New here

August 4, 2006

Hi Lesley,

Welcome to the list. Barb Romkema who posts here has a son who has diagnoses of

both autism and CP. He's in his 20s and has made significant progress. He has

published a book of poetry and is currently attending college!

S S

" Lesley " <ljjs@...> wrote:

>

> We are totally new to this list and I have been lurking for a couple

> of weeks. My daughter, who is 4, has Cerebral Palsy as well as

> strong autistic features. She seemed totally " normal " at birth.

> As the months went by, she developed too slowly and became

> " tight " on the left side. Microcephaly became apparent. Autism

> is now making itself more clear as time goes by. It is obvious

> that the " autistic stuff " is truly her biggest obstacle as the CP

> is not THAT bad. It has taken me 4 years to pull this all apart.

> She never had a normal period and then regressed. It's always

> been a very slow curve of development. She is LOADED with

> sensory issues which we have tried to address with no luck,

> she remains nonverbal, ambulates with full assist, very laid back,

> extremely healthy, never sick. Tall and lean with a great appetite.

>

> I guess my question is, has anyone else's child been diagnosed

> with CP? Have you ever heard of Mercury poisoning causing CP?

> I have no idea of her cognitive status due to her autism, motor

> problems and lack of speech.

>

> I don't know whether to go down this whole road as she has more

> going on than autism. Thanks

>

> Lesley, mom to , 4 years,

>

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_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

August 4, 2006

Hi Bethany,

Welcome to the list. Have you tried Epsom salt baths? Also consider NAET.

www.naet.com

S S

On Behalf Of niceneezer

I am new to the groups so I would like to introduce myself. I'm a sahm

to Ellie age 4(almost 5) and Lukas age 6. Ellie is dx as having

expressive receptive language disorder with sensory issues. She has

severe food allergies(tested at Great Plains) as well as outdoor

allergies. She also has severe eczema. We started the GFCF diet about

8 months ago and really haven't noticed a difference. We also did the

peptide test which turned out normal.

I feel so bad for her because she is always itching and her skin is so

bad (red, swollen, and feels like leather). We are now trying to find

a DAN doctor for her. Does anybody have any suggestions or advice for

things to do in the meantime? I have put off her taking her to get her

booster shots for a year now. I'm not sure what to do about that

either??

Bethany

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

August 4, 2006

-Have you tried oatmeal baths..Aveeno? My daughter really enjoyed

those for her eczema. We even took the packets and made them into

paste and put them right on her skin. I know a bit messy, but she

was happy!

Also avoid any chemicals such a not natural lotions, commercial

laundry soaps etc. Anything with perfumes, etc. We use baking soda

and vinegar to clean her clothes, no perfumed lotions, natural soap,

only cotton clothing and sheets etc. Any bit helps. While those

things might not be the cause they can irritate it.

Skip the shots. Eczema is an immune response as are allergies. And

if she has all that going on, her little immune system is overwelmed

already without adding in some toxins and viruses.

-- In , " Pamela Leigh "

<pamelaleigh@...> wrote:

>

> I would recommend delaying all vaccines at this time. Also,

Evening

> Primrose Oil by mouth can provide relief for eczema.

>

> Pamela

>

> " Courage is doing what you're afraid to do. There can be no

courage unless

> you're scared. "

>

> Eddie Rickenbacker, top US fighter ace, WWI

>

> _____

>

> From: [mailto:Autism-

Mercury ]

> On Behalf Of niceneezer

> Sent: Friday, August 04, 2006 9:45 AM

>

> Subject: [ ] new here

>

> I am new to the groups so I would like to introduce myself. I'm a

sahm

> to Ellie age 4(almost 5) and Lukas age 6. Ellie is dx as having

> expressive receptive language disorder with sensory issues. She

has

> severe food allergies(tested at Great Plains) as well as outdoor

> allergies. She also has severe eczema. We started the GFCF diet

about

> 8 months ago and really haven't noticed a difference. We also did

the

> peptide test which turned out normal.

>

> I feel so bad for her because she is always itching and her skin

is so

> bad (red, swollen, and feels like leather). We are now trying to

find

> a DAN doctor for her. Does anybody have any suggestions or advice

for

> things to do in the meantime? I have put off her taking her to get

her

> booster shots for a year now. I'm not sure what to do about that

> either??

>

> Bethany

>

August 5, 2006

> severe food allergies(tested at Great Plains) as well as outdoor

> allergies. She also has severe eczema. We started the GFCF diet about

> 8 months ago and really haven't noticed a difference.

Eczema is commonly caused by food intolerance. You can rotate foods,

or try enzymes to see if that helps

http://www.enzymestuff.com/

I used HNI enzymes

http://www.houstonni.com/

>>I have put off her taking her to get her

> booster shots for a year now. I'm not sure what to do about that

> either??

Find your state here, and waive them

http://home.san.rr.com/via/STATES/allstates.htm

Dana

August 5, 2006

>

> I am new to the groups so I would like to introduce myself. I'm a

sahm

> to Ellie age 4(almost 5) and Lukas age 6. Ellie is dx as having

> expressive receptive language disorder with sensory issues. She

has

> severe food allergies(tested at Great Plains) as well as outdoor

> allergies. She also has severe eczema. We started the GFCF diet

about

> 8 months ago and really haven't noticed a difference.

Look in the files section where Andy has put together a great piece

about how to determine what diet, if any, is the right diet to use.

He says that GFCF only really helps about 1/2 the time. It is

available here, though I think you will do better to just go to the

files section and find it:

http://f5.grp.fs.com/v1/kM7URFn2C3oBfSzeogIaEGk8R7nYsMLtIAlgYajA

pK6RyIMW11beBxMHbNKKjbXK8o43gyBjZ-gdzKYxpjjHmmy9b8tNg7gO/Diet%20-%

20how%20to%20pick%20the%20right%20one%20for%20your%20kid.

It is called " Diet: How to pick the right one for your kid " . If

your daughter does not need GFCF, then I would suggest getting her

off it. Perhaps adding enzymes would help? Many people use HNI

enzymes with great success:

http://www.houstonni.com/

We have never had allergies or eczema, so hopefully others who have

can help there.

> I feel so bad for her because she is always itching and her skin

is so

> bad (red, swollen, and feels like leather). We are now trying to

find

> a DAN doctor for her. Does anybody have any suggestions or advice

for

> things to do in the meantime?

Consider not using a DAN!, or using one for limited purposes, i.e.

getting Rxs you feel are appropriate, ordering labwork you want

done. It seems that many DAN! Docs don't know much about chelation

and often prescribe very dangerous protocols.

You might spend some time looking at the other files in the files

Section. Andy_Index will link you to posts Moria has linked which

can answer many questions you might have. Also, all the back posts

on the list are archived at www.onibasu.com. That is a great

reference as well.

Consider getting a hair test (essential elements part) for your

daughter from Doctor's Data. These can be ordered without a

prescription from Direct Labs at www.directlabs.com. Here is the

link to the hair test:

http://www.directlabs.com/testtypes.php#hair

If you mention this list, you get a discount. The test, with

discount, I believe costs about $75. It will give you a wealth of

information.

Finally, Andy's books " Amalgam Illness " and " Hair Test

Interpretation: Finding Hidden Toxicities " are invaluable resources.

>I have put off her taking her to get her

> booster shots for a year now. I'm not sure what to do about that

> either??

>

Congratulations on putting it off. If I were you, I would continue

to do so indefinitely.... You can do this by getting an exemption

(religious, philosophical, or whatever is allowed under the laws of

the state in which you reside).

Best,

Anne

August 13, 2006

Welcome Lori! You have found the right place!

Warm regards,

******************

(Rochester, NY)

Mom to , 3.2 years, Verbal Apraxia

& , 1 year

________________________________

From:

[mailto: ] On Behalf Of Lori

Sent: Sunday, August 13, 2006 12:46 AM

Subject: [ ] new here

Hi,

I am mom of 3 sons my oldest is 19 yrs old, my middle son is 15 yrs old

(developmental/verbal apraxia) and my youngest son is 16 months old

(SID-sensory integration dysfunction-an developmental verbal apraxia)

we reside in southern Indiana and I hope that I will relearn what I

need to here and also maybe direct people to places we have received

help from as well.

Lori mom to ,Geoffrey & Dale

August 14, 2006

Welcome Lori! You have found the right place!

Warm regards,

******************

(Rochester, NY)

Mom to , 3.2 years, Verbal Apraxia

& , 1 year

________________________________

From:

[mailto: ] On Behalf Of Lori

Sent: Sunday, August 13, 2006 12:46 AM

Subject: [ ] new here

Hi,

I am mom of 3 sons my oldest is 19 yrs old, my middle son is 15 yrs old

(developmental/verbal apraxia) and my youngest son is 16 months old

(SID-sensory integration dysfunction-an developmental verbal apraxia)

we reside in southern Indiana and I hope that I will relearn what I

need to here and also maybe direct people to places we have received

help from as well.

Lori mom to ,Geoffrey & Dale

August 14, 2006

Curious as to how you would evaluate your middle son who had (has verbal

apraxia). Was he severe?

Myra..p.s. welcome!

In , " Lori " lori_engelbrecht@...>

wrote:

Hi,

I am mom of 3 sons my oldest is 19 yrs old, my middle son is 15 yrs old

(developmental/verbal apraxia) and my youngest son is 16 months old

(SID-sensory integration dysfunction-an developmental verbal apraxia)

we reside in southern Indiana and I hope that I will relearn what I

need to here and also maybe direct people to places we have received

help from as well.

Lori mom to ,Geoffrey & Dale

August 14, 2006

Curious as to how you would evaluate your middle son who had (has verbal

apraxia). Was he severe?

Myra..p.s. welcome!

In , " Lori " lori_engelbrecht@...>

wrote:

Hi,

I am mom of 3 sons my oldest is 19 yrs old, my middle son is 15 yrs old

(developmental/verbal apraxia) and my youngest son is 16 months old

(SID-sensory integration dysfunction-an developmental verbal apraxia)

we reside in southern Indiana and I hope that I will relearn what I

need to here and also maybe direct people to places we have received

help from as well.

Lori mom to ,Geoffrey & Dale

September 8, 2006

Robin:)

I recommend that you ask your doctor if he would consider treating you with

antibiotics. After many years of experience dealing with the diseases of

R.A., Lupus, and Sjogrens, I run from anyone who is not open minded enough to

consider antibiotics as a treatment option.

September 9, 2006

Dear

My daughter (who will soon be nine years old) was

diagnosed with JA when she was 23 months old, and in

the past seven years, I think I counted at least six

different medications that she's taken, and that

doesn't include the medications that she has sometimes

been prescribed for stomach/digestive issues and the

folic acid, and then the leucovorin as a supplement

since she began taking methotrexate.

It DOES seem discouraging, I know, but once you find a

medication that is effective for your daughter, you

will find that it was worth the struggles and

frustration. Methotrexate can take up to twelve weeks

to be fully effective, so it might take awhile to see

a difference.

Many hugs to you as you are on the beginning of this

journey. I truly hope and pray that you will see some

results soon, and that your daughter's pain and

discomfort will be controlled by the medications.

Tammy (Mom to , almost 9, with pauci-articular JA

and related uveitis)

http://www.geocities.com/tlzeigler/sJRA.html

--- jeanmllucas <jeanmllucas@...> wrote:

> Hi, my name is and my 21 month old has recently

> been diagnosed

> with JRA. It has been 7 weeks since her condition

> has started and no

> drug has worked so far. We have tried naproxyn,

> motrin 3x a day,

> prednisone( on currently) and methotrexene( on

> currently). So far no

> change. To be fair she has only had one dose of the

> methotrexene so

> time will tell.

> I would like to know from others how many drugs

> their children had to

> go through untill they found the right one. I fell

> horrible that she

> has to go through this and can not wait untill we

> find a drug that

> works for her.

> Thanks,

> Jean

>

__________________________________________________

September 9, 2006

Usually the prednisone gets pretty quick results at helping to

deminish the pain. Its a bandaid drug with the goal of discontinuing

it as soon as improvement has been made.

My daughter is on methotrexate. We actually just restarted it about 7

weeks ago. I became very frustrated during those 7 weeks because she

wasn't responding and her flare just seemed to be getting worse. But,

I know that it takes awhile to reach maximum effectiveness, so

although it was difficult we held out and hoped for improvement. By

week six we could see a real change for the better and at week 7 she

was able to start going to school all day and the joint pain was once

again manageable.

We saw her rheumatologist yesterday and he said the average is 6-7

weeks for benefit of mtx to be seen and he believes that by week 12

our daughter should once again be mostly free of any joint pain. (She

has had medicated remission before with the use of mtx)

I know its so hard to wait, but it really seems like your doctors are

providing your daughter with the best course of treatment. Its better

to give each drug a chance to work.

Hang in there and begin the countdown for this medication. If after 8

weeks things are no better then definately speak with the rheumy and

reevaluate the treatment plan. There are even more steps yet that you

can take with the methotrexate. Possibly a higher dose or there is

also the option of giving the medicine as an injection which has a

better absorption rate and for many kids is the difference they needed

to make the methotrexate (mtx) more effective.

Meanwhile, the things we did to help our daughter during the waiting

period was lots of warm baths, soaks in our neighbors hot tub, heat

pad, ice packs, etc.

I am glad that you were able to find our support group and please feel

free to ask as many questions as you want. The beginning days and

weeks are so very challenging and you will find a ton of support here!

Blessings,

(Aundrea 11 systemic jra)

>

> Hi, my name is and my 21 month old has recently been diagnosed

> with JRA. It has been 7 weeks since her condition has started and no

> drug has worked so far. We have tried naproxyn, motrin 3x a day,

> prednisone( on currently) and methotrexene( on currently). So far no

> change. To be fair she has only had one dose of the methotrexene so

> time will tell.

> I would like to know from others how many drugs their children had

to

> go through untill they found the right one. I fell horrible that she

> has to go through this and can not wait untill we find a drug that

> works for her.

> Thanks,

> Jean

>

September 10, 2006

I you have my prays, I was diagonis with lymes long time ago with all the

sysptoms that you said . This is a good group and they have a ton of information

here and some very knowablge people here . write soon and you can write me

alsol; Bud

<cindy_4798@...> wrote: Hi, Im , 45 single mom, have

an 8 yr old daughter. I have been

chronically ill for over 15 years, dx with Fibro about 10 ago, but I

always felt that it was something more. I had half my thyroid

removed due to a questionable lesion, a year ago, and take bovine

thyroid for that. " thats an entirely long drawn out topic in

itself " that i will save for another time. My main problems (besides

the pain and fatigue)

are mood swings,confusion,serious visual problems that my doctor

doesnt even believe, hearing problems, (mainly processing the

incoming) overall brain fog, horrible depression and generalized AND

social anxiety. I also have sporatic facial numbness, tingling of

the limbs, bone pain, knee joints pain,. I take tramadol two a day,

which enables me to function. I'm broke, unemployed, trying to file

bankruptcy so i can keepmy house, (im dreaming there) and I have lost

all my friends, my fmaily members all think Im just crazy and lazy,

and I really have no one to turn to. I live in central Illinois, and

I found a specialist online, Dr. Christ in Springfield, Mo. that Im

going to try to get an appt with. I was tested years ago, but I know

that regular testing is not reliable for a tru dx. I need HELP and

Support. Ive read a bunch about rife and the salt/C protocols but I

really dont know where to start. I have a child to raise and i can

barely afford to feed us right now. This illness has caused me to

lose everything. Any info/words of encouragement would be

appreciated.

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

September 10, 2006

Welcome to the group. My name is Kathy, and my daughter, , was

diagnosed in May at 18 months with polyarticular JRA. Up until about a month

ago, we hadn't found the right meds yet either. She started out on motrin

around the clock, then naprosyn 2x a day. She was still having weekly flares on

the naprosyn to the point that she couldn't walk and was rolling and army

crawling to get around. After the AJAO conference in Atlanta, we saw her rheumy

and talked about methotrexate. She has been on it for about a month now, but it

took probably a couple of weeks to start seeing a real difference. It was an

emotionally draining and at times frustrating process. Now she is running

again, so to me all of it was worth it...but I totally understand where you are

at right now...it's hard to know what is right, and I still can't say I do. I

would say give the methotrexate a little more time, and ask her rheumy when you

should expect to see results and what kind of

results. I learned that I have to be very specific with 's doc and ask

every seemingly little question I have, or I worry afterwards about not asking

it. Someone else on the board suggested keeping a binder with all bloodwork

results, and other pertinent medical info. I keep notes on my calendar in

Outlook about different things I want to remember...how she's eating, her

activity level, symptoms, questions. It helps me to have them all in one

place...but do whatever works for you.

Again, welcome! The people on this board have been wonderful and a great

source of support for me....they will for you too.

Kathy

mom to , 22 months, poly

and Luke, 4-1/2

jeanmllucas <jeanmllucas@...> wrote:

Hi, my name is and my 21 month old has recently been diagnosed

with JRA. It has been 7 weeks since her condition has started and no

drug has worked so far. We have tried naproxyn, motrin 3x a day,

prednisone( on currently) and methotrexene( on currently). So far no

change. To be fair she has only had one dose of the methotrexene so

time will tell.

I would like to know from others how many drugs their children had to

go through untill they found the right one. I fell horrible that she

has to go through this and can not wait untill we find a drug that

works for her.

Thanks,

Jean

---------------------------------

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starting at 1¢/min.

September 10, 2006

Kathy,

Wow our stories are so similar. Its takes Kylie some time in the morning to

start walking and then she may limp for awhile, but after that she is running

untill bedtime! I am hoping that the methotrexate will work for her and that we

do not have to try anymore, this is her 3rd drug in 4 weeks. She was taking

everything your daughter was and is still on motrin 3 times a day, she is being

weaned off prednisone and she is taking the MTX. She was not very good about

taking the naproxyn so we stopped and give the motrin instead.

They have not gave her a class yet, so I am not sure if she is poly, or the

other one. We are going to the eye doctor this Friday to be tested for uveitis

and hopefully she does not have it.

Thank you for sharing your story with me, and thanks to everyone else who has

as well. You all have given me alot of answers to the one million questions I

have had. And I am sure that I will most likely come up with a million more.

Thanks again,

Jeannie

Momof2gr8kids <sk8ingmomof2@...> wrote:

Welcome to the group. My name is Kathy, and my daughter, , was diagnosed

in May at 18 months with polyarticular JRA. Up until about a month ago, we

hadn't found the right meds yet either. She started out on motrin around the

clock, then naprosyn 2x a day. She was still having weekly flares on the

naprosyn to the point that she couldn't walk and was rolling and army crawling

to get around. After the AJAO conference in Atlanta, we saw her rheumy and

talked about methotrexate. She has been on it for about a month now, but it took

probably a couple of weeks to start seeing a real difference. It was an

emotionally draining and at times frustrating process. Now she is running again,

so to me all of it was worth it...but I totally understand where you are at

right now...it's hard to know what is right, and I still can't say I do. I would

say give the methotrexate a little more time, and ask her rheumy when you should

expect to see results and what kind of

results. I learned that I have to be very specific with 's doc and ask

every seemingly little question I have, or I worry afterwards about not asking

it. Someone else on the board suggested keeping a binder with all bloodwork

results, and other pertinent medical info. I keep notes on my calendar in

Outlook about different things I want to remember...how she's eating, her

activity level, symptoms, questions. It helps me to have them all in one

place...but do whatever works for you.

Again, welcome! The people on this board have been wonderful and a great source

of support for me....they will for you too.

Kathy

mom to , 22 months, poly

and Luke, 4-1/2

jeanmllucas <jeanmllucas@...> wrote:

Hi, my name is and my 21 month old has recently been diagnosed

with JRA. It has been 7 weeks since her condition has started and no

drug has worked so far. We have tried naproxyn, motrin 3x a day,

prednisone( on currently) and methotrexene( on currently). So far no

change. To be fair she has only had one dose of the methotrexene so

time will tell.

I would like to know from others how many drugs their children had to

go through untill they found the right one. I fell horrible that she

has to go through this and can not wait untill we find a drug that

works for her.

Thanks,

Jean

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

September 11, 2006

---

Welcome to the group, this is an awesome group full of great advise,

and so much compassion. Its such a struggle in the begining but it

does get better. Please ask any questions you need help with. I am

sure someone here will be able to help.

hugs Helen and (9,systemic)

In , " jeanmllucas " <jeanmllucas@...> wrote:

>

> Hi, my name is and my 21 month old has recently been diagnosed

> with JRA. It has been 7 weeks since her condition has started and no

> drug has worked so far. We have tried naproxyn, motrin 3x a day,

> prednisone( on currently) and methotrexene( on currently). So far no

> change. To be fair she has only had one dose of the methotrexene so

> time will tell.

> I would like to know from others how many drugs their children had

to

> go through untill they found the right one. I fell horrible that she

> has to go through this and can not wait untill we find a drug that

> works for her.

> Thanks,

> Jean

>

September 12, 2006

Hi ,

I understand your troubles with an accurate diagnosis and having all

kinds of problems with doctors. Been there, done that. I have

heard from others with Lyme and tick disease, that Dr. Crist is very

good.

Regarding your money woes...apply for public assistance or ask a

church for help. That's what we have all paid taxes for, and made

donations in the past....to help those in need.

There is life after bankruptcy. I went through this about 10 years

ago with my first round of Lyme disease. Do the best you can every

day and that is the best you can do...right? For me, it's not much

some days, but I have learned not to overdo things. It only makes

me feel worse.

If it's lyme, you are in this for the long haul....there are no

quick fixes. I am not saying this to depress you further, just

that's the reality of the situation. My thoughts and prayers are

with you.

cooky

>

> Hi, Im , 45 single mom, have an 8 yr old daughter. I have been

> chronically ill for over 15 years, dx with Fibro about 10 ago, but

I

> always felt that it was something more. I had half my thyroid

> removed due to a questionable lesion, a year ago, and take bovine

> thyroid for that. " thats an entirely long drawn out topic in

> itself " that i will save for another time. My main problems

(besides

> the pain and fatigue)

> are mood swings,confusion,serious visual problems that my doctor

> doesnt even believe, hearing problems, (mainly processing the

> incoming) overall brain fog, horrible depression and generalized

AND

> social anxiety. I also have sporatic facial numbness, tingling of

> the limbs, bone pain, knee joints pain,. I take tramadol two a day,

> which enables me to function. I'm broke, unemployed, trying to file

> bankruptcy so i can keepmy house, (im dreaming there) and I have

lost

> all my friends, my fmaily members all think Im just crazy and lazy,

> and I really have no one to turn to. I live in central Illinois,

and

> I found a specialist online, Dr. Christ in Springfield, Mo. that Im

> going to try to get an appt with. I was tested years ago, but I

know

> that regular testing is not reliable for a tru dx. I need HELP and

> Support. Ive read a bunch about rife and the salt/C protocols but I

> really dont know where to start. I have a child to raise and i can

> barely afford to feed us right now. This illness has caused me to

> lose everything. Any info/words of encouragement would be

> appreciated.

>

September 28, 2006

hi, i had low platelet count almost had to have a transfusion but doc put me on

a treatment of iron and vit. c and now my count is okay. they can't do

treatments until red cells are normal as treatment depletes them. i haven't any

idea why the white count is low, they do the battling of the infections etc.

your doctor should be calling you in soon when he sees your results mine did, or

you call and make an appointment so you can talk to him. sorry couldn't help

more.. god bless

hotsoz1 <hotsaucey13@...> wrote: Hello, new to the site, just

found out i have hep c from a blood

transfusion in 1979. Anyhow, question is what does it mean if your

white blood count is low, like 3.3? also what about having low

platelets, what is that?

Havent really seen my doctor yet just had blood work done, and a copy

was sent to my home, i have no idea what any of it means.

thanks for your help

October 8, 2006

As a comparison, I just got the results of my daughter's hair test.

Her blood test came back looking mostly normal, although some of the

elements were out of range barely. The ped and DAN doctor said it

meant nothing. I thought I saw patterns and thanks to this group

ordered the DDI hair test. Using the counting rules she looks toxic

so now we can do something about it. I am sending the results to the

ped in hope of having her follow us through chelation although I know

she will be concerned at first.

>

> My name is Jenna and I have 2 autistic boys. I just had the mercury

> blood test yesterday and I am worried about what the Dr. said. She

> said there may not be any mercury left in his system but, I was told

> by my mom that it always stays with you. I thought that dr's were

> supposed to test the hair and not the blood for mercury. CONFUSED!!!!

> Can anyone here help me?

> Jenna Everhart

>

October 8, 2006

Hi

Welcome to the list. You certainly sound like you have your hands and house

full. Glad you found us. Do the ones with challenges at least have IEPs?

S S

From: wlfwoman2002 [mailto: wlfwoman2002@...]

Date: Sun, 08 Oct 2006 05:38:17 -0000

Subject: [ ] New Here

<!DOCTYPE HTML PUBLIC " -//W3C//DTD HTML 4.01//EN "

" http://www.w3.org/TR/html4/strict.dtd " >

<html>

<head>

</head>

<div id= " ygrp-msg " style= " width: 490px; padding: 0 15px 0 0; float:left;

z-index:1; " >

Hi everyone my name is Chris. I am a single mother of six very

loving,beautiful kids. Four of them have sever behavioral and learning

disabilities. I have custody of my neice who I have had since she was

6 months old. She is now 6 and I firmly believe she has PDD. She

hasn't been formally given that diagnosis yet but I know. She has

severe speech,learning and other developmentally delayed issues. I

can't for the life of me to get this wonderful state I live in to do

anything for my kids. So I am loving this group and absorbing all the

info I can gather up.I hope to get to chat with you all and learn as

much as I can to better help her.

_______________________________________________

Join Excite! - http://www.excite.com

The most personalized portal on the Web!

October 10, 2006

Hey !

I was about the same age as you are when I was diagnosed too. We

all understand the " being there " issue. Our condition can and does

often cause a lot of stress in a marriage. I'm not sure if we will

ever be 100% but 90 to 95% isn't bad. It takes awhile to get back

in the swing of things and there are ups and downs. (I know that's

a loaded statement... but it holds true in any event.) LOL

Rember that we all have been there and are continuing to learn to

cope with hypogonadism, doctors, family and ourselves as well. You

are on the path to feeling and doing much better. Feal free to give

me a shout anytime.

Randy

>

> Good afternoon everyone,

>

> This is my first time here and I can tell you that I am glad

> already. I was diagnosed with Hypogonadism back in April/May. I

had

> originally went in to see my Dr. because I was extremely tired

most

> of the time, regardless of how much sleep I got. When the Dr.

told

> me the results of the blood test, I naturally asked what that

means,

> and he stated that as a 35/m, that I had a testosterone level that

> was below what he would expect for an 80 year old.

>

> Fortunately, this seems to have started shortly before being

> diagnosed, and did not experience any of the stresses of

infertility

> and can proudly say that my wife and I are parents to 2 healty

> children (6 and 3). The symptoms seem to have started shortly

after

> having a vasectomy, so I don't know if there was some issue with

> that, but I just find it odd that it would come up at much the

same

> time.

>

> Anyway, since then, things have been fair. There are days when I

> feel real good, and there are days that could be much better. I

am

> currently using Androgel to try and raise the levels of

testosterone,

> which seems to be working, however, there has been quite the

stress

> between my wife and I about how I have been feeling and being 'not

> there'. Anyway, I hope to be able to use this group as a place to

> vent, or talk with others that are in the same boat, and know how

it

> feels to be suffering with a condition like this.

>

> Thank you,

>

October 10, 2006

Hi you got some dam good advise the only thing I can add is I hope you had

all the tests done to find out why your low. 23 yrs ago they told me it was my

testis don't work good enough to keep my levels up. Now just this yr about 5

months ago I find out my T levels are low because of a bad head injury I had

some 23 yrs ago. So my testis are fine it's my pituitary glaind is not working

right. Tests have been done on me for yrs every 4 to 6 weeks and a lot of

things came back low normal. I was always told these things are ok now I konw

they are not. So I never felt 100% on TRT and the things that were low normal

they are now treating low Cortiosl, DHEA, Thyriod and still looking for more.

Go to www.allthingsmale.com and read TRT: A Recipe for success and the HCG

update this is about the best treatment going today. In this are tests you

needed done and why. A lot of things can make your T levels go down and fixing

them your levels go back up.

You did not say what dose of Androgel your on but most end up on the 7.5 to 10

gram dose. And like the guys told you test Estradiol a test like this one.

http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sr012000.htm

If you levels are high this can make you lose your libido give you ED and

cause you to feel panic.

We have a links and files section full of info on low T and high E2 Estradiol

go there and read and learn as much as you can the more you know the better off

you will be when you see a Dr. your Dr. or any Dr. Most don't know about this

and all they do know is what the drug reps tell them.

Phil

bkemp71 <bkemp71@...> wrote:

Good afternoon everyone,

This is my first time here and I can tell you that I am glad

already. I was diagnosed with Hypogonadism back in April/May. I had

originally went in to see my Dr. because I was extremely tired most

of the time, regardless of how much sleep I got. When the Dr. told

me the results of the blood test, I naturally asked what that means,

and he stated that as a 35/m, that I had a testosterone level that

was below what he would expect for an 80 year old.

Fortunately, this seems to have started shortly before being

diagnosed, and did not experience any of the stresses of infertility

and can proudly say that my wife and I are parents to 2 healty

children (6 and 3). The symptoms seem to have started shortly after

having a vasectomy, so I don't know if there was some issue with

that, but I just find it odd that it would come up at much the same

time.

Anyway, since then, things have been fair. There are days when I

feel real good, and there are days that could be much better. I am

currently using Androgel to try and raise the levels of testosterone,

which seems to be working, however, there has been quite the stress

between my wife and I about how I have been feeling and being 'not

there'. Anyway, I hope to be able to use this group as a place to

vent, or talk with others that are in the same boat, and know how it

feels to be suffering with a condition like this.

Thank you,

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

October 13, 2006

Hi Matt,

My son did try Dr Hulda es parasite program and I do believe it had a

great effect on my son but with him as long as he stays on a healthy eating

program in conjunction with the parasite program he has a great out come.

The offending foods for him do feed paraistes and his main culprit is sugar.

Once he returns to unhealthy eating he will experience problems.

Matt B <nerimski@...> wrote:

Greetings everyone, I am new to this group so just thought I

would introduce myself. My name is Matt, I'm 22 years old and have suffered from

grand mal seizures for the past year and a half. I'm not sure what this place is

used for exactly but I am trying to find a cure, so if anyone could help, it

would be appreciated.

Overall, my seizures started as falling down, jerking, or in a couple cases,

passing out. I used to have these attacks a few times a week but now they have

died down to one every couple weeks. Although they don't happen often, it still

has had a negative effect on my life. I'm not supposed to drive until they go

away.

I have heard that certain parasites in the brain can cause seizures and was

wondering if this might be what is causing mine. If this is the true cause can

such things as natural purgatives help? Lately I haven't had hardly any energy

and have some digestive problems despite healthy eating, which is one reason I

would like to try a purgative. I am not currently on any meds, any help is

appreciated. Thanks. -Matt

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

October 13, 2006

Hi Matt:

I know this is very upsetting to you. There are some things that you can do to

help yourself, but first you have to become your own detective and see if you

can find out what is triggering your seizures and how you can decrease or

eliminate them. Have patience it takes time. Diligently observe, research, talk

to people, talk to God, do all the things that are good for your health and

avoid doing all the bad things that drain your health. Everyday imagine yourself

completely healed!

I know your are 22 but it doesn't hurt to get your parents or someone to help

you.

RESEARCH AND OBSERVATION

Get a calendar where you can write notes and start keeping track of what goes

on:

Write down when you have a seizure and everything that went on that day and

the day before, for example: Everything you did, ate, drank and maybe things

that make you upset or places that you visited or funny smells in your

neighborhood.

Do this until you get this under control! LOOK FOR PATTERNS OF THINGS THAT

HAPPEN BEFORE THE SEIZURES! When you identify the things that you think could be

possible triggering them, stop doing that and see if you notice improvement.

Improvement could be less frequency in your seizures or a milder form of the

seizures.

These are important clues and will help you move forward. Write them down too

and stick to what works. Don't get discouraged. Any improvement is good!

This will help you not only possible decrease or eliminate your seizures, but

also pay attention to how you feel before a seizure and give you time to go to a

safe place.

HERE ARE SOME IDEAS FOR THINGS TO LOOK FOR

Why did the seizures decrease to once a week? Do you know? Did you make some

changes that helped you? (this could be an important clue)

Did you have and accident or fall and hit your head? ( if yes, read about

neurofeedback)

Have you been experimenting with drugs or alcohol? (stop immediately NO DRUGS)

Don't let peer pressure get you. You have more important things to do.

Do you have allergies? (read about allergies and seizures. avoid everything

that causes your allergies and clean your liver, read about Dr. Hulda 's

liver, kidney and parasite cleaning. Read about ascaris and epilepsy. look up

allergies and zen)

Have you been sick with other things? Are the seizures a result of another

illness or medication you are taking.

How is the rest of your body functioning?

What are your stomach problems about? diarrhea, constipation, pain? Check out

Dr. Schultz colon health book or see if you can get a naturopath to order a

stool test to see what is going on there. Read about it! Fix your gut it is

related to your brain.

Have you been exposed to environmental chemicals? GET AWAY FROM THERE

It could be pesticides, fertilizers, paints, etc.

Did you recently move to a new house, school etc. what is around there?

Factories, agriculture, chemical or recycling plants, etc.

Have you had any traumatic events in your life recently?

TAKE CARE OF YOURSELF

Eat tons of green veggies and fruit.

Stay away from dairy could be a trigger

No chicken or eggs could be a trigger

Stay away from soy. It could be a trigger

No alcohol, drugs, caffeine, cokes, chocolate or

No spicy food (test to see if it is a trigger maybe not)

Drink a water all day long (read about water and neurotransmitters)

Go to bed early. Lack of sleep is a seizure trigger!

Oxygenate your brain by exercising but be careful of excessive. It could be a

trigger.

Take a good multivitamin, magnesium and vitamin B-50 plus B complex read about

lecithin

Get some sun daily, it helps your body work right.

Avoid excessive stress and do something every day that brings you JOY.

Keep yourself busy with school and work. Pursue your goals. You have a lot to

look forward to. Life is good even though it is not perfect.

Pray or meditate daily!

Keep searching and never give up

Good Luck,

Matt B <nerimski@...> wrote:

Greetings everyone, I am new to this group so just thought I

would introduce myself. My name is Matt, I'm 22 years old and have suffered from

grand mal seizures for the past year and a half. I'm not sure what this place is

used for exactly but I am trying to find a cure, so if anyone could help, it

would be appreciated.

Overall, my seizures started as falling down, jerking, or in a couple cases,

passing out. I used to have these attacks a few times a week but now they have

died down to one every couple weeks. Although they don't happen often, it still

has had a negative effect on my life. I'm not supposed to drive until they go

away.

I have heard that certain parasites in the brain can cause seizures and was

wondering if this might be what is causing mine. If this is the true cause can

such things as natural purgatives help? Lately I haven't had hardly any energy

and have some digestive problems despite healthy eating, which is one reason I

would like to try a purgative. I am not currently on any meds, any help is

appreciated. Thanks. -Matt

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

October 25, 2006

Hi Cathleen, I've had severe vision changes. Doctor said it was due to the HCV.

I have a friend who lost sight in one eye due to HCV. As soon as he gets back to

me I'll ask him why and let you know. Connie

Cathleen Strong <camost@...> wrote: My name is Cathleen. I

was diagnosed Feb 10th of this year. I was intentionally exposed to it June 18th

of last year. I currently have no intention of treating it, and so far have no

problems.

But, I've heard that HCV can affect your eyesight. What info I've found on the

web just mentions vision changes with a specific treatment or with coinfection

of HIV. Does anyone have any info about this?

Thanks.

Sometimes there are no good excuses.

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