Bad day

[Guest guest]

,

My folks were pretty skeptical for awhile, but I just kept mailing them articles. Eventually they came around! I know it's hard . . . I was the one doing all these weird treatments for my son all these years while my sis is a pediatrician.

Barb

Bad day

I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost.

So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job.

I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!"

It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice.

I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do.

Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not.

Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org

[Guest guest]

I don't engage in debate with people who are educated by their

mainstream doctors (whose salaries depend on their disagreeing with

us vehemently) or sound bytes from media (whose revenue depends on

disagreeing with us vehemently). It's too frustrating and

insulting.

Some of my family members, who formerly thought I was an intelligent

person with some reasonable accomplishments, seem to feel I had my

brain surgically removed when my son was dx'd.

I like two quotes Dr. Buttar uses:

You can argue with a brick wall all day and at the end of the day,

it is still a brick wall.

For every progressive spirit, there are a thousand mediocre minds

working to guard the past.

Every day, I check off more and more mediocre minds. I spend my

energy healing my son, responding to action alerts, calling or

writing Congressmen, attending conferences, becoming more educated

and trying really hard to get my facts straight when I talk to

someone. Everyone has a different approach, but I highly recommend

NOT engaging with people who don't understand and don't care to.

Best of luck with your child.

Regards,

>

> ,

>

> My folks were pretty skeptical for awhile, but I just kept mailing

them articles. Eventually they came around! I know it's

hard . . . I was the one doing all these weird treatments for my

son all these years while my sis is a pediatrician.

>

> Barb

> Bad day

>

>

> I hope you don't mind if I vent but I have had a bad day. I was

talking to my mother last night and some how they had gotten on the

topic of chelation this past weekend when my brother, who is

studying special education at UGA, was at their house. She said that

he was concerned over us doing chelation (not doing it yet, just

starting the diet). I told her that we were going to wait until we

have him completely GFCF for a while. Some children have been

greatly helped by diet alone and we were going to try it before

thinking about chelation. She said that my sister-in-law (who has

read Evidence of Harm) said that she thought we should have Tyler on

the diet and do the chelation if needed. I think this all started

when they were talking about us going to the Great Plains clinic in

April and how much it was going to cost.

> So I e-mailed my sister-in-law this morning to thank her for

sticking by me. She then told me the rest of the story that I think

she thought I already knew. My brother said that he has talked to

parents and professionals that have said that chelation doesn't help

and it can be painful. He also doesn't think that the diet will help

(apparently more info from the parents and " professionals " ). He said

that autistic children go through enough with out having to be on a

strict diet. If Tyler wants a doughnut he should be able to have a

doughnut. (He can, as long as it is GFCF). The part that got me,

though, is when he said that autism can not be cured! He said the

best thing is to put them in a regular class room and let the

teachers do their job.

> I agree with my sister-in-law when she said " He is right, if you

do that to a child they won't ever be cured! "

> It just made me so mad. I thought my family was behind me in all

of this then find out they are pretty much mocking me behind my

back. I have doctors that I deal with all the time telling me I am

wrong. A little family support would be nice.

> I sent them a nice e-mail with a link to autismmedia.org and

told them to check it out. I told them there was a lot there on

chelation and the diet to better educate them. I told them that I

know what is out there in the media and I don't trust the media or

their " scientist " that they say back the facts up. What I believe is

the parents that I have talked to that have watched their children

fade in front of their eyes. These same parents have watched their

children re-emerge after chelation and diet intervention. I said

that I don't know that Tyler will be completely healed, but I won't

ever give up the fight. I told them that those who want to say that

autism is not curable are the ones that don't want you to know what

caused it. I said that I do believe that autism is curable and that

if I didn't believe that then it would mean that I had given up hope

on my son and that is not something that I am willing to do.

> Sorry, just had to vent. I obviously don't have anyone to talk

to about this now. Except my sister-in-law. Thank God for her. She

luckily is one that will tell you what she thinks whether you agree

with her or not.

>

> Truth has three stages:First it is ridiculed,then it is

violently opposed,finally it is accepted as self-evident.

> www.evidenceofharm.com

> www.generationrescue.org

> www.safeminds.org

>

>

>

[Guest guest]

If your child were diagnosed with cancer, you might have to administer chemotherapy which would be painful and may not cure the disease. Your brother is foolish to make these statements. Just let go of that balloon and focus on helping your child. You have all of us to talk to.

Keep the faith,

Heidi

From: " H. " <tylerhaley01@...>Reply-EOHarm To: <EOHarm >,"autismbiomedGA" <autismbiomedGA >Subject: Bad dayDate: Wed, 22 Feb 2006 19:03:03 -0500

I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost.

So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job.

I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!"

It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice.

I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do.

Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not.

Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org

[Guest guest]

A perfect analogy, Heidi! Chemotherapy is horribly toxic and some folks don't

survive it.

Chelation has a MUCH better track record...and yet it's attacked. Go figure.

When big

pharma find out how to capitalize on it, it won't be attacked anymore...

[Guest guest]

I agree with 's comments. My short background will lift you up a little

higher I hope.

My father is retired from Elli Lilly in the research division of blood disease

and cancer. Can you imagine his response when my Autistic Son, his grandson was

and is going through chelation rather than the drug regiment offered by Riley

Hospital? We decided to put our son on the diet when he was 2 ½ and non

verbal(after his MMR regression). We started with Diary and he began to speak

almost immediately. We took the extra step and did away with all wheat products

and a light went on in this kid like you couldn't believe. He also began to have

a regular stool and no more stomach or intestinal pain.

My point is this - listen to your heart. He's your child and your

responsibility. As for your immediate family members attitude, if they loved and

cared for your son they would support you wholeheartedly and do whatever it

takes to support you -even mortgage their own homes to assist in getting your

son the necessary treatment to stop the damage. He may not fully recover from

Autism but then again he might. The GFCF diet may and probably will be life

long.

Thank God we had people with stronger backbone when our country was formed.

Van Dyke

Director of Safety

Summit Construction Co., Inc.

1107 Burdsal Parkway

Indianapolis, IN 46208

317-634-6112

317-264-2529 fx

317-710-6685 cell

>>> tylerhaley01@... 02/22/06 07:03PM >>>

I hope you don't mind if I vent but I have had a bad day. I was talking to my

mother last night and some how they had gotten on the topic of chelation this

past weekend when my brother, who is studying special education at UGA, was at

their house. She said that he was concerned over us doing chelation (not doing

it yet, just starting the diet). I told her that we were going to wait until we

have him completely GFCF for a while. Some children have been greatly helped by

diet alone and we were going to try it before thinking about chelation. She said

that my sister-in-law (who has read Evidence of Harm) said that she thought we

should have Tyler on the diet and do the chelation if needed. I think this all

started when they were talking about us going to the Great Plains clinic in

April and how much it was going to cost.

So I e-mailed my sister-in-law this morning to thank her for sticking by me. She

then told me the rest of the story that I think she thought I already knew. My

brother said that he has talked to parents and professionals that have said that

chelation doesn't help and it can be painful. He also doesn't think that the

diet will help (apparently more info from the parents and " professionals " ). He

said that autistic children go through enough with out having to be on a strict

diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can,

as long as it is GFCF). The part that got me, though, is when he said that

autism can not be cured! He said the best thing is to put them in a regular

class room and let the teachers do their job.

I agree with my sister-in-law when she said " He is right, if you do that to a

child they won't ever be cured! "

It just made me so mad. I thought my family was behind me in all of this then

find out they are pretty much mocking me behind my back. I have doctors that I

deal with all the time telling me I am wrong. A little family support would be

nice.

I sent them a nice e-mail with a link to autismmedia.org and told them to check

it out. I told them there was a lot there on chelation and the diet to better

educate them. I told them that I know what is out there in the media and I don't

trust the media or their " scientist " that they say back the facts up. What I

believe is the parents that I have talked to that have watched their children

fade in front of their eyes. These same parents have watched their children

re-emerge after chelation and diet intervention. I said that I don't know that

Tyler will be completely healed, but I won't ever give up the fight. I told them

that those who want to say that autism is not curable are the ones that don't

want you to know what caused it. I said that I do believe that autism is curable

and that if I didn't believe that then it would mean that I had given up hope on

my son and that is not something that I am willing to do.

Sorry, just had to vent. I obviously don't have anyone to talk to about this

now. Except my sister-in-law. Thank God for her. She luckily is one that will

tell you what she thinks whether you agree with her or not.

Truth has three stages:First it is ridiculed,then it is violently

opposed,finally it is accepted as self-evident.

www.evidenceofharm.com

www.generationrescue.org

www.safeminds.org

[Guest guest]

>

> OMG- don't even get me started on the diet--- donuts! OMG.

>

> the diet was the best thing we did with my son.

>

> let's the teachers do their job? OMG most regular ed teachers suck

when it

> comes to our children. Not their fault- they don't have the proper

> training.

>

> You know what - you are going to have hundreds of people

disagree with

> something you are doing- and you will have hundreds agree.... stay

strong

> in YOUR belief- because that is the only thing that matters.

>

> The other day a woman was telling my dad that vaccines are totally

safe and

> he looked at me and I looked at him-- and I just let her go off- after

> trying a few arguments... but i realized- there was no use. You

just have

> to let it go.

>

> Do your thing--- the WHOLE world will never agree. But, they don't

have to.

> you're the mom

>

>

>

What is OMG?

[Guest guest]

That's probably ok All of our family members just desserted us. My sister in law told me to put my child in a home. How understanding can you get??? My daughter has gone from severe autism to past high functioning. We are of course doing the biomedical supplements, diet, chelation, hyperbarics, therapies and we have been through the ABA. Now where is my prize as my daughter puts it. Someday the whole truth will come out and people will get a good education. But until then we just have to take care of first our children. Help them to have a life on their own when they are grown. Pray to God that people become honest so that not another child will be injured. Pray for God's mercy and healing powers. God bless all of you.

[Guest guest]

I completely understand where you are coming from. My little girl

will be 7 years old next month and has been GF\CF, soy free, and

peanut free for 4 years. I got a lot of grief as well in the

beginning, but I had to get a little nasty with people until they

got off of my back. I have, however, a few days ago began giving

her enzymes before each meal and discovered that when she has the

enzymes and then eats something non GF\CF that she does not react.

In fact, she has become a lot less irritable and anxious. I am not

sure exactly how to explain it, but maybe her gut has healed from

the 4 year strict diet. I am being very careful to monitor what

kinds of breaks are in her diet and how much of the " off " diet foods

that she is getting. I am also watching for regression or any new

behaviors. So far, all is well. The diet is tough, but well worth

it. People will eventually calm down! Hang in there.

As for the school issue, well that is my issue right now. I am now

homeschooling my daughter because the elementary school that she was

in decided to restrain her on the floor for 20 minutes. She was

restrained by the assistant principal. There was no positive

behavior plan in place and none of the sensory equipment was there

per the IEP. She was bouncing in a chair in circle time and messing

with her panties, so they decided to put another child's shorts on

her which sent her into a sensory overload. The assistants kept

forcing the shorts on her, so she hit the assistant. This was their

reasoning for then putting her into a hold and bruising her. She

urinated in her bed for over a week. To make matters worse, the

special ed. director of my county stated to my husband and I at our

emergency IEP meeting after the restraint that " you should be

greatful that there are teachers who are willing to go to school and

work for peanuts to teach your problem child " . This is the attitude

of the school district that I am dealing with. YEAH!

I completely understand why you are so frustrated. I get little

family support either.

God Bless!

Tara

>

> I hope you don't mind if I vent but I have had a bad day. I was

talking to my mother last night and some how they had gotten on the

topic of chelation this past weekend when my brother, who is

studying special education at UGA, was at their house. She said that

he was concerned over us doing chelation (not doing it yet, just

starting the diet). I told her that we were going to wait until we

have him completely GFCF for a while. Some children have been

greatly helped by diet alone and we were going to try it before

thinking about chelation. She said that my sister-in-law (who has

read Evidence of Harm) said that she thought we should have Tyler on

the diet and do the chelation if needed. I think this all started

when they were talking about us going to the Great Plains clinic in

April and how much it was going to cost.

> So I e-mailed my sister-in-law this morning to thank her for

sticking by me. She then told me the rest of the story that I think

she thought I already knew. My brother said that he has talked to

parents and professionals that have said that chelation doesn't help

and it can be painful. He also doesn't think that the diet will help

(apparently more info from the parents and " professionals " ). He said

that autistic children go through enough with out having to be on a

strict diet. If Tyler wants a doughnut he should be able to have a

doughnut. (He can, as long as it is GFCF). The part that got me,

though, is when he said that autism can not be cured! He said the

best thing is to put them in a regular class room and let the

teachers do their job.

> I agree with my sister-in-law when she said " He is right, if you

do that to a child they won't ever be cured! "

> It just made me so mad. I thought my family was behind me in all

of this then find out they are pretty much mocking me behind my

back. I have doctors that I deal with all the time telling me I am

wrong. A little family support would be nice.

> I sent them a nice e-mail with a link to autismmedia.org and told

them to check it out. I told them there was a lot there on chelation

and the diet to better educate them. I told them that I know what is

out there in the media and I don't trust the media or

their " scientist " that they say back the facts up. What I believe is

the parents that I have talked to that have watched their children

fade in front of their eyes. These same parents have watched their

children re-emerge after chelation and diet intervention. I said

that I don't know that Tyler will be completely healed, but I won't

ever give up the fight. I told them that those who want to say that

autism is not curable are the ones that don't want you to know what

caused it. I said that I do believe that autism is curable and that

if I didn't believe that then it would mean that I had given up hope

on my son and that is not something that I am willing to do.

> Sorry, just had to vent. I obviously don't have anyone to talk to

about this now. Except my sister-in-law. Thank God for her. She

luckily is one that will tell you what she thinks whether you agree

with her or not.

>

> Truth has three stages:First it is ridiculed,then it is violently

opposed,finally it is accepted as self-evident.

> www.evidenceofharm.com

> www.generationrescue.org

> www.safeminds.org

>

[Guest guest]

Tara, that is awful the way the school treated your daughter. I am debating

on home schooling Tyler next year. I am really wanting to stay home with him

but at the same time have to continue to work to afford the GFCF foods and

supplements that we have to give him. After we attend this clinic in April

and see about what our monthly bills are going to be I may can work more on

a budget that will allow me more time at home. It is hard working 40+ and

trying to cook his meals. I have to send his meals to school since they

won't help with this diet. This means getting up at 5 am cooking his

breakfast, getting ready for work, getting him on the bus, driving 30

minutes to work, get off of work at 4:30, drive 45 minutes home (30 mins.

plus time to daycare then home),get home at 5:15, cook supper for the

family, bathe kids while my husband cleans kitchen and loads the dish

washer, do " story time " with the kids before getting them into bed at 8. I

do good if I am in bed by 9 so I can get 8 hours of sleep. Doesn't leave

much time for myself and it is really beginning to wear on me. I have no

energy or time to work with Tyler the way that I should.

All will work out in the end, I guess. Thanks for your support, though. I am

learning to tell others where to stick it, so to speak, when they want to

tell me that I am going about this all wrong. My child and I will decide

what is right for him.

Re: Bad day

>I completely understand where you are coming from. My little girl

> will be 7 years old next month and has been GF\CF, soy free, and

> peanut free for 4 years. I got a lot of grief as well in the

> beginning, but I had to get a little nasty with people until they

> got off of my back. I have, however, a few days ago began giving

> her enzymes before each meal and discovered that when she has the

> enzymes and then eats something non GF\CF that she does not react.

> In fact, she has become a lot less irritable and anxious. I am not

> sure exactly how to explain it, but maybe her gut has healed from

> the 4 year strict diet. I am being very careful to monitor what

> kinds of breaks are in her diet and how much of the " off " diet foods

> that she is getting. I am also watching for regression or any new

> behaviors. So far, all is well. The diet is tough, but well worth

> it. People will eventually calm down! Hang in there.

>

> As for the school issue, well that is my issue right now. I am now

> homeschooling my daughter because the elementary school that she was

> in decided to restrain her on the floor for 20 minutes. She was

> restrained by the assistant principal. There was no positive

> behavior plan in place and none of the sensory equipment was there

> per the IEP. She was bouncing in a chair in circle time and messing

> with her panties, so they decided to put another child's shorts on

> her which sent her into a sensory overload. The assistants kept

> forcing the shorts on her, so she hit the assistant. This was their

> reasoning for then putting her into a hold and bruising her. She

> urinated in her bed for over a week. To make matters worse, the

> special ed. director of my county stated to my husband and I at our

> emergency IEP meeting after the restraint that " you should be

> greatful that there are teachers who are willing to go to school and

> work for peanuts to teach your problem child " . This is the attitude

> of the school district that I am dealing with. YEAH!

>

> I completely understand why you are so frustrated. I get little

> family support either.

>

> God Bless!

> Tara

>

>

>

>

>

>

>>

>> I hope you don't mind if I vent but I have had a bad day. I was

> talking to my mother last night and some how they had gotten on the

> topic of chelation this past weekend when my brother, who is

> studying special education at UGA, was at their house. She said that

> he was concerned over us doing chelation (not doing it yet, just

> starting the diet). I told her that we were going to wait until we

> have him completely GFCF for a while. Some children have been

> greatly helped by diet alone and we were going to try it before

> thinking about chelation. She said that my sister-in-law (who has

> read Evidence of Harm) said that she thought we should have Tyler on

> the diet and do the chelation if needed. I think this all started

> when they were talking about us going to the Great Plains clinic in

> April and how much it was going to cost.

>> So I e-mailed my sister-in-law this morning to thank her for

> sticking by me. She then told me the rest of the story that I think

> she thought I already knew. My brother said that he has talked to

> parents and professionals that have said that chelation doesn't help

> and it can be painful. He also doesn't think that the diet will help

> (apparently more info from the parents and " professionals " ). He said

> that autistic children go through enough with out having to be on a

> strict diet. If Tyler wants a doughnut he should be able to have a

> doughnut. (He can, as long as it is GFCF). The part that got me,

> though, is when he said that autism can not be cured! He said the

> best thing is to put them in a regular class room and let the

> teachers do their job.

>> I agree with my sister-in-law when she said " He is right, if you

> do that to a child they won't ever be cured! "

>> It just made me so mad. I thought my family was behind me in all

> of this then find out they are pretty much mocking me behind my

> back. I have doctors that I deal with all the time telling me I am

> wrong. A little family support would be nice.

>> I sent them a nice e-mail with a link to autismmedia.org and told

> them to check it out. I told them there was a lot there on chelation

> and the diet to better educate them. I told them that I know what is

> out there in the media and I don't trust the media or

> their " scientist " that they say back the facts up. What I believe is

> the parents that I have talked to that have watched their children

> fade in front of their eyes. These same parents have watched their

> children re-emerge after chelation and diet intervention. I said

> that I don't know that Tyler will be completely healed, but I won't

> ever give up the fight. I told them that those who want to say that

> autism is not curable are the ones that don't want you to know what

> caused it. I said that I do believe that autism is curable and that

> if I didn't believe that then it would mean that I had given up hope

> on my son and that is not something that I am willing to do.

>> Sorry, just had to vent. I obviously don't have anyone to talk to

> about this now. Except my sister-in-law. Thank God for her. She

> luckily is one that will tell you what she thinks whether you agree

> with her or not.

>>

>> Truth has three stages:First it is ridiculed,then it is violently

> opposed,finally it is accepted as self-evident.

>> www.evidenceofharm.com

>> www.generationrescue.org

>> www.safeminds.org

>>

>

>

>

>

>

>

>

>

[Guest guest]

I was reading a copy of The Advocate from ASA. It stated something in

there about not letting autism rule everything, that it's only one

aspect of our kids. Tara put it a great way, how can we not let it

overwhelm us when we can't find the medical support we need, we are

constantly battling schools, churches won't let us bring our kids, and

our families desert us? If we had family support, our churches embrace

our kids, and we didn't have to constantly fight the school system,

while getting good medical care, then it would become a very small

part of our lives.

Until then...

Debi

[Guest guest]

I wish your family could see my son's before and after... We've done GFCF for

almost 3

years now, along with supplements and traditional therapies. My son will go to

typical

kindergarten next fall with no aide. He is almost indistinguishable from his

peers (he is 5

now). We did a short course of chelation almost a year ago, and it did wipe him

out

physically so we have not done any more. For my son, the top three

interventions are 1)

the diet (GFCF, soy & corn-limited, Feingold, and peanut/nut free as he has

anaphylaxis to

these); 2) Supplements - B6/Mag, Zinc & especially MB12!!; 3) traditional

therapies (ABA

for 2 years-no longer needed, Speech, OT, Social skills).

My family thought I was a " wacko " at the beginning, but they've completely

turned around

after seeing the progress my son has made. They will never again suggest that

diet

doesn't work miracles (at least for my son). Just go with your gut. If I'd

listened to my

parents or the doctor who gave my son his dx about the diet, I would probably

still have a

non-verbal, self-injurious, spaced out kid in a self-contained classroom with no

friends.

I'm sure glad I didn't listen to the " critics " .

Kirstin

Mom to Ian (mostly recovered from ASD, 5.5 yrs) and Sophie (NT, 3.5 yrs)

>

> I hope you don't mind if I vent but I have had a bad day. I was talking to my

mother last

night and some how they had gotten on the topic of chelation this past weekend

when my

brother, who is studying special education at UGA, was at their house. She said

that he

was concerned over us doing chelation (not doing it yet, just starting the

diet). I told her

that we were going to wait until we have him completely GFCF for a while. Some

children

have been greatly helped by diet alone and we were going to try it before

thinking about

chelation. She said that my sister-in-law (who has read Evidence of Harm) said

that she

thought we should have Tyler on the diet and do the chelation if needed. I think

this all

started when they were talking about us going to the Great Plains clinic in

April and how

much it was going to cost.

> So I e-mailed my sister-in-law this morning to thank her for sticking by me.

She then

told me the rest of the story that I think she thought I already knew. My

brother said that

he has talked to parents and professionals that have said that chelation doesn't

help and it

can be painful. He also doesn't think that the diet will help (apparently more

info from the

parents and " professionals " ). He said that autistic children go through enough

with out

having to be on a strict diet. If Tyler wants a doughnut he should be able to

have a

doughnut. (He can, as long as it is GFCF). The part that got me, though, is when

he said

that autism can not be cured! He said the best thing is to put them in a regular

class room

and let the teachers do their job.

> I agree with my sister-in-law when she said " He is right, if you do that to a

child they

won't ever be cured! "

> It just made me so mad. I thought my family was behind me in all of this then

find out

they are pretty much mocking me behind my back. I have doctors that I deal with

all the

time telling me I am wrong. A little family support would be nice.

> I sent them a nice e-mail with a link to autismmedia.org and told them to

check it out. I

told them there was a lot there on chelation and the diet to better educate

them. I told

them that I know what is out there in the media and I don't trust the media or

their

" scientist " that they say back the facts up. What I believe is the parents that

I have talked

to that have watched their children fade in front of their eyes. These same

parents have

watched their children re-emerge after chelation and diet intervention. I said

that I don't

know that Tyler will be completely healed, but I won't ever give up the fight. I

told them

that those who want to say that autism is not curable are the ones that don't

want you to

know what caused it. I said that I do believe that autism is curable and that if

I didn't

believe that then it would mean that I had given up hope on my son and that is

not

something that I am willing to do.

> Sorry, just had to vent. I obviously don't have anyone to talk to about this

now. Except

my sister-in-law. Thank God for her. She luckily is one that will tell you what

she thinks

whether you agree with her or not.

>

> Truth has three stages:First it is ridiculed,then it is violently

opposed,finally it is

accepted as self-evident.

> www.evidenceofharm.com

> www.generationrescue.org

> www.safeminds.org

>

[Guest guest]

Tara,

I've been thinking about slipping a non-GFCF item into my Sons diet. The last

time (two years ago)he took one small bite of a saltine (at church) he had such

bad diarrhea he wanted to go to the hospital. Has anything changed? He's been on

the diet for 5 years now and taking all the vits and suppls you can name. He is

doing great most of the time.

As for your episode at school - our sweet boy was restrained on the floor by

the secretaries because his Helper was busy assisting the classroom due to the

teacher and his specialists being in an IEP conference that could not be

interrupted. He used to go to the Principals office for stress relief as he

likes to read her books. She wanted to go eat lunch and left him alone with

other " Problem " students. He wanted to go back to his resource room and started

to leave and the secretaries only way to stop him was to hold him down on the

floor. The Principal came back from her undisturbed lunch time and decided to

place him in her office with locked doors and her. He wanted out and tried to go

through her and as he put it " someone pushed me down and I got injured " . Of

course the Administrations response was that as long as he wasn't disruptive, or

absent or tardy he could continue going to school. Needless to say we have made

the move from that school district and he will be attending a new school next

year. I also understand that many of his Therapists from the original school

will be making the move also. I don't know of a teacher who works for peanuts in

our area. Mid $40's and up with summers off. Don't get me started on family

support. Thanks for sharing - it helps.

Van Dyke

Director of Safety

Summit Construction Co., Inc.

1107 Burdsal Parkway

Indianapolis, IN 46208

317-634-6112

317-264-2529 fx

317-710-6685 cell

>>> believeforbrooke@... 02/24/06 07:24PM >>>

I completely understand where you are coming from. My little girl

will be 7 years old next month and has been GF\CF, soy free, and

peanut free for 4 years. I got a lot of grief as well in the

beginning, but I had to get a little nasty with people until they

got off of my back. I have, however, a few days ago began giving

her enzymes before each meal and discovered that when she has the

enzymes and then eats something non GF\CF that she does not react.

In fact, she has become a lot less irritable and anxious. I am not

sure exactly how to explain it, but maybe her gut has healed from

the 4 year strict diet. I am being very careful to monitor what

kinds of breaks are in her diet and how much of the " off " diet foods

that she is getting. I am also watching for regression or any new

behaviors. So far, all is well. The diet is tough, but well worth

it. People will eventually calm down! Hang in there.

As for the school issue, well that is my issue right now. I am now

homeschooling my daughter because the elementary school that she was

in decided to restrain her on the floor for 20 minutes. She was

restrained by the assistant principal. There was no positive

behavior plan in place and none of the sensory equipment was there

per the IEP. She was bouncing in a chair in circle time and messing

with her panties, so they decided to put another child's shorts on

her which sent her into a sensory overload. The assistants kept

forcing the shorts on her, so she hit the assistant. This was their

reasoning for then putting her into a hold and bruising her. She

urinated in her bed for over a week. To make matters worse, the

special ed. director of my county stated to my husband and I at our

emergency IEP meeting after the restraint that " you should be

greatful that there are teachers who are willing to go to school and

work for peanuts to teach your problem child " . This is the attitude

of the school district that I am dealing with. YEAH!

I completely understand why you are so frustrated. I get little

family support either.

God Bless!

Tara

>

> I hope you don't mind if I vent but I have had a bad day. I was

talking to my mother last night and some how they had gotten on the

topic of chelation this past weekend when my brother, who is

studying special education at UGA, was at their house. She said that

he was concerned over us doing chelation (not doing it yet, just

starting the diet). I told her that we were going to wait until we

have him completely GFCF for a while. Some children have been

greatly helped by diet alone and we were going to try it before

thinking about chelation. She said that my sister-in-law (who has

read Evidence of Harm) said that she thought we should have Tyler on

the diet and do the chelation if needed. I think this all started

when they were talking about us going to the Great Plains clinic in

April and how much it was going to cost.

> So I e-mailed my sister-in-law this morning to thank her for

sticking by me. She then told me the rest of the story that I think

she thought I already knew. My brother said that he has talked to

parents and professionals that have said that chelation doesn't help

and it can be painful. He also doesn't think that the diet will help

(apparently more info from the parents and " professionals " ). He said

that autistic children go through enough with out having to be on a

strict diet. If Tyler wants a doughnut he should be able to have a

doughnut. (He can, as long as it is GFCF). The part that got me,

though, is when he said that autism can not be cured! He said the

best thing is to put them in a regular class room and let the

teachers do their job.

> I agree with my sister-in-law when she said " He is right, if you

do that to a child they won't ever be cured! "

> It just made me so mad. I thought my family was behind me in all

of this then find out they are pretty much mocking me behind my

back. I have doctors that I deal with all the time telling me I am

wrong. A little family support would be nice.

> I sent them a nice e-mail with a link to autismmedia.org and told

them to check it out. I told them there was a lot there on chelation

and the diet to better educate them. I told them that I know what is

out there in the media and I don't trust the media or

their " scientist " that they say back the facts up. What I believe is

the parents that I have talked to that have watched their children

fade in front of their eyes. These same parents have watched their

children re-emerge after chelation and diet intervention. I said

that I don't know that Tyler will be completely healed, but I won't

ever give up the fight. I told them that those who want to say that

autism is not curable are the ones that don't want you to know what

caused it. I said that I do believe that autism is curable and that

if I didn't believe that then it would mean that I had given up hope

on my son and that is not something that I am willing to do.

> Sorry, just had to vent. I obviously don't have anyone to talk to

about this now. Except my sister-in-law. Thank God for her. She

luckily is one that will tell you what she thinks whether you agree

with her or not.

>

> Truth has three stages:First it is ridiculed,then it is violently

opposed,finally it is accepted as self-evident.

> www.evidenceofharm.com

> www.generationrescue.org

> www.safeminds.org

>

[Guest guest]

Thanks GM - the end result was that my son did have a massive rage, others

kids were in the office and the school called and insisted I come pick him

up. When I went to get him I started talking to the secretary about his

anxiety and she encouraged me to handle it the way my gut feeling as a mom

thinks. She told me she has a grown son that is in a huge mess right now,

drug addiction, suicidal and now looking back on it she wish she had done

something different. She was very supportive through out the whole ordeal.

Then I had another mom in the office over hear our conversation and said she

was going through the same thing with her child. Kind of a neat time with

these people at school after all. Nice to have everyones support and

kindness.

_____

From:

[mailto: ] On Behalf Of Glenda ez

Sent: Wednesday, August 30, 2006 5:33 PM

Subject: Re: Bad Day

DP~

How horrible for your poor son. I've recieved those same phone calls and

when they're crying on the other end of the phone line you feel so helpless.

Hang in there and keep educating the teachers, principal, etc.

GM

adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com>

wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

All-new - Fire up a more powerful email and get things done

faster.

[Guest guest]

In a message dated 8/30/2006 11:06:39 A.M. Eastern Standard Time,

cward_ri@... writes:

The bus driver needs to be talked to as well as the principal. All schools

should have a no bullying policy that is strictly enforced. The principal

should call those boys down and be tough.

-

I agree 100%. There is no reason for any child to have to suffer & put up

with this type of thing -- with all we know about bullying these days. Nip it

in the bud!!!

LT

[Guest guest]

A school can deal with the issue without having to bring up any names. My

daughter had an issue with a boy and she begged me not to report it. Since it

was

something that really needed to be reported I called the guidance counselor

and we did the whole thing anonymously. The GC said because there were other

children around anyone could have reported it. This could be the same for your

child, since it occurred on the bus. In my daughter's case the boy got 3 days

suspension and he, nor my daughter, ever knew who reported it. This was in 7th

grade. Good luck. Kim

In a message dated 8/30/2006 11:12:10 AM Central Standard Time,

adelem@... writes:

My son is 9. The school wanted to talk with the boys and advised to do so,

my son and I actually asked them not to this time. These kids all live in

our neighborhood, they are calling him mommas boy and baby. I am afraid for

them to know he told on them would make it all worse. I really just want to

drive him for now and make it not a issue for awhile until he adjust to

school. We will see.

[Guest guest]

A school can deal with the issue without having to bring up any names. My

daughter had an issue with a boy and she begged me not to report it. Since it

was

something that really needed to be reported I called the guidance counselor

and we did the whole thing anonymously. The GC said because there were other

children around anyone could have reported it. This could be the same for your

child, since it occurred on the bus. In my daughter's case the boy got 3 days

suspension and he, nor my daughter, ever knew who reported it. This was in 7th

grade. Good luck. Kim

In a message dated 8/30/2006 11:12:10 AM Central Standard Time,

adelem@... writes:

My son is 9. The school wanted to talk with the boys and advised to do so,

my son and I actually asked them not to this time. These kids all live in

our neighborhood, they are calling him mommas boy and baby. I am afraid for

them to know he told on them would make it all worse. I really just want to

drive him for now and make it not a issue for awhile until he adjust to

school. We will see.

[Guest guest]

How old is your son?

First, the bullying needs to be stopped IMMEDIATELY. Can this neighbor whose

son felt bad have her son sit with yours and kind of stick up for him? Most

" good " kids love to be asked.

The bus driver needs to be talked to as well as the principal. All schools

should have a no bullying policy that is strictly enforced. The principal

should call those boys down and be tough.

My son had bus problems also this year, but talking to the bus driver helped

TREMENDOUSLY and helping him to find where is best for him to sit was great. He

is 11 and is on the same bus as K-12, so his problem came from high schoolers.

Now he just stays right in the middle.

My heart goes out to you. That is not the start I know you were hoping for.

adelem1232000 <adelem@...> wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

I think all the moms on this board would love to go sit on that school bus and

show those 5th graders what bullying feels like!!! You DO NOT mess with our

kids!!!

adelem1232000 <adelem@...> wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Go Girl!!

_____

From:

[mailto: ] On Behalf Of c ward

Sent: Wednesday, August 30, 2006 11:08 AM

Subject: Re: Bad Day

I think all the moms on this board would love to go sit on that school bus

and show those 5th graders what bullying feels like!!! You DO NOT mess with

our kids!!!

adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com>

wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

My son is 9. The school wanted to talk with the boys and advised to do so,

my son and I actually asked them not to this time. These kids all live in

our neighborhood, they are calling him mommas boy and baby. I am afraid for

them to know he told on them would make it all worse. I really just want to

drive him for now and make it not a issue for awhile until he adjust to

school. We will see.

_____

From:

[mailto: ] On Behalf Of c ward

Sent: Wednesday, August 30, 2006 11:04 AM

Subject: Re: Bad Day

How old is your son?

First, the bullying needs to be stopped IMMEDIATELY. Can this neighbor whose

son felt bad have her son sit with yours and kind of stick up for him? Most

" good " kids love to be asked.

The bus driver needs to be talked to as well as the principal. All schools

should have a no bullying policy that is strictly enforced. The principal

should call those boys down and be tough.

My son had bus problems also this year, but talking to the bus driver helped

TREMENDOUSLY and helping him to find where is best for him to sit was great.

He is 11 and is on the same bus as K-12, so his problem came from high

schoolers. Now he just stays right in the middle.

My heart goes out to you. That is not the start I know you were hoping for.

adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com>

wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

All-new - Fire up a more powerful email and get things done

faster.

[Guest guest]

DP~

How horrible for your poor son. I've recieved those same phone calls and when

they're crying on the other end of the phone line you feel so helpless. Hang in

there and keep educating the teachers, principal, etc.

GM

adelem1232000 <adelem@...> wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

DP~

How horrible for your poor son. I've recieved those same phone calls and when

they're crying on the other end of the phone line you feel so helpless. Hang in

there and keep educating the teachers, principal, etc.

GM

adelem1232000 <adelem@...> wrote:

My poor son, came home yesterday and 3 5th graders bullied him on the

bus about wanting to sit in the back. He didn't even tell me but a

neighbor called to let me know because her son felt bad. Then his

biggest fear is storms and we wake up with cloudy skies today. He was

exhausted this morning and could hardly get him on the bus. The school

called at 9 that he is complaining of stomach ache. We realized that

he needed food because of his meds and asked the school to feed him

and wait and see. Called back he is having a melt down. I just talked

with him and totally melted down on me. Secretary just grabbed the

phone and got the principal to go talk to him. Ugg. Last week he had

this terrible full blown rage and I am worried to death he is going to

do that at school and everyone will hear and see. I am being advised

by everyone to not go and rescue him, but this is hard.

I hate this!!!

DP

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

I would definitely put it in writing and if you have a mark on your

window where the sticker had fallen from I would take a pic of that as

well. Don't these smart a*s*d b's get away with treating you like shite.

Mazz

rellybells wrote:

>

> my heart feels like its beating out of my chest wish this feeling

> would stop. Eating crap as well just to make me feel better. why

> cant we get off this food cycle.

> thats not the worst part

> I went to kmart today and got booked $394.00 fine for parking in a

> disabled park. But I have a disabled sticker, it had fallen on the

> floor. I asked the grey bomer if everythig was ok, he said iwas

> illagally parked, showed him my sticker that had fallen off the

> windshield onto the floor, and he wrote me out a fine anyway, and

> then told me I could either just pay it, og goto court, and all of

> this with a snigger. I was fuming.

> went straight to the council to winge about his behavior, and the

> mgr told me that lots of people lie and to put it in writing, and it

> would be dealt with in due course.

> So he implied that I was lying and fobbed me off, and told me that I

> should take the issue with the suction that holds the permit on the

> window up with the manufactures.

> my heart is already racing without this sort of day.

> oh well look on the bright side was too busy to eat crap today

> naz

>

>

[Guest guest]

I would definitely put it in writing and if you have a mark on your

window where the sticker had fallen from I would take a pic of that as

well. Don't these smart a*s*d b's get away with treating you like shite.

Mazz

rellybells wrote:

>

> my heart feels like its beating out of my chest wish this feeling

> would stop. Eating crap as well just to make me feel better. why

> cant we get off this food cycle.

> thats not the worst part

> I went to kmart today and got booked $394.00 fine for parking in a

> disabled park. But I have a disabled sticker, it had fallen on the

> floor. I asked the grey bomer if everythig was ok, he said iwas

> illagally parked, showed him my sticker that had fallen off the

> windshield onto the floor, and he wrote me out a fine anyway, and

> then told me I could either just pay it, og goto court, and all of

> this with a snigger. I was fuming.

> went straight to the council to winge about his behavior, and the

> mgr told me that lots of people lie and to put it in writing, and it

> would be dealt with in due course.

> So he implied that I was lying and fobbed me off, and told me that I

> should take the issue with the suction that holds the permit on the

> window up with the manufactures.

> my heart is already racing without this sort of day.

> oh well look on the bright side was too busy to eat crap today

> naz

>

>

[Guest guest]

I would definitely put it in writing and if you have a mark on your

window where the sticker had fallen from I would take a pic of that as

well. Don't these smart a*s*d b's get away with treating you like shite.

Mazz

rellybells wrote:

>

> my heart feels like its beating out of my chest wish this feeling

> would stop. Eating crap as well just to make me feel better. why

> cant we get off this food cycle.

> thats not the worst part

> I went to kmart today and got booked $394.00 fine for parking in a

> disabled park. But I have a disabled sticker, it had fallen on the

> floor. I asked the grey bomer if everythig was ok, he said iwas

> illagally parked, showed him my sticker that had fallen off the

> windshield onto the floor, and he wrote me out a fine anyway, and

> then told me I could either just pay it, og goto court, and all of

> this with a snigger. I was fuming.

> went straight to the council to winge about his behavior, and the

> mgr told me that lots of people lie and to put it in writing, and it

> would be dealt with in due course.

> So he implied that I was lying and fobbed me off, and told me that I

> should take the issue with the suction that holds the permit on the

> window up with the manufactures.

> my heart is already racing without this sort of day.

> oh well look on the bright side was too busy to eat crap today

> naz

>

>