Re: From my friend whose son seemed autistic...

January 3, 2003

That is REALLY sad. To have something wrong with a child, and not pursue a

diagnosis. I would like to think she wouldn't do it with a sickness as

opposed to something that she may perceive as a mental condition with the

attached stereotypes and stigmas.

ellen

RE: From my friend whose son seemed

autistic...

My SIL is still there, but unfortunately her son is 8 now and it is not

looking as if things are going to get any better for him support or

therapy-wise. After he failed kindergarten the second time she did

consent

to putting him into a special ed class, but he still has no diagnosis.

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January 3, 2003

That makes two of us.

I knew something was wrong with Savannah and after a few conversations with a

friend of mine in special ed and some research I could give it a name but no one

would listen to me and evaluate her until about two years ago. I was called an

over-reactive parent and that I was making mountians out of mole hills. After

all the stupid shit I put up with from drs, our ped who I like told me at one

point " She toliet trained, she can't be autistic " I was finally relieved when

someone finally listened to me and seen her. Dr Fry (PhD) had to make phone

calls on how to interpert her test scores because she has a remarkably high IQ

but is very much on the spectrum.

I know that I have three other kids on the spectrum.

I am just a bit in shock with Dalton because I have not seen anything near his

behaviour (almost 2) since Savannah at that age, and that was 6 years ago! I

keep reminding myself that Savannah was just like him at that age, that it is

going to get worse before it gets better, and that it will get better at some

point (it did with Savannah and there was no early intervention there, in fact I

had no idea what to do with her at the time because I had no idea what the

problem was until a bit later, but now I know what to do so...) at any rate, I

hope my logic isn't flawed here ;0).

I was never in denial.

I went through the totaly opposite. Complete and total frustration that no one

would take me seriously and help me. The sad thing is, now that I have the dx

for Savannah and I read everything that I can get my hands on and do what I have

to do to help her and the other ones without " professional " help (unless it gets

really bad then Dr Fry is a phone call away and he is always willing to help and

he is so good with her) with ST, OT, PT, ABA and so forth that I really don't

want anyones help.

It also helps me to know that Dr Fry honestly believes that I have done more for

Savannah than any therapist or professional could have and that I am the best

teacher for her. I *know* that I am doing something right. I mean, the man

stood up and told child protective services that and was willing to go to court

and say that.

Georga Hackworth

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Re: From my friend whose son seemed autistic...

> C'mon. We've all been there!

>

> Salli

I was never there!

Honestly.

I was never there.

I KNOW I'm in the minority, but it's hard for me to imagine it otherwise.

Of course, there was NO denying was different; I knew that as soon as I

joined my first moms and babies group when he was four months old. The

differences were glaring even then, and I *knew* it. So I really REALLY

can't put myself in her shoes, as I've never worn anything remotely like

them. :-(

Jacquie

January 3, 2003

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I sent a thank you card to the woman who suggested my having Matt evaluated.

He was diagnosed on a Friday and she came with me to his IEP on the

following Monday. After that was when I sent the card, not just for coming

to the IEP with me, but for getting the whole ball rolling in my head.

It's amazing that sometimes it does take another person to get the ball

rolling. Even if we aren't willing to really admit we needed it. When I tried to

go back to work a year ago if when I finally gave into 's evaluation. My

really good friend was watching them and she said that something just wasn't

right. was way to angry and frustrated and well not a typical 3 year old.

Oh boy did that blow me over. I called the school soon after for the

evaluation. I'm not sure what goes through my mind but I have that magical age

of 3 stuck in my head. was in early learning intervention till 3 and aged

out without needing more services. I keep getting close to that age 3 mark,

was evaluated right before 3 and now so is .

Oh well I'm rambling.

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January 3, 2003