Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Re: new member >KTbugg54, Lamar here, > >It is well proven that lower case is kinder on the eyes. It takes much less eye strain than caps, with every letter the same size. In " computerese " all caps is considered to be SCREAMING as well. LOL > ----- So Lamar, quit screaming your laughter, Ha-Ha, gotcha, lol~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 I doubt any of us could do much in physical education. I sang in choir and I play the piano some. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 I couldn't do monkey bars either or walk on narrow forms, or run or do handstands etc. I did physical education at school from the age of 5 until I was 13 and then one doctor decided I couldn't do it and stopped me. I didn't mind, I used to play my French Horn instead, I could and still can do that Love Sue XXXX Re: new member REMEMBER MONKEY BARS AT THE PLAYGROUND? >I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME. >KATIE > OH WOW ! You just brought back a memory for me, the monkey bars at school! I could never play on them and I wanted to very much like the other children, but never could, I didn't have the strength for it. Now at least there was a reason for it (too little to late for hurt feelings as a child) ~>Becky M. -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 I couldn't do monkey bars either or walk on narrow forms, or run or do handstands etc. I did physical education at school from the age of 5 until I was 13 and then one doctor decided I couldn't do it and stopped me. I didn't mind, I used to play my French Horn instead, I could and still can do that Love Sue XXXX Re: new member REMEMBER MONKEY BARS AT THE PLAYGROUND? >I WANTED TO WALK THEM SO MUCH, BUT COULDN'T. ARMS JUST WOULDN'T LET ME. >KATIE > OH WOW ! You just brought back a memory for me, the monkey bars at school! I could never play on them and I wanted to very much like the other children, but never could, I didn't have the strength for it. Now at least there was a reason for it (too little to late for hurt feelings as a child) ~>Becky M. -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 I think has hit the nail on the head. People with CMT should learn when to stop and take life easier. I know it is difficult but if you can do it you do feel a lot better. Love Sue XXXX Re: new member MY CHILD WITH CMT IS DOING FINE. SHE IS 26 YRS. SHE NEVER HAD AS MUCH TROUBLE GROWING UP AS I DID. NEVER HAD THE SPRAINED ANKLES. ME, THAT'S ANOTHER STORY. I FELL OFF OF THE SCHOOL BUS SEVERAL TIMES, RIGHT ANKLE SPRAINED SO MANY TIMES I LOST COUNT. FELL AT SCHOOL, JUST WALKING FROM CLASS TO CLASS. I'VE HAD TRIPLE ARTHRODESIS ON RIGHT ANKLE IN 94. LAST DECEMBER HAD ANOTHER SURGERY TO REMOVE CALLOUS AND CORN CAUSED BY TOO MUCH PRESSURE. HANDS HURT A LOT. JUST PACE MYSELF, AM LEARNING WHEN TO QUIT INSTEAD OF JUST KEEP GOING LIKE I USED TO DO. ALSO HAVING A LOT OF MUSCLE SPASMS IN UPPER LEGS. KATIE -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 . You mentioning tennis made me realise something. When I did do physical education at school, I could hold a badminton racquet and play but a tennis racquet always felt heavy and to hit a ball with it nearly killed me. Now I know why. Love Sue XXXX Re: new member >OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC >ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. >MOST OF THE TIME I FELL DOWN THE STAIRS. > >I was the tallest in my class at the time, hum, coming to think of it maybe I was the tallest in school at that time! So I was tagged, The jolly green giant. Well, that makes one feel good about them selves right? NOT! Then to top it off, I was so clumsy, and sports were out, as I never could manage to keep from tripping over my own feet. And I loved to play tennis, but was very very bad at it! I too had those wonderful lets see the school from this angle? The floor? Rolling down the slope from the school entrance!!! Yikes! And I had to wear dress's or skirts back then eons ago. What fun! Gee am I glad those days are over, (school) LOL, ~>Becky M. -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2000 Report Share Posted July 16, 2000 . You mentioning tennis made me realise something. When I did do physical education at school, I could hold a badminton racquet and play but a tennis racquet always felt heavy and to hit a ball with it nearly killed me. Now I know why. Love Sue XXXX Re: new member >OH I BET I CAN BRING BACK MORE MEMORIES IF I TRIED. I ALWAYS MADE A DRAMATIC >ENTRY TO SOME OF MY CLASSES IN HIGH SCHOOL. WE HAD A BUILDING WITH 3 FLOORS. >MOST OF THE TIME I FELL DOWN THE STAIRS. > >I was the tallest in my class at the time, hum, coming to think of it maybe I was the tallest in school at that time! So I was tagged, The jolly green giant. Well, that makes one feel good about them selves right? NOT! Then to top it off, I was so clumsy, and sports were out, as I never could manage to keep from tripping over my own feet. And I loved to play tennis, but was very very bad at it! I too had those wonderful lets see the school from this angle? The floor? Rolling down the slope from the school entrance!!! Yikes! And I had to wear dress's or skirts back then eons ago. What fun! Gee am I glad those days are over, (school) LOL, ~>Becky M. -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi , welcome aboard the CMT train, I am new here also, I live in Coeur D'Alene ID and enjoy reading the mail here. Most of the info is very good, some is very funny and so on, hope you enjoy being with the rest of us. jr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi , welcome aboard the CMT train, I am new here also, I live in Coeur D'Alene ID and enjoy reading the mail here. Most of the info is very good, some is very funny and so on, hope you enjoy being with the rest of us. jr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 , I take 40-60 mg of oxycontin for my pain, I know sometimes I am too drugged to do anything, but it is better than the pain. I find the pain to sometimes leave me totally gone! Sometimes it is bad enough I can only cry, that is when I take that extra oxycontin and lay in my recliner and entertain my family. I can get very goofy when I take that 5th pill. Anyone else have a suggestion? -jr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 , I take 40-60 mg of oxycontin for my pain, I know sometimes I am too drugged to do anything, but it is better than the pain. I find the pain to sometimes leave me totally gone! Sometimes it is bad enough I can only cry, that is when I take that extra oxycontin and lay in my recliner and entertain my family. I can get very goofy when I take that 5th pill. Anyone else have a suggestion? -jr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Jr ... Read my post on pot and pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Jr ... Read my post on pot and pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 << I take 40-60 mg of oxycontin for my pain, >> Welcome. What type of pain do you have? Nerve? Structural? Other??? Do you have a name? How are you doing other than the pain? Good luck. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 << I take 40-60 mg of oxycontin for my pain, >> Welcome. What type of pain do you have? Nerve? Structural? Other??? Do you have a name? How are you doing other than the pain? Good luck. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi JR Hope you enjoy the group too. Learning a lot from everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi JR Hope you enjoy the group too. Learning a lot from everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi JR Hope you enjoy the group too. Learning a lot from everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi JR, my name is Jeanie and I'm your neighbor from Oregon. Have you ever tried a Therapeutic Massage Specialist? Not Reiki The reason I ask is because last summer my CMT in regards to pain was out of control. I was on Neurontin and Flexeril and Vicodin. At night I would take up to 5 500mg of Vicodin, 2 to start and then 2 hours later another 2 and if that didn't take care of it in half an hour I would take the 5th.... My pain was out of control. I would sit in bed crying and rocking myself. When I'm in pain I rock myself and make a sound like nananananananana over and over. It was the only way I could deal. Then a miracle happened. I won a raffle. The raffle was for a free massage session. I was going to give it to my dad who also has CMT but he refused it so I used it. Now I know that not every massage person is the same. But this is what happened with mine. That night I had NOOOOO PAIN. I decided to go back to him 1 week later and had no pain for 1 WHOLE WEEK. Again I waited a week and returned. This time I had no pain for 1 month, I was able to go off my Flexeril and Neurontin and I'm down to 1 or 2 Vicodin a night. I still have pain. But NOTHING like what I had before. Do you ever visit Portland, Oregon.... ?? If so, I know Dan would fit you in. He is affordable. He only charges $45.00 for a one hour session. This guy is not doing this for money but to help people. I hope you find relief soon..... Your new friend, Jeanie **************** In a message dated 7/18/00 9:53:57 AM Pacific Daylight Time, jross56922@... writes: << , I take 40-60 mg of oxycontin for my pain, I know sometimes I am too drugged to do anything, but it is better than the pain. I find the pain to sometimes leave me totally gone! Sometimes it is bad enough I can only cry, that is when I take that extra oxycontin and lay in my recliner and entertain my family. I can get very goofy when I take that 5th pill. Anyone else have a suggestion? -jr >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi, Jeannie ... I see you mentioned Portland ... just wanted you to know that I love that city. Do you ever visit 's book store? Now THAT place is a REAL addiction ..!!! ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2000 Report Share Posted July 18, 2000 Hi, Jeannie ... I see you mentioned Portland ... just wanted you to know that I love that city. Do you ever visit 's book store? Now THAT place is a REAL addiction ..!!! ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Joyce, Lamar here, If you have Type 1, even if you are a spontaneous mutation, you have a mutation. Each child you have has a 50% chance of having CMT. Whoever told you otherwise is badly wrong. Re: New member Welcome Joyce. My name is Martha I am 46 and I live in Colorado. I have CMT as well. However mine is a spontaious mutation. It means my family has no hystory. It just happened. I am so glad you could join us. Joyce jp20@...> wrote: Hi everyone, I just want to introduce myself. I am 36, live in Ireland and have CMT type1. My brother and sister also have CMT but there is no other family history. We were told that we could not pass it on to our children, however my 12 year old daughter is now showing mild signs! My own CMT caused some problems duing my teens ten did not progress until my late twenties when over about 5 years I progressed from being very active to being a wheelchair user. Joyce. --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2000 Report Share Posted July 20, 2000 Welcome Joyce. My name is Martha I am 46 and I live in Colorado. I have CMT as well. However mine is a spontaious mutation. It means my family has no hystory. It just happened. I am so glad you could join us. Joyce jp20@...> wrote: Hi everyone, I just want to introduce myself. I am 36, live in Ireland and have CMT type1. My brother and sister also have CMT but there is no other family history. We were told that we could not pass it on to our children, however my 12 year old daughter is now showing mild signs! My own CMT caused some problems duing my teens ten did not progress until my late twenties when over about 5 years I progressed from being very active to being a wheelchair user. Joyce. --------------------------------- --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 Welcome Joyce. I live in Shropshire (next to the W elsh border) in England and I have CMT2. We only discovered in January why I couldn't walk and then we looked around and discovered my father, my sister and my two eldest sons have it, but thank God not anywhere near as severe as I have it. There also seems to be problems 'further a field' in our family but we'll see. Have fun and you'll learn a lot from these guys - believe me. Sue New member Hi everyone, I just want to introduce myself. I am 36, live in Ireland and have CMT type1. My brother and sister also have CMT but there is no other family history. We were told that we could not pass it on to our children, however my 12 year old daughter is now showing mild signs! My own CMT caused some problems duing my teens ten did not progress until my late twenties when over about 5 years I progressed from being very active to being a wheelchair user. Joyce. -------------------------------------------------------------------------------- -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 HI Joyce, and welcome. I hope we'll hear from you sometimes. We learn a lot from one another. One biggie we learn is how different from each other we are, with regard to how CMT treats us, yet we have a lot in common as well. We were in Ireland in 1960 and my husband has been there recently, so I hear it is as green and beautiful as ever, and the people are still friendly to tourists. Regards, Kat in Seattle Washington, USA - the Evergreen State (if you don't count the eastern half which is mostly brown unless it's irrigated). So far in July we've had 3mm or .12 OF an inch of rain. So we are brown too. The usual in summer for us. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.