New Here

[Guest guest]

,

please be careful, you sound like you have a sleep problem that could be

easily remedied if you have a sleep study to see what part you have

trouble. Its not safe to be that tired. My husband was doing that and did

not know he was closing his eyes from fatigue even while driving which

drove me CRAZY! I finally got him to use a CPAP and he is a different

person, much less coffee, much more energy to do things AND more fun!

if your meds interfere with deep sleep you won't heal

I hope you can find an understanding doctor to help you!

Blessings,

Marie

www.anaturalplace.com

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

,

please be careful, you sound like you have a sleep problem that could be

easily remedied if you have a sleep study to see what part you have

trouble. Its not safe to be that tired. My husband was doing that and did

not know he was closing his eyes from fatigue even while driving which

drove me CRAZY! I finally got him to use a CPAP and he is a different

person, much less coffee, much more energy to do things AND more fun!

if your meds interfere with deep sleep you won't heal

I hope you can find an understanding doctor to help you!

Blessings,

Marie

www.anaturalplace.com

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

,

please be careful, you sound like you have a sleep problem that could be

easily remedied if you have a sleep study to see what part you have

trouble. Its not safe to be that tired. My husband was doing that and did

not know he was closing his eyes from fatigue even while driving which

drove me CRAZY! I finally got him to use a CPAP and he is a different

person, much less coffee, much more energy to do things AND more fun!

if your meds interfere with deep sleep you won't heal

I hope you can find an understanding doctor to help you!

Blessings,

Marie

www.anaturalplace.com

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

[Guest guest]

~

Welcome to the group. I have bouts of severe exhaustion (chronic fatuige

syndrome) and I can't do much of anything except lay on the couch or in bed and

sleep. I wish you luck when you go to the specialist. I can understand your

frustration when it comes to doctors. I, myself, have been very lucky. I have

good doctors who know about fibro. and it's a great weight off of my shoulders.

When I go to my family doctor I do let him know if I want to try a certain

medication or treatment. He welcomes my suggestions and he listens. That is what

makes a good doctor. One who is willing to listen to their patients and they do

not think they know all. Sorry to rattle on. This group is great and very

understanding. Take care & good luck!

~

---------------------------------

[Guest guest]

~

Welcome to the group. I have bouts of severe exhaustion (chronic fatuige

syndrome) and I can't do much of anything except lay on the couch or in bed and

sleep. I wish you luck when you go to the specialist. I can understand your

frustration when it comes to doctors. I, myself, have been very lucky. I have

good doctors who know about fibro. and it's a great weight off of my shoulders.

When I go to my family doctor I do let him know if I want to try a certain

medication or treatment. He welcomes my suggestions and he listens. That is what

makes a good doctor. One who is willing to listen to their patients and they do

not think they know all. Sorry to rattle on. This group is great and very

understanding. Take care & good luck!

~

---------------------------------

[Guest guest]

~

Welcome to the group. I have bouts of severe exhaustion (chronic fatuige

syndrome) and I can't do much of anything except lay on the couch or in bed and

sleep. I wish you luck when you go to the specialist. I can understand your

frustration when it comes to doctors. I, myself, have been very lucky. I have

good doctors who know about fibro. and it's a great weight off of my shoulders.

When I go to my family doctor I do let him know if I want to try a certain

medication or treatment. He welcomes my suggestions and he listens. That is what

makes a good doctor. One who is willing to listen to their patients and they do

not think they know all. Sorry to rattle on. This group is great and very

understanding. Take care & good luck!

~

---------------------------------

[Guest guest]

,

Yes, my fibro is associated with chronic fatigue. I was diagnosed with

FM in 1997 and had for some time before, dealt with fatigue. I just

thought it was because I was a single mom, and worked full time. I also

sewed part time to make extra money, so I didn't really get too much

sleep. But when the fatigue didn't go away, and I was in pain all the

time (felt like I had the flu for 6 months), even though I was walking

every day, eating right and taking care of myself, I didn't feel

better. It was that summer I was diagnosed with FM. I worked full time

for another 2 years...there were days I couldn't see straight I was so

tired. I would take naps at lunch time, I would hide in the ladies room

and sometimes fall asleep. There were times I'd be asleep for 30

minutes and wake and not remember where I was. I would sleep when I got

home and sleep 7 hours at night.

I still have the fatigue....it has been especially bad for the past 6

months. I should go to the doctor to see if there is anything they can

do (but I am hesitant because I hate going to the doctor and him telling

me he can't do anything, or give me another medication that I can't

tolerate (I'm very chemical sensitive).

Koala-t hugs,

Cathy

[Guest guest]

,

Yes, my fibro is associated with chronic fatigue. I was diagnosed with

FM in 1997 and had for some time before, dealt with fatigue. I just

thought it was because I was a single mom, and worked full time. I also

sewed part time to make extra money, so I didn't really get too much

sleep. But when the fatigue didn't go away, and I was in pain all the

time (felt like I had the flu for 6 months), even though I was walking

every day, eating right and taking care of myself, I didn't feel

better. It was that summer I was diagnosed with FM. I worked full time

for another 2 years...there were days I couldn't see straight I was so

tired. I would take naps at lunch time, I would hide in the ladies room

and sometimes fall asleep. There were times I'd be asleep for 30

minutes and wake and not remember where I was. I would sleep when I got

home and sleep 7 hours at night.

I still have the fatigue....it has been especially bad for the past 6

months. I should go to the doctor to see if there is anything they can

do (but I am hesitant because I hate going to the doctor and him telling

me he can't do anything, or give me another medication that I can't

tolerate (I'm very chemical sensitive).

Koala-t hugs,

Cathy

[Guest guest]

,

Yes, my fibro is associated with chronic fatigue. I was diagnosed with

FM in 1997 and had for some time before, dealt with fatigue. I just

thought it was because I was a single mom, and worked full time. I also

sewed part time to make extra money, so I didn't really get too much

sleep. But when the fatigue didn't go away, and I was in pain all the

time (felt like I had the flu for 6 months), even though I was walking

every day, eating right and taking care of myself, I didn't feel

better. It was that summer I was diagnosed with FM. I worked full time

for another 2 years...there were days I couldn't see straight I was so

tired. I would take naps at lunch time, I would hide in the ladies room

and sometimes fall asleep. There were times I'd be asleep for 30

minutes and wake and not remember where I was. I would sleep when I got

home and sleep 7 hours at night.

I still have the fatigue....it has been especially bad for the past 6

months. I should go to the doctor to see if there is anything they can

do (but I am hesitant because I hate going to the doctor and him telling

me he can't do anything, or give me another medication that I can't

tolerate (I'm very chemical sensitive).

Koala-t hugs,

Cathy

[Guest guest]

writes,

> Is

> the intense sleepiness experienced by others in the group?

>

> First and foremost, welcome to our list. As for the sleepiness, I have

> just started to have a problem with that. I can fall asleep working at the

> computer and doing other things. I am hoping that it will go away. I am

> going to talk to my doctor when I next go in.

>

> Again, welcome to our list. I think that it is a very good list. Everyone

> on it is caring, loving and very supportive. If you have any more

> question, just ask and you will be answered. Feel like venting, have at

> it. We all have do that more than once and in my case, at least, probably

> will again.

>

> I am sorry for the reason that you are here but I do hope that we can help

> you in some way.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

writes,

> Is

> the intense sleepiness experienced by others in the group?

>

> First and foremost, welcome to our list. As for the sleepiness, I have

> just started to have a problem with that. I can fall asleep working at the

> computer and doing other things. I am hoping that it will go away. I am

> going to talk to my doctor when I next go in.

>

> Again, welcome to our list. I think that it is a very good list. Everyone

> on it is caring, loving and very supportive. If you have any more

> question, just ask and you will be answered. Feel like venting, have at

> it. We all have do that more than once and in my case, at least, probably

> will again.

>

> I am sorry for the reason that you are here but I do hope that we can help

> you in some way.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

[Guest guest]

> writes,

>

> > Is

> > the intense sleepiness experienced by others in the group?

> >

,

I'm experiencing this intense sleepiness myself right now. I've

fallen asleep at work 3 times this past week. That's not a usual

problem for me, although I have gone through these incredible sleepy

stages before. I don't know what starts them ,or what makes them go

away. I haven't changed my diet(that I know of), so I don't think

it's dietary. I'm leaning towards the weather causing it. I blame a

lot of things on the weather. :-) Welcome to the group.

Take care,

[Guest guest]

wrote: > I'm leaning towards the weather causing it. I blame a

>lot of things on the weather. :-) Welcome to the group.

I blame lots on the weather, too. We have a horribly moldy climate here,

and I'm allergic to molds in a major way. I always get sleepy about 4 pm

or so, and my allergist told me that's when most of the mold spores are

released. Interestingly enough, when I wake up early, it's around 4:30

a.m., too, which he says is also a high mold time.

Do you live in a damp, wet, moldy climate, or live in a moldy house? Molds

can cause major problems for those of us with fibromyalgia or CFS, and are

just plain unhealthy for everyone.

We have a UV system in the house to take care of some of the molds, but

it's not powerful enough to kill off all of them....

Bobbi C.

---------------

[Guest guest]

wrote: > I'm leaning towards the weather causing it. I blame a

>lot of things on the weather. :-) Welcome to the group.

I blame lots on the weather, too. We have a horribly moldy climate here,

and I'm allergic to molds in a major way. I always get sleepy about 4 pm

or so, and my allergist told me that's when most of the mold spores are

released. Interestingly enough, when I wake up early, it's around 4:30

a.m., too, which he says is also a high mold time.

Do you live in a damp, wet, moldy climate, or live in a moldy house? Molds

can cause major problems for those of us with fibromyalgia or CFS, and are

just plain unhealthy for everyone.

We have a UV system in the house to take care of some of the molds, but

it's not powerful enough to kill off all of them....

Bobbi C.

---------------

[Guest guest]

FWIW, my microbiology professor says she believes most of the immune problems

in this area (Lake Erie) are related to the environment. She has taught in

PA, NY, SD and SC---my college is relatively small (my micro classes had only

13 students) and she said over the past three years, she had (and I am hoping

I get these numbers right) 4 or 5 students with lupus, one with

cryoglobulinemia (me), a couple with scleroderma, one with hashimoto's

thyroidistis---there were a couple more I cannot remember right now. BUT, I

do remember her saying she believes things in the environment are the biggest

cause (mold and such). My rheumy thought it was BS. ly, I agree with my

professor.

[Guest guest]

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

[Guest guest]

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

[Guest guest]

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

[Guest guest]

You know, my husband suggested it about 2 weeks ago. He asked if I felt better

when we were up at my parents visiting. I told him yea. Then he started talking

about the mold in the basement. The walls of the basement are cracked and leak.

bluck....He's in the process of trying to get the basement cleaned up and then

going to treat the walls and clear out the moldy areas. Before that I never

would have thought of it. I'll have to tell my husband to kick it up a notch on

that basement. He can use the kids as free help. What a concept! hehehe Here's

hoping you all are feeling good today!

~

kithain kithain@...> wrote:

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

[Guest guest]

You know, my husband suggested it about 2 weeks ago. He asked if I felt better

when we were up at my parents visiting. I told him yea. Then he started talking

about the mold in the basement. The walls of the basement are cracked and leak.

bluck....He's in the process of trying to get the basement cleaned up and then

going to treat the walls and clear out the moldy areas. Before that I never

would have thought of it. I'll have to tell my husband to kick it up a notch on

that basement. He can use the kids as free help. What a concept! hehehe Here's

hoping you all are feeling good today!

~

kithain kithain@...> wrote:

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

[Guest guest]

You know, my husband suggested it about 2 weeks ago. He asked if I felt better

when we were up at my parents visiting. I told him yea. Then he started talking

about the mold in the basement. The walls of the basement are cracked and leak.

bluck....He's in the process of trying to get the basement cleaned up and then

going to treat the walls and clear out the moldy areas. Before that I never

would have thought of it. I'll have to tell my husband to kick it up a notch on

that basement. He can use the kids as free help. What a concept! hehehe Here's

hoping you all are feeling good today!

~

kithain kithain@...> wrote:

>> Do you live in a damp, wet, moldy climate, or live in a moldy

house? Molds

> can cause major problems for those of us with fibromyalgia or CFS,

and are

> just plain unhealthy for everyone.

>

>> Bobbi C.

do i have lot's of mold in the house...lol. of course i do. i live in

an older apartment. even though i keep it as clean as possible, i

know i have mold. in the fall, when i first turn on the heat, my

windows grow mold. eewww! i have horrible windows. they aren't very

airtight. as for a damp climate, yes, i live in michigan, which is a

pretty bad area for both dampness, and allergies. i never thought

about mold causing fibro flares. that's interesting. i've been

thinking about it from the other way around. that having fibro

probably has a lot to do with having such bad allergies. maybe i'll

look into getting an air purifier again. i used to have one. thanks

for the info

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

[Guest guest]

> Hi everyone~

> My mother was just dg three days ago with pancreatitis, and she has

> been home in bed on pain meds ever since, and hasn't been able to

> seek further care yet. I am worried that she needs to get to a

> specialist soon and get the cause taken care of (suspected gall

> stones--she never drinks). If she doesn't go soon, will her

condition

> worsen? Is she in mortal danger? Has anyone here had experience

with

> gall stone induced pancreatitis? How was your recovery? Any

> complications? Does gall bladder surgery completely resolve this

> condition? In other words, if it's gall stones, what is her

> prognosis? Also, does anyone have any experience with lithotripsy?

Or

> cholecystectomy?

> Thank you in advance~

>

:

Sorry to learn of your mother's suffering.

Is her diagnosis one of acute or chronic pancreatitis?

My CP is a direct result of gallstones.

I had my gallbadder removed, but the damage had already been done.

That's not to say that I regret my surgery. It was absolutely

necessary. And the CP was probably already there prior to that

procedure. Sadly, no one realized it. That was nine years ago.

A bad gallbladder can necome infected and burst. That's very

dangerous.

-Ellen

[Guest guest]

> Hi everyone~

> My mother was just dg three days ago with pancreatitis, and she has

> been home in bed on pain meds ever since, and hasn't been able to

> seek further care yet. I am worried that she needs to get to a

> specialist soon and get the cause taken care of (suspected gall

> stones--she never drinks). If she doesn't go soon, will her

condition

> worsen? Is she in mortal danger? Has anyone here had experience

with

> gall stone induced pancreatitis? How was your recovery? Any

> complications? Does gall bladder surgery completely resolve this

> condition? In other words, if it's gall stones, what is her

> prognosis? Also, does anyone have any experience with lithotripsy?

Or

> cholecystectomy?

> Thank you in advance~

>

:

Sorry to learn of your mother's suffering.

Is her diagnosis one of acute or chronic pancreatitis?

My CP is a direct result of gallstones.

I had my gallbadder removed, but the damage had already been done.

That's not to say that I regret my surgery. It was absolutely

necessary. And the CP was probably already there prior to that

procedure. Sadly, no one realized it. That was nine years ago.

A bad gallbladder can necome infected and burst. That's very

dangerous.

-Ellen

[Guest guest]

> Hi everyone~

> My mother was just dg three days ago with pancreatitis, and she has

> been home in bed on pain meds ever since, and hasn't been able to

> seek further care yet. I am worried that she needs to get to a

> specialist soon and get the cause taken care of (suspected gall

> stones--she never drinks). If she doesn't go soon, will her

condition

> worsen? Is she in mortal danger? Has anyone here had experience

with

> gall stone induced pancreatitis? How was your recovery? Any

> complications? Does gall bladder surgery completely resolve this

> condition? In other words, if it's gall stones, what is her

> prognosis? Also, does anyone have any experience with lithotripsy?

Or

> cholecystectomy?

> Thank you in advance~

>

:

Sorry to learn of your mother's suffering.

Is her diagnosis one of acute or chronic pancreatitis?

My CP is a direct result of gallstones.

I had my gallbadder removed, but the damage had already been done.

That's not to say that I regret my surgery. It was absolutely

necessary. And the CP was probably already there prior to that

procedure. Sadly, no one realized it. That was nine years ago.

A bad gallbladder can necome infected and burst. That's very

dangerous.

-Ellen

[Guest guest]

> > Hi everyone~

> > My mother was just dg three days ago with pancreatitis, and she

has

> > been home in bed on pain meds ever since, and hasn't been able to

> > seek further care yet. I am worried that she needs to get to a

> > specialist soon and get the cause taken care of (suspected gall

> > stones--she never drinks). If she doesn't go soon, will her

> condition

> > worsen? Is she in mortal danger? Has anyone here had experience

> with

> > gall stone induced pancreatitis? How was your recovery? Any

> > complications? Does gall bladder surgery completely resolve this

> > condition? In other words, if it's gall stones, what is her

> > prognosis? Also, does anyone have any experience with

lithotripsy?

> Or

> > cholecystectomy?

> > Thank you in advance~

> >

>

> :

>

> Sorry to learn of your mother's suffering.

> Is her diagnosis one of acute or chronic pancreatitis?

>

> My CP is a direct result of gallstones.

> I had my gallbadder removed, but the damage had already been done.

>

> That's not to say that I regret my surgery. It was absolutely

> necessary. And the CP was probably already there prior to that

> procedure. Sadly, no one realized it. That was nine years ago.

>

> A bad gallbladder can necome infected and burst. That's very

> dangerous.

>

>

> -Ellen

Thanks for the response, Ellen~

She has acute...her numbers were in the moderate range (can't

remember exactly). Do you still suffer from symptoms since your

pancreas was already damaged? Why was yours too far gone? Did you

have symptoms that you ignored too long? I can't imagine my mother in

so much pain like that again. I want her to recover 100%. She's NEVER

sick, and only 57 years young. I don't want her to start yet (if

ever!).

Thanks again~