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Hildreth-There is some variation in chemotherapy protecols and types

of drugs given. I receive oxaliplatin once every two weeks, along

with oral Xeloda for 5 days. The infusion of oxaliplatin takes 2

hrs. I also lobbied to receive an infusion of calcium/magnesium for

1 hr before and 1 hr after, which some reports have shown to lessen

long term side effects.

As for who to go to, it may be worth visiting a larger cancer center

to get their suggestions since this change in the status of your

disease, even if you recieve treatments from an oncologist at a

smaller practice closer to home. Larger centers, which often preform

clinical trials are often have more experience with newer treatments,

and often work with local oncologists to optimize treatment.

Here is hoping that things go well,

Kris

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Hildreth-There is some variation in chemotherapy protecols and types

of drugs given. I receive oxaliplatin once every two weeks, along

with oral Xeloda for 5 days. The infusion of oxaliplatin takes 2

hrs. I also lobbied to receive an infusion of calcium/magnesium for

1 hr before and 1 hr after, which some reports have shown to lessen

long term side effects.

As for who to go to, it may be worth visiting a larger cancer center

to get their suggestions since this change in the status of your

disease, even if you recieve treatments from an oncologist at a

smaller practice closer to home. Larger centers, which often preform

clinical trials are often have more experience with newer treatments,

and often work with local oncologists to optimize treatment.

Here is hoping that things go well,

Kris

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  • 3 months later...
Guest guest

Get a 2nd opinion from a major center just to be sure. I don't remember all of

your mom's situation to be able to respond with assurance but that would seem to

be the logical thing to try. I hope they are able to do more for her.

God Bless

Narice

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Sharon,

Yes that doesn't seem right, I think getting a second opinion is the

next step right now. We have also two new drugs our right now,

erbitux and avastin. Apparently for some patients they really work

well. I think Erbitux can also be given by itself without chemo in

some cases.

I hope you can find another doctor soon. I don't know all the medical

issues that your mother faces right now, but since she hasn't had any

other treatment apart from 5fu I would imagine she has a lot of

options.

Good luck, and let us know what you find out!

(husband stage IV diagnosed January 2003, 33 years old)

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Sharon,

There are other things they can do but I don't know if your Mom

qualifies. has had 3 RFA's to the lungs in the past. Due to

the fact that he has been put on a respirator after the last 3

surgeries he can not be put to sleep anymore.

The procedure that he had last October and that he is currently

doing right now is IMRT. The can also do SR, both of these are a

type of radiation that can zone in on several tumors at one time

delivering each it's own dose of radiation. Our Radiologist was

kind enough to email me the literature and I had post it to

our site. It takes a while to download but it is worth doing so.

The IMRT or SR is delivered in 3 sessions. Each session takes about

2hours. The radiaiton only takes 5 minutes but they have to do a CT

and make sure you are possitioned properly. He has had no side

effects other than fatigue. He has also started taking Xeloda and

Avastin. He just finished his 3rd round this week and the

Oncologist wants to see him in July to see how well it working.

If you want to take a look go over to the left side of this page and

click on Files and scan down to SBRT handout posted by Antivon on

April 13, 2004. IMRT can be used on lungs, liver, brain and various

other organs. So far it has been more successful than the RFA.

During all these procedure's has lived a good life, once he

had the colostomy last November, and you would never know he has

cancer. He has built a air boat from scratch, and I mean from

scratch. He literally welded a boat together and got a engine from

a junkyard and reassembled it. I know this has nothing to do with

cancer but it was a physical and mental challenge. He did it to

keep his mind off of his problems. He has now started boat #2 which

he tells me is for our Son, Right?????

You are doing the right thing by questioning the Doctors and our

message board. Do NOT ever stop hunting for new procedures and

asking your Mom's doctors if it can be done. It has kept

alive for 4 years and they only thought they could buy him one.

Best Wishes

Joyce

> Friends,

>

> Mom saw the oncologist yesterday, and he was pleased that she is

> seeing the radiological surgeon in re: an RFA. However, he said

that

> if she couldn't have that, there was nothing more he would suggest

> that she do. That does not seem right.

>

> Many of you are on chemo regimens that Mom has not had. She had

six

> months of 5FU/leuc. Maybe I just don't understand the situation

> properly. Am I wrong to think that there might be other

> possibilities?

>

> Mom is still losing weight. She said that she would eat ice cream

> and cake to fatten up if it were not for her diabetes. It's hard

to

> find things that will put some weight on her.

>

> Sharon

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Narice,

That is a good suggestion. If she can have the RFA, it will be at

the University of Virginia. It does have a cancer center, but I

don't know how renowned it is. Duke would be the closest alternative.

Sharon

> Get a 2nd opinion from a major center just to be sure. I don't

remember all of your mom's situation to be able to respond with

assurance but that would seem to be the logical thing to try. I hope

they are able to do more for her.

> God Bless

> Narice

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Guest guest

Narice,

That is a good suggestion. If she can have the RFA, it will be at

the University of Virginia. It does have a cancer center, but I

don't know how renowned it is. Duke would be the closest alternative.

Sharon

> Get a 2nd opinion from a major center just to be sure. I don't

remember all of your mom's situation to be able to respond with

assurance but that would seem to be the logical thing to try. I hope

they are able to do more for her.

> God Bless

> Narice

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Guest guest

Narice,

That is a good suggestion. If she can have the RFA, it will be at

the University of Virginia. It does have a cancer center, but I

don't know how renowned it is. Duke would be the closest alternative.

Sharon

> Get a 2nd opinion from a major center just to be sure. I don't

remember all of your mom's situation to be able to respond with

assurance but that would seem to be the logical thing to try. I hope

they are able to do more for her.

> God Bless

> Narice

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Guest guest

,

I hope your husband is doing well as I don't recall the situation. I

will certainly keep you in my thoughts and prayers.

Sharon

> Sharon,

> Yes that doesn't seem right, I think getting a second opinion is

the

> next step right now. We have also two new drugs our right now,

> erbitux and avastin. Apparently for some patients they really work

> well. I think Erbitux can also be given by itself without chemo in

> some cases.

>

> I hope you can find another doctor soon. I don't know all the

medical

> issues that your mother faces right now, but since she hasn't had

any

> other treatment apart from 5fu I would imagine she has a lot of

> options.

> Good luck, and let us know what you find out!

> (husband stage IV diagnosed January 2003, 33 years old)

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Guest guest

Joyce,

I don't know if UVA does either of these procedures. Would I insult

the surgeon if I asked about about them when Mom goes for the

consultation?

Where is having the IMRT?

It is good to hear about his boat building; I am trying to help my

mother get quality time as well. Having something else to think

about has to help your husband.

Sharon

> > Friends,

> >

> > Mom saw the oncologist yesterday, and he was pleased that she is

> > seeing the radiological surgeon in re: an RFA. However, he said

> that

> > if she couldn't have that, there was nothing more he would

suggest

> > that she do. That does not seem right.

> >

> > Many of you are on chemo regimens that Mom has not had. She had

> six

> > months of 5FU/leuc. Maybe I just don't understand the situation

> > properly. Am I wrong to think that there might be other

> > possibilities?

> >

> > Mom is still losing weight. She said that she would eat ice

cream

> > and cake to fatten up if it were not for her diabetes. It's hard

> to

> > find things that will put some weight on her.

> >

> > Sharon

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Guest guest

Joyce,

I don't know if UVA does either of these procedures. Would I insult

the surgeon if I asked about about them when Mom goes for the

consultation?

Where is having the IMRT?

It is good to hear about his boat building; I am trying to help my

mother get quality time as well. Having something else to think

about has to help your husband.

Sharon

> > Friends,

> >

> > Mom saw the oncologist yesterday, and he was pleased that she is

> > seeing the radiological surgeon in re: an RFA. However, he said

> that

> > if she couldn't have that, there was nothing more he would

suggest

> > that she do. That does not seem right.

> >

> > Many of you are on chemo regimens that Mom has not had. She had

> six

> > months of 5FU/leuc. Maybe I just don't understand the situation

> > properly. Am I wrong to think that there might be other

> > possibilities?

> >

> > Mom is still losing weight. She said that she would eat ice

cream

> > and cake to fatten up if it were not for her diabetes. It's hard

> to

> > find things that will put some weight on her.

> >

> > Sharon

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Guest guest

Joyce,

I don't know if UVA does either of these procedures. Would I insult

the surgeon if I asked about about them when Mom goes for the

consultation?

Where is having the IMRT?

It is good to hear about his boat building; I am trying to help my

mother get quality time as well. Having something else to think

about has to help your husband.

Sharon

> > Friends,

> >

> > Mom saw the oncologist yesterday, and he was pleased that she is

> > seeing the radiological surgeon in re: an RFA. However, he said

> that

> > if she couldn't have that, there was nothing more he would

suggest

> > that she do. That does not seem right.

> >

> > Many of you are on chemo regimens that Mom has not had. She had

> six

> > months of 5FU/leuc. Maybe I just don't understand the situation

> > properly. Am I wrong to think that there might be other

> > possibilities?

> >

> > Mom is still losing weight. She said that she would eat ice

cream

> > and cake to fatten up if it were not for her diabetes. It's hard

> to

> > find things that will put some weight on her.

> >

> > Sharon

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Guest guest

Hi Sharon,

gets his IMRT at Cancer Therapy and Research in San ,

Tx. We just saw in our local newspaper they are going to double the

size again and supposidly going to be one of the #1 cancer centers

in the US.

I do a lot of research and found the IMRT and the SR radiation. I

then approached the Oncologist and he said it could be done right in

the same building in the Radiology Department. He actually called

the Radiologist and we went right down to discuss with him.

I would not think the surgeon would be as up to date on the

Radiology procedures as your Oncologist would be. The one thing I

have learned about surgeons is that they know what they do best and

then your off to your original physician. If I were in your shoes I

would ask your Mom's Oncologist about the procedures and if he

thinks she would be a candidate. Sharon, you might want to go to

google and type in IMRT or SR radiation and read up some more so you

can act like you know all about this procedure. 's Onc always

looks down at my hands to see what I am bringing in next. Deep in

my heart I feel like they probably would not have offered the

treatments to if I had not come in armed and ready.

Joyce

> > > Friends,

> > >

> > > Mom saw the oncologist yesterday, and he was pleased that she

is

> > > seeing the radiological surgeon in re: an RFA. However, he

said

> > that

> > > if she couldn't have that, there was nothing more he would

> suggest

> > > that she do. That does not seem right.

> > >

> > > Many of you are on chemo regimens that Mom has not had. She

had

> > six

> > > months of 5FU/leuc. Maybe I just don't understand the

situation

> > > properly. Am I wrong to think that there might be other

> > > possibilities?

> > >

> > > Mom is still losing weight. She said that she would eat ice

> cream

> > > and cake to fatten up if it were not for her diabetes. It's

hard

> > to

> > > find things that will put some weight on her.

> > >

> > > Sharon

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Guest guest

Hi Sharon,

gets his IMRT at Cancer Therapy and Research in San ,

Tx. We just saw in our local newspaper they are going to double the

size again and supposidly going to be one of the #1 cancer centers

in the US.

I do a lot of research and found the IMRT and the SR radiation. I

then approached the Oncologist and he said it could be done right in

the same building in the Radiology Department. He actually called

the Radiologist and we went right down to discuss with him.

I would not think the surgeon would be as up to date on the

Radiology procedures as your Oncologist would be. The one thing I

have learned about surgeons is that they know what they do best and

then your off to your original physician. If I were in your shoes I

would ask your Mom's Oncologist about the procedures and if he

thinks she would be a candidate. Sharon, you might want to go to

google and type in IMRT or SR radiation and read up some more so you

can act like you know all about this procedure. 's Onc always

looks down at my hands to see what I am bringing in next. Deep in

my heart I feel like they probably would not have offered the

treatments to if I had not come in armed and ready.

Joyce

> > > Friends,

> > >

> > > Mom saw the oncologist yesterday, and he was pleased that she

is

> > > seeing the radiological surgeon in re: an RFA. However, he

said

> > that

> > > if she couldn't have that, there was nothing more he would

> suggest

> > > that she do. That does not seem right.

> > >

> > > Many of you are on chemo regimens that Mom has not had. She

had

> > six

> > > months of 5FU/leuc. Maybe I just don't understand the

situation

> > > properly. Am I wrong to think that there might be other

> > > possibilities?

> > >

> > > Mom is still losing weight. She said that she would eat ice

> cream

> > > and cake to fatten up if it were not for her diabetes. It's

hard

> > to

> > > find things that will put some weight on her.

> > >

> > > Sharon

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Guest guest

Hi Sharon,

gets his IMRT at Cancer Therapy and Research in San ,

Tx. We just saw in our local newspaper they are going to double the

size again and supposidly going to be one of the #1 cancer centers

in the US.

I do a lot of research and found the IMRT and the SR radiation. I

then approached the Oncologist and he said it could be done right in

the same building in the Radiology Department. He actually called

the Radiologist and we went right down to discuss with him.

I would not think the surgeon would be as up to date on the

Radiology procedures as your Oncologist would be. The one thing I

have learned about surgeons is that they know what they do best and

then your off to your original physician. If I were in your shoes I

would ask your Mom's Oncologist about the procedures and if he

thinks she would be a candidate. Sharon, you might want to go to

google and type in IMRT or SR radiation and read up some more so you

can act like you know all about this procedure. 's Onc always

looks down at my hands to see what I am bringing in next. Deep in

my heart I feel like they probably would not have offered the

treatments to if I had not come in armed and ready.

Joyce

> > > Friends,

> > >

> > > Mom saw the oncologist yesterday, and he was pleased that she

is

> > > seeing the radiological surgeon in re: an RFA. However, he

said

> > that

> > > if she couldn't have that, there was nothing more he would

> suggest

> > > that she do. That does not seem right.

> > >

> > > Many of you are on chemo regimens that Mom has not had. She

had

> > six

> > > months of 5FU/leuc. Maybe I just don't understand the

situation

> > > properly. Am I wrong to think that there might be other

> > > possibilities?

> > >

> > > Mom is still losing weight. She said that she would eat ice

> cream

> > > and cake to fatten up if it were not for her diabetes. It's

hard

> > to

> > > find things that will put some weight on her.

> > >

> > > Sharon

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  • 4 weeks later...
Guest guest

> Does anyone know where I could take a CISM course to be able to help

others in the line of duty? Let me know please.

Haha! This has to be a plant!

Rob :)

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Guest guest

> Does anyone know where I could take a CISM course to be able to help

others in the line of duty? Let me know please.

Haha! This has to be a plant!

Rob :)

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Guest guest

CISM??? Isn't that a new cable sports channel???

Re: question

> Does anyone know where I could take a CISM course to be able to help

others in the line of duty? Let me know please.

Haha! This has to be a plant!

Rob :)

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Guest guest

CISM??? Isn't that a new cable sports channel???

Re: question

> Does anyone know where I could take a CISM course to be able to help

others in the line of duty? Let me know please.

Haha! This has to be a plant!

Rob :)

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  • 3 weeks later...
Guest guest

Is a pepper a chemical? I thought it was a vegetable....... Maybe

that's the dodge. It's a vegetable dispensing device.

Wayne D wrote:

>If this is considered such, which I don't think that it is, why can you buy

this at just about any store, and is available to the public?

>Wayne

>

>

>

>

>

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Guest guest

Is a pepper a chemical? I thought it was a vegetable....... Maybe

that's the dodge. It's a vegetable dispensing device.

Wayne D wrote:

>If this is considered such, which I don't think that it is, why can you buy

this at just about any store, and is available to the public?

>Wayne

>

>

>

>

>

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Guest guest

Here is my slant on the deal. Your there to treat. If you are in danger,

retreat. Notify law enforcement. If someone really wants to get at you, you

really will not have enough warning to spray. Otherwise you have enough warning

to retreat. If the issue of being attacked or hurt continues to bother you, you

might want to look for

other work. There is always the possibility that this may occur. You can't dwell

on it. If folks start arming themselves with the spray, what will they want to

carry next? The best defense you can have is always stay alert, pay attention to

your surroundings and read the scene. I have been doing this for over 30 sumpin

years and

it has worked for me.

Henry

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