Guest guest Posted April 13, 1999 Report Share Posted April 13, 1999 Hello everyone, Thank you for all the kind words today. I know I am not alone in this fight. All of you are doing wonderful. We all do different things, but it all helps our cause. I really needed those kind words today, I feel like I have been run over by a truck! Didn't even see it coming! Hugs to all Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 Hi Carlene, I am so sorry to hear you had to take to the hospital again, I am glad though that you got some responses that you could use for her doctors. Please keep us posted on how is doing whenever you are able, you and she are in my prayers. Hugs, Marta >From: BeanLadyC@... > >Hi all, >I actually just returned home tonight with , our doctor's had thought >she had had a heart attack, fortunately (I guess I can say that since her >damage has been there anyway) all her symptoms and abnormal tests were from >her heart damage. Anyway, 's friend accessed our email to get info. >on the Lyme Co-infections. He said many people responded to my email which he >cut and paste the info. into a file and copied on paper for our doctor. >Unfortunately, he also, deleted all our email (so it would not build up too >much) and I do not have the email addresses to thank you individually, so I >will just thank you as a group. >As I have told members of this list individually, everyone seems so caring >and supportive which is important when dealing with such a terrible illness. >Hugs to everyone! >Carlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 Hi Marta, Thanks for the warm hugs. I sure needed it. This infection from that dental surgery has sure taken its toll. I was home again, just couldn't go, the fevers and chills are a bit better tonite. Hope I can go to work on Friday. Hugs, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 Barbara it is DEFINITELY time for you to get a NEW DOCTOR. Good Luck Sweetie . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 1999 Report Share Posted July 23, 1999 Barbara, I agree with .. It was demoralizing to have a doctor who didn't believe this chronic disease and wasn't interested in treating it more aggressive. I went through that myself. I hunted for a LLMD and switched to him.. I never regretted doing that ever since. Good luck. You deserve the treatment you need. elizabeth MD << Barbara it is DEFINITELY time for you to get a NEW DOCTOR. Good Luck Sweetie . >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 rjamesmartin@... writes: > Reply-to: <A HREF= " mailto:lyme-aidonelist " >lyme-aidonelist</A> > jrlabbe@... (J. R. Labbe) > CC: CCC@..., hm49x@... > > From: " R. " <rjamesmartin@...> > > J.R. Labbe > jrlabbe@... > > I’d like to thank you for at least considering my > response to Tom Hall's " Where was Granger " for > publication. > May I ask WHY you have forwarded this to the NIH? May I also ask WHY you forwarded this whole story to an animal rescue list that I am apart of? How would you have that information? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Daylight Time, elsbeth@... writes: > From: beth Feldman <elsbeth@...> > > I'm confused about all this. Can anyone explain? Who is Granger? And what > does this have to do with animal rights? Hi beth, I'm confused too. I do not think your post from the NIH should been CC: to: CC: CCC@..., hm49x@... One of my friends sent a copy of this whole post FROM an animal rescue list that I am a part of. It is a list like this list ... except for German Sheperd rescue. I do not understand why that would happen. From: rjamesmartin@... (R. ) Reply-to: <A HREF= " mailto:lyme-aidonelist " >lyme-aidonelist</A> jrlabbe@... (J. R. Labbe) CC: CCC@..., hm49x@... From: " R. " <rjamesmartin@...> J.R. Labbe jrlabbe@... I’d like to thank you for at least considering my response to Tom Hall's " Where was Granger " for publication. As you have probably discerned from my web site (http://www.angelfire.com/biz/romarkaraoke/james.html), there is controversy in the Lyme disease community about treatment protocols. One of the most recent controversies within the Lyme victim community is the announced honoring of Dr. Steere at The NIH Director's Second Astute Clinician Lecture -- November 3, 1999, 3 p.m. Masur Auditorium, NIH Clinical Center (http://www.cc.nih.gov/ccc/lecture/astute.html). The current vernacular now being used on (onelist.com) and sci.med.diseases.lyme (Deja.com) is Bum Steere (Dr. Steere), and Ah, Stupid (Astute). One of the participants (beth Feldman – Item 1, below), sent an e-mail to NIH essentially saying that as a Lyme disease victim, she objected to Dr. Steere doing a presentation at NIH, and citing reasons. She then posted the response(s) received from NIH (Item 2, below). Why would her message generate a question about security alerts? Maybe because paranoids have long memories? See Item 3 below, from 1996, and Item 4 below, from 1995. Thought you might get a chuckle, or maybe even an article from it. If you go the article route, an excellent collection of web links on just about everything concerning Lyme disease can be found at http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html. It contains over 4,100 categorized about Lyme disease. Again, thank you for considering my response for publication. R. 501 Sycamore Lane, #327 Euless, TX 76039 817.540.2272 rjamesmartin@... http://www.angelfire.com/biz/romarkaraoke/james.html ’s Lyme Disease Horror Story – How Lyme Disease And Exploitation of ERISA Laws Can Ruin A Life. ALife.=======================================================================\ ========= (Item 1) Dr. Steere Importance: High Dr. Gallin, I have not responded to Feldman's email sent this afternoon, and you are the only one I've forwarded it to. Maybe I'm overreacting, but should security be alerted on Nov. 3, just in case. . .? If there's anything you want me to do, please let me know. Hilda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 I'm confused about all this. Can anyone explain? Who is Granger? And what does this have to do with animal rights? beth Re: [ ] Thank you > From: LymeFightr@... > > rjamesmartin@... writes: > > > Reply-to: <A HREF= " mailto:lyme-aidonelist " >lyme-aidonelist</A> > > jrlabbe@... (J. R. Labbe) > > CC: CCC@..., hm49x@... > > > > From: " R. " <rjamesmartin@...> > > > > J.R. Labbe > > jrlabbe@... > > > > I’d like to thank you for at least considering my > > response to Tom Hall's " Where was Granger " for > > publication. > > > May I ask WHY you have forwarded this > to the NIH? > > May I also ask WHY you forwarded this whole story to an animal rescue list > that I am apart of? How would > you have that information? > > > Send to -Offtopiconelist messages unrelated to lyme, please. > /archive/lyme-aid > /archives.cgi/Lyme-Documents > To unsubscribe, send email to -unsubscribeonelist > You may substitute " subscribe " , or " digest " or " normal " for > the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave blank both the message and subject header. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Thank You > > Thank you for contacting NBC Nightly News with Tom Brokaw via the Internet. > > We began using our Internet e-mail address on the air in December of > 1993. Since then we are pleased to have heard from many viewers reacting to > stories. We are especially encouraged that many of you are suggesting > stories you would like to report or investigate. > > Your feedback is critically important to Nightly News. > > We receive hundreds of e-mail messages every day. We read them all. > > However, because of the volume of mail we receive, we may not be able to > respond to each letter directly. We do want you to know that we > appreciate hearing from you! > > Many of our most important stories come directly from your letters and we > look forward to any future ideas and comments you have. > > We will try to answer as many of your inquiries as possible, but we have > created this automated response to address a few of your frequently asked > questions. > _________________________________________________________________________ > > 1) TRANSCRIPTS - Transcripts for all NBC News Programs are available > through the Burrelle Transcript Service by calling 1-800-777-TEXT. > > 2) VIDEOTAPES - Only selected segments of our news magazine Dateline > are available on VHS cassette. You can purchase these selected segments > by calling 1-800-420-2626. > > 3) OTHER E-MAIL ADDRESSES AT NBC NEWS - Our Fleecing of America segment > can be reached at Fleecing@.... The Today Show can be reached at > Today@.... Our news magazine Dateline can be reached at > Dateline@.... Our Sunday Meet the Press program can be reached at > MTP@.... > > 4) THE MICROSOFT NETWORK - You can also visit our area on the Microsoft > Network and get daily updates on the news and special reports. That > address is Nightlynews@.... > > 5) THE WORLD WIDE WEB - Our home page address is http://www.nbc.com. We > update the news there each weekday. > > 6) SNAIL MAIL - If you have additional questions or wish to write to NBC > News personnel not available electronically, our address is: > > NBC Nightly News > 30 Rockefeller Plaza > New York, NY 10112 > > Again, we thank you for watching NBC Nightly News and for contacting us > via e-mail. We appreciate your interest and your comments about Nightly > News stories. > ________________________________________________________________________ > > NOW AVAILABLE THROUGH E-MAIL: > > ** For a transcript of ' story on Virtual Reality and > people with disabilities, please send e-mail to: vrscript@.... > For contact information about that story, you can send e-mail to: > vrinfo@.... > > ** For a transcript of the Internet Advocacy story: > advotext@.... > For contact information: advoinfo@.... > > ** For a transcript of the Smart Houses story: smart2@.... > For additional background and contact information: > smart1@.... > > ** For a transcript of the Internet Scams story: scamtext@.... > For contact information: scaminfo@... > > ** For a transcript of the Internet Alcohol and Kids story: > textkids@... > For contact information: infokids@... > > > Because e-mail can be altered electronically, > the integrity of this communication cannot be guaranteed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 1999 Report Share Posted December 23, 1999 marie have a nice holiday at home see u in jan... Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 1999 Report Share Posted December 23, 1999 Dear Everyone, I will be going home for the holidays and won't be able to access email there, so I must temporarily unsubscribe. I'll be back at the end of January. Thank you for all the advice and fellowship. What a wonderful group! Happy Holidays to you all. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Hi Gillian, I think I must have missed something! Were we suppose to do something and only these ladies responded? sorry I missed what ever it was! I guess I will blame it on lack of sleep! LeeAnn >>>Hi All A BIG Thank you to Vicki M, Patty, Bunny and Margaretha, FOUR out of 250 members. I assume that the rest MUST BE CURED????? Love and God Bless Gillian<<<<< --------------------------- ONElist Sponsor ---------------------------- Save 50 percent at MotherNature.com. See site for details <a href= " http://clickme.onelist.com/ad/MotherNature " >Click Here</a> ----------------------------------------------------------------- ------- Please visit our new web page at: http://www.wpunj.edu/icip/pa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 Gillian thought you would enjoy this one.... Calling in sick at work made him uncomfortable ... no matter how legitimate the illness, he always senses his boss thinks he’s lying. On one occasion, there was a valid reason, but he lied anyway because the truth was too humiliating. He simply mentioned that he'd sustained a head injury and hope to feel better the next day. By then, he'd be able to think up a doozy to explain the bandage on his crown. The accident occurred mainly because Marv conceded to his wife’s wishes to adopt a cute little kitty. Initially, the new acquisition was no problem at all, but one morning Marv was in the shower after breakfast when Judy called out to him from the kitche. " Marv! The garbage disposal is dead. Come reset it. " " You know where the button is! " I protested through the shower (pitter-patter). " Reset it yourself! " " I'm scared, " she pleaded. " What if it starts going and sucks me in? " ‘C’mon, it’ll only take you a minute. " So, out he came -- dripping wet and buck naked hoping to make a statement about how her cowardly behavior was not without consequence. So, Marv crouched down and stuck his head under the sink to find the button. It is the last action I remembered performing. It struck without warning, without respect to my circumstances. Nay, it wasn’t a hexed disposal drawing me into its gnashing metal teeth. It was our new kitten, clawing playfully at the dangling objects she spied between my legs. She had been poised around the corner and stalked me as I took the bait under the sink. At precisely the second I was most vulnerable, she leapt at the toys I unwittingly offered and snagged them with her needle-like claws. Now -- when men feel pain or even sense danger anywhere close to their masculine region, they lose all rational thought to control orderly bodily movements. Instinctively, their nerves compel the body to contort inwardly, while rising upwardly at a violent rate of speed. Not even a well-trained monk could camly stand with his groin supporting the full weight of a kitten and rectify the situation in a step-by –step manner. Wild animals are sometimes faced with a " fight or flight " syndrome. Men, in this predicament, choose on the " flight " option. Fleeing straight up, I knew at that moment how the cat feels when it’s alarmed. It was a dismal irony. But, whereas cats seek great heights to escape, I never made it that far. The sink and cabinet bluntly impeded my ascent; the impact knocked me cold. When I awoke, my wife and the paramedics stood over me. I had been fully briefed by my wife, the paramedics snorted as they tried to conduct their work while suppressing their hysterical laughter. At the offices, colleagues tried to coax an explanation out of me about what was wrong…but I kept quiet, claiming it was painful to talk about. " What’s the matter, cat got your tongue? " If only they had known.... [ ] Thank You From: " Gillian Rowe " <roweg@...> Hi All A BIG Thank you to Vicki M, Patty, Bunny and Margaretha, FOUR out of 250 members. I assume that the rest MUST BE CURED????? Love and God Bless Gillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 Hi All, Just wanted to take a minute to thank each & every one of you for being you & being there... Had to stay over at a relative's home on the way back from doc - without internet access. After that awful, frustrating visit & the fear that comes with uncertainty in treatment, I was VERY unhappy! This, coupled with the fact that I could not speak with my " lyme family " was just about completely overwhelming... Anyone ever hear the Back Street Boys' song - " Show me the feeling of being lonley? " I'm sure that's not what they had in mind when they wrote the lyrics, but last night it made sense to me! Funny, isn't it - how no one else understands what we go through??? Even when they care with all their hearts, we get these blank stares like, " How can this be happening? " You're the best! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2000 Report Share Posted February 27, 2000 Hi All, Just wanted to take a minute to thank each & every one of you for being you & being there... Had to stay over at a relative's home on the way back from doc - without internet access. After that awful, frustrating visit & the fear that comes with uncertainty in treatment, I was VERY unhappy! This, coupled with the fact that I could not speak with my " lyme family " was just about completely overwhelming... Anyone ever hear the Back Street Boys' song - " Show me the feeling of being lonley? " I'm sure that's not what they had in mind when they wrote the lyrics, but last night it made sense to me! Funny, isn't it - how no one else understands what we go through??? Even when they care with all their hearts, we get these blank stares like, " How can this be happening? " You're the best! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 rons: These sites will help you get some info. on Mycoplasmas and the diet. http://www.rheumatic.org/main.htm http://www.mercola.com The first provides extensive information on the use of antibiotics and the underlying theory for its use. The second link is to Dr. Mercola's site, where you will be able to find his diet information. (If I remember right, you can also find diet information from Mercola and Dr. on the first site) The first site also provides some " medical histories " , or testimonials, from several people who have used the antibiotic therapy. It's a very encouraging place to start, as it lets you see that others have been down the same road and are doing quite well. Yes, you are correct, the theory is that Mycoplasmas cause these illnesses and that the antibiotics are capable of eliminating them from our system and allowing our bodies to heal. As you read, you'll find that it is not an overnight cure but, rather, a slow and steady climb back to health. The good news is that there is an approach which offers all of us a realistic hope of overcoming our particular malady. Good luck with these sites. They should give you plenty of info. to get started. Take care. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 Thank you to all of you who have sent me well wishes on my adventure in Germany. Our whole family is looking forward to the experience. My husband (Marc) has already been to Turkey and he bought us some beautiful Turkish rugs to brighten our new home (which isn't to great, but since it is only temporary we will make do). I hope to be able to keep our same aol acct. so that I can stay in touch, but if we should have to change it I will let you know. I am going to stay pos. that I can find the help that I need while over there, but either way I plan to make the most of it. Right now my main concern is how much weight I am going to put on with all those scrumptious bakeries.....my big weakness....homemade bread. I still have a few days until we fly, but I know that they are going to be busy and I didn't want to forget to thank you for your support......I'll be back on as soon as I can get our computer hooked up with Internet access. Love, Your Lyme Friend, ....5 days and counting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Good Luck , and rejoin the group as soon as you can. Hugs, Joan LI NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Dear Tammy, I've been off line quite a bit lately, so didn't have a chance to respond to your posts, but just wanted to urge you NOT to wait - do what you're able to get testing / treatment ASAP if you suspect lyme! Is there another doc within a reasonable distance or someone who may help you get to another doc at a greater distance? Blessings, Chris In a message dated 09/16/2000 12:40:07 PM Central Daylight Time, tammy@... writes: << Just want to say thanks for the responses. I did find a lyme doc 2 hours away from me but he has a years waiting list. Although I am on the list hopefully I can find a way to get these tests done sooner. So many of the symptoms sound familiar to what I have read about lymes. This has been very informative for me reading all your articles and such. Once again thanks and always open to some suggestions, It's very reassuring knowing there are people out their who care. Tammy >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 Tammy, There may be things you can begin to do for yourself while waiting. Like getting off of sugar and maybe try colloidal silver. Lots of info on the internet. CS has helped me some with lyme when my other antibio are failing. << Just want to say thanks for the responses. I did find a lyme doc 2 hours away from me but he has a years waiting list. Although I am on the list hopefully I can find a way to get these tests done sooner. So many of the symptoms sound familiar to what I have read about lymes. This has been very informative for me reading all your articles and such. Once again thanks and always open to some suggestions, It's very reassuring knowing there are people out their who care. Tammy >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 Our pleasure, our pleasure, our pleasure. Donna Ottawa, Canada Scleroderma, Jan.95, AP Oct.97 (My Story) http://www3.sympatico.ca/mousepotatoes ) (Ottawa Support) http://www3.sympatico.ca/mousepotatoes/rbf.html >the group has shown other newbies. This group has been a life line >for me. THANK YOU for the information you share so freely. THANK YOU >for the care and concern you show. THANK YOU for the hope. > >MJ > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 In a message dated 6/25/2001 4:40:33 PM Eastern Daylight Time, victor.mckinnon@... writes: << I have now more resolve to be even more insistent with my care providers. >> Good for you!! Don't let them give you some vague answers about a virus, " all in your head " , or PMS (although I don't think you are female) like I got. You deserve a proper diagnosis and proper treatment. If your current care providers won't give you one, keep on trying new ones until you are satisfied with their answers. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Good to hear from you Lynn. Hang in there with your shots, pills etc. I have many good days and then a couple bad. I'm kinda used to it now. One day at a time. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 Lynn today is my shot day and the tx is really hard on me. Very depressed and my side really hurts. Hummmm. They say th eliver don't hurt.Well if it doesn't what is hurting right there?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 I just want to wish everyone a HAPPY FOURTH OF JULY!!!! Quote Link to comment Share on other sites More sharing options...
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