Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 , My folks were pretty skeptical for awhile, but I just kept mailing them articles. Eventually they came around! I know it's hard . . . I was the one doing all these weird treatments for my son all these years while my sis is a pediatrician. Barb Bad day I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!" It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I don't engage in debate with people who are educated by their mainstream doctors (whose salaries depend on their disagreeing with us vehemently) or sound bytes from media (whose revenue depends on disagreeing with us vehemently). It's too frustrating and insulting. Some of my family members, who formerly thought I was an intelligent person with some reasonable accomplishments, seem to feel I had my brain surgically removed when my son was dx'd. I like two quotes Dr. Buttar uses: You can argue with a brick wall all day and at the end of the day, it is still a brick wall. For every progressive spirit, there are a thousand mediocre minds working to guard the past. Every day, I check off more and more mediocre minds. I spend my energy healing my son, responding to action alerts, calling or writing Congressmen, attending conferences, becoming more educated and trying really hard to get my facts straight when I talk to someone. Everyone has a different approach, but I highly recommend NOT engaging with people who don't understand and don't care to. Best of luck with your child. Regards, > > , > > My folks were pretty skeptical for awhile, but I just kept mailing them articles. Eventually they came around! I know it's hard . . . I was the one doing all these weird treatments for my son all these years while my sis is a pediatrician. > > Barb > Bad day > > > I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. > So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. > I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " > It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. > I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. > Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. > > Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. > www.evidenceofharm.com > www.generationrescue.org > www.safeminds.org > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 If your child were diagnosed with cancer, you might have to administer chemotherapy which would be painful and may not cure the disease. Your brother is foolish to make these statements. Just let go of that balloon and focus on helping your child. You have all of us to talk to. Keep the faith, Heidi From: " H. " <tylerhaley01@...>Reply-EOHarm To: <EOHarm >,"autismbiomedGA" <autismbiomedGA >Subject: Bad dayDate: Wed, 22 Feb 2006 19:03:03 -0500 I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!" It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 A perfect analogy, Heidi! Chemotherapy is horribly toxic and some folks don't survive it. Chelation has a MUCH better track record...and yet it's attacked. Go figure. When big pharma find out how to capitalize on it, it won't be attacked anymore... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I agree with 's comments. My short background will lift you up a little higher I hope. My father is retired from Elli Lilly in the research division of blood disease and cancer. Can you imagine his response when my Autistic Son, his grandson was and is going through chelation rather than the drug regiment offered by Riley Hospital? We decided to put our son on the diet when he was 2 ½ and non verbal(after his MMR regression). We started with Diary and he began to speak almost immediately. We took the extra step and did away with all wheat products and a light went on in this kid like you couldn't believe. He also began to have a regular stool and no more stomach or intestinal pain. My point is this - listen to your heart. He's your child and your responsibility. As for your immediate family members attitude, if they loved and cared for your son they would support you wholeheartedly and do whatever it takes to support you -even mortgage their own homes to assist in getting your son the necessary treatment to stop the damage. He may not fully recover from Autism but then again he might. The GFCF diet may and probably will be life long. Thank God we had people with stronger backbone when our country was formed. Van Dyke Director of Safety Summit Construction Co., Inc. 1107 Burdsal Parkway Indianapolis, IN 46208 317-634-6112 317-264-2529 fx 317-710-6685 cell >>> tylerhaley01@... 02/22/06 07:03PM >>> I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. www.evidenceofharm.com www.generationrescue.org www.safeminds.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 > > OMG- don't even get me started on the diet--- donuts! OMG. > > the diet was the best thing we did with my son. > > let's the teachers do their job? OMG most regular ed teachers suck when it > comes to our children. Not their fault- they don't have the proper > training. > > You know what - you are going to have hundreds of people disagree with > something you are doing- and you will have hundreds agree.... stay strong > in YOUR belief- because that is the only thing that matters. > > The other day a woman was telling my dad that vaccines are totally safe and > he looked at me and I looked at him-- and I just let her go off- after > trying a few arguments... but i realized- there was no use. You just have > to let it go. > > Do your thing--- the WHOLE world will never agree. But, they don't have to. > you're the mom > > > What is OMG? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 That's probably ok All of our family members just desserted us. My sister in law told me to put my child in a home. How understanding can you get??? My daughter has gone from severe autism to past high functioning. We are of course doing the biomedical supplements, diet, chelation, hyperbarics, therapies and we have been through the ABA. Now where is my prize as my daughter puts it. Someday the whole truth will come out and people will get a good education. But until then we just have to take care of first our children. Help them to have a life on their own when they are grown. Pray to God that people become honest so that not another child will be injured. Pray for God's mercy and healing powers. God bless all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I completely understand where you are coming from. My little girl will be 7 years old next month and has been GF\CF, soy free, and peanut free for 4 years. I got a lot of grief as well in the beginning, but I had to get a little nasty with people until they got off of my back. I have, however, a few days ago began giving her enzymes before each meal and discovered that when she has the enzymes and then eats something non GF\CF that she does not react. In fact, she has become a lot less irritable and anxious. I am not sure exactly how to explain it, but maybe her gut has healed from the 4 year strict diet. I am being very careful to monitor what kinds of breaks are in her diet and how much of the " off " diet foods that she is getting. I am also watching for regression or any new behaviors. So far, all is well. The diet is tough, but well worth it. People will eventually calm down! Hang in there. As for the school issue, well that is my issue right now. I am now homeschooling my daughter because the elementary school that she was in decided to restrain her on the floor for 20 minutes. She was restrained by the assistant principal. There was no positive behavior plan in place and none of the sensory equipment was there per the IEP. She was bouncing in a chair in circle time and messing with her panties, so they decided to put another child's shorts on her which sent her into a sensory overload. The assistants kept forcing the shorts on her, so she hit the assistant. This was their reasoning for then putting her into a hold and bruising her. She urinated in her bed for over a week. To make matters worse, the special ed. director of my county stated to my husband and I at our emergency IEP meeting after the restraint that " you should be greatful that there are teachers who are willing to go to school and work for peanuts to teach your problem child " . This is the attitude of the school district that I am dealing with. YEAH! I completely understand why you are so frustrated. I get little family support either. God Bless! Tara > > I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. > So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. > I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " > It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. > I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. > Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. > > Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. > www.evidenceofharm.com > www.generationrescue.org > www.safeminds.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Tara, that is awful the way the school treated your daughter. I am debating on home schooling Tyler next year. I am really wanting to stay home with him but at the same time have to continue to work to afford the GFCF foods and supplements that we have to give him. After we attend this clinic in April and see about what our monthly bills are going to be I may can work more on a budget that will allow me more time at home. It is hard working 40+ and trying to cook his meals. I have to send his meals to school since they won't help with this diet. This means getting up at 5 am cooking his breakfast, getting ready for work, getting him on the bus, driving 30 minutes to work, get off of work at 4:30, drive 45 minutes home (30 mins. plus time to daycare then home),get home at 5:15, cook supper for the family, bathe kids while my husband cleans kitchen and loads the dish washer, do " story time " with the kids before getting them into bed at 8. I do good if I am in bed by 9 so I can get 8 hours of sleep. Doesn't leave much time for myself and it is really beginning to wear on me. I have no energy or time to work with Tyler the way that I should. All will work out in the end, I guess. Thanks for your support, though. I am learning to tell others where to stick it, so to speak, when they want to tell me that I am going about this all wrong. My child and I will decide what is right for him. Re: Bad day >I completely understand where you are coming from. My little girl > will be 7 years old next month and has been GF\CF, soy free, and > peanut free for 4 years. I got a lot of grief as well in the > beginning, but I had to get a little nasty with people until they > got off of my back. I have, however, a few days ago began giving > her enzymes before each meal and discovered that when she has the > enzymes and then eats something non GF\CF that she does not react. > In fact, she has become a lot less irritable and anxious. I am not > sure exactly how to explain it, but maybe her gut has healed from > the 4 year strict diet. I am being very careful to monitor what > kinds of breaks are in her diet and how much of the " off " diet foods > that she is getting. I am also watching for regression or any new > behaviors. So far, all is well. The diet is tough, but well worth > it. People will eventually calm down! Hang in there. > > As for the school issue, well that is my issue right now. I am now > homeschooling my daughter because the elementary school that she was > in decided to restrain her on the floor for 20 minutes. She was > restrained by the assistant principal. There was no positive > behavior plan in place and none of the sensory equipment was there > per the IEP. She was bouncing in a chair in circle time and messing > with her panties, so they decided to put another child's shorts on > her which sent her into a sensory overload. The assistants kept > forcing the shorts on her, so she hit the assistant. This was their > reasoning for then putting her into a hold and bruising her. She > urinated in her bed for over a week. To make matters worse, the > special ed. director of my county stated to my husband and I at our > emergency IEP meeting after the restraint that " you should be > greatful that there are teachers who are willing to go to school and > work for peanuts to teach your problem child " . This is the attitude > of the school district that I am dealing with. YEAH! > > I completely understand why you are so frustrated. I get little > family support either. > > God Bless! > Tara > > > > > > >> >> I hope you don't mind if I vent but I have had a bad day. I was > talking to my mother last night and some how they had gotten on the > topic of chelation this past weekend when my brother, who is > studying special education at UGA, was at their house. She said that > he was concerned over us doing chelation (not doing it yet, just > starting the diet). I told her that we were going to wait until we > have him completely GFCF for a while. Some children have been > greatly helped by diet alone and we were going to try it before > thinking about chelation. She said that my sister-in-law (who has > read Evidence of Harm) said that she thought we should have Tyler on > the diet and do the chelation if needed. I think this all started > when they were talking about us going to the Great Plains clinic in > April and how much it was going to cost. >> So I e-mailed my sister-in-law this morning to thank her for > sticking by me. She then told me the rest of the story that I think > she thought I already knew. My brother said that he has talked to > parents and professionals that have said that chelation doesn't help > and it can be painful. He also doesn't think that the diet will help > (apparently more info from the parents and " professionals " ). He said > that autistic children go through enough with out having to be on a > strict diet. If Tyler wants a doughnut he should be able to have a > doughnut. (He can, as long as it is GFCF). The part that got me, > though, is when he said that autism can not be cured! He said the > best thing is to put them in a regular class room and let the > teachers do their job. >> I agree with my sister-in-law when she said " He is right, if you > do that to a child they won't ever be cured! " >> It just made me so mad. I thought my family was behind me in all > of this then find out they are pretty much mocking me behind my > back. I have doctors that I deal with all the time telling me I am > wrong. A little family support would be nice. >> I sent them a nice e-mail with a link to autismmedia.org and told > them to check it out. I told them there was a lot there on chelation > and the diet to better educate them. I told them that I know what is > out there in the media and I don't trust the media or > their " scientist " that they say back the facts up. What I believe is > the parents that I have talked to that have watched their children > fade in front of their eyes. These same parents have watched their > children re-emerge after chelation and diet intervention. I said > that I don't know that Tyler will be completely healed, but I won't > ever give up the fight. I told them that those who want to say that > autism is not curable are the ones that don't want you to know what > caused it. I said that I do believe that autism is curable and that > if I didn't believe that then it would mean that I had given up hope > on my son and that is not something that I am willing to do. >> Sorry, just had to vent. I obviously don't have anyone to talk to > about this now. Except my sister-in-law. Thank God for her. She > luckily is one that will tell you what she thinks whether you agree > with her or not. >> >> Truth has three stages:First it is ridiculed,then it is violently > opposed,finally it is accepted as self-evident. >> www.evidenceofharm.com >> www.generationrescue.org >> www.safeminds.org >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I was reading a copy of The Advocate from ASA. It stated something in there about not letting autism rule everything, that it's only one aspect of our kids. Tara put it a great way, how can we not let it overwhelm us when we can't find the medical support we need, we are constantly battling schools, churches won't let us bring our kids, and our families desert us? If we had family support, our churches embrace our kids, and we didn't have to constantly fight the school system, while getting good medical care, then it would become a very small part of our lives. Until then... Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 I wish your family could see my son's before and after... We've done GFCF for almost 3 years now, along with supplements and traditional therapies. My son will go to typical kindergarten next fall with no aide. He is almost indistinguishable from his peers (he is 5 now). We did a short course of chelation almost a year ago, and it did wipe him out physically so we have not done any more. For my son, the top three interventions are 1) the diet (GFCF, soy & corn-limited, Feingold, and peanut/nut free as he has anaphylaxis to these); 2) Supplements - B6/Mag, Zinc & especially MB12!!; 3) traditional therapies (ABA for 2 years-no longer needed, Speech, OT, Social skills). My family thought I was a " wacko " at the beginning, but they've completely turned around after seeing the progress my son has made. They will never again suggest that diet doesn't work miracles (at least for my son). Just go with your gut. If I'd listened to my parents or the doctor who gave my son his dx about the diet, I would probably still have a non-verbal, self-injurious, spaced out kid in a self-contained classroom with no friends. I'm sure glad I didn't listen to the " critics " . Kirstin Mom to Ian (mostly recovered from ASD, 5.5 yrs) and Sophie (NT, 3.5 yrs) > > I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. > So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. > I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " > It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. > I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. > Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. > > Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. > www.evidenceofharm.com > www.generationrescue.org > www.safeminds.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Tara, I've been thinking about slipping a non-GFCF item into my Sons diet. The last time (two years ago)he took one small bite of a saltine (at church) he had such bad diarrhea he wanted to go to the hospital. Has anything changed? He's been on the diet for 5 years now and taking all the vits and suppls you can name. He is doing great most of the time. As for your episode at school - our sweet boy was restrained on the floor by the secretaries because his Helper was busy assisting the classroom due to the teacher and his specialists being in an IEP conference that could not be interrupted. He used to go to the Principals office for stress relief as he likes to read her books. She wanted to go eat lunch and left him alone with other " Problem " students. He wanted to go back to his resource room and started to leave and the secretaries only way to stop him was to hold him down on the floor. The Principal came back from her undisturbed lunch time and decided to place him in her office with locked doors and her. He wanted out and tried to go through her and as he put it " someone pushed me down and I got injured " . Of course the Administrations response was that as long as he wasn't disruptive, or absent or tardy he could continue going to school. Needless to say we have made the move from that school district and he will be attending a new school next year. I also understand that many of his Therapists from the original school will be making the move also. I don't know of a teacher who works for peanuts in our area. Mid $40's and up with summers off. Don't get me started on family support. Thanks for sharing - it helps. Van Dyke Director of Safety Summit Construction Co., Inc. 1107 Burdsal Parkway Indianapolis, IN 46208 317-634-6112 317-264-2529 fx 317-710-6685 cell >>> believeforbrooke@... 02/24/06 07:24PM >>> I completely understand where you are coming from. My little girl will be 7 years old next month and has been GF\CF, soy free, and peanut free for 4 years. I got a lot of grief as well in the beginning, but I had to get a little nasty with people until they got off of my back. I have, however, a few days ago began giving her enzymes before each meal and discovered that when she has the enzymes and then eats something non GF\CF that she does not react. In fact, she has become a lot less irritable and anxious. I am not sure exactly how to explain it, but maybe her gut has healed from the 4 year strict diet. I am being very careful to monitor what kinds of breaks are in her diet and how much of the " off " diet foods that she is getting. I am also watching for regression or any new behaviors. So far, all is well. The diet is tough, but well worth it. People will eventually calm down! Hang in there. As for the school issue, well that is my issue right now. I am now homeschooling my daughter because the elementary school that she was in decided to restrain her on the floor for 20 minutes. She was restrained by the assistant principal. There was no positive behavior plan in place and none of the sensory equipment was there per the IEP. She was bouncing in a chair in circle time and messing with her panties, so they decided to put another child's shorts on her which sent her into a sensory overload. The assistants kept forcing the shorts on her, so she hit the assistant. This was their reasoning for then putting her into a hold and bruising her. She urinated in her bed for over a week. To make matters worse, the special ed. director of my county stated to my husband and I at our emergency IEP meeting after the restraint that " you should be greatful that there are teachers who are willing to go to school and work for peanuts to teach your problem child " . This is the attitude of the school district that I am dealing with. YEAH! I completely understand why you are so frustrated. I get little family support either. God Bless! Tara > > I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. > So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. > I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " > It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. > I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. > Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. > > Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. > www.evidenceofharm.com > www.generationrescue.org > www.safeminds.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2006 Report Share Posted July 30, 2006 Thanks GM - the end result was that my son did have a massive rage, others kids were in the office and the school called and insisted I come pick him up. When I went to get him I started talking to the secretary about his anxiety and she encouraged me to handle it the way my gut feeling as a mom thinks. She told me she has a grown son that is in a huge mess right now, drug addiction, suicidal and now looking back on it she wish she had done something different. She was very supportive through out the whole ordeal. Then I had another mom in the office over hear our conversation and said she was going through the same thing with her child. Kind of a neat time with these people at school after all. Nice to have everyones support and kindness. _____ From: [mailto: ] On Behalf Of Glenda ez Sent: Wednesday, August 30, 2006 5:33 PM Subject: Re: Bad Day DP~ How horrible for your poor son. I've recieved those same phone calls and when they're crying on the other end of the phone line you feel so helpless. Hang in there and keep educating the teachers, principal, etc. GM adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 In a message dated 8/30/2006 11:06:39 A.M. Eastern Standard Time, cward_ri@... writes: The bus driver needs to be talked to as well as the principal. All schools should have a no bullying policy that is strictly enforced. The principal should call those boys down and be tough. - I agree 100%. There is no reason for any child to have to suffer & put up with this type of thing -- with all we know about bullying these days. Nip it in the bud!!! LT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 A school can deal with the issue without having to bring up any names. My daughter had an issue with a boy and she begged me not to report it. Since it was something that really needed to be reported I called the guidance counselor and we did the whole thing anonymously. The GC said because there were other children around anyone could have reported it. This could be the same for your child, since it occurred on the bus. In my daughter's case the boy got 3 days suspension and he, nor my daughter, ever knew who reported it. This was in 7th grade. Good luck. Kim In a message dated 8/30/2006 11:12:10 AM Central Standard Time, adelem@... writes: My son is 9. The school wanted to talk with the boys and advised to do so, my son and I actually asked them not to this time. These kids all live in our neighborhood, they are calling him mommas boy and baby. I am afraid for them to know he told on them would make it all worse. I really just want to drive him for now and make it not a issue for awhile until he adjust to school. We will see. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 A school can deal with the issue without having to bring up any names. My daughter had an issue with a boy and she begged me not to report it. Since it was something that really needed to be reported I called the guidance counselor and we did the whole thing anonymously. The GC said because there were other children around anyone could have reported it. This could be the same for your child, since it occurred on the bus. In my daughter's case the boy got 3 days suspension and he, nor my daughter, ever knew who reported it. This was in 7th grade. Good luck. Kim In a message dated 8/30/2006 11:12:10 AM Central Standard Time, adelem@... writes: My son is 9. The school wanted to talk with the boys and advised to do so, my son and I actually asked them not to this time. These kids all live in our neighborhood, they are calling him mommas boy and baby. I am afraid for them to know he told on them would make it all worse. I really just want to drive him for now and make it not a issue for awhile until he adjust to school. We will see. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 How old is your son? First, the bullying needs to be stopped IMMEDIATELY. Can this neighbor whose son felt bad have her son sit with yours and kind of stick up for him? Most " good " kids love to be asked. The bus driver needs to be talked to as well as the principal. All schools should have a no bullying policy that is strictly enforced. The principal should call those boys down and be tough. My son had bus problems also this year, but talking to the bus driver helped TREMENDOUSLY and helping him to find where is best for him to sit was great. He is 11 and is on the same bus as K-12, so his problem came from high schoolers. Now he just stays right in the middle. My heart goes out to you. That is not the start I know you were hoping for. adelem1232000 <adelem@...> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I think all the moms on this board would love to go sit on that school bus and show those 5th graders what bullying feels like!!! You DO NOT mess with our kids!!! adelem1232000 <adelem@...> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Go Girl!! _____ From: [mailto: ] On Behalf Of c ward Sent: Wednesday, August 30, 2006 11:08 AM Subject: Re: Bad Day I think all the moms on this board would love to go sit on that school bus and show those 5th graders what bullying feels like!!! You DO NOT mess with our kids!!! adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 My son is 9. The school wanted to talk with the boys and advised to do so, my son and I actually asked them not to this time. These kids all live in our neighborhood, they are calling him mommas boy and baby. I am afraid for them to know he told on them would make it all worse. I really just want to drive him for now and make it not a issue for awhile until he adjust to school. We will see. _____ From: [mailto: ] On Behalf Of c ward Sent: Wednesday, August 30, 2006 11:04 AM Subject: Re: Bad Day How old is your son? First, the bullying needs to be stopped IMMEDIATELY. Can this neighbor whose son felt bad have her son sit with yours and kind of stick up for him? Most " good " kids love to be asked. The bus driver needs to be talked to as well as the principal. All schools should have a no bullying policy that is strictly enforced. The principal should call those boys down and be tough. My son had bus problems also this year, but talking to the bus driver helped TREMENDOUSLY and helping him to find where is best for him to sit was great. He is 11 and is on the same bus as K-12, so his problem came from high schoolers. Now he just stays right in the middle. My heart goes out to you. That is not the start I know you were hoping for. adelem1232000 <adelemcarolina (DOT) <mailto:adelem%40carolina.rr.com> rr.com> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 DP~ How horrible for your poor son. I've recieved those same phone calls and when they're crying on the other end of the phone line you feel so helpless. Hang in there and keep educating the teachers, principal, etc. GM adelem1232000 <adelem@...> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 DP~ How horrible for your poor son. I've recieved those same phone calls and when they're crying on the other end of the phone line you feel so helpless. Hang in there and keep educating the teachers, principal, etc. GM adelem1232000 <adelem@...> wrote: My poor son, came home yesterday and 3 5th graders bullied him on the bus about wanting to sit in the back. He didn't even tell me but a neighbor called to let me know because her son felt bad. Then his biggest fear is storms and we wake up with cloudy skies today. He was exhausted this morning and could hardly get him on the bus. The school called at 9 that he is complaining of stomach ache. We realized that he needed food because of his meds and asked the school to feed him and wait and see. Called back he is having a melt down. I just talked with him and totally melted down on me. Secretary just grabbed the phone and got the principal to go talk to him. Ugg. Last week he had this terrible full blown rage and I am worried to death he is going to do that at school and everyone will hear and see. I am being advised by everyone to not go and rescue him, but this is hard. I hate this!!! DP --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I would definitely put it in writing and if you have a mark on your window where the sticker had fallen from I would take a pic of that as well. Don't these smart a*s*d b's get away with treating you like shite. Mazz rellybells wrote: > > my heart feels like its beating out of my chest wish this feeling > would stop. Eating crap as well just to make me feel better. why > cant we get off this food cycle. > thats not the worst part > I went to kmart today and got booked $394.00 fine for parking in a > disabled park. But I have a disabled sticker, it had fallen on the > floor. I asked the grey bomer if everythig was ok, he said iwas > illagally parked, showed him my sticker that had fallen off the > windshield onto the floor, and he wrote me out a fine anyway, and > then told me I could either just pay it, og goto court, and all of > this with a snigger. I was fuming. > went straight to the council to winge about his behavior, and the > mgr told me that lots of people lie and to put it in writing, and it > would be dealt with in due course. > So he implied that I was lying and fobbed me off, and told me that I > should take the issue with the suction that holds the permit on the > window up with the manufactures. > my heart is already racing without this sort of day. > oh well look on the bright side was too busy to eat crap today > naz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I would definitely put it in writing and if you have a mark on your window where the sticker had fallen from I would take a pic of that as well. Don't these smart a*s*d b's get away with treating you like shite. Mazz rellybells wrote: > > my heart feels like its beating out of my chest wish this feeling > would stop. Eating crap as well just to make me feel better. why > cant we get off this food cycle. > thats not the worst part > I went to kmart today and got booked $394.00 fine for parking in a > disabled park. But I have a disabled sticker, it had fallen on the > floor. I asked the grey bomer if everythig was ok, he said iwas > illagally parked, showed him my sticker that had fallen off the > windshield onto the floor, and he wrote me out a fine anyway, and > then told me I could either just pay it, og goto court, and all of > this with a snigger. I was fuming. > went straight to the council to winge about his behavior, and the > mgr told me that lots of people lie and to put it in writing, and it > would be dealt with in due course. > So he implied that I was lying and fobbed me off, and told me that I > should take the issue with the suction that holds the permit on the > window up with the manufactures. > my heart is already racing without this sort of day. > oh well look on the bright side was too busy to eat crap today > naz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I would definitely put it in writing and if you have a mark on your window where the sticker had fallen from I would take a pic of that as well. Don't these smart a*s*d b's get away with treating you like shite. Mazz rellybells wrote: > > my heart feels like its beating out of my chest wish this feeling > would stop. Eating crap as well just to make me feel better. why > cant we get off this food cycle. > thats not the worst part > I went to kmart today and got booked $394.00 fine for parking in a > disabled park. But I have a disabled sticker, it had fallen on the > floor. I asked the grey bomer if everythig was ok, he said iwas > illagally parked, showed him my sticker that had fallen off the > windshield onto the floor, and he wrote me out a fine anyway, and > then told me I could either just pay it, og goto court, and all of > this with a snigger. I was fuming. > went straight to the council to winge about his behavior, and the > mgr told me that lots of people lie and to put it in writing, and it > would be dealt with in due course. > So he implied that I was lying and fobbed me off, and told me that I > should take the issue with the suction that holds the permit on the > window up with the manufactures. > my heart is already racing without this sort of day. > oh well look on the bright side was too busy to eat crap today > naz > > Quote Link to comment Share on other sites More sharing options...
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