new to the group

January 10, 2006

Thank you for the info and for being spacific about the enzyme

name. There are a lot out there and I'd like to start with the most

popular.

Helene

> Hi, I am new to this group. I have been reading the GF/CF

board for

> a long time and saw that alot of people are using enzymes to

replay or

> suppliment the diet. I would like to try this with my son, who

has

> multipul food allergies as well as PDD-NOS and ADHD. I really

> believe that enzymes will help him in all areas. Does anyone have

a

> suggestion as to which type of enzyme is best to start with? Is

> Houston better than Kirkman? Should I use no-fenol along with the

> enzymes? There seem to be a variety of choices out there. Any

> suggestions would be greatly appreciated.

>

> Helene

>

January 10, 2006

>>Does anyone have a

> suggestion as to which type of enzyme is best to start with? Is

> Houston better than Kirkman?

HNI was very beneficial for my family.

>>Should I use no-fenol along with the

> enzymes?

For ADHD, yes definitely consider No-Fenol.

Dana

January 10, 2006

> Hi, I am new to this group. I have been reading the GF/CF

board for

> a long time and saw that alot of people are using enzymes to

replay or

> suppliment the diet. I would like to try this with my son, who

has

> multipul food allergies as well as PDD-NOS and ADHD. I really

> believe that enzymes will help him in all areas. Does anyone have

a

> suggestion as to which type of enzyme is best to start with? Is

> Houston better than Kirkman? Should I use no-fenol along with the

> enzymes? There seem to be a variety of choices out there. Any

> suggestions would be greatly appreciated.

>

> Helene

>

March 28, 2006

,

I have a 7 year old daughter who has as. I know what you are going through.

I too tried to keep a journal and I found no simularities between them as

well. I have gotten my daughter to sit down and do puzzles and play quiet games

with me and that seems to help, sometimes...one day it works the next it

doesn't. Maybe try to find distractions for him when he starts in with the

screaming.

Coloring and reading are great too.

My daughter goes on spring break on the 10th and I am absollutlly dreading

that time too..I hear yah girl!

Keep strong and I hope that some of my suggestions help you.

erica

April 8, 2006

Subject: ( ) New to the Group

Hi. I have a 4 year old son with Asperger's and a 2 1/2 year old son

with mild/moderate (depends on which doctor you ask) autism. My

oldest () was just diagnosed a few months ago. At first it was a

relief -- the diagnosis just answered a lot of questions we had about

why he did certain things -- but now I am just worn out.

He is a very active boy, which I can work with, but he

screams/screeches a lot during the day. I have tried to journal to

find out what is causing the screaming, but I can't find any

similarities between episodes. Has anyone gone through this? Can

anyone give me any helpful hints on how to stop this? He is home on

Spring Break this week and I don't know if I'll survive the next 5

days!

Thanks for any ideas.

Wow! I have one of these here! My 9 yo used to scream a lot, always had to

be making some kind of noise at all times. It is exhausting and I don't

know why either, other than just the stim factor that making noise provides?

Anyway, we've been trying various meds to get him to stop this. Nothing

else tried was working except this. I hope you can survive spring break!

Roxanna

April 8, 2006

Noise, Noise, Noise, all the time Noise! For no reason at all. I had to pick him

up from school and wait for dad to pick him up at my work. He made all sorts of

noise watching TV. I had to go to the back where the TV is and say quite down

several times. In the shower and while he is playing in his room. I have had to

tell him to hush so I could hear the radio in the car. I keep hoping he will

grow out of it before I have a path worn out in my floor from every room in the

house to his door. My best weapon at night is " if I hear one more loud sound I

will turn your TV off for the rest of the night " . With all the homework and

extra work he does down time is very important to him.

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

April 11, 2006

my son of 6 does the same thing. all the time " swooshing "

and " clicking and clacking " noises he calls it playing. i know what

hes doing, he playing what he calls " nijas or power rangers " in his

head and providing sound effects. trust me i know how frustrating

all the noise can be. everywhere we go any spare moment he has he

is " playing " to himself. im pretty sure its harmless and just a way

for him to express himself. if this is the same problem you have

maybe you just need to learn more patience.

>

> Noise, Noise, Noise, all the time Noise! For no reason at all. I

had to pick him up from school and wait for dad to pick him up at my

work. He made all sorts of noise watching TV. I had to go to the

back where the TV is and say quite down several times. In the shower

and while he is playing in his room. I have had to tell him to hush

so I could hear the radio in the car. I keep hoping he will grow out

of it before I have a path worn out in my floor from every room in

the house to his door. My best weapon at night is " if I hear one

more loud sound I will turn your TV off for the rest of the night " .

With all the homework and extra work he does down time is very

important to him.

>

> ---------------------------------

> Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

>

April 12, 2006

My kids did, and I think they still do, what they call " daydreaming. "

This involves acting out a little story. Sometimes it involves making

noises; it always involves, in 's case, a six foot body leaping

around the room. It's great for the imagination. I have no problem with

it. Except sometimes when has chosen to daydream in my bedroom

and I want to go to bed in it. LOL Then we have Words and he goes

downstairs.

My kids have always been quietly noisy. My dd had this little hum that

she made when she was concentrating. It drove her Montessori teacher

nuts.

Everybody's tolerance for noise is different. I have a pretty high

tolerance for noise. But then, I've got only one kid at home now. And

the only thing he does is leap around the room. And wrassle with his

father. Now THAT'S noisy!!!

Liz

On Apr 11, 2006, at 2:31 PM, mpflutterby wrote:

> my son of 6 does the same thing. all the time " swooshing "

> and " clicking and clacking " noises he calls it playing. i know what

> hes doing, he playing what he calls " nijas or power rangers " in his

> head and providing sound effects. trust me i know how frustrating

> all the noise can be. everywhere we go any spare moment he has he

> is " playing " to himself. im pretty sure its harmless and just a way

> for him to express himself. if this is the same problem you have

> maybe you just need to learn more patience.

>

April 12, 2006

> >

> > Noise, Noise, Noise, all the time Noise! For no reason at all. I

> had to pick him up from school and wait for dad to pick him up at

my

> work. He made all sorts of noise watching TV. I had to go to the

> back where the TV is and say quite down several times. In the

shower

> and while he is playing in his room. I have had to tell him to hush

> so I could hear the radio in the car. I keep hoping he will grow

out

> of it before I have a path worn out in my floor from every room in

> the house to his door. My best weapon at night is " if I hear one

> more loud sound I will turn your TV off for the rest of the night " .

> With all the homework and extra work he does down time is very

> important to him.

> >

> > ---------------------------------

> > Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

> Messenger with Voice.

> >

April 12, 2006

I can relate to the noise thing. My son likes to hum all the time.

He is at school right now so I was going to have a nice quiet house

while I made birthday cake (wheat-free) and next thing I know there is

this horrible shrill sound in the kitchen. My son collects electronic

gadgets and one of them was a timer with a magnet that he stuck to the

fridge. It took me 40 minutes to figure out exactly where the

horrible noise was coming from because I could only stand it for a bit

then would have to leave the room for a while. Thank goodness I

finally found it and took the battery out. (It wouldn't quit when I

pushed stop or cancel or anything!)

Kathy J.

May 9, 2006

Hi Vicki,

that is nice for you to offer help for your sister & niece. What are the

concerns you have with your niece? is it with academics?, social skills?,

behavior?, meltdowns?, other? This is a very helpful group with lots of people

with lots of advice. Does she have an IEP in her school? You might want to

find out if your school district that your in is familiar with autism/aspergers.

This is just my opinion, public school works great for us because all the

services are right their during school. Other people that wrote in expressed

private school worked best for them and had special services at home or after

school. each child with AS is so different. another thing I do is read all post

and take notes with the ones we can relate with. do you have children of your

own that live with you? If so, you might want to explain to them what AS is.

This will help them understand your niece. You will learn alot from this group.

Good luck - Rose

Vicki Pinell <decorate4free@...> wrote:

Hello,

I am new to the group. My sister has a daughter, 12 who has aspergers

syndrome and is very frustrated and feels she doesn't have the patience

anymore. She has asked if I would take her for the summer and then have her

go to school here for a year. She is in Nevada and I am in Washington. I

want to do what ever I can to help my sister and provide a positive

environment for my niece. I want to make sure I am doing the right thing,

and wonder what I am getting myself into. Any tips on how handle this

little one would be great.

Thanks in advance for the advice.

Vicki Pinell

Decorating Consultant

Home Interiors & Gifts

Striving to Provide Red Rose Service

<http://www.homeinteriors.com/decorate4free>

www.homeinteriors.com/decorate4free

May 10, 2006

Hi!

There are SOO many different issues with Aspberger's,

or any ASD. You can't really say what " will work " or

" is best " for someone with an ASD. I've heard that

there are as many forms of ASD's than there are people

who have them.

What I have found, and speaking to many others, they

have found, too, that what is best is LISTENING.

LISTEN to your niece and your sister. One of the only

things about ASD's is that they have trouble

socializing, and telling you straight what's going on.

That's why actually trying to actively listen is

essential. Try and figure out what they need. It's

seems simple, but it's hard to do. Actively listen and

figure your neice out. Max says, " I have a bug bite "

....on my leg, arm, etc. After listening and figuring

him out, he's actually trying to tell me that he has a

" boo-boo " . He just can't say the right words.

Actually, he " doesn't say the right words " a lot, and

I have to figure out what he means.

Hope it helps.

- Adrienne

--- Vicki Pinell <decorate4free@...> wrote:

> Hello,

>

> I am new to the group. My sister has a daughter, 12

> who has aspergers

> syndrome and is very frustrated and feels she

> doesn't have the patience

> anymore. She has asked if I would take her for the

> summer and then have her

> go to school here for a year. She is in Nevada and

> I am in Washington. I

> want to do what ever I can to help my sister and

> provide a positive

> environment for my niece. I want to make sure I am

> doing the right thing,

> and wonder what I am getting myself into. Any tips

> on how handle this

> little one would be great.

>

> Thanks in advance for the advice.

>

> Vicki Pinell

>

> Decorating Consultant

>

> Home Interiors & Gifts

>

> Striving to Provide Red Rose Service

>

> <http://www.homeinteriors.com/decorate4free>

> www.homeinteriors.com/decorate4free

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

June 3, 2006

This article might help him to understand what your daughter deals with on a

daily basis:

Pam

BALANCING THE TRAY

by Lenore Gerould (1996), Carbon-Lehigh Right to Education Task Force,

Schnecksville, PA. Distributed by Autism Services Center, Huntington, WV by

kind

permission of the author.

Those of us who have daily contact with children with autism sometimes have

trouble explaining to regular education teachers or administrators the â€˜hooks'

of autism; especially the kinds of support they need. You're always trying

to explain the basics, â€˜no, moving the pencil sharpener's location in the

classroom is not what upset him. You have to understand that...'. Then I came

up

with this analogy. Perhaps it will help others to visualize the support

needed.

Try to imagine the child balancing a large serving tray on one upturned hand.

Every distress for that child is like a liquid-filled glass you are putting

on this tray. The â€˜distress glasses' are unique to each kid; but generally

include things like auditory or visual over-stimulation, social interaction,

'surprises' or unexpected changes in the schedule, lack of clear leadership,

the number of people in the room; whatever is sensitive for that child. (Don't

forget the ability to read the body English and anxiety of the adults around

them!) The size and weight of the 'glass' for that child varies; just like

the 'distress glasses' vary for each kid. Some things are merely shot glass

size, while others can be a two liter jug. At some point the tray is going to

start to wobble - the liquid will start spilling out of the glasses on the

tray. The cues that this is happening will vary kid to kid: just as the cause

and

size of a 'glass' varies kid to kid, but generally include regressive

behavior, avoidance or shutting down, giggling or minor acting out to get

attention.

Hopefully, someone will help the kid rebalance the tray, or remove some

glasses. Perhaps taking a break, or allowing time to refocus or process will

work; again, techniques are unique to each kid. If there's no intervention, the

addition of one more glass will topple the tray to the floor. The cause is not

the most recent 'glass' you added, but the fact that the tray was full or too

heavy (the latter is why the child seems so unpredictable to some people.)

Our efforts should be that the kid learns to hold a bigger tray, or to do

minor correction of the tray's balance somewhat independently, but they will

always carry that wobbling tray. Ignoring cues can be disastrous, from

classroom

disruptions to a major regression. When an autistic kids's tray crashes to

the floor, it is always a major event.That's why, if I hear my son got highly

upset over a moved pencil sharpener and acted out, I do not want to hear that

he has to learn to accept change. The sharpener is immaterial, if I learn

that day he'd dealt with a substitute teacher, a fire drill just as Reading was

starting, dead calculator batteries halfway through Math, a 'crashed'

computer in the middle of English, a late bus so that he missed part of home

room

and some florescent lights in the class are half out - his tray was already

full.

All of the distresses are unavoidable and he'd dealt with them without a

hitch; but each was another glass on this tray. Autistic kids need someone

around who is familiar with them; to sense how full the tray is getting and read

the cues, so there's intervention before that wobbling tray topples to the

floor. That is why the type of support for these kids is critical, not just a

'hot body' nearby - but the 'right hot body' whom they can trust will help

balance and who knows the 'hooks'.

For all of us, life is a balancing act, but for autistic kids the glasses

generally break when they hit the floor and it takes a whole lot longer to clean

up the mess and get a new tray.

June 3, 2006

Hi Jill,

Have him sit with you and read the posts with you. You are right, you can't

discipline the same just as the same discipline doesn't always work for

typical kids. I have three boys all with ASD, High functioning Asperger's,

middle functioning ( just not high) Asperger[s and low functioning autism.

They all get a different form of discipline. I think what people think is

that Aspies can help their behavior, and they simply can't. You can tell

them repeatedly the proper way to react, behave, deal with things, but when

it comes the time of reacting, they forget and do what they know. I would

get some easy reading material for your dh, better yet have him sit and join

in with us. I don't post very often, but I do read and have gained a lot of

information from this group. I am sure that you will as well. Good luck,

Janelle

My spectrum, every day has new colors!!!

-- ( ) New to the Group

My name is Jill and I have a 14yo daughter with Aspergers. She also

has ADHD and OCD. She has been challenging as everyone in this group

knows. I've been reading some of the posts and I'm so glad to find

that some of the things my dd does relates to her condition and is not

something no one else has heard of.

One of my issues does not have to do with her but with my dh. He is

her step-father and we married when she was 12. He doesn't understand

her and tries to deal with her as if she's normal. I don't know how

to explain to him (because I've tried) that normal discipline doesn't

work.

If anyone has any suggestions, I'd be happy to try them.

June 3, 2006

Welcome Jill! I agree, let him read some posts. You really cannot

use typical discipline methods with autistic kids. Heck, my 11 yo

would be in tears all the time. Good luck and again, welcome!

, MS

J, 13, schizoaffective disorder

Lily, Asperger's and mild MR, 11

Ry, Sensory Dysfunction, social anxiety and possible Aspie, 6

K, 14, stepdaughter

A, 17, stepson

B, spouse, angel and untreated bp

>

> My name is Jill and I have a 14yo daughter with Aspergers. She

also

> has ADHD and OCD. She has been challenging as everyone in this

group

> knows. I've been reading some of the posts and I'm so glad to

find

> that some of the things my dd does relates to her condition and is

not

> something no one else has heard of.

> One of my issues does not have to do with her but with my dh. He

is

> her step-father and we married when she was 12. He doesn't

understand

> her and tries to deal with her as if she's normal. I don't know

how

> to explain to him (because I've tried) that normal discipline

doesn't

> work.

> If anyone has any suggestions, I'd be happy to try them.

>

June 4, 2006

Janelle,

I think that people with HFA can learn to behave more appropriately if they

are taught how. The thing is, people do not bother. They assume that a person

with Apergers or HFA are either not capable, or just give up on trying to teach

them.

Social skills are the most vital employment skill you can have. I have three

college degrees and cannot keep a job because I don't understand what people

are " getting at " when they speak. People assume you know what they are saying

when they use, improper English, indirect commands, and body language. Many

times non aspies use it in a combination and expect us to decipher the code and

know what they mean, otherwise they say, we don't listen, are insubordinate,

just incapable of doing the job, or my favorite, " You are just trying to be

difficult " .

I find that when people explain to me, some social rules, customs, and how

others think, it directly improves my ability to communicate with others. Most

people are very direct in their communication. But many others are not. The

best way to help people with Aspies is to explain to them the social rules.

Explain that these social rules DO NOT make any sense, they are not logical,

but they need to memorize them and act accordingly so that they can keep a

job, have friends, and get along with others, they don't have to agree with

them or like them.

I also think that, and pray to God that, someone would create a book that

explaines social rules to people with Aspies. Nobody does. They just expect us

to learn after we anger 100s of people in our lives as we try to figure them

out one by one making their lives, and the lives of others they come in contact

with more unpleasant then need be.

Aspies are like Shasta of the Wolves, we understand a different set of social

rules than human society.

Take Care,

Donovan J Arnold

Janelle <taylermadeone@...> wrote: Hi Jill,