new to group

[Guest guest]

Actually, ALOT of people have this problem. Some have had to go thru several

doctors before finding the right one for them. There are surgery doctors and

there are non-surgery doctors and if you have a surgery doc nothing will

convince them otherwise most of the time. It is very sad, because they refuse

to admit that there is another way.

You said that he has had 3 surgeries already (amazing at such a young age, IMO)

What were the surgeries/what was done?

Angel

new to group

Hi my name is and I have a son with Bi-lateral club feet.

His name is Tyler. He is now 18 months and we have been through 3

surgeries, countless castings, braces and dennis brown shoes with

bar. His doc says if he is not walking this month he is thinking of

doing another surgery. I looked on the internet and found a place

here that helps kids with special needs and found that they came to

the house and now has started physical therepy. In my searches on

the internet I also found Shriner's hospital. I have gotten him an

appt. hoping to get a second opinion. This last pair of shoes his

doc put him in knowing that his heel did not fit into the bottom of

the shoe. His doc even took xrays and seen that his heel was not

fitting into the shoe and he said to just let it go for a month and

hope that the shoes with the bar would help. I didn't think this

was right. Tyler has not wore the shoes in the past couple of weeks

cause they do not fit right. I am hoping that not too much damage

will have been done. He goes to the Shriner's hospital the 27th of

this month. I just don't want to go back to his regular orthopedic

doc cause I don't want him to do surgery on Tyler. He is an

pediatric orthopedic surgeon so I think that his first thought is

surgery and I am hoping maybe correction can be obtained in another

way. I was just wondering if anyone else has had probs with docs

like this? I also thought it would be good to know that we are not

alone in going through what we have and will go through.

thanks

[Guest guest]

Actually, ALOT of people have this problem. Some have had to go thru several

doctors before finding the right one for them. There are surgery doctors and

there are non-surgery doctors and if you have a surgery doc nothing will

convince them otherwise most of the time. It is very sad, because they refuse

to admit that there is another way.

You said that he has had 3 surgeries already (amazing at such a young age, IMO)

What were the surgeries/what was done?

Angel

new to group

Hi my name is and I have a son with Bi-lateral club feet.

His name is Tyler. He is now 18 months and we have been through 3

surgeries, countless castings, braces and dennis brown shoes with

bar. His doc says if he is not walking this month he is thinking of

doing another surgery. I looked on the internet and found a place

here that helps kids with special needs and found that they came to

the house and now has started physical therepy. In my searches on

the internet I also found Shriner's hospital. I have gotten him an

appt. hoping to get a second opinion. This last pair of shoes his

doc put him in knowing that his heel did not fit into the bottom of

the shoe. His doc even took xrays and seen that his heel was not

fitting into the shoe and he said to just let it go for a month and

hope that the shoes with the bar would help. I didn't think this

was right. Tyler has not wore the shoes in the past couple of weeks

cause they do not fit right. I am hoping that not too much damage

will have been done. He goes to the Shriner's hospital the 27th of

this month. I just don't want to go back to his regular orthopedic

doc cause I don't want him to do surgery on Tyler. He is an

pediatric orthopedic surgeon so I think that his first thought is

surgery and I am hoping maybe correction can be obtained in another

way. I was just wondering if anyone else has had probs with docs

like this? I also thought it would be good to know that we are not

alone in going through what we have and will go through.

thanks

[Guest guest]

Actually, ALOT of people have this problem. Some have had to go thru several

doctors before finding the right one for them. There are surgery doctors and

there are non-surgery doctors and if you have a surgery doc nothing will

convince them otherwise most of the time. It is very sad, because they refuse

to admit that there is another way.

You said that he has had 3 surgeries already (amazing at such a young age, IMO)

What were the surgeries/what was done?

Angel

new to group

Hi my name is and I have a son with Bi-lateral club feet.

His name is Tyler. He is now 18 months and we have been through 3

surgeries, countless castings, braces and dennis brown shoes with

bar. His doc says if he is not walking this month he is thinking of

doing another surgery. I looked on the internet and found a place

here that helps kids with special needs and found that they came to

the house and now has started physical therepy. In my searches on

the internet I also found Shriner's hospital. I have gotten him an

appt. hoping to get a second opinion. This last pair of shoes his

doc put him in knowing that his heel did not fit into the bottom of

the shoe. His doc even took xrays and seen that his heel was not

fitting into the shoe and he said to just let it go for a month and

hope that the shoes with the bar would help. I didn't think this

was right. Tyler has not wore the shoes in the past couple of weeks

cause they do not fit right. I am hoping that not too much damage

will have been done. He goes to the Shriner's hospital the 27th of

this month. I just don't want to go back to his regular orthopedic

doc cause I don't want him to do surgery on Tyler. He is an

pediatric orthopedic surgeon so I think that his first thought is

surgery and I am hoping maybe correction can be obtained in another

way. I was just wondering if anyone else has had probs with docs

like this? I also thought it would be good to know that we are not

alone in going through what we have and will go through.

thanks

[Guest guest]

The surgeries that Tyler has had are 2 tendon releases and a zig-zag

cut to his left tendon. He has beend through so much already that

is why I am now searching for and alternative way of dealing with

his feet. The next surgery that his doc was talking about doing is

taking a muscle from somewhere in the foot and stretching it across

the top of his foot. I am not sure what he called it but it wasn't

something that I was happy about him doing to my baby. He is having

alot of trouble walking. Not sure if that is typical with children

with club feet or not. With all of the surgeries and castings I

think that his muscles are just not strong enough yet.

> Actually, ALOT of people have this problem. Some have had to go

thru several doctors before finding the right one for them. There

are surgery doctors and there are non-surgery doctors and if you

have a surgery doc nothing will convince them otherwise most of the

time. It is very sad, because they refuse to admit that there is

another way.

>

> You said that he has had 3 surgeries already (amazing at such a

young age, IMO) What were the surgeries/what was done?

>

> Angel

>

> new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

The surgeries that Tyler has had are 2 tendon releases and a zig-zag

cut to his left tendon. He has beend through so much already that

is why I am now searching for and alternative way of dealing with

his feet. The next surgery that his doc was talking about doing is

taking a muscle from somewhere in the foot and stretching it across

the top of his foot. I am not sure what he called it but it wasn't

something that I was happy about him doing to my baby. He is having

alot of trouble walking. Not sure if that is typical with children

with club feet or not. With all of the surgeries and castings I

think that his muscles are just not strong enough yet.

> Actually, ALOT of people have this problem. Some have had to go

thru several doctors before finding the right one for them. There

are surgery doctors and there are non-surgery doctors and if you

have a surgery doc nothing will convince them otherwise most of the

time. It is very sad, because they refuse to admit that there is

another way.

>

> You said that he has had 3 surgeries already (amazing at such a

young age, IMO) What were the surgeries/what was done?

>

> Angel

>

> new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

,

The surgery you're talking about sounds like a tendon transfer. I did find

this mentioned on Dr. Ponseti's site, so it is sometimes a necessary

surgery. Here is the paragraph about it:

(Relapses are common in severe

clubfeet and are probably caused by the same pathology that initiated the

deformity, but they may easily be corrected by manipulation and two to three

plaster casts. When a second relapse occurs and the tibialis anterior muscle

has a strong supinatory action, the tendon must be transferred to the third

cuneiform. This transfer prevents further relapse and corrects the

anteroposterior talcocalcaneal angle, thereby greatly reducing the need for

tarsal release)

Our ortho mentioned the possibility of this surgery in the future for my

son, but not until he was between 2 and 4 years of age. The doctor needs to

see what his feet do when he walks, and if they tip up and continue to do

so, then he'll need the surgery to balance his muscles, which will stop the

tipping. Our ortho also said that this does correct itself too, which is

why they wait to see what happens rather than rushing into surgery. If

you're not sure about your doctor's decision and you're not happy with your

doctor, then you should definitely get a second opinion. You might even

want to email Dr. Ponseti and ask him about it to see what he thinks. Since

he is only 18 months old, I wouldn't rush into this surgery yet.

and

BCF 03/25/2004

DBB 23/7

new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club feet.

> > His name is Tyler. He is now 18 months and we have been through 3

> > surgeries, countless castings, braces and dennis brown shoes with

> > bar. His doc says if he is not walking this month he is thinking

> of

> > doing another surgery. I looked on the internet and found a place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much damage

> > will have been done. He goes to the Shriner's hospital the 27th of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

,

The surgery you're talking about sounds like a tendon transfer. I did find

this mentioned on Dr. Ponseti's site, so it is sometimes a necessary

surgery. Here is the paragraph about it:

(Relapses are common in severe

clubfeet and are probably caused by the same pathology that initiated the

deformity, but they may easily be corrected by manipulation and two to three

plaster casts. When a second relapse occurs and the tibialis anterior muscle

has a strong supinatory action, the tendon must be transferred to the third

cuneiform. This transfer prevents further relapse and corrects the

anteroposterior talcocalcaneal angle, thereby greatly reducing the need for

tarsal release)

Our ortho mentioned the possibility of this surgery in the future for my

son, but not until he was between 2 and 4 years of age. The doctor needs to

see what his feet do when he walks, and if they tip up and continue to do

so, then he'll need the surgery to balance his muscles, which will stop the

tipping. Our ortho also said that this does correct itself too, which is

why they wait to see what happens rather than rushing into surgery. If

you're not sure about your doctor's decision and you're not happy with your

doctor, then you should definitely get a second opinion. You might even

want to email Dr. Ponseti and ask him about it to see what he thinks. Since

he is only 18 months old, I wouldn't rush into this surgery yet.

and

BCF 03/25/2004

DBB 23/7

new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club feet.

> > His name is Tyler. He is now 18 months and we have been through 3

> > surgeries, countless castings, braces and dennis brown shoes with

> > bar. His doc says if he is not walking this month he is thinking

> of

> > doing another surgery. I looked on the internet and found a place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much damage

> > will have been done. He goes to the Shriner's hospital the 27th of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

,

The surgery you're talking about sounds like a tendon transfer. I did find

this mentioned on Dr. Ponseti's site, so it is sometimes a necessary

surgery. Here is the paragraph about it:

(Relapses are common in severe

clubfeet and are probably caused by the same pathology that initiated the

deformity, but they may easily be corrected by manipulation and two to three

plaster casts. When a second relapse occurs and the tibialis anterior muscle

has a strong supinatory action, the tendon must be transferred to the third

cuneiform. This transfer prevents further relapse and corrects the

anteroposterior talcocalcaneal angle, thereby greatly reducing the need for

tarsal release)

Our ortho mentioned the possibility of this surgery in the future for my

son, but not until he was between 2 and 4 years of age. The doctor needs to

see what his feet do when he walks, and if they tip up and continue to do

so, then he'll need the surgery to balance his muscles, which will stop the

tipping. Our ortho also said that this does correct itself too, which is

why they wait to see what happens rather than rushing into surgery. If

you're not sure about your doctor's decision and you're not happy with your

doctor, then you should definitely get a second opinion. You might even

want to email Dr. Ponseti and ask him about it to see what he thinks. Since

he is only 18 months old, I wouldn't rush into this surgery yet.

and

BCF 03/25/2004

DBB 23/7

new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club feet.

> > His name is Tyler. He is now 18 months and we have been through 3

> > surgeries, countless castings, braces and dennis brown shoes with

> > bar. His doc says if he is not walking this month he is thinking

> of

> > doing another surgery. I looked on the internet and found a place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much damage

> > will have been done. He goes to the Shriner's hospital the 27th of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

The tendon releases sound like the standard tenotomy (were they just for the

achilles tendon?) and the zig-zag I think is just a more in depth form of the

same thing. the surgery he is now talking about sounds like the ATTT (tendon

transfer) and in the Ponseti Method it is sometimes done, but not until around

age 3 or so, so it sounds like your doc is a little too eager to cut.

You can find a list of Ponseti approved physicians here:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html

You can also contact Dr Ponseti directly for some direction on where you can go

from here at ignacio-ponseti@...

I would personally run far and fast from that doctor. to my understanding there

is no reason to do a zig-zag tendon release on a toddler if casting and tenotomy

are done correctly.

You might consider sending photos of his feet to Dr Ponseti so that he can give

you an opinion about the correction of the foot.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

The tendon releases sound like the standard tenotomy (were they just for the

achilles tendon?) and the zig-zag I think is just a more in depth form of the

same thing. the surgery he is now talking about sounds like the ATTT (tendon

transfer) and in the Ponseti Method it is sometimes done, but not until around

age 3 or so, so it sounds like your doc is a little too eager to cut.

You can find a list of Ponseti approved physicians here:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html

You can also contact Dr Ponseti directly for some direction on where you can go

from here at ignacio-ponseti@...

I would personally run far and fast from that doctor. to my understanding there

is no reason to do a zig-zag tendon release on a toddler if casting and tenotomy

are done correctly.

You might consider sending photos of his feet to Dr Ponseti so that he can give

you an opinion about the correction of the foot.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

The tendon releases sound like the standard tenotomy (were they just for the

achilles tendon?) and the zig-zag I think is just a more in depth form of the

same thing. the surgery he is now talking about sounds like the ATTT (tendon

transfer) and in the Ponseti Method it is sometimes done, but not until around

age 3 or so, so it sounds like your doc is a little too eager to cut.

You can find a list of Ponseti approved physicians here:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html

You can also contact Dr Ponseti directly for some direction on where you can go

from here at ignacio-ponseti@...

I would personally run far and fast from that doctor. to my understanding there

is no reason to do a zig-zag tendon release on a toddler if casting and tenotomy

are done correctly.

You might consider sending photos of his feet to Dr Ponseti so that he can give

you an opinion about the correction of the foot.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need

the ATTT in the future, but they are talking a few years. He is also 18 months.

Even then, sometimes casting can manage/correct the sittuation without needing

to resort to the ATTT. Recently someone on list reported that they had thought

an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child

was 3, I think.

Angel

new to group

>

>

> Hi my name is and I have a son with Bi-lateral club feet.

> His name is Tyler. He is now 18 months and we have been through 3

> surgeries, countless castings, braces and dennis brown shoes with

> bar. His doc says if he is not walking this month he is thinking

of

> doing another surgery. I looked on the internet and found a place

> here that helps kids with special needs and found that they came

to

> the house and now has started physical therepy. In my searches on

> the internet I also found Shriner's hospital. I have gotten him

an

> appt. hoping to get a second opinion. This last pair of shoes his

> doc put him in knowing that his heel did not fit into the bottom

of

> the shoe. His doc even took xrays and seen that his heel was not

> fitting into the shoe and he said to just let it go for a month

and

> hope that the shoes with the bar would help. I didn't think this

> was right. Tyler has not wore the shoes in the past couple of

weeks

> cause they do not fit right. I am hoping that not too much damage

> will have been done. He goes to the Shriner's hospital the 27th of

> this month. I just don't want to go back to his regular

orthopedic

> doc cause I don't want him to do surgery on Tyler. He is an

> pediatric orthopedic surgeon so I think that his first thought is

> surgery and I am hoping maybe correction can be obtained in

another

> way. I was just wondering if anyone else has had probs with docs

> like this? I also thought it would be good to know that we are

not

> alone in going through what we have and will go through.

>

>

> thanks

>

>

>

>

>

>

[Guest guest]

Is Kai walking? My son has taken a couple steps but cannot walk,

that is why his doc said that if he is not walking by the time he is

18 months then he was thinking about the surgery.

-- In nosurgery4clubfoot , " kitaki "

wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Is Kai walking? My son has taken a couple steps but cannot walk,

that is why his doc said that if he is not walking by the time he is

18 months then he was thinking about the surgery.

-- In nosurgery4clubfoot , " kitaki "

wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Is Kai walking? My son has taken a couple steps but cannot walk,

that is why his doc said that if he is not walking by the time he is

18 months then he was thinking about the surgery.

-- In nosurgery4clubfoot , " kitaki "

wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >

[Guest guest]

Oh yes he is doing everything at a normal rate except walking that

is why I thought that it might be a delay brought on by the club

feet. He climbs, walks everywhere on his knees ( so much that they

are callussed, he feeds himself (won't let us do it lol), talks (

when he feels like it). Anyways like I said he is doing everything

on time but walking. His doc said that he should be walking by the

time he is 18 months and was talking about doing more castings or

surgery if he wasn't. That is the concern as well for him not

walking.

>

> > Is Kai walking? My son has taken a couple steps but cannot walk,

> > that is why his doc said that if he is not walking by the time

he is

> > 18 months then he was thinking about the surgery.

>

>

>

>

[Guest guest]

To your earlier question, yes my son is walking. I can't see how the ATTT could

effect walking one way or the other. ly, there are children in 3rd world

contries that learn to walk with a completely uncorrected clubfoot, why would a

clubfoot with a muscle imballance (which is what the tendon transfer treats)

make walking impossible?

Who is your son's doctor? Perhaps someone here has heard of him and could give

you some insight ...

Angel

Re: new to group

Oh yes he is doing everything at a normal rate except walking that

is why I thought that it might be a delay brought on by the club

feet. He climbs, walks everywhere on his knees ( so much that they

are callussed, he feeds himself (won't let us do it lol), talks (

when he feels like it). Anyways like I said he is doing everything

on time but walking. His doc said that he should be walking by the

time he is 18 months and was talking about doing more castings or

surgery if he wasn't. That is the concern as well for him not

walking.

>

> > Is Kai walking? My son has taken a couple steps but cannot walk,

> > that is why his doc said that if he is not walking by the time

he is

> > 18 months then he was thinking about the surgery.

>

>

>

>

[Guest guest]

To your earlier question, yes my son is walking. I can't see how the ATTT could

effect walking one way or the other. ly, there are children in 3rd world

contries that learn to walk with a completely uncorrected clubfoot, why would a

clubfoot with a muscle imballance (which is what the tendon transfer treats)

make walking impossible?

Who is your son's doctor? Perhaps someone here has heard of him and could give

you some insight ...

Angel

Re: new to group

Oh yes he is doing everything at a normal rate except walking that

is why I thought that it might be a delay brought on by the club

feet. He climbs, walks everywhere on his knees ( so much that they

are callussed, he feeds himself (won't let us do it lol), talks (

when he feels like it). Anyways like I said he is doing everything

on time but walking. His doc said that he should be walking by the

time he is 18 months and was talking about doing more castings or

surgery if he wasn't. That is the concern as well for him not

walking.

>

> > Is Kai walking? My son has taken a couple steps but cannot walk,

> > that is why his doc said that if he is not walking by the time

he is

> > 18 months then he was thinking about the surgery.

>

>

>

>

[Guest guest]

My son's doc is Dr. Jefferey Heavilon at the Central Indiana

Orthopedics in Muncie Indiana

-- In nosurgery4clubfoot , " kitaki "

wrote:

> To your earlier question, yes my son is walking. I can't see how

the ATTT could effect walking one way or the other. ly, there

are children in 3rd world contries that learn to walk with a

completely uncorrected clubfoot, why would a clubfoot with a muscle

imballance (which is what the tendon transfer treats) make walking

impossible?

>

> Who is your son's doctor? Perhaps someone here has heard of him

and could give you some insight ...

>

> Angel

> Re: new to group

>

>

> Oh yes he is doing everything at a normal rate except walking that

> is why I thought that it might be a delay brought on by the club

> feet. He climbs, walks everywhere on his knees ( so much that

they

> are callussed, he feeds himself (won't let us do it lol), talks (

> when he feels like it). Anyways like I said he is doing

everything

> on time but walking. His doc said that he should be walking by

the

> time he is 18 months and was talking about doing more castings or

> surgery if he wasn't. That is the concern as well for him not

> walking.

>

>

>

>

>

>

> >

> > > Is Kai walking? My son has taken a couple steps but cannot

walk,

> > > that is why his doc said that if he is not walking by the time

> he is

> > > 18 months then he was thinking about the surgery.

> >

> >

> >

> >

[Guest guest]

,

I'm going to jump in here since my son was a " late " walker. Jakob

didn't take off walking until 3 days before he turned 19 months old.

For a few weeks before that, he would walk between my husband and I

sitting on the floor. I think he was waiting for it to just click in

his brain that he could do it. I'll also add that now at 6 years old,

you'd never know he was delayed in any way.

I am curious to know whether Tyler has met his other milestones. When

did he roll over? sit up? crawl? Can he pull up to standing? Is he

cruising (holding on to furniture, your hands, or a push toy)?

littlebrat2002 wrote:

> Is Kai walking? My son has taken a couple steps but cannot walk,

> that is why his doc said that if he is not walking by the time he is

> 18 months then he was thinking about the surgery.

[Guest guest]

Also we have an appt. for the 27th of this month to go to the

Shriner's Hospital in Lexington, KY. so that I can get their opinion

on what would be the best treatment for Tyler. I tried asking his

doc questions but he really didn't answer them in a way that I could

understand or see. I have heard him say many times that I am not

sure what to do with Tyler he is a hard case and that he should have

been corrected by now and that he's just winging it on what to do

next. Needless to say this does not fill me with too much

confidence in a doc that says he don't know what to do with my son

whom he has been treating since birth. I contacted a physical

therapist on my own through a program they have here. She has

helped Tyler alot with his mobility and his range of motion in his

feet. I have expressed some of my concerns to her about Tylers

treatment and she said to get a second opinion. I am just really

confused on what to do from here and I am hoping that I will get

some answers when we get to the Shriner's Hospital.

> > >

> > > > Is Kai walking? My son has taken a couple steps but cannot

> walk,

> > > > that is why his doc said that if he is not walking by the

time

> > he is

> > > > 18 months then he was thinking about the surgery.

> > >

> > >

> > >

> > >

[Guest guest]

Also we have an appt. for the 27th of this month to go to the

Shriner's Hospital in Lexington, KY. so that I can get their opinion

on what would be the best treatment for Tyler. I tried asking his

doc questions but he really didn't answer them in a way that I could

understand or see. I have heard him say many times that I am not

sure what to do with Tyler he is a hard case and that he should have

been corrected by now and that he's just winging it on what to do

next. Needless to say this does not fill me with too much

confidence in a doc that says he don't know what to do with my son

whom he has been treating since birth. I contacted a physical

therapist on my own through a program they have here. She has

helped Tyler alot with his mobility and his range of motion in his

feet. I have expressed some of my concerns to her about Tylers

treatment and she said to get a second opinion. I am just really

confused on what to do from here and I am hoping that I will get

some answers when we get to the Shriner's Hospital.

> > >

> > > > Is Kai walking? My son has taken a couple steps but cannot

> walk,

> > > > that is why his doc said that if he is not walking by the

time

> > he is

> > > > 18 months then he was thinking about the surgery.

> > >

> > >

> > >

> > >

[Guest guest]

,

I would recommend Dr. Vishwas Talwalkar at the Shriner's in Lexington

if you do end up going there for a second opinion. He is not on Dr.

Ponseti's list, but he is completely dedicated to the method and was

trained in Iowa. Some of the other orthos at that Shriners do not

use the method, or are not as dedicated to it as Dr. Talwalkar.

There is also Dr. Dobbs at the St. Louis Shriners Hospital.

& (3-16-00)

> > >

> > > > Is Kai walking? My son has taken a couple steps but cannot

> walk,

> > > > that is why his doc said that if he is not walking by the

time

> > he is

> > > > 18 months then he was thinking about the surgery.

> > >

> > >

> > >

> > >