Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Rita, I'm here. Maybe everyone slept in this morning........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 Dear Rita, It is a quiet day for some reason. I just got on late this afternoon and tonight. Not much! Our 8 year old daughter was in a talent show at her school. She did a beautiful job. I am very proud she did it. She is VERY shy. We went out tonight to celebrate a great job. Tommorrow she makes her First Reconciliation. It is great when a child shines. God bless the children. I know he blesses the parents with them. Until they are 13 or so and then it is a different story And believe me they are great and I love them so much too. But it is a different ballgame! And I don't even flinch until they want to pierce their........ Yes! Yikes! Rita I really wanted to tell you what a sweetheart you are. I enjoy your posts. You have had PLS for 30 years? I have had it for 19(20) years. Do you have problems in arms and legs, voice and swallowing? Well I just wanted to say Hi! Have a wonderful weekend. Goodnight,Rita. (unknown) > have not had one PLS posting today???? > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 Me Too! Rita.....I was thinking I lost PLS-Friends again. It was a nightmare. I am on AOL. I had so many people (those whose names I had) trying to get me back in. I think it was who finally put me back into it, by signing me up for mail from people who communicated about cats. Yes, you read me right. I still have them in my Yahoo server. I'm afraid to take it out. I, like you, thought I lost my " Friends. " I really hope not. Well, the best we can do is wait. I will add you to my address book just in case. This way we can mail each other. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 Hi : Thank you for saying such a nice thing about me, that was very sweet of you. I know how special it is when we have a child do something special like Reconciliation. I have a grandson born in July and is finally going to be Baptized in January. Seems like in some cases these events are not to important. This drives me crazy. Oh well, we can't live our children's lives for them. Yes approximately 30 years. I am one of the lucky one's. My biggest problem has always been balance and getting up from a sitting position. My lift chair was my first apparatus purchased, I am now on my second chair. I truly feel by trying to control the stress in my life, has helped me maintain the level of progression that I have with PLS. Now I am almost 68, and I feel that age has contributed to my condition, along with my weight. Up until a year ago I managed very well with just my walker, but then, after a very stressful incident in my life, I never bounced back. Now I can't walk on my own, and use my walker and power chair. I have very little weakness in my arms. As for speech I really don't have to much of a problem. Only if I get over tired, then I start slurring my words. There are times when I choke, but thats my own fault for not avoiding things that make me choke, like seeded bread, peanuts and things like that. Plus I have a partial plate (that I hate) and my food doesn't get chewed properly at times(now you know all about my spare parts). So thats about it as far as me and how I deal with having PLS. So thanks again for your kind words! Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2004 Report Share Posted January 3, 2004 Sandy, I find that I sleep very hard and hardly move at night so getting up in the morning I am very stiff. I use to use a soft pillow but got a firmer one. It evaluates my neck to a more level angel and it helped..............Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Yep mamadee you sure are. Galen....it's nice here in California too. :-) Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 I am very excited I received my own message back from PLS Friends. Don't know why or what I did right. but yippee! Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi Guys: Am I getting thru to PLS Friends? Please let me know! Rita Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Getting through to sunny, delightful, warm Waterfall State. >Hi Guys: > >Am I getting thru to PLS Friends? Please let me know! > >Rita > >Love & Hugs Here Also! Galen Hekhuis NpD, JFR, GWA ghekhuis@... We are the CroMagnon of the future Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 You made it through to the snowy North Rita. Jo Re: (unknown) > Hi Guys: > > Am I getting thru to PLS Friends? Please let me know! > > Rita > > Love & Hugs Here Also! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 That is not what I needed to hear Galen. Our snow banks are about 7-8 feet high!!!!!!!!!!! And when it isn't snowing we are in a DEEP FREEZE. Hurry up Spring. Jo! Re: (unknown) > Getting through to sunny, delightful, warm Waterfall State. > > > > >Hi Guys: > > > >Am I getting thru to PLS Friends? Please let me know! > > > >Rita > > > >Love & Hugs Here Also! > > Galen Hekhuis NpD, JFR, GWA ghekhuis@... > We are the CroMagnon of the future > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Hi Rita, Love and hugs to you! Re: (unknown) > Hi Guys: > > Am I getting thru to PLS Friends? Please let me know! > > Rita > > Love & Hugs Here Also! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 I am getting responses to my post, but can't get your's to the group Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Rita heres a thaught you have 2 seperate e-mail addresses and you are trying to sign into the group using the both of them and the same user name thats problably why your having problems it recognizes the old one and not the new one so you need to quit with the old one andf join again using the new one ??????????? I dont think it will recognize both GEO (unknown) I want to thank every one who responded to my request to write to me at my new address mamadee1@..., it sure helped. I sure hope it is worth the effort. I can still use this address, but won't only occasionally. and Mark: Thanks for helping me get back to PLS Friends. I have had lots of problems with getting back, keeps rejecting my new address and password. I have been sitting here for 2 hours (almost to the point of tears) trying. Maybe tomorrow will be thinking better. Please respond to my new address. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Congradulations i dont know why but you did it Re: (unknown) I am very excited I received my own message back from PLS Friends. Don't know why or what I did right. but yippee! Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Your here Re: (unknown) Hi Guys: Am I getting thru to PLS Friends? Please let me know! Rita Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Well were having a heat wave here in Illinois 25 Re: (unknown) Yep mamadee you sure are. Galen....it's nice here in California too. :-) Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 That makes sense Geo! I had the same problem at one time. (unknown) > > > I want to thank every one who responded to my request to write to me > at my new address mamadee1@..., it sure helped. I sure hope it is > worth the effort. I can still use this address, but won't only > occasionally. > > and Mark: Thanks for helping me get back to PLS Friends. I have > had lots of problems with getting back, keeps rejecting my new address > and password. I have been sitting here for 2 hours (almost to the point > of tears) trying. > > Maybe tomorrow will be thinking better. Please respond to my new > address. > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 Geo: Everything seems to be working fine now. Once I get my old name off, I should be home free. Rita Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2004 Report Share Posted February 6, 2004 COOL Re: (unknown) Geo: Everything seems to be working fine now. Once I get my old name off, I should be home free. Rita Love & Hugs Here Also! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2004 Report Share Posted February 7, 2004 Yah even a blind squirel can find an accorn once in a while GEO (unknown) > > > I want to thank every one who responded to my request to write to me > at my new address mamadee1@..., it sure helped. I sure hope it is > worth the effort. I can still use this address, but won't only > occasionally. > > and Mark: Thanks for helping me get back to PLS Friends. I have > had lots of problems with getting back, keeps rejecting my new address > and password. I have been sitting here for 2 hours (almost to the point > of tears) trying. > > Maybe tomorrow will be thinking better. Please respond to my new > address. > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > -------------------------------------------------------------------------- ---- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi sue. I was diagnosed very young and also they found a tumor on my ovaries at 20. I too feel the same because my chances are even slimmer than most. I just think that there is a reason why this has happened and maybe that is not my destiny. Try to stay positive for you that might not be the case. Lorrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Hi Sue, I was diagnosed at age 9, I have 3 children now. I had tottally normal pregnancies, in fact my doc told me he wished all his patients pregnancies went as smooth as mine did. Sharon (unknown) Hi I have just been diagnosed with IGAN. I was devasted to learn that it will probably mean I will not be able to have children. I would like to hear from anyone that has had children with the disease. Sue --------------------------------- WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Welcome to the group Sue. It may or it may not. You will see that there are many women with IgAN who did have children successfully. On the other hand, as the list-owner, I feel a responsibility to say that this doesn't mean you should ignore your doctor's recommendation when the time comes. There are many variables to consider. Good luck. Pierre (unknown) > Hi I have just been diagnosed with IGAN. I was devasted to learn that it will probably mean I will not be able to have children. I would like to hear from anyone that has had children with the disease. > > Sue > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 I'm only in my early 20's and was just diagnosed two years ago. My nephs have all been positive that some day I may just be able to carry children. Not now due to all the meds, but some day in the future. So don't give up hope just yet. You never know what miracle, big or small, God may send your way. Jen (unknown) Hi I have just been diagnosed with IGAN. I was devasted to learn that it will probably mean I will not be able to have children. I would like to hear from anyone that has had children with the disease. Sue --------------------------------- WIN FREE WORLDWIDE FLIGHTS - nominate a cafe in the Yahoo! Mail Internet Cafe Awards Quote Link to comment Share on other sites More sharing options...
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