Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 You tried to reach out and she's not ready for it. In time I promise you that she will look back and wish she had not been so snotty about it. Remember though she she is uneducated in autism that she is thinking the worst. I had the same thing happen with a mother I met at a playgroup. He wasn't autistic but was not talking. I called a couple times and gave her a few websites aprasia etc to look into. She never called me back so I let it go. I'll reach out twice at most I don't have energy for more than that. Hugs to Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Well, if you phrase the email right, sort of " sorry I upset/offended you but I wish someone had said something to me sooner about Putter. Please let me know what you find out I would love to know that I was wrong. " type thing. My question is this, if you had not said the horrible " A word " would she still have taken her son to get him dx'd? I don't even want to talk about what I had to go through to get a dx for Savannah. I am trying to block that out. UGH! Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! Re: From my friend whose son seemed autistic... > You know, I was just thinking that you could send her a response just asking her to let you know what she finds out. > I considered that but then I feared it would sound too much like I was sitting there waiting for me to be proved right and her to be proved wrong. Don't like that feeling at all; I would love to be wrong. I suspect that I will not hear from her again at all unless he does receive an autism dx. And now I am wondering if she has found the right people to take him to. A number of weeks ago, before I thought anything about autism with him at all, I suggested she take him to the early intervention people at Putter's old school. They know their stuff and they are free, I told her (can't beat that!) so I hope that is where she is going. If she gets his hearing evaluated first, which is what I had to do, then it will be even longer and I do not think she will even hear the word autism. I did not, just a murmur under the breath when I told the hearing evaluator that Putter's doctor had said he was not autistic, just a whisper of, " Well, it does look very like... " And Putter's psychologist did not run any tests on him, merely telling me that she knew what others would call it, and I did not dare to ask her to tell me exactly what others would call it. She knew all about Putter though and kept pointing out what I thought were unique Putter behaviors and mentioning that they were typical behaviors among the kids that she saw (nearly all of whom have autism or Asperger's). Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > How very interesting that those of us who are clearly NT are so > less astute > on autism than those of us who are probably somewhere on the spectrum (for > so I do place both Sara and Jacquie). I am honored! > So much for theories of empathy. Did you both just recognize something > that went missed in your own babyhood? Well, I do think something went missed in my own childhood, but as Asperger's was unknown at the time...I talked early and well, and otherwise was simply the classic 4-eyed, nose-in-a-book geeky kid. What made me think something was going on with ? The speech was the main thing I was concerned about. He was not meeting those milestones. In fact he had lost words, something 3 seperate peds missed, my own beloved one included. I really did not know how very different was until we moved down here. I was quite isolated during his infancy as Matt was driving an hour one-way to work and we only had the one car, so I was not around other moms and babies of similar ages. I was on a parenting list for babies born in October of that year ( was early) and when he was maybe 4 months old I quit the list because I just didn't seem to have a thing in common with those people. Most of them did not AP and criticized me for doing so; I could not understand how they could NOT AP and survive, because would accept nothing less, and even so was a very unhappy baby. How could they let their 3 month olds cry for hours on end just so they would " learn " to sleep through the night? (They were not, of course, but nobody ever said, " You know, she cries for 15 minutes and then goes to sleep...it's really not that bad. " ) Naturally they thought 's demands were a direct result of our parenting style. I found AP lists who told me I was doing a wonderful job and that would be a happier, more secure child because I was meeting his needs now, and so I stuck with them. We did live in town with Matt's family, who did not quite seem to know what to think of the whole thing. I frequently got comments like, " You're nursing him AGAIN? " and " Don't you ever put him down? " And so I avoided them too. They could not help me with him anyway; he would not allow it. I *thought* they were criticizing *me.* Really, I think they were only commenting on how very different seemed to them, but I can only see that now looking back. (In my defense, they might have found different ways of expressing those feelings...) When we moved here to Ohio, Matt had a friend with 2 young sons, and we visited them a lot. Her older son had been much like , except he could not breastfeed - put me in my baby bucket and prop that bottle, please and thank you! That was the only way he would eat. But she had also had a second baby, and he had been much different, and she knew a little more about babies in general I think. She's the one who convinced me was different -- all that time I had thought the rest of the world was insane, and they thought the same of me. In reality I was dealing with a very " high need " baby and doing the best I could figure out with little to no help. After 's 9 month shots he gradually stopped crawling and talking. By his 12 month appt he was walking so I was not terribly concerned about that - I thought it was just a phase, you know, pausing for a month while he geared up for the next big leap - but his receptive language was nil and he still had not gained back the words he'd lost. (I saw the tremendous deficit in receptive language only when Gabe reached 9 months and would cry when I told him " no. " ) So we are back where I started - focusing on the speech that wasn't. His physical development was above average; he must be focusing on that and the language will come a little later. " There's such a wide range of 'normal' after all. " From the dr who clapped his hands behind 's head and shouted his name, and got NO response whatsoever: " Oh, they don't do speech therapy with kids this young. Wait until he's 2. " Etc, etc, etc. So that is our little story... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > How very interesting that those of us who are clearly NT are so > less astute > on autism than those of us who are probably somewhere on the spectrum (for > so I do place both Sara and Jacquie). I am honored! > So much for theories of empathy. Did you both just recognize something > that went missed in your own babyhood? Well, I do think something went missed in my own childhood, but as Asperger's was unknown at the time...I talked early and well, and otherwise was simply the classic 4-eyed, nose-in-a-book geeky kid. What made me think something was going on with ? The speech was the main thing I was concerned about. He was not meeting those milestones. In fact he had lost words, something 3 seperate peds missed, my own beloved one included. I really did not know how very different was until we moved down here. I was quite isolated during his infancy as Matt was driving an hour one-way to work and we only had the one car, so I was not around other moms and babies of similar ages. I was on a parenting list for babies born in October of that year ( was early) and when he was maybe 4 months old I quit the list because I just didn't seem to have a thing in common with those people. Most of them did not AP and criticized me for doing so; I could not understand how they could NOT AP and survive, because would accept nothing less, and even so was a very unhappy baby. How could they let their 3 month olds cry for hours on end just so they would " learn " to sleep through the night? (They were not, of course, but nobody ever said, " You know, she cries for 15 minutes and then goes to sleep...it's really not that bad. " ) Naturally they thought 's demands were a direct result of our parenting style. I found AP lists who told me I was doing a wonderful job and that would be a happier, more secure child because I was meeting his needs now, and so I stuck with them. We did live in town with Matt's family, who did not quite seem to know what to think of the whole thing. I frequently got comments like, " You're nursing him AGAIN? " and " Don't you ever put him down? " And so I avoided them too. They could not help me with him anyway; he would not allow it. I *thought* they were criticizing *me.* Really, I think they were only commenting on how very different seemed to them, but I can only see that now looking back. (In my defense, they might have found different ways of expressing those feelings...) When we moved here to Ohio, Matt had a friend with 2 young sons, and we visited them a lot. Her older son had been much like , except he could not breastfeed - put me in my baby bucket and prop that bottle, please and thank you! That was the only way he would eat. But she had also had a second baby, and he had been much different, and she knew a little more about babies in general I think. She's the one who convinced me was different -- all that time I had thought the rest of the world was insane, and they thought the same of me. In reality I was dealing with a very " high need " baby and doing the best I could figure out with little to no help. After 's 9 month shots he gradually stopped crawling and talking. By his 12 month appt he was walking so I was not terribly concerned about that - I thought it was just a phase, you know, pausing for a month while he geared up for the next big leap - but his receptive language was nil and he still had not gained back the words he'd lost. (I saw the tremendous deficit in receptive language only when Gabe reached 9 months and would cry when I told him " no. " ) So we are back where I started - focusing on the speech that wasn't. His physical development was above average; he must be focusing on that and the language will come a little later. " There's such a wide range of 'normal' after all. " From the dr who clapped his hands behind 's head and shouted his name, and got NO response whatsoever: " Oh, they don't do speech therapy with kids this young. Wait until he's 2. " Etc, etc, etc. So that is our little story... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Sigh. I remember doing the AP thing with all seven kids. Atlanta was an easy baby and was happy no matter what you did with her (now she is a mouthy 9 year old I just want to strangle). Savannah was a trying child. The biggest thing I remember with her is that she would scream when she woke up. She did that until she was about 2. Had trouble going to sleep and when she woke up she would scream for like 15 mins non-stop. It was horrible. Cherokee was high need. Refused to be put down. She is still high need. She lets you know when she needs something and clearly voices her displeasure at 7. Very NT but very creative and self-proclaimed weird :0). She is very secure in her weirdness so I don't see any problem. Hee hee. Seirra hated being held, hated being touched, slept through the night from day one. She resisted AP and would not even sleep in bed with me and my husband. She is the only child that didn't want to do that. Cheyenne...I don't remember much about her babyhood for some reason. It was quite stressful, was unemployed, we ended up moving when she was a few weeks old to another state then we moved 2 and a half months later (we were staying with a friend while we found somewhere to live). I remember she nursed well and didn't fight with being in the sling like Seirra did. Dakota was a normal baby (wish I could say he is a normal three year old. LOL! See what I said in another post about Egyptian heiroglyphs). Dalton was a bit more difficult, high need but I felt within " normal " range, unlike Sierra and Sierra. I seem to remember with various children people saying the same things to me " Why don't you put the baby down? " " Doesn't the child do anything but nurse? " and such things. I so remember wanting to smack people. Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: From my friend whose son seemed autistic... > How very interesting that those of us who are clearly NT are so > less astute > on autism than those of us who are probably somewhere on the spectrum (for > so I do place both Sara and Jacquie). I am honored! > So much for theories of empathy. Did you both just recognize something > that went missed in your own babyhood? Well, I do think something went missed in my own childhood, but as Asperger's was unknown at the time...I talked early and well, and otherwise was simply the classic 4-eyed, nose-in-a-book geeky kid. What made me think something was going on with ? The speech was the main thing I was concerned about. He was not meeting those milestones. In fact he had lost words, something 3 seperate peds missed, my own beloved one included. I really did not know how very different was until we moved down here. I was quite isolated during his infancy as Matt was driving an hour one-way to work and we only had the one car, so I was not around other moms and babies of similar ages. I was on a parenting list for babies born in October of that year ( was early) and when he was maybe 4 months old I quit the list because I just didn't seem to have a thing in common with those people. Most of them did not AP and criticized me for doing so; I could not understand how they could NOT AP and survive, because would accept nothing less, and even so was a very unhappy baby. How could they let their 3 month olds cry for hours on end just so they would " learn " to sleep through the night? (They were not, of course, but nobody ever said, " You know, she cries for 15 minutes and then goes to sleep...it's really not that bad. " ) Naturally they thought 's demands were a direct result of our parenting style. I found AP lists who told me I was doing a wonderful job and that would be a happier, more secure child because I was meeting his needs now, and so I stuck with them. We did live in town with Matt's family, who did not quite seem to know what to think of the whole thing. I frequently got comments like, " You're nursing him AGAIN? " and " Don't you ever put him down? " And so I avoided them too. They could not help me with him anyway; he would not allow it. I *thought* they were criticizing *me.* Really, I think they were only commenting on how very different seemed to them, but I can only see that now looking back. (In my defense, they might have found different ways of expressing those feelings...) When we moved here to Ohio, Matt had a friend with 2 young sons, and we visited them a lot. Her older son had been much like , except he could not breastfeed - put me in my baby bucket and prop that bottle, please and thank you! That was the only way he would eat. But she had also had a second baby, and he had been much different, and she knew a little more about babies in general I think. She's the one who convinced me was different -- all that time I had thought the rest of the world was insane, and they thought the same of me. In reality I was dealing with a very " high need " baby and doing the best I could figure out with little to no help. After 's 9 month shots he gradually stopped crawling and talking. By his 12 month appt he was walking so I was not terribly concerned about that - I thought it was just a phase, you know, pausing for a month while he geared up for the next big leap - but his receptive language was nil and he still had not gained back the words he'd lost. (I saw the tremendous deficit in receptive language only when Gabe reached 9 months and would cry when I told him " no. " ) So we are back where I started - focusing on the speech that wasn't. His physical development was above average; he must be focusing on that and the language will come a little later. " There's such a wide range of 'normal' after all. " From the dr who clapped his hands behind 's head and shouted his name, and got NO response whatsoever: " Oh, they don't do speech therapy with kids this young. Wait until he's 2. " Etc, etc, etc. So that is our little story... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Sigh. I remember doing the AP thing with all seven kids. Atlanta was an easy baby and was happy no matter what you did with her (now she is a mouthy 9 year old I just want to strangle). Savannah was a trying child. The biggest thing I remember with her is that she would scream when she woke up. She did that until she was about 2. Had trouble going to sleep and when she woke up she would scream for like 15 mins non-stop. It was horrible. Cherokee was high need. Refused to be put down. She is still high need. She lets you know when she needs something and clearly voices her displeasure at 7. Very NT but very creative and self-proclaimed weird :0). She is very secure in her weirdness so I don't see any problem. Hee hee. Seirra hated being held, hated being touched, slept through the night from day one. She resisted AP and would not even sleep in bed with me and my husband. She is the only child that didn't want to do that. Cheyenne...I don't remember much about her babyhood for some reason. It was quite stressful, was unemployed, we ended up moving when she was a few weeks old to another state then we moved 2 and a half months later (we were staying with a friend while we found somewhere to live). I remember she nursed well and didn't fight with being in the sling like Seirra did. Dakota was a normal baby (wish I could say he is a normal three year old. LOL! See what I said in another post about Egyptian heiroglyphs). Dalton was a bit more difficult, high need but I felt within " normal " range, unlike Sierra and Sierra. I seem to remember with various children people saying the same things to me " Why don't you put the baby down? " " Doesn't the child do anything but nurse? " and such things. I so remember wanting to smack people. Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: From my friend whose son seemed autistic... > How very interesting that those of us who are clearly NT are so > less astute > on autism than those of us who are probably somewhere on the spectrum (for > so I do place both Sara and Jacquie). I am honored! > So much for theories of empathy. Did you both just recognize something > that went missed in your own babyhood? Well, I do think something went missed in my own childhood, but as Asperger's was unknown at the time...I talked early and well, and otherwise was simply the classic 4-eyed, nose-in-a-book geeky kid. What made me think something was going on with ? The speech was the main thing I was concerned about. He was not meeting those milestones. In fact he had lost words, something 3 seperate peds missed, my own beloved one included. I really did not know how very different was until we moved down here. I was quite isolated during his infancy as Matt was driving an hour one-way to work and we only had the one car, so I was not around other moms and babies of similar ages. I was on a parenting list for babies born in October of that year ( was early) and when he was maybe 4 months old I quit the list because I just didn't seem to have a thing in common with those people. Most of them did not AP and criticized me for doing so; I could not understand how they could NOT AP and survive, because would accept nothing less, and even so was a very unhappy baby. How could they let their 3 month olds cry for hours on end just so they would " learn " to sleep through the night? (They were not, of course, but nobody ever said, " You know, she cries for 15 minutes and then goes to sleep...it's really not that bad. " ) Naturally they thought 's demands were a direct result of our parenting style. I found AP lists who told me I was doing a wonderful job and that would be a happier, more secure child because I was meeting his needs now, and so I stuck with them. We did live in town with Matt's family, who did not quite seem to know what to think of the whole thing. I frequently got comments like, " You're nursing him AGAIN? " and " Don't you ever put him down? " And so I avoided them too. They could not help me with him anyway; he would not allow it. I *thought* they were criticizing *me.* Really, I think they were only commenting on how very different seemed to them, but I can only see that now looking back. (In my defense, they might have found different ways of expressing those feelings...) When we moved here to Ohio, Matt had a friend with 2 young sons, and we visited them a lot. Her older son had been much like , except he could not breastfeed - put me in my baby bucket and prop that bottle, please and thank you! That was the only way he would eat. But she had also had a second baby, and he had been much different, and she knew a little more about babies in general I think. She's the one who convinced me was different -- all that time I had thought the rest of the world was insane, and they thought the same of me. In reality I was dealing with a very " high need " baby and doing the best I could figure out with little to no help. After 's 9 month shots he gradually stopped crawling and talking. By his 12 month appt he was walking so I was not terribly concerned about that - I thought it was just a phase, you know, pausing for a month while he geared up for the next big leap - but his receptive language was nil and he still had not gained back the words he'd lost. (I saw the tremendous deficit in receptive language only when Gabe reached 9 months and would cry when I told him " no. " ) So we are back where I started - focusing on the speech that wasn't. His physical development was above average; he must be focusing on that and the language will come a little later. " There's such a wide range of 'normal' after all. " From the dr who clapped his hands behind 's head and shouted his name, and got NO response whatsoever: " Oh, they don't do speech therapy with kids this young. Wait until he's 2. " Etc, etc, etc. So that is our little story... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Sigh. I remember doing the AP thing with all seven kids. Atlanta was an easy baby and was happy no matter what you did with her (now she is a mouthy 9 year old I just want to strangle). Savannah was a trying child. The biggest thing I remember with her is that she would scream when she woke up. She did that until she was about 2. Had trouble going to sleep and when she woke up she would scream for like 15 mins non-stop. It was horrible. Cherokee was high need. Refused to be put down. She is still high need. She lets you know when she needs something and clearly voices her displeasure at 7. Very NT but very creative and self-proclaimed weird :0). She is very secure in her weirdness so I don't see any problem. Hee hee. Seirra hated being held, hated being touched, slept through the night from day one. She resisted AP and would not even sleep in bed with me and my husband. She is the only child that didn't want to do that. Cheyenne...I don't remember much about her babyhood for some reason. It was quite stressful, was unemployed, we ended up moving when she was a few weeks old to another state then we moved 2 and a half months later (we were staying with a friend while we found somewhere to live). I remember she nursed well and didn't fight with being in the sling like Seirra did. Dakota was a normal baby (wish I could say he is a normal three year old. LOL! See what I said in another post about Egyptian heiroglyphs). Dalton was a bit more difficult, high need but I felt within " normal " range, unlike Sierra and Sierra. I seem to remember with various children people saying the same things to me " Why don't you put the baby down? " " Doesn't the child do anything but nurse? " and such things. I so remember wanting to smack people. Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: From my friend whose son seemed autistic... > How very interesting that those of us who are clearly NT are so > less astute > on autism than those of us who are probably somewhere on the spectrum (for > so I do place both Sara and Jacquie). I am honored! > So much for theories of empathy. Did you both just recognize something > that went missed in your own babyhood? Well, I do think something went missed in my own childhood, but as Asperger's was unknown at the time...I talked early and well, and otherwise was simply the classic 4-eyed, nose-in-a-book geeky kid. What made me think something was going on with ? The speech was the main thing I was concerned about. He was not meeting those milestones. In fact he had lost words, something 3 seperate peds missed, my own beloved one included. I really did not know how very different was until we moved down here. I was quite isolated during his infancy as Matt was driving an hour one-way to work and we only had the one car, so I was not around other moms and babies of similar ages. I was on a parenting list for babies born in October of that year ( was early) and when he was maybe 4 months old I quit the list because I just didn't seem to have a thing in common with those people. Most of them did not AP and criticized me for doing so; I could not understand how they could NOT AP and survive, because would accept nothing less, and even so was a very unhappy baby. How could they let their 3 month olds cry for hours on end just so they would " learn " to sleep through the night? (They were not, of course, but nobody ever said, " You know, she cries for 15 minutes and then goes to sleep...it's really not that bad. " ) Naturally they thought 's demands were a direct result of our parenting style. I found AP lists who told me I was doing a wonderful job and that would be a happier, more secure child because I was meeting his needs now, and so I stuck with them. We did live in town with Matt's family, who did not quite seem to know what to think of the whole thing. I frequently got comments like, " You're nursing him AGAIN? " and " Don't you ever put him down? " And so I avoided them too. They could not help me with him anyway; he would not allow it. I *thought* they were criticizing *me.* Really, I think they were only commenting on how very different seemed to them, but I can only see that now looking back. (In my defense, they might have found different ways of expressing those feelings...) When we moved here to Ohio, Matt had a friend with 2 young sons, and we visited them a lot. Her older son had been much like , except he could not breastfeed - put me in my baby bucket and prop that bottle, please and thank you! That was the only way he would eat. But she had also had a second baby, and he had been much different, and she knew a little more about babies in general I think. She's the one who convinced me was different -- all that time I had thought the rest of the world was insane, and they thought the same of me. In reality I was dealing with a very " high need " baby and doing the best I could figure out with little to no help. After 's 9 month shots he gradually stopped crawling and talking. By his 12 month appt he was walking so I was not terribly concerned about that - I thought it was just a phase, you know, pausing for a month while he geared up for the next big leap - but his receptive language was nil and he still had not gained back the words he'd lost. (I saw the tremendous deficit in receptive language only when Gabe reached 9 months and would cry when I told him " no. " ) So we are back where I started - focusing on the speech that wasn't. His physical development was above average; he must be focusing on that and the language will come a little later. " There's such a wide range of 'normal' after all. " From the dr who clapped his hands behind 's head and shouted his name, and got NO response whatsoever: " Oh, they don't do speech therapy with kids this young. Wait until he's 2. " Etc, etc, etc. So that is our little story... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > If she gets his hearing evaluated first, which is what I had to do, then it > will be even longer and I do not think she will even hear the word autism. Our hearing eval threw us off the autism course for a couple months because did, in fact, have 90% hearing loss due to infections. :-( So of course everything was marked down to that. It was only months later when the tubes were in and he STILL wasn't talking that anyone started to listen. :-( Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > If she gets his hearing evaluated first, which is what I had to do, then it > will be even longer and I do not think she will even hear the word autism. Our hearing eval threw us off the autism course for a couple months because did, in fact, have 90% hearing loss due to infections. :-( So of course everything was marked down to that. It was only months later when the tubes were in and he STILL wasn't talking that anyone started to listen. :-( Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > If she gets his hearing evaluated first, which is what I had to do, then it > will be even longer and I do not think she will even hear the word autism. Our hearing eval threw us off the autism course for a couple months because did, in fact, have 90% hearing loss due to infections. :-( So of course everything was marked down to that. It was only months later when the tubes were in and he STILL wasn't talking that anyone started to listen. :-( Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 In a message dated 1/3/03 10:25:06 PM Eastern Standard Time, MUOLLO3@... writes: > it took me about a year and a half... <~~~ still kinda in denial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > I was the one who kept saying " he'll grow out of it " and " No really, he does > say words. He says words to me " " yes, he makes eye contact " and so on -- It must be so much harder this way. :-( But there's nothing wrong with having had hope, you know. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > I was the one who kept saying " he'll grow out of it " and " No really, he does > say words. He says words to me " " yes, he makes eye contact " and so on -- It must be so much harder this way. :-( But there's nothing wrong with having had hope, you know. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > I was the one who kept saying " he'll grow out of it " and " No really, he does > say words. He says words to me " " yes, he makes eye contact " and so on -- It must be so much harder this way. :-( But there's nothing wrong with having had hope, you know. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Georga, Atlanta, Savannah, Cherokee, Sierra, Cheyenne, Dakota, and Dalton. And you married a guy named Chris? (just kidding could not be put down, nursed constantly, slept only pressed up against me in a certain position from which I could not move all night long - I thought I was going to get pressure sores on my hip! I literally sat on the couch and nursed him for up to 2 hours straight - 30 minutes on one side, switch, 30 minutes on the other side, switch - and just held him all day long. Anything else, he SCREAMED. And he still screamed for, on average, 6 hours straight every night till he was about 5 months old. > Dakota was a normal baby (wish I could say he is a normal three > year old. LOL! See what I said in another post about Egyptian > heiroglyphs). I LOVE it. =) > I seem to remember with various children people saying the same > things to me " Why don't you put the baby down? " " Doesn't the > child do anything but nurse? " and such things. I so remember > wanting to smack people. Ayup. Although I sincerely thought everyone else just let their babies cry all the time. I felt very sad for the little babies sitting contentedly in their car seats -- their parents had left them there to cry so often they had given up saying anything about it. *ahem* I have learned some tolerence since then, I hope... When Gabe came along we had a car seat carrier and I always felt guilty for leaving him in it when he was perfectly content to sit there and watch the world go by... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Georga, Atlanta, Savannah, Cherokee, Sierra, Cheyenne, Dakota, and Dalton. And you married a guy named Chris? (just kidding could not be put down, nursed constantly, slept only pressed up against me in a certain position from which I could not move all night long - I thought I was going to get pressure sores on my hip! I literally sat on the couch and nursed him for up to 2 hours straight - 30 minutes on one side, switch, 30 minutes on the other side, switch - and just held him all day long. Anything else, he SCREAMED. And he still screamed for, on average, 6 hours straight every night till he was about 5 months old. > Dakota was a normal baby (wish I could say he is a normal three > year old. LOL! See what I said in another post about Egyptian > heiroglyphs). I LOVE it. =) > I seem to remember with various children people saying the same > things to me " Why don't you put the baby down? " " Doesn't the > child do anything but nurse? " and such things. I so remember > wanting to smack people. Ayup. Although I sincerely thought everyone else just let their babies cry all the time. I felt very sad for the little babies sitting contentedly in their car seats -- their parents had left them there to cry so often they had given up saying anything about it. *ahem* I have learned some tolerence since then, I hope... When Gabe came along we had a car seat carrier and I always felt guilty for leaving him in it when he was perfectly content to sit there and watch the world go by... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Georga, Atlanta, Savannah, Cherokee, Sierra, Cheyenne, Dakota, and Dalton. And you married a guy named Chris? (just kidding could not be put down, nursed constantly, slept only pressed up against me in a certain position from which I could not move all night long - I thought I was going to get pressure sores on my hip! I literally sat on the couch and nursed him for up to 2 hours straight - 30 minutes on one side, switch, 30 minutes on the other side, switch - and just held him all day long. Anything else, he SCREAMED. And he still screamed for, on average, 6 hours straight every night till he was about 5 months old. > Dakota was a normal baby (wish I could say he is a normal three > year old. LOL! See what I said in another post about Egyptian > heiroglyphs). I LOVE it. =) > I seem to remember with various children people saying the same > things to me " Why don't you put the baby down? " " Doesn't the > child do anything but nurse? " and such things. I so remember > wanting to smack people. Ayup. Although I sincerely thought everyone else just let their babies cry all the time. I felt very sad for the little babies sitting contentedly in their car seats -- their parents had left them there to cry so often they had given up saying anything about it. *ahem* I have learned some tolerence since then, I hope... When Gabe came along we had a car seat carrier and I always felt guilty for leaving him in it when he was perfectly content to sit there and watch the world go by... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Georga, Atlanta, Savannah, Cherokee, Sierra, Cheyenne, Dakota, and Dalton. Hey! You got the joke :0) Not many people do! And you married a guy named Chris? (just kidding Yea, boring Chris. LOL! He makes up for the generic name with is own sort of weirdness. > Dakota was a normal baby (wish I could say he is a normal three > year old. LOL! See what I said in another post about Egyptian > heiroglyphs). I LOVE it. =) We recently painted. The walls were covered in crayon. I currently have a huge whale that he drew in blue on the living room wall. We also painted over some jellyfish that he did. Nothing quite as interesting as the heiroglyphs though. Ayup. Although I sincerely thought everyone else just let their babies cry all the time. I felt very sad for the little babies sitting contentedly in their car seats -- their parents had left them there to cry so often they had given up saying anything about it. I thought that I was the only one that felt that way. Cherokee was attached to me 24/7, I am not exaggerating here, nursing. She screamed if I put her down to cook or go to the toliet. Just a difficult baby. She is now a difficult 7 year old. UGH! The child is NT but can still throw a tantrum to rival any ASD tantrum on the planet (no kidding). She is just really intense and has an obnoxious way about her to get what she wants. Not obnoxious in that whiney bratty sort of way that makes you want to smack a kid, but in her own weird little way that can be equally as annoying when you aren't laughing at her. It's hard to explain but I can honestly say I have NEVER met a child that comes close to her in personality. This is a good thing...I don't think the world could handle it. *ahem* I have learned some tolerence since then, I hope... Me too. Me too. When Gabe came along we had a car seat carrier and I always felt guilty for leaving him in it when he was perfectly content to sit there and watch the world go by... This was Atlanta. And she was the first. Actually Sierra was like this too because she hated being touched. Savannah was just unhappy no matter what. LOL! Georga -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > Hey! You got the joke :0) Not many people do! =) > We recently painted. The walls were covered in crayon. I Now what did you use? Did regular paint cover everything? Because I still have to do this. We have crayon, pen, marker and permanent marker from about waist height on down. I decided I was only going to re-paint once, after learned not to draw on the walls anymore. Now we have Gabe but he's not bad at all. > I thought that I was the only one that felt that way. Cherokee > was attached to me 24/7, I am not exaggerating here, nursing. > She screamed if I put her down to cook or go to the toliet. Just > a difficult baby. Yes! That was ! Except he was my first. How did you do it with 2 others, and them so young??? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > Hey! You got the joke :0) Not many people do! =) > We recently painted. The walls were covered in crayon. I Now what did you use? Did regular paint cover everything? Because I still have to do this. We have crayon, pen, marker and permanent marker from about waist height on down. I decided I was only going to re-paint once, after learned not to draw on the walls anymore. Now we have Gabe but he's not bad at all. > I thought that I was the only one that felt that way. Cherokee > was attached to me 24/7, I am not exaggerating here, nursing. > She screamed if I put her down to cook or go to the toliet. Just > a difficult baby. Yes! That was ! Except he was my first. How did you do it with 2 others, and them so young??? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Regular paint worked (took a couple coats in some places). You might have to get something called Killz. It comes in a spray can and you spray it over the crayon, marker, etc and it primes the wall where you can paint it without anything bleeding through. I have no idea how I delt with Cherokee for 14 months like that with two other kids. I just did. LOL! Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: From my friend whose son seemed autistic... > Hey! You got the joke :0) Not many people do! =) > We recently painted. The walls were covered in crayon. I Now what did you use? Did regular paint cover everything? Because I still have to do this. We have crayon, pen, marker and permanent marker from about waist height on down. I decided I was only going to re-paint once, after learned not to draw on the walls anymore. Now we have Gabe but he's not bad at all. > I thought that I was the only one that felt that way. Cherokee > was attached to me 24/7, I am not exaggerating here, nursing. > She screamed if I put her down to cook or go to the toliet. Just > a difficult baby. Yes! That was ! Except he was my first. How did you do it with 2 others, and them so young??? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Regular paint worked (took a couple coats in some places). You might have to get something called Killz. It comes in a spray can and you spray it over the crayon, marker, etc and it primes the wall where you can paint it without anything bleeding through. I have no idea how I delt with Cherokee for 14 months like that with two other kids. I just did. LOL! Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: From my friend whose son seemed autistic... > Hey! You got the joke :0) Not many people do! =) > We recently painted. The walls were covered in crayon. I Now what did you use? Did regular paint cover everything? Because I still have to do this. We have crayon, pen, marker and permanent marker from about waist height on down. I decided I was only going to re-paint once, after learned not to draw on the walls anymore. Now we have Gabe but he's not bad at all. > I thought that I was the only one that felt that way. Cherokee > was attached to me 24/7, I am not exaggerating here, nursing. > She screamed if I put her down to cook or go to the toliet. Just > a difficult baby. Yes! That was ! Except he was my first. How did you do it with 2 others, and them so young??? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 I'm definitely still in denial. I mean, I KNOW he is on the spectrum and all, but then he'll follow commands, and play with us, and pick out letters and numbers, and play with a car correctly, and I'll think maybe he'll out grow it. Then he'll sit on the kitchen floor and spin or freak out completely over something like not going the same way home, and it's back again. Course, it's only been a few months since we've gotten the " real " diagnosis. ellen Re: From my friend whose son seemed autistic... In a message dated 1/3/03 10:25:06 PM Eastern Standard Time, MUOLLO3@... writes: > it took me about a year and a half... <~~~ still kinda in denial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > > They kept saying, " If she was autistic, you'd know it. " > > > > Well DUH! > > I was so stupid. I was in such denial. Not stupid. Never that. I understand being in denial. I wanted SOOOOOOOOOO badly to believe the doctors when they said she'd outgrow her speech delay. I didn't want to believe what my gut instinct was telling me and it took a lot of courage on my part to tell them that she reminded me of autistic kids I'd seen on TV. When they blew me off, I thought I was overreacting. But then we'd go home and she couldn't talk to me, she couldn't tell me what she needed and she'd get so upset because she couldn't talk. And I still believe that either the timing was perfect or 's 3rd DTP made her worse. I have her on video too. The spark in her eyes, the words (she had about 20, most only vowel sounds and almost unintelligable even to me), and the eye contact. They were all there. But then they went away. It killed me to watch the light fade in her eyes. It was like the bright little girl I knew I had wasn't there anymore. You can see the difference in her pictures. As a baby she looked directly at the camera, she was " there " . As she got older, her eyes wondered and she was off in her own little world. We couldn't reach her. It's not stupid to wish, hope and pray that our child is " normal " . Autism is a very cruel disorder. We have these beautiful little babies, and we're lured into a false sense of security when they're healthy and developing at what seems to be a normal pace at first. Then it's like being hit with a ton of bricks when we realize something isn't right. Our wonderful little child isn't what we thought they were. It's not stupid to want to deny that. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 > > They kept saying, " If she was autistic, you'd know it. " > > > > Well DUH! > > I was so stupid. I was in such denial. Not stupid. Never that. I understand being in denial. I wanted SOOOOOOOOOO badly to believe the doctors when they said she'd outgrow her speech delay. I didn't want to believe what my gut instinct was telling me and it took a lot of courage on my part to tell them that she reminded me of autistic kids I'd seen on TV. When they blew me off, I thought I was overreacting. But then we'd go home and she couldn't talk to me, she couldn't tell me what she needed and she'd get so upset because she couldn't talk. And I still believe that either the timing was perfect or 's 3rd DTP made her worse. I have her on video too. The spark in her eyes, the words (she had about 20, most only vowel sounds and almost unintelligable even to me), and the eye contact. They were all there. But then they went away. It killed me to watch the light fade in her eyes. It was like the bright little girl I knew I had wasn't there anymore. You can see the difference in her pictures. As a baby she looked directly at the camera, she was " there " . As she got older, her eyes wondered and she was off in her own little world. We couldn't reach her. It's not stupid to wish, hope and pray that our child is " normal " . Autism is a very cruel disorder. We have these beautiful little babies, and we're lured into a false sense of security when they're healthy and developing at what seems to be a normal pace at first. Then it's like being hit with a ton of bricks when we realize something isn't right. Our wonderful little child isn't what we thought they were. It's not stupid to want to deny that. Tina Quote Link to comment Share on other sites More sharing options...
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