New here

[Guest guest]

Welcome Crystal!

Did the drs give you any measurement to gauge the correction with? Another way to keep your eye on the change is to take pictures every week or two - do birds eye view and from behind.

Have they said why she has low muscle tone? I know sometimes when babies are on thier back alot they don't build up thier upper body strength. Is it more than that?

Jen and Luli - 17 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

new here

Hello my name is Crystal and I am the mother to a lovely 6 month old

daughter she was born with Positional Plagiocephaly but its shaped up

till her head growth is in the 75th percentile but she has weak (floppy

musle tone) muscle tone. for the first 4 months of life she was in the

50 percentile in head growth. so I am glad that its shaping up by

itself.

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hi Crystal,

welcome to the group. I'm a little confused by your post. i might be

misinterpreting the numbers you posted. generally the percentiles used

to measure the baby's head is just a way to monitor if the growth is

in the normal range. usually the baby grows along the same curve (more

or less). so if your baby is 50% at 4 mo, then they expect it to be

near the 50% measurement for a 6 mo old too. sometime they do jump

from one curve to another (my daughter went from 50% to 90% from birth

to 6 mo old, but at first they were worried about that and did some

follow up checks to make sure things were okay).

in terms of the plagio you would want to see the shape improve, but

going from 50% to 75% doesn't mean much for the plagio. there are ways

to measure the asymmetry associated with plagio. do you know how

severe the plagio is? can you tell if the shape is improving? have you

been using repositioning techniques to help improve the flat areas?

are you doing physical therapy to help with the plagio and the muscle

tone?

i hope my post makes sense. if you have questions please post them.

take care. -christine

sydney 16 mo starband grad

>

> Hello my name is Crystal and I am the mother to a lovely 6 month old

> daughter she was born with Positional Plagiocephaly but its shaped up

> till her head growth is in the 75th percentile but she has weak (floppy

> musle tone) muscle tone. for the first 4 months of life she was in the

> 50 percentile in head growth. so I am glad that its shaping up by

> itself.

>

[Guest guest]

Yeah your post makes sense but the reason why me and her ped thinks its great that its even slightly improving is cause the head shape is looking even instead of all flat on her left side and the more roundness she is getting the more we know her skull is constructing to a what most would call a normal shape. Shes going to be getting physical therapy soon for her low muscle tone. I give her plenty of tummy time and make sure she stays off the left side and much a possible. and with me only doing that its went from 50th to 75th they measure her head differant than they would regular infants. Her Ped wasn't expecting any improvement and was expecting surgery .we went back to the neuroligist and he feels that she doesn't need surgery or a helmut since its improving on its own so I think that going from the 50th percentile to 75th is wonderful. not only will I be having a physical therapist comming out to my home to help cathy with her muscle tone so that

she can sit and crawl when shes ready ( shes ready now but can't budge yet she tries so hard though lol my independant princess ) we have an apt to see a someone in Genetics in Aug. Which my daughters Ped said will be the last person that shes refering her to since her head shape is starting to improve.christineashok <christineashok@...> wrote: Hi Crystal,welcome to the group. I'm a little confused by your post. i might bemisinterpreting the numbers you posted. generally the percentiles usedto measure

the baby's head is just a way to monitor if the growth isin the normal range. usually the baby grows along the same curve (moreor less). so if your baby is 50% at 4 mo, then they expect it to benear the 50% measurement for a 6 mo old too. sometime they do jumpfrom one curve to another (my daughter went from 50% to 90% from birthto 6 mo old, but at first they were worried about that and did somefollow up checks to make sure things were okay).in terms of the plagio you would want to see the shape improve, butgoing from 50% to 75% doesn't mean much for the plagio. there are waysto measure the asymmetry associated with plagio. do you know howsevere the plagio is? can you tell if the shape is improving? have youbeen using repositioning techniques to help improve the flat areas?are you doing physical therapy to help with the plagio and the muscletone? i hope my post makes sense. if you have questions please post

them. take care. -christinesydney 16 mo starband grad>> Hello my name is Crystal and I am the mother to a lovely 6 month old > daughter she was born with Positional Plagiocephaly but its shaped up > till her head growth is in the 75th percentile but she has weak (floppy > musle tone) muscle tone. for the first 4 months of life she was in the > 50 percentile in head growth. so I am glad that its shaping up by > itself.>http://s105.photobucket.com/albums/m226/crystaldawn24/?action=view¤t=.my_first_widget.pbw Alysa Mae is 6 months & 2 weeks old

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[Guest guest]

Jen thanks for replying and to answer your ?tion her muscle tone is due to her length and head . Her head is rather large but no water on the brain , mine is large also but I am short so when I was a baby it wasn't hard for me to get mobile . she hasn't figured out how to balance her head with her length so she can sit or crawl yet. but when she feels secure she will dare to sit up fully in her bouncy and swing also when I hold her she will scoot on her butt to a toy..no dout she wants to be mobile at all but its getting the tools that she needs to do so . She will be having home visits from a physical therapist either this month or next I have to talk with her child development coordinator to see when and who she can get at this point. JenandLuli@... wrote: Welcome Crystal! Did the drs give you any measurement to gauge the correction with? Another way to keep your eye on the change is to take pictures every week or two - do birds eye view and from behind. Have they said why she has low muscle tone? I know sometimes when babies are on thier back alot they don't build up thier upper body strength. Is it more than that? Jen and Luli - 17 mo.Left Tort - Right Plagio - Hanger Band Grad - CAtallulah jaynewww.babiesonline.com/babies/j/jens5th/ new here Hello my name is Crystal and I am the mother to a lovely 6 month old daughter she was born with Positional Plagiocephaly but its shaped up till her head growth is in the 75th percentile but she has weak (floppy musle tone) muscle tone. for the first 4 months of life she was in the 50 percentile in head growth. so I am glad that its shaping up by itself. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. http://s105.photobucket.com/albums/m226/crystaldawn24/?action=view¤t=.my_first_widget.pbw Alysa Mae is 6 months & 2 weeks old

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[Guest guest]

Welcome. Whether a child is 50th or 75th or whatever percentile they

are doesn't really matter...the key is that they are continuiing to

grow in that percentile. For instance, my son was 75th until 6 months

(which was fine) however, the doctor was concerned when it jumped to

95th percentile. Now he is growing at a 95th percentile so the doc is

no longer concerned.

11 month old son, DOC graduate

>

> Hello my name is Crystal and I am the mother to a lovely 6 month old

> daughter she was born with Positional Plagiocephaly but its shaped

up

> till her head growth is in the 75th percentile but she has weak

(floppy

> musle tone) muscle tone. for the first 4 months of life she was in

the

> 50 percentile in head growth. so I am glad that its shaping up by

> itself.

>

[Guest guest]

Hi Crystal:

I'm glad you found us. All the moms on here are very helpful and were

the most useful resource to me during my repositioning and PT. My

daughter just graduated. I'm glad that you've noticed improvement in

your baby's asymmetry.

I have to agree with the comments of the previous reply though. The

head growth of the baby only means that the head has grown and not

that the plagio is any better or worse. Indeed, it does imply that

there was an opportunity there to do something because it's when the

head grows that we can reshape. But a diagonal difference of xyz is

the same whether your baby is in the 50% for 75% for head size/growth.

You need to determine the diagonal difference (DD). This the

difference between the length of one side of the forehead across the

head diagonally to the back of the opposite side and the other side of

the forehead across the head to its opposite side. Your cranial tech

should be able to show you how to do this, or do it for you.

As for the muscle tone? Is that a lack of tummy-time thing, or

something, or is it a condition? If it's a lack of tummy-time(and I

was guilty of that by the way)then lots of exercise can rectify that

I'm sure. I started by putting Sofia on a boppy cushion and graduated

to laying her flat on her tummy....but your daughter is six-months

already so she's probably past that already. Sounds like Physical

Therapy could be a solution for you though. Does your baby have tort?

If so, then PT is definitely something to consider also.

> >

> > Hello my name is Crystal and I am the mother to a lovely 6 month old

> > daughter she was born with Positional Plagiocephaly but its shaped up

> > till her head growth is in the 75th percentile but she has weak

(floppy

> > musle tone) muscle tone. for the first 4 months of life she was in

the

> > 50 percentile in head growth. so I am glad that its shaping up by

> > itself.

> >

>

[Guest guest]

Hi There. Welcome to our group. What is your name?

If you didn't keep the information emailed to you see this section on

my website: http://www.healingnaturallybybee.com/articles/menu2.php

After reading the main article " How to Successfully Overcome Candida "

then print out this one to help you get started:

http://www.healingnaturallybybee.com/articles/intro1.php

Also see the food and supplements lists:

http://www.healingnaturallybybee.com/articles/menu2_2.php

http://www.healingnaturallybybee.com/articles/menu2_4.php

The best in health, Bee

[Guest guest]

Cori

In view of your very low age, have you asked your doctor about hip

resurfacing. The use of the BHR resurfacing device was approved over

a year ago, and more and more surgeon are starting to use it. The

device has the potential to last a lifetime. If you want mch more

infrmation, register with the group " surfacehippy.com "

Chris

De Smet RBHR June 23,2004

u LASR May 27,2005

>

>

> Hi all, I just thought to look for an e-group dealing with THR and I

> found you all. I was diagnosed with needing my right hip done last

> September. My doctor told me that the cartilidge in my left hip was

> going too but at that time I had no problem with it. I had just

started

> a new position at work and really couldn't take the time

off.....now the

> left hip is going, as the doctor stated it would.....I am now in a

> position at work where I've proved myself in my position (and then

> some!) and my bosses are willing to allow me to work from home

while I

> recover from surgery! I do get vacation time, of course, but I can

NOT

> just sit around or lay around and do nothing for weeks! LOL Anyway,

I go

> to the doctor on Tuesday to get re-x-rayed I guess and see what it

is

> that I need to do from here to get ready for surgery. I live on 4

> motrins and a half a darvocet about 2-3 times a day.....I take more

> motrins in the day...my doctors won't give me more than a 30 day

> prescription of one whole darvocet per day! Everyday my pain gets

> worse....I've never been in the hospital other than to visit

people! So

> I am nervous but I can't stand this pain anymore....I am only 44

and I

> believe I wore my hips out from working out a lot thru the

years....I've

> always done aerobics, weight training, lots of walking and some

running

> in the last couple of years I could before this hip pain stopped

> me...it's been about 1 1/2 years since I last worked out....I hate

it! I

> want my life back! So I am here to listen and learn from all of

you. I'm

> glad to " hear " that the restrictions are really only for the first 2

> weeks.....I figured that I would be home 3-4 weeks total.....As

long as

> I can keep working I'll be ok....I don't have kids, just dogs, cats

and

> a hubby....My hubby will take that first week off from work as his

> vacation to help me.....I am not good at being dependent on others

> though! That will be a struggle for me....but I really can't wait

until

> I am up and walking without pain! Guess the doctor will tell me how

and

> when to take care of the left hip....guess it will be at least 6

months

> down the road after we do the right hip? I look forward to

conversations

> with all of you....sorry this post was kinda long but I had to get

all

> that out! LOL

>

> Thanks!

> Cori

>

[Guest guest]

Thanks! I have recently heard of it although I don't know what it is....I'll go register where you suggested. I go for my first serious discussion with the doctor who'll be doing the surgery this coming Tuesday.

> >> > > > Hi all, I just thought to look for an e-group dealing with THR and I> > found you all. I was diagnosed with needing my right hip done last> > September. My doctor told me that the cartilidge in my left hip was> > going too but at that time I had no problem with it. I had just > started> > a new position at work and really couldn't take the time > off.....now the> > left hip is going, as the doctor stated it would.....I am now in a> > position at work where I've proved myself in my position (and then> > some!) and my bosses are willing to allow me to work from home > while I> > recover from surgery! I do get vacation time, of course, but I can > NOT> > just sit around or lay around and do nothing for weeks! LOL Anyway, > I go> > to the doctor on Tuesday to get re-x-rayed I guess and see what it > is> > that I need to do from here to get ready for surgery. I live on 4> > motrins and a half a darvocet about 2-3 times a day.....I take more> > motrins in the day...my doctors won't give me more than a 30 day> > prescription of one whole darvocet per day! Everyday my pain gets> > worse....I've never been in the hospital other than to visit > people! So> > I am nervous but I can't stand this pain anymore....I am only 44 > and I> > believe I wore my hips out from working out a lot thru the > years....I've> > always done aerobics, weight training, lots of walking and some > running> > in the last couple of years I could before this hip pain stopped> > me...it's been about 1 1/2 years since I last worked out....I hate > it! I> > want my life back! So I am here to listen and learn from all of > you. I'm> > glad to "hear" that the restrictions are really only for the first 2> > weeks.....I figured that I would be home 3-4 weeks total.....As > long as> > I can keep working I'll be ok....I don't have kids, just dogs, cats > and> > a hubby....My hubby will take that first week off from work as his> > vacation to help me.....I am not good at being dependent on others> > though! That will be a struggle for me....but I really can't wait > until> > I am up and walking without pain! Guess the doctor will tell me how > and> > when to take care of the left hip....guess it will be at least 6 > months> > down the road after we do the right hip? I look forward to > conversations> > with all of you....sorry this post was kinda long but I had to get > all> > that out! LOL> > > > Thanks!> > Cori> >>

[Guest guest]

Hi Cori

If you do need hip replacements, I just want you to be assured that there is good life after these surgeries. I had both of my hips replaced in 2001. The first in January and the second in July. Looking back, I just really didn't comprehend how bad things were.....I just didn't want to have a hip replacement. I actually walked with a crutch for a year and a half before the first replacement, then used the crutch again until after the second replacement, and then started taking those baby steps to learn how to walk again. It took about 2 months but I got my life back. Please let me know if I can answer any specific questions for you.

SallySee what's free at AOL.com.

[Guest guest]

If that is all you are taking for pain then I doubt your hips are bad

enough to get any done on it or them.

Dale

Re: New Here

> Cori

> In view of your very low age, have you asked your doctor about hip

> resurfacing. The use of the BHR resurfacing device was approved over

> a year ago, and more and more surgeon are starting to use it. The

> device has the potential to last a lifetime. If you want mch more

> infrmation, register with the group " surfacehippy.com "

>

> Chris

> De Smet RBHR June 23,2004

> u LASR May 27,2005

>

>

>>

>>

>> Hi all, I just thought to look for an e-group dealing with THR and I

>> found you all. I was diagnosed with needing my right hip done last

>> September. My doctor told me that the cartilidge in my left hip was

>> going too but at that time I had no problem with it. I had just

> started

>> a new position at work and really couldn't take the time

> off.....now the

>> left hip is going, as the doctor stated it would.....I am now in a

>> position at work where I've proved myself in my position (and then

>> some!) and my bosses are willing to allow me to work from home

> while I

>> recover from surgery! I do get vacation time, of course, but I can

> NOT

>> just sit around or lay around and do nothing for weeks! LOL Anyway,

> I go

>> to the doctor on Tuesday to get re-x-rayed I guess and see what it

> is

>> that I need to do from here to get ready for surgery. I live on 4

>> motrins and a half a darvocet about 2-3 times a day.....I take more

>> motrins in the day...my doctors won't give me more than a 30 day

>> prescription of one whole darvocet per day! Everyday my pain gets

>> worse....I've never been in the hospital other than to visit

> people! So

>> I am nervous but I can't stand this pain anymore....I am only 44

> and I

>> believe I wore my hips out from working out a lot thru the

> years....I've

>> always done aerobics, weight training, lots of walking and some

> running

>> in the last couple of years I could before this hip pain stopped

>> me...it's been about 1 1/2 years since I last worked out....I hate

> it! I

>> want my life back! So I am here to listen and learn from all of

> you. I'm

>> glad to " hear " that the restrictions are really only for the first 2

>> weeks.....I figured that I would be home 3-4 weeks total.....As

> long as

>> I can keep working I'll be ok....I don't have kids, just dogs, cats

> and

>> a hubby....My hubby will take that first week off from work as his

>> vacation to help me.....I am not good at being dependent on others

>> though! That will be a struggle for me....but I really can't wait

> until

>> I am up and walking without pain! Guess the doctor will tell me how

> and

>> when to take care of the left hip....guess it will be at least 6

> months

>> down the road after we do the right hip? I look forward to

> conversations

>> with all of you....sorry this post was kinda long but I had to get

> all

>> that out! LOL

>>

>> Thanks!

>> Cori

>>

>

>

>

>

>

[Guest guest]

Be warned - if he is not in favour of resurfacing, he will give you

mountains of negative feedback. Before you make up your mind, do lots

of research and ask questions of those who have had resurfacing.

Also, make sure that at some point you talk with surgeons who do both

resurfacing and THR. Some of them, such as Dr.Gross, will give you a

free e-mail cosult if you send your x-rays, and are very very good at

handling the insurance people.

Chris

> > >

> > >

> > > Hi all, I just thought to look for an e-group dealing with THR

and I

> > > found you all. I was diagnosed with needing my right hip done

last

> > > September. My doctor told me that the cartilidge in my left hip

was

> > > going too but at that time I had no problem with it. I had just

> > started

> > > a new position at work and really couldn't take the time

> > off.....now the

> > > left hip is going, as the doctor stated it would.....I am now

in a

> > > position at work where I've proved myself in my position (and

then

> > > some!) and my bosses are willing to allow me to work from home

> > while I

> > > recover from surgery! I do get vacation time, of course, but I

can

> > NOT

> > > just sit around or lay around and do nothing for weeks! LOL

Anyway,

> > I go

> > > to the doctor on Tuesday to get re-x-rayed I guess and see what

it

> > is

> > > that I need to do from here to get ready for surgery. I live on

4

> > > motrins and a half a darvocet about 2-3 times a day.....I take

more

> > > motrins in the day...my doctors won't give me more than a 30 day

> > > prescription of one whole darvocet per day! Everyday my pain

gets

> > > worse....I've never been in the hospital other than to visit

> > people! So

> > > I am nervous but I can't stand this pain anymore....I am only 44

> > and I

> > > believe I wore my hips out from working out a lot thru the

> > years....I've

> > > always done aerobics, weight training, lots of walking and some

> > running

> > > in the last couple of years I could before this hip pain stopped

> > > me...it's been about 1 1/2 years since I last worked out....I

hate

> > it! I

> > > want my life back! So I am here to listen and learn from all of

> > you. I'm

> > > glad to " hear " that the restrictions are really only for the

first 2

> > > weeks.....I figured that I would be home 3-4 weeks total.....As

> > long as

> > > I can keep working I'll be ok....I don't have kids, just dogs,

cats

> > and

> > > a hubby....My hubby will take that first week off from work as

his

> > > vacation to help me.....I am not good at being dependent on

others

> > > though! That will be a struggle for me....but I really can't

wait

> > until

> > > I am up and walking without pain! Guess the doctor will tell me

how

> > and

> > > when to take care of the left hip....guess it will be at least 6

> > months

> > > down the road after we do the right hip? I look forward to

> > conversations

> > > with all of you....sorry this post was kinda long but I had to

get

> > all

> > > that out! LOL

> > >

> > > Thanks!

> > > Cori

> > >

> >

>

[Guest guest]

Thanks......I appreciate it! I was in denial for awhile......When I asked my OS if I HAD to have the surgery back in September he told me I didn't HAVE to have it, he would never tell me I HAD to have it BUT he said that I definitely will WANT to have it......*sigh* and he's right, I can't stand the pain anymore....I was always such an active person and now just to walk down to the mailbox I have to psych myself up....it really sucks.....to be totally honest but I'm sure all of you can relate....I have to have my hubby put my socks on for me and I've bought all flat shoes that I can simply slip my feet into, for work....

Anyway, I'll be curious to hear what he has to say on Tuesday in regards to all the options available.....

I appreciate this group (and others like it) for being here...

Cori>> Hi Cori> If you do need hip replacements, I just want you to be assured that there is > good life after these surgeries. I had both of my hips replaced in 2001. > The first in January and the second in July. Looking back, I just really > didn't comprehend how bad things were.....I just didn't want to have a hip > replacement. I actually walked with a crutch for a year and a half before the > first replacement, then used the crutch again until after the second replacement, > and then started taking those baby steps to learn how to walk again. It > took about 2 months but I got my life back. Please let me know if I can answer > any specific questions for you.> Sally> > > > ************************************** See what's free at http://www.aol.com.>

[Guest guest]

Hi Cori........

Yes, I can remember the socks and shoes. I even had my bathrub taken out and a walk in shower put in because I couldn't get over the edge of the bathtub. That will all change, however, and you will find it's pretty exciting to cut your own toe nails again. Yes, there is a good life after hip replacements.

SallySee what's free at AOL.com.

[Guest guest]

Dale I beg to differ with you. I had collapsed hips and took tylenol

for pain during the day. I took Ambien and Soma and Toradol at night

to sleep. I was dx with AVN in 1993 and told I needed it replaced in

1994. The AVN started in 1989 after taking low dose Medrol. I had

the first done in 1997 and the other in 1998. So pain is not always

an indicator of the condition of the hip.

Sue

PS AVN a/k/a ON is Avascular Necorsis or Osteonecorsis.

> >>

> >>

> >> Hi all, I just thought to look for an e-group dealing with THR

and I

> >> found you all. I was diagnosed with needing my right hip done

last

> >> September. My doctor told me that the cartilidge in my left hip

was

> >> going too but at that time I had no problem with it. I had just

> > started

> >> a new position at work and really couldn't take the time

> > off.....now the

> >> left hip is going, as the doctor stated it would.....I am now in

a

> >> position at work where I've proved myself in my position (and

then

> >> some!) and my bosses are willing to allow me to work from home

> > while I

> >> recover from surgery! I do get vacation time, of course, but I

can

> > NOT

> >> just sit around or lay around and do nothing for weeks! LOL

Anyway,

> > I go

> >> to the doctor on Tuesday to get re-x-rayed I guess and see what

it

> > is

> >> that I need to do from here to get ready for surgery. I live on 4

> >> motrins and a half a darvocet about 2-3 times a day.....I take

more

> >> motrins in the day...my doctors won't give me more than a 30 day

> >> prescription of one whole darvocet per day! Everyday my pain gets

> >> worse....I've never been in the hospital other than to visit

> > people! So

> >> I am nervous but I can't stand this pain anymore....I am only 44

> > and I

> >> believe I wore my hips out from working out a lot thru the

> > years....I've

> >> always done aerobics, weight training, lots of walking and some

> > running

> >> in the last couple of years I could before this hip pain stopped

> >> me...it's been about 1 1/2 years since I last worked out....I

hate

> > it! I

> >> want my life back! So I am here to listen and learn from all of

> > you. I'm

> >> glad to " hear " that the restrictions are really only for the

first 2

> >> weeks.....I figured that I would be home 3-4 weeks total.....As

> > long as

> >> I can keep working I'll be ok....I don't have kids, just dogs,

cats

> > and

> >> a hubby....My hubby will take that first week off from work as

his

> >> vacation to help me.....I am not good at being dependent on

others

> >> though! That will be a struggle for me....but I really can't wait

> > until

> >> I am up and walking without pain! Guess the doctor will tell me

how

> > and

> >> when to take care of the left hip....guess it will be at least 6

> > months

> >> down the road after we do the right hip? I look forward to

> > conversations

> >> with all of you....sorry this post was kinda long but I had to

get

> > all

> >> that out! LOL

> >>

> >> Thanks!

> >> Cori

> >>

> >

> >

> >

> >

> >

[Guest guest]

I think I have a high tolerance to pain...if I take more than half a darvocet I get very sleepy....I'm a wimp! LOL Most mornings I'll wake up to 4 motrin and half a darvocet and then about an hour later I'll take another of the same dose....I am most definitely in pain...the dose I take just takes the edge off the pain.....I limp with each and every step too....The doctors don't seem to want to give me anything more than darvocet......I have to practically beg for them to give me THAT prescription!

> >>> >>> >> Hi all, I just thought to look for an e-group dealing with THR and I> >> found you all. I was diagnosed with needing my right hip done last> >> September. My doctor told me that the cartilidge in my left hip was> >> going too but at that time I had no problem with it. I had just> > started> >> a new position at work and really couldn't take the time> > off.....now the> >> left hip is going, as the doctor stated it would.....I am now in a> >> position at work where I've proved myself in my position (and then> >> some!) and my bosses are willing to allow me to work from home> > while I> >> recover from surgery! I do get vacation time, of course, but I can> > NOT> >> just sit around or lay around and do nothing for weeks! LOL Anyway,> > I go> >> to the doctor on Tuesday to get re-x-rayed I guess and see what it> > is> >> that I need to do from here to get ready for surgery. I live on 4> >> motrins and a half a darvocet about 2-3 times a day.....I take more> >> motrins in the day...my doctors won't give me more than a 30 day> >> prescription of one whole darvocet per day! Everyday my pain gets> >> worse....I've never been in the hospital other than to visit> > people! So> >> I am nervous but I can't stand this pain anymore....I am only 44> > and I> >> believe I wore my hips out from working out a lot thru the> > years....I've> >> always done aerobics, weight training, lots of walking and some> > running> >> in the last couple of years I could before this hip pain stopped> >> me...it's been about 1 1/2 years since I last worked out....I hate> > it! I> >> want my life back! So I am here to listen and learn from all of> > you. I'm> >> glad to "hear" that the restrictions are really only for the first 2> >> weeks.....I figured that I would be home 3-4 weeks total.....As> > long as> >> I can keep working I'll be ok....I don't have kids, just dogs, cats> > and> >> a hubby....My hubby will take that first week off from work as his> >> vacation to help me.....I am not good at being dependent on others> >> though! That will be a struggle for me....but I really can't wait> > until> >> I am up and walking without pain! Guess the doctor will tell me how> > and> >> when to take care of the left hip....guess it will be at least 6> > months> >> down the road after we do the right hip? I look forward to> > conversations> >> with all of you....sorry this post was kinda long but I had to get> > all> >> that out! LOL> >>> >> Thanks!> >> Cori> >>> >> >> >> >> >

[Guest guest]

If pain was the only reason to get a new hip than I might still be

aiting. You cannot judge another's pain tolerance nor readiness for

surgery. If your lifestyle is compromised enough you will make the

commitment to surgery in order to get back as much as possible what

you have lost due to deterioration. What does waiting until the pain

is completely unbearable get you?

Deb

> >>

> >>

> >> Hi all, I just thought to look for an e-group dealing with THR

and I

> >> found you all. I was diagnosed with needing my right hip done

last

> >> September. My doctor told me that the cartilidge in my left hip

was

> >> going too but at that time I had no problem with it. I had just

> > started

> >> a new position at work and really couldn't take the time

> > off.....now the

> >> left hip is going, as the doctor stated it would.....I am now

in a

> >> position at work where I've proved myself in my position (and

then

> >> some!) and my bosses are willing to allow me to work from home

> > while I

> >> recover from surgery! I do get vacation time, of course, but I

can

> > NOT

> >> just sit around or lay around and do nothing for weeks! LOL

Anyway,

> > I go

> >> to the doctor on Tuesday to get re-x-rayed I guess and see what

it

> > is

> >> that I need to do from here to get ready for surgery. I live on

4

> >> motrins and a half a darvocet about 2-3 times a day.....I take

more

> >> motrins in the day...my doctors won't give me more than a 30 day

> >> prescription of one whole darvocet per day! Everyday my pain

gets

> >> worse....I've never been in the hospital other than to visit

> > people! So

> >> I am nervous but I can't stand this pain anymore....I am only 44

> > and I

> >> believe I wore my hips out from working out a lot thru the

> > years....I've

> >> always done aerobics, weight training, lots of walking and some

> > running

> >> in the last couple of years I could before this hip pain stopped

> >> me...it's been about 1 1/2 years since I last worked out....I

hate

> > it! I

> >> want my life back! So I am here to listen and learn from all of

> > you. I'm

> >> glad to " hear " that the restrictions are really only for the

first 2

> >> weeks.....I figured that I would be home 3-4 weeks total.....As

> > long as

> >> I can keep working I'll be ok....I don't have kids, just dogs,

cats

> > and

> >> a hubby....My hubby will take that first week off from work as

his

> >> vacation to help me.....I am not good at being dependent on

others

> >> though! That will be a struggle for me....but I really can't

wait

> > until

> >> I am up and walking without pain! Guess the doctor will tell me

how

> > and

> >> when to take care of the left hip....guess it will be at least 6

> > months

> >> down the road after we do the right hip? I look forward to

> > conversations

> >> with all of you....sorry this post was kinda long but I had to

get

> > all

> >> that out! LOL

> >>

> >> Thanks!

> >> Cori

> >>

> >

> >

> >

> >

> >

[Guest guest]

That's a hefty dose of anti inflammatories. It is the same amount I was

taking prior to my surgery. My right knee was bone on bone, which many here

can affirm is extremely painful. My doctor gave me darvocet and tramadol at

different times prior to my surgery but said that he would reserve the

heavier pain meds for post op.

I don't believe that anyone can judge on line whether your hips are " bad

enough " simply by hearing the amount of meds you are taking currently. My

knee was certainly " bad enough " for a TKR, and I was taking no more meds

before my surgery than you are.

Best of luck.

in WA

>>If that is all you are taking for pain then I doubt your hips are bad

enough to get any done on it or them.

" Our animals shepherd us through certain eras of our lives. When we are

ready to turn the corner and make it on our own…they let us go. "

--author unknown

~~~~~~~~~~~~~~~~~

Visit my eBay store:

http://stores.ebay.com/s-Market

[Guest guest]

I have to concur with .

Prior to my THR, I took nothing but aspirin, Motrin and Alleve. My

pain level was excruciating but I didn't want to dose myself with

narcotics in lieu of fixing the problem since a THR is one of

medicine's marvels. I am certainly not anti-pain killer at all as I

still take Percocet post surgery when I want to really work it out in

terms of exercise. However, I did not want to start down a path where

I was masking the problem rather than treating it by surgery.

If I had back problems where there is no easy fix, I might have

thought differently since there is no easy fix and the medical

community is quite divided on whether any surgical intervention

really works. In that case I would probably have gone to a pain

management place, done extensive physical therapy, acupuncture etc.

My pain prior to my THR was debilitating -- I was forced to limit my

activity to the bare minimum. I could of course (after scheduling

surgery) have opted for stronger painkillers but I decided just to

tough it at for the last few weeks.

We all have different levels of pain tolerance. The only constant I

could give as advice is that it is time to have surgery when the

quality of your life is diminished by the pain. Again, although I am

hardly a Puritan in terms of drugs, I don't think that long term

narcotic painkillers in lieu of a joint replacement is the best

solution -- of course this is just my opinion.

Helen

On Jun 12, 2007, at 7:38 AM, Risener wrote:

>

> That's a hefty dose of anti inflammatories. It is the same amount I

> was

> taking prior to my surgery. My right knee was bone on bone, which

> many here

> can affirm is extremely painful. My doctor gave me darvocet and

> tramadol at

> different times prior to my surgery but said that he would reserve the

> heavier pain meds for post op.

>

> I don't believe that anyone can judge on line whether your hips are

> " bad

> enough " simply by hearing the amount of meds you are taking

> currently. My

> knee was certainly " bad enough " for a TKR, and I was taking no more

> meds

> before my surgery than you are.

>

> Best of luck.

>

> in WA

>

>>> If that is all you are taking for pain then I doubt your hips are

>>> bad

> enough to get any done on it or them.

>

>

>

>

> " Our animals shepherd us through certain eras of our lives. When we

> are

> ready to turn the corner and make it on our own

> they let us go. "

> --author unknown

>

> ~~~~~~~~~~~~~~~~~

>

> Visit my eBay store:

>

> http://stores.ebay.com/s-Market

>

>

>

>

>

[Guest guest]

Hi, Cori!

I understand that you have to really lean on your docs for meds, but

keep on leaning!

I, too, was given Darvocet, but it only made me nauseous. I

convinced him to change me to Percocet, which has helped. He also

recommended Vicodin as he said it would help me to sleep, but it only

made my knee more sensitive and therefore was no help at all.

Now he's concerned that I'm becoming a Percocet " junkie " . I can't

take ibuprofin because of kidney disease (no NSAID's) and I have to

limit the amount of Tylenol, so Percocet is still the only med that

gives me any assurance of relief.

I just wonder how ANYBODY, even a physician, can tell a person that

their pain isn't valid. Your pain is YOUR pain, and that's all

anyone needs to know.

Good luck!

Robin in NWFlorida

---------

" Cori " <Skylure@...> wrote:

>

> <snip>

> I am most definitely in pain...the dose I

> take just takes the edge off the pain.....I limp with each and every

> step too....The doctors don't seem to want to give me anything more

> than darvocet......I have to practically beg for them to give me

> that prescription!

[Guest guest]

Hang in there, learn all you can and never give up on him. The fact that

he started is huge!

Cha Cha wrote:

>Hello my name is val and my little guy is 3 yrs 9 months old. He just

>started saying a few words. We took him to a sp therapist wednesday

>and in articulation he is only testing at 2yrs 3 months. We are still

>doing testing but they want to do speech therapy twice a week for 30

>minutes.

>

>

>

>

[Guest guest]

Hey Cha Cha:

The school year is about to start...you need to learn all you can

about apraxia if that is the problem, IEPs, Speech therapy,

Occupational therapy, Physical therapy if they are also needed.

/links

Your son is already past the age of EI, but you can go to the New

Members Resource folder and get other great information for help in

your area, and more information on apraxia. There is also tons more

folders in the links section for you to look at.

Good luck,

Tina

>

> >Hello my name is val and my little guy is 3 yrs 9 months old. He

just

> >started saying a few words. We took him to a sp therapist

wednesday

> >and in articulation he is only testing at 2yrs 3 months. We are

still

> >doing testing but they want to do speech therapy twice a week for

30

> >minutes.

> >

> >

> >

> >

[Guest guest]

Val,

Take that therapy and make sure the SLP gives you exercises to practice daily at

home. Do them religiously several times a day if you can!

Free therapy runs out slowly but surely as your child gets older, so grab every

item you possibly can that is offered and research any other early intervention

programs you might be eligible for....

Janice

[sPAM] [ ] new here

Hello my name is val and my little guy is 3 yrs 9 months old. He just

started saying a few words. We took him to a sp therapist wednesday

and in articulation he is only testing at 2yrs 3 months. We are still

doing testing but they want to do speech therapy twice a week for 30

minutes.

[Guest guest]

We knew son had gut issues from the beginning *screamed for 18 months,

no formula worked great, soy was better, sometimes breast milk was good

but required me to eat nothing so then we worried what was he getting.

He always had too much poop but GERD was never thought of as he never

puked. In hindsight, all that and his constantly hoarse voice was likely

an indication of GERD and specifically a milk insensitivity (he tested

negative for the allergy). On top of that I used only flouridated baby

water, unregulated by the FDA, since then the FDA has prohibited them

from marketing it for babies. He had trouble transitioning to solids,

choked on thin liquids, walked late at 18.5 months, has low tone and

delayed speech and pointing and was very sensitive around new people but

adults even more.

Read the late talker, came on this board 8 weeks ago. The gut issues

seemed so common to the speech kids. The book and this board were the

first places I found a name for what was wrong with my boy, Dyspraxia.

That was after 1 neuro, 3 speech therapists, 1 OT, an ENT, a

cardiologist and a pediatrician. I got curious about the gut stuff, got

some bloodtests common to those on this board plus a few extras because

a cousin (who is a doctor) suspected celiac and then I found out that a

lot of folks on this board are dealing with celiac-like but not celiac

conditions. Some bloodwork was wierd, we are pursuing genetic testing

for celiac but in the meantime we went GFCF in part to test the theory

while waiting for the GI appt. GI confirms both likely have celiac-like

stuff maybe celiac. She wants to scope but we compromised with genetic

testing for now. We are now GFCFSF and ditched the bad water and the

changes I see in my son and my daughter (no speech stuff) and myself are

phenominal. It's harder for me to switch than them. The diet is not so

bad, variety is a struggle but the improvemnts for us were quick and

dramatic. Milk seems to have been the big culprit but the protein in

gluten is too similar so I am staying away. I do see some things that

have changed that had to do with that water. After the fact a number of

docs (the ENT, a pediatrician, GI, my OB) said this really could have

been the deal. I may never be able to prove any of it but are family is

much healthier so who cares? I still have to follow up to be sure

everyone is absorbing things right but the poop, behavior and look of

everyone tells me that at most we have minor tweeking to do.

My advice would be to approach any dietary thing cautiously and always

be sure essential vitamins are covered. When eliminating or adding keep

a food diary and document poop (type, #) and pee, and general behavior.

Please get a book on anything you try so you have an idea of what to

serve. I did not do this and it was not pretty and I always felt like a

bad short-order cook.

For us it was a much easier decision because the kids were so picky we

knew we needed a change. You know what is going on in your home so trust

your judgment.

Two last points: 1) A number of folks have had success with digestive

enzymes in this area so that might be something to take a look at. 2) I

believe Tina has a folder on dietary stuff that may help you.

Best wishes!

Liz

Robin wrote:

>Hi my name is Robin. I have a 4 1/2 year old son, Collin, with

>pervasive developmental delays. He has consistently tested in the 30%

>delay range for gross, fine motor, verbal, cognitive, etc... He has

>hypotonia...didn't walk until 21 months.... Verbal Apraxia and

>dysarthria...now has quite a large vocabulary, but some is still very

>hard to understand...poor fine motor skills, temper tantrums, etc..

>

>Other than these " diagnoses " ...we have not found a true diagnosis. We

>have had MRI, chromosome tests, metabolic tests, sleep study, etc.

>All with normal results. Autism has been ruled out.

>

>We have not looked into dietary changes and I see that is a popular

>issue here. I'm curious to hear some of the pros and cons.

>

>Looking forward to learning more from those on the message boards.

>

>Thanks.

>

>

>

>

[Guest guest]

>

> Hello all...

==>Hi Kerry. Welcome to our group.

>

> I just found your group today and joined. I recently concluded I

> definately had a candida yeast overgrowth. Lots of symptoms.

>

> I have spent the last month and a half on a diet very similar to

> Bee's diet. And also taking supplements, many that Bee recommends

as well. I was happy to read that I had figured out a good diet and

> supp plan on my own.

==>Good for you Kerry!

> Here's my question. I've read different things about cheese. Some

> say you can eat it, like Bee...some say not to during the diet.

>

> I don't crave sugar. But I crave real quality parmesan cheese like

> it's crack! I crave it just like people with a candida overgrowth

> typically describes craving sugar.

>

> I finally gave up my parmesan cheese " habit " a week ago. But I am

> literally dreaming of eating parmesan cheese now. So...is this just

a " healthy habit " I'm enjoying with the parmesan cheese or do you

think it's feeding my candida...causing me to crave it so much? Gosh,

I sure hope I can buy it again...I am so dying to eat some parmesan

cheese.

==>Cheese is a dairy product, and the reasons no dairy products,

except butter, are included on the candida diet is explained in my

article " How to Successfully Overcome Candida " which is found in our

Group's Files (left menu) - see the section on Probiotics.

==>Therefore when you crave parmesan cheese, it isn't good for you

because it feeds candida.

The best in health, Bee