Re: (unknown)

[Guest guest]

I'm so sorry about your baby, I will say a prayer for all of you.

S.

(unknown)

>

>

>

> Hello,

>

> I got to come home and rest for awhile. , is back in the hospital.

He

> is now 4 months and he is up to 8lbs and 14ozs. I have worried myself

sick

> about that baby. He just coughs until he turns blue. They have been

> sucking alot of mucus out of him. He goes threw his surgery next week.

> They are going to put a feeding tube in his stomach and look at his lungs

> they think that they are scared. I have cried so much for the past two

> days. I am scared. I hope someone can relate to this message.

> Thanks,

> S Micheal 16months w/cf 4 months w/cf

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

We are all together for all the s and other kids on this list! 100%

Love,

n Rojas

[Guest guest]

(((HUGS))) . Sending you prayers for , you, and your brother.

>

> I got to come home for just a few minutes today. , looks bad he has

> broke out in a rash all over his body. His little hand has blisters all

> over it. It looks bad. They had to put iv's in his head now. I also got a

> phone call from my brother this moring who is in Japan, he is in the navy.

> He called to tell me good-bye. He does not know where he is going just yet.

> So, I cried myself back to sleep and slept to 0ne o clock. Before he hung

> the phone up he said this could be the last time I can ever tell you that I

> love you so please rember that. My heart is broke. He has two small childern

> that loves him.

>

> I want to think everyone for there prayers.

>

> Lots of Love,

> S Micheal 16 months w/cf and 4 Months w/cf

[Guest guest]

I hold all your precious family in my prayers....God Bless him. All those

who are protecting us all.. I do hope your precious wee one gets better too.

LOVE & HUGS, grandmomBEV

(unknown)

I got to come home for just a few minutes today. , looks bad he has

broke out in a rash all over his body. His little hand has blisters all

over it. It looks bad. They had to put iv's in his head now. I also got a

phone call from my brother this moring who is in Japan, he is in the navy.

He called to tell me good-bye. He does not know where he is going just yet.

So, I cried myself back to sleep and slept to 0ne o clock. Before he hung

the phone up he said this could be the last time I can ever tell you that I

love you so please rember that. My heart is broke. He has two small childern

that loves him.

I want to think everyone for there prayers.

Lots of Love,

S Micheal 16 months w/cf and 4 Months w/cf

_________________________________________________________________

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-------------------------------------------

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IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

, My heart aches for you, and your baby. I wish there was something

I could do to make it better. It sounds like your son is having an allergic

reaction to something, probably the antibiotic their giving him, did they

say they thought it was due to an allergy?, if so they can give him

something to make him feel better, it looks awful, but will start to

subside. I will continue to pray for him, and for your brother. S.

(unknown)

>

>

>

> I got to come home for just a few minutes today. , looks bad he

has

> broke out in a rash all over his body. His little hand has blisters all

> over it. It looks bad. They had to put iv's in his head now. I also got

a

> phone call from my brother this moring who is in Japan, he is in the navy.

> He called to tell me good-bye. He does not know where he is going just

yet.

> So, I cried myself back to sleep and slept to 0ne o clock. Before he

hung

> the phone up he said this could be the last time I can ever tell you that

I

> love you so please rember that. My heart is broke. He has two small

childern

> that loves him.

>

> I want to think everyone for there prayers.

>

> Lots of Love,

> S Micheal 16 months w/cf and 4 Months w/cf

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

FANTASTIC.!!!!! I am so very happy for you about this I hold you in all my

thoughts....Love & hugs,

GrandmomBEV

(unknown)

Well, we went to clinic today for and everything is " perfect. "

His

weight and height are both up. His lungs sound fine he isn't sick. He is

in

other words healthy.

:):)

_________________________________________________________________

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PLEASE do not post religious emails to the list.

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IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

,

I can only imagine how hard more than one cfers is. At the moment Eilish is

in hsp. and the lady nextdoor is in with her daughter with cf. Her

daughter is 5 and she also has a 3 wcf and a 8mth wcf . Luckily this is the

1st admission but it must be alot of work with 2or3.

(unknown)

>

>

> Hello gang,

>

>

> I just wanted to give you a update on .After 3 weeks in the

hospital

> he is doing so much better. They had to put him in the I.C.U for one

night

> after they put his feeding tube in. His nurse OD him. I was at home that

> night when it happened but my mom was there. I live a hour away from the

> hospital that night I think I made it in 35 min.

>

> seems to be happier but he also seems to cry more with his stomach

> hurting him. They stopped the night feedings to see if that will help

him.

> We are up every 2 hours feeding. Wehave him to 10lbs now. He will be 5

> months on the 30th. My mom stayed for a few days with him at the hospital

> needles to say she held him all the time. Now that is what he wants me to

> do. Sometimes it is hard when you have him and a 17 month old w/cf. But I

> enjoy it more and more everyday.

>

> I guess I will go for now.

>

> , mom of & micheal w/cf 7 Dillon wo/cf

>

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

,

Is that the lady who lives on the gulf somewhere? I was speaking to her a while

ago - apparently they are the only ones in the state with 3kids wcf. They have

to fly over for clinic visits every three months. Which one is in hospital?

Kristy

[Guest guest]

Gosh, I am so sorry to hear he is still hurting with the tummy. Have they

tried the wee size PANCRECARB enzymes. They generally are easier on the

tummy & still help make the food more valuable to patient. It might make all

the difference in the world pain wise. Ask the docs. maybe they just haven't

thought into to that area , as he hadn't been doing so well before. It sure

would be a n easy fix.......

I sure am holding you in my thoughts & best wishes as you all continue to

improve. Please don't speed anymore...:):)HE NEEDS you & accidents will

happen.

That would be terrible--------although,.. I would have been doing that too

:):)

guess that is only natural. You sound like a wonderful mommy............

LOVE & HUGS, grandmomBEV

(unknown)

Goodness, how did they OD him? that sounds terrible.

anyway, here is wishing a speedy recovery. Hang in there.

Jen, mommy of7, 3 with CF

>

>

> Hello gang,

>

>

> I just wanted to give you a update on .After 3 weeks in

the hospital

> he is doing so much better. They had to put him in the I.C.U for

one night

> after they put his feeding tube in. His nurse OD him. I was at

home that

> night when it happened but my mom was there. I live a hour

away from the

> hospital that night I think I made it in 35 min.

>

> seems to be happier but he also seems to cry more

with his stomach

> hurting him. They stopped the night feedings to see if that will

help him.

> We are up every 2 hours feeding. Wehave him to 10lbs now.

He will be 5

> months on the 30th. My mom stayed for a few days with him at

the hospital

> needles to say she held him all the time. Now that is what he

wants me to

> do. Sometimes it is hard when you have him and a 17 month

old w/cf. But I

> enjoy it more and more everyday.

>

> I guess I will go for now.

>

> , mom of & micheal w/cf 7 Dillon wo/cf

>

>

>

__________________________________________________

_______________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

WOW you really have your hands full it makes me feel like I don't

really have thing so bad after all. Deb A

[Guest guest]

Kristy,

Her name is Jodie and she has a 6 yr old daughter Jemma who is in at the

moment and Eilish loves her, they are both category 4. She has a 3 yr old

and a 8mth old, both boys. I think she lives in Cleve and flies over.

Although she said they are building a house at Mt Compass to be nearer the

hsp.

Re: (unknown)

> ,

> Is that the lady who lives on the gulf somewhere? I was speaking to her a

while ago - apparently they are the only ones in the state with 3kids wcf.

They have to fly over for clinic visits every three months. Which one is in

hospital?

> Kristy

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Hi ,

just wondering what the catergory thing is?? I guess it is some kind

of rating system the hospital uses?

Kirsty

-- In cfparents@y..., Baxter wrote:

> Kristy,

>

> Her name is Jodie and she has a 6 yr old daughter Jemma who is in

at the

> moment and Eilish loves her, they are both category 4. She has a 3

yr old

> and a 8mth old, both boys. I think she lives in Cleve and flies

over.

> Although she said they are building a house at Mt Compass to be

nearer the

> hsp.

>

>

>

> Re: (unknown)

>

>

> > ,

> > Is that the lady who lives on the gulf somewhere? I was speaking

to her a

> while ago - apparently they are the only ones in the state with

3kids wcf.

> They have to fly over for clinic visits every three months. Which

one is in

> hospital?

> > Kristy

> >

> >

> > PLEASE do not post religious emails to the list.

> >

> >

> > -------------------------------------------

> >

> >

> > The opinions and information exchanged on this list should

> > IN NO WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > --------------------------------------------------

> >

> >

> >

[Guest guest]

Hoping recovers fast. i have 2 daughters with cf. Ages 20 and 16 years

old. youngest daughter went to the clinic on tuesday. She is doing pretty

good. She was put on Zantac . and my also have to have another sinus surgrey.

Well good luck with . Patty mom of 2 daughter with cf

[Guest guest]

Kirsty,

The categories go from 1-6. 1 being never sick or admitted to hsp. (very

few of these). Most little kids are 4.

Re: (unknown)

> >

> >

> > > ,

> > > Is that the lady who lives on the gulf somewhere? I was speaking

> to her a

> > while ago - apparently they are the only ones in the state with

> 3kids wcf.

> > They have to fly over for clinic visits every three months. Which

> one is in

> > hospital?

> > > Kristy

> > >

> > >

> > > PLEASE do not post religious emails to the list.

> > >

> > >

> > > -------------------------------------------

> > >

> > >

> > > The opinions and information exchanged on this list should

> > > IN NO WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > --------------------------------------------------

> > >

> > >

> > >

[Guest guest]

Thanks for the update, . I am so happy to hear that he is doing

better. You seem to be handling it all so well. Please take care of

yourself, too! Having a 17 month old and an infant is hard enough, having

both with CF, you deserve a medal for keeping it together! :-)

mama to 1 yo w/CF and 3 yo woCF

>

> Reply-To: cfparents

> Date: Mon, 29 Oct 2001 20:46:18 -0600

> To: cfparents

> Subject: (unknown)

>

>

>

> Hello gang,

>

>

> I just wanted to give you a update on .After 3 weeks in the hospital

> he is doing so much better. They had to put him in the I.C.U for one night

> after they put his feeding tube in. His nurse OD him. I was at home that

> night when it happened but my mom was there. I live a hour away from the

> hospital that night I think I made it in 35 min.

>

> seems to be happier but he also seems to cry more with his stomach

> hurting him. They stopped the night feedings to see if that will help him.

> We are up every 2 hours feeding. Wehave him to 10lbs now. He will be 5

> months on the 30th. My mom stayed for a few days with him at the hospital

> needles to say she held him all the time. Now that is what he wants me to

> do. Sometimes it is hard when you have him and a 17 month old w/cf. But I

> enjoy it more and more everyday.

>

> I guess I will go for now.

>

> , mom of & micheal w/cf 7 Dillon wo/cf

[Guest guest]

GREAT report.I hope all goes well with the next

info coming to you .

LOVE & HUGS, grandmomBEV

(unknown)

Hi Everyone,

went in for his first Bronch & Endoscopy

yesterday. I don't

know what I was so worried about!! The Resp.

Doctor and Gastro Doctor

both said that his lungs and tummy look good, but

now we just have to

wait for the results on Thursday. - Hope it is all

good news!

Kirsty & 4 months wcf

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Kirsty,

I'm so happy for you that everything went great with

the tests. I can understand why you were nervous.

Take care,

Cathy mom to (19) w cf

--- kirstylee@... wrote:

> Hi Everyone,

>

> went in for his first Bronch & Endoscopy

> yesterday. I don't

> know what I was so worried about!! The Resp. Doctor

> and Gastro Doctor

> both said that his lungs and tummy look good, but

> now we just have to

> wait for the results on Thursday. - Hope it is all

> good news!

>

>

> Kirsty & 4 months wcf

>

>

__________________________________________________

[Guest guest]

As you asked, for prayers will be abound as the boys go thru their

treatments & surgery this week. Bless you each & all .Whatever helps you

thru these hard times.

LOVE & HUGS,

grandmomBEV

(unknown)

Hello,

,

I know how you feel about people calling you skinny. I have always been

like that. I am 5 ft10 and I am 145bls People tell me that I am to

skinny. I was getting the birth control shot and I lost to 110lbs I looked

bad. But I have gained alot in the past 2 years.

Chasing kids all day will keep the cals off of you that is for sure.lol

,still needs everyones prayers he goes threw surgery on Tuesday. They

will be running a light down his lungs and I hope and pray they will take

the tube out of his stomach that day also. He his doing good he now weighs

13lb and is 7 months now. He is very active. He finally rowed over by

himself the other day. He is not sitting up just yet. I still worry about

him.

Micheal, goes threw his surgery next tuesday on the 14th. They will run the

light daown into his lungs also. Then they will clean out his sinues. I

hope that it will help him. As far as my SMOKING I am doing good. I still

want to smoke but I will not do it. My husband says it is all in my head. I

will try to keep everyone updated.

S mom of 4 2 w/cf

_________________________________________________________________

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-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

,

I hope your boy's surgery goes well. I'll probably have to undergo that with

my son so let me know how it works out. He's gotta be a trooper.

You haven't had any cigarettes? You can do it. I haven't had one since

December 28th at 5:30 p.m. and today it is January 6th 7:35 p.m. Let's

see.....that's 9 days! And I guess it's 6 days for you. It's 12 days for my

husband.

I gained 5 pounds by not smoking and eating more. I'm constantly looking for

eats. My husband says my butt is getting big. I'm so proud.LOL I've always

been small. It's hard for me to lose or gain so I've got to try to keep this

up. I now weigh 100 pounds!!!!!!!!!! As I said, I'm so proud of myself.

You keep up the good work too. Isn't there someone else on this list who's

trying to quit?

from P.A.

[Guest guest]

I tried giving up smoking and caffeine together also. I think that's why I

went back to smoking. It may be better just to give up one thing at a time.

Good Luck......Keep me posted on everything

from P.A.

[Guest guest]

Forgot...this time as I gave up smoking I didn't give up my coffee. I have

something to keep mme busy.

from P.A.

[Guest guest]

Well I am down to my last pack of cigs. I will be quitting also. For

Christ sake I have asthma and two cases of pneumonia I think it's time to

say good bye to a very nasty little habit of mine. I am also giving up

caffeine, my teeth are paying a hearty price for that habit and my husband

and I have decided to try and have a baby. I think that will be good. It

will give all of us something to look forward to for a change and I really

am hoping for a boy. I have two girls now as you all know so I am wanting a

son. We have been talking about having a baby for a long time now. We've

been married for going on 4 years now so we thought we would go ahead have a

baby. We should have any problems, I mean what is the likely hood of me

having another baby with problems with a different father. Either way,

looking forward to child number 3. Hopefully I will as lucky as you

and get up to 100 pounds and hopefully finally up to my normal 110. I'm

sick of having such a hard time finding clothes to fit me good. So wish me

luck on all my New Years resolutions, quitting smoking, giving up caffeine

and having a new baby hopefully a boy .

Karrie mother to Chasity age 6 1/2, normal and healthy and Abby age 4 1/2

microcephaly, epilepsy, pachygyria, and possible Cystic Fibrosis. The list

is growing.

www.clik.to/abigail

Re: (unknown)

> ,

> I hope your boy's surgery goes well. I'll probably have to undergo that

with

> my son so let me know how it works out. He's gotta be a trooper.

> You haven't had any cigarettes? You can do it. I haven't had one since

> December 28th at 5:30 p.m. and today it is January 6th 7:35 p.m. Let's

> see.....that's 9 days! And I guess it's 6 days for you. It's 12 days for

my

> husband.

> I gained 5 pounds by not smoking and eating more. I'm constantly looking

for

> eats. My husband says my butt is getting big. I'm so proud.LOL I've

always

> been small. It's hard for me to lose or gain so I've got to try to keep

this

> up. I now weigh 100 pounds!!!!!!!!!! As I said, I'm so proud of myself.

> You keep up the good work too. Isn't there someone else on this list

who's

> trying to quit?

> from P.A.

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Dear Mark,

As Karyn asked, areas of specific help would be good;

for instance I can help with photo retouch, page layout

or design, graphics, etc., but I'm afraid I won't be much

help with programming - I'm only HALF geek.

Also, are you looking for help laying out info pages that

would need to be ftp'd to the server, or just bits and

pieces that would be sent directly to you?

Thanks for all the good work,

Terry in KC

<<

> Are there any web designers out there that would like to help with

Top5plus5 Library of information about the pancreas and related

items. I can use all the help I can get.<<<<

Mark,

I know a few. We all need the help because the site is so helpful to

us. Can you think of some specific area of help.

Karyn >>

[Guest guest]

New info is coming out all the time. All the categories need work. lol

Mark E. Armstrong

www.top5plus5.com

Oregon State Chapter Rep

Pancreatitis Association, International

(unknown)

>

> > Are there any web designers out there that would like to help with

> Top5plus5 Library of information about the pancreas and related

> items. I can use all the help I can get.<<<<

>

> Mark,

>

> I know a few. We all need the help because the site is so helpful to

> us. Can you think of some specific area of help.

>

> Karyn

>

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>

[Guest guest]

I could set up FTP access very easily for anyone who would like to work on

the site. we could meet in the chat room once a week and discuss how we

should tweak on the website.

Mark E. Armstrong

www.top5plus5.com

Oregon State Chapter Rep

Pancreatitis Association, International

Re: (unknown)

> Dear Mark,

>

> As Karyn asked, areas of specific help would be good;

> for instance I can help with photo retouch, page layout

> or design, graphics, etc., but I'm afraid I won't be much

> help with programming - I'm only HALF geek.

>

> Also, are you looking for help laying out info pages that

> would need to be ftp'd to the server, or just bits and

> pieces that would be sent directly to you?

>

> Thanks for all the good work,

>

> Terry in KC

>

>

>

>

> <<

> > Are there any web designers out there that would like to help with

> Top5plus5 Library of information about the pancreas and related

> items. I can use all the help I can get.<<<<

>

> Mark,

>

> I know a few. We all need the help because the site is so helpful to

> us. Can you think of some specific area of help.

>

> Karyn >>

>

>

>

> PANCREATITIS Association, Intl.

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitis (AT) Yahoo

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribe (AT) Yahoo

>

>