Hello

[Guest guest]

Bridgett,

HI, I am a Mom of two daughter with CF on is 9 and one is 5. I also have an 8

year old that doesn't have CF. You will meet lots of friends on here because

this group is great. Deb A

[Guest guest]

Hello Bridgette,

You have come to the right place. Just like our CF kids, us CF parents are

a pretty special bunch.

My daughter Sian (pronounced Sharn) will be six in August. She is double

D508, and has mostly GI symptoms, plus exercise induced asthma. My elder

daughter has no CF, but has asthma and is currently off school sick after

falling in the playground but not breaking her neck! Useful things X-rays,

but I'm contemplating banning monkey bars.....

Love & hugs to all

Mum to Cate 9yrs wocf and Sian 5yrs wcf

Canberra Australia

[Guest guest]

Bridgette,

Welcome to the list. I'm sure you'll find many

new friends and lots of support. What is your

daughter's name? I hope she is well.

hugs,

C

Mommy to Mick and Alli, 2 yo twins wcf

--- phat_grits phat_grits@...> wrote:

> Hello my name is Bridgette Sumrall and I have a 9

> month old daughter

> with CF. I hope to make many new friends here.. hope

> to hear from

> some soon...

> Bridgette

>

>

>

__________________________________________________

[Guest guest]

hello bridgette, i am patty, mom of 2 daughters with cf..Age 20 and 16 years

old..patty

[Guest guest]

Welcome Bridgette. This is a good place to learn. Cindy mom of 3 - 2 w/cf

1 n/cf

hello

> Hello my name is Bridgette Sumrall and I have a 9 month old daughter

> with CF. I hope to make many new friends here.. hope to hear from

> some soon...

> Bridgette

>

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Hi Bridgette,

Welcome to the group. I hope you find the support you need here and any

information that will help you with your daughter.

Mom to Elliot

15mths wcf

[Guest guest]

Welcome Bridgette,

My name is Deana and I have a 5 1/2 year old son wcf and an 11 year old

daughter with no cf nor is she a carrier. You have come to the right place,

we are here to answer ??, to lend a shoulder to cry on, and to listen if you

need to vent........... How is your daughter doing now?

Take care,

Deana mom to 5 1/2 wcf and 11 no cf

>

>

>Hello my name is Bridgette Sumrall and I have a 9 month old daughter

>with CF. I hope to make many new friends here.. hope to hear from

>some soon...

>Bridgette

>

>

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

Hi Cherity,

welcome to the list! Hope your girls are doing well. I am from

Germany, so can't help you with your question. But if you take a look

into our archive and search for SSI you'll find a lot of messages

from people, who are in the same situation.

Peace

Torsten, dad of Fiona 5wcf

> Hello, I am new here. I am searching for some info and support on

> obtaining SSI Disability for my girls w/CF. Anyone with an idea's

or

> if you receive it please email me! Thanks!

>

> Cherity

> SAHMof2CFGirls@a...

[Guest guest]

I don't have any information about the SSI disability.

I did want to welcome you to the list though. You

might want to search previous messages on the

cfparents group page at yahoo. A lot of us seem to be

very busy with summer at the moment and it could take

a while for your question to be answered. :-)

Dawn mom of 4, 6 and under, the youngest wcf

__________________________________________________

[Guest guest]

I don't have any information about the SSI disability.

I did want to welcome you to the list though. You

might want to search previous messages on the

cfparents group page at yahoo. A lot of us seem to be

very busy with summer at the moment and it could take

a while for your question to be answered. :-)

Dawn mom of 4, 6 and under, the youngest wcf

__________________________________________________

[Guest guest]

I don't have any information about the SSI disability.

I did want to welcome you to the list though. You

might want to search previous messages on the

cfparents group page at yahoo. A lot of us seem to be

very busy with summer at the moment and it could take

a while for your question to be answered. :-)

Dawn mom of 4, 6 and under, the youngest wcf

__________________________________________________

[Guest guest]

We applied for our daughter in April and have heard from them a week ago.

Because she is in the bottom of the fith percent for age in weight they are

pushing it hard and it is going befor the final board. I guess it just depends

on the extent of their problems.

--

Bonnie Merkerison

mom of three Miranda 8 wocf

Trenton 5 wocf and Brooklyn 7months wcf

--

[Guest guest]

What a perfect name for the steps you have taken.

Hope, let me be one of the first of many to welcome you. Unfortunatley

do to my crazy travel schedule, I pop in and out a bit, but no matter

where I am at in the world, I can still get to the folks online.

You are among friends, for sure. Please let us know if you need anything.

Craig

Big-T and the Bada-Bings

www.BigT-Music.com

---- " hopie612001 " hopie612001@...> wrote:

> My name is Hope, and I am a new member, I had my surgery June 21

> 2001, I was 395lbs when I had the surgery, and I am now at 245lbs

> however I still have more to go, wish me luck.I hope to meet new

> friends here, and maybe share my story.

> Again Hello and take care

> Hope

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

Hope, Welcome. I too come and go on this list, posting only occasionally

but read faithfully and look forward to getting to know you.

Debbie in Gig Harbor

ladybostons@...

Open RNY Jan 1999

320 ~ 200

[Guest guest]

One little tip on getting in all those vitamins....I use a pill container that I

got at Shop Rite. It has7 little cases that snap into the base. Each little

case is marked with a day of the week and has 4 sections per day. You can snap

out the little case for the day and take it with you. I fill this up weekly.

Then I know if I have missed something that day. It definitely helps a lot. I

think I paid around $8 for it.

One other tip....since that iron needs to be taken by itself, and since I get up

in the middle of the night to use the bathroom anyway...I take the iron in the

middle of the night and with water only.

Suggestions for the rest....read over the " pouch rules for dummies " . Not

everyone follows this exactly, but reading it helps to get your head back on

track and thinking about what you need to do.

Do you need the suggested vitamins list? If so, let me know and I will post it

or send it to you.

I think both the pouch rules and the vitamin list are in the files section of

the website, but I have them too if you need them.

And try to avoid those carbs. They are what keep calling us back constantly,

don't they?

This journey becomes a LOT harder as you get farther post-op, doesn't it? I

know it is really difficult to lose weight now that I am 2 yrs post-op. I

exercise like crazy, take all my protein and vitamins, etc, etc...and the weight

is coming off very VERY slowly now. Don't beat yourself up. Just look over all

those things we were told from the beginning to give yourself a refresher

course. You've done a great job!!!! Remember that. And you can keep on going

too. It just isn't easy anymore.

Chrissie

shihtzumom@...

http://users.snip.net/~shihtzumom

My WLS Journey:

http://millennium.fortunecity.com/doddington/691/WLS/this_is_me.htm

----- Original Message ----- From: mikki69712000

Hi my name is . I live in NJ, and had my surgery June of

2000 and abdominaplasty in June of 2001 (BTW Hi Chrissie a/k/a

shitzumom). I have lost approx 130 lbs. My surgeon was Dr.

Greenbaum in Willingboro. I need some help with the maintenance of

my tool. It's getting a bit rusty and I don't want that to happen.

I am having a problem with Protein and my vitamins as well. I can't

seem to continuously get them in. I had the open rny short limb.

When there are so many other issues in life, how does everyone keep

their tool running like a well oiled machine. I seem to have lost

touch with that. Thanks for any help that anyone may give, and

thanks for listening.

W.

Homepage: http://groups.yahoo.com/group/Graduate-OSSG

Unsubscribe: mailto:Graduate-OSSG-unsubscribe

[Guest guest]

Chrissie,

I was told that we need vitamin C to help the iron get absorbed. You might want

to think about taking a vitamin C pill when you take the iron.....

Helene

shihtzumom wrote:

> One little tip on getting in all those vitamins....I use a pill container that

I got at Shop Rite. It has7 little cases that snap into the base. Each little

case is marked with a day of the week and has 4 sections per day. You can snap

out the little case for the day and take it with you. I fill this up weekly.

Then I know if I have missed something that day. It definitely helps a lot. I

think I paid around $8 for it.

>

> One other tip....since that iron needs to be taken by itself, and since I get

up in the middle of the night to use the bathroom anyway...I take the iron in

the middle of the night and with water only.

>

> Suggestions for the rest....read over the " pouch rules for dummies " . Not

everyone follows this exactly, but reading it helps to get your head back on

track and thinking about what you need to do.

>

> Do you need the suggested vitamins list? If so, let me know and I will post

it or send it to you.

>

> I think both the pouch rules and the vitamin list are in the files section of

the website, but I have them too if you need them.

>

> And try to avoid those carbs. They are what keep calling us back constantly,

don't they?

> This journey becomes a LOT harder as you get farther post-op, doesn't it? I

know it is really difficult to lose weight now that I am 2 yrs post-op. I

exercise like crazy, take all my protein and vitamins, etc, etc...and the weight

is coming off very VERY slowly now. Don't beat yourself up. Just look over all

those things we were told from the beginning to give yourself a refresher

course. You've done a great job!!!! Remember that. And you can keep on going

too. It just isn't easy anymore.

>

> Chrissie

> shihtzumom@...

> http://users.snip.net/~shihtzumom

> My WLS Journey:

http://millennium.fortunecity.com/doddington/691/WLS/this_is_me.htm

> ----- Original Message ----- From: mikki69712000

> Hi my name is . I live in NJ, and had my surgery June of

> 2000 and abdominaplasty in June of 2001 (BTW Hi Chrissie a/k/a

> shitzumom). I have lost approx 130 lbs. My surgeon was Dr.

> Greenbaum in Willingboro. I need some help with the maintenance of

> my tool. It's getting a bit rusty and I don't want that to happen.

> I am having a problem with Protein and my vitamins as well. I can't

> seem to continuously get them in. I had the open rny short limb.

> When there are so many other issues in life, how does everyone keep

> their tool running like a well oiled machine. I seem to have lost

> touch with that. Thanks for any help that anyone may give, and

> thanks for listening.

>

> W.

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

[Guest guest]

WELCOME, We are so very glad to have you. I am just a grandmom to an 18 yr

old but have also been very close to her. I look forward to hearing about

your delightful family.

LOVE & HUGS, grandmomBEV

Hello

Hi to all on the list.

This is the first time I have been on this list so I would like to introduce

myself.

My name is Sandie s and I am the mum of an 8 yo cf daughter and a 10 yo

son without cf. We are from Australia.

I am very interested to here the different experiences of other parents and

hope to learn new information regarding treatments etc.

Hopefully I will get to know most of you over time.

Sandie s

[Guest guest]

Hi Sandie,

My name is and I have 2 children, 1 with cf and 1without. I also

live in Australia. What state are you in? You'll find great people on

this list.

Mum to Liam 8wocf & Eilish 5wcf

Hello

Hi to all on the list.

This is the first time I have been on this list so I would like to

introduce myself.

My name is Sandie s and I am the mum of an 8 yo cf daughter and a

10 yo son without cf. We are from Australia.

I am very interested to here the different experiences of other parents

and hope to learn new information regarding treatments etc.

Hopefully I will get to know most of you over time.

Sandie s

[Guest guest]

Sandy and Trev,

Welcome to the group, I have only been here a short time and have already

learned a few things I had no clue about, I sure you will to.

(Iowa) mother of 2 Mandy (13 wcf) and Cyle (11 wocf)

Trev & Sandie's Mail wrote:Hi to all on the list.

This is the first time I have been on this list so I would like to introduce

myself.

My name is Sandie s and I am the mum of an 8 yo cf daughter and a 10 yo son

without cf. We are from Australia.

I am very interested to here the different experiences of other parents and hope

to learn new information regarding treatments etc.

Hopefully I will get to know most of you over time.

Sandie s

[Guest guest]

I do take vitamin C with my iron. I just didn't mention that as we were just

talking about when to take the iron.

Thanks,

Chrissie

----- Original Message ----- From: hwd112

Chrissie,

I was told that we need vitamin C to help the iron get absorbed. You might

want to think about taking a vitamin C pill when you take the iron.....

[Guest guest]

Hi ,

Thank you for your welcome to the group.

You wanted to know what part of Australia I live in.

We live in Queensland, about 45mins from Brisbane.

Tammy (8yo wcf) is treated at the RCH in Brisbane.

I would like to know what part of Australia you come from.

Cheers,

Sandie s

[Guest guest]

Hi Sandie,

Guess what - there's a few of us Ozzies on the various CF lists!

Glad that you found us (which is a very different thing from glad that

you're here - I wouldn't wish CF on anybody!)

And while I'm here, I'll just let everyone know that Sian turned 6!!

Love & hugs,

- Mum to Cate 9yrs wocf and Sian 6yrs wcf

Canberra Australia-

[Guest guest]

YEAH...........And a great big

HAPPY BIRTHDAY SIAN !!

LOVE & HUGS,

gRANDMOMbev

Re: Hello

Hi Sandie,

Guess what - there's a few of us Ozzies on the various CF lists!

Glad that you found us (which is a very different thing from glad that

you're here - I wouldn't wish CF on anybody!)

And while I'm here, I'll just let everyone know that Sian turned 6!!

Love & hugs,

- Mum to Cate 9yrs wocf and Sian 6yrs wcf

Canberra Australia-

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Happy Birthday Sian!!! Deb A

[Guest guest]

WOW, what a great weight loss. I snack (if I have to) on teriyaki beef jerky

(small ones - I buys the small bag). I also buy sugarless toffee candies. I

am not a great on avoiding all carbs, but I do enjoy these. I allow myself

some carbs, but I try to stay focused on protein. How about a boiled egg? My

guess would be anything low fat, high protein (yogurt). Exercise and drink

water. Whatever you're doing, it must be right...look how far you've come.

Enjoy yourself, you're unique. I am sure your friend has a whole other set of

circumstances.

Janene

West Haven,CT

8/20/01

297/191

Hello

I try to find snacks that I can

eat that will not put weight on me. Do anyone have any ideals? I would be

thankful for any ideals anyone that have had the surgery around the length of

time as me or longer. I could use some help with this. I have a friend that

had the surgery but she has gain some of her weight back.This scares me. My

starting weight was 304 and now I weight 126. Looking forward from hearing

for someone.