New

[Guest guest]

So what is yoru first name?

Nice to meet you adn welcome1

Jeanetta Mastron

> Sorry , thinking about crossmultiplying I forgot to introduce

myself.

> I,ve been working at a walmart,s pharmacy for about 7 months now.

I,m

> taking the certification test now in november and am getting very

> frustrated when I can't figure out how to do something as simple as

> crossmultiplying. If you understand what I,m trying to say please

> help.

> PS I want to thank you , your tutorials have been incredibly

helpfull

> with alot of other math issues I was having difficulty with.

[Guest guest]

Hi Bobby...

While I don't suffer from social anxiety, I have general

anxiety/panic disorder. I had a hard time accepting that this could

be the problem and went through a year of my dr checking this and

that, eliminating it all till I finally accepted it. I never thought

I would be on pills for this type of thing.

I was first prescribed Paxil and since then just trying to find the

right med and Lexapro seems to be working for me. The way I've found

to explain how SSRI's work for me is like this...I call it

a " governor " . Helping me to decide which thoughts to dismiss. I

don't know about you but I could think about something and start

dwelling on it, try to push the thought aside, but it just would stay

there in the forefront. On the SSRI, I'd think about it and next

thing you know I would just automatically move on to something else,

maybe the way your thinking process is suppose to go rather than

stressing out over it. Now when I start to get in that dwelling

mode, I tell myself this is stupid and push it out of my mind...on to

better things.

I suggest doing a search online about Lexapro and SSRI's in general.

Learn about seratonin and how the body puts it to use. Learn about

it and understand it. You'll probably read many negative things as

well as positive things but just remember that these meds were put

out there to help us and focus on the positive for now. Allow it to

work for you, for if you feel negatively about your treatment, it's

going to respond negatively.

Joining a message board geared toward social anxiety is a good thing

too. Funny for me, when I first decided to accept this I found an

anxiety/panic disorder forum on AOL and as I was reading through it I

couldn't help but think how nutty some of the people sounded, then it

dawned on me that they sounded just like me! lol That helped alot to

know that this odd way of thinking I had/have isn't just me but

others felt the same odd way.

I hope this helps. Remember stay positive. Allow the med to work

for you.

Good Luck to you!

> Hello. My name is Bobby and I was diagnosed today with social

> anxiety disorder. My primary care doc diagnosed me. He gave me

the

> name of a psychologist who I made an appointment to see next week.

> I am 27 and I think I have been suffering from this for about 5

> years or so. Although, I tried to ignore it for so long, I could

> have been suffering from it longer. I remember be uncomfortable in

> certain social situations in college, but it didn't really kick in

> until I got a job after college. It began suddenly. I had a very

> stressful job, so I attributed the feelings I was having to that

> stress. I moved to a less stressful job within the same company

> after a couple years and I actually saw things get worse. I

avoided

> interaction with co-workers; I stopped participating in meetings,

> started screening my calls. When I left that company and went to a

> new I stopped doing meeting and came up with excuses. I stopped

all

> social interaction, avoided emailing; taking calls, calling people,

> it got bad. I recently left that job and now work at home, which

> has made it even easier to avoid everything. The only person I

> don't feel weird around is my wife. I was a mess at my wedding

> earlier this year and didn't get to enjoy it the way I know I

should.

>

> Despite all this, I will go to sleep tonight feeling better. I

have

> finally taken the first step to getting help. I was put on 10 mg

of

> lexapro. I don't know much about the drug or how it will help, but

> that is why I am hear, for that and to get support from others who

> have taken the first, second, third and other steps.

>

> Help me help myself, please.

>

> Bobby

[Guest guest]

One last thing, I'm long winded tonight LOL. I want to commend you

for taking the first step and feeling positive about it. Also, I

love your last sentence...

> >

> > Help me help myself, please.

> >

> > Bobby

That's is a VERY important point. I think part of healing is us

helping ourselves. We can't expect a pill or dr to cure us. We have

to WANT to help ourselves.

Welcome to the board.

Shells

[Guest guest]

Thank you for all your insight and kind words Shells. I never would

have thought that medication would help me, but I am hopeful it

will. so far no side effects with the LExapro. Hopefully that

remains the same.

To everyone out there....what side effects have you all gone through?

Bobby

> > Hello. My name is Bobby and I was diagnosed today with social

> > anxiety disorder. My primary care doc diagnosed me. He gave me

> the

> > name of a psychologist who I made an appointment to see next

week.

> > I am 27 and I think I have been suffering from this for about 5

> > years or so. Although, I tried to ignore it for so long, I

could

> > have been suffering from it longer. I remember be uncomfortable

in

> > certain social situations in college, but it didn't really kick

in

> > until I got a job after college. It began suddenly. I had a

very

> > stressful job, so I attributed the feelings I was having to that

> > stress. I moved to a less stressful job within the same company

> > after a couple years and I actually saw things get worse. I

> avoided

> > interaction with co-workers; I stopped participating in

meetings,

> > started screening my calls. When I left that company and went

to a

> > new I stopped doing meeting and came up with excuses. I stopped

> all

> > social interaction, avoided emailing; taking calls, calling

people,

> > it got bad. I recently left that job and now work at home,

which

> > has made it even easier to avoid everything. The only person I

> > don't feel weird around is my wife. I was a mess at my wedding

> > earlier this year and didn't get to enjoy it the way I know I

> should.

> >

> > Despite all this, I will go to sleep tonight feeling better. I

> have

> > finally taken the first step to getting help. I was put on 10

mg

> of

> > lexapro. I don't know much about the drug or how it will help,

but

> > that is why I am hear, for that and to get support from others

who

> > have taken the first, second, third and other steps.

> >

> > Help me help myself, please.

> >

> > Bobby

[Guest guest]

I suppose we all felt that way when we first got the news. Well, tell him to cheer up, more and more people are being successfully treated for hepatitis C. Most people, even if they aren't successfully treated survive this disease and live out their normal lifespan. I was treated and am considered a long-term responder. The outlook is improving as they come out with better treatments, too. I don't want to minimize it, it is a serious problem, but we do have weapons to fight it! 15% of people with a positive blood report (positive for the hcv antibodies) have cleared the virus on their own, so it is still possible that he does not still have hep c. Good luck and keep us posted. -dz-Norma <ne.taylor@...> wrote:

Hello

My son has just had a blood report come back positive to hep C. He goes for another test in 3 months. I am trying to be encouraging for him but he is feeling like he has been handed a death sentence.

Any advice for us?

Thanks

Norma

[Guest guest]

Hi,

I am new to this list. I have a 13 year old son who was diagnosed with

Rheumatoid Arthritis in Aug. finally in Oct. we got the Lyme diagnosis - prior

to

the diagnosis - he had pain in all of his joints then swelling in the elbows

and knees. He also has fatigue. He was put on 400 mg of Dioxicycline for 6

weeks - there is no swelling now but still pain. We got the blood test that the

Bowen Inst. is researching and waiting those results. Not sure where we are

going to go fro here.

Hoping to learn more from this list.

Kim

[Guest guest]

>Hi. My name is Joyce. I have had electrical problems for at least 12

>years now. Thank goodness I am better otherwise I wouldn't be able

>to use this computer!

Welcome, Joyce!

So, did you do anything in particular to get better? If so, what?

Marc

[Guest guest]

Thanks for that information Joyce!

Like you, I also got chemical sensitivities and candida following excessive

amounts of antibiotics. And like you, mercury seemed to be a factor, as I

went through the whole dental filling replacement & mercury detox. Also

like you, I lost 35 pounds (actually 40) at the worst point.

I also found some relief taking Seasilver -- I must have gone through at

least 20 bottles of that! Although there was some sort of fiasco last year

with that company, and I switched to " Sea Energy " , which seems to be more

or less the same thing.

And I've read that there *are* scientific studies about prayer being

effective. Glad to hear it worked for you!

Marc

[Guest guest]

Yes of cource it's a good place to ask questions. Feel free

I'm an achon as well. Infact i think most of the people on the list are

achons since it's the most common type dwarfism.

Kenderdine (Armstrong)

From: " beckaflecka " <beckaflecka@...>

dwarfism

Subject: new

Date: Wed, 11 Feb 2004 14:34:26 -0000

GOOD MORNING! Hi, my name is bek! im new here, and havent posted

any messages yet. Im here because my son , (3.5) is little

achon. I have some questions, quite a wide range of questions, from

rollercosters to surgury. So is this a good place for me to ask some

of these questions, or can you tell of a place more geared for me?

thanks

_________________________________________________________________

Add photos to your e-mail with MSN 8. Get 2 months FREE*.

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[Guest guest]

hi bek this is a very good place to ask all your questions and concerns

because here there are lps with all forms of dwarfism and quite a few of us are

achons and i'm sure everyone would be happy to help you out in anyway they can.

anna

[Guest guest]

gray_wolf1234,

Welcome to our group!

In our links section there's a table on desirable total and free

testosterone and sex hormone binding globulin ranges. Link and files

section are accessed on our home page from left column.

Looking for it will introduce you to resources in our links and files

section.

I would also recommend that have your estradiol (E2) and estrogen levels

determined when you see your doctor and request testosterone level test.

OR eon

GayMan

new

I forgot to ask in my previous post....what is the normal range for

a 36 year old?

[Guest guest]

Hello, what is your first name?

Robin

sleeping.Beauty@... wrote:

Just thought i would say hi to you all. I was diagnosed 16years ago. Im 24 from

the uk.

[Guest guest]

Hi Leanne.

sleeping.Beauty@... wrote:Hi Robin my names Leanne.

[Guest guest]

In a message dated 4/6/2004 7:22:25 AM Pacific Standard Time, nkosi@...

writes:

he only has a life expectancy

of 3 - 10 years left and no cure.

Wow, I have not heard from others of life expectancy issues. That would be a

scary comment coming from a doctor.

He has gone thru some horrifc days of pain where he cannot lift his feet and

walk. . He battles at times

holding items in his hand and is very clumsy as a result of the condition.

Does he have tremors? Shaking?

I would encourage him to seek out information from another medical community.

It sounds to me, like perhaps the doctor who is seeing him, doesn't have a

lot of information or resources available for treating Lawrance. Perhaps it is

best to leave the country and seek treatment elsewhere, or is there a major

city with good health care anywhere near where you are?.

The costly medications being suggested, is that remicaid?

As for diet, my daughter finds, when she is in the midst of the most pain and

fatigue, that a diet that consists of no wheat, no dairy, no pork, no red

meat, no tomatoes or other acid fruits or vegetables, no potatoes, no bell

peppers will help some.

It does make eating a challenge, rice, soy products, chicken and fish, and an

assortment of fruits and vegetables, that don't fall into the above mentioned

catagories.

She usually has some improvement within a couple weeks on this diet.

I wish you the best and I hope this suggested diet will help your friend to

feel a bit better.

Perhaps someone else on the list will share more specifics on diets that have

worked for them.

I realize health care in other countries can be challenging.

Perhaps it is time to let your friends family know how much he is suffering.

Perhaps they can or would be willing to assist in getting the medical

treatment he needs.

Where you are, are you in the midst of a change of seasons? Wet to dry? Dry

to Wet? I know my daughter suffers more when the weather is changing.

Good luck to you and to your friend!

K

Adrienne's Mom

[Guest guest]

Mads,

You really put the difficulties of those of us in the U.S. in perspective.

I don't know Lawrence's medical situation, and I'm not a doctor. I have had

flares as bad as what you're describing. With proper treatment, Lawrence's

life expectancy shouldn't be significantly reduced.

When I had a severe flare and couldn't lift my feet to get on the doctor's

examining table, I was also on Methotrexate. For some of us, it completely

stops working. The doctor took me off methotrexate and put me on

prednisone. It might also be known as cortisone there. The advantage of

prednisone/cortisone is that it is cheap (pills) and can quickly bring the

inflammation and pain under control. I'm guessing that might be available

there?

I'm now off prednisone and on an injectable medicine called Enbrel which

costs about $15,000 a year I think. I'm wondering if Lawrence could take

prednisone to make his symptoms better until he can get to a place where he

could get on the newer medicines?

I hope you can go to UK soon. They have a lot of problems with their

healthcare system but nothing compared to where you're currently living.

Love and blessings and safe passage,

Janet in San Francisco

[Guest guest]

I have to say I would be inclined to agree with you Matt. The story of

Lawrence seems highly unrealistic to say the least, and someone is being

conned somewhere along the line. Ankylosing spondylitis is a terrible

disease, but having seen 2 family members affected by it severely (I myself

have Reiter's not AS) I have never seen anyone's life expectancy reduced to

3-10 years. AS affects quality of life not quantity - so AS suffer's should

not be alarmed by this false statement. I am sorry to seem unsympathetic

Nkosi, but I find your story rather unbelievable in many respects. This list

provides advice, info, and support - but not of the financial kind. I have

recieved many e-mails remarkably similar to this one on my normal e-mail

account, but never expected to see one on a list for people who are

suffering. I find it very distasteful. Please excuse me if I am mistaken.

I hope everyone is doing OK,

Helen

_________________________________________________________________

Express yourself with cool new emoticons http://www.msn.co.uk/specials/myemo

[Guest guest]

Danette,

Thanks for writing.

I'm curious as to why you would be doing both a scan (ultrasound I assume)

and an uptake scan as the ultrasound along with blood tests for thyroid

antibodies is considered to give the most definitive diagnosis of

hyperthyroidism. In fact, there is research showing that the uptake scan,

which involves radioactive iodine, is dangerous as well as being outdated.

There have been documented cases of people developing thyroid eye disease

(TED) as a result of the uptake scan as well as other symptoms. The reason

it's considered outdated is that it doesn't tell you anything about why your

thyroid is overactive unlike the antibody tests which will tell you if you

have Grave's, or the ultrasound which can detect nodules.

One of the reasons the uptake has been used in the past is to determine teh

amount iodine to give someone for Radioactive Iodine treatment. However, as

you've just been diagnosed, I will assume that you have not yet decided on a

treatment plan. For your information, me, and lots of other people on this

list, have chosen anti-thyroid drugs because they do not make you

permanently hypothyroid like RAI and because some people go into remission

after a course of the ATD's and need no further treatment. Some people on

this list have done RAI, usually when ATD's failed, some with success and

others who wish they had not done it.

I would ask your doctor why s/he has ordered the uptake and say that you

would prefer to get a definitive diagnosis through the ultrasound and

antibody testing because these are more accurate, less invasive tests and do

not use radioactive substances.

Good luck! Write if you have any more questions, hope I haven't overwhelmed

you...

Nissa

new

>Hi! I've just been diagnosed with hyperthyroidism and am going in

>Wed. and Thurs. for a thyroid scan and a thyroid up take scan. Any

>information on what to expect would be appreciated.

>

>

>

>

>

>

[Guest guest]

Danette -

If you're not planning to have RAI as your treatment, don't do the radioactive

uptake scan. Also if you have any eye symptoms whatsoever, don't do it.

Personally I had NO eye symptoms until I had the uptake scan. With me they only

lasted for a couple of weeks and then went away but it definitely brought it out

in me.

There are a few and message boards online where you can study up on

your options. If you need any help, just let me know.

Hugs,

Lynn

new

Hi! I've just been diagnosed with hyperthyroidism and am going in

Wed. and Thurs. for a thyroid scan and a thyroid up take scan. Any

information on what to expect would be appreciated.

[Guest guest]

Danette,

Nissa is right about the antibodies being the definitive test for Graves'.

The antibodies tests are TSI (thyroid stimulating immunoglobulins - these

are the stimulating antibodies that are responsible for GD), and

TPO-antibodies (commonly found with hyper, although are present in higher

amounts with Hashi's; some can be hyper with TPO-ab due to the excess

release of thyroid hormone as thyroid cells are being destroyed.

I had the same experience as Lynn with having no eye symptoms other than

dry eye prior the uptake scan, and afterwards had irritated eyes and

increased hyper symptoms (palpitations). I would not have gotten the

uptake scan if I had known better. Ultrasound will detect nodules. Unless

you are planning to get RAI, there is no reason to have the uptake scan.

Please read all you can before making a permanent treatment choice such as

RAI or surgery. Many have done so before knowing enough about the possible

outcomes, trusting their doctors who were urging them to have RAI, and

wound up suffering and regretting the treatment. About 30% of people who

have RAI have problems that are not easily or adequately remedied, such as

triggering or exacerbation of thyroid eye disease.

Mediboard.com has much valuable info, and best to start with the Thyroid

Awareness 101 thread. Elaine also has an excellent book, Graves'

Disease: A Practical Approach, as well as very helpful articles on Suite

101. Another frequently recommended book is Thyroid for Dummies.

If you are going to try ATD medication, tests, aside from the antibody

tests and ultrasound previously mentioned, include: Free T3, Free T4, TSH,

WBC, and liver function tests (the latter two are important for baselines,

prior to ATD therapy).

Best wishes,

[Guest guest]

Danette,

One more thing... always obtain a copy of lab results. If have GD and wish

to go on meds, then you will need to get labs done every 4 weeks, give or

take a week (Thyroid Awareness 101 has more about this in Pam B's letter

to the newly diagnosed.

P.S. Elaine's book is Graves' Disease: A Practical GUIDE (not Approach).

[Guest guest]

In a message dated 5/11/2004 4:14:01 PM Eastern Standard Time,

jscottsmithunc@... writes:

Also,

when do I ever begin to sleep again...terrible insomnia even when

taken in the morning????

I had the opposite - I couldn't stay awake after taking the Lex, so I

switched to night time dosing. Are you tired after taking it? If so, maybe

switch

to night time.

´¨¨)) -:¦:-

¸.·´ .·´¨¨))

((¸¸.·´ ..·´ -:¦:-

-:¦:- ((¸¸.·´*

[Guest guest]

In a message dated 5/11/2004 5:37:33 PM Eastern Standard Time,

jbamorales@... writes:

My problem with sleeping is that I have been taking mine at night before bed,

no problem there it's just the next morn. I fill awful. fill sooo tired and

by evening fill fine again

I take mine at about 9 pm. Someone suggested earlier, like 5 or 6 pm. Maybe

that would work. You'd be tired enough to sleep, but hopefully the

" sleepiness " would be gone by morning when work rolls around. Just a thought.

´¨¨)) -:¦:-

¸.·´ .·´¨¨))

((¸¸.·´ ..·´ -:¦:-

-:¦:- ((¸¸.·´*

[Guest guest]

Hi Anne.

I went downhill with ReA a few years ago. I found that antibiotics

(abx) Biaxin, Zitromax, Minicin, are the best way to deal with this

infection. Sure we have some hereditary issues alas, this is not the

whole picture.

The problem for all of us is that abx are very good at killing the

bacteria, alas these bacteria are smart and have parasitized our immune

system in order to survive. thus long term abx are needed, and normally

low doses.

You should have a look into the roadback.org, this is a protocol that

has had great success with abx, in low doses.

The other major resource is a site called www.immed.org, This provides

a lot of information about abx, and diseases that are 'thought' to be

immune disorders and in fact are infections.

The latest promising research is coming from researcher called Trevor

Marshall, you can see his site at www.sarcinfo.org and better still

join the group, listed at marshallprotocol@...

His idea is to use a blood pressure drug called Benicar, this reduces

inflammation then he adds in abx in low doses (Minicin) that can get in

and kill the bacteria.

Thats the top and bottom of it. I wish you well.

steve

[Guest guest]

Hi Steve, Thanks for the info. I'm new to researching this and didn't realize

abx tx was even an option. Does it help with uveitis of the eyes or is

Methotrexate the only med that helps that . A

[Guest guest]

Hi Steve, Thanks for the info. I'm new to researching this and didn't

realize abx tx was even an option. Does it help with uveitis of the

eyes or is Methotrexate the only med that helps that . A

All of your symptoms are no doubt because of bacteria. Do yourself a

big favor, look up what I have already mentioned.

Love you lots, and wish you well.

steve