New Here

August 24, 2003

,

Dr. Harbison's phone number is . She is on vacation

right now, but her secretary is there and can make the appointment

for you. Weill/Cornell Medical Center is also known as New York

Hospital. It is at 525 E. 68th Street - on York Ave.

Where are you going to nursing school? Are you at all near that

hospital? Dr. Harbison is a wonderful doctor, direct, to the point,

and will go to the ends of the earth for her patients. My son Max,

who is 15 and has RSS, has been seeing her for 14 years. He was her

3rd RSS patient and now she has over 170!

Like your daughter, Max was diagnosed with failure to thrive. It was

a nightmare for us because we were at first accused of not taking

proper care of him. What a battle we went through! I hope you have

not had the same thing happen to you.

Please feel free to post anything you want and someone will almost

always have an answer, even if it is a cyber hand to hold while you

search for whatever you need. This is the greatest bunch of people!

Welcome!

Jodi

August 24, 2003

I am not sure about all cases but with my son, the whites of his eyes are not

really white. In good lighting, they look a bluish grey. We didn't even notice

it until to Gen. pointed it out.

Mommy to Keigan 4-15-03 and Tristian 9-26-01

August 25, 2003

Bo,

The blue sclera means that the whites of the eyes have a blue tinge

to them. My son has that, but we don't even notice it anymore.

There is no specific shape or pattern because the entire white part

is more of a light baby blue.

Jodi

August 25, 2003

Bo,

Don't fret over the blue sclera thing. It really means nothing other

than a characteristic that other RSS children MAY have. As with the

other characteristics, it is simply a list of things and your child

does not have to have everything to be diagnosed with RSS. A

syndrome is really just a compliation of many different things that

are common among a group of children/adults and given a name. For

me, it is easier to list what Max does NOT have rather than list what

he does to " prove " he has RSS. You will see, if you look at the

pictures that people have posted, that the kids all have the same

look about them; however, it changes as they get older. I see the

RSS in Max at the MAGIC convention when we are around almost 200 of

them, but day to day I don't really anymore. He is almost 5' (half

an inch shy) and 100 pounds. Now if we could only get the medical

stuff straightened out....

Jodi

Also, please note that blue schera does not affect eyesight or put

your child at risk. Many people have it without a problem.

September 17, 2003

Hi Janice and welcome aboard!

Wolfie

Lap Rny...August 27,2003

Dr. Lee A. Schmitt

Birmingham, Alabama

Keep 'Em Laughing!

September 17, 2003

Welcome Janice It sounds scarey but I'm greatful what I've done.I'm

43 yrs old weight 379 at one point and one month out weight 320 as

of today.My surgery was Aug 18,2003.I'm eatting reg food and

drinking and take all the vitamins.I've only had a little trouble

but something not anyone fault.one was reaction to the staple and

other steri stripes.I've can't tell when I'm hungry but thats cool

with me.Even looking at food makes me go away from the table.Don't

care for it.They say it changes later sometime up to three months.I

love my new Life and would do it all over again.So I'm so happy that

your thinking of the surgery.I can't wait to get down to my weight I

should be at for my height.You found a great site to join and talk

to everyone here is one big Family.I loved them and Bless them.They

help every one through this surgery.Every Doctor is diffent on when

you start on reg food and what foods.But Hang in there and Wish you

the best and hope your approval goes through fast and easy.God Bless

and Welcomes aboard.a friend debkroll of Iowa,down 40 lbs

now.

> Hi, I've been reading all your messages from the last week, and

find

> everyone here so encouraging. I had an appointment with my pcp

> yesterday and she was very supportive of the wls. She sent in a

> referral, but said it will take about 1 year to complete the

> process. I will get something in the mail in about a month with a

> check list that has to be done before even the initial

appointment, a

> pap, ekg, colonoscopy, (lucky for me I had one last year),

> psysological exam, etc. There is only one surgeon, he is from what

> she said very good, with a very low complication rate. I asked

> about insurance coverage and she said she has not had anyone

denied

> the surgery, that was encouraging. Priority is given to those

with

> diabetes, arthritis, and sleep apena, and I have the last 2. I'm

> almost 52, 325 pounds, 5'7 " . The wls surgery sounds very scary

to

> me, but staying this way sounds more so. Anyway, just wanted to

say

> hi. Janice in California

September 17, 2003

Hi Janice, Welcome to the group and congrats on taking the first step

in your journey. Wow 1 year is a long wait. I think I would go nuts

if I had to wait that long. Hang in there and your day will come.

Chris

Marietta, GA

preop 10/13/03

Lap RNY

280/ /150

> Hi, I've been reading all your messages from the last week, and

find

> everyone here so encouraging. I had an appointment with my pcp

> yesterday and she was very supportive of the wls. She sent in a

> referral, but said it will take about 1 year to complete the

> process. I will get something in the mail in about a month with a

> check list that has to be done before even the initial appointment,

a

> pap, ekg, colonoscopy, (lucky for me I had one last year),

> psysological exam, etc. There is only one surgeon, he is from what

> she said very good, with a very low complication rate. I asked

> about insurance coverage and she said she has not had anyone denied

> the surgery, that was encouraging. Priority is given to those with

> diabetes, arthritis, and sleep apena, and I have the last 2. I'm

> almost 52, 325 pounds, 5'7 " . The wls surgery sounds very scary to

> me, but staying this way sounds more so. Anyway, just wanted to

say

> hi. Janice in California

September 17, 2003

Thanks for the welcome Wolfie.

> Hi Janice and welcome aboard!

>

> Wolfie

> Lap Rny...August 27,2003

> Dr. Lee A. Schmitt

> Birmingham, Alabama

> Keep 'Em Laughing!

>

September 17, 2003

Congratulations on your weight loss... I look forward to being a

loser... my doctor seems real positive that I can have it done, so

that's good. Janice

> > Hi, I've been reading all your messages from the last week, and

> find

> > everyone here so encouraging. I had an appointment with my pcp

> > yesterday and she was very supportive of the wls. She sent in a

> > referral, but said it will take about 1 year to complete the

> > process. I will get something in the mail in about a month with

a

> > check list that has to be done before even the initial

> appointment, a

> > pap, ekg, colonoscopy, (lucky for me I had one last year),

> > psysological exam, etc. There is only one surgeon, he is from

what

> > she said very good, with a very low complication rate. I asked

> > about insurance coverage and she said she has not had anyone

> denied

> > the surgery, that was encouraging. Priority is given to those

> with

> > diabetes, arthritis, and sleep apena, and I have the last 2. I'm

> > almost 52, 325 pounds, 5'7 " . The wls surgery sounds very scary

> to

> > me, but staying this way sounds more so. Anyway, just wanted to

> say

> > hi. Janice in California

September 17, 2003

Thanks I guess I'll know more when I get this packet they are

supposed to send me. Janice

> > Hi, I've been reading all your messages from the last week, and

> find

> > everyone here so encouraging. I had an appointment with my pcp

> > yesterday and she was very supportive of the wls. She sent in a

> > referral, but said it will take about 1 year to complete the

> > process. I will get something in the mail in about a month with

a

> > check list that has to be done before even the initial

appointment,

> a

> > pap, ekg, colonoscopy, (lucky for me I had one last year),

> > psysological exam, etc. There is only one surgeon, he is from

what

> > she said very good, with a very low complication rate. I asked

> > about insurance coverage and she said she has not had anyone

denied

> > the surgery, that was encouraging. Priority is given to those

with

> > diabetes, arthritis, and sleep apena, and I have the last 2. I'm

> > almost 52, 325 pounds, 5'7 " . The wls surgery sounds very scary

to

> > me, but staying this way sounds more so. Anyway, just wanted to

> say

> > hi. Janice in California

September 18, 2003

welcome janice! i can relate, i didn't want to be MO anymore, not for

another instant. keep researching all the risks & benefits, we're

here for ya.

lori h.

> Hi, I've been reading all your messages from the last week, and find