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Ann

I have not had the headaches with the CoQ but was thinking the increase

might be too sudden. You might want to get some 10 mg caps and use them for

a very gradual increase. I ramp up on any increase.

laurie

>

> Reply-To:

> Date: Wed, 12 Mar 2003 10:04:59 -0600

> To:

> Subject: Re: Question

>

> Has anybody experienced increased headaches with CoQ10.

>

> I've had problems with headaches (I don't think they are migraines) for awhile

> - but recently as I've tried to increase the CoQ10 per my Doctor's orders, I

> have been having horrible headaches - nothing seems to help. They've even sent

> a PT to PT - it does seem to help for a little while, but no lasting relief,

> and honestly, over the course of time that they have been occurring on a more

> regular basis (since about January), they have just gotten more painful - more

> frequent and less and less relief with about anything I do.

>

> I started with 30mg twice a day - noticed improved GI motility - went up to 60

> mg twice a day - was fine - but have had trouble since increasing it to 100.

> GI motility seems worse, sometimes it brings on more nausea and these

> headaches have gotten extreme. Before I started thinking that the headaches

> might be related to the higher doses of CoQ10, I had pretty well gotten used

> to 100 and was beginning to try 130mg twice a day. My doctor wants me up to

> 200mg twice a day.

>

> Have never yet been able to tolerate 130 without vomiting (I've tried with

> food, without food etc), so I've been stuck at 100 for awhile - but as I've

> thought about the timing of these headaches, it seems to have gotten worse and

> worse the higher the dose of CoQ10.

>

> Anyway - any thoughts out there or other experiences with it?

>

> Thanks - Anne

>

> ----------------------------------------------------------------------------

>

> Tired of spam? Get advanced junk mail protection

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Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

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Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

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Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

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Thanks to all of you who answered me re: CoQ10. I have continued to have much less of a headache since I reduced the dose. Before I reduced it, I had 10 straight days of a monster headache that nothing helped. I can't say I'm headache free (and I definitely had some headache problems before I started the CoQ10 - but - I'm thinking that the higher dose made them MUCH worse.

AnneThe new MSN 8: smart spam protection and 2 months FREE*

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Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

But I guess, you need more than only a new hip to achieve that.... :(

question

Hallo to all you surfacehippies!

I am very happy to find a large group of people with common problem. Have a

question. I am 36 year old male, very active runner (competitive), but due

to my OA in right hip and total loss of cartilage, I am able to bike, only,

now. I am scheduling my BHR surgery sometimes this May in Columbia, SC with

Dr. Gross. Is there anyone who, after rehab, is trying to run again...please

let me know.

Thanx ya'll.

Dr. Miren Ivankovic

Director of Student Research

and Assistant Professor of Economics

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Guest guest

Hey , music to my ears to hear this....just to know it is pleasing to

me; will I do it remain to be seen (run again)

thanx,

Miren

Re: question

Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

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Guest guest

Hey , music to my ears to hear this....just to know it is pleasing to

me; will I do it remain to be seen (run again)

thanx,

Miren

Re: question

Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

Link to comment
Share on other sites

Guest guest

Hey , music to my ears to hear this....just to know it is pleasing to

me; will I do it remain to be seen (run again)

thanx,

Miren

Re: question

Hi Miren,

One of my hippy brothers, who was in Belgium with me a couple of

weeks ago, is a runner. I don't know if he's posting here but his

name is Eugene. I believe he said that he was the 3rd or 4th member

of his running group in Tulsa, OK to have resurfacing and they're all

back to running. I know he signed up to do the 100 mile Alaska run

this coming fall. 2/19/03 BHR DeSmet

> Hallo to all you surfacehippies!

> I am very happy to find a large group of people with common

problem. Have a

> question. I am 36 year old male, very active runner (competitive),

but due

> to my OA in right hip and total loss of cartilage, I am able to

bike, only,

> now. I am scheduling my BHR surgery sometimes this May in Columbia,

SC with

> Dr. Gross. Is there anyone who, after rehab, is trying to run

again...please

> let me know.

> Thanx ya'll.

>

> Dr. Miren Ivankovic

> Director of Student Research

> and Assistant Professor of Economics

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Guest guest

thanx for the update; I have seen his pictures--that is fantastic; how is he

doing now, middle of 2003; BHR still holding?

Miren

question

Hallo to all you surfacehippies!

I am very happy to find a large group of people with common problem. Have a

question. I am 36 year old male, very active runner (competitive), but due

to my OA in right hip and total loss of cartilage, I am able to bike, only,

now. I am scheduling my BHR surgery sometimes this May in Columbia, SC with

Dr. Gross. Is there anyone who, after rehab, is trying to run again...please

let me know.

Thanx ya'll.

Dr. Miren Ivankovic

Director of Student Research

and Assistant Professor of Economics

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Share on other sites

Guest guest

thanx for the update; I have seen his pictures--that is fantastic; how is he

doing now, middle of 2003; BHR still holding?

Miren

question

Hallo to all you surfacehippies!

I am very happy to find a large group of people with common problem. Have a

question. I am 36 year old male, very active runner (competitive), but due

to my OA in right hip and total loss of cartilage, I am able to bike, only,

now. I am scheduling my BHR surgery sometimes this May in Columbia, SC with

Dr. Gross. Is there anyone who, after rehab, is trying to run again...please

let me know.

Thanx ya'll.

Dr. Miren Ivankovic

Director of Student Research

and Assistant Professor of Economics

Link to comment
Share on other sites

Guest guest

thanx for the update; I have seen his pictures--that is fantastic; how is he

doing now, middle of 2003; BHR still holding?

Miren

question

Hallo to all you surfacehippies!

I am very happy to find a large group of people with common problem. Have a

question. I am 36 year old male, very active runner (competitive), but due

to my OA in right hip and total loss of cartilage, I am able to bike, only,

now. I am scheduling my BHR surgery sometimes this May in Columbia, SC with

Dr. Gross. Is there anyone who, after rehab, is trying to run again...please

let me know.

Thanx ya'll.

Dr. Miren Ivankovic

Director of Student Research

and Assistant Professor of Economics

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Guest guest

check out message #10339 and #12783. at his anniversary everything was still

great. As he is wearing-out his bhr ten times as fast the average resufacer,

i guess, i will reach my ten year mark without any problem! i can't wait

for his next report in july - mine virtual 15 year mark... :)

martin

RE: question

Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html>

But I guess, you need more than only a new hip to achieve that.... :(

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check out message #10339 and #12783. at his anniversary everything was still

great. As he is wearing-out his bhr ten times as fast the average resufacer,

i guess, i will reach my ten year mark without any problem! i can't wait

for his next report in july - mine virtual 15 year mark... :)

martin

RE: question

Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html>

But I guess, you need more than only a new hip to achieve that.... :(

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Guest guest

sounds great...very happy to hear that

thanx,

Miren

PS just got scheduled my surgery for May 12th; here we go!

RE: question

Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html>

< http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html> >

But I guess, you need more than only a new hip to achieve that.... :(

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Guest guest

sounds great...very happy to hear that

thanx,

Miren

PS just got scheduled my surgery for May 12th; here we go!

RE: question

Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html>

< http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html> >

But I guess, you need more than only a new hip to achieve that.... :(

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Guest guest

sounds great...very happy to hear that

thanx,

Miren

PS just got scheduled my surgery for May 12th; here we go!

RE: question

Hi Miren,

one of our members Dru Dixon posted a few times on this group. He is a

competition trialon athlete. At 8 month postop he finished as 3rd! You can

see a few pictures of him on dr. de Smet's website:

http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html>

< http://www.hip-clinic.com/en/html/post-op_triatlon.html

<http://www.hip-clinic.com/en/html/post-op_triatlon.html> >

But I guess, you need more than only a new hip to achieve that.... :(

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Miren,

As a former runner I know what you mean. Once running's in your

bones, it's always there. Take care. 2/19/03 BHR DeSmet

> > Hallo to all you surfacehippies!

> > I am very happy to find a large group of people with common

> problem. Have a

> > question. I am 36 year old male, very active runner

(competitive),

> but due

> > to my OA in right hip and total loss of cartilage, I am able to

> bike, only,

> > now. I am scheduling my BHR surgery sometimes this May in

Columbia,

> SC with

> > Dr. Gross. Is there anyone who, after rehab, is trying to run

> again...please

> > let me know.

> > Thanx ya'll.

> >

> > Dr. Miren Ivankovic

> > Director of Student Research

> > and Assistant Professor of Economics

>

>

>

>

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Guest guest

Miren,

As a former runner I know what you mean. Once running's in your

bones, it's always there. Take care. 2/19/03 BHR DeSmet

> > Hallo to all you surfacehippies!

> > I am very happy to find a large group of people with common

> problem. Have a

> > question. I am 36 year old male, very active runner

(competitive),

> but due

> > to my OA in right hip and total loss of cartilage, I am able to

> bike, only,

> > now. I am scheduling my BHR surgery sometimes this May in

Columbia,

> SC with

> > Dr. Gross. Is there anyone who, after rehab, is trying to run

> again...please

> > let me know.

> > Thanx ya'll.

> >

> > Dr. Miren Ivankovic

> > Director of Student Research

> > and Assistant Professor of Economics

>

>

>

>

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Guest guest

Miren,

As a former runner I know what you mean. Once running's in your

bones, it's always there. Take care. 2/19/03 BHR DeSmet

> > Hallo to all you surfacehippies!

> > I am very happy to find a large group of people with common

> problem. Have a

> > question. I am 36 year old male, very active runner

(competitive),

> but due

> > to my OA in right hip and total loss of cartilage, I am able to

> bike, only,

> > now. I am scheduling my BHR surgery sometimes this May in

Columbia,

> SC with

> > Dr. Gross. Is there anyone who, after rehab, is trying to run

> again...please

> > let me know.

> > Thanx ya'll.

> >

> > Dr. Miren Ivankovic

> > Director of Student Research

> > and Assistant Professor of Economics

>

>

>

>

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I have never understood how people can go through the discomfort of surgery and

recovery to then immediatly turn around and engage in risky behavior (i.e.

running) that most likely help damage their natural hip and probably will

shorten the life of the implant putting them right back in their previous

situation. As much as I used to enjoy running (and competing in triathlons), I

just don't do it anymore, and I don't intend to do it. I like this new hip of

mine too much to risk damage to it, and there are too many other pleasant things

out there to amuse me. I might be naive, but I intend to keep this hip of mine

a long, long time, and I intend to stay out of orthopeadic operating rooms.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

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I have never understood how people can go through the discomfort of surgery and

recovery to then immediatly turn around and engage in risky behavior (i.e.

running) that most likely help damage their natural hip and probably will

shorten the life of the implant putting them right back in their previous

situation. As much as I used to enjoy running (and competing in triathlons), I

just don't do it anymore, and I don't intend to do it. I like this new hip of

mine too much to risk damage to it, and there are too many other pleasant things

out there to amuse me. I might be naive, but I intend to keep this hip of mine

a long, long time, and I intend to stay out of orthopeadic operating rooms.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

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  • 11 months later...

Hildreth, chemo regimes vary. Some are given one week straight,

every day, with time off between the next treatment...others are

given one day a week for six weeks, and then time off...it all

depends. My husband currently goes once every two weeks for

Leuc/Oxaliplatin drip followed by 5fu push and then wears a pump the

administers 5fu over a period of 48 hours as an outpatient. He

unhooks himself and doesn't go back in for another two weeks. If my

mom partakes in a clinical trial for which her onc is recommending

her, she will go in 5 days straight, every day, and then two weeks

off. So again, it all depends what kind of chemo combo, dosage, etc.

Monika

> I know each case is different but can somebody give me a idea of

the average of how often chemo is given. Is it every day or does it

depend?

>

> Hildreth

>

>

>

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Hildreth, chemo regimes vary. Some are given one week straight,

every day, with time off between the next treatment...others are

given one day a week for six weeks, and then time off...it all

depends. My husband currently goes once every two weeks for

Leuc/Oxaliplatin drip followed by 5fu push and then wears a pump the

administers 5fu over a period of 48 hours as an outpatient. He

unhooks himself and doesn't go back in for another two weeks. If my

mom partakes in a clinical trial for which her onc is recommending

her, she will go in 5 days straight, every day, and then two weeks

off. So again, it all depends what kind of chemo combo, dosage, etc.

Monika

> I know each case is different but can somebody give me a idea of

the average of how often chemo is given. Is it every day or does it

depend?

>

> Hildreth

>

>

>

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Hildreth-There is some variation in chemotherapy protecols and types

of drugs given. I receive oxaliplatin once every two weeks, along

with oral Xeloda for 5 days. The infusion of oxaliplatin takes 2

hrs. I also lobbied to receive an infusion of calcium/magnesium for

1 hr before and 1 hr after, which some reports have shown to lessen

long term side effects.

As for who to go to, it may be worth visiting a larger cancer center

to get their suggestions since this change in the status of your

disease, even if you recieve treatments from an oncologist at a

smaller practice closer to home. Larger centers, which often preform

clinical trials are often have more experience with newer treatments,

and often work with local oncologists to optimize treatment.

Here is hoping that things go well,

Kris

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