Re: (unknown)

October 19, 2002

Hi Jim,

Thanks for your response to my post. If you don't mind sharing can you feel

me in on a few things?

Did your TG go down sinificantly after the first ablation and then rise back up

or was there an uptake issue with the first ablation?. May I ask how much RAI

was used and how much are they planning on using this time? Do you know

your current TSH? We are schedule for our ablation doses on the same day if

my TSH gets high enough. Are you on the LID to prepare for the best RAI

uptake as possible?

Here's to a great uptake and ablation!

Deb :0)

> Debra:

>

> I am currently awaiting a second ablation (scheduled for a week from this

coming Monday) and my TG was 126 in July 2002 when I had a FBS. My TT

occured in August 2001.

>

> Jim

> (unknown)

>

> Wow! In preparation for my WBS on 10/25 and then RAI on 10/28 I went to

> have my TSH checked today and it's only at 11.52. This is a surprise since

> I have been off Synthroid since 9/19 and off Cytomel since this Monday.

> last time I was off Synthroid it only took one week to hit a TSH of 79!

>

> I am wondering if these low TSH means that the tissue that has come back

> after my TT in 10/99 is actually working and functioning as a thyroid gland.

> It appears to me that it is making the hormone thus the TSH isn't shooting

> up like before right after the TOTAL thyroid was removed.

>

> Is my body trying to make a thryoid gland again?

>

> You see, due to the pharmacy making a dosage error, I took only .75mg of

> Synthroid instead of my normal 175mg from Jan thru March of this year. In

> Dec (before the mix up) my TG was negative, thus where it should be.

How we

> found out that my Cancer (Thyroid Tissue) came back is, my TG in

September

> was 48 which is what people with NORMAL FUNCTIONAL thyroid glands

can have!!

> I don't think I have come across anyone on this board yet who has had a

TT

> report a TG anywhere near that high, right?

>

> What a crazy thing - maybe you and some of the other great helpers

> here can help me understand this better. In effect, could I be planning to

> ablate normal healthy thyroid tissue that is trying to compensate for my TT?

> It's my understanding that only a biopsy of the tissue can tell but then

> one biopsy can't cover the whole area and won't then it just keep growing?

> I'm getting kinda scared - could this mean I have lots of Cancer now. Can

> those Cancer cells produce normal Thyroid Hormone?

>

> If I have all this tissue growing, how is my TSH going to get high enough to

> ablate it.

>

> Of course, now this is blowing my schedule to pieces as I have a friend

> coming out from CA to provide childcare for he week following my ablation.

> The glowing mommy finally gets it all arranged, ticket bought and now this.

> Ugh.

>

> Thanks!

>

> Deb 0)

> A Confused Glowing Mommy

>

> Pap dx 10-99

> no f/u RAI

> Synthroid dosage error caused cancer to return

> off Synthroid since 9.19.02

> off Cytomel & On LID since 10.14.02

> preparing for WBS 10.25 and then

> RAI on 10.28.02

>

____________________________________________________________

_____

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

October 19, 2002

Hi Jim,

Thanks for your response to my post. If you don't mind sharing can you feel

me in on a few things?

Did your TG go down sinificantly after the first ablation and then rise back up

or was there an uptake issue with the first ablation?. May I ask how much RAI

was used and how much are they planning on using this time? Do you know

your current TSH? We are schedule for our ablation doses on the same day if

my TSH gets high enough. Are you on the LID to prepare for the best RAI

uptake as possible?

Here's to a great uptake and ablation!

Deb :0)

> Debra:

>

> I am currently awaiting a second ablation (scheduled for a week from this

coming Monday) and my TG was 126 in July 2002 when I had a FBS. My TT

occured in August 2001.

>

> Jim

> (unknown)

>

> Wow! In preparation for my WBS on 10/25 and then RAI on 10/28 I went to

> have my TSH checked today and it's only at 11.52. This is a surprise since

> I have been off Synthroid since 9/19 and off Cytomel since this Monday.

> last time I was off Synthroid it only took one week to hit a TSH of 79!

>

> I am wondering if these low TSH means that the tissue that has come back

> after my TT in 10/99 is actually working and functioning as a thyroid gland.

> It appears to me that it is making the hormone thus the TSH isn't shooting

> up like before right after the TOTAL thyroid was removed.

>

> Is my body trying to make a thryoid gland again?

>

> You see, due to the pharmacy making a dosage error, I took only .75mg of

> Synthroid instead of my normal 175mg from Jan thru March of this year. In

> Dec (before the mix up) my TG was negative, thus where it should be.

How we

> found out that my Cancer (Thyroid Tissue) came back is, my TG in

September

> was 48 which is what people with NORMAL FUNCTIONAL thyroid glands

can have!!

> I don't think I have come across anyone on this board yet who has had a

TT

> report a TG anywhere near that high, right?

>

> What a crazy thing - maybe you and some of the other great helpers

> here can help me understand this better. In effect, could I be planning to

> ablate normal healthy thyroid tissue that is trying to compensate for my TT?

> It's my understanding that only a biopsy of the tissue can tell but then

> one biopsy can't cover the whole area and won't then it just keep growing?

> I'm getting kinda scared - could this mean I have lots of Cancer now. Can

> those Cancer cells produce normal Thyroid Hormone?

>

> If I have all this tissue growing, how is my TSH going to get high enough to

> ablate it.

>

> Of course, now this is blowing my schedule to pieces as I have a friend

> coming out from CA to provide childcare for he week following my ablation.

> The glowing mommy finally gets it all arranged, ticket bought and now this.

> Ugh.

>

> Thanks!

>

> Deb 0)

> A Confused Glowing Mommy

>

> Pap dx 10-99

> no f/u RAI

> Synthroid dosage error caused cancer to return

> off Synthroid since 9.19.02

> off Cytomel & On LID since 10.14.02

> preparing for WBS 10.25 and then

> RAI on 10.28.02

>

____________________________________________________________

_____

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

October 19, 2002

Debbie:

My first abablation of 100mc of I-131 took place on October 23, 2001, following

the TT in late August 2001. I started out on .05 synthroid, subsequently

increased to .075, .01 and now I am on .125.

On October 23, 2001, the TSH was 4.08 (as it turns out not near high enough for

the I-131 to do its job effectively - I only found out within the last week or

so what the TSH level was at the time of the first ablation)

On December 19, 2001, the TSH was .07, while the Tg was 72.8.

On March 27, 2002 the TSH was 2.23, while the Tg was 37.5.

On May 31, 2002 the TSH was .53, while the Tg was 15.2.

On July 2, 2002 the TSH was 25.6 (of synthroid for four weeks and cytomel for

two weeks), while the Tg was 126.

On September 16, 2002 the TSH was .96, while the Tg was 100.

On October 8, 2002, my TSH was 18.6, while the Tg is not back yet.

As I noted above, the first ablation " may not " have done much good because of

the low TSH levels at the time and the possibility that not enough RAI was taken

up by the thyroid remenant. This time we are waiting for the levels to climb so

as to get maximum uptake. I am trying to follow a LID. If the ablation goes

ahead on October 28, I will have been of my synthroid for six weeks and my

cytomel for 4 weeks. I am scheduled for blood work this coming Monday so we

should now if the TSH levels are climbing as we hope. I do not believe I am not

feeling any hypo effects (I also did not feel hypo at the time of the first

ablation in October 2001 or at the time of my FBS in July 2002), which seems to

puzzle me?

Good luck!!

Cheers, Jim

(unknown)

>

> Wow! In preparation for my WBS on 10/25 and then RAI on 10/28 I went to

> have my TSH checked today and it's only at 11.52. This is a surprise

since

> I have been off Synthroid since 9/19 and off Cytomel since this Monday.

> last time I was off Synthroid it only took one week to hit a TSH of 79!

>

> I am wondering if these low TSH means that the tissue that has come back

> after my TT in 10/99 is actually working and functioning as a thyroid

gland.

> It appears to me that it is making the hormone thus the TSH isn't

shooting

> up like before right after the TOTAL thyroid was removed.

>

> Is my body trying to make a thryoid gland again?

>

> You see, due to the pharmacy making a dosage error, I took only .75mg of

> Synthroid instead of my normal 175mg from Jan thru March of this year. In

> Dec (before the mix up) my TG was negative, thus where it should be.

How we

> found out that my Cancer (Thyroid Tissue) came back is, my TG in

September

> was 48 which is what people with NORMAL FUNCTIONAL thyroid glands

can have!!

> I don't think I have come across anyone on this board yet who has had a

TT

> report a TG anywhere near that high, right?

>

> What a crazy thing - maybe you and some of the other great helpers

> here can help me understand this better. In effect, could I be planning

to

> ablate normal healthy thyroid tissue that is trying to compensate for my

TT?

> It's my understanding that only a biopsy of the tissue can tell but then

> one biopsy can't cover the whole area and won't then it just keep growing?

> I'm getting kinda scared - could this mean I have lots of Cancer now. Can

> those Cancer cells produce normal Thyroid Hormone?

>

> If I have all this tissue growing, how is my TSH going to get high enough

to

> ablate it.

>

> Of course, now this is blowing my schedule to pieces as I have a friend

> coming out from CA to provide childcare for he week following my ablation.

> The glowing mommy finally gets it all arranged, ticket bought and now

this.

> Ugh.

>

> Thanks!

>

> Deb 0)

> A Confused Glowing Mommy

>

> Pap dx 10-99

> no f/u RAI

> Synthroid dosage error caused cancer to return

> off Synthroid since 9.19.02

> off Cytomel & On LID since 10.14.02

> preparing for WBS 10.25 and then

> RAI on 10.28.02

>

____________________________________________________________

_____

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

January 18, 2003

Mallika,

I had my second myomectomy in 5 years this past October. I don't want a

hysterectomy and would have a 3rd myo in another 5 years if I have to. - A

great benefit of this online group is the multitude of experiences we share with

each other. This includes the women's experiences with alternatives to hysts,

which includes myomectomies and other medical procedures. The UAE sounds

interesting enough to explore further, but since my only experience has been

myos, I'll let the other women speak on this subject.

Good luck.

Joyce

(unknown)

Hi,

I'm new to the group. I'm 30 yrs old. I had an abdominal

myomectomy 8 years ago when 37 fibroids were removed. My fibroids

are back with a vengeance. My uterus is now the size of a 20-22

week pregnancy. The next step the gynecs recommend is a

hysterectomy. But they do say I should try postponing it as long

as possible, at least till I'm 40!!! Though, I don't have

abnormally heavy bleeding, I can't imagine living with all this

back pain and discomfort for the next 10 years.

Any suggestions?

Mallik

January 19, 2003

Thanks Joyce,

I'll certainly ask my doc about more myos. Meanwhile, can anyone

comment on the problems experienced after a hyst, if the ovaries

are left intact?

Mallika

April 14, 2003

You can order it on amazon.com, but & Noble also carries it. It's a

wealth of information...

Stefanie

on 4/14/03 9:59 PM, pesonthego at pesonthego@... wrote:

>

> ,

> Thank you so much for being so kind and replying. I sure wish I had

> you here to argue for Brittany.

> Is there a name for the verbal/nonverbal IQ test? Is this given thru

> the school system?

> Where can I purchase the book " From Emotions to Advocacy " ?

> Thanks again so much.

> a

April 14, 2003

You can order it on amazon.com, but & Noble also carries it. It's a

wealth of information...

Stefanie

on 4/14/03 9:59 PM, pesonthego at pesonthego@... wrote:

>

> ,

> Thank you so much for being so kind and replying. I sure wish I had

> you here to argue for Brittany.

> Is there a name for the verbal/nonverbal IQ test? Is this given thru

> the school system?

> Where can I purchase the book " From Emotions to Advocacy " ?

> Thanks again so much.

> a

April 14, 2003

You can order it on amazon.com, but & Noble also carries it. It's a

wealth of information...

Stefanie

on 4/14/03 9:59 PM, pesonthego at pesonthego@... wrote:

>

> ,

> Thank you so much for being so kind and replying. I sure wish I had

> you here to argue for Brittany.

> Is there a name for the verbal/nonverbal IQ test? Is this given thru

> the school system?

> Where can I purchase the book " From Emotions to Advocacy " ?

> Thanks again so much.

> a

April 25, 2003

Welcome! Many of us have felt like you do. All you can do is take it a day at a

time. If you have to, take it an hour at a time. If you are feeling bad about

the gym membership, then try to go once. Stay for how ever many minutes you can

deal with. Promise yourself that you will give it more than one try. Go three

times and see how it feels. This is hard, really hard but the alternative is

worse. We're all out here and will help you along as best we can. Jinx

(unknown)

Well, I am new here so I thought I should introduce myself. My name

is , I am almost 25 yrs old. Married with 3 children and we

live in Denver, Co.

Of course like most woman I have put on weight with each child. I am

a SAHM and I am not very active. I couldn't tell you how much I weigh

as I am afraid to get onto a scale. Last time I weighed myself I was

close to 190 pounds... OMG it even hurts to type it. Anyway,

although I don't feel skinny, I certainly don't feel as big as I

really am. Did that make sense??

A friend of mine gave me a photo that she had taken of me posing with

my kids at easter. I took one look at the photo and wanted to shred

it up into tiny pieces. How could I have let myself go so far???? I

honestly don't see how my husband can even look at me.

I NEED to lose weight. I can't seem to find the motivation to go for

longer than a month. I paid nearly $300 for a Lady Fitness

membership just over a year ago. I worked out hard, 4 days a week 1.5

hrs each time. Guess how much weight I lost in 4 months?? 2 POUNDS!

Talk abut a letdown. I guess I am in the frame of mind now that no

matter how much I work out, the weight is not going anywhere. So I

rarely go there anymore... My 3 year membership is wasting away.

They don't give refunds.

How do I get out of this hole???

~

April 25, 2003

Welcome! Many of us have felt like you do. All you can do is take it a day at a

time. If you have to, take it an hour at a time. If you are feeling bad about

the gym membership, then try to go once. Stay for how ever many minutes you can

deal with. Promise yourself that you will give it more than one try. Go three

times and see how it feels. This is hard, really hard but the alternative is

worse. We're all out here and will help you along as best we can. Jinx

(unknown)

Well, I am new here so I thought I should introduce myself. My name

is , I am almost 25 yrs old. Married with 3 children and we

live in Denver, Co.

Of course like most woman I have put on weight with each child. I am

a SAHM and I am not very active. I couldn't tell you how much I weigh

as I am afraid to get onto a scale. Last time I weighed myself I was

close to 190 pounds... OMG it even hurts to type it. Anyway,

although I don't feel skinny, I certainly don't feel as big as I

really am. Did that make sense??

A friend of mine gave me a photo that she had taken of me posing with

my kids at easter. I took one look at the photo and wanted to shred

it up into tiny pieces. How could I have let myself go so far???? I

honestly don't see how my husband can even look at me.

I NEED to lose weight. I can't seem to find the motivation to go for

longer than a month. I paid nearly $300 for a Lady Fitness

membership just over a year ago. I worked out hard, 4 days a week 1.5

hrs each time. Guess how much weight I lost in 4 months?? 2 POUNDS!

Talk abut a letdown. I guess I am in the frame of mind now that no

matter how much I work out, the weight is not going anywhere. So I

rarely go there anymore... My 3 year membership is wasting away.

They don't give refunds.

How do I get out of this hole???

~

April 27, 2003

Hi

Welcome to our happy little group, lol.

I'm sure you will find the motivation and support you

need in here, just jump in where ever you like.

Can I just say that as great as your workouts were,

they needed to be combined with a sensible eating

regime and drinking lots of water.

If you can go back and read some of the older posts,

there are some great ideas and info in them, I'm sure

you will find something to help you. Again Welcome.

Hugs

Sue H.

=====

Anything that knocks you off track does so because you have allowed it to.

__________________________________________________

Yahoo! Plus

For a better Internet experience

http://www.yahoo.co.uk/btoffer

April 27, 2003

Hi

Welcome to our happy little group, lol.

I'm sure you will find the motivation and support you

need in here, just jump in where ever you like.

Can I just say that as great as your workouts were,

they needed to be combined with a sensible eating

regime and drinking lots of water.

If you can go back and read some of the older posts,

there are some great ideas and info in them, I'm sure

you will find something to help you. Again Welcome.

Hugs

Sue H.

=====

Anything that knocks you off track does so because you have allowed it to.

__________________________________________________

Yahoo! Plus

For a better Internet experience

http://www.yahoo.co.uk/btoffer

April 27, 2003

Hi

Welcome to our happy little group, lol.

I'm sure you will find the motivation and support you

need in here, just jump in where ever you like.

Can I just say that as great as your workouts were,

they needed to be combined with a sensible eating

regime and drinking lots of water.

If you can go back and read some of the older posts,

there are some great ideas and info in them, I'm sure

you will find something to help you. Again Welcome.

Hugs

Sue H.

=====

Anything that knocks you off track does so because you have allowed it to.

__________________________________________________

Yahoo! Plus

For a better Internet experience

http://www.yahoo.co.uk/btoffer

April 28, 2003

,

Welcome! I'm Gena, 38, married almost 20 yrs, with 2 girls 19 and 13

yrs old. We live in Alaska. I know exactly how you feel about the

weight! You sound just like me! I used to cry and cry because I didn't

know how hubby could stand to look at me none the less touch me. Thing

is, I finally realized, my weight is not WHO I am. You have to love

yourself on the inside in order to care enough to take care of

yourself. When I got pregnant with my 19 yr old I was 128, I am 5'3 " .

At my heaviest I was 284 (Oct 2000). So far I am 208. It doesn't matter

what is in the past. The thing is what you do now. Just work on

lifestyle, habits and behaviors. Making little changes like watching

portions, eating off of smaller plates, taking smaller bites, chewing

thoroughly, parking farther away, taking steps instead of elevators,

drinking more water, ect... it all adds up! It has to be a new

lifestyle, things you can keep doing or the weight wont stay off. I

hope to hear more from you.

Start with using that membership! I guarantee that getting there is

half the battle. Once you are there, you may as well workout. :-) Just

take it slow, build up gradually. Patience and consistency are very

important. Going 3-4 times a week for 20 min is better then none at

all. I workout at home and my thing is 10 minutes. I tell myself get

on the tread for 10 min and once I'm on there, 9 out of 10 times, I go

more. It really is the getting going that is the hardest part. Getting

out of " that hole " you ask? You have to believe you are worth it and

that this is what you really want. Don't just think about it for the

weight loss. Think about it as taking care of yourself to be healthy,

to live longer, to feel good and to be there for your kids. You can do

this! We will be here for you!

Gena

> Well, I am new here so I thought I should introduce myself. My name

> is , I am almost 25 yrs old. Married with 3 children and we

> live in Denver, Co.

>

> Of course like most woman I have put on weight with each child. I am

> a SAHM and I am not very active. I couldn't tell you how much I weigh

> as I am afraid to get onto a scale. Last time I weighed myself I was

> close to 190 pounds... OMG it even hurts to type it. Anyway,

> although I don't feel skinny, I certainly don't feel as big as I

> really am. Did that make sense??

>

> A friend of mine gave me a photo that she had taken of me posing with

> my kids at easter. I took one look at the photo and wanted to shred

> it up into tiny pieces. How could I have let myself go so far???? I

> honestly don't see how my husband can even look at me.

>

> I NEED to lose weight. I can't seem to find the motivation to go for

> longer than a month. I paid nearly $300 for a Lady Fitness

> membership just over a year ago. I worked out hard, 4 days a week 1.5

> hrs each time. Guess how much weight I lost in 4 months?? 2 POUNDS!

> Talk abut a letdown. I guess I am in the frame of mind now that no

> matter how much I work out, the weight is not going anywhere. So I

> rarely go there anymore... My 3 year membership is wasting away.

> They don't give refunds.

>

> How do I get out of this hole???

>

> ~

>

April 28, 2003