thank you

[Guest guest]

I don't know if I mentioned this before, but today, I

start my 25th week. It's all downhill from here!!! I

see the dr today and later this month I take my 6

month PCR, which I'm excited and anxious about.

I ran out of Wellbutrin, I asked my wife what am I

going to do when I don't experience that unusual sense

of well-being today!?! (that is a reported side

effect, which I haven't yet had trouble with)

-dz-

__________________________________________________

[Guest guest]

dz I have many days of no well being. Maybe that iswhy you haven't had them, they are mostly here with me. Good luck on the remaining tx. I am with you!!!

[Guest guest]

dz,

can you call the Dr. to have him call in for a refill??? or do you

go to the va????

[Guest guest]

okay what did I miss??? Glad to see ya on Diane.

[Guest guest]

Thankyou dx, If anyone in the group has info that I can bring with me tomorrow for my hearing could you please send it to me?? Anything would help!! If anyone is receiving disability for this dragon can you tell me what would help. It seems just seeing me tomorrow would be reason enough but you know how the system works!!

[Guest guest]

I am not a veteran. But Walgreens has this cool

website, I can order a refill of any drug I have had

filled there, and if it hasn't already been approved

they will call the dr for me. It's handy, but of

course, I pay dearly for my insurance and even my

copays are adding up, compared to VA bennies...., but

the convenience is nice.

--- diane214@... wrote:

> dz,

> can you call the Dr. to have him call in for a

> refill??? or do you

> go to the va????

>

>

__________________________________________________

[Guest guest]

I'm praying for you, Janet. It's very frustrating when

your friend is suffering and you can't help. My words

sound hollow, but know that my spirit is reaching out

for you wanting to help. Hang in there, each day even

though your body may feel weaker, your spirit is

growing stronger. -dz-

--- Jannewilms42@... wrote:

> dz I have many days of no well being. Maybe that

> iswhy you haven't had them,

> they are mostly here with me. Good luck on the

> remaining tx. I am with you!!!

>

__________________________________________________

[Guest guest]

The Judge has 3 months to make his decision. He is one of those straight faced Judges so you can't read him but I think it went well. Time will tell but I went with the attitude I wouldn't get it so I woudn't be disappointed. Good things come to those who wait. Waiting is what I am doing. Thanks for everyone's thoughts and prayers.

[Guest guest]

I will continue to pray that you get a favorable

decision. -dz-

--- Jannewilms42@... wrote:

> The Judge has 3 months to make his decision. He is

> one of those straight

> faced Judges so you can't read him but I think it

> went well. Time will tell

> but I went with the attitude I wouldn't get it so I

> woudn't be disappointed.

> Good things come to those who wait. Waiting is what

> I am doing. Thanks for

> everyone's thoughts and prayers.

>

__________________________________________________

[Guest guest]

Hi Jan, I'm not sure about disability--I know there are a number of attorneys that specialize in that though. It seems like Fran knew quite a bit about it. Someone else was wondering about that a few months ago. Let us know how it goes. Sherry Re: [ ] Thank You Thankyou dx, If anyone in the group has info that I can bring with me tomorrow for my hearing could you please send it to me?? Anything would help!! If anyone is receiving disability for this dragon can you tell me what would help. It seems just seeing me tomorrow would be reason enough but you know how the system works!!

[Guest guest]

HI Lee-Anne

I just read your second post to the group and my heart goes out to you. I know the dilemma of wanting and needing the relief so badly and having it right at hand, albeit with side effects. In fact, I'm going through a pretty rough time with pain myself. All my joints are hurting. Want to hear something really really silly.

I went out the other night with my husband and wanted to have a drink...liquor.

So I opted not to take the celebrex which has been keeping the pain at bay.

Since it doesn't make me feel like I have a life back or anything dramatic as that...just lets me move around better but still feel a lot of the pain, it was an easy choice.

I'm on day four of not taking the celebrex...figured it was a good time to try and wean off. Well, I've been mostly in bed, sound asleep for the last four days. I'm in a lot of pain and not able to move around, but dang blasted, my head is sooo clear. I just hate celebrex.

So I truly do understand your dilemma...since I have been feeling so much better, when I get into pain now, I don't handle it nearly as well. I sometimes fall into feeling sorry for me, getting into the pain and all that blah blah blah.

here's a little story for you about handling the pain...I have a dog. he has very bad displasia in his hips...he's almost ten years old. When he's in pain, he keeps on doing everything he always does...just slower. He's stubborn about his independence. He NEVER gets cranky with us...not ever.

He's always willing to be petted or treated! What a great disposition and he's ALWAYS in pain. How great is that?

His hips resulted in his knees going totally out of whack. The doc said he needed an operation, but we would have to cage him up for six weeks' recovery. The alternative was to let the knees go arthritic, wherein they would stiffen up, he would have pain, but he would have use of them. He's a hundred pound animal by the way.

Soo, we prayed over it and made the decision not to operate. We used a towel around his midriff to "carry" him up and downstairs. He used his front paws to move his front half and we were his legs in back with the towel. After about two weeks of this...HE got sick of it, and refused to go up using the towel. ...insisted on going up by himself. Well, he's walking around now.

Admittedly, he is on pain meds for his displasia, so it helped when he had pain from his needs, but this animal has taught me how to act when I'm in pain. Not to let it change who I am, and to stay in the present, with the hope that things WILL get better. If you are living in the moment, then each moment of pain is bearable. If you think about all the moments you might be in pain, that's when it really gets to you.

So old Wolfie taught me about being in the moment. He taught me about handling pain...not to let it turn me into the cranky old ladies I have seen all my life who have arthritis, but who also have something else they're living with...some kind of "demon" who takes over their real personality and doesn't allow them quality of life.

That's what we're up against here, my friend. You have to decide if the pred is going to help you regain your quality of life and if you want to deal with the side effects and the eventual withdrawal you might have when you need to go off of it again. Each person is an individual. If you think that you absolutely need this stuff right now, to be able to go on, then you have to take it. If you think you can squeak by for another while till something better comes along, then don't. See...you won't die from it, and you won't have long-term effects if you use it correctly, but it is a very hard thing to kick once you get used to the good feeling it brings. And then of course, there's the way the body begins to like its effects too, and shuts down its own operation of cortizone.

It's a hard decision, but at least when you see the options clearly, you can see what's right for you. It's all individual, even though we're in a group here. There is no right or wrong about it. I used to judge myself severely for being such a baby...crying when I was in pain...I still forget sometimes when it really hurts not to judge myself for being weak, for needing drugs still, blah blah blah.

God doesn't judge, so who am I to?

My best wishes and prayers go to you at this hard time in your life.

[Guest guest]

In a message dated 10/30/01 2:21:11 PM Eastern Standard Time,

jsloane@... writes:

> Thanks to those of you who were kind enough to reply, whether you

> knew the answers to my questions or not!

> One good intention goes a long, long way!

> Thanks, again.

>

> Faith not Fear,

>

>

>

I was wondering If I could ask you a question. I've had Lyme since 1992

and have been disabled from it since 1994...I also have Babesia an Erlichia..

How did you find out you had Micoplasms and how was it found?

Thanks so much

[Guest guest]

Dear LymeDizzy,

Sorry, I didn't see this posting until this morning, but it looks

like Sue has you covered.

My testing was down at both MDL labs and IGeneX. Unfortunately, I

have NO insurance, but after 14 years, I HAD to KNOW as much as I

could to TREAT this mess, finally! If you need any information on

the labs, just e-mail me.

Living in Faith not Fear,

>

> In a message dated 10/30/01 3:14:21 PM, LymeDizzy@a... writes:

>

> << I was wondering If I could ask you a question. I've had

Lyme since

> 1992

> and have been disabled from it since 1994...I also have Babesia an

Erlichia..

> How did you find out you had Micoplasms and how was it found?

> Thanks so much

> >>

>

> MDL (Medical Diagnostic Labs) in Mt. Laurel, NJ, www.mdlab.com,

toll free

> 877-269-

> 0090. My insurance DID cover it!!!!

> Each test is approximately $169. They do NOT do ehrlichia, not

equipped. I

> would NOT do lyme/babesia/ehrlichia here, I would use IGENEX in

Cal.

> www.igenex.com

> sue in nj

> sue massie

[Guest guest]

>>Hi all, thank you for your responses. I thought I was pretty sly with

that year long prescription :0) I'll have to go back and redo the exp.

dates<<

Just a thought for the future, Kimmie... (and PS I did the same thing,

stockpiling, when my coverage was going to be suspended for awhile : )

.....At my small local pharmacy they are very accomodating to patients who

have limited income, and will break a prescription up for those who cannot

pay for it all at once. I have one prescription that is not covered by my

health benefits, and the doc writes it for 100 tablets, which I get filled

for 25 tablets with 3 refills on it. I do it because it is a lot out of

pocket for me at once, but it occurred to me that this might be a way for

those " stockpiling " for future uincertainty to have it filled a little at a

time, so the supply is fresher. There are time deadlines past which they

have to call in to the doc for a renewal, so be sure to ask how long the

script is good for if you do it this way. Also, be sure to keep minocin in

a dark and dry place so it keeps better (like most medications).

And your doctor should not be in fear for his license for prescribing

minocin....Good heavens! Minocycline is one of the drugs listed on the new

American College of Rheumatology guidelines for RA treatment...maybe it is

time to print out some references to take him? Could be that he has been so

busy treating that he is a little behind the times on this? (the ACR

guidelines can be accessed in a pdf file at www.rheumatology.org )

Glad to hear you are feeling better spiritually....that can make a WORLD of

difference in your recovery, and may be a sign that the illness is

lessening. Depression is part of it and may be the source of your past

feelings of bitterness. Not that I recall any bitterness in your postings,

but maybe I should go do an archive search just for kicks, now that you have

told on yourself?

< wicked grin> Take Care, Liz G.

[Guest guest]

Hi Liz, the reason for the apalogy is that I have been told that ever since I got RA my anger and depression shows through in the way I approach people in conversations. I know and have caught myself doing it but for the most part I was unaware. But then again this is coming from my ex, so who knows, I don't know if I have really been that bad. I have had many uotbursts in the past and have had many arguments and it was always with someone close whom I was getting frustrated with for their lack of concern or consideration of my illness. I know we shouldn't be that way but things would just well up inside and BOOM. You are right in that I have improved so much mentally and emotionally since I've begun regaining my health, and to top it all off a spiritual awaerness. There was a time when I should've been in a wheelchair (like many of us here) now life is good again, and I am so greatful to be mobile and living with very little pain.

Take care,

Kimmie

Re: rheumatic Thank you

>>Hi all, thank you for your responses. I thought I was pretty sly withthat year long prescription :0) I'll have to go back and redo the exp.dates<<Just a thought for the future, Kimmie... (and PS I did the same thing,stockpiling, when my coverage was going to be suspended for awhile : )....At my small local pharmacy they are very accomodating to patients whohave limited income, and will break a prescription up for those who cannotpay for it all at once. I have one prescription that is not covered by myhealth benefits, and the doc writes it for 100 tablets, which I get filledfor 25 tablets with 3 refills on it. I do it because it is a lot out ofpocket for me at once, but it occurred to me that this might be a way forthose "stockpiling" for future uincertainty to have it filled a little at atime, so the supply is fresher. There are time deadlines past which theyhave to call in to the doc for a renewal, so be sure to ask how long thescript is good for if you do it this way. Also, be sure to keep minocin ina dark and dry place so it keeps better (like most medications).And your doctor should not be in fear for his license for prescribingminocin....Good heavens! Minocycline is one of the drugs listed on the newAmerican College of Rheumatology guidelines for RA treatment...maybe it istime to print out some references to take him? Could be that he has been sobusy treating that he is a little behind the times on this? (the ACRguidelines can be accessed in a pdf file at www.rheumatology.org )Glad to hear you are feeling better spiritually....that can make a WORLD ofdifference in your recovery, and may be a sign that the illness islessening. Depression is part of it and may be the source of your pastfeelings of bitterness. Not that I recall any bitterness in your postings,but maybe I should go do an archive search just for kicks, now that you havetold on yourself?< wicked grin> Take Care, Liz G.To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

I just wanted to thank all of you that wrote to me when I pleaded for a LLMD

in California for my uncle a little while ago. Unfortunately, he had an appt.

with an EXCELLENT one but he passed away.

Thank you all for your kindness, Uncle Holman was a wonderful philanthropist,

caring human being.

sue in nj

sue massie

[Guest guest]

Sue: your uncle must have been very proud of you as you were of him. This

old world needs more of your kind. Thanks for being you.

Donna

[Guest guest]

Gees, Sue,

This on top of all the other? I am so sorry to hear your uncle didn't get to get

treatment. You continue to be in my thoughts.

[Guest guest]

Sue:

Please accept my deep regard for you in your less and your courage. My

prayers are with you and your family. (I agree that you are an angel!!).

-GLEN

[Guest guest]

At 07:56 PM 3/6/2002 -0500, you wrote:

>Sue:

>

> Please accept my deep regard for you in your loss and your

> courage. My

>prayers are with you and your family. (I agree that you are an angel!!).

>

>-GLEN

[Guest guest]

> Thanks for the reply on supplement use and dosage. I will stick

with

> the ZP and gradually increase that before adding the other. It is

> difficult to really assess any changes as she is quite high

> functioning.

> I would like to see a drop in her hyperactivity.

Here are two things to consider, in case I have not already mentioned

them.

http://www.autismchannel.net/dana/phenol.htm

http://www.autismchannel.net/dana/yeast.htm

Even when she is

> asleep she is constantly twirling. She has also recently begun

> pulling out her eyebrows and grinding her teeth.

Teeth grinding is a sign of mercury toxicity. Have you had her metals

tested?

http://www.autismchannel.net/dana/chelate.htm

Dana

[Guest guest]

Hi Beth,

I took Voltaren a few years ago without any relief. Lodine has worked for me.

Keep talking to your doctor.

Joe

[ ] Thank you

I just wanted to thank all of you who responded to my first post

here. I have been reading the posts and it seems like most of you

have been put on the same kind of prescription or similar ones. I

was just wondering if any of you have heard about Voltaren, that is

the drug that my rhematologist has put me on. I have been on this

for 2 and a half weeks now and have not seen any improvement. My

pain and swelling is still there in my feet and hands, fingers,

knees, and toes. I know that it will take a few weeks until it

should take its full effect, but I'm wondering if this is not strong

enough? My rhematologist has even sent me to get an x-ray of my

spine, has anyone else had to do this? Thanks for listening. Beth

[

[Guest guest]

Hi Dyan and welcome to the group.... Sweetie we are here if you feel

depressed and want to get it off your back.... Depression is part of

this Dragon and we can not let it beat us down!!!! Whenever you feel

alone, just come on out and someone will be here for you.... You are

never alone. Please do not forget that!!! ;o

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

is it possible that you just need to change the antibiotic for about

two months and then return to the Minocin? Maybe it has stopped working and

needs a " recharge. "

On Sat, 9 Nov 2002 17:54:01 EST MUGGYPC@... wrote:

> Everyone Thanks,

>       Really after

> reading what you all said I guess even trying

> to go off is not the best idea as I am really

> doing very well except for the anemic stuff and

> YEAH I am 54 and in menopause, so I think that

> is adding to things here.  I am going to

> call dr. Sinott as he always has helped me, he

> knows how I feel about most Drs. (like if I

> have one nerve left they could find it and I

> might lose it after all these yrs. LOL) 

> Anyway you are all great in helping everyone

> Just Awesome. After 15 yrs. I still need some

> info for myself.  Take Care and don't ever

> give up as this treatment does work it is just

> getting there, and with this great group to

> help staying there. Just My View from

> Ohio.

>

>

>

> To unsubscribe, email:

> rheumatic-unsubscribeegroups

>

>

>

>

>

[Guest guest]

" Lord, bless this food, which I am about to receive from thy bounty through

Christ our Lord. Amen. " >

Mwhahahaha he should have asked God to make the bear a seventh day

Adventist... they don't eat meat!