Re: (unknown)

[Guest guest]

Okay, I don't know if there's anyone else here with a visually impaired

autistic child, but this is my thinking. When setting goals for , I

looked up what is developmentally appropriate for him to be doing. Then I

looked at his evaluations which told me what he IS doing. And I wrote the

goals from those two things -- building on the skills he already has and

working toward what is age-appropriate for him.

So what I think I would do would be to ask about what things other children

with visual impairments are usually doing, and make those the goals to work

toward.

As far as ABA, the technique wouldn't change but the methods would, if that

makes any sense. For example you would match textures instead of pictures,

or use brail cards instead of PECS. A good consultant would be able to come

up with a lot of really good ideas, I think. And you can always ask here if

you have specific things you need help with -- how do I teach him this when

he can't see it? We may not have experience with blindness but we can get

creative for you!

I hope that helps...sorry if I'm way off, like I said I don't have

experience with this. :/

-Sara.

[Guest guest]

Okay, I don't know if there's anyone else here with a visually impaired

autistic child, but this is my thinking. When setting goals for , I

looked up what is developmentally appropriate for him to be doing. Then I

looked at his evaluations which told me what he IS doing. And I wrote the

goals from those two things -- building on the skills he already has and

working toward what is age-appropriate for him.

So what I think I would do would be to ask about what things other children

with visual impairments are usually doing, and make those the goals to work

toward.

As far as ABA, the technique wouldn't change but the methods would, if that

makes any sense. For example you would match textures instead of pictures,

or use brail cards instead of PECS. A good consultant would be able to come

up with a lot of really good ideas, I think. And you can always ask here if

you have specific things you need help with -- how do I teach him this when

he can't see it? We may not have experience with blindness but we can get

creative for you!

I hope that helps...sorry if I'm way off, like I said I don't have

experience with this. :/

-Sara.

[Guest guest]

Okay, I don't know if there's anyone else here with a visually impaired

autistic child, but this is my thinking. When setting goals for , I

looked up what is developmentally appropriate for him to be doing. Then I

looked at his evaluations which told me what he IS doing. And I wrote the

goals from those two things -- building on the skills he already has and

working toward what is age-appropriate for him.

So what I think I would do would be to ask about what things other children

with visual impairments are usually doing, and make those the goals to work

toward.

As far as ABA, the technique wouldn't change but the methods would, if that

makes any sense. For example you would match textures instead of pictures,

or use brail cards instead of PECS. A good consultant would be able to come

up with a lot of really good ideas, I think. And you can always ask here if

you have specific things you need help with -- how do I teach him this when

he can't see it? We may not have experience with blindness but we can get

creative for you!

I hope that helps...sorry if I'm way off, like I said I don't have

experience with this. :/

-Sara.

[Guest guest]

Th anks for the suggestions, I really appreciate the support! It helps me

just to know that there is someone I can talk with (in the form of this

group) about these kinds of things.

Katrina

KatMoody@...

wife to Jim and Mommy to Bobby and Andy

" The Lord is my rock and my fortress and my deliverer; my God, my strength,

in whom I will trust; my shield and the horn of my salvation, my

stronghold. " --Psalm 18:2

>From: " The Byks " Reply-To: parenting_autism To: Subject:

>RE: (unknown) Date: Mon, 20 Jan 2003 18:49:18 -0500

>

>Okay, I don't know if there's anyone else here with a visually impaired

>autistic child, but this is my thinking. When setting goals for , I

>looked up what is developmentally appropriate for him to be doing. Then I

>looked at his evaluations which told me what he IS doing. And I wrote the

>goals from those two things -- building on the skills he already has and

>working toward what is age-appropriate for him.

>

>So what I think I would do would be to ask about what things other children

>with visual impairments are usually doing, and make those the goals to work

>toward.

>

>As far as ABA, the technique wouldn't change but the methods would, if that

>makes any sense. For example you would match textures instead of pictures,

>or use brail cards instead of PECS. A good consultant would be able to come

>up with a lot of really good ideas, I think. And you can always ask here if

>you have specific things you need help with -- how do I teach him this when

>he can't see it? We may not have experience with blindness but we can get

>creative for you!

>

>I hope that helps...sorry if I'm way off, like I said I don't have

>experience with this. :/

>

>-Sara.

>

>

>

>

>

>

>

[Guest guest]

Th anks for the suggestions, I really appreciate the support! It helps me

just to know that there is someone I can talk with (in the form of this

group) about these kinds of things.

Katrina

KatMoody@...

wife to Jim and Mommy to Bobby and Andy

" The Lord is my rock and my fortress and my deliverer; my God, my strength,

in whom I will trust; my shield and the horn of my salvation, my

stronghold. " --Psalm 18:2

>From: " The Byks " Reply-To: parenting_autism To: Subject:

>RE: (unknown) Date: Mon, 20 Jan 2003 18:49:18 -0500

>

>Okay, I don't know if there's anyone else here with a visually impaired

>autistic child, but this is my thinking. When setting goals for , I

>looked up what is developmentally appropriate for him to be doing. Then I

>looked at his evaluations which told me what he IS doing. And I wrote the

>goals from those two things -- building on the skills he already has and

>working toward what is age-appropriate for him.

>

>So what I think I would do would be to ask about what things other children

>with visual impairments are usually doing, and make those the goals to work

>toward.

>

>As far as ABA, the technique wouldn't change but the methods would, if that

>makes any sense. For example you would match textures instead of pictures,

>or use brail cards instead of PECS. A good consultant would be able to come

>up with a lot of really good ideas, I think. And you can always ask here if

>you have specific things you need help with -- how do I teach him this when

>he can't see it? We may not have experience with blindness but we can get

>creative for you!

>

>I hope that helps...sorry if I'm way off, like I said I don't have

>experience with this. :/

>

>-Sara.

>

>

>

>

>

>

>

[Guest guest]

Th anks for the suggestions, I really appreciate the support! It helps me

just to know that there is someone I can talk with (in the form of this

group) about these kinds of things.

Katrina

KatMoody@...

wife to Jim and Mommy to Bobby and Andy

" The Lord is my rock and my fortress and my deliverer; my God, my strength,

in whom I will trust; my shield and the horn of my salvation, my

stronghold. " --Psalm 18:2

>From: " The Byks " Reply-To: parenting_autism To: Subject:

>RE: (unknown) Date: Mon, 20 Jan 2003 18:49:18 -0500

>

>Okay, I don't know if there's anyone else here with a visually impaired

>autistic child, but this is my thinking. When setting goals for , I

>looked up what is developmentally appropriate for him to be doing. Then I

>looked at his evaluations which told me what he IS doing. And I wrote the

>goals from those two things -- building on the skills he already has and

>working toward what is age-appropriate for him.

>

>So what I think I would do would be to ask about what things other children

>with visual impairments are usually doing, and make those the goals to work

>toward.

>

>As far as ABA, the technique wouldn't change but the methods would, if that

>makes any sense. For example you would match textures instead of pictures,

>or use brail cards instead of PECS. A good consultant would be able to come

>up with a lot of really good ideas, I think. And you can always ask here if

>you have specific things you need help with -- how do I teach him this when

>he can't see it? We may not have experience with blindness but we can get

>creative for you!

>

>I hope that helps...sorry if I'm way off, like I said I don't have

>experience with this. :/

>

>-Sara.

>

>

>

>

>

>

>

[Guest guest]

No information for you, just wanted to say HI!!!

Sue

[Guest guest]

No information for you, just wanted to say HI!!!

Sue

[Guest guest]

No information for you, just wanted to say HI!!!

Sue

[Guest guest]

good luck with things

[Guest guest]

>I live in Minnesota and I have an appointment with the surgeon tomorrow to

>possibly schedule my hip replacement surgery. I found out about hip

>surfacing yesterday. I am 49. Hip resurfacing sounds like a great

choice.

>My question is how long do they say it will be until the hip needs

>resurfacing once again after it has been done once. In hip replacement

they

>use the 15 year mark. Rick

>

This is a " new " technology. Data only reliably goes back 11 or so years and

so that is all the longevity that can be claimed. However, the implant

itself should last about 300 years with normal usage. A THR actually

abrades rather than polishing and their are several failure modes with it.

The major problem with a THR is that there is a large loss of bone to

install it and this leads to more and more problems as time goes by, making

revisions more difficult. Here is a laundry list

* Stresses do not transfer through the bones normally, leading to

osteoporosis. (I just got a bone density scan and am _growing_ more bone.

Since my hip was slowly dissolving pre-op, I'm giddy to say the least.)

* In poly/metal implants, the accumulation of plastic debris causes

rejection of the implant. (No plastic in this implant.)

* Subsequent revisions lead to more bone loss. (So far the revisions have

been due to individual failure, i.e. there doesn't seem to be a

well-defined failure mode for these as of yet.)

* There are lots of restrictions in motion and activities. (I'm only

prohibited from bungee jumping and parachuting)

I (and several others on this list) have returned full tilt to sports with

no problems. A metal/poly THR restricts you to walking a total of 1 mile a

day to avoid wear on the implant. I jog 10+ miles a week on my doctor's

advice since it helps bone ingrowth. I am also a very active martial artist

and throw up to 500 head-level kicks a week plus I do lots of rolling,

falling and throwing (think demented gymnast). I spent a weekend recently

getting slammed on the mats and tied in knots (grappling workshop). Not

even a peep from the hip. Pre-op I was essentially frozen in one position.

It is expected that when trials are done in the US, this will become the

standard hip replacement.

Since a resurfacing preserves most bone, if it fails, you can get a THR and

at the least avoid the inherent problems longer. This is the current party

line in the US about why to get one. In the UK (where it has a much longer

history and is rapdily becoming a standard) it is now touted as the

procedure for active people. I went from the US to the UK and got my

resurfacing there.

I would get another resurfacing in a heartbeat if the other side needs it.

Your mileage may vary as they say, but I have nothing but an unqualified

success. I should quickly add that bone stock is the big factor in success.

If you have bad stock or other problems, then this might not be for you. It

is best to contact a resurfacing doctor asap and get an opinion.

Good Luck and Welcome Aboard!

-- Jeff

right BHR (Birmingham Hip Resurfacing)

Aug. 1, 2001

Mr. McMinn (the Grand Old Man of Hip Resurfacing)

>

>

>

>

>_________________________________________________________________

>MSN 8 with e-mail virus protection service: 2 months FREE*

>http://join.msn.com/?page=features/virus

>

>

>

>

[Guest guest]

Hi --

I live in ND -- today my OS gave me the name of a Dr. at Mayo - in Rochester

- it is :

Dr. Dan Berry -- anyone heard of him? Apparently he is recommending him to

me - however I do live only 6 hours away so that may be the reason -- If

anyone knows of him - or his experience with resurfacing -- please let me

know OK?

THANKS to all of you who are so good to respond to my request for

information -- I want to send you all flowers!

Margo (from Fargo)

[Guest guest]

Hi Barb:

Funny I just came across your email to Rick. I have an appointment with Dr.

Stachniw and Reva next Wed. to discuss my hip resurfacing. I have been

miserable for 2 years and have tried to hold back from THR. I found out about

this thru the news on local TV; and when I made an apt. with Dr. Stachniw's

colleage Dr. Gernant; he told me that Dr. Stachniw is now performing this. I

was so glad to hear this news. I have been told that he is good. Any feedback

would be appreciated.

Thanks,

Teri

P.S. I live in Monmouth, IL

(unknown)

Hi Rick,

Welcome to the group. This is where you will find your best

information on resurfacing. Reading old posts is a great way to get

some feel for what resurfacing is all about. Also go to

Activejoints.com and you'll be able to find all the doctors involved

in the resurfacing trials. I think my doctor is probably the

closest to you in Minnesota, I would recommend him very highly:

Dr. Myron Stachniw, M.D.

Galesburg Orthopedics

Galesburg, IL

Contact: Ms. Reva Hennenfent, RN

I welcome you to email me if I can help in any way.

Best,

Barb

> I live in Minnesota and I have an appointment with the surgeon

tomorrow to

> possibly schedule my hip replacement surgery. I found out about

hip

> surfacing yesterday. I am 49. Hip resurfacing sounds like a

great choice.

> My question is how long do they say it will be until the hip needs

> resurfacing once again after it has been done once. In hip

replacement they

> use the 15 year mark. Rick

>

>

>

>

>

> _________________________________________________________________

> MSN 8 with e-mail virus protection service: 2 months FREE*

> http://join.msn.com/?page=features/virus

[Guest guest]

How long will hip resurfacing last? Before mine, I asked the question of

Technologies (manufacturer of the Conserve Plus). They said that they

will only claim that, on average, it will last as long as a total hip

replacement. Personally, my hope is that it will last longer.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

[Guest guest]

Hi ph

Here in the UK we have a medical body called NICE (National Institute for

Clinical Excellence). They recommend that resurfacing is made available to

younger patients. This is basically on the grounds that it will be more cost

effective for our NHS (National Health Service) as it is anticipated Resurfacing

is likely to outlast THR in these patients. There is no definitive data to

prove this - it is currently being collected - but for a learned body (NICE) to

state what they have is some recognition in itself.

All 3 main prosthesis are similar and I cannot believe that there will be much

difference in data for each.

Most of the World accepts this informative body (NICE) as publishing informative

and correct publications - therefore your hope along with many others that it

will last longer is a fairly safe bet. I say fairly because as we have recently

been reminded by ( - my best wishes go to you) things do go wrong.

Rog

- Original Message -----

From: ph

To: surfacehippy

Sent: Friday, April 11, 2003 3:39 PM

Subject: RE: (unknown)

How long will hip resurfacing last? Before mine, I asked the question of

Technologies (manufacturer of the Conserve Plus). They said that they

will only claim that, on average, it will last as long as a total hip

replacement. Personally, my hope is that it will last longer.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

[Guest guest]

There was a chap spoken about on this board a while back - he had had a

successful m-on-m THR for 30 years - and no problems with it.

" ph " on 11/04/2003 15:39:50

To: surfacehippy

cc:

bcc:

, 11 April 2003, 3:39 p.m.

Contact:

Contact:

RE: (unknown)

How long will hip resurfacing last? Before mine, I asked the question of

Technologies (manufacturer of the Conserve Plus). They said that

they will only claim that, on average, it will last as long as a total hip

replacement. Personally, my hope is that it will last longer.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

[Guest guest]

There was a chap spoken about on this board a while back - he had had a

successful m-on-m THR for 30 years - and no problems with it.

" ph " on 11/04/2003 15:39:50

To: surfacehippy

cc:

bcc:

, 11 April 2003, 3:39 p.m.

Contact:

Contact:

RE: (unknown)

How long will hip resurfacing last? Before mine, I asked the question of

Technologies (manufacturer of the Conserve Plus). They said that

they will only claim that, on average, it will last as long as a total hip

replacement. Personally, my hope is that it will last longer.

_______________________________________________

No banners. No pop-ups. No kidding.

Introducing My Way - http://www.myway.com

[Guest guest]

I am not sure Af isnt really late Well she is but She isnt... She should

have been her monday I said Id give her till weds.....my cycle watch which I

just started Guessed Id have o'd about the 12th...........I dont know I hate

this........

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

(unknown)

> ....

>

> How many dpo are you? I know it took me til 18dpo to get a +++

>

> ~Tracie

>

>

>

>

>

> > good morning ladies...... Hope all is well..... I tested again this

> am, I know I said I wasn't going to but I did and it was a BIG FAT NO

> again...... its ok Maybe this wasnt my month.... Still no af..... no

> signs of her and why am i sick only at night?

> >

> >

> >

> >

> >

[Guest guest]

I am not sure Af isnt really late Well she is but She isnt... She should

have been her monday I said Id give her till weds.....my cycle watch which I

just started Guessed Id have o'd about the 12th...........I dont know I hate

this........

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

(unknown)

> ....

>

> How many dpo are you? I know it took me til 18dpo to get a +++

>

> ~Tracie

>

>

>

>

>

> > good morning ladies...... Hope all is well..... I tested again this

> am, I know I said I wasn't going to but I did and it was a BIG FAT NO

> again...... its ok Maybe this wasnt my month.... Still no af..... no

> signs of her and why am i sick only at night?

> >

> >

> >

> >

> >

[Guest guest]

I am not sure Af isnt really late Well she is but She isnt... She should

have been her monday I said Id give her till weds.....my cycle watch which I

just started Guessed Id have o'd about the 12th...........I dont know I hate

this........

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

(unknown)

> ....

>

> How many dpo are you? I know it took me til 18dpo to get a +++

>

> ~Tracie

>

>

>

>

>

> > good morning ladies...... Hope all is well..... I tested again this

> am, I know I said I wasn't going to but I did and it was a BIG FAT NO

> again...... its ok Maybe this wasnt my month.... Still no af..... no

> signs of her and why am i sick only at night?

> >

> >

> >

> >

> >

[Guest guest]

I think Ill give up and just wait for AF to show......... Its my first month

i was expecting too much......

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

(unknown)

> ....

>

> How many dpo are you? I know it took me til 18dpo to get a +++

>

> ~Tracie

>

>

>

>

>

> > good morning ladies...... Hope all is well..... I tested again this

> am, I know I said I wasn't going to but I did and it was a BIG FAT NO

> again...... its ok Maybe this wasnt my month.... Still no af..... no

> signs of her and why am i sick only at night?

> >

> >

> >

> >

> >

[Guest guest]

Thanks I think Ill go back to bed now.

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

Re: (unknown)

> I hate the waiting game. AF is usually on time for me...but you have

> to give her a few days sometimes. I hope she stays away for you

> though!

>

> Tracie

>

>

>

> > > > good morning ladies...... Hope all is well..... I tested again

> this

> > > am, I know I said I wasn't going to but I did and it was a BIG

> FAT NO

> > > again...... its ok Maybe this wasnt my month.... Still no af.....

> no

> > > signs of her and why am i sick only at night?

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks I think Ill go back to bed now.

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

Re: (unknown)

> I hate the waiting game. AF is usually on time for me...but you have

> to give her a few days sometimes. I hope she stays away for you

> though!

>

> Tracie

>

>

>

> > > > good morning ladies...... Hope all is well..... I tested again

> this

> > > am, I know I said I wasn't going to but I did and it was a BIG

> FAT NO

> > > again...... its ok Maybe this wasnt my month.... Still no af.....

> no

> > > signs of her and why am i sick only at night?

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Thanks I think Ill go back to bed now.

" FRIENDS ARE ANGELS WHO LIFT US TO OUR FEET WHEN OUR WINGS HAVE

TROUBLE REMEMBERING HOW TO FLY " .

-31

DH- Rick-31

DS- Ricky 12

DD-Brittany 11

DD- Clarissa 10

FD- le 5 Presently not with us:-(

TL- 12/92

TR- Dr. Levin 3/13/03

Left 6.5 cm

Right 6cm

Re: (unknown)

> I hate the waiting game. AF is usually on time for me...but you have

> to give her a few days sometimes. I hope she stays away for you

> though!

>

> Tracie

>

>

>

> > > > good morning ladies...... Hope all is well..... I tested again

> this

> > > am, I know I said I wasn't going to but I did and it was a BIG

> FAT NO

> > > again...... its ok Maybe this wasnt my month.... Still no af.....

> no

> > > signs of her and why am i sick only at night?

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

,

My cycle was messed up for the cycle I was in when I had the surgery and the

month after that. This one, my second cycle past reversal has been normal.

I am 7 dpo today!

Janice

(unknown)

> ....

>

> How many dpo are you? I know it took me til 18dpo to get a +++

>

> ~Tracie

>

>

>

>

>

> > good morning ladies...... Hope all is well..... I tested again this

> am, I know I said I wasn't going to but I did and it was a BIG FAT NO

> again...... its ok Maybe this wasnt my month.... Still no af..... no

> signs of her and why am i sick only at night?

> >

> >

> >

> >

> >