new to group

[Guest guest]

Welcome to the group Tim. This is a friendly and

helpful group. We sometimes vent here, but it is the

nature of the illness that makes us do that. Glad you

found us.

=====

**Liz Kelso**

" A nice pickle we have landed ourselves in, Mr. Frodo! " -- Samwise Gamgee.

__________________________________________________

[Guest guest]

Hi Tim, I'm dave, I have FM CFS and MVP, Dx'ed in 97 and went on disability in

march of 98, Still out. I'll be 47 in april, yes this is very hard, each day

brings something different, a good day here and there, but mostly just sitting

around or sleeping.

New to group

Hi all, I am new here, seems to be a very caring group. I am a 46 year old

male have had CFS for at least 9 years, I believe longer but you know how it is.

Was put on disability this past December (had to fight for it for 4 years).

Tried many meds but none seemed to do anything (except for one and it was

through a drug study and they will not give you any info until the study is

over.) I belong to a local support group but it is very hard to attend on a

regular basis and it kind of gets me a little depressed or it turns into a

whining session. I won't bore you with my problems but it is good see you (we)

are not alone. Thanks to the Internet we can have groups such as this, keep up

the good work.

Tim, good friends are forever, good friends are for keeps.

[Guest guest]

TIM ELDER wrote:

>

> Hi all, I am new here, seems to be a very caring group. I am a 46 year old

male have had CFS for at least 9 years, I believe longer but you know > how it

is.

Welcome Tim. Feel free to whine whenever you want, here. We don't

mind. Have you come up with any tips for getting more energy? My

fatigue is worse than my pain, although it's better since I quit work.

Darcy

[Guest guest]

TIM ELDER wrote:

>

> Hi all, I am new here, seems to be a very caring group. I am a 46 year old

male have had CFS for at least 9 years, I believe longer but you know > how it

is.

Welcome Tim. Feel free to whine whenever you want, here. We don't

mind. Have you come up with any tips for getting more energy? My

fatigue is worse than my pain, although it's better since I quit work.

Darcy

[Guest guest]

TIM ELDER wrote:

>

> Hi all, I am new here, seems to be a very caring group. I am a 46 year old

male have had CFS for at least 9 years, I believe longer but you know > how it

is.

Welcome Tim. Feel free to whine whenever you want, here. We don't

mind. Have you come up with any tips for getting more energy? My

fatigue is worse than my pain, although it's better since I quit work.

Darcy

[Guest guest]

Hi Dana,

Wonderful to have you here. Reading your story had an impact on me,

it sounds like my life a lot. I am 26, single, and trying to make it

on my own. I was misdiagnosed with Crohn's disease last year and put

on numerous worthless medications for a while, until they downgraded

it to IBS secondary to fibro recently. It's really hard when you want

to rest and have to keep running to the bathroom.

I had never suffered a serious headache in my life until this came

along. Now I have stress, pressure and sinus type headaches, also

ones triggered by numerous allergies. Do you take anything specific

to headaches? Face pain has also been a problem for me in the past

week.

I am also in the throes of PCOS. Just got diagnosed and am having

ultrasound after ultrasound. They say I can't have kids. I am also

contemplating surgery and wonder if you have any experience with that?

Welcome to the club Dana, if you need questions and advice, we're

here to help! As for sleep....I take the amitriptilyn but it doesn't

seem to help me much at all, so I'm gonna switch this week...

Shandi

> Hi everyone! I've just joined and would like to introduce myself.

> I'm a single 28 year old female from land. I was diagnosed

with

> fibro 2 years ago. It took the doctors a couple of years to come

to

> that conclusion. I've been in 4 car accidents and think this could

> be the cause, because of the muscle injuries sustained but I'm not

> sure. At times the pain is unbearable. Which I know everyone hear

> really understands. I've been going through a flare up of crohn's

> disease which seems to make the fibro worsen which of course

doubles

> the pain that I have. I've missed alot of work recently but

they've

> been really understanding and good to me, thank goodness! I've

been

> having alot of problems with sleeping and have a real hard time

> getting out of the bed in the morning, I can hardly sit up my back

> hurts me so bad, I have to kinda roll to a sitting position and sit

> there for a minute! I was thinking of asking my doctor for

> medication to help me sleep through the pain at night, what is a

good

> one? I also have chronic headaches and not always sinus ones.

Since

> I'm giving my story I just found out friday that I also have

> degenerative disc disease which would explain why my back hurts so

> severely at times too, as I said above I have crohn's, arthritis

and

> PCOS too. I have also suffered 2 bouts of costochondritis. I do

my

> best to keep a positive attitude but sometimes it's hard. Thank

you

> for listening, I know there are plenty out there who suffer alot

> worse than I do! Below is the questionaire I answered.

> Bless you all and be well!

>

> Age range: 28 years old

>

>

> Male/female: Female

>

>

> What are the symptoms? Back and neck pain into my shoulders

and

> legs; tiredness due to lack of sleep, anxiety attacks, chronic

> headaches, joint pain, etc…the list goes one!

>

>

> Has you illness been diagnosed? Yes

>

>

> How long did you suffer before you got help? A few years.

>

>

> Is there a time that you can remember when it started?

Started

> noticing around 1996.

>

>

> Some of us have found lack of exercise we are overweight. Have you

> found this to be a problem also? I was overweight for quite a few

> years but have recently lost 30 lbs.

>

>

> Are you on disability? No

>

>

> If you are any pointers for others trying to get on disability?

N/A

>

>

> What have you found that helps ease the pain, warm baths,

medications

> etc.? I have tried acupuncture which helped a little but didn't

> last long, pain medications, muscle relaxers and light massage but

> not much else.

>

>

> Do you have sleep problems? How do you deal with it? Yes. I'll

> take pain medicine to help me fall asleep but looking into

something

> to help me stay asleep through the night. Sometimes a body pillow

> will help me.

>

>

> Do you have family that understands your illness? They try to

> understand but they do get impatient with me because they don't

fully

> understand….because they can't see it.

>

>

> Some have found certain foods causes problems with CFS or Fibro,

have

> you? I haven't come across any foods for fibro but plenty with my

> crohn's and IBS.

>

>

> What type of Doctor have you found that has helped you the most

The

> pain management doctor I've just recently started seeing and my

> primary care doc.

>

> Looking forward to talking with everyone!

> Dana

[Guest guest]

Hi Dana,

Wonderful to have you here. Reading your story had an impact on me,

it sounds like my life a lot. I am 26, single, and trying to make it

on my own. I was misdiagnosed with Crohn's disease last year and put

on numerous worthless medications for a while, until they downgraded

it to IBS secondary to fibro recently. It's really hard when you want

to rest and have to keep running to the bathroom.

I had never suffered a serious headache in my life until this came

along. Now I have stress, pressure and sinus type headaches, also

ones triggered by numerous allergies. Do you take anything specific

to headaches? Face pain has also been a problem for me in the past

week.

I am also in the throes of PCOS. Just got diagnosed and am having

ultrasound after ultrasound. They say I can't have kids. I am also

contemplating surgery and wonder if you have any experience with that?

Welcome to the club Dana, if you need questions and advice, we're

here to help! As for sleep....I take the amitriptilyn but it doesn't

seem to help me much at all, so I'm gonna switch this week...

Shandi

> Hi everyone! I've just joined and would like to introduce myself.

> I'm a single 28 year old female from land. I was diagnosed

with

> fibro 2 years ago. It took the doctors a couple of years to come

to

> that conclusion. I've been in 4 car accidents and think this could

> be the cause, because of the muscle injuries sustained but I'm not

> sure. At times the pain is unbearable. Which I know everyone hear

> really understands. I've been going through a flare up of crohn's

> disease which seems to make the fibro worsen which of course

doubles

> the pain that I have. I've missed alot of work recently but

they've

> been really understanding and good to me, thank goodness! I've

been

> having alot of problems with sleeping and have a real hard time

> getting out of the bed in the morning, I can hardly sit up my back

> hurts me so bad, I have to kinda roll to a sitting position and sit

> there for a minute! I was thinking of asking my doctor for

> medication to help me sleep through the pain at night, what is a

good

> one? I also have chronic headaches and not always sinus ones.

Since

> I'm giving my story I just found out friday that I also have

> degenerative disc disease which would explain why my back hurts so

> severely at times too, as I said above I have crohn's, arthritis

and

> PCOS too. I have also suffered 2 bouts of costochondritis. I do

my

> best to keep a positive attitude but sometimes it's hard. Thank

you

> for listening, I know there are plenty out there who suffer alot

> worse than I do! Below is the questionaire I answered.

> Bless you all and be well!

>

> Age range: 28 years old

>

>

> Male/female: Female

>

>

> What are the symptoms? Back and neck pain into my shoulders

and

> legs; tiredness due to lack of sleep, anxiety attacks, chronic

> headaches, joint pain, etc…the list goes one!

>

>

> Has you illness been diagnosed? Yes

>

>

> How long did you suffer before you got help? A few years.

>

>

> Is there a time that you can remember when it started?

Started

> noticing around 1996.

>

>

> Some of us have found lack of exercise we are overweight. Have you

> found this to be a problem also? I was overweight for quite a few

> years but have recently lost 30 lbs.

>

>

> Are you on disability? No

>

>

> If you are any pointers for others trying to get on disability?

N/A

>

>

> What have you found that helps ease the pain, warm baths,

medications

> etc.? I have tried acupuncture which helped a little but didn't

> last long, pain medications, muscle relaxers and light massage but

> not much else.

>

>

> Do you have sleep problems? How do you deal with it? Yes. I'll

> take pain medicine to help me fall asleep but looking into

something

> to help me stay asleep through the night. Sometimes a body pillow

> will help me.

>

>

> Do you have family that understands your illness? They try to

> understand but they do get impatient with me because they don't

fully

> understand….because they can't see it.

>

>

> Some have found certain foods causes problems with CFS or Fibro,

have

> you? I haven't come across any foods for fibro but plenty with my

> crohn's and IBS.

>

>

> What type of Doctor have you found that has helped you the most

The

> pain management doctor I've just recently started seeing and my

> primary care doc.

>

> Looking forward to talking with everyone!

> Dana

[Guest guest]

Welcome Dana to the group. We are a good group. At least I think so.

Everyone is very helpful and friendly. It is a loving, caring and supportive

one. We will try to help you with any questions that you have. Someone is

sure to have the answer or an answer. :-)) of some sort.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

[Guest guest]

Welcome Dana to the group. We are a good group. At least I think so.

Everyone is very helpful and friendly. It is a loving, caring and supportive

one. We will try to help you with any questions that you have. Someone is

sure to have the answer or an answer. :-)) of some sort.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

[Guest guest]

Welcome Dana to the group. We are a good group. At least I think so.

Everyone is very helpful and friendly. It is a loving, caring and supportive

one. We will try to help you with any questions that you have. Someone is

sure to have the answer or an answer. :-)) of some sort.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

[Guest guest]

Hi there Niki,

I first wanted to say congratulations and welcome to the group!

Folic acid is very important, whether or not you have had WLS, for

proper fetal development. So yes, eat your greens. Some women

experience nausea, others don't. I had terrible nausea and vomiting

with my first two children, but only very minor nausea (no vomiting)

with this one in the beginning. But on the flip side, I didn't have

any heartburn with my girls, and this one I have it every night.

As far as being tired all of the time, that is common in any

pregnancy in the beginning. If the fatigue continues after 12

weeks, I would recommend having your doctor check your B-12 levels.

Baby takes a lot of nutrients from you and since we don't absorb B-

12 from food intake, your supply may be getting depleted. And when

your B-12 levels go down, so does your energy. Because of my B-12

levels going below normal (when they were well into the normal range

prior to becoming pregnant), I have to have weekly shots that my

hubby gives me to keep them in the normal range. Just a thought....

It is very important to keep your fluid intake up, but a good

portion of that should be water. If possible, try to get in at

least 2-3 liters a day. And avoid caffinated drinks. Not that

chicken broth is bad for you, but it is very high in sodium (salt),

so I probably would take in too much of that a day.

Good luck with baby, and again congratulations!

Becky Soodsma

Lap 03/04/02

EDD 07/27/03 with Lawrence

Mommy to Leanne 08/03/93 and Selena Marie 06/30/96

> Hi, My name is Niki, and I just joined the group. I had Lap RNY

8/26/02 and

> have lost about 180lbs. I am almost 7 weeks pregnant. I am due

February 8th

> I have my first OB visit on the 26th of this month. I also have

a 7 yr

> old son.

>

> I was told by a mid-wife friend of mine that referred me to this

group that

> I also needed to take extra folic acid to help the baby. I was

wondering if

> any other post GB women had gotten the same advice? I am also

taking my

> prenatal vitamins. Is it common, becuase of the stomach size, not

to have

> morning sickness? What about heartburn? I already am tired all

the time,

> but I don't know if that is due to me being nauseated everytime I

try to eat

> something, so I ended up not eating alot at any one sitting. I am

trying to

> having something small about every 2 hours though.

>

> Since I found out I was pregnant, about 3 weeks ago, I have quit

worrying

> about the amount of carbs that I am taking in, although still

trying to take

> in as much protein as possible. I feel like I am eating like an

elephant at

> times, but am still watching the scales going down. I have lost

about 7 lbs

> in about 2 weeks. Is that common? I have also switched from my

normal

> water (which I found out has aspartame in it), and am trying to do

things

> like chicken broth, OJ, and protein shakes.

>

> Also, any other advice that can be spared would be greatly

appreciated.

>

>

> Thank you in advance,

> Niki

> Jake 1/23/96

> Lap RNY 8/26/03

> Unknown baby 2/8/04

>

>

[Guest guest]

Hi Marcy,

My name is Marcy too! I got pregnant with my 7 month old son at about a

year and 9 months out from my WLS.

I gained 34 pounds total. Congrats on your pregnancy and welcome to the

group!

Marcy Wallis

lap rny 06/15/00

Mommy to 12/10/02

Mommy to Kaitlyn 05/01/94

Wife to

new to group

> Hello all,

>

> My name is Marcy and I am 1 year post op from RNY bypass. I am 8

> weeks pregnant. Still in shock about it, wasnt planning on getting

> pregnant, but was having problems with the pill. Anyways, just

> wondering how much weight should I expect to gain for a healthy

> baby? Thank you

>

> Marcy

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

Hi Marcy,

My name is Marcy too! I got pregnant with my 7 month old son at about a

year and 9 months out from my WLS.

I gained 34 pounds total. Congrats on your pregnancy and welcome to the

group!

Marcy Wallis

lap rny 06/15/00

Mommy to 12/10/02

Mommy to Kaitlyn 05/01/94

Wife to

new to group

> Hello all,

>

> My name is Marcy and I am 1 year post op from RNY bypass. I am 8

> weeks pregnant. Still in shock about it, wasnt planning on getting

> pregnant, but was having problems with the pill. Anyways, just

> wondering how much weight should I expect to gain for a healthy

> baby? Thank you

>

> Marcy

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

[Guest guest]

,

thanks for your response..glad to hear you had a healthy baby. puts my mind

at ease. thanks again

Marcy

[Guest guest]

,

thanks for your response..glad to hear you had a healthy baby. puts my mind

at ease. thanks again

Marcy

[Guest guest]

No problem. I know how you feel. Everything will go great!

[Guest guest]

Vicki:

I got pregnant about 10 days post-op and am due December 26. If you want to

email me privately and talk, please feel free to do so.

Haley

Post Op RNY/March 21, 2003

EDD December 26, 2003

[Guest guest]

Vicki:

I got pregnant about 10 days post-op and am due December 26. If you want to

email me privately and talk, please feel free to do so.

Haley

Post Op RNY/March 21, 2003

EDD December 26, 2003

[Guest guest]

Vicki:

I got pregnant about 10 days post-op and am due December 26. If you want to

email me privately and talk, please feel free to do so.

Haley

Post Op RNY/March 21, 2003

EDD December 26, 2003

[Guest guest]

Hello and Welcome!

I wish you the BEST on your journey to conception. I want to

recomend the book " Taking Charge of Your Fertility " by Toni

Weschler. It was my BIBLE during the last 2 attempts of trying to

conceive. It is a tremendous help and full of info about us as

women!

Hugs and I hope you get PG SOON!

Jackie in MI

Open RNY 2/8/02

369/180/182

5w 2d

1st OB appt Thursday!

[Guest guest]

Hello and Welcome!

I wish you the BEST on your journey to conception. I want to

recomend the book " Taking Charge of Your Fertility " by Toni

Weschler. It was my BIBLE during the last 2 attempts of trying to

conceive. It is a tremendous help and full of info about us as

women!

Hugs and I hope you get PG SOON!

Jackie in MI

Open RNY 2/8/02

369/180/182

5w 2d

1st OB appt Thursday!

[Guest guest]

Hello and Welcome!

I wish you the BEST on your journey to conception. I want to

recomend the book " Taking Charge of Your Fertility " by Toni

Weschler. It was my BIBLE during the last 2 attempts of trying to

conceive. It is a tremendous help and full of info about us as

women!

Hugs and I hope you get PG SOON!

Jackie in MI

Open RNY 2/8/02

369/180/182

5w 2d

1st OB appt Thursday!

[Guest guest]

Welcome, & !

I think Kori just re-posted her very *thorough* post about how to put

on the shoes- so hopefully that will help you. It seems to help if

you bend the baby's knee when you seat the foot into the shoe, then

hold the foot in place with your thumb as you snug up the strap &

laces. Keep us posted on your quest to get the sandals

covered by insurance!

Sorry to hear that you had issues with blisters also. I'm thinking

that there really needs to be a section on Dr. Ponseti's website to

educate doctors and orthotists (and parents too) about how to ensure

that the brace and shoes are fitted properly and how to troubleshoot

the issues.

I really believe that almost all blister/sore issues that are

discussed on this and other lists are happening to parents seeking

treatment outside of Iowa City- so we could benefit from more

guidance from the U of Iowa staff and the APO group (orthotists who

fit the U of Iowa patients) for the rest of the doctors and

orthotists who are now using the method. Especially since we know

that proper bracing and adherance to wearing the brace are essential

to prevent regression.

I hope that 's feet are healing up quickly!

Keep posting!

& (3-16-00)

left clubfoot, switched to POnseti method at 4 mo. old

> Hello everyone. First off, sorry if you read this in the other

group. : )

> My son was born on March 25, 2004 with bilateral

clubfeet. He

> only needed three castings to correct his feet, didn't need the

tenotomy,

> and has been in his DBB for about 7 weeks now. He actually was out

of them

> for about one week because he had developed a blister on one heel,

so we had

> them off until it healed well enough to put the shoes back on.

After a week

> and a half of them being back on, he has now developed a red mark

on his

> other heel, so the shoes will be off until that clears up and

causes him no

> pain, hopeully only a day or so. Thankfully, he didn't loose any

of his

> correction while his feet were out of the shoes, so hopefully he

won't loose

> any this time either. He was in the curved shoes up until today.

The

> doctor gave us a prescription today for the straight last shoes and

we were

> able to get them today. The doc said this should help prevent any

further

> blisters. Has anyone else noticed this to be true? His feet still

have

> good dorsiflexion (10-20 degrees that Dr. Ponsetti says they should

have)

> and the doc says they're still corrected the way they should be.

The doctor

> comes highly recommended and has been using the Ponsetti method for

years to

> correct clubfeet, so I do trust him. I think we might not be

getting his

> heel seated in there correctly. Does anyone have any advice on how

to

> better accomplish this? I've also heard about cutting holes in the

backs of

> the shoes, but I'm not sure how to go about doing that without

destroying

> the shoes or something. Are there instructions somewhere on how to

do that,

> maybe along with some pictures so we know it's being done correctly?

>

> Our doctor also recommened the shoes, so we're in the

process of

> trying to get our insurance company to cover at least some of the

cost for

> them. The doctor is writing a letter to the insurance company

stating that

> the shoes would be better for our son to have and then

will fax it

> to our rep. She said she'll then take the letter and find out what

the next

> step is for us.

>

>

[Guest guest]

At 11:43 AM 6/14/2004, you wrote:

>Hello everyone. First off, sorry if you read this in the other group. : )

>My son was born on March 25, 2004 with bilateral clubfeet.

Congrats on your sweet and welcome!

>He

>only needed three castings to correct his feet, didn't need the tenotomy,

>and has been in his DBB for about 7 weeks now. He actually was out of them

>for about one week because he had developed a blister on one heel, so we had

>them off until it healed well enough to put the shoes back on. After a week

>and a half of them being back on, he has now developed a red mark on his

>other heel, so the shoes will be off until that clears up and causes him no

>pain, hopeully only a day or so.

actually - red is ok. It's dark/black/purple and water filled friction

blisters that you really need to worry about. Red is often just

irritation, but watch it closely. Darbi has red marks on the tops of her

feet and has since she got the new style shoes back in July last year. No

sores there yet, just red.

> Thankfully, he didn't loose any of his

>correction while his feet were out of the shoes, so hopefully he won't loose

>any this time either. He was in the curved shoes up until today. The

>doctor gave us a prescription today for the straight last shoes and we were

>able to get them today. The doc said this should help prevent any further

>blisters. Has anyone else noticed this to be true?

I think it will help - but I would hazard a guess that there's more to him

getting sores than reverse last shoes.

What width is the bar set at? What degree outward rotation are the shoes

set at? Which bar do you have? Have you tried putting the shoes on by

themselves (without the bar)?

I would not necessarily keep him out of the shoes if it were me. I imagine

there's some reason he's getting sore areas and that will need to be

rectified because even after it heals, if you're not getting them on

correctly it'll just come back. I would have to say that right now is the

time to work on fit and making sure they're not hurting him. Did you catch

the tips post I sent on Saturday? If not let me know and I'll send you a

copy. We had a neverending sore and I learned a lot getting through that.

>His feet still have

>good dorsiflexion (10-20 degrees that Dr. Ponsetti says they should have)

>and the doc says they're still corrected the way they should be. The doctor

>comes highly recommended and has been using the Ponsetti method for years to

>correct clubfeet, so I do trust him. I think we might not be getting his

>heel seated in there correctly. Does anyone have any advice on how to

>better accomplish this?

Did you miss the post I sent on Saturday with tips? If you did let me know

and I'll fwd it to you. People seem to think it's got good info, worked

for us at least :~}

Can you take the shoes off the bar easy? If you can, try doing that when

you put them on. I think it helps immensely getting used to making sure

the shoes are on correctly.

> I've also heard about cutting holes in the backs of

>the shoes, but I'm not sure how to go about doing that without destroying

>the shoes or something. Are there instructions somewhere on how to do that,

>maybe along with some pictures so we know it's being done correctly?

There are some pics of Darb's holed shoes in the photos section on this

list IIRC - it's under Darbi. I also have copies if you can't find them -

they're on another puter so let me know and I'll send them on. I didn't

actually make the cut - the brace shop did it for us. Maybe yours can

too? You really can't ruin the shoes. They hold together remarkably well

after being cut open in the back. Ours never splayed open at all. Also,

they're kind of disposable anyway - you'll need a larger size in a few

months anyway so go ahead and cut it out. Just cut out the whole heel area

under the padding at the ankle. Use a sharp knife or an exacto knife.

Good luck and keep us informed. Let me know if you need pics of

holed shoes still. Keep up the good work mama and kiss on that babe of

yours lots :~}

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

duh! sorry I asked twice about the tips post. Can you tell I started this

at one time today and finished it much later? hehe

Kori

At 03:37 PM 6/14/2004, you wrote:

>At 11:43 AM 6/14/2004, you wrote:

> >Hello everyone. First off, sorry if you read this in the other group. : )

> >My son was born on March 25, 2004 with bilateral clubfeet.

>

>Congrats on your sweet and welcome!

>

> >He

> >only needed three castings to correct his feet, didn't need the tenotomy,

> >and has been in his DBB for about 7 weeks now. He actually was out of them

> >for about one week because he had developed a blister on one heel, so we had

> >them off until it healed well enough to put the shoes back on. After a week

> >and a half of them being back on, he has now developed a red mark on his

> >other heel, so the shoes will be off until that clears up and causes him no

> >pain, hopeully only a day or so.

>

>actually - red is ok. It's dark/black/purple and water filled friction

>blisters that you really need to worry about. Red is often just

>irritation, but watch it closely. Darbi has red marks on the tops of her

>feet and has since she got the new style shoes back in July last year. No

>sores there yet, just red.

>

> > Thankfully, he didn't loose any of his

> >correction while his feet were out of the shoes, so hopefully he won't loose

> >any this time either. He was in the curved shoes up until today. The

> >doctor gave us a prescription today for the straight last shoes and we were

> >able to get them today. The doc said this should help prevent any further

> >blisters. Has anyone else noticed this to be true?

>

>I think it will help - but I would hazard a guess that there's more to him

>getting sores than reverse last shoes.

>

>What width is the bar set at? What degree outward rotation are the shoes

>set at? Which bar do you have? Have you tried putting the shoes on by

>themselves (without the bar)?

>

>I would not necessarily keep him out of the shoes if it were me. I imagine

>there's some reason he's getting sore areas and that will need to be

>rectified because even after it heals, if you're not getting them on

>correctly it'll just come back. I would have to say that right now is the

>time to work on fit and making sure they're not hurting him. Did you catch

>the tips post I sent on Saturday? If not let me know and I'll send you a

>copy. We had a neverending sore and I learned a lot getting through that.

>

> >His feet still have

> >good dorsiflexion (10-20 degrees that Dr. Ponsetti says they should have)

> >and the doc says they're still corrected the way they should be. The doctor

> >comes highly recommended and has been using the Ponsetti method for years to

> >correct clubfeet, so I do trust him. I think we might not be getting his

> >heel seated in there correctly. Does anyone have any advice on how to

> >better accomplish this?

>

>Did you miss the post I sent on Saturday with tips? If you did let me know

>and I'll fwd it to you. People seem to think it's got good info, worked

>for us at least :~}

>

>Can you take the shoes off the bar easy? If you can, try doing that when

>you put them on. I think it helps immensely getting used to making sure

>the shoes are on correctly.

>

> > I've also heard about cutting holes in the backs of

> >the shoes, but I'm not sure how to go about doing that without destroying

> >the shoes or something. Are there instructions somewhere on how to do that,

> >maybe along with some pictures so we know it's being done correctly?

>

>There are some pics of Darb's holed shoes in the photos section on this

>list IIRC - it's under Darbi. I also have copies if you can't find them -

>they're on another puter so let me know and I'll send them on. I didn't

>actually make the cut - the brace shop did it for us. Maybe yours can

>too? You really can't ruin the shoes. They hold together remarkably well

>after being cut open in the back. Ours never splayed open at all. Also,

>they're kind of disposable anyway - you'll need a larger size in a few

>months anyway so go ahead and cut it out. Just cut out the whole heel area

>under the padding at the ankle. Use a sharp knife or an exacto knife.

>

>Good luck and keep us informed. Let me know if you need pics of

>holed shoes still. Keep up the good work mama and kiss on that babe of

>yours lots :~}

>

>

>

>Kori

>Mama of

>Kenton - 6/98

>Merek - 3/00

>Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

> (¨`·.·´¨)

> `·.¸(¨`·.·´¨)

> `·.¸.·´

>

>

>

>

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