Re: Dillon

[Guest guest]

>

> I don't know. Hell, I don't even know if he's telling the truth most of

the

> time.

I hate to say this, but whenever relays information to me, I'm not

really sure either :-( He is so very different than . lies

poorly. It's more of a spontaneous response when it happens and it's easy

to get caught on and usually very minor. With , it's usually quite

elaborate and very believeable. I think with him, it's more like Jacquie's

description of .

Anyway, you're very welcome, I just wish I could be more helpful. I know

how much it sucks to be in limbo on a diagnosis. At least having a name for

it gives you something to learn about and a direction to go in..not to

mention something to shove at the school so they have to start being more

helpful!

Hang in there Sissi, there will be an end to all this uncertainty and

hopefully it will be soon!

Sue

[Guest guest]

> I loved this book I read: Finding Ben by Barbara La Salle. It was

> gut-wrenchingly sad, but also very uplifting when they finally

> realize what is up with Ben in adulthood.

Thanks, Leggs.

I probably need to read it. Maybe my brother (with an AS son) needs to read

it too. My brother isn't very understanding of his son's needs.

Sissi

[Guest guest]

> I loved this book I read: Finding Ben by Barbara La Salle. It was

> gut-wrenchingly sad, but also very uplifting when they finally

> realize what is up with Ben in adulthood.

Thanks, Leggs.

I probably need to read it. Maybe my brother (with an AS son) needs to read

it too. My brother isn't very understanding of his son's needs.

Sissi

[Guest guest]

> I loved this book I read: Finding Ben by Barbara La Salle. It was

> gut-wrenchingly sad, but also very uplifting when they finally

> realize what is up with Ben in adulthood.

Thanks, Leggs.

I probably need to read it. Maybe my brother (with an AS son) needs to read

it too. My brother isn't very understanding of his son's needs.

Sissi

[Guest guest]

> Sissi,

> can tell you he's a certain character and just because he says so,

he

> thinks you believe that's who he is. We are constantly quizzing the kids

on

> what is real and what is make believe or acting, etc.

>

> Sue

Oh boy, have we been through THAT with Dillon. I always said Dillon didn't

just have imaginary friends, he WAS his imaginary friends. Not so much now

as when he was younger.

Sissi

[Guest guest]

oh Sissi -

This is SO my son.

Penny :/

Re: Dillon

> If he just comes home and does not TELL you what the problem is, that's

> pretty different than actually telling a different story all together.

> Which one does he do?

He tells WHOPPERS! Remember the bus story?

Turns in old homework with the date changed.

Sometimes he just makes up crazy stories for no apparent reason.

And of course, NOTHING is ever HIS fault.

Sissi

[Guest guest]

> oh Sissi -

> This is SO my son.

>

> Penny :/

I know you were having a lot of problems with him a while back. How are

things now?

Sissi

[Guest guest]

> oh Sissi -

> This is SO my son.

>

> Penny :/

I know you were having a lot of problems with him a while back. How are

things now?

Sissi

[Guest guest]

> oh Sissi -

> This is SO my son.

>

> Penny :/

I know you were having a lot of problems with him a while back. How are

things now?

Sissi

[Guest guest]

> I finally talked to the psychologist Dillon has been seeing. This

is the one our ped referred us to originally, then said he probably

wouldn't be much help with Dillon since he usually deals with conduct

problems.

Glad you finally got to talk with him. Sounds like he was fairly

helpful afterall.

>

> He said Dillon's intelligence level is high, but he didn't give me

an IQ or anything like that.

It's always nice to hear someone else say they are intelligent. We

think they are, but it's always nice to hear it.

>

> Dillon is suffering from moderate depression. Partly from his

illness, partly from the adjustments he's had to make because of the

illness and problems with the other kids in the family.

Ahh, well this makes quite a bit of sense to me. It is all certainly

reasonable.

>

> He said depression affects kids differently. They don't usually

hole up in their rooms like adults. It's usually manifested in

conduct, agitation and apathy.

Good information to have. We have seen some of this with our kids

and the mood stuff. Ick.

>

> Dillon directs a lot of self-derogatory statements towards himself,

which he said is from depression. The mood fluctuations are also

caused by depression.

More ick.

>

> He recommends Zoloft, which can be prescribed by his ped, but that

he should be monitored very closely because of hypersensitivity to

medications (vasculitis).

I'm really hoping for you that the meds work well and that he has no

problems with them. I hate dealing with meds, but the option of no

meds is worse for us. I hope the meds are a good thing for Dillon

too.

>

> He has recommended a referral to neuropsychologist (Dr. ,

actually -- we already have an appointment with him on Wednesday). He

said their were some " mild neurological signs " and asked if I had

ever heard of Asperger's Syndrome.

Hmmm..Interesting.

> Dillon is currently suspended from riding the school bus for three

days (starting today). This is his second bus suspension.

>

> This morning I got a call from the vice principal informing me that

he begins in school suspension starting tomorrow for yet another

minor infraction in the lunch room.

>

> This was the third call from this guy within a period of seven days.

Uh Oh. This doesn't sound promising. Is the school being responsive

to Dillon's difficulties right now? Is there anything that could be

done to help him manage better at school and on the bus? I know,

more problems to figure out. More ick.

>

> I thought Aspies were notoriously honest? Which brings me back to a

question I had some time ago -- Pathological Demand Avoidance

Syndrome. Or could it be that Dillon just has plain old gifted child

syndrome?

Asperger's and Oppositional Defiance Disorder maybe? Gail is Aspie

and she normally does not lie, nor does , BUT they will both NOT

tell the whole story, or carefully omit details which can entirely

change the perspective - but they didn't lie.

>

> Just so you'll know that the news about Dillon isn't all bad -- On

Friday night, Dillon and a played for 300 boy scouts and their

parents at a huge boy scout meet:

> http://www.geocities.com/flaremusic/camposborne.htm

Well WTG!! Yeah Dillon & a.

>

> Also, his renal labs have remained normal for a full year (normal

for Dillon anyway +1 proteinuria/+3 hematuria). NS (nephrotic

syndrome) is officially in remission.

>

Now this is VERY good news! Most excellent and I am sure cause for

celebration.

[Guest guest]

> I think I just tended to take whatever anyone was talking about one

step

> further. does that, now, too. Like if some kid (Ben) went to

Disney

> world, will say he'd been there too, AND met Walt Disney and

had free

> whatever the whole time. And I think that at that moment he truly

believes

> it's true, simply because he's thought of it.

This describes Gail and to a perfect absolute T. That is

the most perfect description I have ever heard of this. Absolutely

yes! So...does it stop? When will they figure out this isn't really

real?

[Guest guest]

I'm terribly behind today so if someone's already provided a link

just ignore this but just in case, Does anyone have a link that

describes this better? and both seem to have problems

separating fantasy from reality. tells a lot of stories that he

absolutely believes happened even though they're so outrageous

there's no way.

Tina

> > and they seem to believe it--mainly because they

> > can't separate reality from fantasy?

>

>

> Classic symptom of PDAS. Also -- Boone can't distinguish reality

from fiction -- violent cartoons, for instance.

>

> Sissi

[Guest guest]

> I'm hoping this is what I'm doing -- and hoping I'm not causing more

> problems by getting an evaluation.

>

> I'm just not sure if I'm doing the right thing or not.

Sissi,

I guarantee you are doing the right thing! The worse that could come of

this is them saying there's nothing going on, which you know isn't true!

The best that can happen is you get a name so you know what direction to go

to help him. I don't see any way evaluating him can cause any problems.

Sue

[Guest guest]

> Sissi,

> I guarantee you are doing the right thing! The worse that could come of

> this is them saying there's nothing going on, which you know isn't true!

> The best that can happen is you get a name so you know what direction to

go

> to help him. I don't see any way evaluating him can cause any problems.

> Sue

Thanks, Sue.

It's just so frustrating sometimes.

Sissi

[Guest guest]

> Sissi,

> I guarantee you are doing the right thing! The worse that could come of

> this is them saying there's nothing going on, which you know isn't true!

> The best that can happen is you get a name so you know what direction to

go

> to help him. I don't see any way evaluating him can cause any problems.

> Sue

Thanks, Sue.

It's just so frustrating sometimes.

Sissi

[Guest guest]

> > I guarantee you are doing the right thing! The worse that could

come of

> > this is them saying there's nothing going on, which you know

isn't true!

> > The best that can happen is you get a name so you know what

direction to

> go

> > to help him. I don't see any way evaluating him can cause any

problems.

> > Sue

>

>

> Thanks, Sue.

>

> It's just so frustrating sometimes.

>

I agree with Sue. It is frustrating. Very much so, but more

information can only help. It's not what you call it so much as what

you do with it. Once you figure out what you are dealing with than

you get on with the doing something with it. (hugs)

[Guest guest]

> > I guarantee you are doing the right thing! The worse that could

come of

> > this is them saying there's nothing going on, which you know

isn't true!

> > The best that can happen is you get a name so you know what

direction to

> go

> > to help him. I don't see any way evaluating him can cause any

problems.

> > Sue

>

>

> Thanks, Sue.

>

> It's just so frustrating sometimes.

>

I agree with Sue. It is frustrating. Very much so, but more

information can only help. It's not what you call it so much as what

you do with it. Once you figure out what you are dealing with than

you get on with the doing something with it. (hugs)

[Guest guest]

> > I guarantee you are doing the right thing! The worse that could

come of

> > this is them saying there's nothing going on, which you know

isn't true!

> > The best that can happen is you get a name so you know what

direction to

> go

> > to help him. I don't see any way evaluating him can cause any

problems.

> > Sue

>

>

> Thanks, Sue.

>

> It's just so frustrating sometimes.

>

I agree with Sue. It is frustrating. Very much so, but more

information can only help. It's not what you call it so much as what

you do with it. Once you figure out what you are dealing with than

you get on with the doing something with it. (hugs)

[Guest guest]

> > Sissi,

> > I guarantee you are doing the right thing! The worse that could come of

> > this is them saying there's nothing going on, which you know isn't true!

> > The best that can happen is you get a name so you know what direction to

> go

> > to help him. I don't see any way evaluating him can cause any problems.

> > Sue

>

>

> Thanks, Sue.

>

> It's just so frustrating sometimes.

Believe me, I've been there. We didn't have anything life threatening to

deal with, but I know the feeling of knowing there is something going on

with your child and others not getting it or helping him.

Hugs,

Sue