new to group

[Guest guest]

,

I would recommend Dr. Vishwas Talwalkar at the Shriner's in Lexington

if you do end up going there for a second opinion. He is not on Dr.

Ponseti's list, but he is completely dedicated to the method and was

trained in Iowa. Some of the other orthos at that Shriners do not

use the method, or are not as dedicated to it as Dr. Talwalkar.

There is also Dr. Dobbs at the St. Louis Shriners Hospital.

& (3-16-00)

> > >

> > > > Is Kai walking? My son has taken a couple steps but cannot

> walk,

> > > > that is why his doc said that if he is not walking by the

time

> > he is

> > > > 18 months then he was thinking about the surgery.

> > >

> > >

> > >

> > >

[Guest guest]

,

I would recommend Dr. Vishwas Talwalkar at the Shriner's in Lexington

if you do end up going there for a second opinion. He is not on Dr.

Ponseti's list, but he is completely dedicated to the method and was

trained in Iowa. Some of the other orthos at that Shriners do not

use the method, or are not as dedicated to it as Dr. Talwalkar.

There is also Dr. Dobbs at the St. Louis Shriners Hospital.

& (3-16-00)

> > >

> > > > Is Kai walking? My son has taken a couple steps but cannot

> walk,

> > > > that is why his doc said that if he is not walking by the

time

> > he is

> > > > 18 months then he was thinking about the surgery.

> > >

> > >

> > >

> > >

[Guest guest]

Okay, I posted before I read this one. Make sure you see Dr.

Talwalkar when you go to Lexington. You can email him before hand.

Vishwas R. Talwalkar, M.D.,

Attending Orthopaedic Surgeon

Washington University, School of Medicine, 1993; Vanderbilt

University medical Center, Internship, 1994; Vanderbilt University

Medical Center, Orthopaedic Surgery Residency, 1998; Texas ish

Rite Hospital, Pediatric Orthopaedic Fellowship, 1999. Board

Certification, American Board of Orthopaedic Surgery, 2001.

Ph.

Fax

E-mail: lexaos2@...

Good luck!

> > > >

> > > > > Is Kai walking? My son has taken a couple steps but cannot

> > walk,

> > > > > that is why his doc said that if he is not walking by the

> time

> > > he is

> > > > > 18 months then he was thinking about the surgery.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Okay, I posted before I read this one. Make sure you see Dr.

Talwalkar when you go to Lexington. You can email him before hand.

Vishwas R. Talwalkar, M.D.,

Attending Orthopaedic Surgeon

Washington University, School of Medicine, 1993; Vanderbilt

University medical Center, Internship, 1994; Vanderbilt University

Medical Center, Orthopaedic Surgery Residency, 1998; Texas ish

Rite Hospital, Pediatric Orthopaedic Fellowship, 1999. Board

Certification, American Board of Orthopaedic Surgery, 2001.

Ph.

Fax

E-mail: lexaos2@...

Good luck!

> > > >

> > > > > Is Kai walking? My son has taken a couple steps but cannot

> > walk,

> > > > > that is why his doc said that if he is not walking by the

> time

> > > he is

> > > > > 18 months then he was thinking about the surgery.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Okay, I posted before I read this one. Make sure you see Dr.

Talwalkar when you go to Lexington. You can email him before hand.

Vishwas R. Talwalkar, M.D.,

Attending Orthopaedic Surgeon

Washington University, School of Medicine, 1993; Vanderbilt

University medical Center, Internship, 1994; Vanderbilt University

Medical Center, Orthopaedic Surgery Residency, 1998; Texas ish

Rite Hospital, Pediatric Orthopaedic Fellowship, 1999. Board

Certification, American Board of Orthopaedic Surgery, 2001.

Ph.

Fax

E-mail: lexaos2@...

Good luck!

> > > >

> > > > > Is Kai walking? My son has taken a couple steps but cannot

> > walk,

> > > > > that is why his doc said that if he is not walking by the

> time

> > > he is

> > > > > 18 months then he was thinking about the surgery.

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks! will do that and I really appreciate the feedback

and Tyler

> > > > >

> > > > > > Is Kai walking? My son has taken a couple steps but

cannot

> > > walk,

> > > > > > that is why his doc said that if he is not walking by

the

> > time

> > > > he is

> > > > > > 18 months then he was thinking about the surgery.

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Thanks! will do that and I really appreciate the feedback

and Tyler

> > > > >

> > > > > > Is Kai walking? My son has taken a couple steps but

cannot

> > > walk,

> > > > > > that is why his doc said that if he is not walking by

the

> > time

> > > > he is

> > > > > > 18 months then he was thinking about the surgery.

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Thanks! will do that and I really appreciate the feedback

and Tyler

> > > > >

> > > > > > Is Kai walking? My son has taken a couple steps but

cannot

> > > walk,

> > > > > > that is why his doc said that if he is not walking by

the

> > time

> > > > he is

> > > > > > 18 months then he was thinking about the surgery.

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Hi Angel and ,

I just wanted to drop in here and tell you what I found out recently. At Rose's

last appointment with Dr. Mosca, he explained to me that we have two major

tendons on the tops of our foot and in a normal foot, they work together to

raise the foot. In about 30% of club foot children, one tendon is stronger than

the other and this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take the strong

tendon and cross it over to foot and attach it to the other side so the foot

lifts properly. Lucky for us Rose does not have this problem but I just thought

it was very good information.

Robin & Rose

3/12/03

right club foot

kitaki m_kitaki@...> wrote:

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

Hi Angel and ,

I just wanted to drop in here and tell you what I found out recently. At Rose's

last appointment with Dr. Mosca, he explained to me that we have two major

tendons on the tops of our foot and in a normal foot, they work together to

raise the foot. In about 30% of club foot children, one tendon is stronger than

the other and this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take the strong

tendon and cross it over to foot and attach it to the other side so the foot

lifts properly. Lucky for us Rose does not have this problem but I just thought

it was very good information.

Robin & Rose

3/12/03

right club foot

kitaki m_kitaki@...> wrote:

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

Hi Angel and ,

I just wanted to drop in here and tell you what I found out recently. At Rose's

last appointment with Dr. Mosca, he explained to me that we have two major

tendons on the tops of our foot and in a normal foot, they work together to

raise the foot. In about 30% of club foot children, one tendon is stronger than

the other and this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take the strong

tendon and cross it over to foot and attach it to the other side so the foot

lifts properly. Lucky for us Rose does not have this problem but I just thought

it was very good information.

Robin & Rose

3/12/03

right club foot

kitaki m_kitaki@...> wrote:

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

Hi Angel,

That Dr. Mosca is something isn't he? I am so impressed with his knowledge. I

know he hasn't been doing the Ponseti method but about 5 years, but what he

knows about club foot is astounding. That is great information about how to

stimulate the tendon to get it to stretch. And when he showed that her

little boy's foot was not relapsing, it is the femoral torsion that is causing

his unusual gate, I said a little prayer of thanks that we ended up in his

office. Just over a year ago, we walked into his office for what we thought was

a consultation for surgery and found out that Rose's foot could be corrected

without surgery. We so won the lottery that day! Our little girl is so busy

all the time and her foot looks so great. I have to really look to tell her

feet apart. Her club foot still has all that extra skin and of course she has

the little scar from the tenotony, but otherwise, her feet loot so great. It is

too early to tell if there will be much of a size

difference. I don't care from the standpoint of buying two pairs of shoes or

whatever, we do what we have to do for our kids. I just don't want her to get

made fun of when she gets to school. Although, my little red-headed girl is

pretty tough and she already holds her own with the older kids at daycare.

Also, Angel, I felt so bad for you when you posted about Kai's blister on his

foot. I truly hope it is a flaw in the shoe as they suspect. If his foot is

growing and the strap is rubbing, that may be all it is. Rose gets funny marks

on her feet from time to time, and every time I see a wierd red spot, my heart

stops. Then I have to check and see which foot it is on : ),

Take care,

Robin & Rose

3/11/03

Right club foot.

kitaki m_kitaki@...> wrote:

Dr Mosca and Dr Ponseti both told me the same thing. They both also said that

just because it is imballanced now (18 mo) doesnt mean it wont straighten out.

Dr M said to stimulate the outside of the foot/ankle by tickling it to try to

get him to stretch is foot in that direction. Both doc's said to use high-tops

for everyday shoes to help keep the ankle straight, thereby stretching the

inside tendon. Both also concurred that it would be some time yet before it was

known if he would need the ATTT.

Angel

> Hi Angel and ,

>

> I just wanted to drop in here and tell you what I found out

recently. At Rose's last appointment with Dr. Mosca, he explained

to me that we have two major tendons on the tops of our foot and in

a normal foot, they work together to raise the foot. In about 30%

of club foot children, one tendon is stronger than the other and

this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take

the strong tendon and cross it over to foot and attach it to the

other side so the foot lifts properly. Lucky for us Rose does not

have this problem but I just thought it was very good information.

>

> Robin & Rose

> 3/12/03

> right club foot

>

> kitaki wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Angel,

That Dr. Mosca is something isn't he? I am so impressed with his knowledge. I

know he hasn't been doing the Ponseti method but about 5 years, but what he

knows about club foot is astounding. That is great information about how to

stimulate the tendon to get it to stretch. And when he showed that her

little boy's foot was not relapsing, it is the femoral torsion that is causing

his unusual gate, I said a little prayer of thanks that we ended up in his

office. Just over a year ago, we walked into his office for what we thought was

a consultation for surgery and found out that Rose's foot could be corrected

without surgery. We so won the lottery that day! Our little girl is so busy

all the time and her foot looks so great. I have to really look to tell her

feet apart. Her club foot still has all that extra skin and of course she has

the little scar from the tenotony, but otherwise, her feet loot so great. It is

too early to tell if there will be much of a size

difference. I don't care from the standpoint of buying two pairs of shoes or

whatever, we do what we have to do for our kids. I just don't want her to get

made fun of when she gets to school. Although, my little red-headed girl is

pretty tough and she already holds her own with the older kids at daycare.

Also, Angel, I felt so bad for you when you posted about Kai's blister on his

foot. I truly hope it is a flaw in the shoe as they suspect. If his foot is

growing and the strap is rubbing, that may be all it is. Rose gets funny marks

on her feet from time to time, and every time I see a wierd red spot, my heart

stops. Then I have to check and see which foot it is on : ),

Take care,

Robin & Rose

3/11/03

Right club foot.

kitaki m_kitaki@...> wrote:

Dr Mosca and Dr Ponseti both told me the same thing. They both also said that

just because it is imballanced now (18 mo) doesnt mean it wont straighten out.

Dr M said to stimulate the outside of the foot/ankle by tickling it to try to

get him to stretch is foot in that direction. Both doc's said to use high-tops

for everyday shoes to help keep the ankle straight, thereby stretching the

inside tendon. Both also concurred that it would be some time yet before it was

known if he would need the ATTT.

Angel

> Hi Angel and ,

>

> I just wanted to drop in here and tell you what I found out

recently. At Rose's last appointment with Dr. Mosca, he explained

to me that we have two major tendons on the tops of our foot and in

a normal foot, they work together to raise the foot. In about 30%

of club foot children, one tendon is stronger than the other and

this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take

the strong tendon and cross it over to foot and attach it to the

other side so the foot lifts properly. Lucky for us Rose does not

have this problem but I just thought it was very good information.

>

> Robin & Rose

> 3/12/03

> right club foot

>

> kitaki wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Angel,

That Dr. Mosca is something isn't he? I am so impressed with his knowledge. I

know he hasn't been doing the Ponseti method but about 5 years, but what he

knows about club foot is astounding. That is great information about how to

stimulate the tendon to get it to stretch. And when he showed that her

little boy's foot was not relapsing, it is the femoral torsion that is causing

his unusual gate, I said a little prayer of thanks that we ended up in his

office. Just over a year ago, we walked into his office for what we thought was

a consultation for surgery and found out that Rose's foot could be corrected

without surgery. We so won the lottery that day! Our little girl is so busy

all the time and her foot looks so great. I have to really look to tell her

feet apart. Her club foot still has all that extra skin and of course she has

the little scar from the tenotony, but otherwise, her feet loot so great. It is

too early to tell if there will be much of a size

difference. I don't care from the standpoint of buying two pairs of shoes or

whatever, we do what we have to do for our kids. I just don't want her to get

made fun of when she gets to school. Although, my little red-headed girl is

pretty tough and she already holds her own with the older kids at daycare.

Also, Angel, I felt so bad for you when you posted about Kai's blister on his

foot. I truly hope it is a flaw in the shoe as they suspect. If his foot is

growing and the strap is rubbing, that may be all it is. Rose gets funny marks

on her feet from time to time, and every time I see a wierd red spot, my heart

stops. Then I have to check and see which foot it is on : ),

Take care,

Robin & Rose

3/11/03

Right club foot.

kitaki m_kitaki@...> wrote:

Dr Mosca and Dr Ponseti both told me the same thing. They both also said that

just because it is imballanced now (18 mo) doesnt mean it wont straighten out.

Dr M said to stimulate the outside of the foot/ankle by tickling it to try to

get him to stretch is foot in that direction. Both doc's said to use high-tops

for everyday shoes to help keep the ankle straight, thereby stretching the

inside tendon. Both also concurred that it would be some time yet before it was

known if he would need the ATTT.

Angel

> Hi Angel and ,

>

> I just wanted to drop in here and tell you what I found out

recently. At Rose's last appointment with Dr. Mosca, he explained

to me that we have two major tendons on the tops of our foot and in

a normal foot, they work together to raise the foot. In about 30%

of club foot children, one tendon is stronger than the other and

this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take

the strong tendon and cross it over to foot and attach it to the

other side so the foot lifts properly. Lucky for us Rose does not

have this problem but I just thought it was very good information.

>

> Robin & Rose

> 3/12/03

> right club foot

>

> kitaki wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Hello,

Our daughter Grace was born on July 21st 04 with one kidney and a

club foot...with all the attention in utero paid to the kidney

situation, her club foot was not diagnosed thus was quite a shock to

her dad and me.

I had never really heard anything about club foot before, I think we

were really lucky to have had our daughter at the Royal Columbian

Hospital in New Westminister BC as there is a Ponseti certified

Orthopist practising there - Dr. Pirani.

He was away temporarly at the time of her birth and as I didn't know

if it would be OK to wait a few days, we brought her to Children's

Hospital to get her first cast on. It was in retrospect an upsetting

experience - I cried the whole time.She was placed naked on a

hospital bed for the cast to be done so of course, screamed

throughout the whole thing and the cast was done without the

supervision of the attending Doctor. They used a thick batting under

the cast, not the cotton sleve used by Dr. Pirani, thus the first

cast was not accurate.

We are so glad that we decided to go and see Dr. Pirani, Grace is

casted while sitting on my knee, I have even nursed her while being

casted.

We have had a bit of a problem with the last cast (the 3 week cast).

She had been extra fussy and then a few days ago began to lift her

little leg and really cry. Her dad noticed that her toes were really

squished...we didn't want to remove the cast before tuesday afternoon

as we didn't want to impeed her progress. Yesterday (tuesday) morning

I finally decided that we needed to remove it as I could not get her

to stop crying. Her whole calf was purple and she had three creases,

the largest being on the top of her foot where it joins the leg, this

one was leaking fluid. We immediatly took her to her doctor who said

we could use polysporyn on her creases and to keep her leg moist with

lotion. He said that the creases would most likely not get infected

as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani that

afternoon, (he came in on his vacation to see Grace), he said that

she strained in her cast and had a bit of a growth spurt. We decided

to wait until next Tuesday to put her into the boots and bars as her

little leg needs time to heal. I hope we don't need to cast her

again!!! Dr. Pirani showed us an excersize (holding her knee North

and holding her foot East for 10 min.) that we will do twice a day

with her.

Before she had the 3 week cast put on, Dr. Pirani said that she would

probably not need to have her tendon cut as the casting was going so

well. We will find out next Tuesday if she needs to go into another

cast...has anyone else had a similar experience with the 3 week cast?

And if so, how long did the creases take to heal? I really don't want

the big crease on the top of her foot to heal improperly and tear

when she moves her foot, it looks so painful!

Any advise would be appreciated.

Thank-you

, Gilles and Grace

[Guest guest]

Hello,

Our daughter Grace was born on July 21st 04 with one kidney and a

club foot...with all the attention in utero paid to the kidney

situation, her club foot was not diagnosed thus was quite a shock to

her dad and me.

I had never really heard anything about club foot before, I think we

were really lucky to have had our daughter at the Royal Columbian

Hospital in New Westminister BC as there is a Ponseti certified

Orthopist practising there - Dr. Pirani.

He was away temporarly at the time of her birth and as I didn't know

if it would be OK to wait a few days, we brought her to Children's

Hospital to get her first cast on. It was in retrospect an upsetting

experience - I cried the whole time.She was placed naked on a

hospital bed for the cast to be done so of course, screamed

throughout the whole thing and the cast was done without the

supervision of the attending Doctor. They used a thick batting under

the cast, not the cotton sleve used by Dr. Pirani, thus the first

cast was not accurate.

We are so glad that we decided to go and see Dr. Pirani, Grace is

casted while sitting on my knee, I have even nursed her while being

casted.

We have had a bit of a problem with the last cast (the 3 week cast).

She had been extra fussy and then a few days ago began to lift her

little leg and really cry. Her dad noticed that her toes were really

squished...we didn't want to remove the cast before tuesday afternoon

as we didn't want to impeed her progress. Yesterday (tuesday) morning

I finally decided that we needed to remove it as I could not get her

to stop crying. Her whole calf was purple and she had three creases,

the largest being on the top of her foot where it joins the leg, this

one was leaking fluid. We immediatly took her to her doctor who said

we could use polysporyn on her creases and to keep her leg moist with

lotion. He said that the creases would most likely not get infected

as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani that

afternoon, (he came in on his vacation to see Grace), he said that

she strained in her cast and had a bit of a growth spurt. We decided

to wait until next Tuesday to put her into the boots and bars as her

little leg needs time to heal. I hope we don't need to cast her

again!!! Dr. Pirani showed us an excersize (holding her knee North

and holding her foot East for 10 min.) that we will do twice a day

with her.

Before she had the 3 week cast put on, Dr. Pirani said that she would

probably not need to have her tendon cut as the casting was going so

well. We will find out next Tuesday if she needs to go into another

cast...has anyone else had a similar experience with the 3 week cast?

And if so, how long did the creases take to heal? I really don't want

the big crease on the top of her foot to heal improperly and tear

when she moves her foot, it looks so painful!

Any advise would be appreciated.

Thank-you

, Gilles and Grace

[Guest guest]

Hi ,

Welcome to the board!

Oh your poor little angel Good thing your mommy radar was

working so well and you decided to take off that cast! My daughter,

, is currently in a 3 week cast that comes off next Monday.

Before she went into this one, she had " open " wounds behind her knee

that just made my heart ache to look at. I am hoping they are not

much worse after this cast. is at the end of her second

round of casting (we switched doctors in July and found out her foot

was not fully corrected so we went through casting a second time) so

this is the second time she has been in a multi-week cast. Her

first time was only a 2 week cast following her first tenotomy and

we didn't have any wound issues with that. The wounds behind her

knee showed up after her second cast of this series was removed.

There was not much I could do to heal them as she went from one cast

to the next each week.

I don't really have any advice unfortunately except that my best

friend who is a physical therapy assistant said to use Aquaphor on

's wounds if they are still there when her cast comes off.

That may be similar to the polysporin you mentioned.

Good luck!

BTW, has 4 congenital heart defects in addition to her

clubfoot. None of her issues were caught via ultrasound -- BIG

surprises at birth! Surprisingly, 's heart has not needed

any intervention at this point (except routine EKG's). How is

Grace's kidney condition?

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 more days!)

Owen and 3/20/99

-- In nosurgery4clubfoot , " mj_remington "

wrote:

> Hello,

>

> Our daughter Grace was born on July 21st 04 with one kidney and a

> club foot...with all the attention in utero paid to the kidney

> situation, her club foot was not diagnosed thus was quite a shock

to

> her dad and me.

>

> I had never really heard anything about club foot before, I think

we

> were really lucky to have had our daughter at the Royal Columbian

> Hospital in New Westminister BC as there is a Ponseti certified

> Orthopist practising there - Dr. Pirani.

>

> He was away temporarly at the time of her birth and as I didn't

know

> if it would be OK to wait a few days, we brought her to Children's

> Hospital to get her first cast on. It was in retrospect an

upsetting

> experience - I cried the whole time.She was placed naked on a

> hospital bed for the cast to be done so of course, screamed

> throughout the whole thing and the cast was done without the

> supervision of the attending Doctor. They used a thick batting

under

> the cast, not the cotton sleve used by Dr. Pirani, thus the first

> cast was not accurate.

>

> We are so glad that we decided to go and see Dr. Pirani, Grace is

> casted while sitting on my knee, I have even nursed her while

being

> casted.

>

> We have had a bit of a problem with the last cast (the 3 week

cast).

> She had been extra fussy and then a few days ago began to lift her

> little leg and really cry. Her dad noticed that her toes were

really

> squished...we didn't want to remove the cast before tuesday

afternoon

> as we didn't want to impeed her progress. Yesterday (tuesday)

morning

> I finally decided that we needed to remove it as I could not get

her

> to stop crying. Her whole calf was purple and she had three

creases,

> the largest being on the top of her foot where it joins the leg,

this

> one was leaking fluid. We immediatly took her to her doctor who

said

> we could use polysporyn on her creases and to keep her leg moist

with

> lotion. He said that the creases would most likely not get

infected

> as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani

that

> afternoon, (he came in on his vacation to see Grace), he said that

> she strained in her cast and had a bit of a growth spurt. We

decided

> to wait until next Tuesday to put her into the boots and bars as

her

> little leg needs time to heal. I hope we don't need to cast her

> again!!! Dr. Pirani showed us an excersize (holding her knee North

> and holding her foot East for 10 min.) that we will do twice a day

> with her.

>

> Before she had the 3 week cast put on, Dr. Pirani said that she

would

> probably not need to have her tendon cut as the casting was going

so

> well. We will find out next Tuesday if she needs to go into

another

> cast...has anyone else had a similar experience with the 3 week

cast?

> And if so, how long did the creases take to heal? I really don't

want

> the big crease on the top of her foot to heal improperly and tear

> when she moves her foot, it looks so painful!

>

> Any advise would be appreciated.

>

> Thank-you

>

> , Gilles and Grace

[Guest guest]

Hi ,

Welcome to the board!

Oh your poor little angel Good thing your mommy radar was

working so well and you decided to take off that cast! My daughter,

, is currently in a 3 week cast that comes off next Monday.

Before she went into this one, she had " open " wounds behind her knee

that just made my heart ache to look at. I am hoping they are not

much worse after this cast. is at the end of her second

round of casting (we switched doctors in July and found out her foot

was not fully corrected so we went through casting a second time) so

this is the second time she has been in a multi-week cast. Her

first time was only a 2 week cast following her first tenotomy and

we didn't have any wound issues with that. The wounds behind her

knee showed up after her second cast of this series was removed.

There was not much I could do to heal them as she went from one cast

to the next each week.

I don't really have any advice unfortunately except that my best

friend who is a physical therapy assistant said to use Aquaphor on

's wounds if they are still there when her cast comes off.

That may be similar to the polysporin you mentioned.

Good luck!

BTW, has 4 congenital heart defects in addition to her

clubfoot. None of her issues were caught via ultrasound -- BIG

surprises at birth! Surprisingly, 's heart has not needed

any intervention at this point (except routine EKG's). How is

Grace's kidney condition?

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 more days!)

Owen and 3/20/99

-- In nosurgery4clubfoot , " mj_remington "

wrote:

> Hello,

>

> Our daughter Grace was born on July 21st 04 with one kidney and a

> club foot...with all the attention in utero paid to the kidney

> situation, her club foot was not diagnosed thus was quite a shock

to

> her dad and me.

>

> I had never really heard anything about club foot before, I think

we

> were really lucky to have had our daughter at the Royal Columbian

> Hospital in New Westminister BC as there is a Ponseti certified

> Orthopist practising there - Dr. Pirani.

>

> He was away temporarly at the time of her birth and as I didn't

know

> if it would be OK to wait a few days, we brought her to Children's

> Hospital to get her first cast on. It was in retrospect an

upsetting

> experience - I cried the whole time.She was placed naked on a

> hospital bed for the cast to be done so of course, screamed

> throughout the whole thing and the cast was done without the

> supervision of the attending Doctor. They used a thick batting

under

> the cast, not the cotton sleve used by Dr. Pirani, thus the first

> cast was not accurate.

>

> We are so glad that we decided to go and see Dr. Pirani, Grace is

> casted while sitting on my knee, I have even nursed her while

being

> casted.

>

> We have had a bit of a problem with the last cast (the 3 week

cast).

> She had been extra fussy and then a few days ago began to lift her

> little leg and really cry. Her dad noticed that her toes were

really

> squished...we didn't want to remove the cast before tuesday

afternoon

> as we didn't want to impeed her progress. Yesterday (tuesday)

morning

> I finally decided that we needed to remove it as I could not get

her

> to stop crying. Her whole calf was purple and she had three

creases,

> the largest being on the top of her foot where it joins the leg,

this

> one was leaking fluid. We immediatly took her to her doctor who

said

> we could use polysporyn on her creases and to keep her leg moist

with

> lotion. He said that the creases would most likely not get

infected

> as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani

that

> afternoon, (he came in on his vacation to see Grace), he said that

> she strained in her cast and had a bit of a growth spurt. We

decided

> to wait until next Tuesday to put her into the boots and bars as

her

> little leg needs time to heal. I hope we don't need to cast her

> again!!! Dr. Pirani showed us an excersize (holding her knee North

> and holding her foot East for 10 min.) that we will do twice a day

> with her.

>

> Before she had the 3 week cast put on, Dr. Pirani said that she

would

> probably not need to have her tendon cut as the casting was going

so

> well. We will find out next Tuesday if she needs to go into

another

> cast...has anyone else had a similar experience with the 3 week

cast?

> And if so, how long did the creases take to heal? I really don't

want

> the big crease on the top of her foot to heal improperly and tear

> when she moves her foot, it looks so painful!

>

> Any advise would be appreciated.

>

> Thank-you

>

> , Gilles and Grace

[Guest guest]

You know..Those wounds look so painful!!!! Christian has them behind his

knee also and they don't seem to think too much of them but to me it looks

horrible. He also got himself one of those cuts from the saw. His little

leg looked so beat up. These kids go through so much.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Marilouise Tozier

Sent: Wednesday, September 08, 2004 9:02 PM

To: nosurgery4clubfoot

Subject: Re: new to group

Hi ,

Welcome to the board!

Oh your poor little angel Good thing your mommy radar was

working so well and you decided to take off that cast! My daughter,

, is currently in a 3 week cast that comes off next Monday.

Before she went into this one, she had " open " wounds behind her knee

that just made my heart ache to look at. I am hoping they are not

much worse after this cast. is at the end of her second

round of casting (we switched doctors in July and found out her foot

was not fully corrected so we went through casting a second time) so

this is the second time she has been in a multi-week cast. Her

first time was only a 2 week cast following her first tenotomy and

we didn't have any wound issues with that. The wounds behind her

knee showed up after her second cast of this series was removed.

There was not much I could do to heal them as she went from one cast

to the next each week.

I don't really have any advice unfortunately except that my best

friend who is a physical therapy assistant said to use Aquaphor on

's wounds if they are still there when her cast comes off.

That may be similar to the polysporin you mentioned.

Good luck!

BTW, has 4 congenital heart defects in addition to her

clubfoot. None of her issues were caught via ultrasound -- BIG

surprises at birth! Surprisingly, 's heart has not needed

any intervention at this point (except routine EKG's). How is

Grace's kidney condition?

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 more days!)

Owen and 3/20/99

-- In nosurgery4clubfoot , " mj_remington "

wrote:

> Hello,

>

> Our daughter Grace was born on July 21st 04 with one kidney and a

> club foot...with all the attention in utero paid to the kidney

> situation, her club foot was not diagnosed thus was quite a shock

to

> her dad and me.

>

> I had never really heard anything about club foot before, I think

we

> were really lucky to have had our daughter at the Royal Columbian

> Hospital in New Westminister BC as there is a Ponseti certified

> Orthopist practising there - Dr. Pirani.

>

> He was away temporarly at the time of her birth and as I didn't

know

> if it would be OK to wait a few days, we brought her to Children's

> Hospital to get her first cast on. It was in retrospect an

upsetting

> experience - I cried the whole time.She was placed naked on a

> hospital bed for the cast to be done so of course, screamed

> throughout the whole thing and the cast was done without the

> supervision of the attending Doctor. They used a thick batting

under

> the cast, not the cotton sleve used by Dr. Pirani, thus the first

> cast was not accurate.

>

> We are so glad that we decided to go and see Dr. Pirani, Grace is

> casted while sitting on my knee, I have even nursed her while

being

> casted.

>

> We have had a bit of a problem with the last cast (the 3 week

cast).

> She had been extra fussy and then a few days ago began to lift her

> little leg and really cry. Her dad noticed that her toes were

really

> squished...we didn't want to remove the cast before tuesday

afternoon

> as we didn't want to impeed her progress. Yesterday (tuesday)

morning

> I finally decided that we needed to remove it as I could not get

her

> to stop crying. Her whole calf was purple and she had three

creases,

> the largest being on the top of her foot where it joins the leg,

this

> one was leaking fluid. We immediatly took her to her doctor who

said

> we could use polysporyn on her creases and to keep her leg moist

with

> lotion. He said that the creases would most likely not get

infected

> as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani

that

> afternoon, (he came in on his vacation to see Grace), he said that

> she strained in her cast and had a bit of a growth spurt. We

decided

> to wait until next Tuesday to put her into the boots and bars as

her

> little leg needs time to heal. I hope we don't need to cast her

> again!!! Dr. Pirani showed us an excersize (holding her knee North

> and holding her foot East for 10 min.) that we will do twice a day

> with her.

>

> Before she had the 3 week cast put on, Dr. Pirani said that she

would

> probably not need to have her tendon cut as the casting was going

so

> well. We will find out next Tuesday if she needs to go into

another

> cast...has anyone else had a similar experience with the 3 week

cast?

> And if so, how long did the creases take to heal? I really don't

want

> the big crease on the top of her foot to heal improperly and tear

> when she moves her foot, it looks so painful!

>

> Any advise would be appreciated.

>

> Thank-you

>

> , Gilles and Grace

[Guest guest]

You know..Those wounds look so painful!!!! Christian has them behind his

knee also and they don't seem to think too much of them but to me it looks

horrible. He also got himself one of those cuts from the saw. His little

leg looked so beat up. These kids go through so much.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Marilouise Tozier

Sent: Wednesday, September 08, 2004 9:02 PM

To: nosurgery4clubfoot

Subject: Re: new to group

Hi ,

Welcome to the board!

Oh your poor little angel Good thing your mommy radar was

working so well and you decided to take off that cast! My daughter,

, is currently in a 3 week cast that comes off next Monday.

Before she went into this one, she had " open " wounds behind her knee

that just made my heart ache to look at. I am hoping they are not

much worse after this cast. is at the end of her second

round of casting (we switched doctors in July and found out her foot

was not fully corrected so we went through casting a second time) so

this is the second time she has been in a multi-week cast. Her

first time was only a 2 week cast following her first tenotomy and

we didn't have any wound issues with that. The wounds behind her

knee showed up after her second cast of this series was removed.

There was not much I could do to heal them as she went from one cast

to the next each week.

I don't really have any advice unfortunately except that my best

friend who is a physical therapy assistant said to use Aquaphor on

's wounds if they are still there when her cast comes off.

That may be similar to the polysporin you mentioned.

Good luck!

BTW, has 4 congenital heart defects in addition to her

clubfoot. None of her issues were caught via ultrasound -- BIG

surprises at birth! Surprisingly, 's heart has not needed

any intervention at this point (except routine EKG's). How is

Grace's kidney condition?

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 more days!)

Owen and 3/20/99

-- In nosurgery4clubfoot , " mj_remington "

wrote:

> Hello,

>

> Our daughter Grace was born on July 21st 04 with one kidney and a

> club foot...with all the attention in utero paid to the kidney

> situation, her club foot was not diagnosed thus was quite a shock

to

> her dad and me.

>

> I had never really heard anything about club foot before, I think

we

> were really lucky to have had our daughter at the Royal Columbian

> Hospital in New Westminister BC as there is a Ponseti certified

> Orthopist practising there - Dr. Pirani.

>

> He was away temporarly at the time of her birth and as I didn't

know

> if it would be OK to wait a few days, we brought her to Children's

> Hospital to get her first cast on. It was in retrospect an

upsetting

> experience - I cried the whole time.She was placed naked on a

> hospital bed for the cast to be done so of course, screamed

> throughout the whole thing and the cast was done without the

> supervision of the attending Doctor. They used a thick batting

under

> the cast, not the cotton sleve used by Dr. Pirani, thus the first

> cast was not accurate.

>

> We are so glad that we decided to go and see Dr. Pirani, Grace is

> casted while sitting on my knee, I have even nursed her while

being

> casted.

>

> We have had a bit of a problem with the last cast (the 3 week

cast).

> She had been extra fussy and then a few days ago began to lift her

> little leg and really cry. Her dad noticed that her toes were

really

> squished...we didn't want to remove the cast before tuesday

afternoon

> as we didn't want to impeed her progress. Yesterday (tuesday)

morning

> I finally decided that we needed to remove it as I could not get

her

> to stop crying. Her whole calf was purple and she had three

creases,

> the largest being on the top of her foot where it joins the leg,

this

> one was leaking fluid. We immediatly took her to her doctor who

said

> we could use polysporyn on her creases and to keep her leg moist

with

> lotion. He said that the creases would most likely not get

infected

> as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani

that

> afternoon, (he came in on his vacation to see Grace), he said that

> she strained in her cast and had a bit of a growth spurt. We

decided

> to wait until next Tuesday to put her into the boots and bars as

her

> little leg needs time to heal. I hope we don't need to cast her

> again!!! Dr. Pirani showed us an excersize (holding her knee North

> and holding her foot East for 10 min.) that we will do twice a day

> with her.

>

> Before she had the 3 week cast put on, Dr. Pirani said that she

would

> probably not need to have her tendon cut as the casting was going

so

> well. We will find out next Tuesday if she needs to go into

another

> cast...has anyone else had a similar experience with the 3 week

cast?

> And if so, how long did the creases take to heal? I really don't

want

> the big crease on the top of her foot to heal improperly and tear

> when she moves her foot, it looks so painful!

>

> Any advise would be appreciated.

>

> Thank-you

>

> , Gilles and Grace

[Guest guest]

Our Doctor - Dr. Pirani seemed to think that the casting was going so

well that we would put her in the 3 week cast and see how the foot

looked when it came out. He didn't think she needed the tenotomy but

reserved the right to do the procedure and said he would decide after

the 3 week cast came off.

I have heard many good things about him, he has done casts for over

1000 babies using the Ponseti method. The few people I have spoken

with that knew something about club feet in our area, BC Canada, all

recommended him. I hope she dosen't need another cast when we go in

again this Tuesday, I will let you know.

Thanks for the reply...

, Gilles & Grace (8/21/04)

> Interesting - and the poor baby being in pain! I thought the 3

week cast was only for tenotomy patients, so the heel could heal. I

havent' heard of a 3 week cast for any other purpose. Let us know

what happens.

> s.

>

> Re: new to group

>

>

>

> Hello,

>

> Our daughter Grace was born on July 21st 04 with one kidney and a

> club foot...with all the attention in utero paid to the kidney

> situation, her club foot was not diagnosed thus was quite a shock

to

> her dad and me.

>

> I had never really heard anything about club foot before, I think

we

> were really lucky to have had our daughter at the Royal Columbian

> Hospital in New Westminister BC as there is a Ponseti certified

> Orthopist practising there - Dr. Pirani.

>

> He was away temporarly at the time of her birth and as I didn't

know

> if it would be OK to wait a few days, we brought her to Children's

> Hospital to get her first cast on. It was in retrospect an

upsetting

> experience - I cried the whole time.She was placed naked on a

> hospital bed for the cast to be done so of course, screamed

> throughout the whole thing and the cast was done without the

> supervision of the attending Doctor. They used a thick batting

under

> the cast, not the cotton sleve used by Dr. Pirani, thus the first

> cast was not accurate.

>

> We are so glad that we decided to go and see Dr. Pirani, Grace is

> casted while sitting on my knee, I have even nursed her while being

> casted.

>

> We have had a bit of a problem with the last cast (the 3 week

cast).

> She had been extra fussy and then a few days ago began to lift her

> little leg and really cry. Her dad noticed that her toes were

really

> squished...we didn't want to remove the cast before tuesday

afternoon

> as we didn't want to impeed her progress. Yesterday (tuesday)

morning

> I finally decided that we needed to remove it as I could not get

her

> to stop crying. Her whole calf was purple and she had three

creases,

> the largest being on the top of her foot where it joins the leg,

this

> one was leaking fluid. We immediatly took her to her doctor who

said

> we could use polysporyn on her creases and to keep her leg moist

with

> lotion. He said that the creases would most likely not get infected

> as she is on a mild anitbiotic for her kidney. We saw Dr. Pirani

that

> afternoon, (he came in on his vacation to see Grace), he said that

> she strained in her cast and had a bit of a growth spurt. We

decided

> to wait until next Tuesday to put her into the boots and bars as

her

> little leg needs time to heal. I hope we don't need to cast her

> again!!! Dr. Pirani showed us an excersize (holding her knee North

> and holding her foot East for 10 min.) that we will do twice a day

> with her.

>

> Before she had the 3 week cast put on, Dr. Pirani said that she

would

> probably not need to have her tendon cut as the casting was going

so

> well. We will find out next Tuesday if she needs to go into another

> cast...has anyone else had a similar experience with the 3 week

cast?

> And if so, how long did the creases take to heal? I really don't

want

> the big crease on the top of her foot to heal improperly and tear

> when she moves her foot, it looks so painful!

>

> Any advise would be appreciated.

>

> Thank-you

>

> , Gilles and Grace

>

>

>

>

>

>

[Guest guest]

Thanks for the info, it's news to me.

s.

The 3w cast is for all CF babies. Regardless of tenotomy. It might be

reduced to 2w, depending on the Dr. (our doc said babies can't be in casts

that long, they grow too much... which we all know is incorrect) but it is

the cast that *over corrects* the foot to 70+ degrees abduction and thus

must be on longer than the first 3-7 corrective casts.

Dr. Ponseti emailed me and specifically stated that Darbi would need the 3w

cast regardless of tenotomy. He did not think she would need the tenotomy

and she never did have it.

Kori

At 09:18 PM 9/8/2004, you wrote:

>Interesting - and the poor baby being in pain! I thought the 3 week cast

>was only for tenotomy patients, so the heel could heal. I havent' heard

>of a 3 week cast for any other purpose. Let us know what happens.

[Guest guest]

Thanks for the info, it's news to me.

s.

The 3w cast is for all CF babies. Regardless of tenotomy. It might be

reduced to 2w, depending on the Dr. (our doc said babies can't be in casts

that long, they grow too much... which we all know is incorrect) but it is

the cast that *over corrects* the foot to 70+ degrees abduction and thus

must be on longer than the first 3-7 corrective casts.

Dr. Ponseti emailed me and specifically stated that Darbi would need the 3w

cast regardless of tenotomy. He did not think she would need the tenotomy

and she never did have it.

Kori

At 09:18 PM 9/8/2004, you wrote:

>Interesting - and the poor baby being in pain! I thought the 3 week cast

>was only for tenotomy patients, so the heel could heal. I havent' heard

>of a 3 week cast for any other purpose. Let us know what happens.

[Guest guest]

Thanks for the info, it's news to me.

s.

The 3w cast is for all CF babies. Regardless of tenotomy. It might be

reduced to 2w, depending on the Dr. (our doc said babies can't be in casts

that long, they grow too much... which we all know is incorrect) but it is

the cast that *over corrects* the foot to 70+ degrees abduction and thus

must be on longer than the first 3-7 corrective casts.

Dr. Ponseti emailed me and specifically stated that Darbi would need the 3w

cast regardless of tenotomy. He did not think she would need the tenotomy

and she never did have it.

Kori

At 09:18 PM 9/8/2004, you wrote:

>Interesting - and the poor baby being in pain! I thought the 3 week cast

>was only for tenotomy patients, so the heel could heal. I havent' heard

>of a 3 week cast for any other purpose. Let us know what happens.

[Guest guest]

That's very intresting. I didn't know that. Our first doc that did

the tenotomy still gave Ava cast changes weekly. She had 10 all

together. Then they put her in the DBB and her R foot is terrible but

we are seeing Dr. Ponseti on Monday. Can't wait!!! In the DBB she is

locked out to 60-60, should she be turned out further??

KK

Livi 01/03

Ava 05/04 BCF,DBB 2wks and worthless??

> >Interesting - and the poor baby being in pain! I thought the 3

week cast

> >was only for tenotomy patients, so the heel could heal. I havent'

heard

> >of a 3 week cast for any other purpose. Let us know what happens.