new to the group

January 28, 2001

Welcome... as you probably already see, there are a lot of kind and

considerate people here...and alot of knowledge... first hand

knowledge!

I hope the best for you are your fiance.

Robbi

> Hi. I am engaged to be married to a wonderful guy who has suffered

> from psoriatic arthritis since he was 13 years old. He is

> currently 34.

>

> I am a sufferer of chronic health conditions myself (rosacea, PCOS)

> and even though I don't suffer from the constant pain, I do relate

> to him a lot due to that fact.

>

> I have learned a good deal about his condition by using the

> Internet, that is why I decided to join in this group.

>

> Thank you.

January 29, 2001

In a message dated 01/28/2001 6:45:45 PM Eastern Standard Time,

minina62@... writes:

<< Hi. I am engaged to be married to a wonderful guy who has suffered

from psoriatic arthritis since he was 13 years old. He is currently 34. >>

Welcome to the group. I have the opposite situation as I'm the one with PA

and my new hubby has other health issues.

Your fiance sounds like he gets a lot of support from you since you joined

our group to help him out. Keep up the good work. Support from your loved

ones, both online and off make PA bearable.

Take care,

April 29, 2004

> 1) Do I introduce both the enzyme at the same time ?

I would do one at a time.

> 2) For those of you who have seen regression, how severe has it been?

My son was slightly hyper with No-Fenol, and rubbed his arms a bit

with Peptizyde. Both these reactions lasted about 3 weeks.

> Is there a way I might be able to avoid it?

Start at 1/4 dose, that tends to lessen problems.

> 3) Is there anything else that you might be able to recommend for

gut pathogens?

Depends on what they are.

> 4) My son is on Culturelle and Lacto Tri Blend, has anyone been

using this?

Culturelle worked well for my son for bacteria issues.

> 5) I would like to try the oil of Oregano, I am not sure where to

find it?

Local health food store here.

Dana

May 24, 2005

Hi christi

the place to start is karens web site - the book is a great buy too

_www.enzymestuff.com_ (http://www.enzymestuff.com)

Have a gander and then come back here and ask questions and stuff

Good luck

Mandi in UK

May 24, 2005

Anyone?

Christi

> Hi!

>

> I'm Christi, wife to (7-5-02) and Mommy to Ryland (3-7-03) who is

> allergic to peanuts and dairy and intolerant of gluten. No autism

but I was

> referred to this list so that I could learn more about the enzymes

so that

> we could possibly go off of the GF diet. Any pointers, links, etc

would be

> sooo appreciated, I'm very new to all of this. Thanks so much!

>

> Christi

>

> <http://www.motherscomfort.net> www.motherscomfort.net - A Doula

for Every

> Mom Who Needs One.

>

> <http://www.craftymommy.com> www.craftymommy.com - Birth Announcements,

> Greeting Cards, Personalized Scrapbooks and More!!

>

> <http://www.identityhosts.com> www.identityhosts.com - For your

family's

> webdesign and hosting needs.

>

> " Courage does not always roar. Sometimes courage is the quiet

voice at the

> end of the day that says " I'll try again tomorrow. "

>

May 24, 2005

Hi Christi: Been here since October and started the enzymes second

time around in March. First you could go into the Links or Files

section and read up on the enzymes or read DeFelice's book

Enzmes and Autism. If you decide to start using the enzymes you

should start off slowly, one at a time over a period of a few weeks

or so. My son has never been on any diet so I just started with the

Zyme Prime and added in the Peptizyde. The No Fenol gave him trouble

so I havent added it again yet. Alot of people on this list use

Houston Enzymes. You will find alot of info in the sections to the

left of the board. You will also have alot of questions after

reading (we all do). Hope I have helped a little. Eileen

> > Hi!

> >

> > I'm Christi, wife to (7-5-02) and Mommy to Ryland (3-7-03)

who is

> > allergic to peanuts and dairy and intolerant of gluten. No autism

> but I was

> > referred to this list so that I could learn more about the enzymes

> so that

> > we could possibly go off of the GF diet. Any pointers, links, etc

> would be

> > sooo appreciated, I'm very new to all of this. Thanks so much!

> >

> > Christi

> >

> > <http://www.motherscomfort.net> www.motherscomfort.net - A Doula

> for Every

> > Mom Who Needs One.

> >

> > <http://www.craftymommy.com> www.craftymommy.com - Birth

Announcements,

> > Greeting Cards, Personalized Scrapbooks and More!!

> >

> > <http://www.identityhosts.com> www.identityhosts.com - For your

> family's

> > webdesign and hosting needs.

> >

> > " Courage does not always roar. Sometimes courage is the quiet

> voice at the

> > end of the day that says " I'll try again tomorrow. "

> >

May 24, 2005

Christi, I may be wrong about this but if your child has a true allergy to these

foods then enzymes will not help you. Enzymes aid in breaking down foods to make

them more useful to the body. Most folks on this list use the enzymes with our

kids on the autism spectrum because they seem to be unable to break these foods

down properly. This is a very very elementary description of enzymes. To find

more info the quickest way, check the enzymestuff.com web site. Enzymes are

helpful for many health conditions but again if your child has a true allergy I

do not think they will help with that. Anyone else care to comment? Jackie D.

super_sillymommy <cc@...> wrote:Anyone?

Christi

> Hi!

>

> I'm Christi, wife to (7-5-02) and Mommy to Ryland (3-7-03) who is

> allergic to peanuts and dairy and intolerant of gluten. No autism

but I was

> referred to this list so that I could learn more about the enzymes

so that

> we could possibly go off of the GF diet. Any pointers, links, etc

would be

> sooo appreciated, I'm very new to all of this. Thanks so much!

>

> Christi

>

> <http://www.motherscomfort.net> www.motherscomfort.net - A Doula

for Every

> Mom Who Needs One.

>

> <http://www.craftymommy.com> www.craftymommy.com - Birth Announcements,

> Greeting Cards, Personalized Scrapbooks and More!!

>

> <http://www.identityhosts.com> www.identityhosts.com - For your

family's

> webdesign and hosting needs.

>

> " Courage does not always roar. Sometimes courage is the quiet

voice at the

> end of the day that says " I'll try again tomorrow. "

>

May 25, 2005

http://216.114.78.114/webcenter/sites/HNI/Section.asp?SID=3535 & N=AFP%20Peptizyde

super_sillymommy <cc@...> wrote:Anyone?

Christi

> Hi!

>

> I'm Christi, wife to (7-5-02) and Mommy to Ryland (3-7-03) who is

> allergic to peanuts and dairy and intolerant of gluten. No autism

but I was

> referred to this list so that I could learn more about the enzymes

so that

> we could possibly go off of the GF diet. Any pointers, links, etc

would be

> sooo appreciated, I'm very new to all of this. Thanks so much!

>

> Christi

>

> <http://www.motherscomfort.net> www.motherscomfort.net - A Doula

for Every

> Mom Who Needs One.

>

> <http://www.craftymommy.com> www.craftymommy.com - Birth Announcements,

> Greeting Cards, Personalized Scrapbooks and More!!

>

> <http://www.identityhosts.com> www.identityhosts.com - For your

family's

> webdesign and hosting needs.

>

> " Courage does not always roar. Sometimes courage is the quiet

voice at the

> end of the day that says " I'll try again tomorrow. "

>

May 29, 2005

THANK YOU!!

Christi

>

http://216.114.78.114/webcenter/sites/HNI/Section.asp?SID=3535 & N=AFP%20Peptizyde

n removed]

May 29, 2005

Hi Jackie,

Thanks for that explanation. My concern is the gluten right now - the

dairy and peanuts aren't too terribly hard to eliminate but this

gluten elimination is killing me! LOL

Someone told me that the enzymes could help with our gluten

intolerance. I'll check that site, thanks!

Christi

> > Hi!

> >

> > I'm Christi, wife to (7-5-02) and Mommy to Ryland (3-7-03)

who is

> > allergic to peanuts and dairy and intolerant of gluten. No autism

> but I was

> > referred to this list so that I could learn more about the enzymes

> so that

> > we could possibly go off of the GF diet. Any pointers, links, etc

> would be

> > sooo appreciated, I'm very new to all of this. Thanks so much!

> >

> > Christi

> >

> > <http://www.motherscomfort.net> www.motherscomfort.net - A Doula

> for Every

> > Mom Who Needs One.

> >

> > <http://www.craftymommy.com> www.craftymommy.com - Birth

Announcements,

> > Greeting Cards, Personalized Scrapbooks and More!!

> >

> > <http://www.identityhosts.com> www.identityhosts.com - For your

> family's

> > webdesign and hosting needs.

> >

> > " Courage does not always roar. Sometimes courage is the quiet

> voice at the

> > end of the day that says " I'll try again tomorrow. "

> >

May 29, 2005

>>>> Someone told me that the enzymes could help with our gluten

> intolerance. I'll check that site, thanks!

Christi,

Look at the Peptizyde or AFP Peptizyde for gluten. The AFP does not

have papain whereas the other does. If your child is sensitive to

papain or phenols or fruits, the AFP might be better. Both are

effective for gluten intolerance for most people.

.

November 4, 2005

Welcome Kim. This is a very active and responsive group. Jump in anytime!

Pam (Mom to 2 boys on the Autism Spectrum).

November 5, 2005

Hey Kim,

Please email me. I can give you the name and number of a woman in

Biddeford. It shouldn't take a full year to see her. She is a

Neuropsychologist. She does the full neuropsychological exam and it

only took us a few months to get in. You should at least talk to

her.

Let me know if you are interested. I am a volunteer for the autism

society here in Maine and since you are looking for someone

specifically, I thought I would give you the name of someone I have

worked with. She really understands Aspergers and Autism, and won't

just give you a diagnosis 'because'. She realizes how Aspergers is

so different in kids.

Email me:)

B

>

> I just wanted to introduce myslef. I have 4 children who my

youngest

> who is now 5 may be autistic or have aspergers Syndrome. we are on

a

> waiting for a doctor to diagnose. He has been tested and found to

> have a severe disorder in the communication department. We have

him

> in ST, OT, and his Develpmental Therapist attends his preschool a

> couple of times a week. I am just looking for support to be able

to

> ask questions, and discuss my son with and to get information

from.

> My friends and family all understand and are concerned, but they

dont

> know anymore than I do about these things. I have been doing a

lot of

> reading on the subject and am very grateful that it appears my son

> does not have it so bad. I would consider him highly functing.

> Anyway, I apprectiate all your time and any future answers to my

> questions and just someone to lend an ear. I will also do my best

to

> be helpful in anyway I can.

>

> Thanks

> Kim

>

November 6, 2005

Welcome Kim

I'm sure you will find this group very helpful. Everyone seems to have lots of

great input.

Sharon

kimguerrette <kguerrette@...> wrote:

I just wanted to introduce myslef. I have 4 children who my youngest

who is now 5 may be autistic or have aspergers Syndrome. we are on a

waiting for a doctor to diagnose. He has been tested and found to

have a severe disorder in the communication department. We have him

in ST, OT, and his Develpmental Therapist attends his preschool a

couple of times a week. I am just looking for support to be able to

ask questions, and discuss my son with and to get information from.

My friends and family all understand and are concerned, but they dont

know anymore than I do about these things. I have been doing a lot of

reading on the subject and am very grateful that it appears my son

does not have it so bad. I would consider him highly functing.

Anyway, I apprectiate all your time and any future answers to my

questions and just someone to lend an ear. I will also do my best to

be helpful in anyway I can.

Thanks

Kim

December 2, 2005

Sheryl,

My name is Ann and my son is 7 1/2 . I also have a 14yr old girl and a 5yr

old daughter. It is good news to have the diagnosis. Do what you need to for

you daughter and try to educate you ex-husband. He will come around once he

has time to digest it, yeah know. It's hard for men we have all discussed

that before. My husband got better with time. It has been almost 4 years

since my sons diagnosis. He is much better now. Just concentrate on your

daughter and don't waste to much energy on the ex for now. With your

daughter not liking to be touched, has se had an OT evaluation done for

sensory issues? If not I suggested one. If so the OT should have

recommendations for you or we can help on this iste. Let us know. Take it

one day at a time and she will really be ok. I have seen my son excel in so

many areas they are to many to count. You're a great mom and never think any

less. God trusted you with her, He knows you can handle it and do it well.

Take Care,

Ann

( ) New to the group

Hi my name is Sheryl, and I have a 9 year old daughter with AS. She

has had suspected AS for years, but was just finally diagnosed about 2

weeks ago. We went from her having a " mood disorder " to " bipolar " to

Aspergers, which makes alot more sense. is a highly

intelligent girl, with struggles concerning socialization. She has a

very hard time with giving, and recieving affection. I am hopeing to

give, and recieve some much needed support. I am dealing with a very

supportive husband, and a very unsupportive ex-husband (Becky's

father). Any support and advice would be great! Thanks in advance:-)

Sheryl mom to Becky 9 AS, Meghan 7, and Liam 4

December 2, 2005

Hello Sheryl,

I hope you don't mind me asking you a question. Your daughter had a DX of

" mood disorder " than " bipolar " first. You also said you have an unsupportive

ex-husband. Could that relationship you had in the past with your ex-husband,

than the divorce, visits, moving, have anything to do with behaviours your

daughter had to get that DX of " mood disorder " than " bipolar " ? What has changed

with your daughter to now getting a DX of AS? Was it the same doctor that DX her

with mood disorder, than bipolar to now AS. All these different DX's must of

been so stressful for you. I hope things start going well for you all now.

Happy Holidays.

sherylannfoster <sherylannfoster@...> wrote:

Hi my name is Sheryl, and I have a 9 year old daughter with AS. She

has had suspected AS for years, but was just finally diagnosed about 2

weeks ago. We went from her having a " mood disorder " to " bipolar " to

Aspergers, which makes alot more sense. is a highly

intelligent girl, with struggles concerning socialization. She has a

very hard time with giving, and recieving affection. I am hopeing to

give, and recieve some much needed support. I am dealing with a very

supportive husband, and a very unsupportive ex-husband (Becky's

father). Any support and advice would be great! Thanks in advance:-)

Sheryl mom to Becky 9 AS, Meghan 7, and Liam 4

December 27, 2005

Hi Janice,

My son, now almost 18, was diagnosed when he was about 11, too. We had

to take the district to due process to get him any services. I came

upon the old file when I was cleaning up the office downstairs. After

the initial due process suit, the district has been fantastic.

was in a great program for bright kids with learning disabilities. It

was wonderful. Over the holidays, the kids were talking about their

middle school experiences. Tess was groaning about hers; felt

pretty positive about his. (He felt very negative about elementary

school, though.) The district's high school program didn't work so well

for him, so they agreed to send him to a private school for bright kids

with learning disabilities, which he mostly likes. Welcome to the

group!

Liz in San Diego

On Dec 27, 2005, at 1:26 PM, Janice wrote:

>

> Hello! My name is Janice and I live in Arkansas with my 11.5 year old

> son. I am a Special Education teacher in Little Rock and teach

> Resource English as well as an Inclusion English class. I am also the

> Special Education department chairman and 504 Coordinator for my

> school. In my spare time ) I teach graduate classes for the

> University of Phoenix - Online campus.

>

> My son was diagnosed at age 5 with ADHD, then later with Depression

> and Anxiety Disorder. He had a horrible year in 5th grade (last year)

> with behavioral issues and the school personnel were terrible to deal

> with (almost abusive at times). At one point he threatened to hurt

> himself several times and I had him admitted to a psychiatric

> hospital. I would not do that again and it is something I've beaten

> myself up for ever since this summer. I had him tested for Special

> Education at school and they would not place him under IDEA for OHI

> due to adverse affects in social and behavioral areas. I eventually

> had my son tested by an independent evaluator who unofficially

> diagnosed him with Asperger's Syndrome 2 days short of his 11th

> birthday. We went to a special clinic at the Children's Hospital in

> July to recieve the official diagnosis. His father (my ex) is in

> denial and even went along with the school in saying our son was

> willfully misbehaving and he sided with the teacher (a friend of his).

> Can you imagine? I stuck strong and always will because no one else

> will advocate for my son like I will. Before school started this year

> I called for a meeting and probably overwhelmed and scared them. He

> has had a wonderful year so far. There have been some minor

> incidences, but nothing like last year and the school has not

> overreacted.

>

> I belong to a local AS group but that only meets once a month. I

> joined this group for support and to offer my story to anyone else. I

> think parents of children with special needs should support each other

> and stick together. I will share my story as time goes by because

> there is a lot more to tell.

>

> Janice

>

December 27, 2005

In a message dated 12/28/2005 12:05:53 A.M. Eastern Standard Time,

vonsmom13@... writes:

Hi Janice! I'm new here myself....new to AS as well. My oldest son

is 7, Von, in 2nd grade. He has always been ahead of the game

academically but behavior is another story. We have had problems

with behavior in school since he walked into his first preschool

classroom. We just got an official diagnosis on Dec.

15....Aspergers, anxiety disorders and mild ADD. I just met with

our " Team " to start the MFE and then the IEP....wish us luck. I too

just joined here and a local parents' of special needs kids support

group. I look forward to sharing and learning more about you and

yours. Welcome and talk to you later,

Christie (37 yr SAHWife and Mom to two boys, Von (7 - AS) and Jack

(17 mo) in Cleveland Ohio

Hey! I live near Cleveland in Medina. Small world!

Roxanna

Autism Happens

December 27, 2005

Hi Liz!

My son had a great experience in elementary until 5th grade. The teacher told

me he had " met his match " and it went downhill from there.She never could see

her role in his melt downs and sometimes I even think she did it on purpose.

This year has been so much better, though.

Janice

Liz Bohn <lbohn@...> wrote: