Re: From my friend whose son seemed autistic...

[Guest guest]

Yes, her looking into it is what matters. Is it me, or does she sound a

touch defensive to you too?

Sue

[Guest guest]

Yes, her looking into it is what matters. Is it me, or does she sound a

touch defensive to you too?

Sue

[Guest guest]

> That is a real bee in my bonnet and is the reason I keep bothering people

> about having their kids evaluated when they do not seem to be developing

> normally.

Having an eval never hurts anybody. At the worst it is an un-needed expense

of time and money -- but I won't even call it a waste, because gaining

knowledge is never a waste.

Not having an eval, on the other hand...

The problem is that most people have to admit to themselves that something

MIGHT be wrong before they will seek that eval. And then of course there

is the whole other problem of actually getting one, and having it be with a

person who knows.

They should just make the things mandatory and then none of us would have to

go through this.

-Sara.

[Guest guest]

> That is a real bee in my bonnet and is the reason I keep bothering people

> about having their kids evaluated when they do not seem to be developing

> normally.

Having an eval never hurts anybody. At the worst it is an un-needed expense

of time and money -- but I won't even call it a waste, because gaining

knowledge is never a waste.

Not having an eval, on the other hand...

The problem is that most people have to admit to themselves that something

MIGHT be wrong before they will seek that eval. And then of course there

is the whole other problem of actually getting one, and having it be with a

person who knows.

They should just make the things mandatory and then none of us would have to

go through this.

-Sara.

[Guest guest]

> That is a real bee in my bonnet and is the reason I keep bothering people

> about having their kids evaluated when they do not seem to be developing

> normally.

Having an eval never hurts anybody. At the worst it is an un-needed expense

of time and money -- but I won't even call it a waste, because gaining

knowledge is never a waste.

Not having an eval, on the other hand...

The problem is that most people have to admit to themselves that something

MIGHT be wrong before they will seek that eval. And then of course there

is the whole other problem of actually getting one, and having it be with a

person who knows.

They should just make the things mandatory and then none of us would have to

go through this.

-Sara.

[Guest guest]

Ok, never mind my other post. I see that I am not the only one who took it

that way.

I hope she still considers you her friend. I do like the jist of the post

you sent back to her.

Sue

[Guest guest]

Ok, never mind my other post. I see that I am not the only one who took it

that way.

I hope she still considers you her friend. I do like the jist of the post

you sent back to her.

Sue

[Guest guest]

Ok, never mind my other post. I see that I am not the only one who took it

that way.

I hope she still considers you her friend. I do like the jist of the post

you sent back to her.

Sue

[Guest guest]

One reason that you were so able to take this as she meant it and not be too

hurt was that you KNOW her, and we do not. That makes a BIG difference.

{{Salli}} for being such a good friend.

ellen

Re: From my friend whose son seemed

autistic...

> Oh Salli, you are a GOOD person, and generous and understanding in

spirit

in

> deed.

>

> I do so admire you.

>

Oh, Jacquie, you understand all this too. It's just that you would have

been hurt by her failure to recognize your good intentions. I am a bit

too,

but I realize it is not surprising (and I bet you do too). It's hard but

it

is all perfectly normal and expected.

> Jacquie

> -who hopes you don't read sarcasm there where there is NONE.

>

I do not.

Salli

[Guest guest]

One reason that you were so able to take this as she meant it and not be too

hurt was that you KNOW her, and we do not. That makes a BIG difference.

{{Salli}} for being such a good friend.

ellen

Re: From my friend whose son seemed

autistic...

> Oh Salli, you are a GOOD person, and generous and understanding in

spirit

in

> deed.

>

> I do so admire you.

>

Oh, Jacquie, you understand all this too. It's just that you would have

been hurt by her failure to recognize your good intentions. I am a bit

too,

but I realize it is not surprising (and I bet you do too). It's hard but

it

is all perfectly normal and expected.

> Jacquie

> -who hopes you don't read sarcasm there where there is NONE.

>

I do not.

Salli

[Guest guest]

One reason that you were so able to take this as she meant it and not be too

hurt was that you KNOW her, and we do not. That makes a BIG difference.

{{Salli}} for being such a good friend.

ellen

Re: From my friend whose son seemed

autistic...

> Oh Salli, you are a GOOD person, and generous and understanding in

spirit

in

> deed.

>

> I do so admire you.

>

Oh, Jacquie, you understand all this too. It's just that you would have

been hurt by her failure to recognize your good intentions. I am a bit

too,

but I realize it is not surprising (and I bet you do too). It's hard but

it

is all perfectly normal and expected.

> Jacquie

> -who hopes you don't read sarcasm there where there is NONE.

>

I do not.

Salli

[Guest guest]

> Silly ! You never offend me. Not at all.

So quit worrying about it, okay?

Salli <

ok, i will. THANK YOU!

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> When someone attacks our children we do tend to attack back.

Salli <

ain't that the truth!

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> When someone attacks our children we do tend to attack back.

Salli <

ain't that the truth!

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> When someone attacks our children we do tend to attack back.

Salli <

ain't that the truth!

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> I am probably part of a 1% minority. From the time was 14

> months old I

> hounded doctors and speech therapists for answers that they would not or

> could not give me. I've never heard of anyone else doing that from that

> young an age, at least not a first-time parent with no experience with

> special-needs children. I was blown off, condescended to, patted on the

> head, and referred for therapy. But I kept on hounding them for

> a diagnosis I knew was there.

I would not say that I *hounded* anyone but I made 4 seperate appts in 6

months to discuss my concerns about , starting with his 12 month well

baby check. Like you, I was and patted on the head (although I was NOT

referred for therapy!) but unlike you I accepted the pats gratefully because

obviously there was nothing seriously wrong with my child. He was just a

little different. The Doctor Said So.

I sincerely wish I had known the words " developmental evaluation " a year

earlier than I learned them. From Salli, by the way.

> Thank goodness it did. Two weeks after his diagnosis, I took a bouquet of

> flowers, a box I'd painted myself, and a thank-you card to the woman who

> suggested it to me. She cried.

*sniff* I just bet she did.

-Sara.

[Guest guest]

> I am probably part of a 1% minority. From the time was 14

> months old I

> hounded doctors and speech therapists for answers that they would not or

> could not give me. I've never heard of anyone else doing that from that

> young an age, at least not a first-time parent with no experience with

> special-needs children. I was blown off, condescended to, patted on the

> head, and referred for therapy. But I kept on hounding them for

> a diagnosis I knew was there.

I would not say that I *hounded* anyone but I made 4 seperate appts in 6

months to discuss my concerns about , starting with his 12 month well

baby check. Like you, I was and patted on the head (although I was NOT

referred for therapy!) but unlike you I accepted the pats gratefully because

obviously there was nothing seriously wrong with my child. He was just a

little different. The Doctor Said So.

I sincerely wish I had known the words " developmental evaluation " a year

earlier than I learned them. From Salli, by the way.

> Thank goodness it did. Two weeks after his diagnosis, I took a bouquet of

> flowers, a box I'd painted myself, and a thank-you card to the woman who

> suggested it to me. She cried.

*sniff* I just bet she did.

-Sara.

[Guest guest]

> I am probably part of a 1% minority. From the time was 14

> months old I

> hounded doctors and speech therapists for answers that they would not or

> could not give me. I've never heard of anyone else doing that from that

> young an age, at least not a first-time parent with no experience with

> special-needs children. I was blown off, condescended to, patted on the

> head, and referred for therapy. But I kept on hounding them for

> a diagnosis I knew was there.

I would not say that I *hounded* anyone but I made 4 seperate appts in 6

months to discuss my concerns about , starting with his 12 month well

baby check. Like you, I was and patted on the head (although I was NOT

referred for therapy!) but unlike you I accepted the pats gratefully because

obviously there was nothing seriously wrong with my child. He was just a

little different. The Doctor Said So.

I sincerely wish I had known the words " developmental evaluation " a year

earlier than I learned them. From Salli, by the way.

> Thank goodness it did. Two weeks after his diagnosis, I took a bouquet of

> flowers, a box I'd painted myself, and a thank-you card to the woman who

> suggested it to me. She cried.

*sniff* I just bet she did.

-Sara.

[Guest guest]

> Pediatricians are weird. They don't seem to know beans about autism.

Sigh. I hate how often this seems to happen.

Salli <

you know, i think that might be a big reason why it took me so long to accept it

about kailey. whenever i would go to the ped and mention something i was

concerned about, the not eating, the not sleeping, etc, he always passed it off

as no big deal. she was healthy, so he wasn't concerned...

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> Pediatricians are weird. They don't seem to know beans about autism.

Sigh. I hate how often this seems to happen.

Salli <

you know, i think that might be a big reason why it took me so long to accept it

about kailey. whenever i would go to the ped and mention something i was

concerned about, the not eating, the not sleeping, etc, he always passed it off

as no big deal. she was healthy, so he wasn't concerned...

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> > His mother doesn't want to hear and won't take him to be evaluated. It's

> > been a year and my friend says the kid still isn't talking. He's three

> now.

> > I wonder how she keeps her ped from finding out something's wrong?

> >

> Pediatricians are weird. They don't seem to know beans about autism.

Yes. One told me it was perfectly normal for kids not to talk at 2.

Um.

Even my wonderful ped who I love told me that her child was not talking at

18 months and she was not at all worried. But she really does NOT know very

much about autism and she does at least admit that. Still, she knows more

than the other yahoos I saw when he was 12-18 months old, because we were

not in the room together for 5 minutes before she said " the A word. " She

had been on maternity leave before that.

But then, when *I* say " not talking " I mean " no words at all, not even mama

or dada. " When other people say " not talking " they often mean different

things.

-Sara.

[Guest guest]

> > His mother doesn't want to hear and won't take him to be evaluated. It's

> > been a year and my friend says the kid still isn't talking. He's three

> now.

> > I wonder how she keeps her ped from finding out something's wrong?

> >

> Pediatricians are weird. They don't seem to know beans about autism.

Yes. One told me it was perfectly normal for kids not to talk at 2.

Um.

Even my wonderful ped who I love told me that her child was not talking at

18 months and she was not at all worried. But she really does NOT know very

much about autism and she does at least admit that. Still, she knows more

than the other yahoos I saw when he was 12-18 months old, because we were

not in the room together for 5 minutes before she said " the A word. " She

had been on maternity leave before that.

But then, when *I* say " not talking " I mean " no words at all, not even mama

or dada. " When other people say " not talking " they often mean different

things.

-Sara.

[Guest guest]

> > His mother doesn't want to hear and won't take him to be evaluated. It's

> > been a year and my friend says the kid still isn't talking. He's three

> now.

> > I wonder how she keeps her ped from finding out something's wrong?

> >

> Pediatricians are weird. They don't seem to know beans about autism.

Yes. One told me it was perfectly normal for kids not to talk at 2.

Um.

Even my wonderful ped who I love told me that her child was not talking at

18 months and she was not at all worried. But she really does NOT know very

much about autism and she does at least admit that. Still, she knows more

than the other yahoos I saw when he was 12-18 months old, because we were

not in the room together for 5 minutes before she said " the A word. " She

had been on maternity leave before that.

But then, when *I* say " not talking " I mean " no words at all, not even mama

or dada. " When other people say " not talking " they often mean different

things.

-Sara.

[Guest guest]

> Pediatricians are weird. They don't seem to know beans about autism.

Sigh. I hate how often this seems to happen.

Salli <

you know, i think that might be a big reason why it took me so long to accept

it about kailey. whenever i would go to the ped and mention something i was

concerned about, the not eating, the not sleeping, etc, he always passed it off

as no big deal. she was healthy, so he wasn't concerned...

,

I don't think there is one good ped around here. Most know nothing and won't

help. At least the ones I've found. Now here we start again with and

Trevor, I'm so tired of the battle. I just wish someone else esp my ped would

see what I do.

" Something important to remember...we'll always be who we are. " - Mr.

[Guest guest]

> Pediatricians are weird. They don't seem to know beans about autism.

Sigh. I hate how often this seems to happen.

Salli <

you know, i think that might be a big reason why it took me so long to accept

it about kailey. whenever i would go to the ped and mention something i was

concerned about, the not eating, the not sleeping, etc, he always passed it off

as no big deal. she was healthy, so he wasn't concerned...

,

I don't think there is one good ped around here. Most know nothing and won't

help. At least the ones I've found. Now here we start again with and

Trevor, I'm so tired of the battle. I just wish someone else esp my ped would

see what I do.

" Something important to remember...we'll always be who we are. " - Mr.