Guest guest Report post Posted February 3, 1999 Dear Nancie, Yes, you are definitely blessed with your family. I look forward to meeting you! By the way, how do I go about getting a " password " and a " handle " ??? Gloria Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 3, 1999 Dear Gloria, Thanks for your concern, and I agree with you about being thankful for all I have. If not having my husband or my kids in my life would take this disease from me there would be no question that I would play the hand I have been dealt. Thats part of what makes all this so hard. I have 2 of the best kids anyone could ask for. Two beautiful grandchildren with one more on the way, and a wonderful husband of over 30 years. So I want more time and guess I always will. As far as the conferance goes we hope to be there, my husband just has to make sure he can get those days off. It will be wonderful to meet as many of you as I can. Thanks for yours and everyone elses support. You all make this easier to deal with, my CJD family. Love, Nancie Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 14, 1999 In a message dated 7/13/99 6:56:49 PM Pacific Daylight Time, SDidinsky@... writes: << I just do not get it - I am sure it is food and I really do not want him to have to go back to a completely elemental diet. If it is bad tomorrow I guess it is back to the ped. >> we will keep him in our prayers Cathy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 In a message dated 10/8/99 9:51:28 AM Eastern Daylight Time, michelle454@... writes: << My name is and I am new to this list and Atkins. I noticed alot of the messages are from people with 50lbs or more to lose. Does this work as well for someone who has 20lbs to lose? >> Hello and welcome to the list . Yes, it will work fo you, but it may be a little slower coming off since you have less to lose. 170/138/125 4/9/99 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 In a message dated 10/8/99 9:51:28 AM Eastern Daylight Time, michelle454@... writes: << My name is and I am new to this list and Atkins. I noticed alot of the messages are from people with 50lbs or more to lose. Does this work as well for someone who has 20lbs to lose? >> Hello and welcome to the list . Yes, it will work fo you, but it may be a little slower coming off since you have less to lose. 170/138/125 4/9/99 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 In a message dated 10/8/99 9:51:28 AM Eastern Daylight Time, michelle454@... writes: << My name is and I am new to this list and Atkins. I noticed alot of the messages are from people with 50lbs or more to lose. Does this work as well for someone who has 20lbs to lose? >> Hello and welcome to the list . Yes, it will work fo you, but it may be a little slower coming off since you have less to lose. 170/138/125 4/9/99 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 Hi MIchelle, Yes it can work for you too!! Just remember the less you have to lose the slower it takes, as a rule, there are exceptions!!!! Hugs Penny 173/158/130 Goal for Oct 31st-----150 http://members.xoom.com/Shadcat708/LC.html " >My Low carb links site ---http://members.xoom.com/Shadcat708/LC.html http://www.geocities.com/shadcat708/The__Home.html " >My Home page---http://www.geocities.com/shadcat708/The__Home.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 At 09:51 AM 08/10/1999 -0400, you wrote: >From: michelle454@... () > >Hi Everyone, >My name is and I am new to this list and Atkins. I noticed alot >of the messages are from people with 50lbs or more to lose. Does this >work as well for someone who has 20lbs to lose? > Hi Yes...... That's how I lost my final weight to reach my goal weight. I'm now on a maintenance program, but if I see any weight sneaking up, I immediately take care of it with Atkins Induction. I thank God that this WOE has come along and boy does it ever control my blood sugars! (I'm diabetic) You'll love it!! =========================================== DRClub Homepage http://www.geocities.com/CapeCanaveral/6875/DRClub/index.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 At 09:51 AM 08/10/1999 -0400, you wrote: >From: michelle454@... () > >Hi Everyone, >My name is and I am new to this list and Atkins. I noticed alot >of the messages are from people with 50lbs or more to lose. Does this >work as well for someone who has 20lbs to lose? > Hi Yes...... That's how I lost my final weight to reach my goal weight. I'm now on a maintenance program, but if I see any weight sneaking up, I immediately take care of it with Atkins Induction. I thank God that this WOE has come along and boy does it ever control my blood sugars! (I'm diabetic) You'll love it!! =========================================== DRClub Homepage http://www.geocities.com/CapeCanaveral/6875/DRClub/index.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 At 09:51 AM 08/10/1999 -0400, you wrote: >From: michelle454@... () > >Hi Everyone, >My name is and I am new to this list and Atkins. I noticed alot >of the messages are from people with 50lbs or more to lose. Does this >work as well for someone who has 20lbs to lose? > Hi Yes...... That's how I lost my final weight to reach my goal weight. I'm now on a maintenance program, but if I see any weight sneaking up, I immediately take care of it with Atkins Induction. I thank God that this WOE has come along and boy does it ever control my blood sugars! (I'm diabetic) You'll love it!! =========================================== DRClub Homepage http://www.geocities.com/CapeCanaveral/6875/DRClub/index.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted October 8, 1999 >Yes...... That's how I lost my final weight to reach my goal weight. I'm now >on a maintenance program, but if I see any weight sneaking up, I immediately >take care of it with Atkins Induction. Good for you, Liz. I hope I can match your strength when I get to maintenance. Nat Baker Bakers' Little Ranch Home Page http://discover-net.net/~nbaker Farm for Sale http://discover-net.net/~nbaker/farm.html Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Phyllis, This is Tina I just wanted to tell you that we found out that some kids can't handle the protein in the formulas. Alyssa is one of those kids, just some simple advice the formula elecare is terrible, It taste worst then soy milk. before i would buy any I would talk to the company and see if they would send you a sample, We had already been down that road There was no formula that Alyssa would take by mouth. good luck Tina mom to Alyssa who seems to be allergic to every thing Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 In a message dated 11/29/99 11:50:49 AM Eastern Standard Time, Ssrams@... writes: << send you a sample, We had already been down that road There was no formula that Alyssa would take by mouth. good luck Tina mom to Alyssa who seems to be allergic to every thing >> For some reason Vivonex was the only formula Clayton would not take by mouth. He would drink the Neocate 1+ powder by mouth and now drinks the Elecare by mouth - no problem - granted not tons - only 4-6 ounces a day - but he drinks it. He gets about 500ccs by g-tube every night. Sharon Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Phyllis- Give me your address and I'll send you a can (I dont pay for it, so you can have it). It smells worse than the rest of the formulas. I forgot why AJ doesnt have a Gtube? Steph. Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 I mailed off the Neocate to you today. You might try asking your doctor's office (the GI would probably have it) for samples. Dawn-KS, mommy to Dakota, 7, aka BJ, 4, (eosinophilic gastroenteritis, Nissen, asthma, reflux), and mommy to Mackenzie Marie andrya born 11/20/99 [eosinophilic gastroenteritis] Hello I was wondering if I could buy a couple of Elecare boxes off of someone. AJ is still on Neocate and she still has her ups and downs, which seems to correlate with a new case. I Know it is run on dairy equipment, but the doc doesn't want to switch her. I want to see if she will even touch the Elecare, before I demand that she be allowed to switch. No use fighting, if she won't drink it. He suggested that maybe he would put her on Elecare in a few months. Easy for him to say, when he is not dealing with a miserable 3 year old 24 hours a day. If she won't drink it, then I will have to look elsewhere. Please let me know the cost and I will gladly pay for shipping. Thanks so much. Phyllis--mom to AJ (12/22/95) EG, GERD, Asthma, Allergies, speech delay and hearing loss Remi (8/3/92) Spina Bifida, LATEX, peanuts, shellfish, & nut allergies Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Thanks . Our address is Phyllis Zuckerman-Frieze 11 East Mockingbird Way Absecon, NJ 08201-6206 AJ doesn't use a g-tube because she has been more than willing to drink the Neocate juice boxes. If she were tube fed, Neocate powder would be a solution. She won't touch the powder, no matter how little you hide in anything. She can tell it is there. Thanks again. Phyllis Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Thanks Dawn. YOu are so busy witha newborn to get the Neocate out too. I will be on the look out for it. Phyllis Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Thanks Dawn. YOu are so busy witha newborn to get the Neocate out too. I will be on the look out for it. Phyllis Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 29, 1999 Thanks Dawn. YOu are so busy witha newborn to get the Neocate out too. I will be on the look out for it. Phyllis Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 2, 2000 << Next week I will go to hospital to have an achilles-tendon-lengthening and a transfer of the tibialis-posterior-tendon done. >> Hello , Welcome to the group. I have not had surgeries so I know nothing about them, but I do know that it is important that a CMTer be kept warm during the surgery. Over here there are special blankets to keep the patient warm. I hope they are available in Germany as well. CMTers have reported spending miserable days trying to get warm afterwards, if they were not kept warm during the surgery. The other important thing is not to have an anesthesia that is harmful for people with neurological problems. I hope your anesthesiologist knows about your CMT. Good luck with your surgery. I hope it goes well and that you will someday walk without people looking at your feet. :-) By the way, too many doctors in the USA also do not know of or understand CMT. Regards, Kat in Seattle USA Quote Share this post Link to post Share on other sites
Guest guest Report post Posted February 13, 2000 << Does anyone have leg twitches? They are annoying. How can I make them less bothersome? >> Hi , welcome to the group. Can you describe the leg twitches? Do they involve most of the leg? A little bit of it? Are they like restless leg syndrome or like electric shocks? Spasms? I'm sure there are other words too, these are just some I can think of off-hand. I assume by now you know that additional B6 is not recommended for CMTers. How do your feet look? Your calves? How is your balance? Do you trip or fall much? I hope you'll find some answers here. Kat in Seattle Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2000 Hi Cindy, Nice to meet you. << There is degeneration and worsening of symptoms. So, will I be able to continue what I have been doing (when I thought I had fibro) with CMT??? >> It may depend on what you have been doing!! CMTers are not necessarily affected a lot. Some are and some are not. CMT is called progressive, but the rate is different with each of us. For some it continues to be mild all one's life. There is NO way to predict, and if anyone does there is no reason to believe what is said. Are your feet " funny? " Do you have trouble walking without tripping or falling? What do your calves look like? How are your hands? Why do you think you may have CMT instead of FM? CMT and fibromyalgia do have some symptoms in common. Kat in Seattle Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2000 Hi Cindy, Nice to meet you. << There is degeneration and worsening of symptoms. So, will I be able to continue what I have been doing (when I thought I had fibro) with CMT??? >> It may depend on what you have been doing!! CMTers are not necessarily affected a lot. Some are and some are not. CMT is called progressive, but the rate is different with each of us. For some it continues to be mild all one's life. There is NO way to predict, and if anyone does there is no reason to believe what is said. Are your feet " funny? " Do you have trouble walking without tripping or falling? What do your calves look like? How are your hands? Why do you think you may have CMT instead of FM? CMT and fibromyalgia do have some symptoms in common. Kat in Seattle Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2000 Hi Cindy, Nice to meet you. << There is degeneration and worsening of symptoms. So, will I be able to continue what I have been doing (when I thought I had fibro) with CMT??? >> It may depend on what you have been doing!! CMTers are not necessarily affected a lot. Some are and some are not. CMT is called progressive, but the rate is different with each of us. For some it continues to be mild all one's life. There is NO way to predict, and if anyone does there is no reason to believe what is said. Are your feet " funny? " Do you have trouble walking without tripping or falling? What do your calves look like? How are your hands? Why do you think you may have CMT instead of FM? CMT and fibromyalgia do have some symptoms in common. Kat in Seattle Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 31, 2000 Welcome Cindy, My name is a. I am the mother of a 13yo daughter with CMT. I don't have an answer to your question since I don't have the disease personally. My daughter was diagnosed at age 8, wears leg braces below the knees called AFO's(ankle-foot orthotics) but you'll hear slang AFO's. She is very much ambulatory but is having some problems with her fingers curling called " clawing " (I hate that term). but the one thing I have learned is that this seems to affect everyone a little differently. Good luck with the nerve conduction studies in July. a Quote Share this post Link to post Share on other sites
