Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 > > And you believed them? One thing I hate about winter weather is > how quickly > things change from bad to worse. > > I have this theory that toying with weathermen is one of God's favourite amusements. I mean imagine that he is bored. " Hmmm...what shall I do to day...Gee I already used up all those spare parts on the platypus. Hmm...I guess I will spend the day making Troy Duncan sweat! hahahah! " Cherilyn --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.572 / Virus Database: 362 - Release Date: 27/01/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 HEY TONY, I CAN RELATE TO THE PAIN AND WAITING FOR THE DRUGS TO HELP THE PAIN TO GO AWAY OR AT LEAST FOR THE PAIN TO GET BETTER. SOMETIMES I CAN HARDLY SIT AT THIS THING AND WRITE ANYTHING. I COUNT MYSELF LUCKY IN THAT I AM NOT IN AS BAD OF SHAPE AS SO MANY OF THE FOLKS IN THIS GROUP. I DON'T KNOW WHAT I WOULD DO IF MY PAIN WAS ANY WORSE THAN IT IS. WELL,I GUESS THAT I WOULD HAVE TO JUST LEARN HOW TO LIVE WITH IT AS I DO THE PAIN THAT I HAVE NOW.LOL I CAN ALSO RELATE TO YOU AND HOW THE DEPRESSION HITS WHEN YOU HURT ALL THE TIME. I ALSO HAVE PAIN WHEN I SIT ,WALK AND WHEN I STAND. I ONLY HAVE A BULGING DISK IN MY BACK BUT IT SURE DOES CAUSE ME A LOT OF PAIN. I ALSO HAVE A RUPTURED DISK IN MY NECK THAT CAUSES ME TO HAVE REALLY BAD PAIN IN MY NECK AND SHOULDERS ALL THE TIME.THERE ARE TIMES THAT I CAN NOT SIT ANYWHERE WITHOUT MY NECK HURTING SO BAD THAT I CAN'T DO ANYTHING. I FILED FOR SOCIAL SECURITY DISABILITY AND WAS DENIED,SO I APPEALED IT. I TURNED IN MY SOCIAL SECURITY DISABILITY APPEAL YESTERDAY AND FULLY EXPECT TO BE DENIED AGAIN. I HAVE A LAWYER THAT IS GOING TO HANDLE MY CASE FOR ME. HE ONLY DOES SOCIAL SECURITY CASES ,SO HE REALLY KNOWS HOW TO GET THINGS DONE. HE TOLD ME THAT I AM LOOKING AT PROBABLY OCTOBER BEFORE I WILL BE ABLE TO GO BEFORE A JUDGE FOR A JUDGMENT ON MY CASE. GUESS I HAVE NO CHOICE BUT TO JUST SIT AND WAIT ,HA REMINDS ME OF THE MILITARY,HURRY UP AND WAIT. WELL I HAVE SAID ABOUT ALL THAT I GUESS I CAN SAY FOR NOW. I DIDN'T MEAN TO WRITE A BOOK ,BUT THAT IS WHAT THIS GROUP IS FOR. A PLACE THAT WE CAN COME AND SHARE WHAT IS GOING ON IN OUR LIVES AS WELL AS OUR EXPERIENCE STRENGTH AND HOPE. TAKE CARE AS BEST AS YOU CAN . MAY YOU HAVE A BETTER DAY TODAY THAN YOU HAD YESTERDAY. LARRY Tony <ohmyfnback@...> wrote: Having a Very Bad Day today!! I am so sick and tired of laying on the floor in the morning till the drugs start working. Wow it just gets so depressing. I feel bad cause the wife don't know what to do for me and she blames herself she thinks its her that causes the pain. I just cant waite to feel better. Can't stand, walk, sit Just have to lay. Live on drugs (Better living through chemistry) lol DON'T WORRY ABOUT THE SMALL STUFF. LIFE IS TOO SHORT FOR THAT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Dear , I sure can identify with you on feeling like everyday something else goes wrong. Sometimes I’m afraid that people aren’t going to believe me since it seems so impossible for one person to have so many things wrong at once. So far at least the doctors haven’t doubted me. I think if they did I would either start crying or get up and slug them…lol. It is very overwhelming to have something wrong every day. So many times I think I would give anything to have a day without pain. That must have been really scary with the Melanoma. I guess autoimmune disease is the gift that just keeps on giving…lol. I’m glad they feel good they got it all. I know that is a normally really slow growing cancer. I think on the people you work with you have to just ignore or let their comments go. Just mark it up to ignorance. We are to young to be sick, but arthritis isn’t just an old person disease. I get frustrated about the RA remark too, even though one of my doctors thinks I have both types. I think my symptoms are more PA, but I am having a lot of problems with other areas as well. I was negative on the RA factor though. Hang in there on the Enbrel. Have you thought to have your rheumatologist call your insurance company to speed things up? I know that really works sometimes. Enbrel didn’t work for me and I had some really bad side effects, but it is a real wonder drug for most people. I hope it’s your answer and you start to feel better right away. Try to keep your hopes up. Staying positive is the only thing that keeps me going some days. Good luck and let me know how you do on Enbrel. Be sure and watch for anything usual once you start to take it. Like I said most people don’t have any problems, so I’m sure you will be just fine. Take care, Fran (Editor's Note: Dear : Since you asked (anyone else run into this [Melanoma]? I had the misfortune of having to deal with it. Fran mentions it is normally a slow grower; knowing her, if Fran says it is, I'm sure she's right: However, I need to note that is not true in all cases. In some (i.e., me--what luck!) it was extraordinarily fast. It sounds like you had yours removed when it could still be done @ the doc's office (probably well less than the size of a pencil eraser?). Mine was about 3X that, and took a Lymphoscintogram, a signal lymph node biopsy on the operating table, and a wide area excision--3 days in the hospital. It was about 2 months from nothing to its size when removed. I am knocking on wood just about continuously while writing this; I was very lucky--very very lucky--that there was no spread to the lymph nodes, and also lucky that I drew an M.D. (Houston)-trained surgeon, I'm told, and I believe it. Anyway: Please, if any of you out there remotely suspect you might need to be screened, run, do not walk, to your dermatologist. I don't know if there is a direct PA-Melanoma synergy. But I do know that those of us who've had more X-rays, bone scans, IVPs, etc., than the norm, as well as those with fair skin/blue eyes/blond hair, especially if we burned and peeled more than once or twice as kids in the sun (I lived in Hawaii and Ft. Lauderdale as a kid :-( ), OR those of us who've gone through PUVA treatment for the P (there's my hand again...), have a much higher than average chance of facing Melanoma. My surgeon put it bluntly, regarding " sunburns " : " Think about it, " he told me; " You exposed yourself to harmful radiation to the extent that you actually burned layers of skin off your body. It's the same result as if you were too close to Chernobyl. It wasn't some innocuous " sun " burn; you were radiation burned. " The good news is that, caught in time, it's 80% survivable; the not so good news is that surgery is the virtually the only hope: chemotherapy (Interleukin II) is now believed to have between almost no, and absolutely no, positive effect, according to the latest studies. Sorry to go one like that, people, but if I scared one person (with an irregularly shaped, OR (not and!) multi-colored, or uneven height, or (even partially) blood-bordered, mole--of any color (mine was quite light), which may or may not itch, to the dermatologist, I'm thrilled to have done so. We PAers HAVE to watch closely for this nasty malady. Just what we needed, many of us having enough skin problems as it is. But we, many of us, are used to checking out our skin, right? I highly recommend having a spouse, significant other, whatever, check out the places we can't get to ourselves, or, if there isn't that option, buy a good hand-held mirror and then stand in front of the big one in the bathroom, using the little one as an extra set of eyes. Another hint: DON'T worry only about skin acreage that's been directly in the sun; any cells with melanin (including the retinas, of all places) can be the trigger. OK, Rant now over. D.] [ ] bad day Today has been the worst day yet - it seems like every movement hurts. I'm hoping the Vioxx starts to work soon so I can go up the steps and get in bed. Perhaps unrelated but I had seen the Derm a month ago for a biopsy to confirm the psoriasis on my elbow (I had thought it was just dry skin all these years) and since I had never had a full skin check they did one and found what turned out to be a melanomia. I had it removed today. He said that because PA is an antoimmune disease it could have stimulated it's growth? He thinks he got it all. Has anyone else run into this? It really feels like every appointment I go to there is something else wrong and I feel very powerless over the entire situation. My co-workers look at me like I'm crazy - they say dumb things like thank goodness it's not RA or that I'm too young for arthritis so maybe that not what I have (I'm 33). Hopefully the insurance approval for Enbrel comes in this week, I understand it really helps alot of people (I'm currently taking Areva and it's doing a number on my GI tract). I'm glad this site is here - I don't know anyone locally who has gone through this and can understand. [Editor's Note: Sorry to hear today's a bad one. Hang in there - help is on the way! OK - I made that up, but maybe tomorrow will be a better day. If the Arava is bothering your stomach (it does mine), ask your rheumy for a script for Nexium. It really helps. Kathy F.] Please visit our Psoriatic Arthritis Group's informational web page at: http://www.wpunj.edu/pa/ -- created and edited by list member aka(raharris@...). Also,in August 2001,list member Jack aka Cornishpro@... began to conduct extensive research which he publishes as the " Psoriatic Arthritis Research Newsletter " , monthly in our email and digest format. Many thanks to Jack. Back issues of the newsletter are stored on our PA webpage as well as the archives of the list. Don't forget that the list archives comprise a tremendous amount of information (Over three years of messages and answers).Feel free to browse them at your convenience. LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or question, chances are there is a person who has been around a while who can help you out with AT LEAST an educated guess for an answer! If not,we can steer you in the right direction with a good website to go to, Blessings and Peace, Atwood-Stack, Founder Alan , Web & List Editor Jack , Newsletter Editor Pat Bias, List Editor Ron Dotson, List Editor Orin, List Editor , List Editor and any others who help in any way (thank you!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 In a message dated 6/17/2004 12:57:48 PM Eastern Standard Time, heatherfitz@... writes: It really feels like every appointment I go to there is something else wrong and I feel very powerless over the entire situation. My co-workers look at me like I'm crazy - they say dumb things like thank goodness it's not RA or that I'm too young for arthritis so maybe that not what I have (I'm 33). Hang in there , We are all in the same boat that you are in. I have had the same problem as you for years and I am so sick of people saying that I am too young to have these problems. I don't even say to people anymore that I have PA. I tell them I have RA because that is what they understand. And as for being too young, tell them to research juvenile RA. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Hi , You did have a bad day- I am checked yearly for melonoma because we are more at risk. So far I have been OK. Does your rheum know about it? It might be important for him/her to know if you are starting Enbrel. Hope the enbrel helps your pain. hope you have a better day tomorrow, Marti -- In , " bearsyisalady " <heatherfitz@r...> wrote: > Today has been the worst day yet - it seems like every movement > hurts. I'm hoping the Vioxx starts to work soon so I can go up the > steps and get in bed. > Perhaps unrelated but I had seen the Derm a month ago for a biopsy > to confirm the psoriasis on my elbow (I had thought it was just dry > skin all these years) and since I had never had a full skin check > they did one and found what turned out to be a melanomia. I had it > removed today. He said that because PA is an antoimmune disease it > could have stimulated it's growth? He thinks he got it all. Has > anyone else run into this? > It really feels like every appointment I go to there is something > else wrong and I feel very powerless over the entire situation. My > co-workers look at me like I'm crazy - they say dumb things like > thank goodness it's not RA or that I'm too young for arthritis so > maybe that not what I have (I'm 33). Hopefully the insurance > approval for Enbrel comes in this week, I understand it really helps > alot of people (I'm currently taking Areva and it's doing a number > on my GI tract). > I'm glad this site is here - I don't know anyone locally who has > gone through this and can understand. > > > [Editor's Note: Sorry to hear today's a bad one. Hang in there - help is on the way! OK - I made that up, but maybe tomorrow will be a better day. If the Arava is bothering your stomach (it does mine), ask your rheumy for a script for Nexium. It really helps. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 Thanks Fran. I needed to hear that today. I spoke with my family doc this afternoon and she told me that the melanomia was probably triggered by the PA but that I may have gotten it anyway. We decided that I am going to keep with the Vioxx for pain instead of taking something stronger. I am a recovering alcoholic (7 years in a few weeks) and I don't want to take anything that affects my mind - it's just a risk I am not ready to take. Besides, most days the Vioxx does help - imagine that, a non-narcotic pain reliever really works! Suprise! I took a vacation day tomorrow and am meeting my oldest and dearest friend to take our children to Sesame Place. We planned it a year ago and the kids are so excited they can't sleep. I am praying that tomorrow is a good day and my kids don't have to suffer because Mommy's not feeling well. There are so many things I can't do with them that I really really want this one day to be special. Thanks for your support - I find that checking the posts throughout the day helps me feel connected and not so different. [Editor's Note: , I understand why you, or your doc, or both of you, want to avoid potential problems by sticking with Vioxx for pain--and I'm glad to hear that that particular NSAID is, mostly, effective for you. I hope it remains that way. There undoubtedly are some people (e.g., you) who find their personal biochemistry consanguinous, and well-benefited, with one of the NSAIDs. If this is you, great! That said, I get an inkling that there may be times when you need extra help. So: two thoughts, which you could go over with your doc if you ever feel you'd like to--and so can anyone else in the same situation (I suspect there are many such folk.) (1) Some people experience superb pain-control results with non-narcotic Tramadol (Ultram, etc.) It's a very interesting drug, psychopharmacologically. Although it acts with a dual mechanism, one of which is a central action which is very important in making a pain med successful (much more so than peripherally acting NSAIDs) it does NOT have the characteristics, or effects, that the narcotics do and that you want to avoid. It might be ideal for you; your doc could let you try a small " starter " prescription (or a handful of samples) to use on those days/nights when your regular Vioxx leaves you unrelieved. It is also effective for neuropathic pain, which NSAIDs are mostly not. Finally, its side effect profile makes it--in my humble opinion--vastly superior to the NSAIDs, especially over the long term. (I would highly recommend you look at the contraindications, side effect profile, warnings, etc., of NSAIDs, versus Tramadol.) (2) The other option (and you may have already tried this at some point; if so, so be it), again for those times when Vioxx fails you, is to discuss with your doc having her write you a prn scrip for good old Tylenol #3. T3 has just 30 mg. of codiene in it (along with the good old NSAID, acetominophen), but that's enough to provide 4-6 hours of centrally-acting pain relief. As long as you're taking no more than, say, 10-15 Tylenol #3 per month (no more than 1 a day), there shouldn't be any problem with tolerance; further, codiene doesn't (except for rare individuals) have the mental clouding effects of its strong relatives (hydrocodone, morphine, demerol, etc.). I hope the above is useful to those evaluating the best course for themselves, regarding pain management. As always, the best course of action is to, as did, engage in a meaningful dialogue with one's doctor. For those of you finding you may need stronger pain meds (that is, when pain actually limits your life, and you would be more active, more involved with family and work, more participative in the life of the community if you were on a different meds regimen), it's probably time to get to a pain management clinic, where there is a greater willingness to prescribe adequate medication. I know it was the smartest thing I've done in the last several years. D.] > Dear , > > > I sure can identify with you on feeling like everyday something else goes > wrong. Sometimes I'm afraid that people aren't going to believe me since it > seems so impossible for one person to have so many things wrong at once. So > far at least the doctors haven't doubted me. I think if they did I would > either start crying or get up and slug them…lol. > > It is very overwhelming to have something wrong every day. So many times I > think I would give anything to have a day without pain. That must have > been really scary with the Melanoma. I guess autoimmune disease is the gift > that just keeps on giving…lol. I'm glad they feel good they got it all. I > know that is a normally really slow growing cancer. > > I think on the people you work with you have to just ignore or let their > comments go. Just mark it up to ignorance. We are to young to be sick, but > arthritis isn't just an old person disease. I get frustrated about the RA > remark too, even though one of my doctors thinks I have both types. I think > my symptoms are more PA, but I am having a lot of problems with other areas > as well. I was negative on the RA factor though. > > Hang in there on the Enbrel. Have you thought to have your rheumatologist > call your insurance company to speed things up? I know that really works > sometimes. Enbrel didn't work for me and I had some really bad side > effects, but it is a real wonder drug for most people. I hope it's your > answer and you start to feel better right away. Try to keep your hopes up. > Staying positive is the only thing that keeps me going some days. > > Good luck and let me know how you do on Enbrel. Be sure and watch for > anything usual once you start to take it. Like I said most people don't > have any problems, so I'm sure you will be just fine. Take care, Fran > > (Editor's Note: Dear : Since you asked (anyone else run into this [Melanoma]? I had the misfortune of having to deal with it. Fran mentions it is normally a slow grower; knowing her, if Fran says it is, I'm sure she's right: However, I need to note that is not true in all cases. In some (i.e., me--what luck!) it was extraordinarily fast. It sounds like you had yours removed when it could still be done @ the doc's office (probably well less than the size of a pencil eraser?). Mine was about 3X that, and took a Lymphoscintogram, a signal lymph node biopsy on the operating table, and a wide area excision--3 days in the hospital. It was about 2 months from nothing to its size when removed. I am knocking on wood just about continuously while writing this; I was very lucky--very very lucky--that there was no spread to the lymph nodes, and also lucky that I drew an M.D. (Houston)-trained surgeon, I'm told, and I believe it. Anyway: Please, if any of you out there remotely suspect you might need to be screened, run, do not walk, to your dermatologist. I don't know if there is a direct PA-Melanoma synergy. But I do know that those of us who've had more X-rays, bone scans, IVPs, etc., than the norm, as well as those with fair skin/blue eyes/blond hair, especially if we burned and peeled more than once or twice as kids in the sun (I lived in Hawaii and Ft. Lauderdale as a kid :-( ), OR those of us who've gone through PUVA treatment for the P (there's my hand again...), have a much higher than average chance of facing Melanoma. My surgeon put it bluntly, regarding " sunburns " : " Think about it, " he told me; " You exposed yourself to harmful radiation to the extent that you actually burned layers of skin off your body. It's the same result as if you were too close to Chernobyl. It wasn't some innocuous " sun " burn; you were radiation burned. " The good news is that, caught in time, it's 80% survivable; the not so good news is that surgery is the virtually the only hope: chemotherapy (Interleukin II) is now believed to have between almost no, and absolutely no, positive effect, according to the latest studies. > > Sorry to go one like that, people, but if I scared one person (with an irregularly shaped, OR (not and!) multi-colored, or uneven height, or (even partially) blood-bordered, mole--of any color (mine was quite light), which may or may not itch, to the dermatologist, I'm thrilled to have done so. We PAers HAVE to watch closely for this nasty malady. Just what we needed, many of us having enough skin problems as it is. But we, many of us, are used to checking out our skin, right? I highly recommend having a spouse, significant other, whatever, check out the places we can't get to ourselves, or, if there isn't that option, buy a good hand-held mirror and then stand in front of the big one in the bathroom, using the little one as an extra set of eyes. Another hint: DON'T worry only about skin acreage that's been directly in the sun; any cells with melanin (including the retinas, of all places) can be the trigger. > > OK, Rant now over. > > D.] > [ ] bad day > > Today has been the worst day yet - it seems like every movement > hurts. I'm hoping the Vioxx starts to work soon so I can go up the > steps and get in bed. > Perhaps unrelated but I had seen the Derm a month ago for a biopsy > to confirm the psoriasis on my elbow (I had thought it was just dry > skin all these years) and since I had never had a full skin check > they did one and found what turned out to be a melanomia. I had it > removed today. He said that because PA is an antoimmune disease it > could have stimulated it's growth? He thinks he got it all. Has > anyone else run into this? > It really feels like every appointment I go to there is something > else wrong and I feel very powerless over the entire situation. My > co-workers look at me like I'm crazy - they say dumb things like > thank goodness it's not RA or that I'm too young for arthritis so > maybe that not what I have (I'm 33). Hopefully the insurance > approval for Enbrel comes in this week, I understand it really helps > alot of people (I'm currently taking Areva and it's doing a number > on my GI tract). > I'm glad this site is here - I don't know anyone locally who has > gone through this and can understand. > > > [Editor's Note: Sorry to hear today's a bad one. Hang in there - help is > on the way! OK - I made that up, but maybe tomorrow will be a better day. > If the Arava is bothering your stomach (it does mine), ask your rheumy for a > script for Nexium. It really helps. Kathy F.] > > > > Please visit our Psoriatic Arthritis Group's informational web page at: > http://www.wpunj.edu/pa/ -- created and edited by list member > aka(raharris@y...). > > Also,in August 2001,list member Jack aka Cornishpro@a... began > to conduct extensive research which he publishes as the " Psoriatic Arthritis > Research Newsletter " , monthly in our email and digest format. Many thanks to > Jack. Back issues of the newsletter are stored on our PA webpage as well as > the archives of the list. > > Don't forget that the list archives comprise a tremendous amount of > information (Over three years of messages and answers).Feel free to browse > them at your convenience. > > LET'S HEAR FROM SOME OF YOU LURKERS out there! If you have a comment or > question, chances are there is a person who has been around a while who can > help you out with AT LEAST an educated guess for an answer! If not,we can > steer you in the right direction with a good website to go to, > > Blessings and Peace, > > Atwood-Stack, Founder > Alan , Web & List Editor > Jack , Newsletter Editor > Pat Bias, List Editor > Ron Dotson, List Editor > Orin, List Editor > , List Editor > and any others who help in any way (thank you!) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 Dear , I'm glad to know my email helped. Sometimes I feel like I'm not sure if I should respond to someone one or not. You sort of wonder when you have never had what they are suffering with. For some reason, your email hit home with me. I only want to say one other thing about pain control and recovering alcoholics. I know what kind of hell alcoholism can be, not because I am one, but both my sister and my brother have and one of them still does suffers horribly with this disease. My brother has been sober now for over 20 years. About 5 years ago he noticed his arm was totally numb and he couldn't even move it. This seemed to come on over night. He went to the doctor and found out he needed surgery on a disc in his neck. He told the doctor he couldn't have any pain medication due to his alcoholism and the fact that one one is really ever considered recovered. Well to make a long story short, he ended up in so much pain his doctor convinced him to take the drugs. And he did just fine. He was like you and didn't want to ever chance going back to where he was before, but he found once the surgery healed he simply didn't need the narcotics anymore. I understand that everyone is different and everyone's reasons for addiction are different as well. I wouldn't begin to tell you to go ahead and not consider the consequences. But like said, it sounds like you are still suffering some even with the Vioxx. I took Vioxx for several years before I was even diagnosed with PA, I was told I had an instant case of osteoarthritis, which I know now is unheard of, since it normally takes years to developed. Anyway, it did help me, but now I can't take it since it isn't recommended for people with any type of heart condition. So if for some reason you find it's no longer available to you, I think I would discuss with my doctor the possibility of having another pain control medication lined up. But like I said , I totally understand how this is a really personal decision and one that only you can make. I hope you have a good time at Sesame Place. I can't imagine having this disease with younger children. I feel like I miss out enough now and my " kids " are 21 and 23. When we lived in Indianapolis we used to take the kids to the Children's Museum downtown and it was always a wonderful time. So I sure hope you get to go and can enjoy yourself. This is the first time I've heard about PA having a link to Melanoma. So it wasn't exactly the kind of news I wanted to hear, but I'm glad you posted and told us about it. 's follow up was enough to make me have my doctor check out a mole on the back of my neck the next time I go in. Vacationing in Florida as a child, I can't begin to tell you how many sunburns I was exposed too. My parents always made us use suntan lotion, but without any Sunscreen in there it was probably like adding oil to a baking turkey...lol. So it's one more thing to be aware of and I appreciate you writing about it. Please feel free to write me anytime . You aren't any different than any other person, or young Mom who has a health condition. I hate that our disease makes us feel so different from the rest of the " normal " population. Sometimes once you get to know other people's problems you realize you wouldn't want to deal with their " bag of luggage " either. Take care and keep in touch. Let me know if you get to go out with the kids and I hope you all get to have a great time. Thanks for writing and sharing your information. Love, Fran --Original Message----- From: bearsyisalady [mailto:heatherfitz@...] Sent: Thursday, June 17, 2004 9:59 PM Subject: [ ] Re: bad day Thanks Fran. I needed to hear that today. I spoke with my family doc this afternoon and she told me that the melanomia was probably triggered by the PA but that I may have gotten it anyway. We decided that I am going to keep with the Vioxx for pain instead of taking something stronger. I am a recovering alcoholic (7 years in a few weeks) and I don't want to take anything that affects my mind - it's just a risk I am not ready to take. Besides, most days the Vioxx does help - imagine that, a non-narcotic pain reliever really works! Suprise! I took a vacation day tomorrow and am meeting my oldest and dearest friend to take our children to Sesame Place. We planned it a year ago and the kids are so excited they can't sleep. I am praying that tomorrow is a good day and my kids don't have to suffer because Mommy's not feeling well. There are so many things I can't do with them that I really really want this one day to be special. Thanks for your support - I find that checking the posts throughout the day helps me feel connected and not so different. [Editor's Note: , I understand why you, or your doc, or both of you, want to avoid potential problems by sticking with Vioxx for pain--and I'm glad to hear that that particular NSAID is, mostly, effective for you. I hope it remains that way. There undoubtedly are some people (e.g., you) who find their personal biochemistry consanguinous, and well-benefited, with one of the NSAIDs. If this is you, great! That said, I get an inkling that there may be times when you need extra help. So: two thoughts, which you could go over with your doc if you ever feel you'd like to--and so can anyone else in the same situation (I suspect there are many such folk.) (1) Some people experience superb pain-control results with non-narcotic Tramadol (Ultram, etc.) It's a very interesting drug, psychopharmacologically. Although it acts with a dual mechanism, one of which is a central action which is very important in making a pain med successful (much more so than peripherally acting NSAIDs) it does NOT have the characteristics, or effects, that the narcotics do and that you want to avoid. It might be ideal for you; your doc could let you try a small " starter " prescription (or a handful of samples) to use on those days/nights when your regular Vioxx leaves you unrelieved. It is also effective for neuropathic pain, which NSAIDs are mostly not. Finally, its side effect profile makes it--in my humble opinion--vastly superior to the NSAIDs, especially over the long term. (I would highly recommend you look at the contraindications, side effect profile, warnings, etc., of NSAIDs, versus Tramadol.) (2) The other option (and you may have already tried this at some point; if so, so be it), again for those times when Vioxx fails you, is to discuss with your doc having her write you a prn scrip for good old Tylenol #3. T3 has just 30 mg. of codiene in it (along with the good old NSAID, acetominophen), but that's enough to provide 4-6 hours of centrally-acting pain relief. As long as you're taking no more than, say, 10-15 Tylenol #3 per month (no more than 1 a day), there shouldn't be any problem with tolerance; further, codiene doesn't (except for rare individuals) have the mental clouding effects of its strong relatives (hydrocodone, morphine, demerol, etc.). I hope the above is useful to those evaluating the best course for themselves, regarding pain management. As always, the best course of action is to, as did, engage in a meaningful dialogue with one's doctor. For those of you finding you may need stronger pain meds (that is, when pain actually limits your life, and you would be more active, more involved with family and work, more participative in the life of the community if you were on a different meds regimen), it's probably time to get to a pain management clinic, where there is a greater willingness to prescribe adequate medication. I know it was the smartest thing I've done in the last several years. D.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Hello everyone, I'm not very happy. I went to the gym on Friday afternoon for the first time in two weeks. I was extremely weak, and I barely did anything. I was really good about it. I honestly took it easy and didn't over do it. My body was so sore from lack of exercise that I HAD to do something though. Today I couldn't get out of bed, and I felt like I was moving under water all day. It's an effort to get up and walk to the bathroom. I'm really weak and drained. I CAN'T STAND THIS. A half an hour of exercise and I'm totally non-functional the next day. This is no way to live. I feel like I'm 120. I hope tomorrow will be a better day. Good night, Jeanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Jeanne I am sorry to hear that you feel so terrible.........especially when you are doing so much so that you can heal. It can be discouraging like a cold you never think is going to go away. Remember those? There is hope as it does get better. It just takes awhile. What have you been taking for supplements? Any vitamin C? or what? I am sure Bee has some suggestions for you. I know when I was feeling the worst all I could do was just go to sleep. Now I seem to get energy off of the coconut oil. Jeanne -------------- Original message -------------- Hello everyone, I'm not very happy. I went to the gym on Friday afternoon for the first time in two weeks. I was extremely weak, and I barely did anything. I was really good about it. I honestly took it easy and didn't over do it. My body was so sore from lack of exercise that I HAD to do something though. Today I couldn't get out of bed, and I felt like I was moving under water all day. It's an effort to get up and walk to the bathroom. I'm really weak and drained. I CAN'T STAND THIS. A half an hour of exercise and I'm totally non-functional the next day. This is no way to live. I feel like I'm 120. I hope tomorrow will be a better day. Good night, Jeanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Dear Jeanne of the South, Take it easy on your dear body my friend. Listen to it. Your body is telling you it needs rest. This is not a time to be expending its energy when it needs all it can to heal. Try the simplier things in the meantime, like laying on the floor with your calves and feet across the seat of a chair so the blood pools in your abdomen. Walking is great too, but don't try to go too far at first. Do some light exercises while sitting on the couch such as lifting your legs and rotating your feet, arms and hands. Take care, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hey !!! Take a Deep breath and calm down as best as ya can... What happened to scare you so bad sweetie??? Why do you want to leave the list??? We're here for you !!! We'll listen... You talk... That's what this is all about, Helping one another... ((( Worried hugs ))) Helen well today was a very bad day for me i suferered fom the worst panick atacks i have eveer have i gess i should leave this list for this stuff not for a list like this and i can not take another the same asthe last one i have never been so scared in my life and for what i could not tell you just i was so scared i would have rather been dead then scared any way that is all that is up with me nothing realy just messed up in the head and scared you will not hear aboout this again from me it is i just had no one to talk to at lease this way i get it out some how instead of acting on how scared i am and taking my own life to stoop being scared Inever did belone anyware and i know i no longer belong in this list maybe i should have wrote more but i did not sorry for leting you all down i am truly sorry all take cae of your selfs rob "We teach people how to treat us." - Unknown Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 No hon You have a lot of folks on this board, that care for you, if it helps you ,just type in that you are having a panic attack, someone will help you, we care for you, everyone has their ghosts in the closet, so you are not alone. Remember to try to calm down and E-mail me or anyone on the board Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2005 Report Share Posted March 12, 2005 , Feelings like those can be very overwhelming, I know. But things like that DO Belong on this list. I think you fit here perfectly. I haven't been on as much lately, and that is just fine with everyone...so don't be so hard on yourself. One thing I've come to love about life is that if you are having the worst day of your life, tomorrow things can start anew. I hope you find something that helps you see that you are worthwhile and special. If I knew how to make you feel those things I would do it in a heartbeat, but I'm unable to do that. We all care for you here, and this is a wonderful place to vent frustrations. Vent away! *hugs* Hugs, bad day well today was a very bad day for me i suferered fom the worst panick atacks i have eveer have i gess i should leave this list for this stuff not for a list like this and i can not take another the same asthe last one i have never been so scared in my life and for what i could not tell you just i was so scared i would have rather been dead then scared any way that is all that is up with me nothing realy just messed up in the head and scared you will not hear aboout this again from me it is i just had no one to talk to at lease this way i get it out some how instead of acting on how scared i am and taking my own life to stoop being scared Inever did belone anyware and i know i no longer belong in this list maybe i should have wrote more but i did not sorry for leting you all down i am truly sorry all take cae of your selfs rob ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.308 / Virus Database: 266.7.2 - Release Date: 3/11/2005 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.7.2 - Release Date: 3/11/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 it is just I have a lot of problems and I do not think panic attacks like I get are really for this list I care for you all maybe that is my problem all I do is care there is a lot going on in my life right now the panic attacks I do not know why I am getting them now and as for what I am scared of would be everything when in happens I have never felt so scared in all my life I have had 3 really bad so fare all lasted about 3 to 4 hours I pray and hope I can sleep I take more lorazapame then I should hoping that it will make me sleep sp I can get the fear to go away I really whish I new why I have been getting these I know there is a lot of stress in my life right now but these attacks I hear of people having panic attacks but this was ware I was totally useless I could not do anything if I wanted to all I knew was I was scared so scared that you think death would be a blessing now know I am not suicidal at all and I do not want to die it was just at the time of the attack I was that scared more then I have ever been in my entire life all combined I just do not believe that my panic attacks are appropriate for this list and I do not want others to think I am nuts because I am not not that I know anyway :-) sorry it was a sad try at humor anyway thanks all for giving me this outlet it does mean a lot to me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 , I am willing to bet that most on this list have had a panic attack at least once in their life. I've had a couple, and they are very scary. No one will think you are crazy at all! Quite the opposite, it means you are human. And frankly, sharing sometimes helps others who are having the same problem, but are too scared to admit it on the list. So not only can you get it out, you could be helping someone in your same position. We are very glad you are here, and we care about you quite a lot. I hope today is a better one for you Hugs, Re: bad day it is just I have a lot of problems and I do not think panic attacks like I get are really for this list I care for you all maybe that is my problem all I do is care there is a lot going on in my life right now the panic attacks I do not know why I am getting them now and as for what I am scared of would be everything when in happens I have never felt so scared in all my life I have had 3 really bad so fare all lasted about 3 to 4 hours I pray and hope I can sleep I take more lorazapame then I should hoping that it will make me sleep sp I can get the fear to go away I really whish I new why I have been getting these I know there is a lot of stress in my life right now but these attacks I hear of people having panic attacks but this was ware I was totally useless I could not do anything if I wanted to all I knew was I was scared so scared that you think death would be a blessing now know I am not suicidal at all and I do not want to die it was just at the time of the attack I was that scared more then I have ever been in my entire life all combined I just do not believe that my panic attacks are appropriate for this list and I do not want others to think I am nuts because I am not not that I know anyway :-) sorry it was a sad try at humor anyway thanks all for giving me this outlet it does mean a lot to me ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.308 / Virus Database: 266.7.2 - Release Date: 3/11/2005 No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.308 / Virus Database: 266.7.2 - Release Date: 3/11/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Don't let him 'win' by messing up the excellent job you have been doing! Six weeks is awesome! I know that our motivation should come from our desire to be healthy and fit, but sometimes it's that " I'll show you! " that keeps you moving forward and working out and eating clean. I know that when I am about to die in kickboxing class, I invision my ex's (my daughters father whom I cant STAND!) face right in front of me and I'm punching and kicking his a@@. Boy does that make me feel good! Haha! Keep going! You've already got 6 weeks down, 6 more to go! Just imaging what you will look like then! > > Hello all. Not a good day today. I went out with some friends last > nite. Only to run into my ex and who I can only presume is his new gf. > Dont understand why he was there, since he knows its a place I > frequent, and about a 45 min drive from where he lives. We were polite > to each other.But ouch really stung. Woke up this morning not in much > of a BFL mood. For the first time since I started this challenge. > (Tomorrow starts week 6) I forced myself out of bed and made some > fortified french toast and a protein shake for meal 2. Really had to > force bothdown. I dont eat when Im upset like this. Hope I can force > down 5 more meals. Today is my rest day, hopefully getting out of bed > early tomorrow for my HIIT and abs wont be as painful as today. Just > need some motivation I guess. Anyone got any? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 > > I am having a terrible time here. Started feeling lousy again after > breakfast. By mistake I took 2 of my digestive enzymes. Could that > count for a lightheaded spell this morning, and now my head feels like it is going to explode. I am feeling horrible. What is wrong? The only other times I have lightheaded spells is when I have Epstein Barr which I have had twice, and I wonder if it is coming back? ==>Don't forget that good foods create healing symptoms, and also your body will go backwards through every symptoms, illness, disease, or injury according to Hering's Law of Cures. During natural healing the body re-experiences them. It's like peeling off the layers of an onion. Clove tea or clove oil will help, and don't forget lemon juice and sea salt in water. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 At 09:36 AM 1/16/2006, Jill wrote: >Hi everyone, >I don't post too often, as I have not gotten around to getting >myself diagnosed one way or >another. I am terrified of setting down that path. I've had two >Harrington surgeries and am >experiencing hip pain and this morning I woke up with severe lower >back pain. Could be a >combo of too much walking yesterday, sitting for a two-hour >movie(Brokeback Mountain was >great) and my period. Plus I slept on my stomach last night (always >have to put a pillow >under my pelvis in order to do this and it doesn't usually hurt like this). Several of my doctors have said that many patients use the pillows; one doctor called it a " pillow fort " to protect from pain during the night! >Anyway, I'm >hobbling and I just need to say that to someone who knows how rotten >I feel. My 6 year-old >had to tie my sneakers today and I don't want that to become a way >of life around here. DH >called from work to say that he really wants me to " make that call " >to the specialist. >QUESTION: I've always thought that we couldn't get MRI's because of >the steel? Yes, they create " artifacts " , stray things on the MRI's. But you can have a CT or CAT scan. (Love that word, sounds like we are archeologists or something!) >I doubt that >my old x-ray's are going to tell the Dr. much. I wonder if I should >start with my primary >doctor, see if he'll order some films so that I have something to >show Dr. Specialist. It's a >long drive to Miami and I don't think I want to show up with nothing >to show him but a limp >and a big scar. I guess I could talk to the staff about that. >Anyway, I just wanted to vent and get a cyber-pat on the shoulder. Thanks. >Jill Yes, X-rays will help. Hang in there, so many of us on the list have pain. in Oakland >Support for scoliosis-surgery veterans with Harrington Rod >Malalignment Syndrome. Not medical advice. Group does not control >ads or endorse any advertised products. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 OMG- don't even get me started on the diet--- donuts! OMG. the diet was the best thing we did with my son. let's the teachers do their job? OMG most regular ed teachers suck when it comes to our children. Not their fault- they don't have the proper training. You know what - you are going to have hundreds of people disagree with something you are doing- and you will have hundreds agree.... stay strong in YOUR belief- because that is the only thing that matters. The other day a woman was telling my dad that vaccines are totally safe and he looked at me and I looked at him-- and I just let her go off- after trying a few arguments... but i realized- there was no use. You just have to let it go. Do your thing--- the WHOLE world will never agree. But, they don't have to. you're the mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Thank you! I needed that encouragement. I do have to let it go with the arguing. It just really gets under my skin sometimes, ya know. I work in a pediatric office so I catch the heat a lot. " Oh, that's the one that won't get her son vaccinated. " I just always thought my parents and family would be behind me. I truly thought they gave me more credit then that. My husband said that they don't understand because they aren't living it like we are. Which is true, but still , show a little support. I truly hope all this helps Tyler so I can say " HA! Not curable my ass! " Thank you again for your support and you are right, it only matters what I think. After all, " they don't live it like we do " . Re: Bad day > OMG- don't even get me started on the diet--- donuts! OMG. > > the diet was the best thing we did with my son. > > let's the teachers do their job? OMG most regular ed teachers suck when > it > comes to our children. Not their fault- they don't have the proper > training. > > You know what - you are going to have hundreds of people disagree > with > something you are doing- and you will have hundreds agree.... stay strong > in YOUR belief- because that is the only thing that matters. > > The other day a woman was telling my dad that vaccines are totally safe > and > he looked at me and I looked at him-- and I just let her go off- after > trying a few arguments... but i realized- there was no use. You just have > to let it go. > > Do your thing--- the WHOLE world will never agree. But, they don't have > to. > you're the mom > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Dear , I have read your lament about your son Tyler. I have had extensive experience dealing with autism. I believe it is a genetic disposition that is exacerbated by a serious environmental factor that is .most likely a methyl mercury contaminant in vaccines. The prognosis seems to be that improvements can be made through brain exercise, chelation, and nutrition. The disorder is highly variable in extent. There are high functioning autistic children who are almost normal and do well in life. The spectrum extends down to severely disabled persons who cannot speak or are impaired physically. It is very important to understand what parts of the brain are affected so that suitable brain exercises can be applied to foster development. It is useful to understand that the brain is highly plastic. It responds to exercise in much the way a muscle does. It grows with exercise. You use it or lose it. There are no medicines for this disorder. It is not a disease. It is brain development gone awry. If you visit my web site there is much information there on autism. The url is www.biocompresearch.org I would like to be of as much help as you can use. You can call me at 800 246 3526. Hershel Toomim Sc.D. H. wrote: >I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. >So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. >I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " >It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. >I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. >Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. > >Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. >www.evidenceofharm.com >www.generationrescue.org >www.safeminds.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Oral chelation over a 3 month period is safe and effective. Autism is a syndrome with many differentcausesd; the most common onev was the mesasles vaccine contsaining thimersol. Sincerely H.H. Fudenberg, M.D., D.D.G., I.O.M. 864-592-8076 From: " H. " <tylerhaley01@...>Reply-EOHarm To: <EOHarm >,"autismbiomedGA" <autismbiomedGA >Subject: Bad dayDate: Wed, 22 Feb 2006 19:03:03 -0500 I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!" It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Dr. Fudenberg, the Measles vaccine never contained thimerosal. As a live virus vaccine, the thimerosal preservative would have killed the virus in the vaccine, making it worthless. J From: EOHarm [mailto:EOHarm ] On Behalf Of Herman Fudenberg Sent: Wednesday, February 22, 2006 10:14 PM EOHarm Subject: RE: Bad day Oral chelation over a 3 month period is safe and effective. Autism is a syndrome with many differentcausesd; the most common onev was the mesasles vaccine contsaining thimersol. Sincerely H.H. Fudenberg, M.D., D.D.G., I.O.M. 864-592-8076 From: " H. " <tylerhaley01@...> Reply-EOHarm <EOHarm >, " autismbiomedGA " <autismbiomedGA > Subject: Bad day Date: Wed, 22 Feb 2006 19:03:03 -0500 I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and " professionals " ). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said " He is right, if you do that to a child they won't ever be cured! " It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their " scientist " that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident. www.evidenceofharm.com www.generationrescue.org www.safeminds.org SPONSORED LINKS kirby Mercury research Autism research American politics ! GROUPS LINKS Visit your group " EOHarm " on the web. To unsubscribe from this group, send an email to: EOHarm-unsubscribe Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 1, Oral chelation over a 3 month period is safe and effective. 2. Autism is a syndome with many different causes; the cause should be treated, not the symptoms. Maost common cause was the measles vaccine containing thimersol; for informatuinon resukts of treating this with meassles speific cell mediated immunity inducer call dentisdt VERELLOTTI in Shoreham IL/.fatherr of a 8m,year old austic. Withthis therapy, vocabulary went from 0 words to 3,000 in 9 months.Sincerely H.H. Fudenberg, M.D., D.D.G., I.O.M. 864-592-8076 nitrf/prg From: " H. " <tylerhaley01@...>Reply-EOHarm To: <EOHarm >,"autismbiomedGA" <autismbiomedGA >Subject: Bad dayDate: Wed, 22 Feb 2006 19:03:03 -0500 I hope you don't mind if I vent but I have had a bad day. I was talking to my mother last night and some how they had gotten on the topic of chelation this past weekend when my brother, who is studying special education at UGA, was at their house. She said that he was concerned over us doing chelation (not doing it yet, just starting the diet). I told her that we were going to wait until we have him completely GFCF for a while. Some children have been greatly helped by diet alone and we were going to try it before thinking about chelation. She said that my sister-in-law (who has read Evidence of Harm) said that she thought we should have Tyler on the diet and do the chelation if needed. I think this all started when they were talking about us going to the Great Plains clinic in April and how much it was going to cost. So I e-mailed my sister-in-law this morning to thank her for sticking by me. She then told me the rest of the story that I think she thought I already knew. My brother said that he has talked to parents and professionals that have said that chelation doesn't help and it can be painful. He also doesn't think that the diet will help (apparently more info from the parents and "professionals"). He said that autistic children go through enough with out having to be on a strict diet. If Tyler wants a doughnut he should be able to have a doughnut. (He can, as long as it is GFCF). The part that got me, though, is when he said that autism can not be cured! He said the best thing is to put them in a regular class room and let the teachers do their job. I agree with my sister-in-law when she said "He is right, if you do that to a child they won't ever be cured!" It just made me so mad. I thought my family was behind me in all of this then find out they are pretty much mocking me behind my back. I have doctors that I deal with all the time telling me I am wrong. A little family support would be nice. I sent them a nice e-mail with a link to autismmedia.org and told them to check it out. I told them there was a lot there on chelation and the diet to better educate them. I told them that I know what is out there in the media and I don't trust the media or their "scientist" that they say back the facts up. What I believe is the parents that I have talked to that have watched their children fade in front of their eyes. These same parents have watched their children re-emerge after chelation and diet intervention. I said that I don't know that Tyler will be completely healed, but I won't ever give up the fight. I told them that those who want to say that autism is not curable are the ones that don't want you to know what caused it. I said that I do believe that autism is curable and that if I didn't believe that then it would mean that I had given up hope on my son and that is not something that I am willing to do. Sorry, just had to vent. I obviously don't have anyone to talk to about this now. Except my sister-in-law. Thank God for her. She luckily is one that will tell you what she thinks whether you agree with her or not. Truth has three stages:First it is ridiculed,then it is violently opposed,finally it is accepted as self-evident.www.evidenceofharm.comwww.generationrescue.orgwww.safeminds.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 I know it hurts when our family doesn't support us. I've found comfort in accepting my family's just too dumb to understand it. I do what Allie needs and they all know I will, regardless of their ignorance. I tried for a couple of years to convince them of all the autism treatments, but I realized it was more important for me to have internal peace; you can never change enough person, only your reaction to them. BTW, if gfcf didn't work, my daughter would not have begun speaking 5 days after removing dairy, considering she was nonverbal until then, after six full mos of speech & ot. As well, I tell people my goal isn't in curing my child of autism, my goal is to heal her gut, remove any toxic substance from her body, and restore proper cellular function. If she still has autism, what ever, if she doesn't, what ever. Debi Quote Link to comment Share on other sites More sharing options...
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