Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 I'm so sorry about your baby, I will say a prayer for all of you. S. (unknown) > > > > Hello, > > I got to come home and rest for awhile. , is back in the hospital. He > is now 4 months and he is up to 8lbs and 14ozs. I have worried myself sick > about that baby. He just coughs until he turns blue. They have been > sucking alot of mucus out of him. He goes threw his surgery next week. > They are going to put a feeding tube in his stomach and look at his lungs > they think that they are scared. I have cried so much for the past two > days. I am scared. I hope someone can relate to this message. > Thanks, > S Micheal 16months w/cf 4 months w/cf > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2001 Report Share Posted October 6, 2001 We are all together for all the s and other kids on this list! 100% Love, n Rojas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 (((HUGS))) . Sending you prayers for , you, and your brother. > > I got to come home for just a few minutes today. , looks bad he has > broke out in a rash all over his body. His little hand has blisters all > over it. It looks bad. They had to put iv's in his head now. I also got a > phone call from my brother this moring who is in Japan, he is in the navy. > He called to tell me good-bye. He does not know where he is going just yet. > So, I cried myself back to sleep and slept to 0ne o clock. Before he hung > the phone up he said this could be the last time I can ever tell you that I > love you so please rember that. My heart is broke. He has two small childern > that loves him. > > I want to think everyone for there prayers. > > Lots of Love, > S Micheal 16 months w/cf and 4 Months w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2001 Report Share Posted October 7, 2001 I hold all your precious family in my prayers....God Bless him. All those who are protecting us all.. I do hope your precious wee one gets better too. LOVE & HUGS, grandmomBEV (unknown) I got to come home for just a few minutes today. , looks bad he has broke out in a rash all over his body. His little hand has blisters all over it. It looks bad. They had to put iv's in his head now. I also got a phone call from my brother this moring who is in Japan, he is in the navy. He called to tell me good-bye. He does not know where he is going just yet. So, I cried myself back to sleep and slept to 0ne o clock. Before he hung the phone up he said this could be the last time I can ever tell you that I love you so please rember that. My heart is broke. He has two small childern that loves him. I want to think everyone for there prayers. Lots of Love, S Micheal 16 months w/cf and 4 Months w/cf _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2001 Report Share Posted October 8, 2001 , My heart aches for you, and your baby. I wish there was something I could do to make it better. It sounds like your son is having an allergic reaction to something, probably the antibiotic their giving him, did they say they thought it was due to an allergy?, if so they can give him something to make him feel better, it looks awful, but will start to subside. I will continue to pray for him, and for your brother. S. (unknown) > > > > I got to come home for just a few minutes today. , looks bad he has > broke out in a rash all over his body. His little hand has blisters all > over it. It looks bad. They had to put iv's in his head now. I also got a > phone call from my brother this moring who is in Japan, he is in the navy. > He called to tell me good-bye. He does not know where he is going just yet. > So, I cried myself back to sleep and slept to 0ne o clock. Before he hung > the phone up he said this could be the last time I can ever tell you that I > love you so please rember that. My heart is broke. He has two small childern > that loves him. > > I want to think everyone for there prayers. > > Lots of Love, > S Micheal 16 months w/cf and 4 Months w/cf > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2001 Report Share Posted October 12, 2001 FANTASTIC.!!!!! I am so very happy for you about this I hold you in all my thoughts....Love & hugs, GrandmomBEV (unknown) Well, we went to clinic today for and everything is " perfect. " His weight and height are both up. His lungs sound fine he isn't sick. He is in other words healthy. :):) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 , I can only imagine how hard more than one cfers is. At the moment Eilish is in hsp. and the lady nextdoor is in with her daughter with cf. Her daughter is 5 and she also has a 3 wcf and a 8mth wcf . Luckily this is the 1st admission but it must be alot of work with 2or3. (unknown) > > > Hello gang, > > > I just wanted to give you a update on .After 3 weeks in the hospital > he is doing so much better. They had to put him in the I.C.U for one night > after they put his feeding tube in. His nurse OD him. I was at home that > night when it happened but my mom was there. I live a hour away from the > hospital that night I think I made it in 35 min. > > seems to be happier but he also seems to cry more with his stomach > hurting him. They stopped the night feedings to see if that will help him. > We are up every 2 hours feeding. Wehave him to 10lbs now. He will be 5 > months on the 30th. My mom stayed for a few days with him at the hospital > needles to say she held him all the time. Now that is what he wants me to > do. Sometimes it is hard when you have him and a 17 month old w/cf. But I > enjoy it more and more everyday. > > I guess I will go for now. > > , mom of & micheal w/cf 7 Dillon wo/cf > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2001 Report Share Posted October 29, 2001 , Is that the lady who lives on the gulf somewhere? I was speaking to her a while ago - apparently they are the only ones in the state with 3kids wcf. They have to fly over for clinic visits every three months. Which one is in hospital? Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Gosh, I am so sorry to hear he is still hurting with the tummy. Have they tried the wee size PANCRECARB enzymes. They generally are easier on the tummy & still help make the food more valuable to patient. It might make all the difference in the world pain wise. Ask the docs. maybe they just haven't thought into to that area , as he hadn't been doing so well before. It sure would be a n easy fix....... I sure am holding you in my thoughts & best wishes as you all continue to improve. Please don't speed anymore...:):)HE NEEDS you & accidents will happen. That would be terrible--------although,.. I would have been doing that too :):) guess that is only natural. You sound like a wonderful mommy............ LOVE & HUGS, grandmomBEV (unknown) Goodness, how did they OD him? that sounds terrible. anyway, here is wishing a speedy recovery. Hang in there. Jen, mommy of7, 3 with CF > > > Hello gang, > > > I just wanted to give you a update on .After 3 weeks in the hospital > he is doing so much better. They had to put him in the I.C.U for one night > after they put his feeding tube in. His nurse OD him. I was at home that > night when it happened but my mom was there. I live a hour away from the > hospital that night I think I made it in 35 min. > > seems to be happier but he also seems to cry more with his stomach > hurting him. They stopped the night feedings to see if that will help him. > We are up every 2 hours feeding. Wehave him to 10lbs now. He will be 5 > months on the 30th. My mom stayed for a few days with him at the hospital > needles to say she held him all the time. Now that is what he wants me to > do. Sometimes it is hard when you have him and a 17 month old w/cf. But I > enjoy it more and more everyday. > > I guess I will go for now. > > , mom of & micheal w/cf 7 Dillon wo/cf > > > __________________________________________________ _______________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 WOW you really have your hands full it makes me feel like I don't really have thing so bad after all. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Kristy, Her name is Jodie and she has a 6 yr old daughter Jemma who is in at the moment and Eilish loves her, they are both category 4. She has a 3 yr old and a 8mth old, both boys. I think she lives in Cleve and flies over. Although she said they are building a house at Mt Compass to be nearer the hsp. Re: (unknown) > , > Is that the lady who lives on the gulf somewhere? I was speaking to her a while ago - apparently they are the only ones in the state with 3kids wcf. They have to fly over for clinic visits every three months. Which one is in hospital? > Kristy > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hi , just wondering what the catergory thing is?? I guess it is some kind of rating system the hospital uses? Kirsty -- In cfparents@y..., Baxter wrote: > Kristy, > > Her name is Jodie and she has a 6 yr old daughter Jemma who is in at the > moment and Eilish loves her, they are both category 4. She has a 3 yr old > and a 8mth old, both boys. I think she lives in Cleve and flies over. > Although she said they are building a house at Mt Compass to be nearer the > hsp. > > > > Re: (unknown) > > > > , > > Is that the lady who lives on the gulf somewhere? I was speaking to her a > while ago - apparently they are the only ones in the state with 3kids wcf. > They have to fly over for clinic visits every three months. Which one is in > hospital? > > Kristy > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Hoping recovers fast. i have 2 daughters with cf. Ages 20 and 16 years old. youngest daughter went to the clinic on tuesday. She is doing pretty good. She was put on Zantac . and my also have to have another sinus surgrey. Well good luck with . Patty mom of 2 daughter with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2001 Report Share Posted October 31, 2001 Kirsty, The categories go from 1-6. 1 being never sick or admitted to hsp. (very few of these). Most little kids are 4. Re: (unknown) > > > > > > > , > > > Is that the lady who lives on the gulf somewhere? I was speaking > to her a > > while ago - apparently they are the only ones in the state with > 3kids wcf. > > They have to fly over for clinic visits every three months. Which > one is in > > hospital? > > > Kristy > > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > > > > ------------------------------------------- > > > > > > > > > The opinions and information exchanged on this list should > > > IN NO WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > -------------------------------------------------- > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Thanks for the update, . I am so happy to hear that he is doing better. You seem to be handling it all so well. Please take care of yourself, too! Having a 17 month old and an infant is hard enough, having both with CF, you deserve a medal for keeping it together! :-) mama to 1 yo w/CF and 3 yo woCF > > Reply-To: cfparents > Date: Mon, 29 Oct 2001 20:46:18 -0600 > To: cfparents > Subject: (unknown) > > > > Hello gang, > > > I just wanted to give you a update on .After 3 weeks in the hospital > he is doing so much better. They had to put him in the I.C.U for one night > after they put his feeding tube in. His nurse OD him. I was at home that > night when it happened but my mom was there. I live a hour away from the > hospital that night I think I made it in 35 min. > > seems to be happier but he also seems to cry more with his stomach > hurting him. They stopped the night feedings to see if that will help him. > We are up every 2 hours feeding. Wehave him to 10lbs now. He will be 5 > months on the 30th. My mom stayed for a few days with him at the hospital > needles to say she held him all the time. Now that is what he wants me to > do. Sometimes it is hard when you have him and a 17 month old w/cf. But I > enjoy it more and more everyday. > > I guess I will go for now. > > , mom of & micheal w/cf 7 Dillon wo/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 GREAT report.I hope all goes well with the next info coming to you . LOVE & HUGS, grandmomBEV (unknown) Hi Everyone, went in for his first Bronch & Endoscopy yesterday. I don't know what I was so worried about!! The Resp. Doctor and Gastro Doctor both said that his lungs and tummy look good, but now we just have to wait for the results on Thursday. - Hope it is all good news! Kirsty & 4 months wcf PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Kirsty, I'm so happy for you that everything went great with the tests. I can understand why you were nervous. Take care, Cathy mom to (19) w cf --- kirstylee@... wrote: > Hi Everyone, > > went in for his first Bronch & Endoscopy > yesterday. I don't > know what I was so worried about!! The Resp. Doctor > and Gastro Doctor > both said that his lungs and tummy look good, but > now we just have to > wait for the results on Thursday. - Hope it is all > good news! > > > Kirsty & 4 months wcf > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 As you asked, for prayers will be abound as the boys go thru their treatments & surgery this week. Bless you each & all .Whatever helps you thru these hard times. LOVE & HUGS, grandmomBEV (unknown) Hello, , I know how you feel about people calling you skinny. I have always been like that. I am 5 ft10 and I am 145bls People tell me that I am to skinny. I was getting the birth control shot and I lost to 110lbs I looked bad. But I have gained alot in the past 2 years. Chasing kids all day will keep the cals off of you that is for sure.lol ,still needs everyones prayers he goes threw surgery on Tuesday. They will be running a light down his lungs and I hope and pray they will take the tube out of his stomach that day also. He his doing good he now weighs 13lb and is 7 months now. He is very active. He finally rowed over by himself the other day. He is not sitting up just yet. I still worry about him. Micheal, goes threw his surgery next tuesday on the 14th. They will run the light daown into his lungs also. Then they will clean out his sinues. I hope that it will help him. As far as my SMOKING I am doing good. I still want to smoke but I will not do it. My husband says it is all in my head. I will try to keep everyone updated. S mom of 4 2 w/cf _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2002 Report Share Posted January 6, 2002 , I hope your boy's surgery goes well. I'll probably have to undergo that with my son so let me know how it works out. He's gotta be a trooper. You haven't had any cigarettes? You can do it. I haven't had one since December 28th at 5:30 p.m. and today it is January 6th 7:35 p.m. Let's see.....that's 9 days! And I guess it's 6 days for you. It's 12 days for my husband. I gained 5 pounds by not smoking and eating more. I'm constantly looking for eats. My husband says my butt is getting big. I'm so proud.LOL I've always been small. It's hard for me to lose or gain so I've got to try to keep this up. I now weigh 100 pounds!!!!!!!!!! As I said, I'm so proud of myself. You keep up the good work too. Isn't there someone else on this list who's trying to quit? from P.A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 I tried giving up smoking and caffeine together also. I think that's why I went back to smoking. It may be better just to give up one thing at a time. Good Luck......Keep me posted on everything from P.A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Forgot...this time as I gave up smoking I didn't give up my coffee. I have something to keep mme busy. from P.A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Well I am down to my last pack of cigs. I will be quitting also. For Christ sake I have asthma and two cases of pneumonia I think it's time to say good bye to a very nasty little habit of mine. I am also giving up caffeine, my teeth are paying a hearty price for that habit and my husband and I have decided to try and have a baby. I think that will be good. It will give all of us something to look forward to for a change and I really am hoping for a boy. I have two girls now as you all know so I am wanting a son. We have been talking about having a baby for a long time now. We've been married for going on 4 years now so we thought we would go ahead have a baby. We should have any problems, I mean what is the likely hood of me having another baby with problems with a different father. Either way, looking forward to child number 3. Hopefully I will as lucky as you and get up to 100 pounds and hopefully finally up to my normal 110. I'm sick of having such a hard time finding clothes to fit me good. So wish me luck on all my New Years resolutions, quitting smoking, giving up caffeine and having a new baby hopefully a boy . Karrie mother to Chasity age 6 1/2, normal and healthy and Abby age 4 1/2 microcephaly, epilepsy, pachygyria, and possible Cystic Fibrosis. The list is growing. www.clik.to/abigail Re: (unknown) > , > I hope your boy's surgery goes well. I'll probably have to undergo that with > my son so let me know how it works out. He's gotta be a trooper. > You haven't had any cigarettes? You can do it. I haven't had one since > December 28th at 5:30 p.m. and today it is January 6th 7:35 p.m. Let's > see.....that's 9 days! And I guess it's 6 days for you. It's 12 days for my > husband. > I gained 5 pounds by not smoking and eating more. I'm constantly looking for > eats. My husband says my butt is getting big. I'm so proud.LOL I've always > been small. It's hard for me to lose or gain so I've got to try to keep this > up. I now weigh 100 pounds!!!!!!!!!! As I said, I'm so proud of myself. > You keep up the good work too. Isn't there someone else on this list who's > trying to quit? > from P.A. > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Dear Mark, As Karyn asked, areas of specific help would be good; for instance I can help with photo retouch, page layout or design, graphics, etc., but I'm afraid I won't be much help with programming - I'm only HALF geek. Also, are you looking for help laying out info pages that would need to be ftp'd to the server, or just bits and pieces that would be sent directly to you? Thanks for all the good work, Terry in KC << > Are there any web designers out there that would like to help with Top5plus5 Library of information about the pancreas and related items. I can use all the help I can get.<<<< Mark, I know a few. We all need the help because the site is so helpful to us. Can you think of some specific area of help. Karyn >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 New info is coming out all the time. All the categories need work. lol Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International (unknown) > > > Are there any web designers out there that would like to help with > Top5plus5 Library of information about the pancreas and related > items. I can use all the help I can get.<<<< > > Mark, > > I know a few. We all need the help because the site is so helpful to > us. Can you think of some specific area of help. > > Karyn > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 I could set up FTP access very easily for anyone who would like to work on the site. we could meet in the chat room once a week and discuss how we should tweak on the website. Mark E. Armstrong www.top5plus5.com Oregon State Chapter Rep Pancreatitis Association, International Re: (unknown) > Dear Mark, > > As Karyn asked, areas of specific help would be good; > for instance I can help with photo retouch, page layout > or design, graphics, etc., but I'm afraid I won't be much > help with programming - I'm only HALF geek. > > Also, are you looking for help laying out info pages that > would need to be ftp'd to the server, or just bits and > pieces that would be sent directly to you? > > Thanks for all the good work, > > Terry in KC > > > > > << > > Are there any web designers out there that would like to help with > Top5plus5 Library of information about the pancreas and related > items. I can use all the help I can get.<<<< > > Mark, > > I know a few. We all need the help because the site is so helpful to > us. Can you think of some specific area of help. > > Karyn >> > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: Pancreatitis (AT) Yahoo > > To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribe (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
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