Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Stephie, You can also juice. I throw some veggies in the juicer and drink a couple glasses a day. Add some essential fatty acids and protein and you have a meal. - PH > > Stephie, > > There are a lot of veggies you can eat raw. In fact, raw is better . . . then all kinds of fruits and nuts . . . No cooking required. . . > > Beans are so easy to cook in the slow cooker! . . . add whatever seasonings you like. > > The hardest thing is drawing up your plan. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Wonderful Krista . . . You've got a keeper! . . . Keep that communication going . . . Very, very important! Encourage him to get out of the house and take care of himself! . . . He needs to be healthy too! Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi Krista, Wow, your husband does have his hands full! Too bad there's not a support group for husbands...not that my guy would consider using it...but he's in a similar stressful situation as your hubby. He was just promoted at his job and now supervises several people with a ton of additional responsibilities. His dad just passed away a few weeks ago too so he's had a ton of responsbilities helping his sisters with the estate, moving, funeral, and just the sadness of loss. Plus he's trying his best to make up for where I'm lacking in my former abilities around the house. It's weird as I never thought I'd be in a situation like this but I have to say we're at the lowest of lows in life. The good news is we can only go up!!! In many respects, be thankful that you don't have children yet. That's been the toughest...not wanting the kids to see me sad or ill although they have to sense that things have changed some. Who knows, maybe in the big scheme of things you had to get your implants out in order to have healthy children. Sometimes I think that maybe by my suffering, my new healthy lifestyle will prevent terrible illness in my husband or kids. We don't understand all the reasons for this, but who knows, it could be a blessing in disguise. So glad your talk went well for you and your husband. Love, PH > > > > > > > > > > Hey Everyone- So, I think this probably the worst day I've had > > since > > > > > explant. For the first week, while I was tired, I wasn't in a > > lot of > > > > > pain other then the soreness in my breasts. The last couple of > > days, > > > > > my strange all over achiness has returned. Today I just felt so > > bad, > > > > > that I wanted to try anything to feel better. So, I took one of > > all > > > > of > > > > > the different vitamins I had (I know, stupid, but I'm just so > > > > > frustrated.) I think I probably took too many because I've been > > > > > feeling very nauseous for the past few hours. I am just so > > > > frustrated > > > > > and scared! > > > > > My hubby has been home with me all weekend, and I feel like he > > keeps > > > > > making excuses to leave the house. He says he just bored, so he > > > > keeps > > > > > going to the gym, right now he said he is going on a walk > > because he > > > > > needs to get out of the house. While I know he loves me and > > does not > > > > > want to hurt me, this does hurt me. I feel like I am being left > > > > > behind. I've tried to talk to him, but he just does not get it! > > He > > > > > said " I thought getting the implants out was going to take care > > of > > > > > this? " I tried to tell him that I am going to need to work at > > it, so > > > > > then he said " then why aren't you working at it, you aren't > > doing > > > > > anything. " Then I asked what he thinks I should do, he > > says " you > > > > need > > > > > to exercise, sitting on the couch is not going to make you feel > > > > > better. " Maybe he's right, but I CAN'T exercise right now! Not > > just > > > > > because I just had surgery 9 days ago but because my body hurts > > too > > > > > much and I feel sick all the time! How do I get him to > > understand > > > > what > > > > > I am going through and how he can support me? He's not very > > good > > > > with > > > > > handling the ups and downs of life, he really likes things to > > be > > > > even > > > > > keel and when they're not, he gets really withdrawn, which is > > what > > > > he > > > > > is doing now. I just don't know what to do. I worry that we > > won't > > > > get > > > > > through this because there just doesn't seem to be any answers, > > it's > > > > > not like losing a job where you can just get another one to fix > > the > > > > > problem. There is no fix! > > > > > I am just beyond scared and depressed right now. I love my > > husband > > > > so > > > > > much and I'm so tired of being sick. > > > > > I've been eating as healthy as I can, resting...what else is > > there? > > > > > Thanks for any advice. > > > > > Love, Krista > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 I needed this advice too. I am giving my symptoms too much energy right now as well. It is difficult to concentrate on anything else when you're not feeling well. It's like when you have the stomach flu and the only thing you can do is lay and bed, then go throw up, then lay in bed, over and over until it passes. The flu is all consuming when you have it, that is what all of this is like, only you don't know where the light at the end of the tunnel is and you are scared out of your mind. Steph- The only thing we have right now is hope. Don't give up on that hope. I understand what you are going through, I'm there too. Love, Krista > > Stephie, > > I wish I had a key to turn the switch on how you're thinking. > > You're actually making yourself worse through your thought pattern at this time. > > It takes some mental gymnastics to change a mind set when you're where you're at right now . . . I wish I know which techniques would work for you! > > I'd suggest finding someone who needs help more than you . . . A shut-in friend or family member who would appreciate a phone call . . .. A funny video . . . a funny book . . . making something to surprise a friend - like a funny gift or card. > > I'm afraid you're giving your symptoms too much energy right now . . .. Write them down, then find something else to think about. . . Even if it means taking a break from the group while you do. > > Where you're at right now isn't helping you physically, or mentally. .. . . When we accept the mindset that we're sick and not going to get better, we quit doing what it takes to get better. . . . You have to take control of your health . .. You're the only one who can do it! > > What's going on with you is not terminal. . . It's frustrating as ****, but you're going to get through it - one step at a time. > > You're the only one who can take those steps! . . . > > I really, truly wish it was easier! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 I read somewhere about a woman who had MS-like symptoms and felt as though she had the flu all the time. After feeling sorry for herself, she decided she would change her tune. She began pretending it was the real flu because she knew she had always recovered in a couple days. So she started telling herself, " In two days I'll recover. " Eventually it came true. She's been symptom-free for over 12 years. - PH > > > > Stephie, > > > > I wish I had a key to turn the switch on how you're thinking. > > > > You're actually making yourself worse through your thought pattern > at this time. > > > > It takes some mental gymnastics to change a mind set when you're > where you're at right now . . . I wish I know which techniques would > work for you! > > > > I'd suggest finding someone who needs help more than you . . . A > shut-in friend or family member who would appreciate a phone call . . > . A funny video . . . a funny book . . . making something to surprise > a friend - like a funny gift or card. > > > > I'm afraid you're giving your symptoms too much energy right now . . > . Write them down, then find something else to think about. . . Even > if it means taking a break from the group while you do. > > > > Where you're at right now isn't helping you physically, or mentally. > . . . When we accept the mindset that we're sick and not going to get > better, we quit doing what it takes to get better. . . . You have to > take control of your health . .. You're the only one who can do it! > > > > What's going on with you is not terminal. . . It's frustrating as > ****, but you're going to get through it - one step at a time. > > > > You're the only one who can take those steps! . . . > > > > I really, truly wish it was easier! > > > > Hugs and prayers, > > > > Rogene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 PH- Yes, I do feel lucky that I don't have children yet and I'm not worrying about if they are being cared for while I am sick. But, at the same time, I just keep thinking, what if I'm never well enough to have children, I wish they were here already so I didn't have to worry about getting them here! But, I am not taking that on right now, I would just over-stress myself further. Your hubby sounds a lot like mine. He manages a team of 10, some here in Denver, some in Des Moines, some in San Fransisco and some in Minneapolis, so he has to travel some and keep up the balance of work, school and home. He will be done with his MBA next fall, so that will take some off his plate! Yes, that is a good way to look at all of this. Going through all of this, learning so much, learning to eat better and take care of ourselves better will benefit our families in the long run. That is a great way to think about all of this! So, were your symptoms similar to mine pre-explant? I don't know if you've ever told me. And, I take it they got worse after explant, like me? Love, Krista > > > > > > > > > > > > Hey Everyone- So, I think this probably the worst day I've > had > > > since > > > > > > explant. For the first week, while I was tired, I wasn't in > a > > > lot of > > > > > > pain other then the soreness in my breasts. The last couple > of > > > days, > > > > > > my strange all over achiness has returned. Today I just > felt so > > > bad, > > > > > > that I wanted to try anything to feel better. So, I took > one of > > > all > > > > > of > > > > > > the different vitamins I had (I know, stupid, but I'm just > so > > > > > > frustrated.) I think I probably took too many because I've > been > > > > > > feeling very nauseous for the past few hours. I am just so > > > > > frustrated > > > > > > and scared! > > > > > > My hubby has been home with me all weekend, and I feel like > he > > > keeps > > > > > > making excuses to leave the house. He says he just bored, > so he > > > > > keeps > > > > > > going to the gym, right now he said he is going on a walk > > > because he > > > > > > needs to get out of the house. While I know he loves me and > > > does not > > > > > > want to hurt me, this does hurt me. I feel like I am being > left > > > > > > behind. I've tried to talk to him, but he just does not get > it! > > > He > > > > > > said " I thought getting the implants out was going to take > care > > > of > > > > > > this? " I tried to tell him that I am going to need to work > at > > > it, so > > > > > > then he said " then why aren't you working at it, you aren't > > > doing > > > > > > anything. " Then I asked what he thinks I should do, he > > > says " you > > > > > need > > > > > > to exercise, sitting on the couch is not going to make you > feel > > > > > > better. " Maybe he's right, but I CAN'T exercise right now! > Not > > > just > > > > > > because I just had surgery 9 days ago but because my body > hurts > > > too > > > > > > much and I feel sick all the time! How do I get him to > > > understand > > > > > what > > > > > > I am going through and how he can support me? He's not very > > > good > > > > > with > > > > > > handling the ups and downs of life, he really likes things > to > > > be > > > > > even > > > > > > keel and when they're not, he gets really withdrawn, which > is > > > what > > > > > he > > > > > > is doing now. I just don't know what to do. I worry that we > > > won't > > > > > get > > > > > > through this because there just doesn't seem to be any > answers, > > > it's > > > > > > not like losing a job where you can just get another one to > fix > > > the > > > > > > problem. There is no fix! > > > > > > I am just beyond scared and depressed right now. I love my > > > husband > > > > > so > > > > > > much and I'm so tired of being sick. > > > > > > I've been eating as healthy as I can, resting...what else > is > > > there? > > > > > > Thanks for any advice. > > > > > > Love, Krista > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Krista, When you had the flu, you knew it was going to pass, didn't you? You didn't entertain the thought that you would feel like that the rest of your life, did you? This is no different. . . . You may have to just accept that you feel bad right now and that this a temporary stage you're going through . . . Just know that this will pass. It will be easier to handle when you do. From there, start looking for things that make you feel better. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Rogene- yeah, I know this will pass...it's just the LONGEST flu I've ever had....going on 9 months now :-(. That's why I can't think of it in years, one day at a time for me, that's all I can do. ~Krista > > Krista, > > When you had the flu, you knew it was going to pass, didn't you? You didn't entertain the thought that you would feel like that the rest of your life, did you? > > This is no different. . . . You may have to just accept that you feel bad right now and that this a temporary stage you're going through . . . Just know that this will pass. It will be easier to handle when you do. > > From there, start looking for things that make you feel better. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Krista, Try not to worry about having children. You're young and when you start feeling well enough, you can talk w/ a member, P, who completely recovered and has had two more healthy children. It can happen...you just have to be diligent in practicing health. I think my symptoms were actually worse than yours pre-explant. I became so confused that I went out to my car with the oven mit on and tried to drive with it!! Post explant, I lost vision in my left eye, which thank God, has returned. My symptoms became worse after explant and I was pretty messed up...I think it's from the heavy duty anesthesia and antibiotics. I still have occasional brain fog and occasional blurry vision but I have moments of clarity so I know I just need to get these toxins out and I'll be fine. My most troubling symptom today was fatigue but I've had a busy week. My family goes out to Keystone every summer. I'll have to visit you and Lynn on my way out. have you two met? I live in St. Louis. I have family in Boulder so the next time I'm out there the three of us will have to meet up!! Love, PH > > > > > > > > > > > > > > Hey Everyone- So, I think this probably the worst day I've > > had > > > > since > > > > > > > explant. For the first week, while I was tired, I wasn't in > > a > > > > lot of > > > > > > > pain other then the soreness in my breasts. The last couple > > of > > > > days, > > > > > > > my strange all over achiness has returned. Today I just > > felt so > > > > bad, > > > > > > > that I wanted to try anything to feel better. So, I took > > one of > > > > all > > > > > > of > > > > > > > the different vitamins I had (I know, stupid, but I'm just > > so > > > > > > > frustrated.) I think I probably took too many because I've > > been > > > > > > > feeling very nauseous for the past few hours. I am just so > > > > > > frustrated > > > > > > > and scared! > > > > > > > My hubby has been home with me all weekend, and I feel like > > he > > > > keeps > > > > > > > making excuses to leave the house. He says he just bored, > > so he > > > > > > keeps > > > > > > > going to the gym, right now he said he is going on a walk > > > > because he > > > > > > > needs to get out of the house. While I know he loves me and > > > > does not > > > > > > > want to hurt me, this does hurt me. I feel like I am being > > left > > > > > > > behind. I've tried to talk to him, but he just does not get > > it! > > > > He > > > > > > > said " I thought getting the implants out was going to take > > care > > > > of > > > > > > > this? " I tried to tell him that I am going to need to work > > at > > > > it, so > > > > > > > then he said " then why aren't you working at it, you aren't > > > > doing > > > > > > > anything. " Then I asked what he thinks I should do, he > > > > says " you > > > > > > need > > > > > > > to exercise, sitting on the couch is not going to make you > > feel > > > > > > > better. " Maybe he's right, but I CAN'T exercise right now! > > Not > > > > just > > > > > > > because I just had surgery 9 days ago but because my body > > hurts > > > > too > > > > > > > much and I feel sick all the time! How do I get him to > > > > understand > > > > > > what > > > > > > > I am going through and how he can support me? He's not very > > > > good > > > > > > with > > > > > > > handling the ups and downs of life, he really likes things > > to > > > > be > > > > > > even > > > > > > > keel and when they're not, he gets really withdrawn, which > > is > > > > what > > > > > > he > > > > > > > is doing now. I just don't know what to do. I worry that we > > > > won't > > > > > > get > > > > > > > through this because there just doesn't seem to be any > > answers, > > > > it's > > > > > > > not like losing a job where you can just get another one to > > fix > > > > the > > > > > > > problem. There is no fix! > > > > > > > I am just beyond scared and depressed right now. I love my > > > > husband > > > > > > so > > > > > > > much and I'm so tired of being sick. > > > > > > > I've been eating as healthy as I can, resting...what else > > is > > > > there? > > > > > > > Thanks for any advice. > > > > > > > Love, Krista > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 No, Lynn and I haven't met yet, but we definitely need to. Cherie and I tried to meet up when she was here, but our surgeries were too close together to make it work. I'd love to get together with you and Lynn when you come out to colorado. My hubby and I love keystone. It's good to hear that others felt worse after explant because I sure do! It's not like a sickness that can be explained though, just an all-over " I don't good. " Sure hope it starts getting better....very very soon! ~Krista > > > > > > > > > > > > > > > > Hey Everyone- So, I think this probably the worst day > I've > > > had > > > > > since > > > > > > > > explant. For the first week, while I was tired, I > wasn't in > > > a > > > > > lot of > > > > > > > > pain other then the soreness in my breasts. The last > couple > > > of > > > > > days, > > > > > > > > my strange all over achiness has returned. Today I just > > > felt so > > > > > bad, > > > > > > > > that I wanted to try anything to feel better. So, I > took > > > one of > > > > > all > > > > > > > of > > > > > > > > the different vitamins I had (I know, stupid, but I'm > just > > > so > > > > > > > > frustrated.) I think I probably took too many because > I've > > > been > > > > > > > > feeling very nauseous for the past few hours. I am just > so > > > > > > > frustrated > > > > > > > > and scared! > > > > > > > > My hubby has been home with me all weekend, and I feel > like > > > he > > > > > keeps > > > > > > > > making excuses to leave the house. He says he just > bored, > > > so he > > > > > > > keeps > > > > > > > > going to the gym, right now he said he is going on a > walk > > > > > because he > > > > > > > > needs to get out of the house. While I know he loves me > and > > > > > does not > > > > > > > > want to hurt me, this does hurt me. I feel like I am > being > > > left > > > > > > > > behind. I've tried to talk to him, but he just does not > get > > > it! > > > > > He > > > > > > > > said " I thought getting the implants out was going to > take > > > care > > > > > of > > > > > > > > this? " I tried to tell him that I am going to need to > work > > > at > > > > > it, so > > > > > > > > then he said " then why aren't you working at it, you > aren't > > > > > doing > > > > > > > > anything. " Then I asked what he thinks I should do, he > > > > > says " you > > > > > > > need > > > > > > > > to exercise, sitting on the couch is not going to make > you > > > feel > > > > > > > > better. " Maybe he's right, but I CAN'T exercise right > now! > > > Not > > > > > just > > > > > > > > because I just had surgery 9 days ago but because my > body > > > hurts > > > > > too > > > > > > > > much and I feel sick all the time! How do I get him to > > > > > understand > > > > > > > what > > > > > > > > I am going through and how he can support me? He's not > very > > > > > good > > > > > > > with > > > > > > > > handling the ups and downs of life, he really likes > things > > > to > > > > > be > > > > > > > even > > > > > > > > keel and when they're not, he gets really withdrawn, > which > > > is > > > > > what > > > > > > > he > > > > > > > > is doing now. I just don't know what to do. I worry > that we > > > > > won't > > > > > > > get > > > > > > > > through this because there just doesn't seem to be any > > > answers, > > > > > it's > > > > > > > > not like losing a job where you can just get another > one to > > > fix > > > > > the > > > > > > > > problem. There is no fix! > > > > > > > > I am just beyond scared and depressed right now. I love > my > > > > > husband > > > > > > > so > > > > > > > > much and I'm so tired of being sick. > > > > > > > > I've been eating as healthy as I can, resting...what > else > > > is > > > > > there? > > > > > > > > Thanks for any advice. > > > > > > > > Love, Krista > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hello Miss Krista, I just read your post. I'm sorry that things are going crappy and your not feeling well. Please know that YOU ARE NOT ALONE! I am soooo dang tired and I do not not want to do to anything including going back to work tomorrow. My daughter spent the day with her dad but now that she's home she's driving me nuts!! She has austism so it is always a challenge. When ever she spends time with dad, she comes home a brat! You see....daddy gives her whatever she wants...when she wants it.....mommy does not! Now that her and I are done fighting this evening about cleaning her room and taking her bath, I now have a bit of quite time to catch up here. I've been thinking about you and am sorry to hear about your hubby. I must say, he sounds very normal....ya know, the guy thing. Please know that we are all here to support you, even when you need to vent. I'm a bit disappointed myself, I thought I would be feeling better too. To top it all off today, I was eating some toast and one of my front tooth veneers came off. Luckily I didn't swollow it. But now I have to go to the dentist tomorrow and have him cement it back on. I look quite attractive today...swollen breasts, black and blue legs and toothless. I'm quite a beauty today ! I'm trying to stay positive and after reading some of the posts here today, I realize that we are all having some sort of issue that we must get thru. However, we have each other and can make each other laugh. I'm going to try and find some funny on T.V. and then once again sleep....I've become good at that this week. You are in my prayers and are in hopes tomorrow will be a better day for all of us. Sleep well my dear and I will chat with you tomorrow. Hugs and prayers to you! Your toothless friend Cherie!! > > Hey Everyone- So, I think this probably the worst day I've had since > explant. For the first week, while I was tired, I wasn't in a lot of > pain other then the soreness in my breasts. The last couple of days, > my strange all over achiness has returned. Today I just felt so bad, > that I wanted to try anything to feel better. So, I took one of all of > the different vitamins I had (I know, stupid, but I'm just so > frustrated.) I think I probably took too many because I've been > feeling very nauseous for the past few hours. I am just so frustrated > and scared! > My hubby has been home with me all weekend, and I feel like he keeps > making excuses to leave the house. He says he just bored, so he keeps > going to the gym, right now he said he is going on a walk because he > needs to get out of the house. While I know he loves me and does not > want to hurt me, this does hurt me. I feel like I am being left > behind. I've tried to talk to him, but he just does not get it! He > said " I thought getting the implants out was going to take care of > this? " I tried to tell him that I am going to need to work at it, so > then he said " then why aren't you working at it, you aren't doing > anything. " Then I asked what he thinks I should do, he says " you need > to exercise, sitting on the couch is not going to make you feel > better. " Maybe he's right, but I CAN'T exercise right now! Not just > because I just had surgery 9 days ago but because my body hurts too > much and I feel sick all the time! How do I get him to understand what > I am going through and how he can support me? He's not very good with > handling the ups and downs of life, he really likes things to be even > keel and when they're not, he gets really withdrawn, which is what he > is doing now. I just don't know what to do. I worry that we won't get > through this because there just doesn't seem to be any answers, it's > not like losing a job where you can just get another one to fix the > problem. There is no fix! > I am just beyond scared and depressed right now. I love my husband so > much and I'm so tired of being sick. > I've been eating as healthy as I can, resting...what else is there? > Thanks for any advice. > Love, Krista > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Dear Krista, You poor thing. I know how difficult it is to feel so bad and at the same time be worried that your husband is getting tired of you being sick. If you've felt you must downplay your illness, you must really be feeling alone with this. Would it help for him to have contact with another man whose partner or wife has been through this? My partner would be happy to talk to him through email, if that would help. My partner also had a hard time with me being sick. I was totally debilitated for six months, and he had to come home from work every night and cook, do housework, grocery shop, etc. He had his own ways of dealing with it, like retreating into his guitar playing for hours at night. I understood it was challenging to be around me when I felt so bad all the time, but it also made me feel lonely. We've since worked through the difficulties, and I am SO much better now, so things are not as hard. YOU will get better, but it's only been 9 days, girl! Give yourself permission to heal, at least a month before you doing anything other than resting when you have the chance. Your body is whacked out! Some things that helped me feel better while I waited to heal: I walked every day for 45 minutes and still do. You may not be ready to walk a lot, but try and do it for at least 15 minutes a day if you can. It will make a HUGE difference in pain and energy levels. Take baths or hot showers. If you have a hot tub, even better-- you can sit in it with your husband. Get massages if you can afford them. Do as many relaxing, pleasurable activities as you can fit into your day. Do things that distract you from your discomfort-- movies, music, reading, whatever works for you. One thing that my partner and I agreed on to help us through my hard times was for him to sit and listen to me talk for 10 minutes every day, often while he rubbed my back. I would talk about how I felt(usually pretty crappy) and he would listen. After this period I wouldn't mention it again for the rest of the day. This helped us a lot. Often after being listened to for 10 minutes, I didn't need or want to talk about my troubles anymore anyway. Just being heard helped me immensely. And it helped my partner, too, because he knew that my condition wasn't going to be the only subject we ever talked about, that life could have some normalcy that included his needs and desires. If things get really hairy you might want to try couples counseling, just to have a forum where you can both express your feelings and feel heard, in a safe setting with an unbiased third party. You shouldn't have to hide your feelings, Krista. You need support. You and your husband are going to have many hurdles to leap over together in the future-- it comes with the territory, especially if children enter the picture. This illness of yours is an opportunity for you as a couple to learn and grow in your relationship. I know it has been for me. I hope you feel some relief soon. Bindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Wonderful recommendation Bindi! . . . It's wonderful to see you getting better too! Hugs, Rogene Re: Having a Really bad day- Any advice is appreciated! Dear Krista, You poor thing. I know how difficult it is to feel so bad and at the same time be worried that your husband is getting tired of you being sick. If you've felt you must downplay your illness, you must really be feeling alone with this. Would it help for him to have contact with another man whose partner or wife has been through this? My partner would be happy to talk to him through email, if that would help. My partner also had a hard time with me being sick. I was totally debilitated for six months, and he had to come home from work every night and cook, do housework, grocery shop, etc. He had his own ways of dealing with it, like retreating into his guitar playing for hours at night. I understood it was challenging to be around me when I felt so bad all the time, but it also made me feel lonely. We've since worked through the difficulties, and I am SO much better now, so things are not as hard. YOU will get better, but it's only been 9 days, girl! Give yourself permission to heal, at least a month before you doing anything other than resting when you have the chance. Your body is whacked out! Some things that helped me feel better while I waited to heal: I walked every day for 45 minutes and still do. You may not be ready to walk a lot, but try and do it for at least 15 minutes a day if you can. It will make a HUGE difference in pain and energy levels. Take baths or hot showers. If you have a hot tub, even better-- you can sit in it with your husband. Get massages if you can afford them. Do as many relaxing, pleasurable activities as you can fit into your day. Do things that distract you from your discomfort-- movies, music, reading, whatever works for you. One thing that my partner and I agreed on to help us through my hard times was for him to sit and listen to me talk for 10 minutes every day, often while he rubbed my back. I would talk about how I felt(usually pretty crappy) and he would listen. After this period I wouldn't mention it again for the rest of the day. This helped us a lot. Often after being listened to for 10 minutes, I didn't need or want to talk about my troubles anymore anyway. Just being heard helped me immensely. And it helped my partner, too, because he knew that my condition wasn't going to be the only subject we ever talked about, that life could have some normalcy that included his needs and desires. If things get really hairy you might want to try couples counseling, just to have a forum where you can both express your feelings and feel heard, in a safe setting with an unbiased third party. You shouldn't have to hide your feelings, Krista. You need support. You and your husband are going to have many hurdles to leap over together in the future-- it comes with the territory, especially if children enter the picture. This illness of yours is an opportunity for you as a couple to learn and grow in your relationship. I know it has been for me. I hope you feel some relief soon. Bindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi Krista, It takes a while before most of us start feeling better after explant, and since you just had surgery you definitely shouldn't exercise just yet. I know you're aware that explant isn't a quick fix to what ails us, but I understand how it feels at first to want to see some signs of improvement. It's just too soon for that, and I know it's hard but try your best to be patient with your body. For me, it took about six months before I started feeling somewhat better, and it's been a very slow progression ever since and it's been two years since explant for me. As for your husband, there's no way he can understand what you're going through and the men-folk really do seem to expect us to bounce back immediately. They want proof because often they're skeptical of implant illness. My husband was an absolute bear the whole time I had implants (I got sick right away and had them for six months before explant), and he wasn't good to me at all when I had my explant. All you can do is be good to yourself right now. When the going got tough, my husband got going - but I forgave him in the end and we're doing well now. Sis > > Hey Everyone- So, I think this probably the worst day I've had since > explant. For the first week, while I was tired, I wasn't in a lot of > pain other then the soreness in my breasts. The last couple of days, > my strange all over achiness has returned. Today I just felt so bad, > that I wanted to try anything to feel better. So, I took one of all of > the different vitamins I had (I know, stupid, but I'm just so > frustrated.) I think I probably took too many because I've been > feeling very nauseous for the past few hours. I am just so frustrated > and scared! > My hubby has been home with me all weekend, and I feel like he keeps > making excuses to leave the house. He says he just bored, so he keeps > going to the gym, right now he said he is going on a walk because he > needs to get out of the house. While I know he loves me and does not > want to hurt me, this does hurt me. I feel like I am being left > behind. I've tried to talk to him, but he just does not get it! He > said " I thought getting the implants out was going to take care of > this? " I tried to tell him that I am going to need to work at it, so > then he said " then why aren't you working at it, you aren't doing > anything. " Then I asked what he thinks I should do, he says " you need > to exercise, sitting on the couch is not going to make you feel > better. " Maybe he's right, but I CAN'T exercise right now! Not just > because I just had surgery 9 days ago but because my body hurts too > much and I feel sick all the time! How do I get him to understand what > I am going through and how he can support me? He's not very good with > handling the ups and downs of life, he really likes things to be even > keel and when they're not, he gets really withdrawn, which is what he > is doing now. I just don't know what to do. I worry that we won't get > through this because there just doesn't seem to be any answers, it's > not like losing a job where you can just get another one to fix the > problem. There is no fix! > I am just beyond scared and depressed right now. I love my husband so > much and I'm so tired of being sick. > I've been eating as healthy as I can, resting...what else is there? > Thanks for any advice. > Love, Krista > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi Bindi, I love your idea about setting aside 10 minutes to talk about your symptoms and then moving on. My husband and I'll have to do that instead of me whining thoughout the whole day. Thanks for the tip. Love, PH > > Dear Krista, > You poor thing. I know how difficult it is to feel so bad and at the same time be worried that your husband is getting tired of you being sick. If you've felt you must downplay your illness, you must really be feeling alone with this. > > Would it help for him to have contact with another man whose partner or wife has been through this? My partner would be happy to talk to him through email, if that would help. > > My partner also had a hard time with me being sick. I was totally debilitated for six months, and he had to come home from work every night and cook, do housework, grocery shop, etc. He had his own ways of dealing with it, like retreating into his guitar playing for hours at night. I understood it was challenging to be around me when I felt so bad all the time, but it also made me feel lonely. We've since worked through the difficulties, and I am SO much better now, so things are not as hard. > > YOU will get better, but it's only been 9 days, girl! Give yourself permission to heal, at least a month before you doing anything other than resting when you have the chance. Your body is whacked out! > > Some things that helped me feel better while I waited to heal: > > I walked every day for 45 minutes and still do. You may not be ready to walk a lot, but try and do it for at least 15 minutes a day if you can. It will make a HUGE difference in pain and energy levels. > > Take baths or hot showers. If you have a hot tub, even better-- you can sit in it with your husband. Get massages if you can afford them. Do as many relaxing, pleasurable activities as you can fit into your day. Do things that distract you from your discomfort-- movies, music, reading, whatever works for you. > > One thing that my partner and I agreed on to help us through my hard times was for him to sit and listen to me talk for 10 minutes every day, often while he rubbed my back. I would talk about how I felt(usually pretty crappy) and he would listen. After this period I wouldn't mention it again for the rest of the day. This helped us a lot. Often after being listened to for 10 minutes, I didn't need or want to talk about my troubles anymore anyway. Just being heard helped me immensely. And it helped my partner, too, because he knew that my condition wasn't going to be the only subject we ever talked about, that life could have some normalcy that included his needs and desires. > > If things get really hairy you might want to try couples counseling, just to have a forum where you can both express your feelings and feel heard, in a safe setting with an unbiased third party. You shouldn't have to hide your feelings, Krista. You need support. You and your husband are going to have many hurdles to leap over together in the future-- it comes with the territory, especially if children enter the picture. This illness of yours is an opportunity for you as a couple to learn and grow in your relationship. I know it has been for me. > > I hope you feel some relief soon. > > Bindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Krista . .. That's the way to do it . . .One day at a time! If you'll keep a journal, you'll be able to see your progress better. Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi Dede, I've been thinking about you and I'm sorry to hear your not feeling well today. I'm real behind on what's been going on with everyone. I've been doing an enourmous amount of sleeping. Glad your dad enjoyed church, I enjoy it to when I can make it. I hope tomorrow brings you a brighter and happier day. Your in my prayers my dear! Hugs to you! Cherie > > Traci ~ > Dad is ok, he went to church......so he loved that. > I havent felt well today. Emotions are good, physically > pretty challenged. Alot of pain today, and too low bp, > kidney pain and the list goes on.....tomorrow will be better.. > its just one of those very challenging days....my brain isnt > functioning well either..... > Thank you for asking, how are you my dear? > loveya ~ Dede > > > > ************************************** See what's new at http://www.aol.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi Bindi, What were your symptoms after you were explanted? I'm feeling fatigue, nausea, and now I have an eye infection in both eyes! > > Dear Krista, > You poor thing. I know how difficult it is to feel so bad and at the same time be worried that your husband is getting tired of you being sick. If you've felt you must downplay your illness, you must really be feeling alone with this. > > Would it help for him to have contact with another man whose partner or wife has been through this? My partner would be happy to talk to him through email, if that would help. > > My partner also had a hard time with me being sick. I was totally debilitated for six months, and he had to come home from work every night and cook, do housework, grocery shop, etc. He had his own ways of dealing with it, like retreating into his guitar playing for hours at night. I understood it was challenging to be around me when I felt so bad all the time, but it also made me feel lonely. We've since worked through the difficulties, and I am SO much better now, so things are not as hard. > > YOU will get better, but it's only been 9 days, girl! Give yourself permission to heal, at least a month before you doing anything other than resting when you have the chance. Your body is whacked out! > > Some things that helped me feel better while I waited to heal: > > I walked every day for 45 minutes and still do. You may not be ready to walk a lot, but try and do it for at least 15 minutes a day if you can. It will make a HUGE difference in pain and energy levels. > > Take baths or hot showers. If you have a hot tub, even better-- you can sit in it with your husband. Get massages if you can afford them. Do as many relaxing, pleasurable activities as you can fit into your day. Do things that distract you from your discomfort-- movies, music, reading, whatever works for you. > > One thing that my partner and I agreed on to help us through my hard times was for him to sit and listen to me talk for 10 minutes every day, often while he rubbed my back. I would talk about how I felt(usually pretty crappy) and he would listen. After this period I wouldn't mention it again for the rest of the day. This helped us a lot. Often after being listened to for 10 minutes, I didn't need or want to talk about my troubles anymore anyway. Just being heard helped me immensely. And it helped my partner, too, because he knew that my condition wasn't going to be the only subject we ever talked about, that life could have some normalcy that included his needs and desires. > > If things get really hairy you might want to try couples counseling, just to have a forum where you can both express your feelings and feel heard, in a safe setting with an unbiased third party. You shouldn't have to hide your feelings, Krista. You need support. You and your husband are going to have many hurdles to leap over together in the future-- it comes with the territory, especially if children enter the picture. This illness of yours is an opportunity for you as a couple to learn and grow in your relationship. I know it has been for me. > > I hope you feel some relief soon. > > Bindi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 We sound the same except I don't have any achiness, yet. I really wanted to start trying for a baby at the beginning of next year. I seen the website for the Maker's Diet and decided to join online. Looks like they have some great recipes. Do you know if Whole Food's would have the grass-fed red meats? > > > > > > Krista, > > > > > > When you think in term of years to get better . . . realize that > > you will be gradually getting better that entire time. . . It's not > > like turning on a light at the end of those years and > > being " well " . . . It's a gradual process that you will barely > > notice, unless you are keeping a journal. . . > > > > > > IMHO, where you are now is the worst you will likely > > experience . . . you'll gradually feel better and better . . . bad > > days farther and farther apart . . . One day you'll look back and > > realize how far you've come. > > > > > > One of the biggest obstacles is letting go of the stress, anger and > > guilt. All of these take valuable energy that is better spent on > > healing. > > > > > > You're going to get there! . . . Trust that you will, then do > > everything to help your body accomplish what it needs to do. > > > > > > Hugs and prayers, > > > > > > Rogene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Thanks Rogene. I think I'm going to make a chicken with some celery, carrots, and brocolli and put them in the slow cooker for tonight's dinner. > > Stephie, > > There are a lot of veggies you can eat raw. In fact, raw is better . . . then all kinds of fruits and nuts . . . No cooking required. . . > > Beans are so easy to cook in the slow cooker! . . . add whatever seasonings you like. > > The hardest thing is drawing up your plan. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi PH. Did you have trouble sleeping. Once I fall asleep, I must wake up about 3 times during the night and wake up very early in the morning. > > > > > > > > Hey Everyone- So, I think this probably the worst day I've had > > since > > > > explant. For the first week, while I was tired, I wasn't in a > lot > > of > > > > pain other then the soreness in my breasts. The last couple of > > days, > > > > my strange all over achiness has returned. Today I just felt so > > bad, > > > > that I wanted to try anything to feel better. So, I took one of > > all > > > of > > > > the different vitamins I had (I know, stupid, but I'm just so > > > > frustrated.) I think I probably took too many because I've been > > > > feeling very nauseous for the past few hours. I am just so > > > frustrated > > > > and scared! > > > > My hubby has been home with me all weekend, and I feel like he > > keeps > > > > making excuses to leave the house. He says he just bored, so he > > > keeps > > > > going to the gym, right now he said he is going on a walk > because > > he > > > > needs to get out of the house. While I know he loves me and > does > > not > > > > want to hurt me, this does hurt me. I feel like I am being left > > > > behind. I've tried to talk to him, but he just does not get it! > He > > > > said " I thought getting the implants out was going to take care > of > > > > this? " I tried to tell him that I am going to need to work at > it, > > so > > > > then he said " then why aren't you working at it, you aren't > doing > > > > anything. " Then I asked what he thinks I should do, he > says " you > > > need > > > > to exercise, sitting on the couch is not going to make you feel > > > > better. " Maybe he's right, but I CAN'T exercise right now! Not > > just > > > > because I just had surgery 9 days ago but because my body hurts > > too > > > > much and I feel sick all the time! How do I get him to > understand > > > what > > > > I am going through and how he can support me? He's not very > good > > > with > > > > handling the ups and downs of life, he really likes things to > be > > > even > > > > keel and when they're not, he gets really withdrawn, which is > > what > > > he > > > > is doing now. I just don't know what to do. I worry that we > won't > > > get > > > > through this because there just doesn't seem to be any answers, > > it's > > > > not like losing a job where you can just get another one to fix > > the > > > > problem. There is no fix! > > > > I am just beyond scared and depressed right now. I love my > > husband > > > so > > > > much and I'm so tired of being sick. > > > > I've been eating as healthy as I can, resting...what else is > > there? > > > > Thanks for any advice. > > > > Love, Krista > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I know what you mean. My husband thinks I spend too much time online reading up about my symptoms or talking about them to the group. I'm going to try to limit my time on the computer but I'm laying in bed all day and have nothing else to do! > > Stephie, > > I wish I had a key to turn the switch on how you're thinking. > > You're actually making yourself worse through your thought pattern at this time. > > It takes some mental gymnastics to change a mind set when you're where you're at right now . . . I wish I know which techniques would work for you! > > I'd suggest finding someone who needs help more than you . . . A shut-in friend or family member who would appreciate a phone call . . . A funny video . . . a funny book . . . making something to surprise a friend - like a funny gift or card. > > I'm afraid you're giving your symptoms too much energy right now . . . Write them down, then find something else to think about. . . Even if it means taking a break from the group while you do. > > Where you're at right now isn't helping you physically, or mentally. . . . When we accept the mindset that we're sick and not going to get better, we quit doing what it takes to get better. . . . You have to take control of your health . .. You're the only one who can do it! > > What's going on with you is not terminal. . . It's frustrating as ****, but you're going to get through it - one step at a time. > > You're the only one who can take those steps! . . . > > I really, truly wish it was easier! > > Hugs and prayers, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Thanks Rogene, I joined online today at the website. Would Whole Foods have all of the ingredients that the recipes call for? > > Stephie, > > If I had to chose the most important thing in getting better after implants, it would be to eat a very healthy diet. . . . > > The Maker's Diet is an outstanding place to start. . . . > > Everything else can come later. > > Hugs, > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Thanks for the encouragement. I've just never felt this bad before and didn't expect to feel this bad after surgery. It just kind of gets depressing since the holidays are near. As if the holidays weren't going to be bad enough for my family. My step father passed away on June 28 this year. He was only 45. He passed away of sudden cardiac arrest and it's been so hard on everyone. > > > > > > Krista, > > > > > > When you think in term of years to get better . . . realize that > > you will be gradually getting better that entire time. . . It's not > > like turning on a light at the end of those years and > > being " well " . . . It's a gradual process that you will barely > > notice, unless you are keeping a journal. . . > > > > > > IMHO, where you are now is the worst you will likely > > experience . . . you'll gradually feel better and better . . . bad > > days farther and farther apart . . . One day you'll look back and > > realize how far you've come. > > > > > > One of the biggest obstacles is letting go of the stress, anger > and > > guilt. All of these take valuable energy that is better spent on > > healing. > > > > > > You're going to get there! . . . Trust that you will, then do > > everything to help your body accomplish what it needs to do. > > > > > > Hugs and prayers, > > > > > > Rogene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 Hi Stephie, I had trouble sleeping for 2 years prior to explant. I'd wake each morning between 3 and 4 unable to get back to sleep. I chalked it up to a very busy lifestyle, stress...I always found some excuse. Now I realize it was due to high cortisol. Cortisol signals your body to wake. Because of our adrenal problems, our cortisol levels fluctuate more than the average persons. At times it may be really low making you feel listless and at times it may be high making you feel anxious. When you're feeling a little stronger, have a saliva test done to measure cortisol levels. Your naturopath may give you licorice root, DHEA or pregnelone or some other type of adrenal support to help get you back on track. - PH > > > > > > > > > > Hey Everyone- So, I think this probably the worst day I've > had > > > since > > > > > explant. For the first week, while I was tired, I wasn't in a > > lot > > > of > > > > > pain other then the soreness in my breasts. The last couple > of > > > days, > > > > > my strange all over achiness has returned. Today I just felt > so > > > bad, > > > > > that I wanted to try anything to feel better. So, I took one > of > > > all > > > > of > > > > > the different vitamins I had (I know, stupid, but I'm just so > > > > > frustrated.) I think I probably took too many because I've > been > > > > > feeling very nauseous for the past few hours. I am just so > > > > frustrated > > > > > and scared! > > > > > My hubby has been home with me all weekend, and I feel like > he > > > keeps > > > > > making excuses to leave the house. He says he just bored, so > he > > > > keeps > > > > > going to the gym, right now he said he is going on a walk > > because > > > he > > > > > needs to get out of the house. While I know he loves me and > > does > > > not > > > > > want to hurt me, this does hurt me. I feel like I am being > left > > > > > behind. I've tried to talk to him, but he just does not get > it! > > He > > > > > said " I thought getting the implants out was going to take > care > > of > > > > > this? " I tried to tell him that I am going to need to work at > > it, > > > so > > > > > then he said " then why aren't you working at it, you aren't > > doing > > > > > anything. " Then I asked what he thinks I should do, he > > says " you > > > > need > > > > > to exercise, sitting on the couch is not going to make you > feel > > > > > better. " Maybe he's right, but I CAN'T exercise right now! > Not > > > just > > > > > because I just had surgery 9 days ago but because my body > hurts > > > too > > > > > much and I feel sick all the time! How do I get him to > > understand > > > > what > > > > > I am going through and how he can support me? He's not very > > good > > > > with > > > > > handling the ups and downs of life, he really likes things to > > be > > > > even > > > > > keel and when they're not, he gets really withdrawn, which is > > > what > > > > he > > > > > is doing now. I just don't know what to do. I worry that we > > won't > > > > get > > > > > through this because there just doesn't seem to be any > answers, > > > it's > > > > > not like losing a job where you can just get another one to > fix > > > the > > > > > problem. There is no fix! > > > > > I am just beyond scared and depressed right now. I love my > > > husband > > > > so > > > > > much and I'm so tired of being sick. > > > > > I've been eating as healthy as I can, resting...what else is > > > there? > > > > > Thanks for any advice. > > > > > Love, Krista > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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