Re: valtrex dosing

[Guest guest]

diet - did gfcf, then scd, now we are back to a quasi scd with some gfcf allowances.therapy - aba 20 hours a week at home, plus the ot, pt, si. gets extra speech every other week up in south brunswick, nj. he is learning the gotalk 9, doing facilitated speech.enzymes - we did dpp-iv way back, got some good stuff from it for a time and then it seemed to fade. we are thinking about doing a new enzyme, maybe something from houston.probiotics - alternates betwwen klaire labs and custom probiotic.clo - yes, and a gazillion other supps including vitamin e,

liverlife, biotin, dr, n's powder, uva ursi, vitamin c, the list goes on.epsom salt baths - yes.behaviors - he is a very nice and affectionate child. he does not tantrum much, is not bad with transitions,

and he loves going to the playground, the store, rough play, or car

rides. he generally sleeps through the night.he is apraxic, ie has alot of trouble making words (we understand him but it is pretty tough for anyone else), and is just plain stiff as a board motorically speaking. he is a little ocd but not too over the top, but he does not play with toys appropriately, is not interested in other children (a little interested in his little broher), and is kind of spacey. stimming is there, lots of twirling toys, galloping, not all day but intermittently.he is a bit of a sensory seeker, is hypoactive (very hard to get him dizzy), lethargic alot of the time with bouts of hyperactivity, very itchy in the am and the pm as of late (this never happened prior, trying to figure out if he is developing eczema, seasonal allergies, or if it's yeast). so the short of this is cognitive and focus (add), and communication. there are other things,but these are the biggies.

MATT OTo: "mb12 valtrex " <mb12 valtrex >Sent: Wed, May 19, 2010 6:46:24 PMSubject: Re: Re: valtrex dosing

How's his diet?Are you doing any traditional therapies?What are his behaviors/issues that cause concern?Is he on an enzyme? Which one? Does he take probiotics? Which one? CLO? Which one?Have you tried giving Epsom Salt baths to detox?As long as you have an azole on board, for yeast, then yeast, w/ Valtrex, should be a non issue. Dr. N. (for some odd reason), likes to prescribe Nystatin w/Valtrex. I had to fight him on this one. And he eventually let us use Diflucan. I basically would not give my son Valtrex unless on a strong antifungal like Diflucan, or Nizoral.Liver function has been fine (knock wood.) We test every four weeks. And I make sure my son drinks LOTS of water, takes milk thistle, and eats liver detoxifying foods.Sorry for all the

questions.. I'm just trying to get a sense of what's going on...so that we can help you. Sent from my iPhoneOn May 19, 2010, at 6:10 PM, matt orourke <matthew_t_orourke@ yahoo.com> wrote:

we have been at this for two years and no we are not far along, which has been frustrating. we were off to a great start with mb-12, but everything since then has more or less been a bust. hbot, antifungal, diets and supps, iv secretin, tomatis, oral chelation... i feel like charlie brown with lucy and that damn football with this stuff.how tough is valtrex AND antifungals imultaneously on the liver?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

<matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I

also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the

third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per

day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage

should be 3x a day, not twice. DAN hasn't quite gotten

up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ On May 17, 2010, at

1:45 PM, ghosharpita wrote: Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night

(NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

Lynnit's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.so you are doing the NIDS i guess. you should check out this site - stopcallingitautism.orgit is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. MATT OTo: mb12 valtrex Sent: Wed, May 19, 2010 7:54:34 PMSubject: Re: Re: valtrex dosing

Hi Matt!I completely understand your frustration! My son will be 10 this year withh PDD-NOS and anxiety. Our journey started when he was 2 1/2 but really escalated in 1st grade. Not to make this a long story, but we've tried everything, too! We recently worked with a DAN doc and after several thousands of dollars and tons of different supplements, again, I started hearing about Dr. Goldberg. He's in California, and I don't know how realistic it is for most people right now, but I took his first available appt. and flew out there with my son. I realize not everyone will be able to do this, but after all the years I've been doing this, I feel this is our last stop.He's a pediatrician that has spent years researching and treating this crazy epidemic of 'spectrum disorders'! His philosophy and approach makes more sense on what goes on with these kids and he treats them very methodically. Spect scans of the brain are done, tons of blood work

is taken to test for many viral issues, etc.., and his diet protocol is tweaked a little from the GF/CF diet. If you haven't heard about him, you can research him and find a ton of presentations online that he's given and learn about his approach. He basically told me to stop all supplements for now while we tweak his diet, and will be starting him on Nizoral this weekend. I've researched a lot lately that backs up why he doesn't recommend taking any enzymes, or other supplements when you start any of this kind of medication. It all makes so much sense now. We're waiting for the blood work to come back to learn more about my son's issues. The spect scan was something else that truly showed me more concrete evidence of what's going on with my son. We all know that if the immune system is compromised that it affects our brain. He not only shows you that, but then has a specific plan to help heal our kids! I know that many people

have gotten results trying different things. But since my son is older now, I didn't feel like doing this any more and still feeling in the dark!! I truly feel that Dr. G has been ahead of many docs out there for a long time. Lynn in CharlotteSent from my Verizon Wireless BlackBerryFrom: matt orourke <matthew_t_orourke@ yahoo.com>

Date: Wed, 19 May 2010 15:10:25 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>Subject: Re: Re: valtrex dosing

we have been at this for two years and no we are not far along, which has been frustrating. we were off to a great start with mb-12, but everything since then has more or less been a bust. hbot, antifungal, diets and supps, iv secretin, tomatis, oral chelation... i feel like charlie brown with lucy and that damn football with this stuff.how tough is valtrex AND antifungals imultaneously on the liver?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

<matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

Lynnit's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.so you are doing the NIDS i guess. you should check out this site - stopcallingitautism.orgit is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. MATT OTo: mb12 valtrex Sent: Wed, May 19, 2010 7:54:34 PMSubject: Re: Re: valtrex dosing

Hi Matt!I completely understand your frustration! My son will be 10 this year withh PDD-NOS and anxiety. Our journey started when he was 2 1/2 but really escalated in 1st grade. Not to make this a long story, but we've tried everything, too! We recently worked with a DAN doc and after several thousands of dollars and tons of different supplements, again, I started hearing about Dr. Goldberg. He's in California, and I don't know how realistic it is for most people right now, but I took his first available appt. and flew out there with my son. I realize not everyone will be able to do this, but after all the years I've been doing this, I feel this is our last stop.He's a pediatrician that has spent years researching and treating this crazy epidemic of 'spectrum disorders'! His philosophy and approach makes more sense on what goes on with these kids and he treats them very methodically. Spect scans of the brain are done, tons of blood work

is taken to test for many viral issues, etc.., and his diet protocol is tweaked a little from the GF/CF diet. If you haven't heard about him, you can research him and find a ton of presentations online that he's given and learn about his approach. He basically told me to stop all supplements for now while we tweak his diet, and will be starting him on Nizoral this weekend. I've researched a lot lately that backs up why he doesn't recommend taking any enzymes, or other supplements when you start any of this kind of medication. It all makes so much sense now. We're waiting for the blood work to come back to learn more about my son's issues. The spect scan was something else that truly showed me more concrete evidence of what's going on with my son. We all know that if the immune system is compromised that it affects our brain. He not only shows you that, but then has a specific plan to help heal our kids! I know that many people

have gotten results trying different things. But since my son is older now, I didn't feel like doing this any more and still feeling in the dark!! I truly feel that Dr. G has been ahead of many docs out there for a long time. Lynn in CharlotteSent from my Verizon Wireless BlackBerryFrom: matt orourke <matthew_t_orourke@ yahoo.com>

Date: Wed, 19 May 2010 15:10:25 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>Subject: Re: Re: valtrex dosing

we have been at this for two years and no we are not far along, which has been frustrating. we were off to a great start with mb-12, but everything since then has more or less been a bust. hbot, antifungal, diets and supps, iv secretin, tomatis, oral chelation... i feel like charlie brown with lucy and that damn football with this stuff.how tough is valtrex AND antifungals imultaneously on the liver?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

<matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

Lynnit's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.so you are doing the NIDS i guess. you should check out this site - stopcallingitautism.orgit is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. MATT OTo: mb12 valtrex Sent: Wed, May 19, 2010 7:54:34 PMSubject: Re: Re: valtrex dosing

Hi Matt!I completely understand your frustration! My son will be 10 this year withh PDD-NOS and anxiety. Our journey started when he was 2 1/2 but really escalated in 1st grade. Not to make this a long story, but we've tried everything, too! We recently worked with a DAN doc and after several thousands of dollars and tons of different supplements, again, I started hearing about Dr. Goldberg. He's in California, and I don't know how realistic it is for most people right now, but I took his first available appt. and flew out there with my son. I realize not everyone will be able to do this, but after all the years I've been doing this, I feel this is our last stop.He's a pediatrician that has spent years researching and treating this crazy epidemic of 'spectrum disorders'! His philosophy and approach makes more sense on what goes on with these kids and he treats them very methodically. Spect scans of the brain are done, tons of blood work

is taken to test for many viral issues, etc.., and his diet protocol is tweaked a little from the GF/CF diet. If you haven't heard about him, you can research him and find a ton of presentations online that he's given and learn about his approach. He basically told me to stop all supplements for now while we tweak his diet, and will be starting him on Nizoral this weekend. I've researched a lot lately that backs up why he doesn't recommend taking any enzymes, or other supplements when you start any of this kind of medication. It all makes so much sense now. We're waiting for the blood work to come back to learn more about my son's issues. The spect scan was something else that truly showed me more concrete evidence of what's going on with my son. We all know that if the immune system is compromised that it affects our brain. He not only shows you that, but then has a specific plan to help heal our kids! I know that many people

have gotten results trying different things. But since my son is older now, I didn't feel like doing this any more and still feeling in the dark!! I truly feel that Dr. G has been ahead of many docs out there for a long time. Lynn in CharlotteSent from my Verizon Wireless BlackBerryFrom: matt orourke <matthew_t_orourke@ yahoo.com>

Date: Wed, 19 May 2010 15:10:25 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>Subject: Re: Re: valtrex dosing

we have been at this for two years and no we are not far along, which has been frustrating. we were off to a great start with mb-12, but everything since then has more or less been a bust. hbot, antifungal, diets and supps, iv secretin, tomatis, oral chelation... i feel like charlie brown with lucy and that damn football with this stuff.how tough is valtrex AND antifungals imultaneously on the liver?MATT OFrom:

<yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Wed, May 19, 2010 10:51:01 AMSubject: Re: Re: valtrex dosing

Yes, that is exactly why we stayed w/ Dr. N (b/c of the MB12.)We never ran titers. I just started the 50-60 day trial blindly, b/c he was a "viral kid," and thought he may respond well, and he did. Yes, Dr. N gave us a script for the ibuprofen. A boy in my son's social skills class goes to Larry . How far along is your son recovery wise? Have you been doing biomed for long?From: matt orourke

<matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, May 18, 2010 8:05:18 AMSubject: Re: Re: valtrex dosing

dr. n is our dan too. we went with him as our son was a good mb-12 responder. unfortunately, hbot was a big waste of time, money, etc. so he thinks iv chelation is the way to go, but this was before we did viral and immunology panels. we have a call to do with him, we wanted to do ldn, maybe iv glutathione. .. definitely want to get valtrex going.what were your guys viral titers like?did dr. n do the ibuprofen script for you?do you see dr. larry miller?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 11:15:49 PMSubject: Re: Re: valtrex dosing

Hi, Matt.We live in Philadelphia. Dr. Neubrander, in NJ, is our DAN! who prescribed the LDN. We tried LDN twice. The first time it didn't work. I'm not sure if the dosage was too high, but we noticed major regression (the first time), I got scared and stopped. At the time, we didn't have anything on board for yeast, and we were only gfcf, not scd, corn free and soy free, like we are now. So, perhaps, that's why it didn't work. The second time we tried LDN (about a year later), we only used "two lines," instead of the suggested (by Neubrander), "five lines." Christel King, who is also a member of this board, suggested that I try two lines. And it put our son over the finish line and into a

state of recovery. We've never chelated. And we do not see an immunologist. Yes, the SCD legal, compounded Ibupro. is a script.Best, From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 10:51:57 PMSubject: Re: Re: valtrex dosing I would love to know more about your ldn experience.. . and do you need to get effective ibuprofen as a script? i live about 20 minutes from hopewell, i am there at least once a month, will be over there tomorrow for diflucan actually.i have been looking into the nids approach since we got next to nothing on the oral chelation route (4 months on ala, only got little stuff). do you have any opinions / experiences w/ immunovir, ivig (or subcutaneous like gamastan)? do you work with an immunologist?MATT OFrom: <yahoo (DOT) com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 9:27:40 PMSubject: Re: Re: valtrex dosing Matt:We do 250mg 3x a day. I first washed the blue dye off, then used a pill crusher to "mash" the pill (which I purchased from CVS pharmacy.) The first week we used activated charcoal. That is, we didn't wait for the die off, we just started the Activated Charcoal the same week as the Valtrex. I also gave him 1tsp of

compounded dye free ibuprofen in the morning before school ( I swear by this stuff!), which I purchased through Hopewell Pharmacy.... 2 cups of epsom every night, and LOTS of water, patience and love :)So the dosing schedule looked like this (for the first week): 1. 8am: 250mg valtrex, diflucan 90mg. and other supps, 2. noon: 250mg valtrex, 3. 3pm, activated charcoal, 4. 5:30pm, 250mg valtrex and other supps, 5. 8:30pm, probiotic, 6. 11pm, LDNafter the first week, i dropped the activated charcoal, and moved the third dosage up to 4pm, instead of at 5:30pm, since I no longer needed the two hour window between supps and activated charcoal.I also gave an 8 oz. glass of water before each dose of valtrex, followed by 3 ozs of

water w/ 10 drops of milk thistle.I kept/keep a diary of gains, regression, etc., immediate gains were speech and receptive language. immediate regression was hyperactivity and stimming (not major stimmy...just stims, that he had, and were gone, but came back for about a week while starting valtrex..) I was hoping for some regression, though, b/c I knew that meant he was a responder (potentially, anyway...) and it turned out that he was...The key w/ the yeast is that you must have an azole on board (diflucan, nizoral - NOT nystatin), make sure it's at least 90mg.check liver enzymes (we do this monthly..)Good Luck! Get your highlighter out, b/c the he Stan Kurtz TACANOW article is great -- print it. keep it close by...I studied it and read many posts before beginning..From: matt orourke <matthew_t_orourke@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:17:37 PMSubject: Re: Re: valtrex dosing so 250 mg three times per day?how bad is

yeast

with valtrex?any other things we need to address when doing this?MATT OFrom: Cheryl L. <cheryl.lowrance@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Mon, May 17, 2010 7:08:51 PMSubject: Re: Re: valtrex dosing Dosage should be 3x a day, not twice. DAN hasn't quite gotten up to speed on this. I

know of

a lot of big name, well respected DANs that aren't doing it right. Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~ Not sure. Our DAN has recommended 500 mg, twice daily, for 4.5 yr. old DS who is between 32 and 35 lbs. And I feel comfortable giving it because our DAN is known to be good. We just started though and DS has only elevated Measles - no other elevated titers. > > We are getting ready to try valtrex on our 4.5 year old son with asd. > > our local dan told us to do a very low dose, but i have been told his could lead to the virals he does have being innoculated to the antiviral and developing an immunity to valtrex if dosing is low. > > i know someone whose son did very well with antiviral but did 350 mg in the am, 250 mg at noon, and 350 mg at night (NIDS not DAN)

for his near 60 lb. son. our guy is just shy of 40 lbs, and the dose we got was 125 mg twice a day. > > our guy has high measle antibodies, but no high titers on other measles stuff (like chronic). he has the herpes6, but not any other herpes according to neuroscience viral panel. he is elevated in varicella, but not positive. he was vaccinated - almost up to age two. > > IS THERE A PER LB. MERIC FOR DOSING VALTREX, LIKE ANDY C.'S METHOD FOR ORAL CHELATION? WE ARE WORRIED ABOUT GIVING HIM TOO MUCH, BUT ALSO CONCERNED ABOUT THE WHOLE DEVELOPING A RESISTANCE THING... > > > ALSO, THIS WILL NOT HELP WITH VARICELLA OR MEASLES RIGHT? JUST THE HERPES 6? > > MATT O >

[Guest guest]

i am going to be redundant here but you can get a decent idea of dr. g on stopcallingitautism.org and on http://nids.homeip.net/ which has a video juan did wth dr. g himself.MATT OTo:

mb12 valtrex Sent: Thu, May 20, 2010 8:50:26 AMSubject: Re: valtrex dosing

Hi, Lynn. We're in Charlotte as well. I've heard of Dr. Goldberg and would love to hear more about your experiences with him. Take care.

Cole, 6, ASD

>

> Hi Matt!

>

> I completely understand your frustration! My son will be 10 this year withh PDD-NOS and anxiety. Our journey started when he was 2 1/2 but really escalated in 1st grade. Not to make this a long story, but we've tried everything, too! We recently worked with a DAN doc and after several thousands of dollars and tons of different supplements, again, I started hearing about Dr. Goldberg. He's in California, and I don't know how realistic it is for most people right now, but I took his first available appt. and flew out there with my son. I realize not everyone will be able to do this, but after all the years I've been doing this, I feel this is our last stop.

>

> He's a pediatrician that has spent years researching and treating this crazy epidemic of 'spectrum disorders'! His philosophy and approach makes more sense on what goes on with these kids and he treats them very methodically. Spect scans of the brain are done, tons of blood work is taken to test for many viral issues, etc.., and his diet protocol is tweaked a little from the GF/CF diet.

>

> If you haven't heard about him, you can research him and find a ton of presentations online that he's given and learn about his approach. He basically told me to stop all supplements for now while we tweak his diet, and will be starting him on Nizoral this weekend. I've researched a lot lately that backs up why he doesn't recommend taking any enzymes, or other supplements when you start any of this kind of medication. It all makes so much sense now.

>

> We're waiting for the blood work to come back to learn more about my son's issues. The spect scan was something else that truly showed me more concrete evidence of what's going on with my son. We all know that if the immune system is compromised that it affects our brain. He not only shows you that, but then has a specific plan to help heal our kids!

>

> I know that many people have gotten results trying different things. But since my son is older now, I didn't feel like doing this any more and still feeling in the dark!! I truly feel that Dr. G has been ahead of many docs out there for a long time.

>

> Lynn in Charlotte

> Sent from my Verizon Wireless BlackBerry

>

[Guest guest]

I read or heard somewhere that Goldberg beleived that if you had done DAN and

chelation you'd screwed up your kid more and either couldn't help you or wasn't

crazy about taking you on as a patient. Maybe I'm wrong but had that in the

back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and

have been trying to figure out who to see - dr. goldberg in ca or dr. russell in

ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism.org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the

videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhone

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism.org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrander

too.MATT OTo: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote:

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrander

too.MATT OTo: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote:

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrander

too.MATT OTo: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing

Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote:

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

But doesn't the yeast and bacterium hate the oxygen? Wouldn't it kill them because they are anaerobic? Sent via BlackBerry by AT&TDate: Fri, 21 May 2010 11:49:46 -0700 (PDT)To: <mb12 valtrex >Subject: Re: Re: valtrex dosing i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrandertoo.MATT OFrom: TRACEE ZEVAN To: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote: I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.>> Lynn> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.> > so you are doing the NIDS i guess. > > you should check out this site - stopcallingitautism .org> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. > > MATT O> >

[Guest guest]

But doesn't the yeast and bacterium hate the oxygen? Wouldn't it kill them because they are anaerobic? Sent via BlackBerry by AT&TDate: Fri, 21 May 2010 11:49:46 -0700 (PDT)To: <mb12 valtrex >Subject: Re: Re: valtrex dosing i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrandertoo.MATT OFrom: TRACEE ZEVAN To: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote: I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.>> Lynn> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.> > so you are doing the NIDS i guess. > > you should check out this site - stopcallingitautism .org> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. > > MATT O> >

[Guest guest]

But doesn't the yeast and bacterium hate the oxygen? Wouldn't it kill them because they are anaerobic? Sent via BlackBerry by AT&TDate: Fri, 21 May 2010 11:49:46 -0700 (PDT)To: <mb12 valtrex >Subject: Re: Re: valtrex dosing i think hbot and chelation are sticking points for dr. g.i actually agree with dr. g. on hbot, my son had modest gains after this- mostly in appetite, but his strep and yeast went off the chart and this treatment may have played a part in downgrading his speech articulation(timing suggests yes but who knows as apraxia is a slippery thing...).i have met alot of people who bought an hbot for a ton of money and saw very little in terms of gains... and most of these people are now trying to sell these things on ebay... what a waste. i do know some kids benefit from hbot, but i personally believe this is not the majority.if i based my dan choices on personality and/or things i heard about a practicioner prior to seeing them, i probably would have been scared away from seeing dr. neubrandertoo.MATT OFrom: TRACEE ZEVAN To: "mb12 valtrex " <mb12 valtrex >Sent: Fri, May 21, 2010 2:39:21 PMSubject: Re: Re: valtrex dosing Yes, I've heard many mixed reviews about him, as well. I've also watched a few of his you tube video interviews.Sent from my iPhoneOn May 21, 2010, at 2:11 PM, "W" <nicolewallaceouaf@ yahoo.com> wrote: I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.>> Lynn> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.> > so you are doing the NIDS i guess. > > you should check out this site - stopcallingitautism .org> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic. > > MATT O> >

[Guest guest]

Matt,When you're treating for viruses, you will also dump metal. Just make sure to support the organs/body.TracerSent from my iPhone

so how was he for your child?we only did andy c. ala oral chelation, no iv... the gentlest way i can think of. it did npt do a whole lot for our son.he likes valtrex, immunovir, ivig, things like that right?MATT OFrom: Cheryl L. <cheryl.lowrancegmail>To: mb12 valtrex Sent: Fri, May 21, 2010 3:07:07

PMSubject: Re: Re: valtrex dosing

He used to refuse to accept patients that have chelated but now does. Unless he's changed his mind again sometime after we left. I don't think he has, though.

Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

Matt,When you're treating for viruses, you will also dump metal. Just make sure to support the organs/body.TracerSent from my iPhone

so how was he for your child?we only did andy c. ala oral chelation, no iv... the gentlest way i can think of. it did npt do a whole lot for our son.he likes valtrex, immunovir, ivig, things like that right?MATT OFrom: Cheryl L. <cheryl.lowrancegmail>To: mb12 valtrex Sent: Fri, May 21, 2010 3:07:07

PMSubject: Re: Re: valtrex dosing

He used to refuse to accept patients that have chelated but now does. Unless he's changed his mind again sometime after we left. I don't think he has, though.

Cheryl~http://www. gryffins- tail.blogspot. com~@midian42~

I read or heard somewhere that Goldberg beleived that if you had done DAN and chelation you'd screwed up your kid more and either couldn't help you or wasn't crazy about taking you on as a patient. Maybe I'm wrong but had that in the back of my head.

>

> Lynn

>

> it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

>

> so you are doing the NIDS i guess.

>

> you should check out this site - stopcallingitautism .org

>

> it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

>

> MATT O

>

>

[Guest guest]

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that

don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and

have been trying to figure out who to see - dr. goldberg in ca or dr. russell in

ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the

videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that

don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and

have been trying to figure out who to see - dr. goldberg in ca or dr. russell in

ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the

videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

If you mean you're chelating with something like cilantro, he's likely to think you're just wasting your time and money on something that isn't doing much chelating anyway -- this is only a guess, though. That's just something I can picture him thinking about cilantro chelation.

Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that

don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and

have been trying to figure out who to see - dr. goldberg in ca or dr. russell in

ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the

videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that

don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and

have been trying to figure out who to see - dr. goldberg in ca or dr. russell in

ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the

videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

I do not recall saying dr. g was affiliated with nny, but that dr. russell is. if i misspoke sorry about that. as far as i know the only thing tying them together is the phrase NIDS, and i suppose the general treatments that go with those letters.cheryl - i know a parent who is doing subcutaneous immune treatments, gamastan i believe. is this the painful every three week thing you mentioned, the imig? do you have any experience with imig and/or ivig? our local dan has suggested we do an ivig as a trial if we do not see anyhting from valtrex... this is down the road, but it sounds kind of scary, and not super sustainable (ie don't kids tend to need lots of infusions, and these are 3k a pop and up? plus can't your child pick up lyme from an ivig, as they do not test for lyme - God only knows why aka i

suppose it comes down to money?).things like that - clarifying this meaning antiviral and immune-related therapies, but not things that involve chelation or hbot. MATT OTo: mb12 valtrex Sent: Sat, May 22, 2010 7:33:53 PMSubject: Re: valtrex dosing

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

I do not recall saying dr. g was affiliated with nny, but that dr. russell is. if i misspoke sorry about that. as far as i know the only thing tying them together is the phrase NIDS, and i suppose the general treatments that go with those letters.cheryl - i know a parent who is doing subcutaneous immune treatments, gamastan i believe. is this the painful every three week thing you mentioned, the imig? do you have any experience with imig and/or ivig? our local dan has suggested we do an ivig as a trial if we do not see anyhting from valtrex... this is down the road, but it sounds kind of scary, and not super sustainable (ie don't kids tend to need lots of infusions, and these are 3k a pop and up? plus can't your child pick up lyme from an ivig, as they do not test for lyme - God only knows why aka i

suppose it comes down to money?).things like that - clarifying this meaning antiviral and immune-related therapies, but not things that involve chelation or hbot. MATT OTo: mb12 valtrex Sent: Sat, May 22, 2010 7:33:53 PMSubject: Re: valtrex dosing

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

I do not recall saying dr. g was affiliated with nny, but that dr. russell is. if i misspoke sorry about that. as far as i know the only thing tying them together is the phrase NIDS, and i suppose the general treatments that go with those letters.cheryl - i know a parent who is doing subcutaneous immune treatments, gamastan i believe. is this the painful every three week thing you mentioned, the imig? do you have any experience with imig and/or ivig? our local dan has suggested we do an ivig as a trial if we do not see anyhting from valtrex... this is down the road, but it sounds kind of scary, and not super sustainable (ie don't kids tend to need lots of infusions, and these are 3k a pop and up? plus can't your child pick up lyme from an ivig, as they do not test for lyme - God only knows why aka i

suppose it comes down to money?).things like that - clarifying this meaning antiviral and immune-related therapies, but not things that involve chelation or hbot. MATT OTo: mb12 valtrex Sent: Sat, May 22, 2010 7:33:53 PMSubject: Re: valtrex dosing

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

These are not subq. Subq means that it's just below the surface of the upper dermis. IMIG is intramuscular and yes, those are the ones.Here's what I know, IVIG is more effective than IMIG. IVIG costs a lot more, though so I would find out if you can get it covered by insurance. IMIG is only $60 a shot. These are *both* blood borne products so there is risk. IMIG goes through a bit more of a processing thing so a little safer than IVIG (according to Dr. G, at least. That's what he told me so I can only assume that he is correct, I have no idea if it's true.) It's not 3k a pop for infusions but it can come to that as a monthly cost.One of the biggest misconceptions is that if Valtrex doesn't work then you're done. There are other antivirals to try. If there is anything that Dr. G deserves his props on its most definitely his understanding of using antivirals. I may disagree with him on the majority of everything else but damn, he knows his way around those!

Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~

I do not recall saying dr. g was affiliated with nny, but that dr. russell is. if i misspoke sorry about that. as far as i know the only thing tying them together is the phrase NIDS, and i suppose the general treatments that go with those letters.cheryl - i know a parent who is doing subcutaneous immune treatments, gamastan i believe. is this the painful every three week thing you mentioned, the imig? do you have any experience with imig and/or ivig? our local dan has suggested we do an ivig as a trial if we do not see anyhting from valtrex... this is down the road, but it sounds kind of scary, and not super sustainable (ie don't kids tend to need lots of infusions, and these are 3k a pop and up? plus can't your child pick up lyme from an ivig, as they do not test for lyme - God only knows why aka i

suppose it comes down to money?).things like that - clarifying this meaning antiviral and immune-related therapies, but not things that involve chelation or hbot. MATT OFrom: cimna19 <cimna19>To: mb12 valtrex Sent: Sat, May 22, 2010 7:33:53 PMSubject: Re: valtrex dosing

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>

[Guest guest]

These are not subq. Subq means that it's just below the surface of the upper dermis. IMIG is intramuscular and yes, those are the ones.Here's what I know, IVIG is more effective than IMIG. IVIG costs a lot more, though so I would find out if you can get it covered by insurance. IMIG is only $60 a shot. These are *both* blood borne products so there is risk. IMIG goes through a bit more of a processing thing so a little safer than IVIG (according to Dr. G, at least. That's what he told me so I can only assume that he is correct, I have no idea if it's true.) It's not 3k a pop for infusions but it can come to that as a monthly cost.One of the biggest misconceptions is that if Valtrex doesn't work then you're done. There are other antivirals to try. If there is anything that Dr. G deserves his props on its most definitely his understanding of using antivirals. I may disagree with him on the majority of everything else but damn, he knows his way around those!

Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~

I do not recall saying dr. g was affiliated with nny, but that dr. russell is. if i misspoke sorry about that. as far as i know the only thing tying them together is the phrase NIDS, and i suppose the general treatments that go with those letters.cheryl - i know a parent who is doing subcutaneous immune treatments, gamastan i believe. is this the painful every three week thing you mentioned, the imig? do you have any experience with imig and/or ivig? our local dan has suggested we do an ivig as a trial if we do not see anyhting from valtrex... this is down the road, but it sounds kind of scary, and not super sustainable (ie don't kids tend to need lots of infusions, and these are 3k a pop and up? plus can't your child pick up lyme from an ivig, as they do not test for lyme - God only knows why aka i

suppose it comes down to money?).things like that - clarifying this meaning antiviral and immune-related therapies, but not things that involve chelation or hbot. MATT OFrom: cimna19 <cimna19>To: mb12 valtrex Sent: Sat, May 22, 2010 7:33:53 PMSubject: Re: valtrex dosing

Hi,

All chelation, in his opinion, is harmful? Would that include chelation that don't use chemicals?

> >

> > Lynn

> >

> > it's funny you mentioned dr. g. we just ran all kinds of immuno panels and have been trying to figure out who to see - dr. goldberg in ca or dr. russell in ny.

> >

> > so you are doing the NIDS i guess.

> >

> > you should check out this site - stopcallingitautism .org

> >

> > it is authored by a dad (juan) who went to and is still seeing dr. g.. the videos of his son before and after are pretty dramatic.

> >

> > MATT O

> >

> >

>