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Caroline,

One thing is no fatty foods. He has to stay on a low fat diet. It is so

good that you are standing beside him and wanting to help him. I admire you

a lot for that. I have had this disease since 1996 and have lost a fiancée

because as he put it I stayed sick all the time and he was healthy. Did

that through an email also. UGH. Please stand by your boyfriend. This

group has helped me alot because without them I don't know what I would have

done at times. If you ever need to talk just email me privately. I know

that this list can help you. My email addy is SNOBLES@....

in Sumter, SC

New Member

Hello All,

I have joined today as I desperately need to know more about this

illness. My boyfriend had a bad attack last night and I could tell

looking at his face this morning that he isn't much better. He has

suffered from chronic pancreatitis for several years and I know that

he was declared dead at one stage in hospital. He won't tell me

anything about his illness and what it will mean in the long term.

This is the man I want to spend the rest of my life with and to have

children with, and yet this morning I feel as though I am looking

into a black abyss. All I want is to understand his illness and to

help him in any way that I can, yet I don't even know what foods I

should cook for him! All he does is laugh it off and say he is

indestructible but I think I at least deserve to know what a future

together will hold so that we can meet it together. I know he doesn't

want to be defined by his illness but I think at least one of us

should take it seriously. Any help I can receive will be gratefully

appreciated as at the moment I know nothing other than the fact that

he must take pancreatic enzymes before meals.

Best regards,

Caroline

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

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Debi,

Welcome to the list. I hope your daughter is doing

well after her transplant. I'm sorry to hear that

your support group was less than supportive. I'm sure

you'll find plenty of great folks here who are

willing and able to lend a sympathetic shoulder or

offer words of encouragement. I know that many of us

would benefit from your wisdom and experience.

hugs,

C

Mommy to Mick and Alli, 2.5 yo twins wcf

--- torstenkrafft Torstenkrafft@...> wrote:

> Debi (Golsen1986@...) wrote the introduction

> below, which was

> meant to go to the whole list.

>

> Peace

> Torsten

>

>

> Hi Thanks for having this. I have a 22 yr. new

> daughter who had a

> double lung

> transplant 2 yrs ago February. When she was first

> diagnosed with CF

> the

> support group we had was shall I say difficult.

> Needless to say I

> thank the

> Lord daily for her 2nd chance and I am here if

> anyone needs to talk

> about the

> young adults and so forth. DMO

>

>

>

__________________________________________________

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Thanks , I have been telling Jess about this and I am hoping she can

reach out to some of the older CFrs also. I know that since her surgery she

has had a lot of support and able to give back some also. Her Dr.s have her

talk to some of the hopefuls for transplant. Since we live in Fl we have alot

of success in that area especially since we're the 3rd in listings in the

nation. Take care and good luck. Debi

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Sandy,

Welcome to the group! Sorry we all have to meet under these circumstances, but

you will find that this group is full of caring ad knowledgeable people, that

will become a great support system for you, just as they have for me!

I'm glad that you are finally diagnosed and hope that you are on the road to

pain free days!

{{{HUGZ}}}

(in Michigan)

---------------------------------

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Sandy,

Welcome to the group! Sorry we all have to meet under these circumstances, but

you will find that this group is full of caring ad knowledgeable people, that

will become a great support system for you, just as they have for me!

I'm glad that you are finally diagnosed and hope that you are on the road to

pain free days!

{{{HUGZ}}}

(in Michigan)

---------------------------------

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Sandy,

Welcome to the group! Sorry we all have to meet under these circumstances, but

you will find that this group is full of caring ad knowledgeable people, that

will become a great support system for you, just as they have for me!

I'm glad that you are finally diagnosed and hope that you are on the road to

pain free days!

{{{HUGZ}}}

(in Michigan)

---------------------------------

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It is well known in the medical filed that Indocin causes bleeding of the

stomach or ulcers. It is very bad on the GI system. So sorry that you had

to learn that the hard way. I sure hope that you feel better soon !

Welcome to our group. You will find lots of info here. Hang in there and

keep asking questions !

Take Care,

Lily from Ohio

New Member

I'm new to this list. Thought I only had

arthritis pain but found out through an

emergency trip to the hospital that I had

an inflammed pancreas due to gallstones,

anemia due to a large stomach ulcer and

kidney failure. After reading all your posts

I realized I had been misdiagnosed for

years!

My frequent diarrhea was treated only with Lomotil without further

investigation.

The pain was attributed to arthritis when

in fact it was my pancreas!

I now know not to let these symptoms go

unchecked.

One of my pain culprits was Indocin which

was prescribed for pain. It caused a major

bleeding ulcer in my stomach and a clotting problem with my blood. Has

anyone else had this problem with Indocin?

I was in the hospital 9 days and will have

to have my galbladder removed. Scary

to think I was misdiagnosed all this time

Glad to have found this group.

Sandy

(Long Beach, Ca.).

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

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It is well known in the medical filed that Indocin causes bleeding of the

stomach or ulcers. It is very bad on the GI system. So sorry that you had

to learn that the hard way. I sure hope that you feel better soon !

Welcome to our group. You will find lots of info here. Hang in there and

keep asking questions !

Take Care,

Lily from Ohio

New Member

I'm new to this list. Thought I only had

arthritis pain but found out through an

emergency trip to the hospital that I had

an inflammed pancreas due to gallstones,

anemia due to a large stomach ulcer and

kidney failure. After reading all your posts

I realized I had been misdiagnosed for

years!

My frequent diarrhea was treated only with Lomotil without further

investigation.

The pain was attributed to arthritis when

in fact it was my pancreas!

I now know not to let these symptoms go

unchecked.

One of my pain culprits was Indocin which

was prescribed for pain. It caused a major

bleeding ulcer in my stomach and a clotting problem with my blood. Has

anyone else had this problem with Indocin?

I was in the hospital 9 days and will have

to have my galbladder removed. Scary

to think I was misdiagnosed all this time

Glad to have found this group.

Sandy

(Long Beach, Ca.).

PANCREATITIS Association, Intl.

Online e-mail group

To reply to this message hit & quot;reply & quot; or send an e-mail

to: Pancreatitis (AT) Yahoo

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Yes, Lily, it was a hard way to learn about

the side-effects of Indocin. Also learned

it was a blood thinner! Four blood transfusions were necessay because

of

severe anemia!

So the pain from the ulcer and the pancreas overlapped. I never knew I

had either until it was almost too late.

Last night I had cramps and was throwing

up bile so bad that I was concerned that it was my pancreas again. So I

went to the ER. Turned out to be the " stomach flu " but the symptoms were

so similar I wasn't sure. In all my years, however, I never had such

bad cramps with " just " the flu like I did last night!

Thanks to all for the " welcome. " I'm

glad to have found all of you.

Sandy

California

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Yes, Lily, it was a hard way to learn about

the side-effects of Indocin. Also learned

it was a blood thinner! Four blood transfusions were necessay because

of

severe anemia!

So the pain from the ulcer and the pancreas overlapped. I never knew I

had either until it was almost too late.

Last night I had cramps and was throwing

up bile so bad that I was concerned that it was my pancreas again. So I

went to the ER. Turned out to be the " stomach flu " but the symptoms were

so similar I wasn't sure. In all my years, however, I never had such

bad cramps with " just " the flu like I did last night!

Thanks to all for the " welcome. " I'm

glad to have found all of you.

Sandy

California

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Guest guest

WELCOME,

I am sure many will tell you about their great clinic up there soon. best

wishes.

LOVE & HUGS, grandmomBEv

New Member

I am new to this, my two month old son Nikolas was diagnosed on Jul

9, we'll be moving to Michigan in three weeks and are looking for any

families in the mid-MI area for any information and Dr.

recommendations?

mom to Nikolas 2months wcf, 11 yrs wocf, 3 yrs wocf

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Guest guest

WELCOME,

I am sure many will tell you about their great clinic up there soon. best

wishes.

LOVE & HUGS, grandmomBEv

New Member

I am new to this, my two month old son Nikolas was diagnosed on Jul

9, we'll be moving to Michigan in three weeks and are looking for any

families in the mid-MI area for any information and Dr.

recommendations?

mom to Nikolas 2months wcf, 11 yrs wocf, 3 yrs wocf

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Guest guest

WELCOME,

I am sure many will tell you about their great clinic up there soon. best

wishes.

LOVE & HUGS, grandmomBEv

New Member

I am new to this, my two month old son Nikolas was diagnosed on Jul

9, we'll be moving to Michigan in three weeks and are looking for any

families in the mid-MI area for any information and Dr.

recommendations?

mom to Nikolas 2months wcf, 11 yrs wocf, 3 yrs wocf

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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,

Welcome to the list. I hope you get some good

referrals. I can't help you with Michigan doctors,

but if you have any general questions in future,

I be happy to answer what I can. This is a really

supportive and knowledgeable list.

C

Mommy to Mick and Alli, 2.5 yo twins wcf

--- rachniknatesmom baker_hart@...> wrote:

> I am new to this, my two month old son Nikolas was

> diagnosed on Jul

> 9, we'll be moving to Michigan in three weeks and

> are looking for any

> families in the mid-MI area for any information and

> Dr.

> recommendations?

> mom to Nikolas 2months wcf, 11 yrs wocf,

> 3 yrs wocf

>

>

__________________________________________________

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I know it's kinda hard when you know you can't do it alone.

I know I cannot do it without accountability. I am terribly lacking in,

something, I don't know what. Good sense, most days.

Besides, I've grown rather fond of 'em.

Thanks,

Vitalady T

www.vitalady.com

If you are interested in PayPal, please click here:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

New Member

> My name is Suze and I am from Michigan. I was in this support group

> when I first had my surgery 2 years ago. My surgery date was June 29,

> 2000. I was 238 lbs. and am now 159. I am not at goal, but I am a

> lot better off than I waS 2 years ago. I feel the need to rejoin this

> group. I am hoping to get some tips that may help me get closer to

> goal. I am also available to give anyone help with situations that I

> might be familiar with. I just want to be one of the gang, again.

>

> Thanks for listening.

>

> Suze from MI

>

>

>

>

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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Guest guest

I know it's kinda hard when you know you can't do it alone.

I know I cannot do it without accountability. I am terribly lacking in,

something, I don't know what. Good sense, most days.

Besides, I've grown rather fond of 'em.

Thanks,

Vitalady T

www.vitalady.com

If you are interested in PayPal, please click here:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

New Member

> My name is Suze and I am from Michigan. I was in this support group

> when I first had my surgery 2 years ago. My surgery date was June 29,

> 2000. I was 238 lbs. and am now 159. I am not at goal, but I am a

> lot better off than I waS 2 years ago. I feel the need to rejoin this

> group. I am hoping to get some tips that may help me get closer to

> goal. I am also available to give anyone help with situations that I

> might be familiar with. I just want to be one of the gang, again.

>

> Thanks for listening.

>

> Suze from MI

>

>

>

>

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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Guest guest

I know it's kinda hard when you know you can't do it alone.

I know I cannot do it without accountability. I am terribly lacking in,

something, I don't know what. Good sense, most days.

Besides, I've grown rather fond of 'em.

Thanks,

Vitalady T

www.vitalady.com

If you are interested in PayPal, please click here:

https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com

New Member

> My name is Suze and I am from Michigan. I was in this support group

> when I first had my surgery 2 years ago. My surgery date was June 29,

> 2000. I was 238 lbs. and am now 159. I am not at goal, but I am a

> lot better off than I waS 2 years ago. I feel the need to rejoin this

> group. I am hoping to get some tips that may help me get closer to

> goal. I am also available to give anyone help with situations that I

> might be familiar with. I just want to be one of the gang, again.

>

> Thanks for listening.

>

> Suze from MI

>

>

>

>

>

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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Hello Alyssa, Thank you for your reply. I have found that Honey Comb, Life, kix and cheerios do not have soybean oil in them. Thank you so much for the info on the lays potato chips. I thought that they had soybean oil also. What do you do for bread? All the bread that I have looked at has soybean oil. I have a bread machine that my husband bought me several year ago, I guess that I will have to get it out. I made her homemade oatmeal cookies, but she would not eat it. I am going to try sugar cookies later today or tomorrow. What do you do when you go to someone's house for dinner? Tina new member Hello all, Thank you for letting me join your group. I am a SAHM to 4 children. My concern is with my daughter (Hailey), she will be 2 on Sept.25th. She is allergic to dogs, cats, dust mites, cashews, egg white, peanuts and soybeans. I have learned in the last week that there is soybean oil in just about everything. Do any of your children have allergic reactions on soybeans? Any way I realized she was allergic to milk based formula when she was 6 wks old. It was the day after Thanksgiving; I always go shopping early the day after Thanksgiving. Her daddy had her and was giving her formula for the first time (she was breastfed) After about her third or fourth bottle for the day, My DH realized that she was getting red hives all over her body. He called me immediately, I came home and we rushed her to the hospital. She wound up being okay after being at the hospital for several hours and giving her benadryl. When she was 5mo. we found out that she had eczema. We have been battling that every since. Two weeks ago Hailey had gotten into her daddies cashews and she immediately started getting red hives all over and her lips were swelling, I looked at her throat and it to was swollen so we rushed her to the hospital. We then found out that she is allergic to nuts. Her Dr. made an appt. with an allergist the following week. Hailey had an allergy test done, which is how we found out about the other allergies. She was tested for Cashew, corn, egg white, milk, peanut, soybean, wheat, cat, dog, mold, histamine, and two kinds of dust mites. She has a small allergy to milk that the allergist said we could challenge. She was not allergic to the mold, corn or wheat. All the others she was allergic to. The allergist walked into the room like he was in shock. I thought something was really badly wrong. Anyway he said that out of 100 children her age, she had the worst allergies. She has allergies like an adult he said. He prescribed us an Epi-pen to carry with us everywhere we go.I have tried searching the Internet for information on food allergies. It seems like everything has soybean oil. We have switched from margarine to real butter, from vegetable oil to corn oil. We stopped using mayonnaise all of these items are soybean. All her cereal had soybean oil in it. Cookies, cake, crackers all have soybean oil, what is she to eat? I know now why her eczema was always flared up. She had soybean oil in just about everything she ate. I am learning what to avoid and what I can give her. I have to put encasings on her mattress and pillow. I have pulled up the carpet in the house and thrown away or stored her stuffed animals. We are thinking of getting dehumidifier because of her being allergic to dust mites. She has to go back to the allergist in Nov. for more testing. Sorry for rambling on like this but I am sooooooooooo overwhelmed by all this.Please reply with any suggestions or your child’s story on allergies.TinaSAHM to 4 children(12) (9)Garrett (6)Hailey (2)

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Hi Tina,

My name is Alyssa. It is just you and I on this email loop for now. I am glad that you joined! I do apologize for it taking so long to reply to you. Our hard drive went and we had to replace it and then we lost everything. We just finally got everything up and running again. Anyway, My son is 3 and has allergies to Peanuts/nuts, dairy and soy. The dairy and soy give him severe eczema. The peanut allergy is the life threatning one and we too have to carry an epi pen jr around with us. I totally understand where you are coming from. There is soybean oil in everything! It was hard for us in the begining because we were not sure what to feed him. We also have a 20 month old little girl, but so far, she is ok. She has an allergist appointment in October to see. We tend to make a lot of things from scratch. Lays classic potatoe chips do not have soybean oil, so that makes it nice as a snack. Also, Honey Comb cereal is soy free as well. We make homemade donuts, so he can have something sweet. If you would like suggestions, I would be more than happy to give them. It really isn't too bad. I look forward to chatting with you!

~Alyssa~

P.s. I am also a stay at home mom! :-)

To: "TerrificKidsWFA" From: "Tina " Date: Tue, 27 Aug 2002 23:15:04 -0700Subject: new member

Hello all, Thank you for letting me join your group. I am a SAHM to 4 children. My concern is with my daughter (Hailey), she will be 2 on Sept.25th. She is allergic to dogs, cats, dust mites, cashews, egg white, peanuts and soybeans. I have learned in the last week that there is soybean oil in just about everything. Do any of your children have allergic reactions on soybeans? Any way I realized she was allergic to milk based formula when she was 6 wks old. It was the day after Thanksgiving; I always go shopping early the day after Thanksgiving. Her daddy had her and was giving her formula for the first time (she was breastfed) After about her third or fourth bottle for the day, My DH realized that she was getting red hives all over her body. He called me immediately, I came home and we rushed her to the hospital. She wound up being okay after being at the hospital for several hours and giving her benadryl. When she was 5mo. we found out that she had eczema. We have been battling that every since. Two weeks ago Hailey had gotten into her daddies cashews and she immediately started getting red hives all over and her lips were swelling, I looked at her throat and it to was swollen so we rushed her to the hospital. We then found out that she is allergic to nuts. Her Dr. made an appt. with an allergist the following week. Hailey had an allergy test done, which is how we found out about the other allergies. She was tested for Cashew, corn, egg white, milk, peanut, soybean, wheat, cat, dog, mold, histamine, and two kinds of dust mites. She has a small allergy to milk that the allergist said we could challenge. She was not allergic to the mold, corn or wheat. All the others she was allergic to. The allergist walked into the room like he was in shock. I thought something was really badly wrong. Anyway he said that out of 100 children her age, she had the worst allergies. She has allergies like an adult he said. He prescribed us an Epi-pen to carry with us everywhere we go.I have tried searching the Internet for information on food allergies. It seems like everything has soybean oil. We have switched from margarine to real butter, from vegetable oil to corn oil. We stopped using mayonnaise all of these items are soybean. All her cereal had soybean oil in it. Cookies, cake, crackers all have soybean oil, what is she to eat? I know now why her eczema was always flared up. She had soybean oil in just about everything she ate. I am learning what to avoid and what I can give her. I have to put encasings on her mattress and pillow. I have pulled up the carpet in the house and thrown away or stored her stuffed animals. We are thinking of getting dehumidifier because of her being allergic to dust mites. She has to go back to the allergist in Nov. for more testing. Sorry for rambling on like this but I am sooooooooooo overwhelmed by all this.Please reply with any suggestions or your child’s story on allergies.TinaSAHM to 4 children(12) (9)Garrett (6)Hailey (2)

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Hi Tina.

I tried to reply but it didn't work..I hope this isn't sent through twice. Anyway, the Lays Classic Potatoe chips are the only kind that they make that have no soybean oil. We use Vermont Bread Company Bread. It is soy free. We are on the east coast and it is available in our local grocery store. When it comes to eating at people's houses though, we usually dont' unless it is family. My family knows that his allergies are life threatning and they take the necessary precautions. They have no peanuts anywhere or peanut products. Otherwise, I would just invite the people over to my house where I know that things are safe. It isn't worth making a trip to the ER for me to eat at other people's houses. Everyone is pretty understanding though. There is a website for the peanut allergy because that is a major one. It is www.peanutallergy.com It has message boards that you can read without being a member and it is very imformative. It gives info about other names that could be peanut. Anway, talk to you soon!

Alyssa

new member

Hello all, Thank you for letting me join your group. I am a SAHM to 4 children. My concern is with my daughter (Hailey), she will be 2 on Sept.25th. She is allergic to dogs, cats, dust mites, cashews, egg white, peanuts and soybeans. I have learned in the last week that there is soybean oil in just about everything. Do any of your children have allergic reactions on soybeans? Any way I realized she was allergic to milk based formula when she was 6 wks old. It was the day after Thanksgiving; I always go shopping early the day after Thanksgiving. Her daddy had her and was giving her formula for the first time (she was breastfed) After about her third or fourth bottle for the day, My DH realized that she was getting red hives all over her body. He called me immediately, I came home and we rushed her to the hospital. She wound up being okay after being at the hospital for several hours and giving her benadryl. When she was 5mo. we found out that she had eczema. We have been battling that every since. Two weeks ago Hailey had gotten into her daddies cashews and she immediately started getting red hives all over and her lips were swelling, I looked at her throat and it to was swollen so we rushed her to the hospital. We then found out that she is allergic to nuts. Her Dr. made an appt. with an allergist the following week. Hailey had an allergy test done, which is how we found out about the other allergies. She was tested for Cashew, corn, egg white, milk, peanut, soybean, wheat, cat, dog, mold, histamine, and two kinds of dust mites. She has a small allergy to milk that the allergist said we could challenge. She was not allergic to the mold, corn or wheat. All the others she was allergic to. The allergist walked into the room like he was in shock. I thought something was really badly wrong. Anyway he said that out of 100 children her age, she had the worst allergies. She has allergies like an adult he said. He prescribed us an Epi-pen to carry with us everywhere we go.I have tried searching the Internet for information on food allergies. It seems like everything has soybean oil. We have switched from margarine to real butter, from vegetable oil to corn oil. We stopped using mayonnaise all of these items are soybean. All her cereal had soybean oil in it. Cookies, cake, crackers all have soybean oil, what is she to eat? I know now why her eczema was always flared up. She had soybean oil in just about everything she ate. I am learning what to avoid and what I can give her. I have to put encasings on her mattress and pillow. I have pulled up the carpet in the house and thrown away or stored her stuffed animals. We are thinking of getting dehumidifier because of her being allergic to dust mites. She has to go back to the allergist in Nov. for more testing. Sorry for rambling on like this but I am sooooooooooo overwhelmed by all this.Please reply with any suggestions or your child’s story on allergies.TinaSAHM to 4 children(12) (9)Garrett (6)Hailey (2)

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WELCOME Erla!!

You might find that your son's eczema will go away when you clear all milk

from his diet. Did you get a list of what to look for in ingredients that

is considered to be dairy? Are you breastfeeding or is he taking formula?

Please post all your questions! It is great that you have found us.

, mommy to:

Drew age 7. Allergic to peanuts, dogs, trees, and weeds. Eczema and outgrown

diary allergy.

Mattie age 4

age 9 months.

New member

Hi everyone

My name is Erla and I live in Iceland. My 7 month old son was

diagnosed with milk and egg allergi. He also has an eczema.

You have to excuse my english. My grammar and spelling isn´t

perfect :)

There are no support groups in Iceland for allergic kids. At least I

haven´t found one. That´s why I´m here :)

Love

Erla

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Hi

Yes he is still breastfeeding. He hasn´t have any milk yet, but I

gave him Milupa cereal one day and he swelled all up in the face.

Then (days later) I gave him bread and he swelled up again. Then I

took him to the doctor and he tested him and he tested positive for

milk and egg allaergi. So no milk and egg for him.

I´ve got a list of different names of milk end egg products in food.

I hope you understand what I mean :)

Erla

> WELCOME Erla!!

>

> You might find that your son's eczema will go away when you clear

all milk

> from his diet. Did you get a list of what to look for in

ingredients that

> is considered to be dairy? Are you breastfeeding or is he taking

formula?

>

> Please post all your questions! It is great that you have found

us.

>

> , mommy to:

> Drew age 7. Allergic to peanuts, dogs, trees, and weeds. Eczema

and outgrown

> diary allergy.

> Mattie age 4

> age 9 months.

>

> New member

>

>

> Hi everyone

> My name is Erla and I live in Iceland. My 7 month old son was

> diagnosed with milk and egg allergi. He also has an eczema.

> You have to excuse my english. My grammar and spelling isn´t

> perfect :)

> There are no support groups in Iceland for allergic kids. At least

I

> haven´t found one. That´s why I´m here :)

>

> Love

> Erla

>

>

>

>

>

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Guest guest

You are going to want to cut all dairy and egg products from your diet as

well. The proteins can pass through your milk and still effect him. It will

be worth it in the long run, trust me! My son was dairy free for almost 3

years and he outgrew the allergy.

And your post was very easy to understand. You are doing great with your

English!

----- Original Message -----

Hi

Yes he is still breastfeeding. He hasn´t have any milk yet, but I

gave him Milupa cereal one day and he swelled all up in the face.

Then (days later) I gave him bread and he swelled up again. Then I

took him to the doctor and he tested him and he tested positive for

milk and egg allaergi. So no milk and egg for him.

I´ve got a list of different names of milk end egg products in food.

I hope you understand what I mean :)

Erla

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Welcome Darlene and Jarrett!

All of your feelings are normal, I think we've all been there. Eventually you'll accept the fact that there is no known cause (lots of theories) although you'll probably always wonder what if....

You've found a wonderful support group here waiting to help you! Ask any questions you have, I know they sure helped me in the early days...and still do!

Christie and , 13 mos. bilateral microtia/left atresia/right stenois with a BCHA

-----Original Message-----From: smackdragon200201 Sent: Tuesday, March 25, 2003 10:05 PMTo: AtresiaMicrotia Subject: New memberMy name is Darlene. My son was born with Atresia Microtia on the left side. Jarrett is almost 3 months old now. We have had his hearing tested (Bone Conduction Test, I think that is the name of it.) and he has some hearing out of that ear. We have also seen a surgeon, he told us that Jarrett's ear canal did not form and that some bones are fused together. Also his ear drum did not fully develop. We go back to the surgeon when Jarrett is 4, then we will discuss reconstruction or a plastic ear. Is anyone familar with Dr. McElveen in Raliegh, NC ? All of this is so overwhelming sometimes, I don't know what kind of questions to ask or even how to comprehend all of this. I remember feeling like I did something wrong for this to happen to my child. I know now that I am lucky to have him no matter what, and that things could have been worse. I look forword to hearing from everyone and I hope to understand and learn alot.DarleneJarrett (left atresia microtia )

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Hi , did you hit reply to all? I don't know why, but tis the only way I

can post to the entire group. What is the three day protein fast? I did a

protein sparing fast once for 4 months and lost 100 lb, gained 150 back.hope

it is not like that!!!!! LOL!

Welcome to the group! Jeanne in Georgia (50 cats, 1 shepherd mix, 1 lab, 1

pit bull who thinks he's a cat and one DH)

new member

I am not receiving any email and my question about 3 day protien fast has

not

been listed yet.

Thanks

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