel very

desperate and frustrated and sad about the boys' treatment and I would truly

like some advice on how to proceed.

Dr. Lehman's approach has always been very conservative, and while I

appreciate the concerns very much for both present day living as well as

side effects/long term effects in terms of their future, I feel like he's

watching my son Liam get sicker and sicker and not doing anything about it.

Every month we go to him (and I hate to bring up money, but he takes no

commercial insurance so it's $300.00 cash, every time we see him, plus

traveling expenses) Liam is either a little bit or a lot worse than the

month before. He now complains of pain in every joint, large and small,

excluding his shoulders. I won't even go into how many different symptoms

have cropped up without any others going away (although the mouth sores are

MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing and folic

acid, thank you, thank you, thank you). Yesterday's appointment, we really

felt, was going to be the turning point, where he was finally going to make

a decision and give him SOMETHING that will help him, other than the tons of

NSAIDs we have tried with zero success. Nothing. He told us we now have to

wait 6 more weeks to see if we can wean him off the Topamax without causing

any more seizures or migraines. 6 more weeks. It feels unbearable to wait

any longer to deal with the arthritis. There always seems to be one more

outside doctor, one more symptom that we have to wait for. He is always

talking about the future, and I feel that no consideration is being given

for his quality of life TODAY, which is crappy.

I know that he's the number one doctor in NY. I know that so many people

have gone to him and been treated successfully. I know all this. But I

want help for Liam, and I don't want him to be in pain every single day of

his life, with the only answers I'm ever given very politician like, all " I

hear you " while not saying anything at all about what he plans for the

future or if he's ever going to do anything at all. He's our second

rheumatologist and I feel sick at having to start all over again after a

year and a half.

Does anyone have any advice on what I can do now? Do I just wait? I've

tried addressing these concerns with the doctor but he doesn't answer

anything straight and I left yesterday more sad about our future than any

other time we've ever been to him, like we have no hope anymore that anyone

is ever going to help us.

Any advice would be greatly appreciated.

[Guest guest]

I agree with , go for another opinion (I'm way behind on posts - I know

you already have planned to) - hang in there - hugs to you!

Val

Rob's Mom (7,systemic)

In a message dated 1/21/2005 4:35:44 PM Eastern Standard Time, " Tepper, Michele "

<MTepper@...> writes:

>

>Hugs, . You are going through so much. Personally, I feel there is

>no reason why you cannot get a second opinion. Reading your post, I

>thought back to the very first thing Chris' first rheumy (Dr Rabinovich)

>told us. The goal is to be pain free. That is what you are striving for.

>Your dr does not sound like he is going for that goal. Just because

>other people are doing fine with this dr, does not mean that he is a

>good fit for you or your son. Just because I like my son's current dr or

>his first one, doesn't mean everyone will.  If you have insurance, find

>a dr who will take it. That would be the first step. If that dr doesn't

>work, try another. You are paying a lot of money, you deserve

>satisfaction. Do not let drs make you feel like they are better than

>you. They are people the same as us, they just went to school for a bit

>longer. You are paying for his services. As far as I am concerned, I

>feel bad you have been avoiding this list. We are here for each other.

>As parents. We are not here for more drs advice necessarily. I think we

>are all sharing what we have learned, be it from drs, books, websites

>whatever. Plus we are the people who know exactly what you as a parent

>are going through. Sorry if I am ranting, I just hate to think of what

>you're going through. My vote is for a second opinion! Michele (

>17, pauci & spondy)

>

> please help

>

>

>I've been avoiding the list for the past few weeks and, even though this

>sounds crazy, it's because my boys' own doctor answered some questions

>on

>the list.  It really bothered me to see his name, and I frantically ran

>through past posts to see if I had complained about him.  I know it's

>just

>me, and my own opinions for whatever they are worth, it just really felt

>unsafe for me and I felt more inhibited to post knowing that the doctor

>that

>is treating my children is on this list, too...

>

>However, whether he's reading this or not (and I hope he's not) I feel

>very

>desperate and frustrated and sad about the boys' treatment and I would

>truly

>like some advice on how to proceed.

>

>Dr. Lehman's approach has always been very conservative, and while I

>appreciate the concerns very much for both present day living as well as

>side effects/long term effects in terms of their future, I feel like

>he's

>watching my son Liam get sicker and sicker and not doing anything about

>it.

>Every month we go to him (and I hate to bring up money, but he takes no

>commercial insurance so it's $300.00 cash, every time we see him, plus

>traveling expenses) Liam is either a little bit or a lot worse than the

>month before.  He now complains of pain in every joint, large and small,

>excluding his shoulders.   I won't even go into how many different

>symptoms

>have cropped up without any others going away (although the mouth sores

>are

>MIRACULOUSLY, thanks to this list, gone due to Listerine rinsing and

>folic

>acid, thank you, thank you, thank you).  Yesterday's appointment, we

>really

>felt, was going to be the turning point, where he was finally going to

>make

>a decision and give him SOMETHING that will help him, other than the

>tons of

>NSAIDs we have tried with zero success.  Nothing.  He told us we now

>have to

>wait 6 more weeks to see if we can wean him off the Topamax without

>causing

>any more seizures or migraines.  6 more weeks.  It feels unbearable to

>wait

>any longer to deal with the arthritis.   There always seems to be one

>more

>outside doctor, one more symptom that we have to wait for.  He is always

>talking about the future, and I feel that no consideration is being

>given

>for his quality of life TODAY, which is crappy.

>

>I know that he's the number one doctor in NY.  I know that so many

>people

>have gone to him and been treated successfully.  I know all this.  But I

>want help for Liam, and I don't want him to be in pain every single day

>of

>his life, with the only answers I'm ever given very politician like, all

> " I

>hear you " while not saying anything at all about what he plans for the

>future or if he's ever going to do anything at all.  He's our second

>rheumatologist and I feel sick at having to start all over again after a

>year and a half.

>

>Does anyone have any advice on what I can do now?  Do I just wait?  I've

>tried addressing these concerns with the doctor but he doesn't answer

>anything straight and I left yesterday more sad about our future than

>any

>other time we've ever been to him, like we have no hope anymore that

>anyone

>is ever going to help us.

>

>Any advice would be greatly appreciated.

>

>

>

>

>

[Guest guest]

YOU CANNOT DOSE TO THE TSH--I KNOW THIS IS A HUGE DISAPPOINTMENT. JUST TAKE

MORE THYROID MEDS

for GODS SAKE. Your TSH should be almost zero, then you will fell well.

Gracia

> First of all, is anyone on this board on armour thyroid with normal

> labs? My labs are w/in normal range, TSH is 1.6, however my basal body

> temp. is anywhere between 95 to 96.6 and I have several hypothyroid

> symptoms. Is anyone else in this situation? If so, what are you taking

> and how much? I'm currently taking 1/2 grain of armour and will be

> working up to 1 grain in the next 3 weeks. What is an average dose,

> will one grain be enough? Is it possible that I will need adrenal

> support as well.

> I would really like to hear from you....Thanks

>

>

>

>

>

>

>

[Guest guest]

,

Have you had your other hormones checked. Low body temp can also be

indicative a sex hormone imbalance. These also affect how your body

uses the thyroid.

Sherry

>

> YOU CANNOT DOSE TO THE TSH--I KNOW THIS IS A HUGE DISAPPOINTMENT.

JUST TAKE

> MORE THYROID MEDS

> for GODS SAKE. Your TSH should be almost zero, then you will fell

well.

> Gracia

>

> > First of all, is anyone on this board on armour thyroid with

normal

> > labs? My labs are w/in normal range, TSH is 1.6, however my

basal body

> > temp. is anywhere between 95 to 96.6 and I have several

hypothyroid

> > symptoms. Is anyone else in this situation? If so, what are you

taking

> > and how much? I'm currently taking 1/2 grain of armour and will

be

> > working up to 1 grain in the next 3 weeks. What is an average

dose,

> > will one grain be enough? Is it possible that I will need adrenal

> > support as well.

> > I would really like to hear from you....Thanks

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Gracia!

With your guidance,I have increased my T4 dosage to 75 mcg after 60 days

of treatment.I hope to increase to 100 mcg after my T4,T3 ans TSH tests.As

you have rightly pointed out I adjust my dosage as per my symptoms.

BY the way is there any chance of me going to Hyper.If so,what will be my

symptoms?

BR.

> YOU CANNOT DOSE TO THE TSH--I KNOW THIS IS A HUGE DISAPPOINTMENT. JUST

> TAKE

> MORE THYROID MEDS

> for GODS SAKE. Your TSH should be almost zero, then you will fell well.

> Gracia

>

>> First of all, is anyone on this board on armour thyroid with normal

>> labs? My labs are w/in normal range, TSH is 1.6, however my basal body

>> temp. is anywhere between 95 to 96.6 and I have several hypothyroid

>> symptoms. Is anyone else in this situation? If so, what are you taking

>> and how much? I'm currently taking 1/2 grain of armour and will be

>> working up to 1 grain in the next 3 weeks. What is an average dose,

>> will one grain be enough? Is it possible that I will need adrenal

>> support as well.

>> I would really like to hear from you....Thanks

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

BR I hope you will be feeling better. I don't know much about the med you

take. Just be alert to feeling " wired " . On Armour thyroid the TSH should

be almost zero, not sure aobut T4 meds.

Gracia

> Gracia!

> With your guidance,I have increased my T4 dosage to 75 mcg after 60 days

> of treatment.I hope to increase to 100 mcg after my T4,T3 ans TSH tests.As

> you have rightly pointed out I adjust my dosage as per my symptoms.

>

> BY the way is there any chance of me going to Hyper.If so,what will be my

> symptoms?

>

> BR.

[Guest guest]

Gracia!

The medicine I am taking is synthetic thyroxin(commercial name is

thyronorm in India!)What is the meaning of feeling " wired " .Please

explain.After how many days of increased dosage I will feel the normalcy?

Reply me

BR

> BR I hope you will be feeling better. I don't know much about the med

> you

> take. Just be alert to feeling " wired " . On Armour thyroid the TSH

> should

> be almost zero, not sure aobut T4 meds.

> Gracia

>

>> Gracia!

>> With your guidance,I have increased my T4 dosage to 75 mcg after 60 days

>> of treatment.I hope to increase to 100 mcg after my T4,T3 ans TSH

>> tests.As

>> you have rightly pointed out I adjust my dosage as per my symptoms.

>>

>> BY the way is there any chance of me going to Hyper.If so,what will be

>> my

>> symptoms?

>>

>> BR.

>

>

>

>

>

[Guest guest]

BR,

" Wired' would mean feeling very tense, anxious, edgy.

You might also feel what are called paresthesias, prickly sensations in your

limbs, some people call it feeling like they are being stuck with little

pins, or 'pins and needles' sensation.

You might also feel like your heart is racing or pounding, not related to

exercise or exertion.

It can also cause difficulty in sleeping.

Re: please help

> Gracia!

>

> The medicine I am taking is synthetic thyroxin(commercial name is

> thyronorm in India!)What is the meaning of feeling " wired " .Please

> explain.After how many days of increased dosage I will feel the normalcy?

>

> Reply me

>

> BR

>

>> BR I hope you will be feeling better. I don't know much about the med

>> you

>> take. Just be alert to feeling " wired " . On Armour thyroid the TSH

>> should

>> be almost zero, not sure aobut T4 meds.

>> Gracia

>>

>>> Gracia!

>>> With your guidance,I have increased my T4 dosage to 75 mcg after 60 days

>>> of treatment.I hope to increase to 100 mcg after my T4,T3 ans TSH

>>> tests.As

>>> you have rightly pointed out I adjust my dosage as per my symptoms.

>>>

>>> BY the way is there any chance of me going to Hyper.If so,what will be

>>> my

>>> symptoms?

>>>

>>> BR.

>>

>>

>>

>>

>>

[Guest guest]

Hi ,

I have the wired sensation, heart racing/pounding and

difficulty sleeping.

So, you think I am hyperthyroid? Taking too much

Armour?

I am on 1 grain of Armour and still have a low basal

metabolism temp.

Much love,

Pamela

--- Every <denisee@...> wrote:

> BR,

>

> " Wired' would mean feeling very tense, anxious,

> edgy.

>

> You might also feel what are called paresthesias,

> prickly sensations in your

> limbs, some people call it feeling like they are

> being stuck with little

> pins, or 'pins and needles' sensation.

>

> You might also feel like your heart is racing or

> pounding, not related to

> exercise or exertion.

>

>

> It can also cause difficulty in sleeping.

>

>

>

>

>

> Re: please help

>

>

> > Gracia!

> >

> > The medicine I am taking is synthetic

> thyroxin(commercial name is

> > thyronorm in India!)What is the meaning of feeling

> " wired " .Please

> > explain.After how many days of increased dosage I

> will feel the normalcy?

> >

> > Reply me

> >

> > BR

> >

> >> BR I hope you will be feeling better. I don't

> know much about the med

> >> you

> >> take. Just be alert to feeling " wired " . On

> Armour thyroid the TSH

> >> should

> >> be almost zero, not sure aobut T4 meds.

> >> Gracia

> >>

> >>> Gracia!

> >>> With your guidance,I have increased my T4 dosage

> to 75 mcg after 60 days

> >>> of treatment.I hope to increase to 100 mcg after

> my T4,T3 ans TSH

> >>> tests.As

> >>> you have rightly pointed out I adjust my dosage

> as per my symptoms.

> >>>

> >>> BY the way is there any chance of me going to

> Hyper.If so,what will be

> >>> my

> >>> symptoms?

> >>>

>

__________________________________________________

[Guest guest]

Hi Pamela,

I wish I had an answer for you... I honestly don't know. My instinct is to

say that I think the basal metabolic rate/temperature is the truest

guideline. I also think that your dose of Armour isn't so high, I would

not jump to the conclusion that it is too much for you.

Another symptom of being hyperthyroid is a feeling of pins and needles

sensation in your limbs, called paresthesias... it is not really a feeling

of pain, but more like weird prickly sensations.

I think sleeping difficulties can also be associated with low thyroid.

Now, do you take in a lot of caffeine - coffee or other caffeinated

beverages, like colas.... are you under any particular stress right now?

These can cause palpitations, not related to the thyroid function.

Also do you take any supplements like magnesium or potassium? I've read

reports where up to 75% of people are thought to be deficient in magnesium,

because of our diets so reliant on processed foods - magnesium is one of the

minerals lost in processing. Many of the reasons for palpitations can be

related to nutrients lacking in our diet. It is possible that the

palpitations are related to that.

Re: please help

>>

>>

>> > Gracia!

>> >

>> > The medicine I am taking is synthetic

>> thyroxin(commercial name is

>> > thyronorm in India!)What is the meaning of feeling

>> " wired " .Please

>> > explain.After how many days of increased dosage I

>> will feel the normalcy?

>> >

>> > Reply me

>> >

>> > BR

>> >

>> >> BR I hope you will be feeling better. I don't

>> know much about the med

>> >> you

>> >> take. Just be alert to feeling " wired " . On

>> Armour thyroid the TSH

>> >> should

>> >> be almost zero, not sure aobut T4 meds.

>> >> Gracia

>> >>

>> >>> Gracia!

>> >>> With your guidance,I have increased my T4 dosage

>> to 75 mcg after 60 days

>> >>> of treatment.I hope to increase to 100 mcg after

>> my T4,T3 ans TSH

>> >>> tests.As

>> >>> you have rightly pointed out I adjust my dosage

>> as per my symptoms.

>> >>>

>> >>> BY the way is there any chance of me going to

>> Hyper.If so,what will be

>> >>> my

>> >>> symptoms?

>> >>>

>>

>

> __________________________________________________

>

[Guest guest]

Hi ,

That makes sense to me too, that the basal meatbolic

rate is the truest guideline.

I drink NO caffienated beverages. Lately, I can't

even eat chocolate without feeling a VERY

uncomfortable kind of wiredness that is scary.

I take 800 mg of mag a day and eat about 5 servings of

veggies at day, so I don't think it is a lack of

magnesium or potassium. And I eat NO processed foods,

so my problem isn't eating too much processed foods.

And I am under no stress.

I'm at my wits end trying to get 8 hours of sleep a

night (I'm lucky to get 4 hours) which gives me even

more anxiety.

So, where is this anxiety coming from?

Much love,

Pamela

--- Every <denisee@...> wrote:

> Hi Pamela,

>

> I wish I had an answer for you... I honestly don't

> know. My instinct is to

> say that I think the basal metabolic

> rate/temperature is the truest

> guideline. I also think that your dose of Armour

> isn't so high, I would

> not jump to the conclusion that it is too much for

> you.

>

> Another symptom of being hyperthyroid is a feeling

> of pins and needles

> sensation in your limbs, called paresthesias... it

> is not really a feeling

> of pain, but more like weird prickly sensations.

>

> I think sleeping difficulties can also be associated

> with low thyroid.

>

> Now, do you take in a lot of caffeine - coffee or

> other caffeinated

> beverages, like colas.... are you under any

> particular stress right now?

> These can cause palpitations, not related to the

> thyroid function.

>

> Also do you take any supplements like magnesium or

> potassium? I've read

> reports where up to 75% of people are thought to be

> deficient in magnesium,

> because of our diets so reliant on processed foods -

> magnesium is one of the

> minerals lost in processing. Many of the reasons

> for palpitations can be

> related to nutrients lacking in our diet. It is

> possible that the

> palpitations are related to that.

>

>

>

>

> Re: please help

> >>

> >>

> >> > Gracia!

> >> >

> >> > The medicine I am taking is synthetic

> >> thyroxin(commercial name is

> >> > thyronorm in India!)What is the meaning of

> feeling

> >> " wired " .Please

> >> > explain.After how many days of increased dosage

> I

> >> will feel the normalcy?

> >> >

> >> > Reply me

> >> >

> >> > BR

> >> >

> >> >> BR I hope you will be feeling better. I

> don't

> >> know much about the med

> >> >> you

> >> >> take. Just be alert to feeling " wired " . On

> >> Armour thyroid the TSH

> >> >> should

> >> >> be almost zero, not sure aobut T4 meds.

> >> >> Gracia

> >> >>

> >> >>> Gracia!

> >> >>> With your guidance,I have increased my T4

> dosage

> >> to 75 mcg after 60 days

> >> >>> of treatment.I hope to increase to 100 mcg

> after

> >> my T4,T3 ans TSH

> >> >>> tests.As

> >> >>> you have rightly pointed out I adjust my

> dosage

> >> as per my symptoms.

> >> >>>

> >> >>> BY the way is there any chance of me going to

> >> Hyper.If so,what will be

> >> >>> my

> >> >>> symptoms?

> >> >>>

> >>

> >

> > __________________________________________________

> >

[Guest guest]

It makes me wonder if there might be a hyper adrenal situation, that your

adrenals are overactive and that wired feeling might be due to excessive

adrenal hormones, and not directly related to your thyroid? Other than that

I don't know what else to suggest..... maybe you can look up symptoms of

overactive adrenal function and see what else might correlate to how you are

feeling?

Re: please help

>> >>

>> >>

>> >> > Gracia!

>> >> >

>> >> > The medicine I am taking is synthetic

>> >> thyroxin(commercial name is

>> >> > thyronorm in India!)What is the meaning of

>> feeling

>> >> " wired " .Please

>> >> > explain.After how many days of increased dosage

>> I

>> >> will feel the normalcy?

>> >> >

>> >> > Reply me

>> >> >

>> >> > BR

>> >> >

>> >> >> BR I hope you will be feeling better. I

>> don't

>> >> know much about the med

>> >> >> you

>> >> >> take. Just be alert to feeling " wired " . On

>> >> Armour thyroid the TSH

>> >> >> should

>> >> >> be almost zero, not sure aobut T4 meds.

>> >> >> Gracia

>> >> >>

>> >> >>> Gracia!

>> >> >>> With your guidance,I have increased my T4

>> dosage

>> >> to 75 mcg after 60 days

>> >> >>> of treatment.I hope to increase to 100 mcg

>> after

>> >> my T4,T3 ans TSH

>> >> >>> tests.As

>> >> >>> you have rightly pointed out I adjust my

>> dosage

>> >> as per my symptoms.

>> >> >>>

>> >> >>> BY the way is there any chance of me going to

>> >> Hyper.If so,what will be

>> >> >>> my

>> >> >>> symptoms?

>> >> >>>

>> >>

>> >

>> > __________________________________________________

>> >

[Guest guest]

Hi Pamela - this can be die to the way you dose your armour as well as

overdose. How do you take it> Some of us have to take thyroid divided

over the day. The symptoms are from too much T3 rushing into your system

and ALSO when you suddenly run out of T3 you can get palpitations etc.

Kerry

Re: please help

Hi ,

I have the wired sensation, heart racing/pounding and

difficulty sleeping.

So, you think I am hyperthyroid? Taking too much

Armour?

I am on 1 grain of Armour and still have a low basal

metabolism temp.

Much love,

Pamela

--- Every <denisee@...> wrote:

> BR,

>

> " Wired' would mean feeling very tense, anxious,

> edgy.

>

> You might also feel what are called paresthesias,

> prickly sensations in your

> limbs, some people call it feeling like they are

> being stuck with little

> pins, or 'pins and needles' sensation.

>

> You might also feel like your heart is racing or

> pounding, not related to

> exercise or exertion.

>

>

> It can also cause difficulty in sleeping.

>

>

>

>

>

> Re: please help

>

>

> > Gracia!

> >

> > The medicine I am taking is synthetic

> thyroxin(commercial name is

> > thyronorm in India!)What is the meaning of feeling

> " wired " .Please

> > explain.After how many days of increased dosage I

> will feel the normalcy?

> >

> > Reply me

> >

> > BR

> >

> >> BR I hope you will be feeling better. I don't

> know much about the med

> >> you

> >> take. Just be alert to feeling " wired " . On

> Armour thyroid the TSH

> >> should

> >> be almost zero, not sure aobut T4 meds.

> >> Gracia

> >>

> >>> Gracia!

> >>> With your guidance,I have increased my T4 dosage

> to 75 mcg after 60 days

> >>> of treatment.I hope to increase to 100 mcg after

> my T4,T3 ans TSH

> >>> tests.As

> >>> you have rightly pointed out I adjust my dosage

> as per my symptoms.

> >>>

> >>> BY the way is there any chance of me going to

> Hyper.If so,what will be

> >>> my

> >>> symptoms?

> >>>

>

__________________________________________________

[Guest guest]

Pamela,

If it is something you are really concerned about I would suggest

calling your doctor and getting their opinion.

> > >

> > >> BR,

> > >>

> > >> " Wired' would mean feeling very tense, anxious,

> > >> edgy.

> > >>

> > >> You might also feel what are called paresthesias,

> > >> prickly sensations in your

> > >> limbs, some people call it feeling like they are

> > >> being stuck with little

> > >> pins, or 'pins and needles' sensation.

> > >>

> > >> You might also feel like your heart is racing or

> > >> pounding, not related to

> > >> exercise or exertion.

> > >>

> > >>

> > >> It can also cause difficulty in sleeping.

> > >>

> > >>

> > >>

> > >>

> > >>

> > >> Re: please help

> > >>

> > >>

> > >> > Gracia!

> > >> >

> > >> > The medicine I am taking is synthetic

> > >> thyroxin(commercial name is

> > >> > thyronorm in India!)What is the meaning of

> > feeling

> > >> " wired " .Please

> > >> > explain.After how many days of increased dosage

> > I

> > >> will feel the normalcy?

> > >> >

> > >> > Reply me

> > >> >

> > >> > BR

> > >> >

> > >> >> BR I hope you will be feeling better. I

> > don't

> > >> know much about the med

> > >> >> you

> > >> >> take. Just be alert to feeling " wired " . On

> > >> Armour thyroid the TSH

> > >> >> should

> > >> >> be almost zero, not sure aobut T4 meds.

> > >> >> Gracia

> > >> >>

> > >> >>> Gracia!

> > >> >>> With your guidance,I have increased my T4

> > dosage

> > >> to 75 mcg after 60 days

> > >> >>> of treatment.I hope to increase to 100 mcg

> > after

> > >> my T4,T3 ans TSH

> > >> >>> tests.As

> > >> >>> you have rightly pointed out I adjust my

> > dosage

> > >> as per my symptoms.

> > >> >>>

> > >> >>> BY the way is there any chance of me going to

> > >> Hyper.If so,what will be

> > >> >>> my

> > >> >>> symptoms?

> > >> >>>

> > >>

> > >

> > > __________________________________________________

> > >